Disability Inclusion in Nigeria
A Rapid Assessment
B
Disability Inclusion in Nigeria
A Rapid Assessment
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                                                           ii
Contents
Acknowledgments  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . v

Abbreviations  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . vi

Executive Summary  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . vii

1	Background  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . 1
      Objective  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2
      Research Questions  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2

2	 Statement of the Problem and Justification for the Study  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . 3

3	Methodology  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . 4
      Study Design  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .   4
      Sampling and Data Collection  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .                     4
      Ethical Considerations  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .             8
      Data Analysis  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .    8

4	 Review of Findings  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . 9
      Disability Data in Nigeria  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9
      Cultural Beliefs, Stigma, and Discrimination  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16
      Impacts of Intersectionality  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20
      Barriers to Inclusion  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25
      State Case Studies  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 73

5	 Conclusions and Key Recommendations  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . 90
      Capacity Development  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 90
      Establishment of National and State Platforms for Disability Inclusion  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 91
      Medium- or Large-Scale Local Manufacturing of Assistive Devices  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 92
      Stigma Reduction  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 92
      Disability Data Generation  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 92
      Funding  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93

References  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  . 94




                                                                                                          iii
Figures
1	       Prevalence of Functional Difficulties in Nigeria in at Least One Domain . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . viii
4.1	     Prevalence of Functional Difficulties in Nigeria in at Least One Domain . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11
4.2	     Level of Difficulty in at Least One Domain Among People with Functional Difficulty in Nigeria  . . . . . . . . . . . . . . 12
4.3	     Prevalence of “Some Difficulty” by Functional Domain and Age  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12
4.4	     Prevalence of More Severe Difficulties by Functional Domain and Age  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12
4.5	     Educational Attainment by Functional Difficulty Among Women and Girls Ages 6 to 30 . . . . . . . . . . . . . . . . . . . . . 13
4.6	     Wealth Outcomes by Functional Difficulty Among Men and Women Ages 18 to 40  . . . . . . . . . . . . . . . . . . . . . . . . . . 13
4.7	     Ownership of Assets by Functional Difficulty Among Women Ages 15 to 40  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14
4.8	     Employment by Functional Difficulty Among Women Ages 15 to 49 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14
4.9	     Unpaid Employment by Functional Difficulty Among Women Ages 15 to 49 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15

Tables
1	 Key Findings Matrix . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xii
4.1	 Key Findings Matrix . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 75




                                                                                                   iv
Acknowledgments
This report was commissioned by a team compris-               Development Specialist; Deepti Samant Raja, Disabil-
ing Varalakshmi Vemuru, Lead Social Development               ity Consultant; Idowu Oguntuashe, former Permanent
Specialist; Rosa Maria Martinez, Social Development           Secretary in the Ekiti State Public Service; Theophilus
Specialist; Michael Ilesanmi, Senior Social Development       Odaudu, Program Officer for Nigeria Disability Rights
Specialist; and Sabina Anne Espinoza, Social Inclusion        Advocacy Fund; Dr. Irene Patrick-Ogbogu, Disability
Consultant, Social Development Global Practice, World         Rights Advocacy Centre; and Shola Omotosho, Social
Bank. The report was prepared by Toyin Janet Ader-            Development Adviser, Department for International
emiIge, Social Development Consultant. Laura Johnson          Development (DFID); as well as guidance from
edited and designed the report, and Tesfahiwot Dill-          Charlotte Vuyiswa McClain-Nhlapo, Disability Advisor,
nessa provided administrative support.                        and Senait Assefa, Practice Manager, Social Develop-
                                                              ment Global Practice.
The team is grateful for the useful comments and
suggestions of Mari Helena Koistinen, Senior Social




                                                          v
Abbreviations
BMZ	       Federal Ministry for Economic                     INEC	      Independent National Electoral
           Cooperation and Development                                  Commission
           (Germany)
                                                             JONAPWD	   Joint National Association of Persons
CBR	       community-based rehabilitation                               with Disabilities

COCIN	     Church of Christ in Nations                       LASODA	    Lagos State Office for Disability Affairs

COPE	      Care of the People                                MDA	       ministries, departments, and agencies

CSO	       civil society organization                        NAPID	     National Association of Persons with
                                                                        Intellectual Disabilities
DFID	      Department for International
           Development (United Kingdom)                      NDHS		       Nigeria Demographic and Health
                                                             Survey
ECWA	      Evangelical Church Winning All
                                                             NGO	       nongovernmental organization
ESSPIN 	   Education Sector Support Programme in
           Nigeria                                           OHCSF	     Office of the Head of Civil Service of the
                                                                        Federation
FMWASD	    Federal Ministry of Women Affairs and
           Social Development                                OSHE	      occupational safety, health, and
                                                                        environment
FMPWH	     Federal Ministry of Power, Works and
           Housing                                           PEPUDA	    Promotion of Equality and Prevention of
                                                                        Unfair Discrimination Act
GHS	       General Household Survey
                                                             PERL	      Partnership to Engage, Reform and Learn
HANDS	     Health and Development Support
           Programme                                         UK	        United Kingdom

IDEA	      International Association for Integration,        UNICEF	    United Nations Children’s Fund
           Dignity and Economic Advancement
                                                             USAID	     United States Agency for International
                                                                        Development



                                                 Currency
                                              N = Nigeria Naira




                                                        vi
Executive Summary

Background                                                        and face higher rates of multidimensional poverty than
                                                                  the general population. They encounter attitudinal and
According to the World Health Organization, in 2018,              environmental barriers that hinder their full, equal,
about 29 million of the 195 million people who com-               and effective participation in society. Their lower rates
prise Nigeria’s national population were living with a            of economic and labor market participation impose a
disability. Data from the 2018 Nigeria Demographic                greater welfare burden on governments and highlights
and Health Survey reveal that an estimated 7 percent              the costs of exclusion, which range from about 3 to
of household members above the age of five (as well as            7 percent of gross domestic product (Buckup 2009).
9 percent of those 60 or older) have some level of diffi-
culty in at least one functional domain—seeing, hear-             Disability-inclusive development directly responds to the
ing, communication, cognition, walking, or self-care;             World Bank’s twin goals of ending extreme poverty and
and 1 percent either have a lot of difficulty or cannot           promoting shared prosperity; it is also directly linked to
function at all in at least one domain (see figure 1).            the Human Capital Agenda.1 The global development
These estimated rates, while significant, are probably            and poverty reduction agenda will not be effective
even higher because currently available data likely               unless it addresses the socioeconomic inequality of
underestimate the prevalence.                                     persons with disabilities and ensures their participation
                                                                  in all stages of development programs.
The prevalence rate of disabilities is expected to
                                                                  1. Human capital consists of the knowledge, skills, and health that people accumulate
increase due to the impact of aging, war, conflict, nat-          throughout their lives, enabling them to realize their potential as productive members of soci-
                                                                  ety. Investing in people through nutrition, health care, quality education, jobs and skills helps
ural disasters, and forced displacement, among other              develop human capital, and this is key to ending extreme poverty and creating more inclusive
                                                                  societies. The Human Capital Agenda pursued by the Bank is helping to create the political
factors. As a group, persons with disabilities are more           space for national leaders to prioritize transformational investments in health, education, and
                                                                  social protection through country and regional engagements, for example in South Saharan
likely to experience adverse socioeconomic outcomes               Africa.




                                                            vii
Figure 1. Prevalence of Functional Difficulties                                           The Nigerian government has expressed a strong
in Nigeria in at Least                                                                    interest in working with the World Bank to strengthen
One Domain                                                                                programs and services for persons with disabilities.
                                                                                          The Bank’s Social Development Global Practice, in
                    Cannot
                    do at all                                                             collaboration with the Nigeria Country Team, under-
                      <1%
         A lot of                                                                         took a rapid social assessment to better understand
         di culty
            1%
                                                                                          the challenges around disability inclusion across the
 Some                                                                                     various types of disabilities and to identify drivers and
di culty
  7%
                                                                                          opportunities for inclusion that could be leveraged in a
                                                                                          development context.


                                                                                          Methodology
                                                         No di culty                      This study included a desk review of published and grey
                                                            92%                           literature, a mapping of services, and an online ques-
                                                                                          tionnaire-based assessment to document the barriers
Source: NPC and ICF 2019: 458 based on Demographic and Health Survey data:
                                                                                          faced by persons with disabilities; the prevalence of
Nigeria DHS-VII (NDHS) 2018.
Note: Functional domains are seeing, hearing, communication, cognition, walking,          disabilities; available disability-related services, pro-
and self-care.
                                                                                          grams, and funding; existing legal frameworks and pol-
                                                                                          icies; and the capacity of actors for disability inclusion.
Nigeria recently signed the national-level Discrimi-
                                                                                          Findings from the literature review also guided the May
nation of Persons with Disabilities (Prohibition) Act
                                                                                          2019 collection of qualitative data from government
2018—a major disability inclusion milestone indicative
                                                                                          officials, organizations of persons with disabilities,
of the Nigerian government’s increasing prioritization
                                                                                          disability-focused organizations, and individuals with
of disability mainstreaming. Prior to the signing, a few
                                                                                          disabilities, using key informant interviews and focus
Nigerian states had enacted similar laws, which are
                                                                                          group discussions. Persons with disabilities shared
currently being implemented to varying degrees. There
                                                                                          their experiences of attitudinal and structural barriers
is no existing documentation of progress made to date
                                                                                          to accessing education, health services, employment,
or of lessons learned from the implementation of these
                                                                                          information and communications, transportation,
laws, which could otherwise be drawn on for the imple-
                                                                                          assistive devices and technology, and social protection.
mentation of the national law.

Doing nothing to address the challenges faced by per-
sons with disabilities in Nigeria will have consequences
                                                                                          Findings
for individuals as well as for the country as a whole,                                    Summarized below are the study’s findings regarding
which bears the greatest burden. Given the vicious                                        the prevalence of disabilities, stigma and discrimina-
cycle of disability and poverty, excluding persons with                                   tion, education, health, community-based rehabilita-
disabilities from accessing basic services would impact                                   tion, assistive devices and technology, employment
the country’s economy enormously.                                                         and social protection, public information and




                                                                                   viii
communications, electoral and political processes,                                                     In 2018, for the first time, the Nigeria Demographic and
public transportation, legal frameworks, and the insti-                                                Health Survey included questions in its disability mod-
tutional landscape.                                                                                    ule that were based on the Washington Group’s Short
                                                                                                       Set. The survey’s estimated disability prevalence rate
Availability of Data                                                                                   of around 8 percent is still significantly lower than the
Disability-related data are sparse in Nigeria. Data                                                    World Health Organization’s 2011 estimate of around
collection challenges include the government’s low                                                     15 percent of the global population (WHO and World
prioritization of collecting disability-disaggregated                                                  Bank 2011).
data and the lack of expertise in the collection process.
Utilizing a disability/impairment approach known to                                                    Stigma and Discrimination
yield low results (NPC 2009), the 2006 Nigerian popula-                                                Persons with disabilities in Nigeria face stigma and
tion census reported a disability prevalence rate of 2.3                                               discrimination in the form of negative attitudes among
percent. In 2011, a national baseline survey conducted                                                 family and community members, name-calling, and
by the Federal Ministry of Women Affairs and Social                                                    wrong beliefs about the causes of disabilities, which
Development2 documented a similar rate: 3.2 percent                                                    results in low self-esteem, depression, and isolation.
(FMWASD 2011).
                                                                                                       Cultural beliefs around gender roles that favor males
Nigeria’s General Household Survey Panel 2010–11                                                       magnify the challenges of women and girls with
also documents a 2 percent disability prevalence rate                                                  disabilities, who may not meet the norms in terms of
(Leonard Cheshire 2018). The panel used the Washing-                                                   beauty or of being a wife and mother, compounded by
ton Group on Disability Statistics “Short Set,”3 a set of                                              the myth that women with disabilities will give birth to
questions based on the framework of the World Health                                                   children who also have disabilities.
Organization’s International Classification of Function-
ing, Disability, and Health and commonly referred to as                                                Education
the Washington Questions. The low rates may be con-                                                    Education is inaccessible to persons with disabilities
nected to unreported alterations to survey instruments,                                                due to the lack of adapted learning materials, inade-
such as screener or introductory statements, cultural                                                  quately trained teachers, school shortages, a physically
barriers around mentioning functional difficulties, and                                                inaccessible school environment, and inaccessible com-
differences in the training of interviewers (Leonard                                                   munication. Inclusive education is typically thought
Cheshire 2018). The 2012–13 edition of the same survey                                                 to aid social inclusion, but participants expressed
has not yet been analyzed with a disability lens, and the                                              reservations about learning outcomes and the full
survey’s third wave (2015–16) only collected data on                                                   participation of children with disabilities when school
vision difficulties.                                                                                   environments, teaching staff, and supports cannot
                                                                                                       adequately meet the needs of students with diverse dis-
                                                                                                       abilities, such as by ensuring sign language immersion.
2. In August 2019, the Federal Ministry of Women Affairs and Social Development was split
to Federal Ministry of Women Affairs and Social Development was moved to a newly created
                                                                                                       Hearing impaired participants were particularly con-
Federal Ministry of Humanitarian Affairs, Disaster Management and Social Development.
3. The Washington Group “Short Set” includes questions that are designed to identify persons
                                                                                                       cerned about the development of sign language as their
with disabilities in a census or survey format, for example, if they have difficulty performing
basic universal activities such as walking, seeing, hearing, cognition, self-care, and communi-
                                                                                                       mother tongue, and participants with visual disabilities
cation. See http://www.washingtongroup-disability.com/washington-group-question-sets/
short-set-of-disability-questions/.




                                                                                                  ix
expressed concerns over the availability and use of             lacks the expertise needed for the local manufacturing
braille documents, particularly at the primary level.           of quality assistive devices and technology. Current
                                                                attempts are small in scale, obsolete, and often inappro-
Health                                                          priate for the intended users.
There is dearth of research into the accessibility of
health facilities across the country. One study reported        Employment and Social Protection
that 71 percent of respondents with disabilities in the         Attitudinal and physical barriers are among the major
states of Kogi and Niger were unable to access needed           challenges that prevent persons with disabilities in
health services (Smith 2011). Study participants with           Nigeria from obtaining gainful employment. These bar-
disabilities reported inadequate access to health               riers result in the denial of job opportunities, inappro-
services characterized by negative attitudes among              priate job placement, lower expectations at work, a lack
health workers toward persons with disabilities, igno-          of reasonable accommodations, noninclusive human
rance of health workers regarding disability issues, the        resource policies, inaccessible workplaces, and denial of
prohibitive cost of care, inaccessible information and          leadership roles. Women with disabilities may be even
communications, and inaccessible environments and               more marginalized due to “beauty” standards required
equipment.                                                      by some employers and because they have fewer
                                                                opportunities to pursue an education or develop skills.
Community-based Rehabilitation                                  These factors may partly explain Leonard Cheshire’s
Community-based rehabilitation (CBR) projects are               (2018) finding that there were no Nigerian women with
currently limited in Nigeria. Participants were only            disabilities in managerial positions compared with 0.9
aware of a few such projects in the states of Zaria             percent of women without disabilities.
and Kaduna. However, previous studies documented
                                                                Despite the disproportionate impact of poverty on
successfully implemented CBR projects in Nigeria. The
                                                                persons with disabilities in Nigeria, social protection
adoption of CBR principles and community develop-
                                                                schemes do not adequately include them, and there
ment projects can stimulate improvements in living
                                                                are no tailored interventions to reduce the impact of
conditions, self-esteem levels, and community accep-
                                                                poverty. The internal bureaucracies of the organizations
tance of people affected by leprosy. Key to a robust CBR
                                                                of persons with disabilities and a lack of accountabil-
program are staff training in the principles, adoption
                                                                ity among their leadership further negatively impacts
of rights-based approach, program ownership, effec-
                                                                access to social protection.
tive collaboration with government, and multisectoral
partnerships. However, efforts will not be sustainable if
                                                                Public Information and Communications
persons with disabilities remain economically depen-
                                                                Public information and communications—especially on
dent on the program and if partnerships remain weak.
                                                                websites of public organizations and the various min-
                                                                istries, departments, and agencies—are seldom acces-
Assistive Devices and Technology
                                                                sible to persons with disabilities in Nigeria, particularly
Study participants claimed that assistive devices and
                                                                those with cognitive or sensory impairments, including
technology are not readily available, and if available,
                                                                people with albinism. Findings indicate that public
are unaffordable because they are imported. Nigeria




                                                            x
information and communications are not available in                Legal Frameworks
accessible formats, such as in sign language, easy-to-             The study documents existing legal frameworks and
read and plain language, audio, and large print. High              policies that specifically target or at least include per-
levels of illiteracy among persons with disabilities and           sons with disabilities. Eleven states—Plateau, Lagos,
the poor quality of sign language interpretation services          Ondo, Jigawa, Anambra, Nasarawa, Ogun, Kano, Bau-
further contribute to the inaccessibility problem, along           chi, Kogi and Kwara—have enacted disability laws, each
with other factors.                                                at a different implementation stage. Multiple factors are
                                                                   cited as having facilitated the implementation of the
Electoral and Political Processes                                  recently passed national-level Discrimination against
Nigeria’s electoral and political processes are charac-            Persons with Disabilities (Prohibition) Act 2018 (FRN
terized by inadequate knowledge regarding disability               2019), including political will, the creation of an imple-
inclusion among Independent National Electoral Com-                mentation committee and framework, the establish-
mission (INEC) staff; inaccessible election procedures             ment of an independent commission, pressure from
and facilities, and a dearth of opportunities for persons          civil society, the active participation of persons with
with disabilities to participate in politics or to serve in        disabilities, and a strong disability movement.
leadership roles. In addition, the implementation of the
INEC’s Framework on Access for Persons with Disabili-              Institutional Landscape
ties in the Electoral Process is inadequate.                       Nigeria’s civil society is weak with regard to disability
                                                                   inclusion. Disability inclusion is also not a priority for
Public Transportation                                              government ministries, departments, and agencies
Study participants cited multiple barriers to transpor-            in their policies, budget allocations, basic services
tation, including inaccessible vehicles and negative               provision, programs, and infrastructure. The newly
attitudes toward persons with disabilities among                   established Federal Ministry of Humanitarian Affairs,
commercial drivers and co-passengers. Regarding the                Disaster Management and Social Development, which
aviation sector, participants reported discriminatory              now has the mandate for disability inclusion, has an
attitudes among airline and airport staff, driven by an            immense opportunity to enhance technical capacity on
approach that views passengers with disabilities as ill            disability know-how/expertise in the ministry to spear-
and incapable of caring for themselves while onboard.              head this agenda. There is a shortage of disability-re-
Participants also reported examples of being denied                lated service providers, and the few available services
accessible parking, damaged assistive devices, and fees            are provided by private individuals and organizations,
for assistance services.                                           which are often unaffordable and concentrated in large
                                                                   cities. Assistive devices and technology are expensive
                                                                   and not readily available. Capacity development and
                                                                   local production are key to increasing such availability.




                                                              xi
Table 1. Key Findings Matrix
                                     Current
            Main Issues and          Programming,             Current Institutional
Sector      Barriers to Services     Laws, and Policies       Landscape                           Gaps in Programming        Good Practices
Education   	Inadequate oppor-       	Mostly special edu-     	Few (mostly private) inclusive     	Inadequately trained      	Primary schools that
             tunities for partici-    cation programs          schools available                   teachers                   adopt the inclusive
             pation in schools       	Inclusive education     	Few nongovernmental orga-          	Lack of early detec-       education model and
            	Inadequate learning      is an emerging           nizations working on inclusive      tion and intervention      well trained staff (e.g.,
             aids                     concept                  education                          	Dearth of learning         primary school in Jos,
            	Few teachers            	Inadequately im-        	Special education focal points      materials and assis-       Plateau State)
             trained in sign          plemented national       in federal and state ministries,    tive technologies         	Discrimination
             language or spe-         policies on special      departments, and agencies          	Lack of educational        against Persons
             cialized staff and       needs education,        	Unavailable tertiary training in    support in tertiary ed-    with Disabilities
             personnel trained in     inclusive education,     inclusive education                 ucation for students       (Prohibition) Act
             strategies and skills    and albinism            	Limited funding of inclusive        with disabilities
             to ensure adequate                                education through USAID,
             learning for persons                              International Agency for the
             with disabilities                                 Prevention of Blindness, DFID,
            	Limited career                                    and Disability Rights Advocacy
             opportunities in                                  Fund
             areas and sectors                                	Few programs on inclusive
             that are not con-                                 education by Sightsavers
             sidered “disability                               International for those with
             adequate”                                         visual impairment; Independent
            	Negative attitudes                                Living Programme for Persons
             among teachers                                    with Disabilities (advoca-
             and peers                                         cy-related), and Daughters of
                                                               Charity (for hearing impaired
                                                               persons); and Brien Holden
                                                               Vision Institute
                                                              	Production of braille books by
                                                               Niger Wives Association
Health      	Negative attitudes      	Inclusive health        	Health care delivery inaccessi-    	Unavailable early         	Comprehensive
             among health             policies are             ble to persons with disabilities    intervention services      Community Mental
             workers                  unavailable             	No disability focal point in the   	Lack of disability         Health Programme in
            	Health workers’         	Health care costs        Federal Ministry of Health          training for health        Benue State
             ignorance of             related to disability   	Small-scale inclusive health        workers                   	Discrimination
             disability Health        services are “out        programs by a few nongov-          	Inadequate budget          against Persons
             workers ignorance        of pocket.”              ernmental organizations: CBM        allocation                 with Disabilities
             of disability (causes   	New national pol-        International, Sightsavers         	Lack of inclusive          (Prohibition) Act
             and treatment)           icy on sexual and        International, Disability           health policies           	Good practices among
            	Prohibitive cost of      reproductive health      Rights Advocacy Center,                                        health workers in
             care                     for persons with         Deaf Women Association of                                      Akwa Ibom State
            	Inaccessible             disabilities             Nigeria/Ipas, Daughters of                                    	Policy on the sexual
             environment, equip-                               Charity, HANDS, The Leprosy                                    and reproductive
             ment, information,                                Mission, German Leprosy                                        health of women and
             and communication                                 and Tuberculosis Relief                                        girls with disabilities
                                                               Association, and Brien Holden
                                                               Vision Institute
                                                              	Mental health by
                                                               Gede Foundation and
                                                               Comprehensive Community
                                                               Mental Health Programme
                                                              	Donors include BMZ,
                                                               International Agency for the
                                                               Prevention of Blindness, CBM
                                                               International, Australian Aid,
                                                               Disability Rights Advocacy
                                                               Fund, and Liliane Foundation
                                                                                                                                            (continued)




                                                                     xii
Table 1. Continued
                                            Current
                    Main Issues and         Programming,            Current Institutional
Sector              Barriers to Services    Laws, and Policies      Landscape                            Gaps in Programming       Good Practices
Employment          	Employers’ negative    	No clear provision      	Livelihood programs seldom         	Lack of inclusive        	Plateau State employ-
                     attitudes               for inclusive em-        target persons with disabilities    human resource            ment provision in its
                    	Disabling work          ployment until the      	Few actors in inclusive             policies                  disability law
                     environment             recently passed          livelihood or employment:          	Lack of advocacy for     	Discrimination
                    	Lack of affirmative     national disability      Sightsavers International,          inclusive employment      against Persons
                     action                  law                      CBM International,                 	Failure to implement      with Disabilities
                    	Inappropriate                                    Theseabilities Foundation,          inclusive employment      (Prohibition) Act
                     employment                                       The Leprosy Mission,                pronouncement            	Special quota of 1
                    	Denial of leadership                             Comprehensive Community                                       percent for persons
                     roles                                            Mental Health Programme,                                      with disabilities of any
                    	Discriminatory                                   and Propcom                                                   organization that has
                     language in job                                 	Donors funding inclusive live-                                up to 100 persons
                     advertisements                                   lihoods: DFID, BMZ, European                                  in the Lagos State
                                                                      Union, and TY Danjuma                                         Special People’s Law
                                                                      Foundation                                                    2011
                                                                     	Office of the Head of Civil
                                                                      Service of the Federation
                                                                      has a disability desk but
                                                                      the Ministry of Labour and
                                                                      Employment does not
Social protection   	Lack of access         	The National Social     	Actors with inclusive social       	Eligibility re-          	Lagos State disability
                     to social security      Protection Policy        protection programs: The            quirements are            grants
                     schemes                 makes provisions         Leprosy Mission, CBM                discriminatory           	Social security
                    	Office of the Head      for disability           International, Comprehensive       	Recognition level         schemes implemented
                     of Civil Service        inclusion                Community Mental Health             of the relationship       through the Plateau
                     of the Federation                                Programme, and Save the             between poverty and       State Disability Rights
                     bureaucracy                                      Children International              disability is low.       	Discrimination
                    	Unaccountable                                   	Donors in this sector: DFID,       	Disability is not a       against Persons
                     leaders                                          European Union, and BMZ             cross-cutting factor      with Disabilities
                                                                     	Lack of coordination between        in the National Social    (Prohibition) Act
                                                                      departments in FMWASD               Protection Policy
                                                                                                         	Failure to implement
                                                                                                          the policy
                                                                                                         	Low level of imple-
                                                                                                          mentation monitoring
                                                                                                          of the of schemes
Community-          	Unaffordable as-       	The previous            	Assistive devices in short         	Inadequate expertise     	Vocational rehabilita-
based services,      sistive devices and     rehabilitation           supply                              and manufactur-           tion program in Oyo
assistive            technology              policy was vague        	Mostly run by private compa-        ing centers for           State
devices, and        	Dearth of available     and poorly               nies and charities                  assistive devices and    	Community-based
technology           quality assistive       implemented             	Few community-based reha-           technology                rehabilitation and
                     devices                	National policy on       bilitation programs                	Low knowledge levels      vocational training
                    	Inadequate              disability is at the    	FMWASD is in charge but not         on the principles         experiences in Kaduna,
                     therapists and          draft stage              doing enough                        and practice of           Zaria State
                     community-based                                 	Not a focus of key donors           community-based          	Assistive devices
                     rehabilitation                                                                       rehabilitation            and support provided
                     services                                                                            	Lack of sustainability    by organizations
                                                                                                          plan for the design of    such as the Leprosy
                                                                                                          community-based re-       Mission International,
                                                                                                          habilitation programs     German Leprosy Relief
                                                                                                         	Low level of govern-      Agency, and Damien
                                                                                                          ment commitment           Foundation
                                                                                                                                                  (continued)




                                                                           xiii
Table 1. Continued
                                                 Current
                      Main Issues and            Programming,             Current Institutional
 Sector               Barriers to Services       Laws, and Policies       Landscape                             Gaps in Programming          Good Practices
 Electoral             	Low knowledge of         	INEC’s Framework         	INEC has a disability desk           	Low capacity of INEC       	Framework on Access
 and political          disability inclusion      on Access for            	Actors in inclusive gov-              for inclusive electoral     for Persons with
 processes              among staff at            Persons with              ernance and electoral                 process                     Disabilities in the
                        the Independent           Disabilities in the       participation: Inclusive             	Lack of political will      Electoral Process
                        National Electoral        Electoral Process         Friends Association, Centre           to facilitate active        developed by INEC
                        Commission (INEC)                                   for Citizens with Disabilities,       participation and          	A paper ballot de-
                       	Inaccessible elec-                                  The Albino Foundation, and            leadership of persons       signed in braille for the
                        toral procedures                                    ActionAid International               with disabilities in        2019 elections
                        and facilities                                     	Donors: DFID, USAID,                  politics
                       	Lack of opportu-                                    European Union, Ford                 	Poor implementa-
                        nities for political                                Foundation, and the                   tion of the INEC’s
                        and leadership                                      Netherlands Embassy                   Framework on
                        participation                                                                             Access for Persons
                       	Physical inacces-                                                                         with Disabilities in the
                        sibility of voting                                                                        Electoral Process
                        environment
                       	Situations of more
                        vulnerability in case
                        of electoral violence
 Public                	Inaccessible             	Lack of inclusive        	No disability desk in the            	Low awareness level        	Lagos Metropolitan
 transportation         vehicles                  transportation            Ministry of Transport                 of transportation           Area Transport
                       	Negative attitudes        policy                   	Dearth of programs targeted           rights and needs of         Authority (LAMATA)
                        among drivers and        	Recently passed           at addressing inclusive               persons with disabil-       has put in place the
                        passengers                disability law            transportation                        ities among relevant        following disability
                       	Discriminatory            includes provisions                                             stakeholders                inclusive measures for
                        attitudes among           for inclusive public                                           	Lack of facilities for      its bus rapid transport:
                        staff of airlines and     transportation                                                  safe, convenient, and       priority queue; priority
                        airports                                                                                  dignifying boarding         ticket purchase; prior-
                       	Risky and inap-                                                                                                       ity seating; wheelchair
                        propriate boarding                                                                                                    space; accessible
                        procedures                                                                                                            buses; level boarding;
                                                                                                                                              and accessible infra-
                                                                                                                                              structure, e.g., ramps
                                                                                                                                              and disabled-friendly
                                                                                                                                              crossings
 Public                	Inaccessible public      	No policy on             	No disability desk in the            	Lack of available          	Sign language
 information and        information and           accessible                Ministry of Information               assistive technolo-         interpreters at public
 communications         communications            information and          	Organizations and the media           gies for accessible         events and to ensure
                       	High level of illiter-    communications            do not prioritize accessi-            information                 adequate dissemina-
                        acy among persons        	There are                 ble public information and           	Accessible in-              tion of key information
                        with disabilities         provisions on ac-         communications                        formation and               about government-re-
                       	Poor quality sign         cessibility of public    	Awareness programs are usu-           communications              lated issues.
                        language interpre-        information and           ally not provided in accessible       are low priorities of
                        tation services           communications in         formats                               stakeholders
                                                  the new national                                               	Lack of capacity for
                                                  disability law                                                  providing accessible
                                                                                                                  information and
                                                                                                                  communications
                                                                                                                 	Lack of regulation of
                                                                                                                  sign language inter-
                                                                                                                  pretation services
BMZ = Federal Ministry for Economic Cooperation and Development; DFID = Department for International Development; FMWASD = Federal
Ministry of Women Affairs and Social Development; HANDS = Health and Development Support Programme; INEC = Independent National Electoral
Commission; USAID = United States Agency for International Development.




                                                                                 xiv
Conclusions                                                       providers, development and humanitarian actors,
This rapid social assessment was undertaken to docu-              persons with disabilities, parents and caregivers, and
ment the current socioeconomic status of persons with             organizations of persons with disabilities.
disabilities in Nigeria. Findings indicate that persons         	 Support the generation of disability-related data,
with disabilities lack access to basic services and that
                                                                  which is urgently needed to inform the planning and
attitudinal barriers represent a major impediment
                                                                  funding of disability-inclusive programs and services
to their socioeconomic inclusion. Inclusive policies
                                                                  in Nigeria.
are either nonexistent, weak, or inadequately imple-
mented. There is an urgent need to improve the current          	 All levels of government as well as development
socioeconomic situation of persons with disabilities in           partners should allocate adequate budgets or
Nigeria.                                                          increase budget allocations to disability-inclusive
                                                                  policies, programs, and services. They should man-
Recommendations                                                   date that their implementation partners and key
	 Target households; communities, including religious,            stakeholders in private and organized sectors do the
  traditional, and opinion leaders; schools; the media;           same.
  and the general population with measures to reduce            	 Establish national and state platforms to coordinate
  the stigma associated with disabilities and persons
                                                                  a disability-inclusive response, which is critical to
  with disabilities, which is based on misconceptions
                                                                  creating a synergy among stakeholders, including
  and negative attitudes.
                                                                  persons with disabilities.
	 Tailor needed capacity development to improve the
                                                                	 Invest in the local manufacturing of assistive devices
  current disability inclusion principles and practices
                                                                  and other technology and the development of the
  in various sectors of the economy to relevant stake-
                                                                  needed expertise to produce and use such resources.
  holders, such as government officials at the policy-
  and decision-making levels (duty bearers), service




                                                           xv
xvi
1. Background
About 29 million Nigerians have a disability, represent-                                         the Human Capital Agenda. The global development
ing 15 percent of the estimated national population                                              and poverty reduction agenda will not be effective
of 195 million in 2018.1 This number is expected to                                              unless it addresses the socioeconomic inequality of
increase as the prevalence of disabilities is affected                                           persons with disabilities and ensures their participation
by aging, war and conflict, natural disasters, and                                               in all stages of development programs.
forced displacement, among other factors. Persons
                                                                                                 The disability-inclusive 2030 Agenda for Sustainable
with disabilities are more likely to experience adverse
                                                                                                 Development highlights the need to empower persons
socioeconomic outcomes and face higher rates of
                                                                                                 with disabilities. The Habitat III New Urban Agenda
multidimensional poverty than the general population.
                                                                                                 and the Sendai Framework for Disaster Risk Reduction
They encounter attitudinal and environmental barriers
                                                                                                 for 2015–30 also explicitly include disability concerns.
that hinder their full, equal, and effective participation
                                                                                                 The right of a person with a disability to fully and effec-
in society. Their lower rates of economic and labor
                                                                                                 tively participate and be equally included in society is
market participation impose a higher welfare burden
                                                                                                 laid out in the United Nations Convention on the Rights
on governments, highlighting the costs of exclusion,
                                                                                                 of Persons with Disabilities,2 which is close to universal
which range from about 3 to 7 percent of gross domes-
                                                                                                 ratification and which Nigeria ratified in 2010.
tic product (Buckup 2009).
                                                                                                 The World Bank recently launched the Disability Inclu-
Disability-inclusive development directly responds to the
                                                                                                 sion and Accountability Framework3 on disability-in-
World Bank’s twin goals of ending extreme poverty and
promoting shared prosperity, and it is directly linked to
                                                                                                 2. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-
                                                                                                 with-disabilities.html.
1. Author’s calculations based on 2011 World Health Organization disability data: https://       3. http://documents.worldbank.org/curated/en/437451528442789278/
www.who.int/disabilities/world_report/2011/report/en/.                                           Disability-inclusion-and-accountability-framework.




                                                                                             1
    clusive development, which showcases the institution’s               Objective
    strong commitment to leaving no one behind. The
    main objective of the framework is to mainstream                     The objective of the study is to conduct a rapid social
    disability issues in World Bank activities. In addition,             assessment of the status of persons with disabilities, as
    on July 24, 2018, the World Bank’s chief executive officer           well as the barriers and facilitators to their socioeco-
    announced 10 commitments—many with specific                          nomic inclusion in Nigeria.
    target dates—to accelerate global action toward
    disability-inclusive development in key areas such as
                                                                         Research Questions
    education, digital development, data collection, gender,
    postdisaster reconstruction, transportation, private                 The following research questions guided the collection
    sector investments, and social protection.4 Many of the              of data:
    commitments have a specific target date.
                                                                          	 What legal frameworks, policies, strategies, plans,
    The Nigerian government has expressed a strong                          and data are in place to promote or uphold disability
    interest in working with the World Bank to strengthen                   inclusion in Nigeria?
    programs and services for persons with disabilities. The
                                                                          	 What kinds of barriers do persons with disabilities
    Bank’s Social Development Global Practice, in collab-
                                                                            encounter when trying to access basic services, such
    oration with the Nigeria Country Management Unit,
                                                                            as education, health, livelihoods, employment, and
    undertook a rapid social assessment to better under-
                                                                            transportation?
    stand the challenges around disability inclusion across
    the various disability clusters and to identify drivers               	 What facilitating factors exist or could be put in
    and opportunities for inclusion that can be leveraged in                place to improve the lived experiences of persons
    the development context. The results of this study will                 with disabilities in Nigeria?
    form the basis of a series of consultations and shape the
                                                                          	 What and where are the available disability-related
    design of potential development interventions.
                                                                            services in the country?




    4. See https://www.worldbank.org/en/topic/socialdevelopment/brief/
    world-bank-group-commitments-on-disability-inclusion-development.




2   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
2. Statement of the Problem and
Justification for the Study
Stigma and discrimination against persons with disabil-           Doing nothing to address the challenges faced by Nige-
ities are rife in Nigeria, and evidence suggests that basic       ria’s community of persons with disabilities will not
services continue to be inaccessible to persons with              only affect individuals with disabilities as well as their
disabilities. However, the magnitude of such problems             households but will also have consequences for the
has not been comprehensively documented, especially               larger society and for country as a whole, which bears
from the perspective of a person with a disability. Little        the burden of disability. Given the vicious cycle of dis-
is understood of the structural and institutional factors         ability and poverty, excluding persons with disabilities
influencing the socioeconomic status of persons with              from accessing basic services will have a huge impact
disabilities in the country.                                      on the country’s economy.

Nigeria recently signed the national-level Discrimi-              This study therefore aims to provide deeper contextual
nation of Persons with Disabilities (Prohibition) Act             understanding of the barriers that persons with dis-
2018—a major disability inclusion milestone indicative            abilities in Nigeria encounter. It analyses the state of
of the Nigerian government’s increasing prioritization            the various institutions that are relevant to disability
of disability mainstreaming. Prior to the signing, a few          inclusion and to the implementation of legal frame-
Nigerian states had enacted similar laws, which are               works as well as policies to protect and promote the
currently being implemented to varying degrees. No                rights of persons with disabilities. Such assessments are
documentation currently exists of progress made to                not currently available in Nigeria.
date or of lessons learned through the implementation
of these laws, which could otherwise be drawn on for
the implementation of the national law.




                                                              3
3. Methodology
This section presents the methodology utilized toward           Sampling and Data Collection
achieving the study’s main objectives.
                                                                The study includes one-on-one interviews with key
                                                                informants in the cities of Oyo, Ibadan, Lagos, Jos, and
Study Design                                                    Abuja. Participants living outside of these cities were
This is a mixed-method study that uses both quanti-             interviewed by telephone. Focus group discussions
tative and qualitative data collection methods. The             were held in Lagos and Jos. The key informant inter-
quantitative component includes an online question-             views and focus group discussions were held May 6–24,
naire-based rapid assessment of disability-inclusive            2019. The data collection tools and procedures utilized
programming among civil society in addition to a                for the study are detailed below.
mapping of disability-related services. The qualitative
component comprises a desk review, key informant                Desk Review
interviews, and focus group discussions with govern-            This study reviews the available literature to document
ment officials, leaders of organizations of persons             the prevalence of, societal attitudes toward, and stigma
with disabilities, disability-focused organizations,            regarding disabilities in Nigeria. It identifies barriers
academics, and persons with disabilities. In all, about         encountered by persons with disabilities when access-
60 people participated in key informant interviews and          ing basic services, particularly education, health, skills
focus group discussions, including 45 persons with              development, vocational training, labor market, digital
disabilities or their caretakers. The study also included       technology, and social protection. It reviews existing
five individual consultations with persons with                 legislation and policies that include persons with dis-
disabilities.                                                   abilities and that specifically target them. The findings




                                                            4
of the literature review guided the development of the       Guides for Key Informant Interviews
research tools to better understand the considered           The study developed guides for the collection of data
topics.                                                      from federal- and state-level government officials, orga-
                                                             nizations of persons with disabilities, disability-focused
Mapping of Disability-related Services                       organizations, and academics during the key informant
The study reviewed the available literature—published        interviews. They are described in turn below.
and unpublished—and canvassed individuals to map
public, private, and nongovernmental organization            Federal-level Government Officials
(NGO) sector entities that offer specific services to per-   The guide for the interviews with federal-level govern-
sons with disabilities, including rehabilitation services,   ment officials was developed to explore the govern-
clinical or surgical interventions, and the provision of     ment’s provisions, plans, and strategies to protect and
assistive devices and technologies.                          promote the welfare of persons with disabilities, includ-
                                                             ing their access to basic services. The following minis-
Rapid Assessment Survey                                      tries, departments, and agents (MDAs) were targeted:
This study utilized an online rapid assessment survey
                                                              	 Federal Ministry of Education (Special Education
to collect data from development partners and the civil
                                                                Branch);
society to explore the degree to which their program-
ming, products, and services are addressing the needs         	 Federal Ministry of Health (Hospital Services
of persons with disabilities, as well as to identify the        Department);
disability-inclusion- related challenges, opportunities,
                                                              	 Federal Ministry of Women Affairs and Social Devel-
and support needed.
                                                                opment (Rehabilitation Department);
The survey was shared with potential study partici-
                                                              	 Federal Ministry of Labour and Employment;
pants through existing networks, such as the Nigeria
International NGO platform; by email; and through             	 Federal Ministry of Power, Works and Housing
social media (Facebook), also encouraging potential             (Urban Housing Development Department); and
participants to share the link to the online survey with
                                                              	 Federal Ministry of Science and Technology.
their own networks.
                                                             Each ministry received a letter inviting its participation
The survey, which takes about 20 minutes to complete,
                                                             in the study. The letter included information about the
was available for four weeks between April 29 and May
                                                             study and a consent form to participate in it. Other
24, 2019. About 50 responses were submitted, including
                                                             than the Federal Ministry of Labour and Employment,
seven duplicates, which were deleted, for a total of 43
                                                             whose minister was out of the office when the letter
responses.
                                                             arrived, all of the ministries agreed to participate and
                                                             supplied contact information for interview partici-
                                                             pants, along with relevant dates, times, and venues. In
                                                             lieu of the Federal Ministry of Labour and Employment,




                                                                                                  3. METHODOLOGY          5
    the study engaged the Office of the Head of Civil Ser-      	 Nigerian National Association of the Deaf;
    vices of the Federation due to their availability for the
                                                                	 National Association of the Blind;
    interview and the office’s relevance to employment
    issues. The study conducted a total of six key informant    	 National Association of the Persons with Physical
    interviews with federal government officials ( four men       Disability;
    and two women).
                                                                	 International Association for Integration, Dignity
                                                                  and Economic Advancement (IDEA), Nigeria;
    State-level Government Officials
    Another key informant guide was developed to cover          	 National Association of Persons with Intellectual
    state-level government officials in Plateau and Lagos.        Disabilities (NAPID);
    The two states were selected because they have an
                                                                	 Spinal Cord Injury Association of Nigeria; and
    office or commission that is specifically set up for
    persons with disabilities, socially vulnerable groups,      	 The Albino Foundation (albinism is not yet an
    and ongoing government social protection programs.            officially recognized national-level cluster, but most
    The study targeted relevant officials in the Plateau          states do recognize it, including Plateau and Lagos).
    State Disability Rights Commission and the Lagos State
                                                                No member organization currently officially represents
    Office for Disability Affairs. The executive chairman of
                                                                the interest of persons with mental health conditions
    the former granted an interview, but the latter declined.
                                                                in Nigeria, although a community-based program in
                                                                Benue State has been operating the Mental Health
    Organizations of Persons with Disabilities
                                                                Advocacy Initiative for over five years, which comprises
    The Joint National Association of Persons with Dis-
                                                                mental health service providers and other advocates.
    abilities (JONAPWD) is the umbrella organization of
                                                                The key informant interview guide for the cluster
    organizations of persons with disabilities in Nigeria.
                                                                organizations was also utilized to collect data from a
    Separate key informant interview guides were devel-
                                                                member of the initiative who is also a mental health
    oped to collect data from key management officials at
                                                                service user.
    JONAPWD and cluster representatives to explore their
    members’ experiences when accessing basic services,         The study conducted eight key informant interviews,
    prevailing barriers, facilitating factors, opportunities,   each targeting a different type of impairment, as well as
    and suggestions on how to improve the situation.            one key informant interview with JONAPWD. The par-
                                                                ticipants comprised leaders from the seven disability
    Associations under JONAPWD represent different
                                                                cluster organizations, including The Albino Foundation,
    impairments: visual, physical, and intellectual intellec-
                                                                a leader from the Mental Health Advocacy Initiative in
    tual disabilities; persons with spinal cord injury; and
                                                                Benue State, and a representative of JONAPWD’s board
    persons affected by leprosy. JONAPWD is currently
                                                                of trustees. Participants were recruited into the study
    composed of the following associations:
                                                                based on information provided by members of cluster
                                                                organizations and other individuals in the disability
                                                                community.




6   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Disability-focused Organizations                               with local organizations of persons with disabilities
Another key informant interview guide was developed            from both states to reflect the key cluster groups, except
to explore the barriers to inclusion that persons with         mental health conditions. Separate discussions were
disabilities face, the facilitators of disability inclusion,   held for male and female participants in both states.
policies and legal frameworks, and recommendations.
                                                               All of the key informant interviews and focus group
Two disability-focused organizations were selected
                                                               discussions were recorded with the permission of
for the key informant interviews based on their active
                                                               the participants. A notetaker also took notes during
participation in disability-inclusive programming and
                                                               every session, each of which was one to three hours in
leadership roles in the enactment of the Discrimination
                                                               length. The quotations in this report are taken verbatim
against Persons with Disabilities (Prohibition) Act 2018.
                                                               from the focus group discussions and key informant
                                                               interviews.
Academics
A separate guide was created for the key informant             A telephone conversation conducted with a leader of
interviews of three academics (two men and one                 Jigawa State’s disability community served to document
woman) to explore their views on the inclusion of              the implementation of the disability law there—no
persons with disabilities, including perceived facilita-       commission or dedicated office for the implementation
tors of inclusion, lessons and good practices, their role      of the law exists there. A disability activist in Ondo
in improving the availability of disability data, assistive    State—which has a disability law with an established
devices, and technology. The participants were from            office—the Agency for the Welfare of Persons with Dis-
Federal College of Education (Special), Oyo; Univer-           abilities—was also interviewed. However, the agency’s
sity of Ibadan, Ibadan; and University of Jos, Jos. The        executive secretary was not keen to grant an interview.
two male academics are in the special education field;         The study did conduct a personal interview with a
the female academic works in public health but has a           visually impaired male teacher at the Federal College of
background in special education. There is a dearth of          Education (Special), Oyo, after following his Facebook
academics working on disability issues in Nigeria. The         posts regarding the plight of visually impaired students
sampling was purposive in nature, based on existing            trying to write their examinations in Nigeria’s tertiary
networks.                                                      institutions; and with and a woman with a disability
                                                               in Abuja regarding her encounter with the staff of a
Focus Group Discussions Guide                                  domestic airline.
A focus group discussion guide was developed to
                                                               Skype sessions were held with two men from South
explore the lived experiences of men and women with
                                                               Africa: an academic with a disability from the Univer-
disabilities, including stigma and discrimination, access
                                                               sity of Cape Town and a leader of the QuadPara Associ-
to livelihoods and other basic services, and availability
                                                               ation of South Africa. The focus of the discussions was
of disability-related services and programs. Seven to
                                                               to hear their views regarding the implementation of the
11 men and women with disabilities, including caregiv-
                                                               White Paper on the Rights of Persons with Disabilities
ers, participated in focus group discussions in Plateau
                                                               and other sectoral and general laws that have disability-
and Lagos. Participants were selected in collaboration
                                                               inclusion provisions.




                                                                                                    3. METHODOLOGY          7
    Ethical Considerations                                       Data Analysis
    All of the participants for this study were adults (age 18   Quantitative Data
    and older) at the time of the research. Due to ethical       The assessment of the data collected through the
    considerations, study participants did not include           online rapid assessment entailed the generation of
    people with intellectual impairments, but some parents       descriptive statistics using the Google Forms feature
    and caregivers participated in the four focus group          for the response summary. Forty-three of the 50 sur-
    discussions in Lagos and Jos.                                vey responses were included in the assessment. Seven
                                                                 duplicate responses were deleted.
    Information about the study and a consent agreement
    was presented on the first page of the online survey.        For the service mapping, detailed information was
    Respondents had to affirm that they understood the           collected on the types of disability-related services
    information and that they gave their consent to partic-      and programs in Nigeria, their scope, and contact
    ipate in the study before they were able to proceed to       information.
    the actual survey questions.
                                                                 Qualitative Data
    Before every key informant interview, participants
                                                                 The qualitative data comprised 26 key informant
    read information about the study and signed a written
                                                                 interviews and focus group discussion scripts/files in
    consent agreement to take part. Permission was also
                                                                 Microsoft Word documents. The qualitative data analy-
    sought to record the sessions. For telephone interviews,
                                                                 sis for this research entailed a verbatim transcription of
    participants gave verbal consent prior to the interviews
                                                                 each recorded interview and discussion. The recorded
    after reading and acknowledging their understanding of
                                                                 interview script allows a participant to be identified by
    the study information and consent agreement.
                                                                 gender and disability (if relevant).
    Before every focus group discussion, the study infor-
                                                                 The data analysis utilized NVIVO 12 software. Each
    mation and consent agreement document were read
                                                                 interview file was imported into the program and
    aloud to participants in English; it was also interpreted
                                                                 read for content analysis; selected texts were coded as
    into Hausa for those with a limited understanding of
                                                                 nodes. The nodes were later grouped into overarching
    English, and sign language for the hearing-impaired.
                                                                 themes based on the study’s objectives. The themes are:
    Each participant signed a separate sheet of paper
                                                                 stigma and discrimination, key intersections with dis-
    attached to the study information and consent agree-
                                                                 ability, disability data in Nigeria, barriers to inclusion,
    ment document signifying their understanding of the
                                                                 institutional landscape, policies and programming, and
    information and giving their consent to participate.
                                                                 state case studies. Subthemes under each were used to
    Focus group discussion participants also gave their
                                                                 explain the findings.
    permission to have the sessions recorded.




8   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
4. Review of Findings
This section presents the study’s findings, which are            Availability of Disability-related Data
based on the quantitative and qualitative primary data           Disability-related data in Nigeria are sparse. The collec-
collected, analysis of Nigeria Demographic and Health            tion of disability-disaggregated data to inform planning
Survey (NDHS) 2018 data, as well as the literature               for persons with disabilities in the development context
review. The findings are further explored under the lens         does not appear to be a priority in the country. There
of the overarching themes.                                       are a few unreliable statistics on the prevalence of
                                                                 disabilities—the only type of data that most consider.
                                                                 There are also some disability-specific data, particularly
Disability Data in Nigeria                                       regarding access to basic services and vulnerability to
Disability data are crucial to social inclusion and devel-       certain social issues among persons with disabilities.
opment of persons with disabilities. Data allow for an           Usually, these kinds of data are not properly dissemi-
objective diagnosis of disparities in outcomes between           nated to the general population and are restricted to a
people with and without functional difficulties. They            specific audience. Data in national surveys are seldom
are indispensable for the monitoring of progress (or             disaggregated by disability. For national planning,
regress) and the impact evaluation of policies and               such data are more relevant than standalone or dis-
interventions over time. The study explored and doc-             ability-specific data, which are rarely of interest to the
umented the situation of disability data in Nigeria the          various stakeholders, including policy makers.
following sections describe.




                                                             9
     The 2006 Nigeria population census (NPC 2009) indi-            partial paralysis. There were no data for Zamfara State
     cated a disability prevalence of 2.3 percent. This figure      or Federal Capital Territory.
     has been challenged as it is significantly below the
                                                                    A cross-sectional study of 1,824 elderly persons from
     global average. The definition of disability in the 2006
                                                                    three local government areas of Borno State, Abdulra-
     census— “disability is the inability of the respondent to
                                                                    heem, Oladipo, and Amodu (2011) reported a disability
     perform up to normal natural expectation”—was some-
                                                                    prevalence of 28.3, 15.7 , and 12.1 percent using 10,
     what general and vague. The census also identified six
                                                                    6, and 5 basic activities of daily living methodology,
     categories—seeing, hearing, speaking, mobility, mental,
                                                                    respectively. The functional limitation of the respon-
     and other—with definitions better suited for capturing
                                                                    dents was 22.5 percent. Disability prevalence and func-
     severe impairments. The prevalence rate therefore falls
                                                                    tional limitations were higher in elderly women than
     within the limit of severe disability documented by the
                                                                    elderly men. This study defines disability as a “restric-
     World Report on Disability (WHO and World Bank
                                                                    tion in the ability to perform normal activities of daily
     2011). Mont (2007) noted that this method of measur-
                                                                    living.” According to the authors, disability prevalence
     ing disability prevalence usually yields rates between 1
                                                                    in the elderly with functional limitations is important
     and 3 percent, even when surveys of the same popula-
                                                                    for policy development of the formal and informal care
     tion using a more functional approach generate esti-
                                                                    of the elderly. In a recent analysis of the data from the
     mates of 10 to 20 percent. Contributing factors include
                                                                    first wave (2010–11) of Nigeria’s General Household
     the stigma attached to disability, particularly mental
                                                                    Survey Panel 2010–11, which involves 3,586 respon-
     and psychological disabilities; that the word disability
                                                                    dents age 50 and older, there is a higher prevalence of
     implies a very significant or severe condition; and that
                                                                    mobility disability among women than men (Balogun
     disability interpretation—how disability is understood
                                                                    and Guntupalli 2016). These findings also lend credence
     or perceived—varies by cultures, age group, and income
                                                                    to the importance of collecting data disaggregated by
     group (Mont 2007).
                                                                    age, gender, and disability in national surveys/surveil-
     A national baseline survey by the Federal Ministry of          lance for the development of public policies that are
     Women Affairs and Social Development (FMWASD                   inclusive of men, women, and children with disabilities.
     2011) documented a disability prevalence of 3.2 per-
                                                                    Disability prevalence varies with the method of mea-
     cent, which was higher than that of the 2006 population
                                                                    surement. Mont (2007) observes that the tendency
     census but lower than expected.
                                                                    is for developing countries to record the lowest dis-
     There are patchy reports regarding the prevalence of           ability prevalence. Disability prevalence varies with
     disabilities that focus on certain disciplines or areas        the method of measurement, definition of disability
     of interest. For example, a survey report by the Federal       employed and how the prevalence questions are
     Ministry of Youth Development documented a dis-                structured. Surveys that use questions around levels of
     ability prevalence of 0.26 percent (167,549) among the         functional difficulties such as the Washington Group
     total youth population of 64,038,008 who were surveyed         short set on disabilities tend to report higher rates of
     (FMYD 2012). The definition of disability used for that        prevalence than those that employ narrow categorical
     survey is not clear, but the categories of disability in the   questions, often found in developing country cen-
     report include visual impairment, poliomyelitis, and           suses. However, the census is often the only alternative




10   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
available to developing countries, and hence they are                                            Figure 4.1. Prevalence of Functional Difficulties
usually adopted for the purpose of international com-                                            in Nigeria in at Least One Domain
parison (Mont 2007).
                                                                                                                     Cannot
Most national surveys and surveillance data are not                                                                  do at all
                                                                                                                       <1%
disaggregated by disability in Nigeria. In light of the                                                   A lot of
                                                                                                          di culty
above, the Washington Group questions5 have been                                                             1%
recommended for reliable and comparable disability                                                Some
                                                                                                 di culty
data in censuses (Mont 2007). The questions focus on                                               7%
six basic core activities designed to capture most adults
with disabilities, except individuals with mental disabil-
ities (Mont 2007). To the knowledge of the authors, the
only two available surveys in Nigeria that have used the
Washington Group questions in Nigeria are the General                                                                                                    No di culty
                                                                                                                                                            92%
Household Survey Panel 2010–11 and, more recently,
the 2018 Nigeria Demographic and Health Survey
                                                                                                 Source: NPC and ICF 2019: 458 based on Demographic and Health Survey data: Nigeria
(NDHS). The General Household Survey Panel 2010–11                                               DHS-VII (NDHS) 2018.
estimates a disability prevalence of 2 percent (Leonard                                          Note: Functional domains are seeing, hearing, communication, cognition, walking, and
                                                                                                 self-care.
Cheshire 2018). The 2012–13 edition of the same survey
has yet to be analyzed with a disability lens, while the
third wave of the survey (2015–16) only collected data
on the visually impaired.                                                                        estimated 7 percent of household members age 5
                                                                                                 and older (and 9 percent of those age 60 and older)
The popular Demographic and Health Survey is widely
                                                                                                 have some level of difficulty in at least one functional
utilized for national planning and is useful for interna-
                                                                                                 domain; and 1 percent either have a lot of difficulty
tional comparisons. In 2018, the Nigeria Demographic
                                                                                                 or cannot function at all in at least one domain (see
and Health Survey (NDHS) included for the first time
                                                                                                 figure 4.1; also NPC and ICF 2019: 458).
a disability module that is based on the Washington
Group on Disability Statistics questions, which are                                              The 2018 NDHS data suggest that disability rates are
themselves based on the framework of the World                                                   significantly higher for those over the age of 60; one-
Health Organization’s International Classification of                                            third of this population reportedly has some difficulty
Functioning, Disability, and Health. The questions                                               in at least one functional domain. While only 1 percent
address six core functional domains: seeing, hearing,                                            of household members under the age of 40 have a lot
communication, cognition, walking, and self-care.                                                of difficulty or cannot function at all in at least one
According to the 2018 survey data for Nigeria, an                                                domain, 9 percent of those age 60 and above have a
                                                                                                 lot of difficulty or cannot function at all in at least one
5. The Washington Group Short Set are questions designed to identify people with a               domain (figure 4.2). The data also reveal that 30 percent
disability (in a census or survey format). People are asked if they have difficulty performing
basic universal activities: walking, seeing, hearing, cognition, self-care, and communi-         of widowed women and 37 percent of widowed men
cation. http://www.washingtongroup-disability.com/washington-group-question-sets/
short-set-of-disability-questions/.                                                              have difficulty seeing, and that 31 percent of widowed




                                                                                                                                             4. REVIEW OF FINDINGS                      11
     Figure 4.2. Level of Difficulty in at Least                                        Figure 4.3. Prevalence of “Some Difficulty”
     One Domain Among People with Functional                                            by Functional Domain and Age
     Difficulty in Nigeria                                                              Respondents were asked if they experienced "some di culty"
                                                                                        with six functional domains: seeing, hearing, communication,
                       10                                                               cognition, walking, and self-care
              9
                                                                             Women                                40
                                                                             Men                                             Seeing
                                                                                                                  35
                                                                                                                             Hearing




                                                                                         Percent of respondents
                                                                                                                  30         Communication
                                                    1                           1                                 25         Cognition
                                          1                          <1                                                      Walking
                                                                                                                  20         Self-care
           Some di culty              A lot of di culty           Cannot do at all                                15
                        Percent distribution of women and men                                                     10
                                   age 15 and above
                                                                                                                   5
     Source: NPC and ICF 2019: 458 based on Demographic and Health Survey data:                                    0
     Nigeria DHS-VII (NDHS) 2018.                                                                                      0 5 10 15 20 25 30 35 40 45 50 55 60 65 70 75 80 85
                                                                                                                                              Age
     Note: Functional domains are seeing, hearing, communication, cognition, walking,
     and self-care.                                                                     Source: Author’s calculations, based on Demographic and Health Survey data:
                                                                                        Nigeria DHS-VII (NDHS) 2018.

     women and 35 percent of widowed men have some dif-
     ficulty in at least one domain (NPC and ICF 2019: 458).                            Figure 4.4. Prevalence of More Severe
                                                                                        Difficulties by Functional Domain and Age
     Types of disabilities. The most common functional                                  Respondents were asked if they experienced "a lot of di culty" or
     difficulty experienced by Nigerians, according to 2018                             "cannot do at all" with six functional domains: seeing, hearing,
                                                                                        communication, cognition, walking, and self-care
     NDHS data, is difficulty seeing, followed by difficulty
                                                                                                                  14
     walking, and difficulty carrying out self-care (dressing                                                                Seeing
                                                                                                                  12         Hearing
     and washing entire body). Figures 4.3 and 4.4 illustrate
                                                                                         Percent of respondents




                                                                                                                             Communication
                                                                                                                  10
     that all types of functional difficulties increase with age.                                                            Cognition
                                                                                                                  8          Walking
     Difficulty seeing is by far the most common mild diffi-                                                                 Self-care
                                                                                                                  6
     culty (described by respondents as “some” difficulty) for
                                                                                                                  4
     younger age groups. For more severe functional difficul-
                                                                                                                  2
     ties (described by respondents as “a lot of difficulty” or
                                                                                                                  0
     “cannot do at all”), the variation between different types                                                        0 5 10 15 20 25 30 35 40 45 50 55 60 65 70 75 80 85
                                                                                                                                              Age
     of functional difficulties is less pronounced, and seeing,
                                                                                        Source: Author’s calculations, based on Demographic and Health Survey data:
     walking, and self-care are the most commonly experi-
                                                                                        Nigeria DHS-VII (NDHS) 2018.
     enced difficulties.

     Educational attainment. According to the 2018                                      also less likely to have a partial or complete secondary
     survey, women and girls who report having “a lot of                                or higher education. Women and girls who report that
     difficulty” in at least one of the six functional domains                          they are not able to “do at all” with regard to one of
     (figure 4.5) are more likely to have an incomplete pri-                            the domains are much more likely to have received no
     mary education or only a primary education; they are                               education.




12   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Figure 4.5. Educational Attainment by Functional Difficulty Among Women and Girls Ages 6 to 30
Respondents were asked about di culties in six functional domains: seeing, hearing, communication, cognition, walking, and self-care.

 70         No education
            Incomplete primary
 60         Complete primary
            Incomplete secondary
            Complete secondary
 50         Higher

 40


 30


 20


 10


  0
                    No di culty                             Some di culty                             A lot of di culty                          Cannot do at all

Source: Author’s calculations, based on Demographic and Health Survey data: Nigeria DHS-VII (NDHS) 2018.
Note: In the NDHS, the sample is designed to represent the national population ages 15 to 49. For this figure, only people ages 6 to 30 were included in the sample to exclude those
who may have acquired functional difficulties later in life and which therefore may not have impacted their educational attainment. NDHS data do not allow for the calculation of
educational attainment by functional difficulty among boys and men.



Wealth outcomes. People ages 18 to 40 reporting “a                                             to those with “no” or only “some” functional difficulty
lot of difficulty” engaging in at least one of the func-                                       (figure 4.6). Persons who report that they “cannot do
tional domains are more likely to live in a household                                          at all” at least one of functions are more than twice as
that belongs to the two poorest wealth quintiles than                                          likely to live in a household belonging to the bottom


Figure 4.6. Wealth Outcomes by Functional Difficulty Among Men and Women Ages 18 to 40
Respondents were asked about di culties in six functional domains: seeing, hearing, communication, cognition, walking, and self-care.

 70
            Poorest
            Poorer
 60         Middle
            Richer
 50         Richest wealth quintile

 40

 30

 20

 10

  0
                    No di culty                              Some di culty                            A lot of di culty                          Cannot do at all

Source: Author’s calculations, based on Demographic and Health Survey data: Nigeria DHS-VII (NDHS) 2018.




                                                                                                                                              4. REVIEW OF FINDINGS                    13
     Figure 4.7. Ownership of Assets by Functional Difficulty Among Women Ages 15 to 40

     Respondents were asked about di culties in six functional domains: seeing, hearing, communication, cognition, walking, and self-care.

     15
                                                                                                                                 Women owning land alone or jointly
                                                                                                                                 Women owning house alone or jointly
     10


      5


      0
                       No di culty                              Some di culty                              A lot of di culty                          Cannot do at all

     Source: Author’s calculations, based on Demographic and Health Survey data: Nigeria DHS-VII (NDHS) 2018.
     Note: In the NDHS, the sample is designed to represent the national population ages 15 to 49. For this figure, only people ages 18 to 40, who are expected to be in their
     “breadwinning” years, were included.




     wealth quintile than those with no functional difficulty,                                       Data are crucial to development—its planning,
     at rates of 41 and 18 percent, respectively. People with                                        implementation, monitoring, and evaluation. The
     “a lot of difficulty” or “cannot do at all” at least one of                                     lack of available disability data makes it difficult to
     the functions are also less likely to live in a household                                       develop policies and interventions for Nigeria’s devel-
     belonging to the two richest wealth quintiles than those                                        opment agenda that address the needs and concerns
     with no or some difficulty.                                                                     of persons with disabilities. It is therefore important
                                                                                                     that data from future censuses conducted in Nigeria
     Ownership of assets. Overall, men in Nigeria are more
     than three times as likely to own a house or land as are
     women (NPC and ICF 2019: 382). Women who have “a                                                Figure 4.8. Employment by Functional
     lot of difficulty” or “cannot do at all” any of functions                                       Difficulty Among Women Ages 15 to 49
     are significantly less likely to own land or a house alone                                      Respondents were asked about di culties in six functional domains:
     or jointly figure 4.7).                                                                         seeing, hearing, communication, cognition, walking, and self-care.
                                                                                                     80
     Employment. Women who “cannot do at all” at least                                               70
     one of the functions are less likely to be employed,                                            60
                                                                                                     50
     although 43 percent still work (figure 4.8). At the same                                        40
     time, women with “a lot of ” difficulty with one of the                                         30
     six functions, particularly those categorized as “cannot                                        20
                                                                                                      10
     do at all” are much more likely not to be paid for their                                          0
     work: 21 percent of women with “a lot of ” difficulty and                                                     No                 Some                A lot of               Cannot
                                                                                                                di culty             di culty             di culty               do at all
     37 percent of those who “cannot do at all” one of the
     functions receive no payment for employment com-                                                Source: Author’s calculations, based on Demographic and Health Survey data:
                                                                                                     Nigeria DHS-VII (NDHS) 2018.
     pared with 18 percent of those with no difficulty and
                                                                                                     Note: NDHS data do not allow for the calculation of employment by functional
     14 percent of those with “some difficulty” (figure 4.9).                                        difficulty among men.




14   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Figure 4.9. Unpaid Employment by Functional                                               Challenges Related to the Collection
Difficulty Among Women Ages 15 to 49                                                      of Disability-related Data
Respondents were asked about di culties in six functional domains:                        The problems associated with collecting disability-
seeing, hearing, communication, cognition, walking, and self-care.
                                                                                          related data stem from a lack of understanding of
40
                                                                                          disabilities as a cross-cutting development issue that
35
30                                                                                        requires attention. Some stakeholders view and portray
25                                                                                        disabilities as a complex issue, which may discourage
20
                                                                                          the collection of data. The collection of disability-
15
10                                                                                        disaggregated data is a low priority among stakeholders
 5                                                                                        in the major sectors of the economy, such as education,
 0
             No                 Some                A lot of             Cannot           health, and transportation.
          di culty             di culty             di culty             do at all
                                                                                             “The major challenge is [a lack of] political will or
Source: Author’s calculations, based on Demographic and Health Survey data:                  interest in generating data on people with disabilities.”
Nigeria DHS-VII (NDHS) 2018.
Note: Data do not allow for the calculation of educational attainment by functional
                                                                                             – a male double amputee, Lagos
difficulty among men; see NDHS sample.
                                                                                          The capacity for conducting disability-related research
                                                                                          in Nigeria is limited. There is a lack of expertise for col-
be disaggregated by disability. National surveys and                                      lecting disability data, which also makes it very difficult
surveillance data should also collect disability-disag-                                   to gather reliable data. In addition, persons with dis-
gregated data to ensure that the on-the-ground reality                                    abilities and their organizations are seldom consulted
regarding disability is reflected.                                                        by researchers.

The United Nations Children’s Fund (UNICEF) has                                              “I’ll say people don’t understand disability. We don’t
collaborated with the Washington Group to develop                                            focus enough on disability. People don’t feel that it is
another set of questions for identifying children                                            something to collect data on. Also, we don’t have the
with disabilities: the UNICEF–Washington Group                                               expertise. We don’t have people who are good disability
Child Functioning Module.6 These questions, used as                                          enumerators, who can define disability data and know
designed and with the technical support of the Wash-                                         how to collect it.” – a wheelchair-user, Abuja
ington Group show that prevalence rates tend to fall
                                                                                          It is imperative to raise awareness around and develop
within 6–12 percent (Leonard Cheshire 2018). There
                                                                                          the capacity of relevant stakeholders in Nigeria to adopt
is reason to believe that that the very low prevalence
                                                                                          the Washington Group questions in their censuses and
rates reported by some countries could be due to
                                                                                          surveys. Doing so would allow access to internationally
“unreported alterations such as screener/introductory
                                                                                          comparable data, which would also provide a baseline
statements, cultural barriers around mentioning func-
                                                                                          for the implementation of the Sustainable Develop-
tional difficulties, or differences in interviewer training”
                                                                                          ment Goals and the United Nations Convention on the
(Leonard Cheshire 2018).
                                                                                          Rights of Persons with Disabilities (Leonard Cheshire
6. The UNICEF-Washington Group Child Functioning Module. https://data.unicef.org/topic/
                                                                                          2018). It would also provide a solid foundation for the
child-disability/module-on-child-functioning/.




                                                                                                                             4. REVIEW OF FINDINGS       15
     development of inclusive public policies in Nigeria.        Negative Attitudes Toward Persons
     One key advantage of the Washington Group ques-             with Disabilities
     tions is that they are not stigmatizing because they        Attitudes toward persons with disabilities vary but are
     do not mention disabilities, something with which           most often negative. Such mindsets emanate from inac-
     some households and individuals may not want to be          curate beliefs about disabilities and people with them
     identified.                                                 and from the sense that persons with disabilities seem
                                                                 and/or behave differently than the “norm.”
     Recommendations for Improving
     Data Collection                                                “I don’t have hands. […] So, people don’t like the way I

      	 Raise awareness among stakeholders, including               look because I look odd. I look, you know, shapeless that’s
                                                                    how people see me. So people discriminate against me,
        decision makers and policy makers, and advocate
                                                                    people avoid me, people stigmatize me.” – a male double
        for disability to be viewed as a development issue
                                                                    amputee, Lagos
        that should be mainstreamed into all sectors of the
        economy.                                                 Persons with disabilities experience the negative
      	 Ensure the active participation of persons with          attitudes others have toward them in various ways,
                                                                 including rejection, neglect, loss of respect, reducing
        disabilities and their organizations in the design of
                                                                 visibility to/of children with disabilities, being consid-
        data collection instruments, capacity building, data
                                                                 ered useless, and being thought unworthy of being alive.
        collection, monitoring, and leveraging the Washing-
        ton Group methodology.                                      “I offered my hand to somebody, [but] he said no,

      	 Develop the capacity of relevant stakeholders               I don’t shake hands with an albino.” – a man with
                                                                    albinism, Abuja
        for disability data collection and disaggregation,
        including defining the term disability for research         “I was about a month old and still didn’t have a name
        purposes.                                                   because they believed I was a spirit.” – a man with

      	 Analyze the dataset from the first and second waves         albinism, Jos

        of Nigeria’s General Household Survey through a             “There was a woman I asked for money. She said she
        disability lens.                                            didn’t have any and later she sent someone to come and
                                                                    tell me not to waste my money on that girl, that I should
                                                                    just let her die.” – father of a child with cerebral palsy, Jos
     Cultural Beliefs, Stigma,
     and Discrimination                                          A common experience reported by persons with albi-
                                                                 nism in particular is being called derogatory names
     Prejudice, social isolation, and discrimination are the
                                                                 that connote difference and rejection. This manifes-
     greatest global barriers to disability inclusion reported
                                                                 tation of negative attitudes cuts across all parts of the
     by experts and persons with disabilities (Ashi, Olayi,
                                                                 country.
     and Ikwen 2015; Groce 1999). These factors are at the
     root of all of the other barriers that persons with dis-
     abilities encounter in their daily lives.




16   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
   “There are many other names like ‘anyare’- I can’t even          positive attitudes can actually infantilize them. This
   spell that - in the Onitsha area. There are all kinds of         model is therefore not empowering, and often turns out
   names, you go to the Yorubas, [they say] ‘Afin,’ afin oriran     to be negative over the long term. Harmful attitudes
   osan (afin does not see in daylight). I can’t even spell that,   include overprotection and the belief that disabilities
   but it is derogatory, you know. You go to the north, they        are the will of God and that a person with a disability
   call us ‘baturen tuda,’ which is ‘fake white man’. Then, you     should just accept their fate and beg for a living.
   go to Benin, they call us ebo, ebo, ebo. All those names
                                                                       “They said that if there is fracas or fighting they [people
   are not complimentary, they are very derogatory, and we
                                                                       with disabilities] will be hurt or injured, that there is
   have to live with that” – man with albinism, Abuja
                                                                       no need for them to come out and participate in the
The consequences of these negative attitudes include                   elections” – a male double amputee, Lagos
low self-esteem, isolation, depression, and suicide.
                                                                       “One widespread idea is that we are beggars, that we
Therefore, some persons with disabilities see them-
                                                                       are all beggars, that we should be recipients of charity.
selves as inferior to people who do not have disabilities
                                                                       […] It prevents people from seeing us as humans who
and as unacceptable to others. They may withdraw
                                                                       have rights.” – a female wheelchair-user, Abuja
from society due to such attitudinal barriers.

   “Even when you go to Jos, children gather and start              Family and Society
   singing. One of them even called me Santa Claus. You             In Nigeria, persons with disabilities are discriminated
   know, you are a human being, someone calling you Santa           against by their families and by society; many are
   Clausis very dehumanizing.” – a man with albinism, Jos           therefore kept indoors, hidden away from neighbors
                                                                    and visitors, and mostly neglected (Mohammed 2017;
   “I started thinking of suicide, I became
                                                                    Okafor 2003). They are rendered invisible to avoid being
   depressed because my friends all deserted me.”
                                                                    an embarrassment to their families (Okafor 2003).
   – a hearing impaired woman, Lagos
                                                                    Sometimes, persons with disabilities are not allowed to
   “That is why we use the name Integration, Dignity,
                                                                    participate in family decisions or are betrayed by family
   and Economic Advancement (IDEA) intentionally,
                                                                    members. Many families have very low expectations for
   because some of us who suffer from leprosy see
                                                                    their family members with disabilities. And some fami-
   themselves as inferior. The self-esteem is no longer
                                                                    lies are extremely overprotective of their family mem-
   there.” – a man affected by leprosy, Benin
                                                                    bers with disabilities, preventing them from discovering
                                                                    their potential.
The Charity Model Masking as
Positive Attitudes                                                     “They often hide the person (with a disability) so that
Study respondents did identify some attitudes that                     he won’t stain their image. They will hide you, keep
could be considered positive, often informed by a                      you away from society and social organizations, and
charity model. However, this model can drive persons                   make you feel lost and lonely. They go to soothsayers, to
with disabilities into a state of perpetual dependence                 spiritual healers, to traditional healers for solutions.”
and can prevent them from exercising their rights. For                 – a man with mental illness, Makurdi
persons with intellectual disabilities, such seemingly




                                                                                                        4. REVIEW OF FINDINGS        17
        “Even the family, [when they sit down] and discuss             sickness that befalls a person as punishment for their
        something, they will say, let us discuss it, we will let her   sins. Some believe it is a curse or bewitchment.
        know later.” – a hearing impaired woman, Jos
                                                                          “Some people say the reason why I am visually
     However, the family-level experience is not always                   impaired is because I committed a sin.” – a visually
     negative. There are many families that take good care of             impaired woman, Jos
     their family member with a disability—most usually try
                                                                       Some study participants expressed the belief that
     their best in a “hostile” environment and without any
                                                                       impairments can be acquired through close contact
     support.
                                                                       persons with disabilities and that women with disabil-
        “I used to say that my father played a major role in           ities always give birth to children with disabilities—
        my [upbringing] because he really trained me to be             which may be why some women with disabilities find it
        independent.” – a woman with spina bifida, Lagos               difficult to get married.

     Participants with disabilities decried their lack of par-            “When hearing impaired people have children, they
     ticipation in decision making and social activities in the           tell them that if their children stay with them, they will
     community. Naturally, persons with disabilities want to              inherit deafness.” – a hearing impaired woman, Lagos
     take part in community life. However, they are seldom
                                                                       People with albinism are believed to be spirits or gods
     invited to participate, and if they do so, are often rejected
                                                                       with supernatural powers who can disappear at any
     and ridiculed, which makes them tend to withdraw.
                                                                       time and that this is why they do not have long lives.
     Some lose the right to their inheritance due to their
     disability. Religious gatherings are no better. Persons with         “So, there are entrenched superstitious beliefs, you
     disabilities are usually neglected at these gatherings,              know, for instance, in certain areas—Igbo, Yoruba,
     reflecting the attitudes of the larger community.                    Hausa—believe that we are gods. Others belief that we
                                                                          disappear; others feel that we don’t have longevity.”
        “We are battling with cultural barriers. We are completely
                                                                          – a man with albinism, Abuja
        relegated out of the community. They will not even
        allow you to be part of any decision making, they will         The literature supports the finding that many Nigeri-
        not allow you to get involved in a town hall meeting, they     ans believe the false notion that disabilities result from
        will completely keep you out of the main community.”           supernatural causes, including being cursed by the gods
        – a woman affected by leprosy, Jos                             and witchcraft (Abang 1988; Abasiubong 2010; Abosi and
                                                                       Ozoji 1985; Okafor 2003). Okafor (2003) notes that “some
     Beliefs Around Causes of Disability                               local ancient mythology has it that persons with disabil-
     Study participants with disabilities shared some com-             ities are social outcasts serving retribution for offences
     mon beliefs around the causes of disabilities. These              of their forefathers.” Anyatunwa (1977) reveals the Igbo’s
     include the inaccurate belief that disabilities are a             belief that persons with disabilities, including those
     punishment for the past sins of the individuals, their            with albinism, must have sinned in their former lives.
     parents, or their families. This belief is also being rein-       According to Adeoke (1977), the Yoruba culture believes
     forced by some religious practitioners across multiple            that epilepsy is caused by the presence of a lizard-like
     faiths, who consider disability to be an affliction or            creature in the stomach that is contagious. A recent




18   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
study of Yoruba women with epilepsy reveals the belief                                           promote acceptance of persons living with disabilities.
that epilepsy is identified with witchcraft and evil spirits                                     Worshippers of the Yoruba deity Obatala, for example,
(Komolafe et al. 2011). According to Abang (1988), a                                             who is said to be in charge of creation, see persons with
common misperception is that persons with disabilities                                           disabilities as being very precious because it is said that
are inferior to others and that they can be exploited for                                        Obatala creates persons with disabilities after he gets
social and economic gain, such as with money rituals,7                                           drunk, which accounts for their differences.
because they are seen as less than fully human.
                                                                                                 Etieyibo and Omiegbe (2016), however, highlight dis-
Yaksat and Hill (1997) acknowledge that the general                                              criminatory practices against persons with disabilities
attitude toward persons with disabilities in Nigeria is                                          in Nigeria on the basis of religion and culture such as:
negative, although due to its cultural diversity, there
                                                                                                  	 Trafficking and killing of persons with mental
is no homogenous “Nigerian attitude” toward any-
                                                                                                    illness and raping of women with mental illness.
thing—every tribe has its unique culture. Some Nigerian
                                                                                                    Such practices result from a belief that the victims
cultures are favorably disposed to their members with
                                                                                                    must have violated a community tradition or are
disabilities. In some cultures of North West Nigeria,
                                                                                                    involved in witchcraft. Homeless women with men-
fathers tend to show more favorable attitudes toward
                                                                                                    tal illness are sometimes raped by men who believe
their children with disabilities than do mothers who
                                                                                                    that doing so will make them wealthy (Eze 2005).
might be disappointed at not having the desired “ideal
child” or because mothers do the bulk of the childcare                                            	 Trafficking and killing of people with oculocu-
(Mohammed 2017). According to Abang (1988), some                                                    taneous albinism and angular kyphosis. Such
people in the north accept disabilities as the will of God;                                         practices are fueled by the belief that the body parts
and according to the folklore of the Tiv8 ethnic group, it                                          of persons with albinism and angular kyphosis can
is the wish of the first chief of the land that all children                                        be used for rituals for wealth and long life (Anumihe
with disabilities should be born in his village, where they                                         2008; Oji 2010; Omiegbe 2001).
can be adequately cared for. This study postulates that
                                                                                                  	 Use of children with disabilities in alms-begging.
many people in the northern part of the country believe
                                                                                                    Some parents send their children with disabilities to
disabilities are the will of God, and a person with a dis-
                                                                                                    the streets to beg for alms; the children obey for fear
ability just has to accept it and move on.
                                                                                                    of being punished (Omiegbe 1995). These parents
     “When there is a person with a disability in the family,                                       use their children to evoke a sense of empathy from
     it is believed it is “divine” and you just have to accept it.”                                 members of society, especially those who consider
     – a visually impaired man from Gombe                                                           alms-giving to be an obligation.

Nicholls (1993) notes that indigenous African beliefs                                            The use of proverbs for the transfer of knowledge, val-
around disability are not always negative, such as                                               ues, morals, and learning is prevalent in Nigeria, with
witchcraft, sin, and retribution. In some cases, a spir-                                         the capacity to influence attitudes (Kisanji 1995). There-
itual perception of disabilities and their causes can                                            fore, McKenzie and Ohajunwa (2017) suggest explor-
                                                                                                 ing the representations of persons with disabilities
7. Money rituals are practices among people who believe they can create wealth for individuals
with spells, charms, and sacrifices, which sometimes involve the use animal or human body
                                                                                                 in proverbs as a means of understanding the cultural
parts.
8. The Tiv is an ethnolinguistic group; mostly found in Benue State, Nigeria, and in Cameroon.




                                                                                                                                4. REVIEW OF FINDINGS          19
     connotations around disability among the major ethnic                                            JSS 3. [He] said “What is the use of paying? It is a waste
     groups in Nigeria.                                                                               of resources”, since one day I would disappear because
                                                                                                      I am a spirit.” – a man with albinism, Jos
     Implications for Access to                                                                       “If you talk about education, you will see that persons
     Basic Services                                                                                   affected by leprosy are far behind all other groups
     When persons with disabilities experience negative
                                                                                                      because of the stigmatization they suffer as a child in
     attitudes toward them, it reduces their access to basic
                                                                                                      school.” – a man affected by leprosy, Benin
     services, such as education and employment. Nega-
     tive attitudes can also contribute to institutional and
                                                                                                   Recommendations
     environmental barriers that shut out persons with
                                                                                                    	 Raise awareness about the causes of disabilities to
     disabilities from receiving basic services. Children with
                                                                                                      demystify the topic and to promote acceptance of
     disabilities may drop out of school or may not be given
                                                                                                      persons with disabilities.
     the opportunity to attend school at all due to negative
     attitudes toward them at home, at school, and in the                                           	 Raise and support champions who identify with
     community. Adults with disabilities report that some                                             persons with disabilities.
     community members will not patronize their busi-
                                                                                                    	 Raise families’ knowledge and awareness of support
     nesses because of their disability. All of these factors
                                                                                                      services and programs for persons with disabili-
     can negatively impact the socioeconomic status of
                                                                                                      ties; increase services and information available to
     persons with disabilities.
                                                                                                      families.
          “When I started my business, people refused to
          patronize it because I have disability. Only few people
          buy from me. Others will say ‘buying kunu9 from a
                                                                                                   Impacts of Intersectionality
          hearing impaired person, no’.” – a hearing impaired                                      Study participants, as well as the literature, describe
          woman from a rural area, Jos                                                             the intersections of disabilities with multiple factors,
                                                                                                   particularly gender, age, displacement, religion, and
          “When the attitudes of policy makers are negative, it
                                                                                                   geopolitical zone. Findings related to each intersection
          affects the institutions and the environment. Institutions
                                                                                                   are summarized below.
          are manned by individuals and individual attitudes shape
          the environment and institutions. So, when the attitudes
          of a community are negative towards a particular,
                                                                                                   Gender
                                                                                                   A variety of beliefs exist around the sexuality of persons
          vulnerable group, they will struggle much more to realize
                                                                                                   with disabilities, particularly women. Common miscon-
          their potential” – a male amputee, Lagos
                                                                                                   ceptions in Africa are that persons with disabilities are
          “When my sister was born, the second child who was                                       asexual (Groce 2004) and that people with intellectual
          also albino, my father stopped paying my school fees in                                  disabilities are hypersexual (Aderemi 2014). Yousafzai
                                                                                                   et al. (2004) documents that women with disabilities
     9. Kunu is a drink consumed throughout Nigeria, usually made from a grain such as millet or   in southern Africa experience sexual abuse due to the
     sorghum




20   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
false and dangerous idea that having sex with a virgin            “There are many situations where a woman with
can cure HIV, coupled with the misconception that                 disability will get pregnant, and the man will just
women with disabilities are asexual and therefore                 collect the child and send the woman away. And
most likely virgins. While there are more available data          oftentimes, they want to experience what it is like to
on the overall prevalence of gender based violence in             have sex with a girl with disability, and that is why rape
Nigeria (DHS, 2018), there is scant information and               is increasing even here on the Plateau. It has happened
data on the prevalence of GBV against women living                many times, and many have been reported and others
with disabilities. This is an issue that should be further        left just like that.” – a female with albinism, Jos
looked into as anecdotal information suggests that the
                                                               Men who are not hearing impaired might not even
prevalence is high.
                                                               consider marrying a woman who is hearing impaired or
This study’s findings indicate that it is more difficult for   hearing impaired due to communication-related chal-
women with disabilities to be involved in romantic rela-       lenges, which might also explain the high rates of hear-
tionships or to marry than for their male counterparts.        ing impaired women and men marrying one another.
Cultural beliefs around gender roles generally favor men
                                                                  “There are some guys that are so called “able”,
over women, and this is magnified for women and girls
                                                                  approaching them, but sometimes the families reject
with disabilities who might not meet a culture’s norms
                                                                  them and say “how will they communicate with them”?”
in terms of beauty or be able to take on the expected
                                                                  – a hearing impaired woman from rural area, Jos
role of wife and mother. There is also the common mis-
conception that women with disabilities will give birth        People affected by leprosy often marry one another due
to children with disabilities or that they are asexual.        to their stigmatized status in society. A woman that
                                                               acquires a disability after marriage is more likely to be
   “[A]ny able-bodied man will believe that when you
                                                               divorced or neglected by her spouse than would a man
   want to get married, a disabled woman cannot
                                                               in the same circumstance.
   play her role very well as a homemaker, in terms of
   cooking, taking care of the children, and the house”           “If a woman develops leprosy after getting married,
   – a visually impaired woman from rural area, Jos               the man will find a way to divorce her. […] For example,
                                                                  in Jigawa State, there are two couples who got married
As a result, women and girls with disabilities are
                                                                  and none of them were suffering from leprosy. But
more likely to suffer from low self-esteem and, in their
                                                                  the woman later developed leprosy and the man ran
desperation, sometimes settle for the first man that
                                                                  away from her. But in the same State, a man happened
will have them. This could partly explain the reported
                                                                  to contract leprosy and the wife did not leave him.”
experience of exploitation and violence in romantic and
                                                                  – a man affected by leprosy, Benin
marital relationships among women with disabilities
participating in this study. When a man without dis-           Furthermore, female family members of persons with
abilities sexually exploits or marries a woman (or girl)       disabilities, particularly mothers, may experience more
with a disability, he often later abandons her and denies      marginalization than the rest of the family. These moth-
her the right to raise their children.                         ers are at risk of losing their marriages and raising their
                                                               children alone and in isolation.




                                                                                                   4. REVIEW OF FINDINGS       21
        “After everybody spoke and it was my mother’s turn to          	 Develop the capacity of gender-based violence and
        speak last, she said “this is my child and he has all the        women’s rights actors to address disability-related
        features of a human being, nobody will take my child             issues in their work related to sexual and reproduc-
        away from me.” Then the battle lines were drawn because          tive health and rights.
        she was left with the choice of either leaving her marriage
                                                                       	 Address the current programming gap between gen-
        or surrender her child to the chief priest, so she made a
                                                                         der and women’s rights actors on the one hand and
        decision to run away with me to a distant aunt for one
                                                                         disability rights actors on the other to strengthen
        year, three months” – a man with albinism, Jos
                                                                         interventions that target the intersection of gender
     Study participants opined that women and girls with                 and disability.
     disabilities have fewer opportunities than their male
                                                                       	 Support the active participation of girls and women
     counterparts to participate in socioeconomic activ-
                                                                         with disabilities and the organizations that repre-
     ities such as employment, education, and attending
                                                                         sent them in national platforms on sexual and repro-
     social events. Contributing factors to this inequity may
                                                                         ductive health and gender-based violence.
     include the inaccessibility of water, sanitation, and
     hygiene facilities; attitudinal barriers; and limited eco-        	 Develop and implement inclusive policies regarding
     nomic opportunities.                                                sexual and reproductive health and rights and gen-
                                                                         der-based violence.
        “When is comes to using toilets, rest rooms, monthly
        flow there are more complications. I wonder how they
                                                                      Age
        live. When somebody is perceived to be unkempt […],
                                                                      Study participants shared their views on the influ-
        even the women will not like to associate with her. […] In
                                                                      ence that age plays in the experiences of persons with
        fact, it hinders them from even attending education.” – a
                                                                      disabilities. Low knowledge levels among children with
        male double amputee, Lagos
                                                                      disabilities regarding the nature of their particular dis-
     Finally, experts on disability inclusion in Nigeria also         ability exposes them to greater risk of harm than adults
     point out the lack of opportunities for women living             with disabilities. It is therefore crucial to educate these
     with disabilities to exercise leadership roles, reinforc-        children about the nature of their disabilities and to
     ing the fact that the barriers and needs of women with           provide guidance on how they can manage them.
     disabilities continue to be invisible and, thus, are not
                                                                         “the [albino] child may see his friends playing under
     being addressed.
                                                                         the sun and will want to join, not knowing that the sun
                                                                         is dangerous to his skin.” – a woman with albinism, Jos
     Recommendations
      	 Raise awareness of girls, boys, women, and men with              “I tell mothers and parents to allow children to be
        disabilities with regard to their sexual and reproduc-           aware of the disabilities they have. When they know
        tive health and rights and develop their capacity to             what they have, they will know how to manage.”
        advocate for their rights in this regard.                        – a woman with spina bifida, Lagos

      	 Advocate for inclusive sex education for girls, boys,         However, early intervention services in Nigeria
        women, and men with disabilities.                             are poorly developed. Therapists are scarce, are




22   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
concentrated in major cities, and lack the necessary              milestones and skills development and impacts their
equipment; and their services are often unaffordable to           futures. Children and youths with disabilities have
the average family.                                               much to contribute to society, and society should take
                                                                  advantage of this by making basic services more acces-
   “I went here and there, probably until he was 15,
                                                                  sible to them.
   when I learned that there was a psychiatric hospital
   I could take him to where he can be given speech                  Society must recognize them [people with disabilities]
   and occupational therapy. By then, his hand had                   and give them opportunity to contribute. Like in the
   coagulated, he could barely turn his hand to do                   case of my brother, he works with the radio station. But
   anything. But he talks, walks, he is very active.”                it is more difficult for an elderly person who has […]
   – mother of an adult with Down syndrome                           lived a “normal” life until he becomes disabled.”
                                                                     – a visually impaired man from rural area, Jos
Some participants shared their belief that individuals
who acquire impairments as adults carry a greater                 On the other hand, a person who becomes impaired
burden than children with disabilities. The adult has             in his or her adulthood who has already accomplished
already experienced life without a disability, whereas a          a great deal and is well recognized by society tends to
child may not yet fully understand the implications of            face less discrimination than a person who becomes
his or her disability. However, adults and children with          impaired at a young age. In a study that included three
disabilities alike are hurt by maltreatment and stigma-           ethnic groups from Nigeria: the Igede from North Cen-
tization. Among other things, children with disabilities          tral, the Yoruba from South West, and the Igbo from the
have limited access to education and recreation, which            South East, Nicholls (1993) notes that the Igede distin-
are crucial to their development, including their mental          guish between impairments resulting from accidents
capacity.                                                         or the aging process (objective causation) and those
                                                                  resulting from birth defects, which cannot be explained.
   “For the elderly, their own [stigma] is worse than
                                                                  The former group receives more favorable treatment,
   that of children. Once you were using your hands, legs,
                                                                  that is, they are less likely to experience discrimination
   and eyes, but over time you can no longer do all those
                                                                  and isolation; the latter are subject to more negative
   things. Their own stigma is much worse than that of
                                                                  attitudes.
   children.” – a visually impaired woman, Jos
                                                                     “Some people may lose their sight with age, but they
   “There are many differences when it comes to a child
                                                                     may have the advantage of being rich and people in the
   [with disability] because there are no recreation activities
                                                                     community will respect them because of their wealth.
   for development, and the mental capacity as a child is
                                                                     There is a former Commissioner of Plateau State who
   not there. As adults, some can struggle to make their way
                                                                     is now visually impaired, but people do not despise him
   and survive.” – a visually impaired man, Gombe
                                                                     and accord him due respect because of his status.”
Further, children likely have many more years to live                – a visually impaired man, Jos
with their disabilities than adults do. The degree of
access they have to early intervention services is a
significant determinant of meeting development




                                                                                                      4. REVIEW OF FINDINGS     23
     Recommendations                                                    for them, or will call them to his house and provide food
      	 Make early intervention services more available                 for free.” – a man affected by leprosy, Jos
        by promoting skills development in related fields,
                                                                        “We are Muslims and we have taken medication from
        such as speech therapy and pediatric neurology, and
                                                                        Christians and lived with Christians without problems.
        through the provision of relevant equipment.
                                                                        But since they have left, we don’t have a place to collect
      	 Offer counseling to and educate parents about their             drugs or even treat ourselves. Missionaries were helpful
        child’s disability so they can teach their children             to us, my leg was amputated in Mangu for free, but now
        how to care for themselves so as to safeguard their             we have to pay 120,000 and also go with a patient relative
        health and prevent secondary conditions.                        in Bayera in Bauchi state before they can attend to you.”
                                                                        – a man affected by leprosy, Jos
      	 Deliver disability management services, including
        care-taking, access to education, and health services        However, many persons with disabilities have a
        through the formation of and networking with sup-            different experience in terms of inclusion in religious
        port groups.                                                 activities and leadership under the current dispensa-
                                                                     tion. Despite biblical teachings against stigmatizing
      	 Ensure that adults who have recently acquired
                                                                     persons with disabilities, religious leaders and follow-
        impairments have access to rehabilitation services,
                                                                     ers still reflect the larger society, which does stigmatize
        including mental health, psychosocial, and reinte-
                                                                     them. Many view persons with disabilities as miracu-
        gration support.
                                                                     lous rather than allowing them to actively participate
      	 Provide inclusive basic services to children and             in religious activities. The Islamic faith practiced in
        young persons with disabilities, including recre-            Nigeria is less discriminatory in terms of the participa-
        ational activities, transportation, and education.           tion and leadership of persons with disabilities in the
                                                                     religious sphere.
      	 Foster disability inclusion among children and youth
        through awareness-raising and role modeling activi-
                                                                     Recommendations
        ties that demystifies disability.                             	 Raise awareness among religious and traditional lead-
                                                                        ers about disabilities and persons with disabilities.
     Religion and Geopolitical Zones
     In Nigeria, religion informs many of the beliefs and atti-       	 Advocate for the inclusion of persons with disabil-
     tudes toward persons with disabilities in the northern             ities in places of worship by, for example, making
     and southern parts of Nigeria. The predominant reli-               churches and mosques accessible.
     gion in the north is Islam; in the south, it is Christianity.    	 Promote the active participation and leadership of
     The Islamic religion teaches that disability is the will of
                                                                        persons with disabilities in religious settings.
     Allah and should therefore be accepted.
                                                                      	 Promote the idea that persons with disabilities can
        “The Islamic religion holds that people with disabilities
                                                                        be religious leaders.
        should seek help from others who are well-to-do in the
        society. Like during Ramadan, when people go to the           	 Encourage religious leaders to publicly champion
        mosque in the evening, rich men will cook and bring food        disability inclusion.




24   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Displacement                                                   	 Develop the capacity of humanitarian actors to
The Boko Haram insurgency in North East Nigeria                  mainstream disability into their work.
and attacks by herdsmen in the north and south have            	 Raise awareness of the existing international frame-
displaced many, including persons with disabilities.
                                                                 works and resources on inclusion of persons with
Further, conflict and humanitarian contexts are known
                                                                 disabilities in humanitarian actions among relevant
to result in impairments.
                                                                 actors.
A recent review of disability inclusion in the humani-         	 Provide technical support and resources to relevant
tarian response in North East (CBM International and
                                                                 actors to implement frameworks on the inclusion of
JONAPWD 2019) reveals that the efforts reported by
                                                                 persons with disabilities in humanitarian actions.
four selected actors toward disability inclusion were
inadequately systematic to have a positive impact on           	 Establish and support a national platform on dis-
beneficiaries with disabilities. Disability data were not        ability-inclusive humanitarian actions.
available, services and programs were not accessible to        	 Advocate for active participation of persons with
persons with disabilities, and beneficiaries with disabil-
                                                                 disabilities.
ities did not actively participate in making decisions
that affect their lives in the camps. Identified reasons
for this include a disability-inclusion capacity gap          Barriers to Inclusion
among humanitarian actors, the absence of an avail-
                                                              Access to basic services is critical to the socioeconomic
able coordination platform for disability inclusion, the
                                                              development of individuals. Persons with disabilities
low prioritization of disability inclusion in the face of a
                                                              regularly face a variety of obstacles related to educa-
complex humanitarian environment, the adoption of a
                                                              tion; employment and livelihoods; public information
charity approach, and the lack of a budget allocation for
                                                              and communications; health; community-based reha-
disability inclusion.
                                                              bilitation, assistive devices, and technology; transporta-
Study participants reported that environmental barri-         tion; social protection; electoral and political processes;
ers, which lead to dependence, represented their main         institutional landscape; and legal frameworks and
challenge. Internally displaced persons with disabilities     programming. They are each discussed in turn below.
are cut off from the environment to which they had
already adapted and where they had already mastered           Education
their livelihoods. Moving into a new environment poses        According to Ojile (2000), the first attempts at meeting
great barriers to their freedom and independence.             the educational needs of persons with disabilities in
Many are traumatized by being separated from their            Nigeria was initiated by missionaries. According to this
families and friends.                                         research, a school for the visually impaired was estab-
                                                              lished in Faliya, Bauchi State, in 1935, and the Gindiri
Recommendations                                               School for the Blind was established in Plateau State in
 	 Address disability as a cross-cutting issue in emer-       1953 by the US and UK branches, of the Sudan United
   gency, relief, and recovery interventions by humani-       Mission, respectively. The Pacelli School for the Blind
   tarian actors.                                             and the Wesley School for the Deaf were both founded




                                                                                             4. REVIEW OF FINDINGS          25
     in 1962 by Roman Catholic and Protestant church mis-          Inadequate opportunities to participate in quality
     sionaries, respectively.                                      education. The education sector is segregated, chil-
                                                                   dren with disabilities have difficulty getting admitted
     Nigeria currently operates a special school system, par-
                                                                   into schools, most schools lack adequate facilities
     ticularly at the primary level, including a few attempts
                                                                   and resources, and parents lack the financial capacity
     at an integrated approach focused on specific disabili-
                                                                   needed.
     ties at the secondary level. There are very few inclusive
     public schools in the states of Katsina and Kaduna.              “First there is the educational barrier, many of them
     As awareness of inclusive education for children with            [people with disabilities] don’t have access to quality
     disabilities has increased, a few private inclusive schools      education. Many parents cannot even afford getting
     have been springing up, particularly in Lagos and Abuja.         admitted [to the school] and then as to continuing
     Tertiary institutions of learning are mostly inaccessi-          education, the system itself is not inclusive enough to
     ble to students with disabilities. However, no official          cater to their needs.” – a man with albinism, Abuja
     documentation exists regarding the degree of accessibil-
                                                                   Inadequate learning aids. Learning materials, includ-
     ity of these various tertiary schools, other than limited
                                                                   ing assistive devices and technology, are not available
     information from a few universities (Ahmed, Awad, and
                                                                   in adequate quantities for effective learning.
     Adam 2014; Ajuwon and Chitiyo 2016).
                                                                      “They are not really available, you take your recorder
     In 2008, 29.6 percent of children with disabilities who
                                                                      to class, then you have to get your own scanner to
     were of primary school age were reportedly out of
                                                                      scan. If you cannot afford to have your own scanner
     school (FRN 2012a). A study by Smith (2011) in the
                                                                      then you have to go to shops to get online materials.
     states of Kogi and Niger indicated that half of the sam-
                                                                      Your source for all these things is yourself.”
     ple had no education, while 19 percent had a primary
                                                                      – a visually impaired woman, Jos
     education (of which two-third were male and one-third
     female), and 18 percent had an Islamic education.             Dearth of resource persons. There are too few
                                                                   resource specialists, even at special schools. Sometimes
     Multiple studies identify the following impediments
                                                                   specialists are posted to the wrong schools, impeding
     to the education of learners with disabilities in
                                                                   learning and participation in the classroom and eventu-
     Nigeria: a lack of facilities and learning aids, including
                                                                   ally having a negative impact on performance.
     assistive technologies due to their high cost; inade-
     quate and unskilled human resources; an absence of               “I may be specialized in vision impairment, another
     legislation that guarantees inclusive education; inade-          person in hearing impairment. I witnessed a situation
     quate funding to meet learning and teaching needs for            where a visually impaired person who studied
     children with disability; inadequate implementation of           education for the visually impaired was posted to
     existing education policies; discriminatory attitudes;           Wesley school for the hearing impaired to teach.”
     and a dearth of early identification and intervention            – a visually impaired man, Lagos
     programs (Akogun, Njobdi, and Adebayo 2018; Eleweke,
                                                                   Inaccessible environment. The physical environment
     Agboola, and Guteng 2015; Nkechi 2013; Obiakor and
                                                                   in schools is often inaccessible to students with physi-
     Eleweke 2014; Oladele, Ogunwale, and Dafwat 2016).
                                                                   cal and vision disabilities. The overall state of buildings
     Participants of this study also cited these barriers, as
                                                                   dedicated to impart educational services to children
     well as others outlined below.




26   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
living with disabilities could also be improved. This           available to teach particular subjects, such as mathe-
poses a challenge to their participation in education at        matics to visually impaired students. A common mind-
all levels and puts the health of the students at risk.         set among those in the education sector is that persons
                                                                with disabilities should not pursue careers other those
   “Let’s talk about visual impaired people in the
                                                                related to their disability.
   school environment. Especially in Unijos, the school
   environment is not adapted to the visually impaired             “They feel that there are courses a visually impaired
   at all. I fell into the gutter several times and injured        person should not do […]. Like the one I studied,
   myself, even now I still have a wound on my leg.”               psychology, it wasn’t expected for a visually impaired
   – a visually impaired woman, Jos                                person to study psychology. So, a lot of discrimination,
                                                                   lecturers will tell you to your face you don’t have
   “I’ve been to schools where there is no ramp and the
                                                                   any business coming to this department.”
   floor is so rocky that the wheelchair cannot easily move.”
                                                                   – a visually impaired woman, Lagos
   – a woman with physical disability, Lagos
                                                                   “Some people believe that all hearing impaired
Inaccessible communication. Hearing impaired
                                                                   people should go into special education as a teacher.”
students in schools face communication barriers. Some
                                                                   – a hearing impaired man, Lagos
teachers are not proficient in sign language, even in
special schools. Students with albinism are cut off from        Many students with disabilities are systematically
classroom communication due to their eyesight, partic-          excluded from science-oriented careers because of their
ularly if a teacher refuses to acknowledge the issue and        disabilities. Studying the sciences is associated with
does not let them sit at the front of the classroom.            better paying jobs, so excluding persons with disabil-
                                                                ities contributes to the high poverty rates among the
   “Many teachers in schools for the hearing impaired
                                                                population, particularly women and girls. Participation
   nowadays cannot sign. Employment of the hearing
                                                                rates among women and girls in the sciences is low
   impaired teachers has become something else. They
                                                                across the globe; some governments are responding
   just receive notes from politicians and take them
                                                                with affirmative actions. However, women and children
   to schools for the hearing impaired for immediate
                                                                with disabilities are not included in any affirmative
   employment, even though they are not trained in sign
                                                                action programs in Nigeria, despite their vulnerability.
   language. In my state, Kwara State, many teachers of the
   hearing impaired cannot sign. They will just write on the       “Even in our school, there is no one that can
   board and they leave. The same in Osun State andLagos           teach visually impaired persons maths or English,
   State.” – a hearing impaired teacher, Oyo                       and these subjects are the gateway to university.”
                                                                   – a visually impaired man, Jos
   “Some of us [people with albinism] are short sighted and
   this affects our education. Teachers ask you to sit at the      “I think the ministry needs to develop specific policies
   back of the class, knowing full well that you cannot see.”      to encourage children living with disability to study
   – a woman with albinism, Lagos                                  sciences.” – federal ministry official

Limited career opportunities. Persons with disabil-             Negative attitudes among teachers and peers.
ities are often limited in their choice of careers due          Negative attitudes toward children with disabilities are
to stigma and to the dearth of skilled professionals            widespread among teachers and peers, particularly




                                                                                                    4. REVIEW OF FINDINGS     27
     impacting children with albinism, children affected by           Inclusive Education for Hearing Impaired
     leprosy, and children with epilepsy. Name-calling, bul-          Learners
     lying, and teasing are common at school. This relates to         The hearing impaired participants of this study strongly
     the issue of child protection and the fact that children         oppose the idea of inclusive education in Nigeria.
     living with disabilities experience higher vulnerabilities       Similarly, most of the hearing impaired participants in a
     compared with other students. This issue should be               study by Nkechi (2013) preferred segregated to inclu-
     further explored and researched to inform educational            sive education. From the perspective of many hearing
     programming in Nigeria.                                          impaired people, inclusive education does not suit their
                                                                      learning, particularly at the primary level. There is a
        “So you understand, it starts at home and continues
                                                                      current dearth of teachers who know sign language,
        at school. In school, […] we go through all kinds of
                                                                      even in special education settings. Fellow students who
        teasing, name calling, all sorts of humiliation. The
                                                                      are not necessarily proficient in sign language them-
        teachers do not help, the teachers will call you names,
                                                                      selves are sometimes asked to be interpreters. Commu-
        “you, this blind man”, you know. All of that brings its own
                                                                      nication barriers result in hearing impaired students
        untold pressure that many of us, at a certain point,drop
                                                                      receiving less benefit in an inclusive setting.
        out of school and never want to go back to school.”
        – a man with albinism, Abuja                                     “We might have some other students sign for us during
                                                                         class but those students might not be very good at it.”
     Inclusive Education for Children                                    – a hearing impaired woman, Jos
     with Disabilities
                                                                         “If you look at the schools for the hearing impaired in
     Inclusive education is still lacking in Nigeria. Nkechi
                                                                         Nigeria, most teachers cannot communicate in sign
     (2013) opines that special education should be made
                                                                         language. Most of those who studied special education
     available to all learners with disabilities, while inclusive
                                                                         in universities are posted to schools for the hearing
     education is the ultimate goal.
                                                                         impaired because they cannot find jobs. They don’t even
     Some study participants expressed the view that                     study education of the hearing impaired. They keep
     educating children with and without disabilities in                 posting teachers to schools for the hearing impaired and
     the same classroom improves attitudes toward chil-                  the teachers are not trained in sign language, how will
     dren with disabilities as well as the social interactions           they communicate?” – a hearing impaired man, Jos
     among all students. Inclusive education can also accel-
                                                                      Structure and language development are vital to the
     erate speech-related improvements among children
                                                                      education of hearing impaired children. Educators
     with developmental disabilities.
                                                                      believe that inclusive education at the primary level
        “Inclusion is best for children with intellectual             negatively impacts hearing impaired students because
        disabilities because it helps in their speech therapy.”       their opportunities for sign language development,
        – mother of a son with Down syndrome, Lagos                   which is the mother tongue of the hearing impaired,
                                                                      is reduced. They advocate for direct student-teacher
        “When I was in university, one of my lecturers would
                                                                      interaction using sign language—not through
        make disabled and “normal” persons sit together to break
                                                                      interpreters.
        the barrier of discrimination. SInclusive education is very
        important.” – a visually impaired woman, Jos




28   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Study participants emphasized that hearing impaired                   “For people who lose their sight later in life,
culture and values are also better absorbed when hear-                maybe when they are about to write West African
ing impaired learners can interact with one another                   Examination Council (WAEC)10 or they are in the
and with hearing impaired adults. Inclusive education                 university, need rehabilitation—how to read and write,
does not promote hearing impaired culture because                     mobility and all that. Visually impaired children who
hearing impaired children have fewer opportunities to                 are going to school for the first time have the same
interact with hearing impaired peers and adults.                      needs. So, those kind of special schools will be there
                                                                      to cater for that kind of students. To now advocate for
Inclusive Education for Visually Impaired                             inclusive school like that, to me, it’s not going to work
Learners                                                              for now, particularly at the primary education level.
Similarly, visually impaired participants of this study do            Inclusive is good but let’s have functional special schools.”
not support inclusive education for visually impaired                 – a visually impaired man, Lagos
children at the primary level. Visually impaired chil-
                                                                 Challenges experienced by visually impaired students
dren feel left out in an inclusive classroom, sometimes
                                                                 attending regular schools in South East Nigeria, accord-
because the teacher excludes them, even if uninten-
                                                                 ing to a descriptive study by Esere et al. (2016), include
tionally. Visually impaired learners in an inclusive
                                                                 negative cultural and traditional beliefs, such as lowered
setting also experience inadequate access to learning
                                                                 expectations among teachers and school staff; inad-
materials in accessible formats.
                                                                 equate availability of adaptive and assistive devices;
   “The teacher will write on the board and continue             and architectural barriers. A study of visually impaired
   teaching, forgetting that there are visually impaired         students in Lagos State similarly finds a lack of instruc-
   children in the class and we get lost. Sometimes in the       tional support and discriminatory attitudes (Brydges
   course of teaching, they point to the board and say ‘this’    and Mkandawire 2016). Coping mechanisms include
   but we don’t know what the ‘this’ is, so they don’t take us   getting to know another visually impaired student who
   along.” – a visually impaired woman, Jos                      performs well academically and relating with nondis-
                                                                 abled peers without disabilities who are open to such
   “[…] What is the point of being in the same class
                                                                 relationships (Esere et al. 2016). Role models, champions,
   preparing for the same examination and the handout
                                                                 and advocates are crucial to raising awareness about the
   is in print and not braille? We are not prepared for
                                                                 education of persons with disabilities. Esere et al. (2016)
   inclusive education.” – a visually impaired man, Jos
                                                                 further posits that the low rates of school enrollment
The visually impaired participants of this study believe         rates among girls may be due to the parents’ fear that
that special education is extremely relevant at the              their children will suffer abuse and discrimination at the
primary level to develop the ability of visually impaired        schools and that the removal of subjects such as braille
children to read and write and to rehabilitate those             education, typing, daily living skills, mobility, and orienta-
who become visually impaired. Mobility and orienta-              tion from the secondary school curriculum has discour-
tion are also more effectively taught in a special educa-        aged people with vision impairments to pursue further
tion setting.                                                    education in Nigeria.

                                                                 10. The West African Senior School Certificate Examination (WASSCE) is a type of standard-
                                                                 ized test in West Africa administered by West African Examinations Council (WAEC). The
                                                                 examination is informally known as WAEC.




                                                                                                                 4. REVIEW OF FINDINGS                        29
     According to Iroegbu (2007), segregated education            Management Information System data from states sup-
     focuses on individuals’ disabilities, isolates them          ported by the Education Sector Support Programme in
     from their homes and communities, and provides               Nigeria (ESSPIN) (Humphreys and Crawfurd 2015). The
     them with less exposure to experiences in the society        report identifies disability as one of the cultural barriers
     (Dada 2006), but it also affords learners with disabil-      to education and acknowledges the lack of education
     ities the opportunity for individualized educational         provided to learners with disabilities in Nigeria’s basic
     programs. Segregated special education can also aid          education system. Enrollment rates among children
     the effective implementation of inclusive education as       with disabilities in mainstream schools has been
     the latter draws from the experience, expertise, and         increasing in states that have been implementing the
     resources of the former, making it more effective at         recent ESSPIN interventions, such as Jigawa, Lagos, and
     accommodating learners with disabilities in inclusive        Kaduna, but the retention rate, their needs, and their
     settings (Iroegbu 2007).                                     experiences at school are not known (ESSPIN 2013).

     Special education and integrated approaches are
                                                                  Vocational Education and Technical Training
     currently ineffective at providing education to learners
                                                                  Vocational education involves skill-based programs
     with disabilities in Nigeria; they force learners to leave
                                                                  that help students acquire the skills they will need
     their communities, and there are not enough specially
                                                                  to enter a defined vocation or workplace. Technical
     trained teachers to meet the need (Iroegbu 2007). Mul-
                                                                  training offers general technical knowledge not specific
     tiple experts affirm that inclusive education is a better
                                                                  to a particular vocation (Okoye and Arimonu 2016).
     approach (Adetoro 2014; Fareo 2012; Iroegbu 2007;
                                                                  Furthermore, “technical education prepares people for
     Lang and Upah 2008). In addition, inclusive education
                                                                  entry into recognized occupation at a higher level but
     practices already exist in the country as general educa-
                                                                  usually lower than the first degree” (Okoye and Ari-
     tion teachers manage learners of varying cognitive abil-
                                                                  monu 2016). Both technical and vocational education
     ities, with only those at either extreme being classified
                                                                  offer people the opportunity to become more proficient
     as special needs learners (Iroegbu 2007).
                                                                  in their current or future occupation. Both take place in
     Iroegbu (2007) therefore recommends that all preser-         formal and nonformal settings in Nigeria, and they are
     vice teachers be trained in the principles and practice      usually offered as combined technical and vocational
     of inclusive education so that every teacher has the         education that merges basic technical and scientific
     basic skills and knowledge to accommodate all learners       knowledge with skill-based learning, particularly in
     in the same classroom. Other experts express similar         formal settings (Okoye and Arimonu 2016).
     opinions (Adetoro 2014; Eleweke, Agboola, and Guteng
                                                                  There is dearth of published information on the expe-
     2015). Teachers already trained in inclusive educa-
                                                                  riences of persons with disabilities in technical and
     tion can benefit from in-service training to improve
                                                                  vocational education in Nigeria. The government has
     their skills, assisted by specially trained teachers and
                                                                  established six rehabilitation and vocational centers
     resources, as needed. The National Policy of Special
                                                                  (one in each geopolitical zone) to provide training to
     Needs Education 2015 adopts such an approach.
                                                                  persons with disabilities, but most are in deplorable
     Currently, information on the number of children with        condition as a result of neglect by the authorities. Anec-
     disabilities in Nigerian schools is limited to Education     dotal reports indicate that most vocational training




30   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
offered at these centers is outdated, nonfunctional, and         “Some of the challenges that visually impaired
irrelevant to the young generation. Inclusive technical          children face are that some of them want to learn
and vocational training is rare in Nigeria, although it          carpentry, but the equipment for learning is very sharp,
can be found in some other African countries, includ-            or that some want to learn how to make liquid soap,
ing Uganda and Kenya. The inclusive technical and                but there are some chemicals that are very harmful.”
vocational training that development partners and                – a visually impaired woman, Jos
civil society organizations are implementing could be
                                                              Regular vocational centers and programs are not inclu-
studied to guide a similar effort in Nigeria (Light for the
                                                              sive. Persons with disabilities also encounter stigma
World 2017).
                                                              and communication barriers when they try to learn at
It is very common for vocational training to be con-          regular vocational centers or programs.
ducted in nonformal settings in Nigeria, which allows
                                                                 “Sometimes we go and there is no interpreter, so we just
participants to learn in the local community, but little
                                                                 sit and look because there is no interpreter. We have a lot
to no evidence exists regarding the accessibility of for-
                                                                 of hearing impaired women who are willing to take on
mal and nonformal vocational training to persons with
                                                                 skill acquisition, but there is no interpreter. and nobody
disabilities, nor of the related barriers and facilitators.
                                                                 is willing to help them.” – a hearing impaired woman, Jos
According to participants of this study, vocational and
rehabilitation centers specifically for persons with          Adult Literacy
disabilities exist around the country, but their number       An adult literacy rate is the percentage of a population
is inadequate. Many are dilapidated, lack programs for        age 15 years or older who can both read and write with
relevant vocations, and only have obsolete equipment.         understanding a short, simple statement regarding
                                                              everyday life. Literacy also encompasses numeracy—
   “We have a vocational center in Zawan, but it is
                                                              the ability to make simple arithmetic calculations
   dilapidated, and we want the government to help
                                                              (UNESCO 2019).
   because some of our equipment [ for people with
   disabilities] is obsolete and some not even there.”        Groce and Bakhshi (2011) note the global lack of
   – a visually impaired woman, Jos                           available publications, statistics, reports, policies, or
                                                              practices on adult literacy programs and adults with
   “I think there are about five or six federal
                                                              disabilities. A recent review of literature on this topic
   government-established rehabilitation centers
                                                              in Nigeria reveals that notable adult literacy programs,
   in the whole of Nigeria we are talking of about
                                                              such as the UNIVA Functional Literacy Programme
   36 states and then the federal capital territory.”
                                                              and use of radio for nomadic educational programs and
   – a man with physical disability, Ibadan
                                                              mother and child educational programs, do not target
Furthermore, protective items needed to make it               or include adults with disabilities, and that the program
possible for students with disabilities to learn certain      activities are not available in accessible formats (Akin-
vocations—such as carpentry and soap making—are               tolu, Nzima, and Kapueja 2018). Given the barriers they
not available at the vocational centers, limiting their       face in accessing education, persons with disabilities
choices.                                                      could benefit from inclusive adult literacy.




                                                                                                4. REVIEW OF FINDINGS          31
     An analysis of the data (Leonard Cheshire 2018) on the     Gaps in Programming
     inclusion of persons with disabilities in education from   Unprepared and inadequately trained stakeholders
     Nigeria’s General Household Survey Panel 2012–13,          and teachers
     reveals the following:                                     Relevant stakeholders in the inclusive education of stu-
                                                                dents with disabilities are not yet adequately prepared
     	 Primary school completion rates among persons
                                                                to embrace the concept and take up the challenge.
       with disabilities is 100 percent compared with
                                                                Similarly, teachers do not have a solid understanding of
       78 percent of people without disabilities;
                                                                inclusive education practices.
     	 Secondary school completion rates of persons with
                                                                   “Inclusive education is very good but the situation
       disabilities is lower (40 percent) than that of people
                                                                   is that the teachers, special teachers, are not well
       without disabilities (56 percent);
                                                                   trained.” – a visually impaired woman, Lagos
     	 The participation rate in organized learning (a year
                                                                Lack of early detection and intervention
       before the official primary entry age) is higher for
                                                                Most students with disabilities have better outcomes
       people without disabilities (57 percent) than for
                                                                if they receive appropriate interventions very early, but
       persons with disabilities (12 percent);
                                                                early detection and intervention is not practiced in
     	 The rate of participation in formal and nonfor-          Nigeria.
       mal education and in training over the previous
                                                                   “Those students who will benefit from that type of
       12 months is lower among youth with disabilities
                                                                   education have been evaluated, and provided with
       (25 percent) than for youth without disabilities
                                                                   hearing aids for them to follow with their peers.
       (55 percent);
                                                                   We know that many of the students we have in
     	 Adults with disabilities participated less in formal        special schools would be in regular classrooms outside
       and nonformal education and training during the             Nigeria because they would have been identified early.
       previous 12 months (0.5 percent) than had adults            For instance, they would have had cochlea implants as
       without disabilities (4.5 percent);                         a baby and would have developed speech like every
                                                                   other child. We don’t have this opportunity, and so
     	 Nondisabled persons in the age cohort of 25–54 years
                                                                   early detection is not there. And even if it is detected
       or 55 years and older are more likely to complete
                                                                   early, for how many of them do we intervene?”
       a university education (9.1 and 9 percent, respec-
                                                                   – a female academic in Public Health, Ibadan
       tively) than persons with disabilities in the same age
       groups (4.5 and 5 percent, respectively); and            Dearth of learning materials and
                                                                assistive technologies
     	 Among the age cohorts of 15 and older, under 25,
                                                                Most of the printed materials are not available in
       and 25 and older, persons with disabilities are less
                                                                formats accessible to visually impaired students,
       likely to have functional literacy skills (37, 36, and
                                                                which are expensive to produce. Assistive technology
       35 percent, respectively) than people without dis-
                                                                is not always available, and when it is available, it is
       abilities (68, 64, and 61 percent, respectively).
                                                                unaffordable.




32   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
   “As a visually impaired student—at all levels—you don’t   sheets of paper plus a carbon sheet between them,
   have access to most of these materials […] in braille     which is manually set.
   format […] Also those materials seem to be very, very
                                                             A lack of skills in terms of using assistive technology
   expensive, the gadgets, accessibility to printers, the
                                                             devices among teachers is another factor. In fact, a few
   computer.” – a visually impaired man, Gombe
                                                             institutions have limited access to assistive technologies,
In a survey of 165 special educators from five Nigerian      but their students do not due to the inability of unskilled
states, Ajuwon and Chitiyo (2016) show that the largest      teachers to transfer the necessary skills to the students.
users of assistive technologies are learners with a hear-
ing or learning disability (53 and 40 percent, respec-       Good Practices
tively). The study also indicates that the professionals     An inclusive private primary school in Jos, Plateau
are not trained in the use of assistive technologies,        State, enrolls children with various disabilities as well
assistive devices and services are not available in class-   as those without disabilities, teaching them in the
rooms, and the electricity supply is erratic. Respondents    same classroom. The teachers are adequately trained
from a different study also reported that they have little   to educate children with disabilities, and parents of
access to assistive devices out of ignorance and due to      hearing impaired children are required to have one
the high cost (Smith 2011).                                  other family member take lessons in sign language
                                                             lessons at the school so that the child can communi-
No information or publications exist regarding the
                                                             cate at home. It is compulsory for all students to learn
availability and contents of policies, strategies, stan-
                                                             sign language, regardless of their disability status. The
dards, programs, services, resources, and facilities for
                                                             school’s educational standards are high, which attracts
the inclusion of students with disabilities in tertiary
                                                             many students.
institutions in Nigeria. The efforts of information tech-
nology stakeholders to make public information more
                                                             Recommendations
accessible to persons with various types of disabilities
                                                              	 Ensure that the government puts in place the educa-
is also not understood.
                                                                tional support necessary for inclusive education to
                                                                work in Nigeria.
Lack of educational support to students
with disabilities in tertiary education                       	 Advocate for inclusive education that targets key
Students in higher education do not receive any sup-            stakeholders, such as the hearing impaired commu-
port to help them study. Other countries have dis-              nity and special needs educators and administra-
ability support units to cater to the needs of students         tors, to get their buy-in, commitment, and support.
with disabilities, including the provision of reasonable
                                                              	 Develop mainstream teachers in the principles and
accommodations in classes and during examinations.
                                                                practices of inclusive education.
Visually impaired students in all Nigerian tertiary insti-
tutions use typewriters to answer examination ques-           	 Investigate and learn from the experiences of the
tions. According to one visually impaired informant, an         private schools that are currently practicing inclu-
invigilator reads the questions to the visually impaired        sive education for children with disabilities.
students, who then respond on a typewriter using two




                                                                                            4. REVIEW OF FINDINGS          33
      	 Integrate the learned experiences of other African         with 0.9 percent of women without disabilities. Partic-
        countries where inclusive education is working.            ipants for this study cited several barriers to employ-
                                                                   ment, outlined below.
      	 Explore the perspectives of teachers in mainstream
        schools regarding inclusive education, how prepared
                                                                   Negative Attitudes Among Employers
        they are to include learners with disabilities in the
                                                                   Persons with disabilities are rarely hired due to the
        regular classroom, and what would motivate them
                                                                   mindset among employers that sees the disability
        to accommodate learners with disabilities in an
                                                                   rather than what the person might offer on the job.
        inclusive setting.
                                                                   Employers in some sectors think persons with disabil-
      	 Strengthen early detection and early intervention          ities will negatively impact their brand, and in some
        efforts for children with disabilities by developing       cases, job advertisements explicitly discourage persons
        relevant expertise, providing equipment, and devel-        with disabilities from responding. And in a context of
        oping referral pathways.                                   high unemployment in the general population, persons
                                                                   with disabilities end up relegated to the back of the
      	 Establish disability support centers to provide edu-
                                                                   employment line.
        cational support services to learners with disabilities
        in tertiary institutions.                                     “There are many people that have graduated and
                                                                      have all the degrees but they don’t have a job.
     Employment and Livelihoods                                       In fact, they will say ‘we the non-disabled persons
     Employment is crucial to poverty alleviation and                 don’t have jobs let alone the disabled persons.’”
     independent living. However, attitudinal and physical            – a male academic in special education, Jos
     barriers have been cited as some of the challenges
                                                                      “There is a shop where I was working for a
     preventing gainful employment of persons with dis-
                                                                      woman, and some people came and asked her why
     abilities in Nigeria, including denial of job opportuni-
                                                                      she allowed me to work in her shop, people would
     ties; inappropriate job placement; lower expectations
                                                                      not come and buy anything. The woman answered
     at work; and a lack of reasonable accommodations,
                                                                      and said to them ‘a human being is a human being
     including assistive devices and technology (Eleweke
                                                                      and I don’t discriminate against people.’”
     and Ebenso 2016). This may also take a gender dimen-
                                                                      – a woman with albinism from rural area, Jos
     sion for women with disabilities, who may not meet the
     standard of beauty required by some firms for employ-
                                                                   Disabling Work Environment
     ing women; and women with disabilities may be less
                                                                   Persons with disabilities who do get hired can prove
     educated than women without disabilities and men
                                                                   unproductive due to a lack of inclusive human
     with disabilities (Eleweke and Ebenso 2016). Leader-
                                                                   resources workplace policies. They may find themselves
     ship positions may not be given to women with dis-
                                                                   in a work environment that is disabling, including an
     abilities for a variety of reasons, including the fact that
                                                                   inaccessible physical environment, a lack of assistive
     they have few opportunities to receive an education
                                                                   devices and technologies, and negative attitudes among
     or skills development. This may partly explain Leon-
                                                                   colleagues. This results in a lack of job security because
     ard Cheshire’s (2018) finding of 0 percent women with
     disabilities in managerial positions in Nigeria compared




34   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
persons with disabilities are likely among the first to be                              “They don’t employ us because of our short stature.
laid off if a redundancy is declared.                                                   The only place they accept us is in movies, or in
                                                                                        entertainment like dancing. They use people of short
    “I know that at one point the federal civil service
                                                                                        stature as statues by coloring our bodies so people can
    will improve the employment drive. But if we want
                                                                                        laugh. It’s for money that people play such roles.”
    to look at employment, is it really just about putting
                                                                                        – a woman with short stature, Lagos
    somebody on your payroll and paying them for doing
    nothing? Part of being employed is to be productive,
                                                                                     Denial of Leadership Roles
    you understand. […] When looking at employment,
                                                                                     Persons with disabilities employed in government agen-
    we shouldn’t just be looking at your name getting on
                                                                                     cies tend to be denied leadership roles because of their
    the payroll but making sure that your environment
                                                                                     disabilities. Study respondents cited multiple cases that
    isconducive, there are disability policies in place at the
                                                                                     they believe were intentional.
    workplace, and all of that. So, looking at it that way we
    might not find that the quota is being implemented.”                                “I have never seen a director who is an albino.”
    – a female wheelchair user, Abuja                                                   – a man with albinism, Jos

                                                                                     Additionally, most employers of labor today demand
Lack of Inclusive Affirmative Action in
                                                                                     more skills than previously. However, persons with
Employment
                                                                                     disabilities may have fewer opportunities to develop
In line with the provision of the Disability Act, all
                                                                                     their skills due to the many barriers they face—attitudi-
public organizations are to reserve at least 5 percent of
                                                                                     nal, physical, institutional, and communication-related.
employment opportunities for persons with disabilities.
                                                                                     Skills development opportunities must be opened up
However, it is technically a federal law until domesti-
                                                                                     to men and women with disabilities to increase their
cated by states, the provision is not being enforced, and
                                                                                     participation in the labor market.
is mostly subject to the individual discretion of hiring
personnel.11                                                                         Data from Nigeria’s General Household Survey Panel
                                                                                     2012–13 reveal unemployment rates among persons
    “With regard to access to employment, we also know
                                                                                     with disabilities of 77 and 63 percent for ages 15–24 and
    that the government has announced that for any
                                                                                     25–64, respectively, compared with people without dis-
    government established, a certain percent of employee
                                                                                     abilities in the same age cohorts at 49 and 21 percent,
    should be reserve for persons with disabilities. How have
                                                                                     respectively (Leonard Cheshire 2018). The data also
    we implemented this thing?” – a male academic, Oyo
                                                                                     show that 61 percent of youth with disabilities (ages
                                                                                     15–24) are not in education, employment, or training
Inappropriate Employment
                                                                                     compared with 23 percent of persons without disabil-
Persons with disabilities sometimes accept jobs in
                                                                                     ities in the same category. Additionally, 12 percent of
undesirable industries because it is their only available
                                                                                     adults with disabilities and 16 percent of people with-
opportunity. For example, the portrayal of persons with
                                                                                     out disabilities (ages 15 and older) have an account at a
disabilities in the entertainment industry can indirectly
                                                                                     bank, at another financial institution, or with a mobile
reinforce negative images of disability.
                                                                                     money service provider.
11. https://www.premiumtimesng.com/news/headlines/307494-ten-things-to-know-about-
nigerias-new-disability-law.html.




                                                                                                                        4. REVIEW OF FINDINGS     35
     Gaps in Programming                                          those with cognitive impairments (Eleweke and Ebenso
      	 The implementation of inclusive employment poli-          2016). In addition, information meant for the general
        cies and pronouncements is inadequate.                    population is not available in language simple enough
                                                                  for people with intellectual disabilities to access.
      	 The absence of an inclusive human resources policy
        puts employees with disabilities at a disadvanta-         In tertiary institutions in Nigeria, studies indicate
        geous situation at work.                                  insufficient access to assistive technologies for making
                                                                  information accessible to students with disabilities
     	 There is a lack of advocacy for inclusive employment.
                                                                  (Ezeani et al. 2017). Reported challenges include the
                                                                  lack of available assistive technologies for people with
     Good Practice
                                                                  sensory impairments, out-of-use assistive technologies,
     The Plateau State government is implementing the
                                                                  negative attitudes among relevant staff and peers, and
     employment provision in its disability law.
                                                                  physically inaccessible information and communica-
     Lagos State Special People’s Law 2011 has an employ-         tions technology facilities and resources. This study
     ment quota for any organization with 100 or fewer            reveals similar findings, as described below.
     people in their workforce of 1 percent for people with
     disabilities.                                                Inaccessible Public Information and
                                                                  Communications
     Recommendations                                              Public information and communications are not acces-
      	 Increase advocacy efforts for inclusive employment        sible to people with sensory impairments, including
        that target all private and public sectors.               individuals with albinism. Information is not available
                                                                  in accessible formats, such as sign language, audio, sim-
      	 Develop and fund inclusive employment and liveli-
                                                                  ple language, and large typeface. When provided, sign
        hood interventions by development partners.
                                                                  language interpretation on television is ineffective.
      	 Promote the active participation of men and women
                                                                     “We have sign language interpreters on TV, but in a very
        with disabilities in skills development programs and
                                                                     small corner and we might have to call our children to
        in leadership roles.
                                                                     come and interpret for us. But the children sometimes run
                                                                     away or fall asleep when it is time for news because they
     Public Information and Communications                           are tired of interpreting.” – a hearing impaired woman, Jos
     Study participants identified the lack of access to public
     information and communications as a major constraint
                                                                  Illiteracy
     to the social development of persons with disabilities,
                                                                  The high rate of Illiteracy among persons with dis-
     particularly individuals with sensory and cognitive
                                                                  abilities makes it difficult for many to access public
     impairments. Elsewise and Ebenso (2016) document
                                                                  information in English. Sometimes, information is not
     the absence of adequately trained sign interpreters as a
                                                                  available in the local languages.
     challenge for the hearing impaired population in Nigeria
     in accessing public information and communications.             “The information on the radio is in English and this
     Similarly, public information is seldom available in for-       language is not understood by a majority of our members
     mats that are accessible visually impaired persons or to        at the grassroots level.” – a visually impaired man, Gombe




36   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Poor Quality Sign Language Interpretation                        	 Review, document, and provide assistive technol-
The quality of sign language interpretation in the coun-           ogies and apps for persons with different types of
try is poor. Interpreters do not receive any organized             disabilities, such as for a mathematics student with
training to qualify, hindering effective communication             weak hands.
with hearing impaired people and ultimately negatively
                                                                 	 Develop expertise to foster the local production of
impacting their socioeconomic development.
                                                                   assistive technologies.
   “We don’t have any institution in Nigeria that trains
   interpreters. Those who we call “interpreters” are just      Health
   signers. They are o nly trained to use sign language. They   In Nigeria, as elsewhere in the developing world, health
   use speech language to sign; we can’t classify them as       services are seldom accessible to individuals with phys-
   interpreters. There should be something like a registered    ical, sensory, intellectual, or mental disabilities. Barriers
   certificate for interpreters.” – a hearing impaired man      to accessing health services include physically inacces-
   (hearing impaired educator), Oyo                             sible environments, negative attitudes among health
                                                                workers, low knowledge of disability issues by health
Gaps in Programming                                             care workers, inaccessible equipment, and lack of avail-
	 Assistive technologies are lacking to make public             able health-related information in accessible formats.
  information accessible in alternative formats.
                                                                There is dearth of research into the general accessibility
	 Making information and communications accessible              of health services in Nigeria. Smith (2011) reports that
  to persons with disabilities is a low priority for the        71 percent of the respondents of a survey of persons
  government.                                                   with disabilities in the states of Kogi and Niger were
                                                                unable to access disability-specific health services. Some
	 Capacity is lacking to provide accessible information
                                                                studies focused on sexual and reproductive health,
  and communications.
                                                                including HIV, document the experiences of persons
Good Practice                                                   with a variety of disabilities while they try to access
Ability Plus, a television program on Nigeria television        health care services. They demonstrate that informa-
that highlights the needs and the potential of persons          tion, educational resources, and services for sexual and
with a variety of disabilities, is anchored by a hear-          reproductive health, including HIV, are inaccessible to
ing impaired woman and presented in sign language.              persons with disabilities despite the reportedly high
Experts have pointed that the studios where the pro-            rates of risky sexual behavior among this group (Ader-
gram is recorded should be improved to allow access of          emi, Pillay, and Esterhuizen 2013; Groce, Yousafzai, and
persons of disabilities into the building.                      van der Maas 2007; Olaleye et al. 2007). Most available
                                                                studies focus on the hearing impaired community (Aru-
Recommendations                                                 logun et al. 2012, 2013; Groce, Yousafzai, and van der
	 Develop and implement inclusive information and               Maas 2007; Osowole 1998).
  communications policies.
                                                                Research shows that persons with disabilities, like
	 Provide assistive technologies to make public infor-          other vulnerable groups, are at a high risk of acquiring
  mation accessible to persons with disabilities.               conditions related to sexual and reproductive health,




                                                                                                4. REVIEW OF FINDINGS           37
     and that they need equal access to relevant services           Ignorance of Disability Among
     (Aderemi 2014; Aderemi, Pillay, and Esterhuizen 2013;          Health Workers
     Arulogun et al. 2012, 2013; ENR 2015). However, persons        People affected by leprosy complain that health
     with disabilities are seldom able to access sexual and         workers stigmatize them as being contagious long after
     reproductive health services—or any other health care          they have ceased being so, although they live with the
     services for that matter. The findings of a recent audit of    resultant impairments caused by the infection. Such
     health, social, and criminal justice facilities reveal that    an attitude is indicative of the ignorance level among
     93 percent of health care facilities do not have disabili-     health workers on topics with which they should be
     ty-friendly policies, and only two of the 14 audited facili-   familiar—they should be educating the general popula-
     ties are physically accessible (DRAC 2018).                    tion to reduce stigma.

     There are a few studies documenting the low level of              “I am a leper, when I go to the hospital, they treat
     knowledge among health care personnel regarding dis-              me very well the first day. And, if I pass the night at
     ability matters. For example, Bakare et al. (2009) finds          the hospital, the next day they chase me out saying
     that health care workers have little knowledge of some            other patients won’t want to come because I am there.”
     of the symptoms of childhood autism. Similarly, only a            – a woman affected by leprosy, Jos
     few respondents were aware of risk factors for hearing
     loss in infants, such as low birthweight and mater-            Prohibitive Cost of Care
     nal exposure to noise during pregnancy (Olusanya               The cost of medical treatment is often beyond the
     and Roberts 2006). This study’s findings corroborate           means of the average person with a disability. Most
     the existing literature, as illustrated by the following       persons with disabilities have no access to health
     descriptions of their experiences.                             insurance, except the few who work for the federal
                                                                    government.
     Negative Attitudes Among Health Workers
                                                                       “It is not really affordable because by the time you
     Health workers exhibit negative attitudes toward per-
                                                                       check the consultation fee and other fees, not everybody
     sons with disabilities, particularly in the area of sexual
                                                                       can afford it. Particularly the mentally ill, who have
     and reproductive health. They generally frown upon the
                                                                       been neglected, and nobody is taking care of them.”
     idea of a woman with a disability being sexual, and if the
                                                                       – a man with mental illness, Benue
     woman is pregnant, health workers will probably ridicule
     and blame her for it. The health workers’ attitudes reflect
                                                                    Inaccessible Information and
     those of the larger society that discriminates against
                                                                    Communications
     women and girls with disabilities. In some instances, this
                                                                    Health-related information and educational materials
     has reportedly led to the sudden death of the woman.
                                                                    are not available formats accessible to persons with
        “There are instances where midwifes help a woman            disabilities in Nigeria. Hospitals lack sign language
        to give birth, see a person with albinism, and are in       interpreters, so hearing impaired patients must depend
        shock. “What have you given birth to?”. And some            on their family members and friends to communi-
        women will just go into depression and die.”                cate, representing a breach of confidentiality. Visually
        – a man with albinism, Abuja                                impaired patients are unable to independently read




38   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
their medication instructions, and must also sacrifice            Gaps in Programming
their right to confidentiality in some instances.                 Dearth of early intervention services
                                                                  Early medical interventions, such as rehabilitation and
   “Our major challenge is communication, I had high BP, the
                                                                  speech therapy, are scarce in Nigeria. The lack of exper-
   doctor didn’t tell me my diagnosis. Health is not accessible
                                                                  tise in these areas constitutes a major challenge to early
   to us as persons with disability. It’s a big challenge, so
                                                                  intervention, particularly for children with develop-
   we rarely use hospitals but rely on self-medications or
                                                                  mental disabilities. The experts who are available are
   pharmacies.” – a hearing impaired woman, Lagos
                                                                  very expensive.
   “For most government programs that have to do with
                                                                  Lack of training and skills in disability inclusion
   health, whether it is reproductive health or else, most
                                                                  Health workers lack disability-inclusion training, rep-
   information is not in accessible format for visually
                                                                  resenting an enormous gap in addressing the needs of
   impaired people.” – a visually impaired man, Gombe
                                                                  persons with disabilities in the health sector.
   “Sometimes, when you go to the hospital, you are
                                                                  Lack of budget allocation
   given different types of prescription. To find the drug
                                                                  A lack of relevant budget allocation is an impediment
   you need to rely on somebody else, there is no inscription
                                                                  to the implementation of health policies for addressing
   on the [medication] to identify which one you need to
                                                                  issues impacting persons with disabilities.
   take in the morning, which one you take in the afternoon,
   which one is which.” – a visually impaired man, Gombe          Lack of inclusive health policies
                                                                  Health-related policies do not address the needs of
Inaccessible Environment and Equipment                            persons with disabilities. The only disability-specific
The physical environment at most health facilities in             national-level policy on sexual and reproductive
Nigeria is inaccessible to persons with mobility and              health for persons with disabilities has not yet been
visual impairments. Also, hospital beds and equip-                implemented.
ment may not be accessible to persons with mobility
impairments.                                                      Good Practices
                                                                   	 Health workers in Akwa Ibom State do not discrim-
   “Health is not accessible, starting from the accessi-
                                                                     inate against persons affected by leprosy—a result
   bility into the facility, to their beds. This caused me
                                                                     of the work of The Leprosy Mission and the German
   to lose my child 10 years ago when I was pregnant and
                                                                     Leprosy and Tuberculosis Relief Association to sen-
   enrolled for an antenatal clinic. Unfortunately
                                                                     sitize and raise awareness of relevant stakeholders
   the antenatal clinic was upstairs, the rest rooms and
                                                                     in the health sector. The health workers are now well
   bathrooms were not accessible. If the hospitals had
                                                                     versed in the treatment and prognosis of leprosy.
   been accessible, I would have been on bed rest for them
   to manage my condition; I do not have a child till now.”        	 The Comprehensive Community Mental Health
   – a female wheelchair-user, Lagos                                 Programme in Benue State provides mental health
                                                                     services at the community level using low-cadre
                                                                     health workers trained specifically for the purpose.
                                                                     The health workers are government workers, which




                                                                                                 4. REVIEW OF FINDINGS         39
        promotes the sustainability of the program. The           sectors that can make up a CBR strategy include:12 (1)
        health workers are supervised by a tertiary hospital      education; (2) employment; (3) health; (4) livelihoods;
        in the catchment area. The program includes the           and (5) social services. A CBR program does not have to
        establishment of the Mental Health Advocacy Initia-       implement activities in all of the components; rather, it
        tive, which includes mental health service users and      should consult with persons with disabilities to identify
        community members. It raises awareness around             and prioritize the services they need, and the establish
        mental health at the community level and provides         collaborative relationships with other programs in its
        support to service users.                                 service provision catchment area.

     	 The Minister of Health recently launched a policy on       Empirical studies documenting the practice of CBR in
       the sexual and reproductive health of women and            Nigeria, the experiences of persons with disabilities,
       girls with disabilities, developed in collaboration with   lessons learned, and good practices during the imple-
       the national-level nongovernmental organization            mentation of CBR programs are sparse. A pilot project
       (NGO) Disability Rights Advocacy Center in Abuja.          aimed at facilitating the reintegration of persons with
                                                                  disabilities into their communities after they completed
     Recommendations                                              a vocational rehabilitation program was implemented
     	 Provide health information, education, and commu-          in Oyo State (Alade 2004). Reportedly, the project has
       nication in accessible formats.                            successfully trained 155 persons with disabilities since
                                                                  its inception, has witnessed an increase in vocational
     	 Train health workers to provide inclusive health
                                                                  training programs from 7 to 24, has provided revolving
       services and to understand the rights that men and
                                                                  loans to trainees, and has been introduced in six other
       women with disabilities have to health care services.
                                                                  Nigerian states. Major implementation challenges
     	 Collect and disaggregate disability-related data from      include inadequate funding due to low repayment rate
       patient records.                                           of loans and lack of expertise among local artisans to
                                                                  train people with vision impairments. Findings from
     	 Raise awareness among persons with disabilities of
                                                                  another descriptive survey of the beneficiaries of a
       their right to health services, including sexual and
                                                                  CBR program in Akwa Ibom State indicate a significant
       reproductive health care.
                                                                  association between CBR and livelihood enhancement
     	 Make health insurance accessible to persons with dis-      among persons with disabilities (Effiong and Otu 2017).
       abilities to reduce exorbitant out-of-pocket expenses.
                                                                  Ebenso et al. (2010) presents the findings of a 13-year
                                                                  historical review of the transformation of the socio-
     Community-based Rehabilitation,
                                                                  economic rehabilitation project in northern Nigeria
     Assistive Devices, and Technology
                                                                  into a coordinated CBR program for people affected by
     Community-based rehabilitation (CBR) is a communi-
                                                                  leprosy, including formulating new program policies
     ty-level effort and multisectorial approach to rehabil-
                                                                  and guidelines and training staff in CBR principles
     itate persons with disabilities, equalize opportunities,
                                                                  and practices. The review’s findings point to the fact
     and socially include all children and adults with dis-
                                                                  that the adoption of CBR principles and community
     abilities (Samuel 2015). The CBS matrix, which gives an
     overall visual representation of CBR and the different       12. See: World Health Organization https://www.who.int/disabilities/cbr/matrix/en/




40   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
development projects can stimulate improvements in               	 Reorient CBR actors and their capacity develop-
living conditions, self-esteem, and acceptance of people           ment efforts to enshrine CBR principles into project
affected by leprosy into the community. However, peo-              implementation plans;
ple in the program who are affected by leprosy remain
                                                                 	 Maintain the change processes initiated by com-
economically dependent on the program, and the
                                                                   munity-level CBR programs (e.g., by ensuring the
mobilization of other funding and partnerships for the
                                                                   continuity of an effective idea or scheme);
program is weak, making the program unsustainable.
                                                                 	 Ensure the participation of persons with disabilities,
In 2015, CBM International’s Nigeria country office,
                                                                   their organizations, and the community in decisions
one of the main funders of CBR programs in the
                                                                   regarding the evaluation and ownership of CBR
country, evaluated its 10 CBR projects, most of which
                                                                   programs; and
had already been supported for about 10 years each
(Enablement 2015). The evaluation found multiple                 	 Mobilize multisectoral partnerships and networks
factors crucial to effective CBR programming: the                  (Ebenso et al. 2010; Enablement 2015).
establishment of a multisectoral partnership network,
                                                                Participants of this study claimed that assistive devices
including a strong collaborative relationship with
                                                                and technology are not readily available in Nigeria, and
the government; the empowerment of persons with
                                                                because they are imported, they are very expensive if
disabilities; a clear understanding and practice of CBR
                                                                available.
principles; community-targeted activities; CBR program
ownership; and the adoption of a rights-based rather            Local expertise regarding the manufacturing of assis-
than a charity-based approach. A community-based                tive devices is lacking, and when is available, there is
approach is also more effective than a CBR program              little funding and incentives from development finance
operating within an institution, such as a hospital.            institutions, which reduces the opportunities for scaling
                                                                up the production of these devices easily and quickly.
According to the findings of the present study, CBR is
                                                                There is only small-scale production, with most of the
currently quite uncommon in Nigeria, with only a few
                                                                locally fabricated assistive devices being either obsolete
such programs in existence, such as blindness rehabil-
                                                                or inappropriate for the intended users.
itation in Zaria and a program for other disabilities in
Kaduna.                                                            “The types they produce in Nigeria are not comfortable.
                                                                   We just put the person in the wheelchair, not minding if
   “Okay, we have a few that do provide basic rehabilitation
                                                                   they are comfortable.” – a hearing impaired man, Jos
   services. We have one in northern Nigeria, we call it Hope
   for the Blind, Zaria.” – a visually impaired man, Gombe         “Ordinarily, assistive technology is not readily
                                                                   available in markets in Nigeria, because they are
The revival of CBR programming in Nigeria is vital to
                                                                   not commonly demanded due to their high cost.
promoting the inclusion of persons with disabilities at
                                                                   But if you demand it, they can import it for you.”
the community level and for advancing disability-inclu-
                                                                   – a visually impaired man, Lagos
sive development in the country. The following steps
are essential to sustain their sustainability:




                                                                                                   4. REVIEW OF FINDINGS      41
        “One barrier is the availability of knowledge.             offers a diploma program in community-based rehabil-
        Do they even know it’s available? And that starts          itation. The program helps to generate interest in the
        from the educational system.”                              field and raise experts. However, it is only offered as a
        – a female academic in public health, Ibadan               diploma course.

     Similarly, therapists are very few, based in large cities,    A few international NGOs focused on leprosy provide
     and usually with privately-owned practices; it is also        assistive devices to persons affected by leprosy in the
     very expensive to engage their services. These factors        states where they work, including The Leprosy Mis-
     have significant implications for early intervention and      sion International, German Leprosy Relief Agency, and
     rehabilitation, particularly in rural settings.               Damien Foundation.

        “The speech therapists are too expensive to access.
                                                                   Recommendations
        The speech therapist, occupational therapist,
                                                                    	 Assess and strengthen existing CBR initiatives
        physiotherapist. My God! There are some people who say
                                                                      through capacity development on CBR principles
        “There are NGOs that have this equipment”, but you will
                                                                      and practices.
        pay through the nose to access the therapy for the child
        and they keep telling you they are doing you a favor.”      	 Mainstream CBR issues into existing and future
        – mother of an adult with Down syndrome                       community-based interventions to address the
                                                                      needs of persons with disabilities.
     Gaps in Programming
                                                                    	 Develop manpower and establish facilities to locally
      	 Inadequate expertise and centers for manufacturing
                                                                      produce assistive devices and technology.
        of modern assistive devices.

      	 Low knowledge level of the principles and practice         Transportation
        of community-based rehabilitation.                         Accessibility is both a principle and an Article of the
                                                                   United Nations Convention on the Rights of Persons
      	 Lack of sustainability plan or design of community-
                                                                   with Disabilities (UN 2006). Accessibility should be
        based rehabilitation programs.
                                                                   comprehensive, including the provision of accessible
      	 Little government commitment to community-                 information and communications. Access to transpor-
        based rehabilitation and the local production of           tation goes beyond services to include the personnel
        assistive devices.                                         and physical environment utilized in the delivery
                                                                   of such services. Therefore, the inclusion of persons
     Good Practices                                                with disabilities should be prioritized across all com-
     There are a few local government areas in Kaduna              ponents of the travel chain, including the pedestrian
     that have community-based rehabilitation programs,            environment, access to terminal buildings, information
     including the local government areas of Kajiru and            provision, public transportation, and operators and
     Suba. These communities run workshops supported by            managers (Babinard et al. 2012). The government and
     the local government authority. They train persons with       its partners have an obligation to understand, identify,
     disabilities within the community in vocations such as        and remove every barrier to the transportation of per-
     welding, bricklaying, and tailoring. The University of Jos    sons with disabilities.




42   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Accessible transportation is important to increasing           Negative Attitudes Among
the participation of persons with disabilities in the          Commercial Drivers
mainstream of life—social, economic and political—             Some commercial drivers think that it is a waste of
and in reducing poverty (Babinard et al. 2012; Odufuwa         their time to help a passenger load a wheelchair into
2007). When transportation is accessible, other groups         their vehicle or assist a visually impaired person by
also benefit, including the elderly, children, and preg-       dropping them at an appropriate bus stop.
nant women (Babinard et al. 2012). However, inclusion
                                                                  “So, when we stop a vehicle, the driver will say, ‘
is rarely a priority in transportation planning, design,
                                                                  If I pick up this person, she doesn’t even know where
construction, or implementation in Nigeria.
                                                                  she is going, she will waste my time and that of other
A few available studies indicate the road environment,            passengers.’ If I don’t go out with my guide, I might end
vehicle design, and travel information as the main                up in the wrong place.” – a visually impaired woman, Jos
mobility challenges faced by persons with disabilities
in Nigeria (Ipingbemi 2015; Odufuwa 2007). Poverty is          Negative Attitudes Among Co-passengers
also a negative consequence of the exclusion of persons        Additionally, other passengers may shift away from
with disabilities from transportation in the country           persons with severe disabilities or alight from a vehicle,
(Odufuwa 2007). The transportation barriers reported           suggesting a discriminatory attitude toward persons
by persons with disabilities for this study are summa-         with disabilities. Due to these attitudes, persons with
rized below.                                                   disabilities are often forced to hire taxis to their desti-
                                                               nations rather than boarding buses or public taxis. This
Inaccessible Vehicles                                          means additional expenses for people who are already
Public transportation in Nigeria is physically inaccessi-      economically disadvantaged in many ways.
ble to persons with various types of disabilities. Com-
                                                                  “When you stop a vehicle to enter and they see
mercial drivers often have negative attitudes toward
                                                                  you’re disabled, the people in the vehicle will not even
them; some refuse to drive people who have been
                                                                  allow you to enter. Some drivers believe that if they take
affected by leprosy; some charge more to transport
                                                                  you, other passengers might not get on or alight from the
assistive devices such as wheelchairs; and some will not
                                                                  public bus.” – a woman affected by leprosy, Jos
even accept a wheelchair-using passenger.
                                                               It is crucial to raise awareness to these challenges
   And most cars are not constructed to take care of
                                                               among relevant stakeholders—policy makers, develop-
   persons with disability. We struggle to get into the car,
                                                               ment partners, and personnel—and to jointly explore
   we struggle to see how we can get on the bus.”
                                                               sustainable solutions. It is also critically important to
   – a male disability activist, Akure
                                                               consult with persons with disabilities and their organi-
   “He has his wheelchair and the loads. Each time             zations during the planning, design, construction,
   he wanted to enter, they would tell him he had              and implementation phases of transportation programs
   to pay for all the seats where he would sit.”               in Nigeria.
   – a male academic in Special Education, Jos
                                                               Anecdotal reports suggest that the Nigerian avia-
                                                               tion sector is grossly inaccessible to persons with




                                                                                                  4. REVIEW OF FINDINGS        43
     disabilities, although there is an unfortunate lack of          personal socioeconomic and political roles. Domes-
     published research on the subject. Disability inclusion         tic and international airports in Nigeria should make
     in this sector is primarily informed by the medical             provisions to allow access for persons with disabilities,
     model of disability, which does not recognize the rights        including those using wheelchairs. Airport staff, includ-
     of persons with disabilities to accessible air travel.          ing that of the Federal Airport Authority of Nigeria, do
                                                                     not receive adequate training on the principles and
     This study finds evidence of discriminatory attitudes
                                                                     practices of inclusive air travel for persons with disabil-
     among airline and airport staff, who often associate
                                                                     ities. They usually demonstrate inappropriate and risky
     disabilities with illness and think that passengers with
                                                                     boarding procedures and handling, such as demanding
     disabilities are incapable of caring for themselves while
                                                                     a passenger with mobility difficulties pay for the use
     onboard. Sometimes, persons with disabilities are told
                                                                     of a wheelchair for boarding, as this study documents.
     they must travel with a companion, even though many
                                                                     Sometimes, airport staff damage assistive devices, such
     can and do travel unaccompanied, especially given
                                                                     as wheelchairs, and then refuse to replace them.
     the expense of traveling with an assistant. In some
     instances, unaccompanied passengers with disabilities              “The airline insisted I pay for wheelchair services

     have been prevented from boarding planes or have                   despite the provisions of the Disability Act and

     been forced to deplane.                                            the Air Passenger Bill of Rights.” – a female with mobility
                                                                        impairment, Abuja
        “As a visually impaired person, you cannot get on board
        [an airplane] without a guide. […] A visually impaired       Furthermore, the wheelchair-accessible parking at
        woman reported to us; she finished school and tried          the Nnamdi Azikiwe International Airport, Abuja, is
        to come back to Abuja from Lagos, from a kind of             not available to air travelers with disabilities. The parking
        rehabilitation center in Lagos. Suddenly, when she went      has been converted to “VIP” (very important person)
        to the airport in Lagos, they told her she could not board
                                                                     use and requires the purchase of a sticker that costs
        unless she had somebody [to take care of her]. After a lot
                                                                     N100,000 annually. Indeed, there is a great need for inter-
        of dragging, the woman had to pay a certain amount
                                                                     ventions in the aviation sector to improve the situation.
        of money for her to be taken care of on board before
        she was allowed to board. This is a serious. It is not all
                                                                     Gaps in Programming
                                                                      	 There is little awareness among commercial drivers,
        the airlines [that do this], but we receive these types of
                                                                        airline staff, and airport staff of the transporta-
        cases.” – a visually impaired man, Gombe
                                                                        tion-related rights and needs of persons with disabil-
     Many think this sector is a lower priority than public             ities, including the handling of assistive devices.
     road transportation under the incorrect assumption
                                                                      	 There is a lack of facilities for safe, convenient, and
     that only a few persons with disabilities travel by plane.
                                                                        dignified boarding.
     This category of men and women with disabilities, who
     have the resources to undertake air travel, are key to           	 Inclusive transportation is a low priority to relevant
     disability inclusion advocacy in Nigeria and globally if           stakeholders.
     they are able to travel without constraints. They depend
     on air travel to fulfill this important role as well as other




44   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Recommendations                                             community-based health insurance scheme. Govern-
	 Raise awareness among commercial drivers as well          ment ministries, departments, and agencies (MDAs)
  as among the staff and management of airlines and         have implemented other ad hoc social assistance
  airports about disabilities, persons with disabilities,   programs, such as child savings accounts, disability
  and their rights.                                         grants, health waivers, education support, and nutrition
                                                            support. Other donor-led programs include conditional
	 Train airline and airport staff on how to appropri-
                                                            cash transfers for girls’ education in three states, child
  ately handle assistive devices.
                                                            development grants in two states, and programs that
	 Ensure that the government provides accessible            include social protection components.
  transportation for passengers with disabilities.          In 2016, the Nigerian government organized all of its
	 Develop and implement an inclusive transportation         social welfare initiatives under a single umbrella called
  policy.                                                   “social investment,” with no deliberate effort to ensure
                                                            the inclusion of persons with disabilities. The social
Social Protection                                           investment umbrella includes five program compo-
Social protection (or social security) is a human right,    nents: (1) N-Power—job provision to youth, particularly
defined as a set of policies and programs designed to       young graduates: (2) homegrown school feeding; (3) the
reduce and prevent poverty and vulnerability through-       national cash transfer program; (4) an enterprise and
out the life cycle (ILO 2017). According to the Interna-    empowerment program; and (5) the STEM (science,
tional Labour Organization (2017), social protection        technology, engineering, and mathematics) bursary
includes benefits for children and families, maternity,     program (Ukpong and Ikoh 2017). The National Social
unemployment, employment injury, sickness, old age,         Protection Policy was finally approved in 2017, but
disability, survivors of crisis and conflict, and health    these five program components persist as the govern-
protection. Social protection systems address these         ment has not yet rolled out the full implementation
areas with a mix of contributory and noncontributory        plan for it (Ukpong and Ikoh 2017).
schemes (ILO 2017).                                         Disability, gender, ethnicity, geographical location,
                                                            and HIV status are social dimensions of vulnerability
Poverty and inequality are rife in Nigeria. A social pro-
                                                            that influence people’s exposure to risk as well as their
tection policy has been on the agenda since 2004 but
                                                            resilience (UNICEF 2015). Social protection programs
remained at the draft stage due to inadequate political
                                                            can therefore improve people’s living standards and
traction (Hagen-Zanker and Holmes 2012) until it was
                                                            households’ access to services, which can then lead to
finally approved in 2017. The lack of a national-level
                                                            inclusive development outcomes (UNICEF 2015).
social protection policy had been an impediment to
the implementation of a social protection policy at the     Disability and poverty interact in a vicious cycle such
state level. There are currently three small-scale pro-     that persons with disabilities are among the poorest
grams led by the federal government: Care of the People     of the poor, with limited access to education, employ-
(COPE), a conditional cash transfer program; subsi-         ment, or livelihoods. Coupled with adequate access to
dized maternal and child health care provision; and the     basic services, social protection can provide livelihood




                                                                                          4. REVIEW OF FINDINGS          45
     security of and alleviate poverty among persons with            internal bureaucracies of organizations of persons with
     disabilities (Palmer 2013; UNICEF 2015).                        disabilities, and corruption of the leadership of organi-
                                                                     zations of persons with disabilities. These are discussed
     Despite the vulnerability of persons with disabilities,
                                                                     in turn below.
     there is no evidence of concrete provisions for including
     them in all of the existing social protection programs in
                                                                     Lack of Access to Social Security Schemes
     Nigeria, although the National Social Protection Policy
                                                                     Persons with disabilities experience high levels of
     included such provisions. In fact, some of the eligibility
                                                                     poverty, but they do not have access to loans or grants
     conditions may not favor most persons with disabilities.
                                                                     to start businesses, to access education and health, or
     For example, COPE’s conditional cash transfer program
                                                                     to augment their incomes. Life is more expensive for a
     targets households with children of school-going age
                                                                     person living with a disability, who might need assistive
     that are headed by a woman or that include a member
                                                                     devices, aides, personal assistance, home accommo-
     who is elderly, has a disability, has fistula, or is HIV-pos-
                                                                     dations, accessible transport, rehabilitation services,
     itive. A woman with a disability in Nigeria may not have
                                                                     or medical treatments to improve functioning. Access
     children or a head a household and so therefore may not
                                                                     requires financial resources that the average person
     be eligible to be a primary beneficiary. Similarly, women
                                                                     with a disability or a typical household that includes a
     with disabilities are less likely to benefit from the mater-
                                                                     member with disability may not have.
     nal and child health care program. Only the Jigawa State
     government provides disability grants to its citizens              “My elder sister gave me a plot of land now and said
     without clear eligibility criteria. Eligibility requirements       “Since you have learned about poultry, “Start a poultry
     for social protection schemes should be reviewed to                [ farm] and take care of yourself.” But without money
     better include persons with disabilities.                          to invest in the poultry business, how was I supposed
                                                                        to do that?” – a woman with physical disability, Jos
     Studies on the coverage of persons with disabilities by
     the conditional cash transfers in Nigeria are sparse. A            “It is very expensive, especially with cerebral palsy
     review of cash transfer programs for persons with dis-             children. I tried taking my daughter to [an NGO], the
     abilities in developing countries generally indicate pos-          condition there is that you have to bring a nanny.
     itive socioeconomic and service access outcomes, but               If the child cannot sit you have to get a special chair,
     coverage and benefit levels remain low (Palmer 2013).              called the CP Chair, and the last time I checked it cost
     Leonard Cheshire (2018) reported a social protection               about 200,000. As a person who is not working, you get
     coverage of 1.4 percent for persons with disabilities in           [the chair] and you will be able to move the child to
     Nigeria compared with 2.4 percent for persons without              school, but you still have to settle the school fees.”
     disabilities. This report was based on data on people              – father of a child with cerebral palsy, Jos
     that contributed to the national insurance scheme,
     which also highlights the exclusion of persons with             Internal Bureaucracies of Organizations
     disabilities from employment.                                   of Persons with Disabilities
                                                                     Occasionally, when social security is available, persons
     The experiences of persons with disabilities participat-
                                                                     with disabilities who are not affiliated with an orga-
     ing in this study related to social protection are char-
                                                                     nization do not benefit, possibly because they did not
     acterized by a lack of access to social security schemes,




46   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
receive the relevant information or because they did           Recommendations
not meet certain requirements, such as being a regis-           	 Investigate the level of access to the current social
tered member of a relevant organization. Provisions are           protection schemes that persons with disabilities
not usually made to facilitate the access of persons with         have, including barriers and facilitating factors.
disabilities to schemes aimed at the general population.
                                                                	 Address disability as a cross-cutting issue in the
   “Between 2013 to 2015, the government established              current National Social Protection Policy.
   a program and we were given money to start a small
                                                                	 Develop an implementation plan for the National
   business. But to enjoy this program, you had to belong to
                                                                  Social Protection Policy, including monitoring and
   a certain association.” – a visually impaired woman, Jos
                                                                  evaluation with disability-specific indicators and
   “Like for the cash transfer, we are not aware and              disaggregation of data by disability.
   nobody is going to tell us. So it would be better if
                                                                	 Develop eligibility criteria that do not exclude per-
   the government could send us text messages.”
                                                                  sons with disabilities.
   – a visually impaired woman, Jos
                                                                	 Ensure the active participation of persons with
Gaps in Programming                                               disabilities, their organizations, and/or disabili-
	 Provisions of the National Social Protection Policy             ty-focused actors in the development of the imple-
  that address the needs of persons with disabilities             mentation, monitoring, and evaluation plan for the
  are not being implemented.                                      National Social Protection Policy.
	 The National Social Protection Policy does not
  include disability as a cross-cutting issue; only a few
                                                               Electoral and Political Processes
  provisions mention disability inclusion.                     Low Knowledge Levels Among Staff
                                                               Independent National Electoral Commission (INEC) staff
	 Monitoring and accountability strategies to ensure
                                                               lack adequate knowledge about disabilities. They did not
  the proper implementation of the existing social
                                                               receive any disability-related training for the 2019 elec-
  security schemes are Inadequate.
                                                               tion, which made it difficult for them to define or identify
                                                               persons with disabilities during the election cycle.
Good Practices
	 The Lagos State government is implementing a                    “We deployed observers to seven states and Abuja
  disability grant to alleviate poverty among persons             and the report was the same. […] So even the INEC
  with disabilities through the Lagos State Office for            [Independent National Electoral Commission] ad hoc
  Disability Affairs. The entrepreneurship loans aimed            staff does not know who is a person with a disability,
  at the general population are also inclusive of per-            they don’t even recognize it. So, when the INEC does not
  sons with disabilities.                                         make a concerted effort to build the capacity of their
                                                                  staff to cater for people with disabilities, it becomes a
	 The Plateau State government, through the Plateau
                                                                  problem.” – a male amputee, Lagos
  State Disability Rights Commission, is implement-
  ing social security schemes specifically targeted at
  persons with disabilities.




                                                                                                  4. REVIEW OF FINDINGS       47
     Inaccessible Election Procedures                                   “Recently the Albino Foundation launched what
     and Facilities                                                     we call a “disability inclusion campaign.” And
     Although INEC made attempts in some places, overall,               this disability inclusion campaign is not only to
     the electoral procedure and facilities were not accessi-           get persons with disability into the electoral process
     ble to all persons with disabilities. For example, persons         but to get persons with disability into every sphere,
     with disabilities who do not have fingers were unable to           every sphere of governance you know. Now we
     vote. Similarly, some polling units were not physically            are putting pressure on the state house to appoint a
     accessible to persons with mobility difficulties.                  person with a disability as one of the cabinet ministers.”
                                                                        – a man with albinism, Abuja
        “During the INEC registration, we registered but
        we were not given Permanent Voters Card. We
                                                                      Gaps in Programming
        have visited the INEC office several times, but they
                                                                      	 Political will is lacking to facilitate the active partic-
        keep directing us to different places, and we cannot
                                                                        ipation and leadership of persons with disabilities in
        cast votes. And it was announced on the news that
                                                                        electoral process and governance.
        even people with disabilities have the right to vote.”
        – a man affected by leprosy, Jos                              	 The capacity of electoral workforce to ensure disabil-
                                                                        ity-inclusive elections is weak.
        “That is why even in the last election so many of us
        could not thumbprint. Many of us are disenfranchised          	 The implementation of the INEC framework on
        and I even complained to the INEC chairman. He said             access and participation of persons with disabilities
        he was going to look into the matter but nothing is             in electoral processes is haphazard.
        being done.” – a man affected by leprosy, Benin
                                                                      Good Practices
     Lack of Opportunities for Political                              	 INEC developed the Framework on Access for Per-
     Participation and Leadership                                       sons with Disabilities in the Electoral Process.
     Persons with disabilities are systematically excluded            	 A paper ballot was designed in braille for the 2019
     from political participation and leadership. They are
                                                                        elections.
     often marginalized into political appointments that
     are disability-specific, even when they have areas of
                                                                      Recommendations
     expertise or interest where they could better perform.           	 Adequately implement the INEC framework for the
     Currently, persons with disabilities are not represented
                                                                        access and participation of persons with disabilities
     among Nigeria’s cabinet ministers. If they can partic-
                                                                        to the electoral process, guided by an implementa-
     ipate, they are more vulnerable to cases of political
                                                                        tion plan.
     violence, for example.
                                                                      	 Develop the capacity of INEC officials to oversee an
        “[…] The best that they can do is to create a disability
                                                                        inclusive electoral process.
        office for you. Even if you are the best doctor or the best
        communicator in a wheelchair, they won’t consider you         	 Foster the active participation of persons with disabil-
        for Commissioner of Health or Education. At most, they          ities and their organizations, and develop the capacity
        will give you “Disability affairs, Special Adviser.” These      of INEC officials to implement the framework.
        things are demoralizing.” – a visually impaired man, Lagos




48   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Institutional Landscape                                         with disabilities. It used to have a vague rehabilitation
This section presents the findings and discussions              policy that was inadequately implemented. However,
related to the situation of the various institutions that       the ministry recently developed a national-level disabil-
are relevant to disability inclusion and the socioeco-          ity policy.
nomic development of persons with disabilities in
                                                                About 20 of FMWASD’s current staff members are per-
Nigeria.
                                                                sons with disabilities, 40 percent of whom are female.

Government Ministries, Departments,                                “I don’t have the actual number, but we should be
and Agencies                                                       about 20 or less than. I think they are more than us, on
Core mandates                                                      average let’s say 40 percent.” – FMWASD official
While its area of discipline informs the core mandate of
                                                                There is no coordination between the other depart-
an MDA, all share broad responsibilities including:
                                                                ments of the ministry and the rehabilitation depart-
 	 Regulation of its areas of specialization, includ-           ment that handles disability issues. The ministry
   ing the setting of standards and guidelines and              includes departments that handle gender, children,
   monitoring;                                                  and the elderly, but their programs and policies are not
                                                                disability-inclusive despite the known intersections
 	 Provision of relevant services;
                                                                between the issues of these other departments with
 	 Formulation, review, and implementation of policies          disability. Similarly, disability issues are isolated in
   and programs;                                                the ministry’s rehabilitation department, with other
                                                                ministries believing that FMWASD should manage all
 	 Personnel welfare and management; and
                                                                disability-related concerns, an approach that further
 	 Coordination and/or collaboration with states to             marginalizes persons with disabilities. Overall, however,
   ensure uniformity and standardization in its spe-            the study and the opinion of experts consulted for it
   cialty area.                                                 point to an overall gap in institutional coordination in
                                                                the government to address disability inclusion.
The rehabilitation department of FMWASD is respon-
sible for disability matters in Nigeria. The ministry still     FMWASD may also be unintentionally encroaching
relies heavily on the charity approach to deliver its           into the mandates of other ministries due to a lack of
mandates.                                                       effective collaboration and coordination.

Budget allocations are insufficient to run programs for         Disability-inclusive policies and practices
persons with disabilities. Some past programs are no            Only three of the MDAs who participated in this study
longer feasible due to lack of funds.                           claim to have any disability-inclusive or disability-spe-
                                                                cific policies or practices, and even these are only being
   “Now we can’t even provide the subsidies we used to give
                                                                partly implemented—if at all—usually due to lack of
   to organizations for persons with disability in the past.”
                                                                funding. The Federal Ministry of Education is subject
   – FMWASD official
                                                                to the following policies, none of which have been fully
The ministry is not currently implementing any                  implemented: National Policy on Special Needs Educa-
policies to address the needs and concerns of persons           tion in Nigeria and Implementation Guidelines, 2015;




                                                                                                  4. REVIEW OF FINDINGS       49
     National Policy on Inclusive Education in Nigeria, 2017;       public service delivery. OHCSF interfaces with other
     and National Policy on Albinism in Nigeria, 2012.              MDAs on issues regarding civil service regulation,
                                                                    including the welfare of employees.
     The Federal Ministry of Power, Works and Housing
     (FMPWH) is subject to the National Urban Develop-              In 2003, OHCSF became the first government organ in
     ment Policy, National Housing Policy, and National             Nigeria to establish a disability desk. It is located in the
     Building Code. The National Building Code enforces the         Occupational Health, Safety and Environment Division
     country’s building standards. It addresses everyone’s          under the Employee Relations and Welfare Department.
     needs, including persons with disabilities. It sets stan-      The division’s main function is to provide guidelines on
     dards to ensure that private and public buildings are          health, safety, and the environment. The disability desk
     usable by persons with disabilities.                           was established to implement disability-inclusive prac-
                                                                    tices in OHCSF with the main objective of coordinating
        “The National Building Code [… is] a set of guidelines
                                                                    the affairs of all federal civil servants with disabilities and
        that addresses the needs of everybody with regard to
                                                                    to improve their working conditions.
        building developments, but there are special sections
        that address issues of disability.” – FMPWH official           “First and foremost, my department passed their own
                                                                       mandate and one of the mandates is that there should be
        “It talks about providing capacity for people who
                                                                       disability inclusion. And the second is the establishment
        are limited in their capacity that they will have ability
                                                                       of the disability desk of the head of service, of which one
        to use either private or public buildings effectively.
                                                                       of the main objectives is to coordinate the affairs of all
        That’s the general, but in doing that, there are details
                                                                       federal civil servants with disabilities and also to improve
        about entrances have facilities that people with
                                                                       their working conditions.” – OHCSF official
        wheelchair would be able to go in and also move in
        different ways.” – FMPWH official                              “They were the first to establish the disability desk in
                                                                       2003. […]” – OHCSF official
     The National Building Code has yet to be signed into
     law; it was under review at the time of this study’s data      The disability desk collates data of civil service with
     collection.                                                    disabilities; ensures that the office environment in all
                                                                    the MDAs are safe for and accessible to persons with
     The Minister for Health recently launched the National
                                                                    disabilities; receives and addresses complaints about
     Policy on Sexual and Reproductive Health of Persons
                                                                    disability inclusion in government policies that are
     with Disabilities, with an emphasis on women and girls,
                                                                    staff-related, and attends to issues around reasonable
     developed by the Federal Ministry of Health through
                                                                    accommodations for civil servants with disabilities.
     processes led by the NGO Disability Rights Advocacy
     Center. The ministry will develop the implementation              “First and foremost, we collate data on persons with
     guidelines and kick-start its implementation.                     disabilities nationwide. The main aim of the occupational
                                                                       safety health and environment (OSHE) is that we make
     The Office of the Head of the Civil Service of the Fed-
                                                                       sure that the office environment is as friendly as we can.
     eration (OHCSF) has the unique mandate of providing
                                                                       Of course, the structures have been there for years and
     leadership, management, and capacity development to
                                                                       we understand that some of these MDAs have no lifts.”
     all civil servants for effective, efficient, and accountable
                                                                       – OHCSF official




50   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Apart from OHCSF, the finance, national human rights          Organizations Representing Persons
commission, justice, and other ministries have disabil-       with Disabilities
ity focal points.                                             The findings and discussions presented here relate to
                                                              the mandates and activities of organizations of persons
However, these focal points seem to be works-in-prog-
                                                              with disabilities in Nigeria.
ress as many of the federal ministries are still physically
inaccessible, with very steep ramps and no lifts. Reports     Joint National Association of Persons
by staff members with disabilities in some MDAs also          with Disabilities
indicate that the provision of reasonable accommoda-          The Joint National Association of Persons with Dis-
tions to staff is inadequate.                                 abilities (JONAPWD) is the umbrella organization for
                                                              persons with disabilities in Nigeria. Established in 1992,
   “Personally, I don’t have interpreters. No sign language
                                                              it operates under FMWASD’s supervision.
   interpreters. I remember not long ago, we had a program
   for my level […].” – a hearing impaired FMWASD official    Core mandates
                                                              The aim of JONAPWD is to promote the rights and
Programming gaps
                                                              development of Nigerians with disabilities. It represents
 	 The formulation and implementation of disability-
                                                              their interests at the local and international level by:
   inclusive policies is inadequate.
                                                               	 Promoting the human rights of Nigerians with
 	 Knowledge and skill levels regarding disability-
                                                                 disabilities;
   inclusive policies, programming, and service delivery
   is inadequate.                                              	 Advancing the economic and social integration of
                                                                 persons with disabilities;
 	 Disability focal points are unavailable in most
   MDAs; those that do exist should look into disability       	 Delivering technical support to grassroots organiza-
   inclusion across all other mandates of the MDAs,              tions of persons with disabilities;
   including the provision of accessible services and
                                                               	 Providing a national platform for disability dis-
   products, as well as the formulation and review of
                                                                 course; and
   policies with a disability lens.
                                                               	 Serving as a national clearinghouse on disability and
 	 Collaboration and coordination on disability issues
                                                                 development.
   within and between departments and MDAs is
   lacking.                                                   Structure
                                                              JONAPWD members include an appointed board of
Good practice
                                                              trustees, national officers, zonal coordinators, advisers,
Other MDAs should adopt having a disability desk like
                                                              and heads of disability clusters. JONAPWD’s head-
the one at OHCSF.
                                                              quarters is in Abuja, with branches operating in all
                                                              of Nigeria’s 36 states as well as in the Federal Capital
                                                              Territory. A few local government areas also have their
                                                              own JONAPWD branches.




                                                                                             4. REVIEW OF FINDINGS         51
     Governance and Leadership                                            project (2018–20) is funded by the Disability Rights
     JONAPWD’s constitution needs to clearly spell out the                Advocacy Funds.
     responsibilities of its board of trustees and its executives
                                                                       JONAPWD has also been involved in advocacy regard-
     for more effective functioning. In addition, JONAPWD
                                                                       ing the electoral process and governance during the
     needs to have a clear strategy for coordinating with
                                                                       country’s recently concluded elections.
     other actors, including disability-focused organizations
     and the disability community as a whole to promote                Programming gaps
     disability inclusion in Nigeria. In the opinion of the             	 Coordination and collaboration with other actors to
     experts consulted for this study, there is also a need to            promote disability inclusion, including the MDAs, is
     enhance the level of representation and accountability               weak.
     of JONAPWD, which is manifest in internal disagree-
                                                                        	 Capacity is low in terms of good governance, leader-
     ments among JONAPWD leadership and members.
                                                                          ship, and accountability.
        “We make sure that whatever committee the govern-
                                                                        	 There is no strategic plan.
        ment sets up, as long as they have a representative of
        forwomen, for youth, there must representatives of              	 The constitution is controversial, which slows down
        people with disabilities. There is no way we can be out           the organization’s progress.
        of anything they are doing, either in agriculture, either in
                                                                       Good practice
        education either in economy there’s nothing nobody.”
                                                                       JONAPWD has initiated and implemented develop-
        – JONAPWD Board of Trustees member
                                                                       ment programs such as inclusive education and disabil-
     Programs and partnerships                                         ity rights projects.
     JONAPWD has recently engaged in multiple programs
                                                                       Disability clusters
     and partnerships, including:
                                                                       There are six official disability cluster members under
      	 Advocating for inclusive basic education for                   JONAPWD: (1) Nigerian National Association of the
        children with disabilities in Nigeria. Funded by               Deaf; (2) National Association of the Blind; (3) National
        the United States Agency for International Develop-            Association of Persons with Physical Disabilities; (4)
        ment (USAID) through its Strengthening Advocacy                National Association of Persons with Intellectual Dis-
        and Civic Engagement project, this inclusive educa-            abilities (NAPID); International Association for Inte-
        tion initiative, implemented from 2014 to 2018 in the          gration, Dignity and Economic Advancement, Nigeria
        Nigerian states of Akwa Ibom, and Kwara and in the             (IDEA); and (6) Spinal Cord Association of Nigeria. The
        Federal Capital Territory included support to rebuild          Albino Foundation may soon join as an official cluster
        JONAPWD’s institutional and management systems.                member as well.

      	 Fulfilling the duty of the Nigerian government                    “But I was told in the last meeting that they had passed
        to protect and uphold the human rights and                        the resolution to include it in the constitution and
        dignity of persons with disabilities by passing                   therefore we have unofficially become a cluster group.”
        the disability rights bill into law. This two-year                – chief executive officer, The Albino Foundation




52   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
NAPID is currently being led by a person with physical      Partnerships
disability, which seems fitting given that the associ-      Disability cluster organizations partner with
ation’s long-term mission has been to influence and         JONAPWD, their parent organization. They also partner
encourage the parents of children with intellectual dis-    with national and international NGOs, particularly
abilities. Awareness levels have improved, with parents     those with related mandates, diplomatic missions,
and caregivers of people with intellectual disabilities     United Nations agencies, donors, and MDAs.
now encouraging their wards and forming stronger
                                                            The nature of the partnerships varies depending on the
coalitions with other parents and caregivers of children
                                                            capacity of the cluster members forging the partner-
with intellectual disabilities.
                                                            ship, including consultations, funding support, provi-
   “Well, the association seeks to influence parents        sion of assistive devices, capacity development, policy
   of persons with intellectual disability to have hope,    formulation, and implementation.
   to know that such children are children that should
                                                            Programming gaps
   not be discarded outright, just kept somewhere. The
                                                             	 Capacity is inadequate, particularly in terms of
   association also seeks to encourage persons with
                                                               accountability, governance, leadership, and project
   intellectual disabilities to do what we know that they
                                                               management.
   are capable of doing, but which they or their parents
   don’t know …” – NAPID chairman                           	 Partnership and funding opportunities are scant,
                                                              stemming from weak organizational and program-
Persons with mental health conditions are not repre-
                                                              matic capacity.
sented in JONAPWD, which could be connected to the
level of stigma associated with them. But such orga-        	 There are no strategic plans.
nizations are springing up in other African countries.
                                                            Good practices
There is also the Mental Health Advocacy Initiative on a
                                                             	 The Albino Foundation has strong networks and
community mental health project in Benue State.
                                                               collaborates well with MDAs.
All of the cluster organizations were established over
                                                            	 IDEA and international NGOs working on leprosy
a decade ago, except NAPID, which was established 9
                                                              are engaged in effective collaboration.
years ago. Most have branches in each of the 36 states
and the Federal Capital Territory. The Albino Founda-       	 A strategic plan guides the operations of The Albino
tion has 54 branches, with more than one branch in            Foundation.
some states for better coordination across some states.
                                                            Disability-related services and actors
Core mandates                                               A wide array of disability-related services and actors
The core mandates of all of the cluster members gen-        operate in Nigeria. Findings from the online assessment
erally revolve around the promotion of the rights and       of 43 organizations working on disability-related issues
welfare of their members through advocacy, training,        (international and national NGOs) have relevant orga-
provision of assistive devices, and empowerment of          nizational strategies. However, this does not greatly
their members.                                              influence their programs—many have insufficient or
                                                            nonexistent budget allocations for disability inclusion.




                                                                                          4. REVIEW OF FINDINGS        53
     Only a few of the organizations disaggregate data by                             either specifically working on disability inclusion or
     disability using the Washington Group questions, which                           that are providing disability-specific services, such as
     leaves in doubt their level of effectiveness at addressing                       the production and distribution of assistive devices or
     the needs of persons with disabilities in their programs.                        inclusive education. Other actors address issues of per-
     Such gaps in programming may partly contribute to the                            sons with disabilities within the mainstream, but most
     current dearth of disability data for the country.                               of these are few, primarily concentrated in major cities,
                                                                                      and their services are expensive. The most relevant
     A mapping of actors working on disability issues in
                                                                                      actors are outlined below.
     Nigeria involved documenting organizations that are

     Disability-focused organizations
     Key national, international, and private organizations with a core mandate that involves disability and that
     implement programs and provide services to persons with disabilities

      Organization                             Description of Services or Programs
      Angel Wings global freedom foundation    Builds capacity of people living with disabilities, especially young girls; raises awareness among parents and
                                               guardians of children living with disabilities.
      Anglo-Nigerian Welfare Association for   Provides braille books and printed materials for visually impaired learners; provides training in braille, mobility,
      the Blind                                and typing for newly visually impaired adults.
      CBM International                        Delivers disability-inclusive programming that addresses neglected tropical diseases, eye health, mental health,
                                               community-based rehabilitation, and humanitarian response (health, livelihoods, and education).
      Centre for Citizens with Disabilities    Involved with disability advocacy and rights, governance and electoral processes, and inclusive public
                                               infrastructure.
      Comprehensive Community Mental           Supports community mental health and livelihoods.
      Health Programme
      Daughters of Charity                     Provides community-based rehabilitation, health, and education services to persons with disabilities, including
                                               those affected by leprosy.
      Deaf Women Association of Nigeria        Promotes the rights of hearing impaired women; advocates for the sexual and reproductive health of hearing
                                               impaired women.
      Disability Rights Advocacy Center        Involved in disability advocacy and rights, gender-based violence, sexual and reproductive health, and capacity
                                               development.
      German Leprosy and Tuberculosis          Provides community-based rehabilitation for people affected by leprosy.
      Relief Association
      Hope for the Blind Foundation            Provides support to visually impaired people, including services and training.
      Inclusive Friends Association            Promotes inclusive electoral processes, addressing gender-based violence, disability rights, and advocacy.
      Independent Living Programme for         Promotes rehabilitation, integration, and support to persons with disabilities and vulnerable people to live
      Persons with Disabilities                independently through research, interventions, monitoring and evaluation, inclusive education, and advocacy.
      International School of Disability       Conducts research and training in disabilities, including but not limited to intellectual and developmental
      Studies                                  disabilities and mental illness in Nigeria.
      Nigerwives Association                   Produces and distributes braille books to visually impaired children.
      Sightsavers International                Promotes eye health, inclusive education, livelihood, neglected tropical diseases, and support to visually
                                               impaired persons (e.g., facilitation of Marrakeshi International Treaty for Nigerians that are visually impaired to
                                               have access to reading materials in accessible formats).
      The Albino Foundation                    Provides educational support and empowerment for people living with albinism.
      The Leprosy Mission Nigeria              Engages in community-based rehabilitation, advocacy, and medical treatment for persons affected by leprosy;
                                               provides livelihood support.
      TheseAbilities Foundation                Advocates for social inclusion of persons with disabilities in everyday life and inclusive employment.




54   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Disability-inclusive organizations
Mainstream national and international organizations that address the needs of persons with disabilities in
their programs and through service delivery
Organization                           Description of Services or Programs
ActionAid International                Supports social justice, gender equality, and poverty eradication; partners with organizations of persons with
                                       disabilities on inclusive governance programs.
Balm in Gilead Foundation for          Supports initiatives that include persons with disabilities in gender-based violence programs
Sustainable Development
Brien Holden Vision Institute          Promotes eye health, including “low vision” and inclusive education.
British Council—The Rule of Law and    Seeks to reform the criminal justice system; ensure that women, children, and people with disabilities have
Anti-Corruption Programme              access to justice; improve the performance of and coordination between anticorruption agencies; and enhance
                                       the voice of Nigerians in curbing corruption.
Dorothy Njemanze Foundation            Feminist organization using entertainment media to blur divisive lines that promote trends of abuse toward
                                       children, youths, women, people with disabilities, and members of a sexual minority group
Gede Foundation                        Research and services in mental health and HIV
Health and Development Support         Diagnoses and treats “low vision” and neglected tropical diseases; promotes eye health.
Programme (HANDS)
Ipas                                   Promotes sexual and reproductive health and rights for women and girls; partnered with the Deaf Women
                                       Association of Nigeria to make sexual and reproductive health services accessible to hearing impaired women
                                       in the Federal Capital Territory.
Journalists Against AIDS               Engages in research, community and media mobilization, policy advocacy and response, monitoring and
                                       training to address issues related to HIV/AIDS and tuberculosis, and is interested in partnerships with
                                       organizations of persons with disabilities to make HIV services accessible to persons with disabilities.
Partnership to Engage, Reform and      Promotes the improved delivery of public services in Nigeria, including the rights of the marginalized to access
Learn (PERL)                           quality public goods and services; supports activities to develop and enact disability laws at the state level; and
                                       facilitates processes for implementation of disability laws at the state and national levels
Population Council                     Engages in evidence-based sexual and reproductive health care and rights, HIV services, and empowerment
                                       of girls.
Project Alert Violence against Women   Promotes the rights of women, girls, and persons with disabilities against violence; provides shelter for
                                       survivors of domestic violence.
Propcom Mai-Karfi—A program            An innovative, market-driven program aimed at reducing poverty in Nigeria by making rural markets work for
managed by the Palladium               the poor in northern Nigeria; it seeks to mainstream disability into the program, including data collection, using
                                       the Washington Group questions.
Save the Children International        Saves children’s “lives and fights for their rights” has a focus on health and nutrition, education, hunger and
                                       livelihoods, child rights governance, and child protection; and seeks to evaluate child development grants with
                                       a disability lens and to mainstream disability in the project.




                                                                                                                      4. REVIEW OF FINDINGS                  55
     Developmental disabilities support services
     Public and private organizations and facilities that provide services to people with developmental
     disabilities
     Organization                          Description of Services or Programs
     Autism Association                    Provides autism-related care and support.
     Benola Foundation                     Promotes an inclusive Africa where people living with cerebral palsy receive proper recognition and have an equal
                                           opportunity to realize their potential.
     Blazing Heart Autism Center           Provides autism-related care and support.
     Centre for Autism and                 Provides comprehensive care and translational medicine to individuals with autism or related neurodevelopmental
     Developmental Disabilities            disorders.
     Centre for Children with Special      Evaluates, diagnoses, and treats children, adolescents, and adults with complex developmental disabilities.
     Needs
     Cerebral Palsy Center                 Provides support, services, and therapeutic modalities for children with cerebral palsy.
     Comprehensive Autism and related      Provides one-on-one educational interventions, behavioral therapy, speech and occupational therapy, and
     Disabilities Education and Training   physiotherapy for children with developmental disabilities; does not operate a school but conducts educational
     (C.A.D.E.T.) Academy/Dew Drops        assessments for school placement.
     Community Centre for Special
     Needs
     Down Syndrome Foundation              Provides information and support to people with Down syndrome, their families, and professionals.
     Ire Pearl Centre of Hope              Provides educational and therapeutic services to children with autism, developmental delays, or learning
                                           disabilities; parent training services; family therapy; psychological services for adults with mental health conditions;
                                           and professional consultations on inclusive teaching strategies, classroom management, and staff training.
     Let Cerebral Palsy Kids Learn         Provides school readiness assessments, counseling, referrals to medical professionals, inclusive educational
     Foundation                            support to schools, and capacity development to teachers and educators.
     MO-Rainbow Foundation                 Provides support for Down syndrome-related concerns.
     Modupe Cole Memorial Child Care       Caters to people with Down syndrome, cerebral palsy, and autism, among other concerns.
     and Treatment Home
     National Society for Autism Nigeria   Provides autism-related support services.
     Nwatu Autism Foundation               Provides support for autism-related concerns.
     Open Door Special Educational         Provides quality special education, vocational training, speech and language therapy, and physiotherapy for
     Centre                                children with learning disabilities.
     OLG Autism Nigeria                    Provides autism-related care and support.
     Patrick Speech and Language           Creates awareness around autism and other related developmental disabilities.
     Centre, Lagos
     Super Parents Support Foundation      Offers a support group for parents of children with developmental disabilities and adults with disabilities.
     The Zamarr institute LEA Nursery      Promotes excellency in education and training for exceptional children.
     and Primary School




56   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Occupational therapy services
Public and private organizations and facilities that provide occupational therapy services

Organization                                                      Description of Services or Programs
Echo Occupational Therapy Services                                Provides occupational therapy services.
Enability Occupational Therapy Centre                             Provides occupational therapy services.
Kabworld Physiotherapy and Co.                                    Provides excellent quality occupational and physiotherapy services based on
                                                                  consultations and medical conditions.
Talktotherapist Inc.                                              Provides neurodevelopmental therapy for cerebral palsy and Down syndrome and
                                                                  sensory integration therapy for autism and attention-deficit hyperactivity disorders.
Teaching Hospitals and Federal Medical Centres                    Delivers health care services, including occupational therapy.




Speech therapy services
Public and private organizations and facilities that provide speech therapy services

Organization                                                      Description of Services or Programs
Asokoro General Hospital, Abuja                                   Delivers health care services.
Bingham University Teaching Hospital, Abuja                       Delivers health care services.
BSA Hearing and Speech Centre                                     Hearing and speech pathology consulting firm providing quality and reliable hearing
                                                                  diagnosis for children and adults as well as the supply and maintenance of hearing aids.
Comprehensive Autism and related Disabilities Education and       Provides educational interventions; behavioral, speech, and occupational therapy;
Training (C.A.D.E.T.) Academy/Dew Drops Community Centre          and physiotherapy for children with developmental disabilities; conducts educational
for Special Needs, Abuja                                          assessments for school placement.
Federal Medical Centre Abeokuta                                   Delivers health care services.
Federal Neuropsychiatry Hospital, Kakuri, Kaduna                  Delivers health care services.
Federal Specialist Hospital Gwagwalada, Abuja                     Delivers health care services.
Federal Staff Clinic, Federal Secretariat, Central Areas, Abuja   Delivers health care services.
Glory Speech Centre                                               Offers diagnostic and other services for children and adults with a speech defect.
J and J Calvary Hearing and Speech Centre                         Provides development services to children with disabilities, disability management, and
                                                                  environmental assessments.
Lagos State Psychiatric Hospital                                  Delivers health care services.
Maitama General Hospital Aguiyi Ironsi Street, Maitama, Abuja     Delivers health care services.
Nigerbell Speech and Hearing Centre Limited                       Promotes the prevention, identification, assessment, treatment, and rehabilitation of
                                                                  hearing difficulties in children and adults.
Open Door Special Educational Centre, Jos                         Provides quality special education, vocational training, speech and language therapy, and
                                                                  physiotherapy for children and youth with learning disabilities.
Patrick Speech and Language Centre                                Offers educational resources and promotes awareness of autism.
State Hospital Abeokuta, Abeokuta                                 Delivers health care services.
The Pearl Centre of Hope, Lagos                                   Delivers speech and language therapy sensory integration, behavioral therapy for
                                                                  children with autism, Down syndrome, or learning disabilities.
University College Hospital, Ibadan, Oyo State                    Delivers health care services.
Wellpath Physiotherapy and Wellness Limited                       Provides body therapy, hearing therapy, and support for learning disability.
Wuse General Hospital, Abuja                                      Delivers health care services.
Zankli Medical Centre Shehu Yaradua Way, Abuja                    Delivers health care services.




                                                                                                                          4. REVIEW OF FINDINGS               57
     Physical rehabilitation and orthopedic surgeries
     Public and private organizations and facilities that provide physical rehabilitation services
     and orthopedic surgeries

     Organization                                      Description of Services or Programs
     Ageless physiotherapy                             Delivers highly specialized physical rehabilitation for diseases and illnesses such as stroke, spinal cord
                                                       injury, and Parkinson’s disease.
     Children’s Developmental Centre                   Supports children and young adults with learning difficulties and provides services for the intellectually
                                                       disabled; ensures the development of the skills they need in the future.
     Comprehensive Autism and related Disabilities     Provides educational interventions; behavioral, speech, and occupational therapy; physiotherapy for
     Education and Training (C.A.D.E.T.) Academy/      children with developmental disabilities, and educational assessment for school placement.
     Dew Drops Community Centre for Special
     Needs
     Down Syndrome Foundation, Lagos                   Provides children with Down syndrome with the necessary encouragement and enabling environment
                                                       they need to develop.
     Iblawy Investment Company                         Provides health care and rehabilitation services.
     Lagos Disability Support Home                     Provides rehabilitation and residential accommodations to adults and children with disabilities.
     Modupe Cole Memorials, Lagos                      Provides skills and empowerment to improve performance through enhanced learning capacities.
     National Orthopaedic Hospital Enugu, Nigeria      Offers ambulance services, a diagnostic center, and dietician services.
     National Orthopaedic Hospital, Igbobi Lagos       Provides corrective surgery, calipers, prostheses, and physiotherapy.
     Open Doors Special Education Centre               Offers quality special education, vocational training, speech and language therapy, and physiotherapy
                                                       for children and youth with learning disabilities.
     Physiofit Physiotherapy Clinic                    Offers physiotherapy and physical rehabilitation services.
     Ralphasal Global Limited                          Provides physical and psychological rehabilitation services.
     Teaching hospitals, federal medical centers and   Delivers health care services.
     general hospitals




58   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Prosthetics and orthotics
Public and private organizations and facilities that provide and/or produce prosthetics and orthotics

Organization                                         Description of Services or Programs
Arm of Hope Foundation                               Provides prosthetic limbs, skill acquisition training, and financial support.
Bimma Hospital Sabon Bariki                          Delivers health care services.
Bingham University Teaching Hospital                 Delivers health care services.
Cedar Crest Hospital                                 Delivers health care services.
Chidex Surgical Suppliers Limited                    Supplies hospital equipment.
Daisy Land Orthopaedic and Trauma Hospital           Delivers health care services.
Doctor Bone Heritage Orthopaedic Centre              Delivers health care services.
Federal College of Orthopaedic Technology Lagos      Delivers health care services.
Feet of Grace Foundation                             Provides free prosthetic limbs, wheelchairs, and accessible vehicles.
George Orthopaedic Services                          Delivers health care services.
Goldville Prosthetics and Orthotics Services         Provide prosthetics (artificial arms, hands, and legs) and orthotics.
Ifean Health Nigeria LTD Prosthetics and Orthotics   Provides professional artificial limb fitting services, repair, and maintenance.
Naraguta Leather Works, Jos                          Locally produces artificial limbs.
National Orthopaedic Hospital                        Delivers health care services.
National Orthopaedic Hospital, Dala, Kano            Reduces morbidity and mortality due to trauma.
National Orthopaedic Hospital Enugu                  Delivers health care services.
National Orthopaedic Hospital, Igbobi Lagos          Offers corrective surgery, calipers, prostheses, and physiotherapy.
Orthoex Nigeria                                      Provider of medical and prosthetics devices.
Orthofits Orthopaedics Limited                       Delivers health care services.
Our Lady of Apostles Zaria Road, Jos                 Delivers health care services.
Purple Prosthesis                                    Designs quality prosthesis and orthotics for Nigerian amputees.
Raphadon Global Health Care Limited, Abuja           The use of latest bionic technology in prosthetic and orthotic, orthopedic
                                                     support.
Roca Prosthetics Ortho Care Enterprises              Fabricates prosthetic devices.
The 3D Team, Yola Humanitarian Innovation Hub        Conducts research in 3D-printed prosthetic limbs with robotics to improve
                                                     functionality.
The IREDE Foundation                                 Provides free prosthetic limbs to children and promotes awareness of
                                                     amputation-related issues.
Tolaram Charity Foundation, Lagos                    Provides artificial legs, cosmetic artificial hands, and polio calipers for free to
                                                     any Nigerian in need.




                                                                                                    4. REVIEW OF FINDINGS                  59
     Standard wheelchairs, cerebral palsy wheelchairs, and tricycles
     Public and private organizations and facilities that produce and/or donate standard wheelchairs

     Organization                           Description of Services or Programs
     A. Martins Stores                      Supplies standard wheelchairs, crutches, and walking frames and accessories.
     Ameri-care Medicals Central            Distributes standard medical equipment.
     Business District Abuja
     Beautiful Gate Handicapped People      Manufactures and freely distributes tricycles, crutches, and prosthetic limbs; distributes free crutches, folding
     Centre, Jos                            white canes, and recording devices to people with visual impairments; trains apprentices with disabilities and
                                            supports their education.
     Benola Cerebral Palsy Initiative       Supports and advocates for people with cerebral palsy.
     Bingham University Teaching            Delivers health care services.
     Hospital
     Cerebral Palsy Centre                  Promotes the full integration individuals with cerebral palsy into society.
     Chidex Surgical Suppliers Limited      Supplies hospital equipment.
     Coscharis Medical and Food Limited     Provides professional health care services.
     Ikeja
     Daughters of Charity Nigeria Limited   Provides health, agricultural, and social development services.
     FinLab Nigeria LTD Ikorodu, Lagos      Supplies hospital and laboratory equipment.
     Focus on Disability Foundation         Provides educational materials and disability aids to persons with disabilities; empowers persons with disabilities.
     Fraham Enterprises Nigeria Ltd.        Supplies hospital and laboratory equipment.
     Latter Day Saints Charities            Faith-based charitable organization working on disability issues.
     Melvit, Lagos                          Meets hospitalization needs.
     Mobility Aid and Appliances            Empowers persons with disabilities by providing innovative and affordable mobility aid appliances, including
     Research Development Centre            motorized wheelchairs and vision- and hearing-related devices.
     National Cerebral Palsy Family         Provides wheelchairs, vision- and hearing-related devices for people with cerebral palsy.
     Funds
     National Orthopaedic Hospital,         Delivers health care services.
     Kofarua Dala, Kano State
     Obafemi Martins Foundation             Provides humanitarian services.
     Super Parents Support Foundation       Offers a support group for parents of children with developmental disabilities and adults with disabilities.
     Toyin Medical Supply Ltd.              Supplies hospital and laboratory equipment, medical consumables and dressings, standard wheelchairs, crutches,
                                            and walking frames.




60   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Hearing aids and accessories
Public and private organizations that provide or supply hearing aids and accessories

 Organization                                      Description of Services or Programs
 BSA Hearing and Speech Centre                     Hearing and speech pathology consulting firm that provides quality and reliable hearing diagnoses for
                                                   children and adults.
 International Centre for the Prevention of        Provides ear, nose, and throat consultation services; ear mold manufacturing; and audiological
 Deafness and Rehabilitation of Hearing            consultation services.
 Impaired Persons, Abuja
 International Hearing Centre                      Provides patients with quality audiological services, including evaluation, hearing, and filling.
 Victoria Memorial Hospital Jos                    Delivers medical services.




Braille machines, accessories, and services
Public and private organizations and facilities that provide braille services, machines, and accessories

 Organization                            Description of Services or Programs
 COCIN Hospital and Rehabilitation       Provides general medical care, surgical care, laboratory services, eye care, and physiotherapy services.
 Centre
 Federal Nigeria Society for the Blind   Provides psychological, emotional, and social rehabilitation, including mobility training for everyday living.
 Gindiri Material Centre For the Blind   Provides brailing of printed materials and books.
 National Charity Project                Provides educational services to visually impaired people, enabling them to achieve their optimum education and
 (Nigerwives)                            earn independent livelihoods.
COCIN = Church of Christ in Nations.




Low vision devices and services
Public and private organizations and facilities that provide low vision devices and services

 Organization                            Description of Services or Programs
 Bingham University Teaching             Delivers health care services.
 Hospital
 Brien Holden Vision Institute           Targets governments and nonprofit organizations to provide low vision services; sets up low vision service units;
                                         provides training for skills and work tools; raises awareness and advocates to governments on the magnitude of
                                         the need for spaces to set up service units; monitors and assesses posttraining skills; sets up supply units and
                                         work tools.
 ECWA Eye Hospital                       Delivers health care services.
 Global Sales and Distribution           Blindness and low vision products, including technological devices that make information accessible to visually
 Company Ltd./Accessible                 impaired persons.
 Technology Centre
 HANDS, Jos                              Assesses low vision assessment; sells low vision assistive devices to individuals, associations, and corporate
                                         organizations; promotes eye health; treats neglected tropical diseases.
 Jordan Eye Hospital                     Delivers health care services.
 Jos University Teaching Hospital        Provides treatment and health care services.
 Our Lady of Apostles Zaria Road         Provides quality preventive and rehabilitative health care.
 Jos
 Teaching Hospitals                      Delivers health care services.
ECWA = Evangelical Church Winning All; HANDS = Health and Development Support Programme.




                                                                                                                             4. REVIEW OF FINDINGS           61
     Assistive technology
     Private organizations that supply assistive technologies
      Organization                                        Description of Services or Programs
      COCIN Hospital and Rehabilitation Centre            Delivers health care services.
      Global Sales and Distribution Company Ltd./         Blindness and low vision products including technological devices that makes information accessible
      Accessible Technology Centre                        to visually impaired persons.
                                                          Guide canes for blind and partially sighted persons
      Nigeria Association of the Blind                    Provides a platform to review the activities of associations and recognizes government interventions.
      Obafemi Martins Foundation                          Provides humanitarian services.
     COCIN = Church of Christ in Nations.




     Crutches and accessories
     Public and private organizations and facilities that supply crutches and accessories

      Organization                           Description of Services or Programs
      A. Martins Stores, Ibadan              Supplies standard wheelchairs, crutches, and walking frames and accessories.
      Ameri-care Medicals Central            Distributes quality medical equipment.
      Business District Abuja
      Chidex Surgical Suppliers Limited      Supplies hospital equipment.
      Mobility Aid and Appliances            Empowers persons with disabilities by providing innovative and affordable mobility aid appliances as well as
      Research Development Center,           specialized items, including motorized wheelchairs and vision- and hearing-related devices.
      Lagos
      National Orthopaedic Hospital, Dala,   Delivers health care services.
      Kano
      Toyin Medical Supply Ltd., Ibadan      Supplies hospital and laboratory equipment and medical disposables and dressings, including standard
                                             wheelchairs, crutches, and walking frames.




     Calipers
     Public and private organizations and facilities that produce or supply calipers.

      Organization                           Description of Services or Programs
      Mon Scientific                         Serves as an online shopping destination for laboratory and scientific products.
      National Orthopaedic Hospital, Dala,   Delivers health care services.
      Kano
      National Orthopaedic Hospital,         Delivers health care services.
      Lagos




62   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Fully inclusive schools
Private schools that provide fully inclusive education to children with disabilities

Name                                     Address                                                          Contact Details
American Christian Academy               2, 4, 6 Shell Close, Onireke Ibadan                              https://www.acaonefamily.com;
                                                                                                          + 234 809-634-4878; 809-981-4312;
                                                                                                          acaonefamily@gmail.com
Brooke House Learning Center             31 Kusenla Road, Ikate-Elegushi, Lekki                           https://www.brookehouseedu.com;
                                                                                                          + 234 908-568-9038; 909-079-1065; info@
                                                                                                          brookehouseedu.com
Casa Dei Bambini                         10b Onikepo Akande Street, Lekki Phase 1 Lagos                   Casadeibimbinilekki@yahoo.com
Children’s International School, Lekki   Plot 8 Funke Zainab Usman Street, Lekki Phase 1 Lagos            www.cislagos.com
Cita International School                Rumuogba Housing Estate, Port Harcourt                           info@citainternationalschool.org
Fitrah Children’s School                 Oko Oba, Abule Egba                                              + 234 0 802-345-3402;
                                                                                                          fitrahchildrensschool@yahoo.com
Grange Schools                           6 Harold Sodipo Crescent, Ikeja GRA Lagos                        info@grangeschool.com; + 234 1-295-7630
Great Expectations Private School        19 Raji Oladimeji Street, Magodo Phase 2 Lagos                   + 234 0 813-842-7404
Greater Scholars International School    Road 41 Abraham Adesanya Estate Ajah Lagos                       admissions@greatscholars.com;
                                                                                                          + 234 0 802-966-0967
Green Wood House School                  1 Green Wood House Road, off Layi Ajayi Street, Parkview         greenwoodhous1995@gmail.com;
                                         Estate Ikoyi                                                     info@greenwoodhouseschool.org
Greensprings Schools                     Anthony and Lekki Campuses                                       www.greenspringsschools.com
Hill Crest High School                   Lemna Road Ikot Effanga Mkpa, Calabar                            www.hillcrestschools.net
Howbury School                           3 Alegebe Close, Mende Maryland and Ota campus                   http://howburyschool.com;
                                                                                                          + 234 0 704-621-0181; 0 818-092-0687;
                                                                                                          0 802-330-4870; info@howburyschool.com
Inspired Christian Learning Center       Abraham Afolabi Street, Ahmadiya Abule Egba, Lagos               TBD
Lagos Preparatory School                 11/12 Bayo Kuku Street, Ikoyi Lagos                              www.lagosprepikoy.com.ng
Meadow Hall School                       Alma Beach Estate, Meadow Hall Way, Lekki Peninsula II,          info@meadowhalleducation.org
                                         Lekki
Oakwood Montessori                       33 Adedamola Ojomo Close, off Bode Thomas Street,                https://oakwoodmontessorischool.org;
                                         Surulere                                                         + 234 0 909-144-2680; 0 704-633-1844;
                                                                                                          info@oakwoodmontessorischool.org
Otana Integrated School                  By Living Faith Church, British-American Junction, Jos           otanajos@yahoo.com
Posh Babies and Kids                     25 Sir Tony Eromosele Street, Parkview Estate, Ikoyi, Lagos      https://poshbabiesandkids.com;
                                                                                                          +234 0 812-552-8442; 0 810-285-4056;
                                                                                                          0 706-235-3379; pbk_office@yahoo.com
Premier International School             26 N’djemena Crescent, Wuse 2, Abuja                             Info@premierinternationalschool.org
Professor Abdullahi Mahdi Academy        Off Jauro Abare Road, Gombe                                      https://pama.com.ng/ +234 806-844-0084;
                                                                                                          info@pama.com.ng
RA International School                  Bonny Island, Rivers State                                       TBD
Salem Montessori Centre                  1 Aihie Close, off Ijeboh Street, off Airport Road, GRA, Benin   + 234 0 806-645-7648
Supreme Education Foundation Schools     23 Emmanuel Keshi Street, Magodo Lagos                           www.supremeeducation.com
Sure Start School                        28 Queen Street, Alagomeji, Yaba                                 + 234 0 802-312-1111
Temple Prep                              213 Ikorodu Road, ilupeju Lagos                                  www.templeprepschool.com
Treasure House Schools                   63a Coker Road, Ilupeju Lagos                                    www.treasurehouseschools.com




                                                                                                                      4. REVIEW OF FINDINGS         63
     Donors
     Donor organizations that fund disability-inclusive and disability-specific projects

      Commitment to
      Disability Inclusion    Organization                          Funding Focus for Disability Inclusion
      Implementing global     DFID/UK Aid Nigeria                   Mainstreams of disability into political and electoral processes, humanitarian action,
      organizational                                                economic development, and accountability.
      disability policy       USAID Nigeria                         Increases the governance capacity for civic advocacy, monitoring, and engagement with
                                                                    a focus on marginalized groups, including persons with disabilities; provides inclusive
                                                                    education for children with disabilities.
                              BMZ                                   Provides disability-inclusive humanitarian relief with a focus on health, livelihoods, and
                                                                    education.
                              Australian Aid                        Promotes treatment for mental health and neglected tropical diseases, including the
                                                                    management of resulting disabilities; the treatment of obstetric fistula; and the sexual and
                                                                    reproductive health of women with disabilities.
                              European Union                        Promotes access to social services among persons with albinism, access to justice for women
                                                                    with disabilities, and the participation of persons with disabilities in the electoral process.
                              The Netherlands Embassy/              Promotes disability-inclusive governance and political participation.
                              Government
      Disability-focused      International Agency for the          Promotes children’s eye health and inclusive education for children with disabilities.
      or disability-related   Prevention of Blindness
      mandate                 CBM International                     Promotes eye health and community-based rehabilitation.
                              Liliane Foundation                    Supports children with disabilities through Daughters of Charity.
                              Disability Rights Advocacy Funds      Promotes the rights of women with disabilities to health and justice, the right to inclusive
                              (Disability Rights Advocacy Funds)    education, and the disability rights law.
      Interest in social      Ford Foundation West Africa           Promotes political participation, including among persons with disabilities.
      inclusion/social        Open Society Initiative for Western   Promotes the rule of law, electoral processes, and the rights of women and other vulnerable
      justice                 Africa                                groups.
                              TY Danjuma Foundation                 Supports women with disabilities, persons affected by leprosy, and visually impaired persons
                                                                    through the production of braille materials.


     Programming gaps                                                                   Good practice
      	 Suppliers of assistive devices and rehabilitative ser-                          Established in 1999, Beautiful Gates Handicapped Peo-
        vices do not meet the needs of the target population                            ple’s Centre, Jos, is a small-scale producer of tricycles,
        and are concentrated in large cities.                                           crutches, and artificial limbs. It distributes tricycles free
                                                                                        of charge, with about 70 percent going to the northern
     	 Locally manufactured assistive devices are scarce.
                                                                                        region. Its founder employs young persons with dis-
       The few that are available use outdated technology
                                                                                        abilities and orphans as staff and apprentices; he pays
       and are produced on a small scale.
                                                                                        them about N4,000 per month, with half set aside to
     	 The organizational and programmatic capacity of the                              help pay for their tuition. The center, which has report-
       few available national disability-focused NGOs is low.                           edly produced 13,000 tricycles over an 18-year period,
                                                                                        has received donations from Rotary International and
     	 Systems and structures to drive disability-inclusive
                                                                                        Sileka Foundation.
       development are lacking.

     	 There is emerging competition for disability funding
       associated with a lack of standards and principles
       regarding inclusive project management.




64   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Legal Frameworks and Programming                              	 Violence Against Persons (Prohibition) Act 2015
Attitudes toward persons with disabilities may be influ-        seeks to eliminate violence in private and public
enced by environmental factors, such as the availability        life. It prohibits all forms of violence against per-
of a disability law and the existence of a pool of persons      sons, provides maximum protection and effective
with disabilities who are able to advocate for their            remedies for victims and punishment of offend-
rights (Akhidenor 2007). This is evident in Akhidenor’s         ers. The law applies to all people, including those
(2007) study, which reveals that the majority of Nigeri-        with disabilities, although they are not specifically
ans living in the Sacramento area of California had posi-       mentioned. The Disability Rights Advocacy Center
tive attitudes toward persons with disabilities, while the      organized a workshop in 2018 to familiarize disabili-
attitudes of those age 46 and older and those who had           ty-inclusive development actors with the provisions
resided in the United States for one to four years were         of the law. The law is applicable in the Federal Capi-
more negative than among those who were younger                 tal Territory, but only a few other states have begun
and among those who had resided in the United States            to adapt it for their use (FRN 2015b).
for longer than four years.                                   	 Eleven states—Lagos, Plateau, Jigawa, Bauchi, Ondo,
The following provides an overview of the existing legis-       Ogun, Nasarawa, Anambra, Kano, Kogi, and Kwara—
lation, policies, and strategies in Nigeria that include or     currently have disability laws to safeguard the rights
specifically focus on persons with disabilities.                of persons with disabilities. However, the rate of
                                                                implementation for these laws is very low, with
General                                                         only Lagos and Plateau having structures in place
 	 The Constitution of the Federal Republic of Nigeria          for their implementation, the extent and quality of
   (FRN 1999) prohibits discrimination against any              which has not been adequately assessed.
   Nigerian on any grounds.
                                                              Education Sector
	 The Discrimination against Persons with Disabilities
                                                              National Policy on Inclusive Education in Nigeria.
  (Prohibition) Act 2018 (FRN 2019), enacted January
                                                              This policy seeks to provide unhindered access to qual-
  23, 2019, is a comprehensive piece of legislation that
                                                              ity education and engage the active participation of all
  guarantees the full integration of persons with disabil-
                                                              learners in the same safe school environment. It aims to
  ities into society and establishes a national commis-
                                                              achieve these objectives with the following strategies:
  sion responsible for ensuring their education, health
  care, social, economic, and civil rights. The law draws     	 High-level sensitization and advocacy to enhance
  on and seeks to domesticate the provisions of the             political will, acceptance, and buy-in on inclusive
  Convention on the Rights of Persons with Disabilities         education by all;
  (2006), which Nigeria has signed and ratified. Imple-       	 Effective stakeholder engagement and community
  mentation, which has not yet begun, will involve a
                                                                mobilization at the local, state, national, and inter-
  rigorous process of developing and costing the plan,
                                                                national levels;
  including the establishment of a national commission
  to monitor the process. Additionally, 11 states already     	 Regular capacity building for all stakeholders;
  have disability laws in place.




                                                                                            4. REVIEW OF FINDINGS        65
      	 Creation of access and safety in all schools and          asserts that the education of children with disabilities
        learning centers;                                         shall be free at all levels and makes provisions for all
                                                                  needed educational support, training, and retraining
      	 Improvement of institutional support for inclusive
                                                                  of teachers, learning materials, and assistive devices
        teaching;
                                                                  and technologies. However, the policy is weak in terms
      	 Adaptation of curriculum and resource materials;          of early detection and identification mechanisms, the
                                                                  monitoring and evaluation system, the implementation
      	 Rehabilitation and upgrading of special schools to
                                                                  structure, funding, and data collection. And it is only
        serve as resource centers; and
                                                                  being partially implemented as is (Asiwe and Omiegbe
      	 Adequate resource mobilization, allocation, and           2014; Eleweke, Agboola, and Guteng 2015). Much needs
        utilization.                                              to be done to ensure the full implementation of the pol-
                                                                  icy, including drafting a plan that has disability-specific
     It is a comprehensive policy, developed with support
                                                                  indicators for monitoring (FRN 2004b).
     and based on lessons learned from ESSPIN projects in
     Nigeria, which includes provisions for its implementa-       National Policy on Albinism in Nigeria 2012.
     tion plan and monitoring and evaluation framework.           This policy, whose review was completed in 2019
     It clearly states how the educational needs of children      (FRN 2012c), aims to guarantee the welfare and rights
     with disabilities should be mainstreamed. However,           of persons with albinism through awareness and
     implementation seems to have stalled since 2016, and         sensitization efforts, the protection and promotion
     it is not clear whether or not the plan has been costed.     of their rights, the fostering of their participation and
     A coordination mechanism may be needed to revisit            empowerment, the facilitation of the passage of a law
     the process. Strong political will coupled with funding      to establish the National Agency for Albinism and
     support will be crucial to its proper implementation         Hypo-pigmentation in Nigeria, and the promotion of
     (FRN 2016).                                                  relevant research and data collection.

     Universal Basic Education Act. This law provides for         National Policy on Special Needs Education in
     compulsory and free universal basic education for all        Nigeria 2015. This policy seeks to provide complete
     children of primary and junior secondary school age in       service delivery that encompasses physical, mental, and
     Nigeria. It draws on the provisions of international legal   emotional disabilities in Nigerian children at school, at
     instruments, such as the Convention on the Rights of         home, and the hospital; to provide adequate qualitative
     the Child, to promote universal access to basic edu-         education to all persons with disabilities in all aspects
     cation and equity. It therefore applies to all children,     of national development; and to ensure that all persons
     including those with disabilities (FRN 2004a).               with disabilities develop at a pace commensurate with
                                                                  their abilities so they can contribute to the nation’s
     National Policy on Education. This national-level pol-
                                                                  socioeconomic and technological development (FRN
     icy emphasizes inclusive education as a way of ensur-
                                                                  2015a).
     ing equity in education as enshrined in the Universal
     Basic Education Act 2004 (Asiwe and Omiegbe 2014). It




66   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Social Protection Sector                                       toward disability inclusion in any of the remaining six
Economic Recovery and Growth Plan, 2017. This                  sectors. Disability inclusion should be considered as a
medium-term plan builds on the 2016 strategic imple-           cross-cutting issue in the policy, given the strong rela-
mentation plan. Aimed at restoring economic growth             tionship between poverty and disability (Ukpong and
while leveraging the ingenuity and resilience of Nige-         Ikoh 2017).
rians, it envisions sustained inclusive growth through
structural economic transformation focused on                  Housing and Urban Development Sector
improving both public and private sector efficiency and        National Building Codes, 2012. These legal codes
provides a foundational blueprint for future generations       support the 2012 National Housing Policy. They provide
while building the capacity of Nigerian youth to carry         standards and guidelines for the accessibility of private
the country forward. The plan utilizes 60 strategies to        and public buildings to persons with different types of
attain its objectives, two of which are directly related to    disabilities. However, they were neither approved nor
social inclusion and another two to job creation. One          implemented and are now being reviewed (FRN 2012b).
of the strategies specifically targets the elderly and per-
                                                               National Urban Development Policy in Nigeria, 2012.
sons with disabilities; another—regarding social safety
                                                               The aim of the policy is to promote a dynamic system
nets—refers to the vulnerable in general terms. The
                                                               of clearly defined, planned, and well-managed urban
two job creation strategies do not make any mention of
                                                               settlements that foster sustainable economic growth,
disabilities, which has implications for addressing the
                                                               promote efficient and balanced urban and regional
needs of persons with disabilities. The disability move-
                                                               development, and ensure an improved standard of
ment and inclusion experts should actively participate
                                                               healthy living and the well-being of all Nigerians. The
in the development and review of any such documents
                                                               policy was approved in June 2012 but has not been
in the future. As a standard, disability inclusion should
                                                               implemented (FRN 2012c).
be treated as a cross-cutting issue, in addition to its role
in targeted strategies. (FRN 2017).
                                                               Health Sector
National Social Protection Policy, 2017. The National          National Policy on Sexual and Reproductive Health
Social Protection Policy is an umbrella policy frame-          and Rights of Persons with Disabilities, especially
work with provisions covering all conventional core            Women and Girls. This policy seeks to ensure that all
sectors and emerging issues that the social protection         sexual and reproductive health programs reach and
programs and projects in the country are currently             serve persons with disabilities, to expand access to
implementing. It also encompasses emergency and cri-           such services, and to increase understanding about the
sis contexts of social protection. It comprises 16 policy      sexual and reproductive health issues among women
measures to be implemented in eight sectors. Persons           and girls with disabilities. The policy, which also serves
with disabilities are targeted specifically in three of its    as an advocacy and resource mobilization tool for
five education and health services sector programs as          relevant stakeholders, seeks to achieve its objectives
well as in one of its four livelihood enhancement and          through the implementation of policy actions and stra-
employment sectors. There are no other specific efforts        tegic activities under five thematic areas:




                                                                                              4. REVIEW OF FINDINGS         67
     1.	 Increasing knowledge, raising awareness, generating     National Gender Policy, 2006. This policy brings a
         popular support, and mainstreaming the issue;           gender perspective into all aspects of planning, policy,
                                                                 legislation, and transformation activities in Nigeria.
     2.	 Improving access to sexual and reproductive health
                                                                 It is meant to address the systematic inequalities
         for women with disabilities, including access to
                                                                 between women and men in society without ignoring
         related education, services, transportation, informa-
                                                                 the fundamental differences between them. The policy
         tion, and communications;
                                                                 acknowledges disability as a form of social vulnerability,
     3.	 Improving the inclusion of women with disabilities      dedicating a section to it. Given the strong intersec-
         in governance by mainstreaming them into in all         tionality between gender and disability, the minimum
         government programs, including them in policies         standard should be to treat disability as a cross-cutting
         and laws, and allocating budgets for persons with       issue in this policy. The country is already feeling the
         disabilities;                                           effect of this omission because the gap in programming
                                                                 between women’s rights and disability rights is still
     4.	 Building bridges for partnership and collaboration
                                                                 present. Recent efforts to close this gap by the disability
         and building the capacity of stakeholders; and
                                                                 rights movement, particularly women with disabilities,
     5.	 Promoting research, monitoring, and evaluation for      is increasing awareness about this intersectionality
         issues, activities, and programs involving women        among relevant actors. Such efforts should receive
         with disabilities.                                      more support so that the women’s rights movement
                                                                 includes a disability perspective in their work and the
     Adequate implementation will require the collabora-
                                                                 disability rights movement includes a gender perspec-
     tion of multisectoral stakeholders to develop an effec-
                                                                 tive in theirs. In addition, the monitoring system for the
     tive implementation plan that includes monitoring,
                                                                 National Gender Policy should disaggregate indicators
     evaluation, and costing (FRN 2018b).
                                                                 by disability and develop disability-specific indicators
                                                                 (FRN 2006).
     Social Development Sector
     National Rehabilitation Policy. Nigeria has a vague
                                                                 Electoral/Political Participation Sector
     and outdated policy for the rehabilitation of persons
                                                                 The Independent National Electoral Commission
     with disabilities. Relevant stakeholders have recently
                                                                 Framework on Access and Participation of Persons
     made unsuccessful efforts to develop a more functional
                                                                 with Disabilities in the Electoral Process (FRN
     policy. A comprehensive policy that meets the rehabili-
                                                                 2018a). This framework enshrines the inclusion of per-
     tation needs of men, women, and children with disabili-
                                                                 sons with disabilities in all aspects of the electoral pro-
     ties is urgently needed. FMWASD, in collaboration with
                                                                 cess, including eliminating the barriers they encounter
     other stakeholders in the disability community, is cur-
                                                                 as voters, aspirants, candidates, party officials, and
     rently developing a national disability policy to replace
                                                                 staff of the INEC. The framework has an accompanying
     the National Rehabilitation Policy (FRN n.d.).
                                                                 internal operational plan to deliver on its objectives.




68   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Humanitarian Settings                                           6.	 Opportunity for employment and participation in
National Policy on Internally Displaced Persons in                  politics and public life;
Nigeria (FRN 2012d). This policy asserts the principles
                                                                7.	 Establishment of the National Commission for Per-
that guide humanitarian assistance and implemen-
                                                                    sons with Disabilities; and
tation of durable solutions in situations of internal
displacement in Nigeria. It is a comprehensive policy           8.	 Appointment and duties of the executive secretary
that addresses all of the causes of internal displacement           and other staff.
and all of the groups of internally displaced persons,
                                                                The law came into being following years of relentless
including those with disabilities. It is applicable to all of
                                                                advocacy and struggles by the disability movement and
the assistance and protection needs during every phase
                                                                civil society in Nigeria. On January 23, 2019, President
of displacement—preparedness, relief, and recovery—
                                                                Buhari signed the act into law. Prior to its enactment,
and at every level of government.
                                                                there had never been a statute to protect the rights of
                                                                persons with disabilities in Nigeria. The right to free-
Discrimination against Persons with
                                                                dom from discrimination is a human right enshrined in
Disabilities (Prohibition) Act 2018
                                                                Nigeria’s 1999 constitution (FRN 1999), but it is limited
The Discrimination against Persons with Disabilities
                                                                to Nigerian citizens and does not make specific provi-
(Prohibition) Act 2018 (FRN 2019) is a law of the Fed-
                                                                sions for the privileges, opportunities, and services that
eral Republic of Nigeria to provide for the full integra-
                                                                may be occasioned by a significant human difference,
tion of persons with disabilities into society; establish
                                                                such as a disability.
the National Commission for Persons with Disabilities;
and vest in the commission the responsibilities for their       The law criminalizes discrimination by imposing
education, health care, social, economic and civil rights,      sanctions on the offenders, including fines and prison
and for related matters.                                        sentences. It also stipulates a five-year transitional
                                                                period for modifying public buildings, structures, and
The law provides for the following socioeconomic
                                                                automobiles to make them accessible. Employers of
spheres of life among persons with disabilities in
                                                                labor must ensure that 5 percent of their workforce
Nigeria:
                                                                comprises persons with disabilities. A person with a
1.	 Prohibition of discrimination and awareness                 disability who is discriminated against can instigate a
    program;                                                    civil action against the offender without prejudice to
                                                                acquittal or conviction under this law.
2.	 Accessibility of physical structures;
                                                                Furthermore, the law establishes a National Commis-
3.	 Road transportation;
                                                                sion for Persons with Disabilities, which will ensure
4.	 Seaports, railways, and airport facilities;                 that stakeholders adequately implement its provisions,
                                                                including by liaising with the public and private sector
5.	 Liberty; rights to education, health, and first con-
                                                                and with the government to ensure that all policies, pro-
    sideration in queues; and accommodations in
                                                                grams, and activities address the needs of persons with
    emergencies;
                                                                disabilities. The commission has the power to receive
                                                                complaints from persons with disabilities regarding any




                                                                                              4. REVIEW OF FINDINGS          69
     violation of their rights and to provide support to such       The law also implies that organizations of persons with
     complainants to seek redress through the courts.               disabilities will need to raise awareness and mobi-
                                                                    lize their members to access basic services. They will
     The opinions expressed by this study’s respondents
                                                                    also play a role in monitoring the implementation
     regarding the Discrimination against Persons with Dis-
                                                                    and/or enforcement of the law by holding offenders
     abilities (Prohibition) Act are discussed below.
                                                                    accountable.
     Implications of the law
                                                                       “For organizations of people with disabilities it
     One important expected impact of the law, according
                                                                       also means that they create awareness to ensure
     to study participants, is that persons with disabilities
                                                                       that people with disability are not deprived of
     will have improved access to the physical environment
                                                                       education, health care services. And ensuring that
     and to basic services, such as education, health, and
                                                                       they hold a discriminatory office accountable […].”
     livelihoods, which will help alleviate poverty among
                                                                       – a male double amputee, Lagos
     persons with disabilities.
                                                                    Similarly, civil society is expected to become gradu-
     In addition, it is expected that society will begin to treat
                                                                    ally more inclusive by ensuring the application of the
     persons with disabilities as rights-holders rather than
                                                                    principles of equity, participation, and accessibility
     as objects of charity or as those whose needs should be
                                                                    in their programs and services. The law also calls for
     addressed only after all others.
                                                                    the expanded engagement of development partners
        “The law also provides criminalizes begging in the          in disability inclusion through increasing funding of
        street and sets aside 5 percent of employment               disability-inclusive interventions, particularly capacity
        opportunities for persons with disabilities in Nigerian     development of organizations of persons with disabil-
        institutions. So, for the private sector, for businesses,   ities to improve their participation and leadership in
        it is about the employment of people with disabilities,     disability-inclusive development.
        ensuring that their facilities are accessible to persons
                                                                       “For civil society groups, it is ensuring that people with
        with disabilities, including their products.”
                                                                       disability are not discriminated in the delivery of their
        – a male double amputee, Lagos
                                                                       services.” – a male double amputee, Lagos
        “We just pray that the implementation will be
                                                                       “Development partners, too, should bring more
        prompt and not be difficult. Because this idea of
                                                                       money and actually support the objectives of
        ‘we see that you have a disability and we are trying to
                                                                       organizations of persons with disabilities. This is the
        help you’ has gained much ground. Most people, even
                                                                       time to grow organizations by persons with disabilities;
        the government, feel that they are just trying to help
                                                                       help them, support them build their systems, let them
        when they do things for persons with disabilities in
                                                                       be at the forefront. We are not saying that other people
        our society, […] They feel that you are an unfortunate
                                                                       cannot get involved but persons with disability should
        fellow, you are suffering and they have come to alleviate
                                                                       lead the way.” – a female wheelchair-user, Abuja
        your suffering. And you have got say ‘thank you’ even
        if they are not giving you what you deserve or what
        you have worked around the clock to qualify for.”
        – a man with physical disability, Ibadan




70   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Implementation potential at the national                           help anyone. We need to have sincere agencies that
and state levels                                                   check on these types of things.” – a male academic in
The law is being introduced at a time when disability              Special Education, Jos
inclusion is receiving global attention; and as a
                                                                   “And unfortunately, we do not have the capacity.
subject of the Sustainable Development Goals, has
                                                                   We need the capacity to be strengthened in that area,
made disability inclusion a high priority among many
                                                                   it’s just a few of us. And those who have the capacity
stakeholders. The Nigerian government is facing
                                                                   might not have the reach or the resources to be able to
pressure to commit to this global shift in priorities.
                                                                   do more.” – a female wheelchair-user, Abuja
Disability is a key consideration of most of the key
development partners supporting the Nigerian govern-               “Disability discrimination or exclusion seems to be
ment in its efforts to reduce poverty, uphold the rule             moving into another phase now where everybody
of law, and improve governance and accountability,                 wants to be an actor on disability. […] And then they do
including the UK’s Department for International Devel-             activities and don’t consult people with disabilities.
opment (DFID) and USAID.                                           We’ve noticed it, in three different organizations
                                                                   where they held meetings about the Disability Act and
   “It is to make sure that the development partners
                                                                   they didn’t consult a single person with a disability.”
   work in collaboration with government agencies
                                                                   – a female wheelchair-user, Abuja
   and disabled people organization make sure that
   the law is implemented properly.” – a man with               Also challenging the law’s implementation is a dearth
   physical disability, Kaduna                                  of disability-inclusive policies, and where disability-
                                                                related provisions exist, whether in inclusive or
Awareness of disability issues is increasing among
                                                                disability-specific policies, implementation is deficient.
civil society in Nigeria. Many civil society organiza-
                                                                Further, the development and review phases for
tions are becoming increasingly interested in making
                                                                Nigerian policies lack the active participation of
their programs and services inclusive of persons with
                                                                persons with disabilities.
disabilities, and Nigeria’s disability movement has
greatly expanded its actors, which together represent a         Actions to ensure the implementation of the law
potentially formidable pressure group to facilitate the         at the national and state levels
implementation of the law.                                      Study respondents asserted the need for several actions
                                                                to adequately implement the law at the national and
   “I think the civil society as it is now if they are
                                                                state levels. They are outlined below.
   adequately informed and then mobilized to take
   up the fight for disabilities inclusion I think it           Awareness-raising and advocacy. The law must be
   could be, is one of the big opportunities we have.”          popularized among the general population and key
   – a female wheelchair-user, Abuja                            stakeholders through awareness-raising activities and
                                                                by advocating for its implementation. Beginning with
   “We have NGOs that do very well and bring up
                                                                promoting awareness among the disability community,
   fantastic programs for persons with disabilities and
                                                                the provisions of the law should be disseminated to all
   help to improve their lives. Equally, there are those that
                                                                Nigerians in local languages and in formats accessible
   are just shambles. They virtually do nothing and do not
                                                                to people with multiple types of disabilities.




                                                                                                   4. REVIEW OF FINDINGS      71
        “Persons with disabilities should not relax and think          Establishment of a commission. The law provides for
        “we now have a law, everything you need will fall into         the establishment of a commission to oversee its imple-
        place.” No, we must continue to work, to advocate for          mentation. The study participants believe that the gov-
        implementation. We are already doing that, raising             ernment should ensure the immediate establishment
        awareness. The first thing is to simplify the Disability       of the commission. Appointments of people to serve on
        Act. We also have plans of putting it into local languages.    the commission should be based on their capacity to
        And then, there is a need for a lot of advocacy at the state   achieve its set objectives. The disability community has
        level.” – a female wheelchair-user, Abuja                      a role to play in this.

        “We also need to translate these laws into the three           Budget allocations. Funding is critical to the imple-
        major languages in Nigeria. And the law can be                 mentation of the law, without which nothing tangible
        in braille so that nobody is excluded in Nigeria.”             can be achieved. Budget allocations for disability issues
        – a man with physical disability, Ibadan                       has always been a problem, even for existing policies
                                                                       that address the needs of persons with disabilities.
     Creation of an implementation workforce. The
                                                                       Study participants affirmed that adequate budget allo-
     starting point is to create an implementation commit-
                                                                       cation is key to implementation.
     tee or a task force that will oversee the implementation
     of the law. This should allow for the active participation           “There must be budget allocation. We’re not in this
     of persons with various types of disabilities as well as             year’s budget, but that is not to say they cannot get
     professionals. Thereafter, a strategic framework should              money from supplementary funds […]. Whatever it is,
     be developed to implement the law at the national level              by the next budget we will be included in the budget.”
     with immediate effect. The same should be done at the                – a female wheelchair-user, Abuja
     state levels, after each state has domesticated the law
                                                                       Collaborations and partnerships. To ensure proper
     or reviewed existing laws based on the national law.
                                                                       implementation, respondents emphasized the impor-
        “I’m still waiting for government to say “We want to           tance of collaboration and partnerships among several
        constitute a committee to look at what has been signed         stakeholders, including government, development part-
        and implemented.” The next step is for them to constitute      ners, the disability community, and civil society.
        the committee to propose strategic implementation.
                                                                          “I think we too, who are involved, we need to
        A presidential task force to look at the law, and how it
                                                                          come together; all development partners and
        can be implemented.” – a man with albinism, Abuja
                                                                          institutions and all NGOs, we need to come
        “There has to be a national strategy framework                    together and chart a course, with government.”
        team. In the first 5 years, what do we want to see done           – a male academic in Special Education, Oyo
        at the state level, at the local government level?
                                                                       Monitoring. Monitoring at various levels of imple-
        What will be the roles of different bodies, disability
                                                                       mentation is critical. Stakeholders should be careful
        bodies and all of that? That should be the next
                                                                       to report any discriminatory acts but also hold the
        thing and that should be done before it gets cold.”
                                                                       commission accountable for delivering their man-
        – a female academic in public health, Ibadan
                                                                       dates. JONAPWD, among other stakeholders, must be
                                                                       well-positioned to perform this role.




72   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
   “Monitor compliance, you know. Continue to be a           Table 4.1 presents the key findings on disability inclu-
   watchdog. If we see where discrimination is happening     sion across various sectors.
   and call it out, hold individuals or organizations
   accountable for any form of disability discrimination.”
   – a female wheelchair-user, Abuja
                                                             State Case Studies
Capacity development. Capacity and skills devel-             This section presents case studies of some of the
opment is crucial for organizations of persons with          Nigerian states that have passed disability laws. The
disabilities, service providers, government, and devel-      elements of the laws, implementation progress, and
opment actors to properly implement the law.                 contributing factors toward success are examined.
                                                             Lessons learned and the recommendations for the way
Participation and leadership. Persons with disabil-          forward are highlighted.
ities should be given opportunities to actively partic-
ipate and assume leadership roles in the affairs of the      The assessed states are at different stages of imple-
commission—this is crucial to the successful imple-          menting their laws. Collected data are based on key
mentation of the law and is linked to developing the         informant interviews and focus group discussions. The
capacity of persons with disabilities to assume leader-      study conducted an interview with the Executive Chair-
ship positions in every sector of the economy.               person of the Plateau State Disability Rights Commis-
                                                             sion and a disability activist in Ondo State; and a phone
   “We must make sure that in anything the government        interview with a leader of the disability community in
   does, persons with disability are included, whatever      Jigawa State. The information presented for Lagos State
   program, whatever policy […]. That is how we can move     was extracted from the two focus group discussions
   forward.” – a man with spinal injury, Lagos               conducted in Lagos, a key informant interview with a
Recommendations                                              representative of a disability-focused NGO in Lagos,
 	 Optimize the provisions of the legal frameworks           and information on the website of the Lagos State
   and policies related to disability inclusion through      Office for Disability Affairs (LASODA).
   adequate implementation, which will require the
   support of multisectoral stakeholders.                    Plateau State
 	 Strengthen the monitoring and evaluation of               The Disability Rights Commission Law 2005
   available policies and frameworks, including by           The Disability Rights Commission Law 2005 (Plateau
   developing disability-specific indicators and by dis-     State of Nigeria 2005) was passed in Plateau State
   aggregating data by disability.                           on December 22, 2005, by Governor Joshua Dariye. It
                                                             establishes the Plateau State Indigenes with Disabilities
 	 Review the current instruments to better address          Rights Commission and for other Matters Ancillary
   the needs and concerns of persons with disabilities       thereto.
   in Nigeria.
                                                             The commission’s objective is to coordinate and
 	 Conduct a thorough and/or expert audit of every           implement activities that ensure the full inclusion of
   future framework to influence disability advocacy in      persons with disabilities into the mainstream of society,
   the relevant sectors.                                     particularly in education, employment, rehabilitation,




                                                                                           4. REVIEW OF FINDINGS         73
     and civil rights. The law vests power in the commission     The Plateau State Indigenes with Disabilities
     to mobilize resources, to collaborate with relevant         Rights Commission
     actors within and outside Nigeria in pursuit of its aims,   The Plateau State Indigenes with Disabilities Rights
     to demand and obtain relevant information and data,         Commission was created in 2013, eight years after the
     and to report on relevant matters. The commission can       law calling for its establishment was passed. The man-
     engage in multisectoral and multidisciplinary collabo-      agement team was appointed in 2015. The commission
     rations, network with civil society organizations to the    is a standalone entity with a direct link to the gover-
     benefit of persons with disabilities, and formulate and     nor’s office.
     implement policies aimed at their full inclusion.
                                                                 The commission’s management includes an executive
     The commission is authorized to collaborate with a          team, consisting of an executive chairman and four
     wide variety of stakeholders, including organizations       other members, including a secretary. A management
     of persons with disabilities, MDAs, and international       team oversees eight departments: rehabilitation ser-
     organizations, to engage in program activities, research    vices; planning, research, and statistics; empowerment,
     and advocacy, community-based interventions, and            civil rights, and legal issues; education and disability;
     technical assistance. It can set criteria for social ser-   administration; finance; supplies; and accessibility.
     vices schemes, implement awareness and rehabilita-
                                                                 Of the five members managing the commission, three
     tion activities, and register and monitor the activities
                                                                 are women and two are men. Three of the members
     of NGOs that receive funds from the state and federal
                                                                 are persons with disabilities, and two of the three are
     government for the benefit of persons with disabilities.
                                                                 women with disabilities. There were 24 staff members
     Under this law, the government must ensure that             at the commission at the time of the interview 13 of
     persons with disabilities have comprehensive access         whom (54 percent) were persons with disabilities. The
     to public information and communications, public            remaining staff members had at least one member with
     buildings, public transportation, and all sectors of the    disabilities in their immediate families.
     economy—but particularly education, health, social
                                                                 Implementation progress
     security, and employment. The commission receives
                                                                 The commission collaborates and partners with wide
     an annual budget allocation from the government.
                                                                 range of actors, including international and national
     It may also raise funds through private and public
                                                                 NGOs, the German and Australian embassies, CBM
     donations, including NGOs and other organized private
                                                                 International, SightSavers International, the Leprosy
     sector actors; investments and property; or services
                                                                 Mission, Motivation UK, Disability Rights Advocacy
     rendered. The law repeals the Plateau State Rehabili-
                                                                 Center, Inclusive Friends Association, Health and
     tation Board Law (1999); and all of its property rights,
                                                                 Development Support Programme (HANDS), Emmaus
     assets, and liabilities were transferred to the commis-
                                                                 Christian Centre, and International Federation of
     sion. However, this law neither prohibits nor criminal-
                                                                 Women Lawyers Nigeria. The commission also col-
     izes any form of discrimination against persons with
                                                                 laborates with MDAs at both the federal and state
     disabilities in the state.
                                                                 levels. The partnerships are based on funding, technical
                                                                 support, the provision of assistive devices, and capacity
                                                                 development.




74   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Table 4.1. Key Findings Matrix
                                     Current
            Main Issues and          Programming,             Current Institutional
Sector      Barriers to Services     Laws, and Policies       Landscape                           Gaps in Programming        Good Practices
Education   	Inadequate oppor-       	Mostly special edu-     	Few (mostly private) inclusive     	Inadequately trained      	Primary schools that
             tunities for partici-    cation programs          schools available                   teachers                   adopt the inclusive
             pation in schools       	Inclusive education     	Few nongovernmental orga-          	Lack of early detec-       education model and
            	Inadequate learning      is an emerging           nizations working on inclusive      tion and intervention      well trained staff (e.g.,
             aids                     concept                  education                          	Dearth of learning         primary school in Jos,
            	Few teachers            	Inadequately im-        	Special education focal points      materials and assis-       Plateau State)
             trained in sign          plemented national       in federal and state ministries,    tive technologies         	Discrimination
             language or spe-         policies on special      departments, and agencies          	Lack of educational        against Persons
             cialized staff and       needs education,        	Unavailable tertiary training in    support in tertiary ed-    with Disabilities
             personnel trained in     inclusive education,     inclusive education                 ucation for students       (Prohibition) Act
             strategies and skills    and albinism            	Limited funding of inclusive        with disabilities
             to ensure adequate                                education through USAID,
             learning for persons                              International Agency for the
             with disabilities                                 Prevention of Blindness, DFID,
            	Limited career                                    and Disability Rights Advocacy
             opportunities in                                  Fund
             areas and sectors                                	Few programs on inclusive
             that are not con-                                 education by Sightsavers
             sidered “disability                               International for those with
             adequate”                                         visual impairment; Independent
            	Negative attitudes                                Living Programme for Persons
             among teachers                                    with Disabilities (advoca-
             and peers                                         cy-related), and Daughters of
                                                               Charity (for hearing impaired
                                                               persons); and Brien Holden
                                                               Vision Institute
                                                              	Production of braille books by
                                                               Niger Wives Association
Health      	Negative attitudes      	Inclusive health        	Health care delivery inaccessi-    	Unavailable early         	Comprehensive
             among health             policies are             ble to persons with disabilities    intervention services      Community Mental
             workers                  unavailable             	No disability focal point in the   	Lack of disability         Health Programme in
            	Health workers’         	Health care costs        Federal Ministry of Health          training for health        Benue State
             ignorance of             related to disability   	Small-scale inclusive health        workers                   	Discrimination
             disability Health        services are “out        programs by a few nongov-          	Inadequate budget          against Persons
             workers ignorance        of pocket.”              ernmental organizations: CBM        allocation                 with Disabilities
             of disability (causes   	New national pol-        International, Sightsavers         	Lack of inclusive          (Prohibition) Act
             and treatment)           icy on sexual and        International, Disability           health policies           	Good practices among
            	Prohibitive cost of      reproductive health      Rights Advocacy Center,                                        health workers in
             care                     for persons with         Deaf Women Association of                                      Akwa Ibom State
            	Inaccessible             disabilities             Nigeria/Ipas, Daughters of                                    	Policy on the sexual
             environment, equip-                               Charity, HANDS, The Leprosy                                    and reproductive
             ment, information,                                Mission, German Leprosy                                        health of women and
             and communication                                 and Tuberculosis Relief                                        girls with disabilities
                                                               Association, and Brien Holden
                                                               Vision Institute
                                                              	Mental health by
                                                               Gede Foundation and
                                                               Comprehensive Community
                                                               Mental Health Programme
                                                              	Donors include BMZ,
                                                               International Agency for the
                                                               Prevention of Blindness, CBM
                                                               International, Australian Aid,
                                                               Disability Rights Advocacy
                                                               Fund, and Liliane Foundation
                                                                                                                                            (continued)




                                                                                                                  4. REVIEW OF FINDINGS                   75
     Table 4.1. Continued
                                                 Current
                         Main Issues and         Programming,            Current Institutional
     Sector              Barriers to Services    Laws, and Policies      Landscape                            Gaps in Programming       Good Practices
     Employment          	Employers’ negative    	No clear provision      	Livelihood programs seldom         	Lack of inclusive        	Plateau State employ-
                          attitudes               for inclusive em-        target persons with disabilities    human resource            ment provision in its
                         	Disabling work          ployment until the      	Few actors in inclusive             policies                  disability law
                          environment             recently passed          livelihood or employment:          	Lack of advocacy for     	Discrimination
                         	Lack of affirmative     national disability      Sightsavers International,          inclusive employment      against Persons
                          action                  law                      CBM International,                 	Failure to implement      with Disabilities
                         	Inappropriate                                    Theseabilities Foundation,          inclusive employment      (Prohibition) Act
                          employment                                       The Leprosy Mission,                pronouncement            	Special quota of 1
                         	Denial of leadership                             Comprehensive Community                                       percent for persons
                          roles                                            Mental Health Programme,                                      with disabilities of any
                         	Discriminatory                                   and Propcom                                                   organization that has
                          language in job                                 	Donors funding inclusive live-                                up to 100 persons
                          advertisements                                   lihoods: DFID, BMZ, European                                  in the Lagos State
                                                                           Union, and TY Danjuma                                         Special People’s Law
                                                                           Foundation                                                    2011
                                                                          	Office of the Head of Civil
                                                                           Service of the Federation
                                                                           has a disability desk but
                                                                           the Ministry of Labour and
                                                                           Employment does not
     Social protection   	Lack of access         	The National Social     	Actors with inclusive social       	Eligibility re-          	Lagos State disability
                          to social security      Protection Policy        protection programs: The            quirements are            grants
                          schemes                 makes provisions         Leprosy Mission, CBM                discriminatory           	Social security
                         	Office of the Head      for disability           International, Comprehensive       	Recognition level         schemes implemented
                          of Civil Service        inclusion                Community Mental Health             of the relationship       through the Plateau
                          of the Federation                                Programme, and Save the             between poverty and       State Disability Rights
                          bureaucracy                                      Children International              disability is low.       	Discrimination
                         	Unaccountable                                   	Donors in this sector: DFID,       	Disability is not a       against Persons
                          leaders                                          European Union, and BMZ             cross-cutting factor      with Disabilities
                                                                          	Lack of coordination between        in the National Social    (Prohibition) Act
                                                                           departments in FMWASD               Protection Policy
                                                                                                              	Failure to implement
                                                                                                               the policy
                                                                                                              	Low level of imple-
                                                                                                               mentation monitoring
                                                                                                               of the of schemes
     Community-          	Unaffordable as-       	The previous            	Assistive devices in short         	Inadequate expertise     	Vocational rehabilita-
     based services,      sistive devices and     rehabilitation           supply                              and manufactur-           tion program in Oyo
     assistive            technology              policy was vague        	Mostly run by private compa-        ing centers for           State
     devices, and        	Dearth of available     and poorly               nies and charities                  assistive devices and    	Community-based
     technology           quality assistive       implemented             	Few community-based reha-           technology                rehabilitation and
                          devices                	National policy on       bilitation programs                	Low knowledge levels      vocational training
                         	Inadequate              disability is at the    	FMWASD is in charge but not         on the principles         experiences in Kaduna,
                          therapists and          draft stage              doing enough                        and practice of           Zaria State
                          community-based                                 	Not a focus of key donors           community-based          	Assistive devices
                          rehabilitation                                                                       rehabilitation            and support provided
                          services                                                                            	Lack of sustainability    by organizations
                                                                                                               plan for the design of    such as the Leprosy
                                                                                                               community-based re-       Mission International,
                                                                                                               habilitation programs     German Leprosy Relief
                                                                                                              	Low level of govern-      Agency, and Damien
                                                                                                               ment commitment           Foundation
                                                                                                                                                       (continued)




76   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
Table 4.1. Continued
                                                 Current
                      Main Issues and            Programming,             Current Institutional
 Sector               Barriers to Services       Laws, and Policies       Landscape                             Gaps in Programming          Good Practices
 Electoral             	Low knowledge of         	INEC’s Framework         	INEC has a disability desk           	Low capacity of INEC       	Framework on Access
 and political          disability inclusion      on Access for            	Actors in inclusive gov-              for inclusive electoral     for Persons with
 processes              among staff at            Persons with              ernance and electoral                 process                     Disabilities in the
                        the Independent           Disabilities in the       participation: Inclusive             	Lack of political will      Electoral Process
                        National Electoral        Electoral Process         Friends Association, Centre           to facilitate active        developed by INEC
                        Commission (INEC)                                   for Citizens with Disabilities,       participation and          	A paper ballot de-
                       	Inaccessible elec-                                  The Albino Foundation, and            leadership of persons       signed in braille for the
                        toral procedures                                    ActionAid International               with disabilities in        2019 elections
                        and facilities                                     	Donors: DFID, USAID,                  politics
                       	Lack of opportu-                                    European Union, Ford                 	Poor implementa-
                        nities for political                                Foundation, and the                   tion of the INEC’s
                        and leadership                                      Netherlands Embassy                   Framework on
                        participation                                                                             Access for Persons
                       	Physical inacces-                                                                         with Disabilities in the
                        sibility of voting                                                                        Electoral Process
                        environment
                       	Situations of more
                        vulnerability in case
                        of electoral violence
 Public                	Inaccessible             	Lack of inclusive        	No disability desk in the            	Low awareness level        	Lagos Metropolitan
 transportation         vehicles                  transportation            Ministry of Transport                 of transportation           Area Transport
                       	Negative attitudes        policy                   	Dearth of programs targeted           rights and needs of         Authority (LAMATA)
                        among drivers and        	Recently passed           at addressing inclusive               persons with disabil-       has put in place the
                        passengers                disability law            transportation                        ities among relevant        following disability
                       	Discriminatory            includes provisions                                             stakeholders                inclusive measures for
                        attitudes among           for inclusive public                                           	Lack of facilities for      its bus rapid transport:
                        staff of airlines and     transportation                                                  safe, convenient, and       priority queue; priority
                        airports                                                                                  dignifying boarding         ticket purchase; prior-
                       	Risky and inap-                                                                                                       ity seating; wheelchair
                        propriate boarding                                                                                                    space; accessible
                        procedures                                                                                                            buses; level boarding;
                                                                                                                                              and accessible infra-
                                                                                                                                              structure, e.g., ramps
                                                                                                                                              and disabled-friendly
                                                                                                                                              crossings
 Public                	Inaccessible public      	No policy on             	No disability desk in the            	Lack of available          	Sign language
 information and        information and           accessible                Ministry of Information               assistive technolo-         interpreters at public
 communications         communications            information and          	Organizations and the media           gies for accessible         events and to ensure
                       	High level of illiter-    communications            do not prioritize accessi-            information                 adequate dissemina-
                        acy among persons        	There are                 ble public information and           	Accessible in-              tion of key information
                        with disabilities         provisions on ac-         communications                        formation and               about government-re-
                       	Poor quality sign         cessibility of public    	Awareness programs are usu-           communications              lated issues.
                        language interpre-        information and           ally not provided in accessible       are low priorities of
                        tation services           communications in         formats                               stakeholders
                                                  the new national                                               	Lack of capacity for
                                                  disability law                                                  providing accessible
                                                                                                                  information and
                                                                                                                  communications
                                                                                                                 	Lack of regulation of
                                                                                                                  sign language inter-
                                                                                                                  pretation services
BMZ = Federal Ministry for Economic Cooperation and Development; DFID = Department for International Development; FMWASD = Federal
Ministry of Women Affairs and Social Development; HANDS = Health and Development Support Programme; INEC = Independent National Electoral
Commission; USAID = United States Agency for International Development.




                                                                                                                                  4. REVIEW OF FINDINGS                   77
     Ongoing programs of the commission include:                   	 Participation and leadership. Persons with dis-
                                                                     abilities actively participate in and lead the affairs of
     	 An entrepreneurial project conducted in collabo-
                                                                     the commission, which has greatly motivated their
       ration with the state government and with funding
                                                                     commitment.
       from the African Development Bank that involves
       107 persons with disabilities in potato farming;            	 Autonomy. The commission is autonomous—it
                                                                     does not operate under any ministry or agency. It is
     	 The Church of Jesus Christ of Latter-day Saints,
                                                                     directly linked to the governor’s office, with func-
       United States, that donated 1,000 wheelchairs,
                                                                     tional autonomy.
       which were distributed by the commission;
                                                                   	 Annual budgetary allocation. Dedicated annual
     	 Technical support and advocacy training targeted at
                                                                     budget for disability inclusion with budgetary
       traditional leaders and other opinion leaders at the
                                                                     allocations deposited in the commission’s bank
       community level with funding from the Australian
                                                                     account, allowing for planning and implementation
       embassy;
                                                                     of disability-inclusive activities.
     	 Provision of educational assistance to persons with
                                                                  Gaps and challenges
       disabilities in collaboration with the state’s Universal
                                                                   	 None of the provisions in the health sector are being
       Basic Education Board;
                                                                     implemented.
     	 Social security grants such as scholarships and
                                                                   	 Only about 5 percent of the target has been met for
       entrepreneurial grants to persons with disabilities;
                                                                     assistive devices due to lack of funding.
     	 Automatic employment of qualified persons with
                                                                   	 Community-based rehabilitation services have yet to
       disabilities; and
                                                                     be planned and implemented. There are also funding
     	 Distribution of 1,500 devices, including crutches,            constraints, including capacity development of staff
       guide canes to persons with disabilities, in collabo-         to implement the services in a sustainable manner.
       ration with the State Ministry of Health.
                                                                   	 Funding is inadequate, with a large part of the bud-
     Contributing factors to implementation progress                 get dedicated to recurrent expenditures.
      	 Political will. The state governor is highly commit-
                                                                   	 Support is needed in terms of funding; technical
        ted to disability inclusion.
                                                                     assistance; and capacity development of duty bear-
     	 Supportive staff. Staff members are committed;                ers, service providers, and persons with disabilities.
       they view their service at the commission as a way
       to also help themselves.                                   Lagos State
     	 Community involvement. The community has                   Lagos State Special Peoples Law 2010
       been sensitized to and is interested in disability         The Lagos State Special Peoples Law 2010 (Lagos
       inclusion, even in rural areas, as illustrated by the      State of Nigeria 2011), which came into force in 2011,
       training of traditional rulers on disability inclusion,    established the Office for Disability Affairs to safeguard
       which targeted 18 participants but which eventually        persons with disabilities against all forms of discrimi-
       had 37 people interested in attending.                     nation and to equalize their opportunities in all aspect




78   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
of living in society. The office issues guidelines regard-    The law criminalizes—with fines and imprisonment—
ing the education, social development, and welfare of         treating persons with disabilities cruelly or inhumanely,
persons with disabilities, and collaborates with relevant     including medical and scientific experiments, torture,
ministries, parastatals, and corporate bodies with the        and degrading treatment; using them for alms begging;
authority to issue building or design codes to facili-        or subjecting them to slavery, forced labor, or any form
tate the accessibility and use of buildings for persons       of exploitation.
with disabilities. It is authorized to receive complaints
regarding violations of the rights of persons with dis-       Lagos State Office for Disability Affairs
abilities and to support the investigation, prosecution,      Executive Governor of Lagos State Babatunde Raji
and sanctioning of reported cases.                            Fashola (Senior Advocate in Nigeria-SAN) inaugurated
                                                              the governing board for the Lagos State Office for
Additionally, the office registers and coordinates
                                                              Disability Affairs (LASODA) on July 9, 2012. LASODA,
organizations of persons with disabilities, reorients and
                                                              which operates under the supervision of the Ministry of
educates the public to reduce stigma around disabil-
                                                              Youth, Sports and Social Development, is charged with
ities, and collects and collates data on persons with
                                                              implementing the Lagos State Special People’s Law
disabilities for planning purposes. It liaises with other
                                                              2011. It has nine principal officers, including a general
ministries and government agencies to ensure that the
                                                              manager and a secretary. Three of the principal officers
needs and concerns of persons with disabilities are
                                                              are women and three are men with disabilities. Of its
addressed in government policies, programs, and activ-
                                                              approximately 25–30 staff members, seven have disabil-
ities. It maintains and updates a database of persons
                                                              ities, including women.
with disabilities, designs and issues customized insig-
nias for use in parking lots, and sensitizes the public on    Implementation progress
how to interact with persons with disabilities.                	 Lagos State Disability Fund was launched by the
                                                                 immediate past Governor of Lagos State Akinwumi
Moreover, the law makes provisions for the social
                                                                 Ambode on May 29, 2016 with a seed fund of N
protection of persons with disabilities; accessible public
                                                                 500 million intended for the education and social
transportation, including no extra charges for assis-
                                                                 advancement of persons with disabilities in Lagos
tive devices; reserved parking spaces; and accessible
                                                                 State. The funds are being disbursed to persons
public buildings with a transitory period within which
                                                                 with disabilities and disability cluster organization
all roads, pedestrian crossings, and other structures
                                                                 registered with and recognized by LASODA. Persons
should be modified for accessibility.
                                                                 with disabilities are recommended to receive the N
The law also recognizes the rights of children with              100,000 per person funds by their respective organi-
disabilities to their identity and to protection against         zations. No clear eligibility criteria exist.
neglect, exploitation, and violence; it also recognizes
                                                              	 About 1,000 civil servants have received training
the right of persons with disabilities to basic services,
                                                                in sign language in Lagos State over the past three
including health, education, and employment. Under
                                                                years.
this law, persons with disabilities have the right to free-
dom; to drive; to inclusion in communal life; and to par-     	 Persons with disabilities have been employed in the
ticipate in cultural life, recreation, leisure, and sports.     Lagos State civil service.




                                                                                            4. REVIEW OF FINDINGS         79
      	 LASODA has initiated the Disability Entrepreneur-         	 The office lacks the autonomy to directly interact
        ship and Empowerment Programme which is a loan              with the governor’s office.
        service for eligible persons with disabilities. Bor-
                                                                  	 Funding levels are insufficient.
        rowers must have a viable business or be involved
        in entrepreneurial activities; loan amounts vary and      	 The law does not provide a government budget
        must be paid back within one year.                          allocation to LASODA, except through the establish-
                                                                    ment of Lagos State Persons Living with Disability
      	 Assistive devices have been distributed.
                                                                    Fund with seed funds of N500 million.
      	 Bus Road Transport have allocated seats for persons
        with disabilities although the buses are not physi-       Ondo State
        cally accessible.
                                                                  Ondo State Agency for the Welfare of
      	 There are some new accessible pedestrian bridges.         Persons with Disabilities and Other
                                                                  Provisions Law 2011
     Contributing factors to implementation progress
                                                                  Dr. Olusegun Mimiko, the then governor of Ondo State,
      	 Past state governors have demonstrated a commit-
                                                                  passed the Ondo State Agency for the Welfare of Per-
        ment to LASODA through, for example, the provi-
                                                                  sons with Disabilities and other Provisions Law 2011
        sion of the seed funds for the Lagos State Persons
                                                                  (Ondo State of Nigeria 2012) on March 29, 2012. The
        Living with Disability Fund.
                                                                  objectives of the Ondo State Agency for the Welfare of
      	 The presence of a board provided oversight over the       Persons with Disabilities are to:
        affairs of the office.
                                                                  	 Facilitate the protection of the rights of persons with
     Gaps and challenges                                            disabilities in the state as well as the eradication of
      	 Study participants believe that there is a lack of          all forms of discrimination against them;
        capacity to implement the Lagos State Special Peo-
                                                                  	 Mobilize persons with disabilities to be self-reliant,
        ple’s Law 2011. They believe that many of its provi-
                                                                    to contribute to economic development, and to
        sions are being inadequately implemented—if at all.
                                                                    foster public awareness on disability inclusion;
        They highlight that the employment of persons with
        disabilities in Lagos is lagging, as are health issues,   	 Provide an avenue for programs that would enhance
        priority on queues, and designated parking spaces.          interactions between persons with disabilities and
                                                                    their peers without disabilities within and outside
      	 There are indications that the general population is
                                                                    the state; and
        not yet aware of the law or its provisions.
                                                                  	 Promote, protect, and represent the interest of per-
           “When people are in a queue, you get there as a
                                                                    sons with disabilities in all spheres of life.
           person with disabilities and tell them that the law
           says I should be attended to first, they will not      To achieve its objectives, the agency will formulate
           listen to you. They will even quarrel with you over    policies and programs to enhance the welfare of per-
           that. That awareness […] is not there yet.             sons with disabilities in the state; source funds from
           – a visually impaired participant, Lagos               other tiers of the government, the organized private




80   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
sector, and international donor agencies; and make pro-      of Women Affairs and Social Development. On July
visions to enhance the employment of and empower             17, 2019, eight years after the agency was established,
persons with disabilities. It expects to ensure adequate     Governor Oluwarotimi Akeredolu inaugurated its board,
health care for persons with disabilities in the state and   which comprises five persons with disabilities (includ-
advocate for accessible public buildings and recre-          ing one woman and the chairman) who represent the
ational facilities. It also seeks to prevent persons with    state’s key disability cluster organizations. Additional
disabilities from socially unacceptable behaviors such       board members were drawn from the Ministry of
as street begging.                                           Women Affairs and Social Development; the Ministry
                                                             of Health; the Ministry of Education; and the Ministry
The law provides for the physical accessibility of public
                                                             of Employment, Labour and Productivity. The agency’s
buildings and roads. It demands that the development
                                                             secretary also serves as secretary of the board. The prin-
and remodeling of public transportation and public
                                                             cipal officers of the agency include the secretary, who is
communication conform to national standards and
                                                             responsible for the administration of the agency under
guidelines regarding access to persons with disabilities.
                                                             the supervision of the chairman (who has not yet been
The law makes it mandatory for the media industry
                                                             appointed). The secretary will advise the board on the
that operates in the state to raise awareness on the
                                                             formulation and implementation of its policies and will
rights, respect, and dignity of persons with disabilities,
                                                             convene board meetings. The agency will determine the
and to showcase their capabilities, achievements, and
                                                             number of staff necessary to deliver its mandates, and
contributions to society—with the involvement of per-
                                                             then have them posted from the civil service.
sons with disabilities.
                                                             None of the agency’s current principal officers is a
The law has provisions regarding the boarding of vehi-
                                                             person with a disability. There were no persons with
cles by persons with disabilities and for the preferential
                                                             disabilities in the agency’s workforce until recently,
treatment of persons with disabilities in boarding pro-
                                                             when one person with a disability was recruited. The
cess, but it does not specifically recognize the rights of
                                                             agency’s primary source of funding is the state govern-
persons with disabilities to access basic services, such
                                                             ment’s subvention and budgetary allocation, coupled
as education, health, and employment. It also makes no
                                                             by funds from the federal and local governments, donor
specific provisions for the rights of children or women
                                                             agencies, gifts, money earned on property, and assets
with disabilities. It does prohibit any form of discrimi-
                                                             accrued to the agency from any other source.
nation against or harmful treatment of a person with a
disability, with criminal penalties that include fines and   Implementation progress
imprisonment.                                                The implementation of the law is highly inconsistent. The
                                                             agency occasionally implements empowerment pro-
The Ondo State Agency for the Welfare of Persons with
                                                             grams, but they are not sustainable. It is also working on
Disabilities initially had two departments: (1) finance
                                                             presenting the issue of employment to the government.
and (2) administration, and rehabilitation, and health
services—but the law allows for the creation of addi-           “So, you see, you buy a sewing machine to empower
tional departments with board approval. The agency              somebody but there is no shop. So the empowerment
operates under the supervision of the State Ministry            opportunities they are giving are not comprehensive




                                                                                             4. REVIEW OF FINDINGS        81
        enough to me. By the time you come back in six months    disabilities, including the employment, use, or involve-
        to assess the people you claimed you have empowered,     ment of persons with disabilities in alms begging, as
        they would have sold off the items because your          well as discrimination in employment.
        empowerment talk is not comprehensive enough.”
                                                                 Furthermore, the law proposes adequate standard of
        – an activist, Akure
                                                                 living and social protection, the accessibility of public
     Gaps and challenges                                         buildings and facilities, and supporting person with
      	 The board has only recently been inaugurated,            disabilities in situations of risk and humanitarian
        allowing it to begin its work, which was a major         emergencies. It specifies a transition period of five
        setback to the law’s implementation.                     years during which modifications should be made to all
                                                                 public buildings, roads, pedestrian crossings, and other
      	 Persons with disabilities did not actively participate
                                                                 relevant infrastructure to make them accessible to and
        in implementation because there was no board in
                                                                 usable by persons with disabilities.
        place. Further, the agency’s office is not physically
        accessible, and there are no sign language interpret-    The law recognizes the rights of children with disabil-
        ers. Persons with disabilities are treated more as       ities to protection from all forms of violence, free and
        beneficiaries and/or recipients of charity.              compulsory education up to the secondary level, and
                                                                 recreational activities. Under the law, the government
      	 Awareness of the law is scant. Most of general pop-
                                                                 provides early intervention services and support to
        ulation and key stakeholders, including the media,
                                                                 children with disabilities and their families.
        does not know that the law exists.
                                                                 The law affirms the rights of persons with disabilities to
      	 Funds for implementing the law are lacking.
                                                                 free or affordable health care services of the same qual-
                                                                 ity available to their peers without disabilities, includ-
     Jigawa State                                                ing any needed communication support; it guarantees
     Jigawa State Persons with Disabilities                      access to education absent any form of discrimination;
     Law 2016                                                    and it promotes inclusive education. It recognizes the
     The Jigawa State Persons with Disabilities Law 2016         rights of persons with disabilities to gain employment
     (Jigawa State of Nigeria 2017) was signed on January        in a chosen labor market and work environment. The
     19, 2017, by Governor Muhammad Badaru Abubakar.             law makes it compulsory for any employer with up
     The law is meant to safeguard persons with disabili-        to 100 employees to reserve at least 5 percent of its
     ties from all forms of discrimination, to promote their     workforce for qualified persons with disabilities. It
     access, and to advance their opportunities to engage        also recognizes the right of persons with disabilities to
     in all aspects of society. It prohibits discrimination      participate in politics and government policy; to access
     against and the harmful, cruel, or inhuman treatment        transportation; to take part in communal life; and to
     of persons with disabilities. It recognizes the rights of   engage in cultural life, recreational activities, leisure,
     women and adolescents with disabilities to all of the       and sports.
     law’s provisions. However, it selectively criminalizes
                                                                 The Jigawa State Rehabilitation Board is mandated with
     only cruelty and inhuman treatment of persons with
                                                                 the responsibility of implementing the law’s provisions.




82   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
It has the responsibility to protect, promote, and support     provision for the automatic employment of five persons
the social and economic development of persons with            with disabilities for each of the 27 local government
disabilities in the state. The law does not establish a sep-   areas and for empowerment in terms of vocational
arate office or commission to oversee its implementa-          training. In addition, there is a policy to ensure the
tion. The law also does not provide a government budget        participation of persons with disabilities in political life,
allocation for implementation. Instead, it establishes the     including a provision of a special adviser on disability
Jigawa State Persons with Disabilities Fund to advance         issues for each local government area who must be a
the cause of persons with disabilities in the state.           person with a disability. This policy produced 27 special
                                                               advisers with disabilities as well as a member of the
Implementation progress
                                                               state house of assembly representing Dutse Constitu-
The government set up and inaugurated a committee
                                                               ency, who is a man with a disability. To ensure sustain-
for the Jigawa State Disability Fund immediately after
                                                               ability, a lawmaker with a disability in the Jigawa house
the law was passed to raise funds for its implemen-
                                                               of assembly during Governor Lamido’s tenure in office
tation, but it has not been functioning. In response,
                                                               sponsored the state disability bill for the first time. The
the Partnership to Engage, Reform and Learn (PERL),
                                                               bill sought to harmonize all of the ongoing social secu-
in collaboration with the Jigawa State Rehabilita-
                                                               rity schemes into one law and to include other relevant
tion Board and a civil society initiative, established
                                                               provisions for the well-being of persons with disabilities
and inaugurated a disability law implementation
                                                               in the state.
committee and has developed an action plan for the
implementation of the disability law and is raising            Contributing factors to implementation progress
public awareness on the importance of the law. The              	 PERL, in collaboration with relevant stakeholders,
implementation committee consists of government                   provided support to facilitate the process.
officials from the relevant MDAs, such as the Ministry
                                                                	 There were already existing social protection
of Women Affairs, Ministry of Education, Ministry of
                                                                  schemes, which had been instituted due to the polit-
Finance and Economic Planning, Jigawa State Due
                                                                  ical will of a past governor.
Process and Project Monitoring Bureau, other organi-
zations, and persons with disabilities. It has a chairman      Gaps and challenges
and is under the supervision of the Jigawa State Reha-          	 There is no separate office or commission to manage
bilitation Board.                                                 the implementation of the law.

In 2007, prior to the passage of the law, Governor Sule         	 Political will is insufficient.
Lamido, rolled out a social security allowance of N7,000
                                                                	 Implementation funding is lacking.
per month for 150 persons with disabilities in each local
government area in the state. The state has also been           	 There is a dearth of leadership among persons with
implementing policies that provide free education to              disabilities.
everyone, including persons with disabilities from the
primary to secondary level as well as scholarships to
students at the tertiary level, provided that the edu-
cation is at a state-owned institution. There is also a




                                                                                                4. REVIEW OF FINDINGS          83
     Anambra State                                                 Moreover, the law makes it mandatory to ensure equity
                                                                   in employment for persons with disabilities. All employ-
     Anambra State Disabilities Rights Law 2018                    ers of labor with at least 100 employees, as well as all
     The Anambra State Disabilities Rights Law 2018
                                                                   state and local government public institutions, must
     (Anambra State of Nigeria 2018) came into force on
                                                                   reserve 1 percent of their workforce across different
     September 13, 2018. It provides for the full integration
                                                                   cadres for qualified persons with disabilities. It makes
     of persons with disabilities into society and prohibits all
                                                                   provisions for the fair treatment of employees who
     forms of discrimination and harmful practices against
                                                                   acquire permanent impairments whether in the course
     persons with disabilities, including the imposition of
                                                                   of duty or otherwise.
     fines and/or imprisonment. Under this law, a person
     with a disability who experiences discrimination can          The Anambra State Disabilities Rights Commission, as
     instigate a civil action against the perpetrator and is       established by the law, will implement it and monitor
     entitled to unconditional free legal aid provided by the      compliance. The principal officers of the commission,
     government, as needed.                                        who will work in part-time positions, will be selected
                                                                   from a variety of stakeholders, including organiza-
     The law mandates the prioritization of persons with
                                                                   tions of persons with disabilities, the civil society, and
     disabilities in welfare, social development, poverty
                                                                   relevant government ministries. The law mandates that
     reduction, and related programs, as well as the provi-
                                                                   half of the commission’s staff members be persons with
     sion of social security to persons with disabilities age 60
                                                                   disabilities.
     and older. It affirms the rights of persons with disabil-
     ities to access public buildings and places; and man-
                                                                   Anambra State Office of the Governor on
     dates that roads, sidewalks, and pedestrian crossings         Disability Matters
     be accessible to persons with disabilities. During a five-    The Anambra State Office of the Governor on Disability
     year transition period, public buildings and facilities       Matters was established in December 2016, following
     must be made accessible.                                      the appointment of Senior Special Assistant to the
     The law protects the rights of persons with disabilities      Governor on Disability Matters Barr. Chuks Bertrand
     to public information and communications in acces-            Ezewuzie by the Executive Governor of Anambra State,
     sible formats, including the free use of assistive tech-      His Excellency Dr. Willie M. Obiano. The office was
     nologies to facilitate same. It provides for accessible       established to:
     transportation facilities, including free transport for        	 Ensure employment opportunities for qualified per-
     assistive devices and the right of persons with disabil-         sons with disabilities in the state;
     ities to drive and to reserved parking spaces. The law
     upholds the right of persons with disabilities to educa-       	 Prevent all forms of discrimination against persons
     tion through special education and inclusive education           with disabilities in society;
     and provides for scholarships; learning support; and           	 Formulate and implement disability-inclusive poli-
     a curriculum that is inclusive of braille, sign language,        cies in Anambra State;
     and augmentative and alternative communication.
                                                                    	 Promote self-reliance and entrepreneurship among
                                                                      persons with disabilities; and




84   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
 	 Provide support to NGOs and motivate public-pri-            	 Free transportation for persons with disabilities in
   vate partnerships to benefit persons with disabilities        state-owned vehicles; and
   living in the state.
                                                               	 Harmonization of the activities of the disability clus-
The Anambra State Office of the Governor on Disability           ter organizations, NGOs, and the government.
Matters has six principal officers—the senior special
                                                              Contributing factors to implementation progress
assistant to the governor on disability matters; the
                                                               	 The state governor had the political will to
special assistant to the governor on sign language and
                                                                 strengthen disability inclusion.
communication; the executive assistant to the governor
on disability services; the program coordinator; the           	 An experienced senior special assistant to the gov-
administrative and accounts officer; and the program             ernor on disability matters was appointed who is
and service coordinator. Seventeen staff members work            able to establish platforms for coordinating disabil-
in this office. Nine (53 percent) are persons with disabil-      ity inclusion activities among the various disability
ities, four of whom (44 percent) are women.                      stakeholders in the state.

Implementation progress                                        	 Persons with disabilities participate in and provide
The implementation of the Anambra State Disabili-                leadership for governance.
ties Rights law has not begun because a commission
                                                               	 The principal government officials collaborate with
has not yet been established. However, the state has
                                                                 the Ministry of Social Welfare, Children and Women
been embarking on some disability inclusion activities
                                                                 Affairs.
through the Anambra State Office of the Governor on
Disability Matters in coordination with the Ministry of       Challenges
Social Welfare, Children and Women Affairs, which is           	 Funds to implement projects activities and tailored
currently responsible for disability-related issues in the       services are lacking.
state. Key achievements include:
                                                               	 The implementation of the Anambra State Disabili-
 	 The enactment of the Anambra State Disabilities               ties Rights Law is delayed.
   Rights Law;

 	 The employment of about 100 persons with
                                                              Ekiti State
   disabilities;                                              Ekiti State Rights of Persons with
                                                              Disability Bill 2013
 	 The appointment of five persons with disabilities in
                                                              The passage of the Ekiti State Rights of Persons with
   the governor’s cabinet;
                                                              Disability Bill 2013 would ensure the inclusion of per-
 	 The provision of tailored services for persons with        sons with disabilities into mainstream society and pro-
   disabilities, such as the establishment of a disability    hibit all forms of discrimination against persons with
   law center and access to a computer technology             disabilities in Ekiti State. The bill was drafted during Dr.
   center, and the recruitment of disability-related          John Kayode Fayemi’s first tenure as the state governor.
   specialists, such as sign language interpreters and        The state executive council ratified and forwarded it to
   braille instructors;                                       the house of assembly for its passage into law.




                                                                                             4. REVIEW OF FINDINGS           85
     It seeks to criminalize discrimination against persons         disabilities. Within one year of the enforcement of the
     with disabilities, including an optional fine for anyone       law, employers in the private sector with 20 or more
     or any organization violating its provisions. It provides      employees will receive incentives to ensure that at least
     for an accessible physical environment, transportation,        5 percent of their workforce comprises persons with
     information, communication, and technology. During a           disabilities.
     five-year transition period beginning at the date of noti-
                                                                    The bill provides for capacity development for the ade-
     fication of relevant standards and regulations, existing
                                                                    quate implementation and monitoring of its provisions,
     public buildings must be made accessible.
                                                                    including mandatory training in disability rights for the
     If the Ekiti State Rights of Persons with Disability Bill      members of the house of assembly, the police, judges,
     becomes law, it would provide an approach to the               lawyers, and legal officers; a disability component in the
     inclusion and prohibition of discrimination against per-       training of professionals and community workers; tai-
     sons with disabilities that is more comprehensive than         lored capacity building programs for persons with dis-
     similar laws. The bill provides for legal capacity and         abilities, families, caregivers, and community members;
     guardianship of persons with disabilities, which means         and the promotion of disability studies and research in
     it addresses the concerns of persons with intellectual         tertiary institutions.
     disabilities better than the country’s existing disability
     laws. It includes affirmative actions related to agricul-      The bill also provides for the constitution of a commit-
     tural land and housing, poverty alleviation, and the           tee for persons with disabilities comprising a chair-
     allotment of land. It criminalizes all forms of violence       person and six members. The committee would be
     and abuse of persons with disabilities, including jail         responsible for monitoring the implementation of the
     terms for offenders.                                           provisions of the law, if passed. It will have to liaise with
                                                                    the Ekiti State Citizens’ Rights Centre to discharge its
     The bill is very clear on the role of state and local educa-
                                                                    functions.
     tional institutions and governments in providing inclu-
     sive education to learners with disabilities. It further
                                                                    Ekiti State Office for Disability Affairs
     provides for the inclusion of persons with disabilities
                                                                    The administration of Dr. John Kayode Fayemi estab-
     in adult education, vocational training, and self-em-
                                                                    lished the Ekiti State Office for Disability Affairs on
     ployment programs. Government institutions of higher
                                                                    December 24, 2018. The office is primarily responsible
     education and higher educational institutions receiving
                                                                    for providing essential services and psychosocial inter-
     aid from state governments must reserve 5 percent of
                                                                    ventions to persons with disabilities. The functions of
     the seats in every class for students with disabilities,
                                                                    the office are to:
     and students with disabilities must then be allowed to
     compete for the remaining nonreserved seats.                    	 Promote the rights of persons with disabilities;

     Each state government Ministries, Departments and               	 Motivate persons with disabilities to be self-reliant;
     Agencies (MDAs) must reserve at least 5 percent
                                                                     	 Facilitate the acquisition of working tools and
     of available vacancies for persons with disabilities,
     with allocations distributed across the major types of            mobility aids; and




86   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
 	 Encourage persons with disabilities to maximize          Disability Legislation and Policies in
   their potential.                                         South Africa—A Case Study
The Ekiti State Office of Disability Affairs has four       During the apartheid regime, South Africa adopted
principal officers: an executive secretary, a director of   the charity and medical models of disability, whereby
disability affairs, a director of administration and sup-   persons with disabilities only accessed rehabilitation
plies, and a director of finance and accounts. It has a     and habilitation services and social grants (Republic
total of 27 staff members, six of whom (22 percent) are     of South Africa 2016). Services such as education and
persons with disabilities, and 3 of whom (50 percent)       employment were segregated for children and adults
are women with disabilities. The office is under the        with disabilities.
supervision of the State Ministry of Women Affairs and      Today, South Africa lacks a comprehensive national
Social Development.                                         disability law but does have some national laws and
Achievements                                                policies that promote and protect the rights of persons
The Ekiti State Office of Disability Affairs:               with disabilities. For example, the Constitution of the
                                                            Republic of South Africa, 1996, states that “everyone is
 	 Facilitated efforts to domesticate the Discrimination    equal before the law and has the right to equal pro-
   against Persons with Disabilities (Prohibition) Act      tection and benefit of the law.” It prohibits discrimina-
   2018 in collaboration with the Ministry of Justice;      tion on a number of grounds, including disability. The
 	 Monitored and supervised disability cluster organi-      constitution also recognizes South African Sign Lan-
   zations operating in the state;                          guage as the first language of hearing impaired South
                                                            Africans.
 	 Collaborated with NGOs working on disability
   inclusion;                                               The Promotion of Equality and Prevention of Unfair
                                                            Discrimination Act (PEPUDA) 2000 (Republic of South
 	 Employed 55 persons with disabilities in the state       Africa 2003) is a law to give effect to section 9 of the
   government.                                              South African constitution. The law prohibits unfair
 	 Maintained inmates at the state rehabilitation cen-      discrimination and harassment, promotes equality,
   ter; and                                                 eliminates unfair discrimination, and prevents and pro-
                                                            hibits hate speech. It mandates the removal of barriers
 	 Rescued and repatriated beggars, the destitute, and      and acts to ensure that persons with disabilities can
   persons with mental impairments to their states of       fully participate in society.
   origin.
                                                            Similarly, the National Development Plan 2012 (National
Challenges                                                  Planning Commission 2012) envisages a country that
 	 There is a shortage of resources and amenities.          has eliminated poverty and reduced inequality by 2030.
 	 There are an inadequate number of professional           The plan affirms the need for the integration of disability
   social workers.                                          inclusion into all facets of planning by adopting a tailored
                                                            approach. Sector-specific legislation and policies that cut
                                                            across sectors such as education, health, employment,




                                                                                           4. REVIEW OF FINDINGS           87
     and social protection address the needs of persons with        development of new sectoral policies, programs, budgets,
     disabilities as part of the mainstream or as a group.          and reporting systems to fulfill South Africa’s constitu-
                                                                    tional and international treaty obligations. It lays out
     A contributing factor to disability inclusion is the active
                                                                    benchmarks for the removal of barriers to access.
     participation of all previously marginalized and vulner-
     able groups, including persons with disabilities repre-        The white paper holds to account multiple stakehold-
     sented by organizations of persons with disabilities in        ers, including duty bearers and right-holders (persons
     the transformation agenda of democratic governance             with disabilities and their families) for ensuring equal
     in South Africa. This effort was operationalized through       opportunity for persons with disabilities at all levels
     the establishment of the first disability program in           of government. It commits duty bearers to ensuring
     the Office of the Reconstruction and Development               implementation of existing legislation and policies;
     Programme, leading to the formal establishment of              upholding the rights of persons with disabilities; facili-
     the Office on the Status of Disabled Persons in the            tating access and participation in planning, budgeting,
     Presidency, which is responsible for monitoring the            and service delivery; recognizing the right to self-repre-
     implementation of the White Paper on an Integrated             sentation; acknowledging the differences occasioned by
     National Disability Strategy (1997) in all government          the intersection of disability with gender, age, sexuality,
     departments and facilitating disability mainstreaming          religion, culture, and geographic location; and embed-
     across the public sector and civil society.                    ding the obligations in the United Nations Convention
                                                                    on the Rights of Persons with Disabilities in legislation,
     The Disability Rights Charter of South Africa 1992,
                                                                    policy, and service delivery.
     developed by Disabled People South Africa, has been
     the benchmark for all future legislation, programs,            To achieve its purpose, the white paper builds on
     and projects on disability in South Africa, including          nine strategic pillars that span accessibility and par-
     the White Paper on an Integrated National Disability           ticipation; protection of rights of persons at risk of
     Strategy and the White Paper on the Rights of Persons          compounded marginalization; support to sustainable
     with Disabilities.                                             integrated community life; empowerment of children,
                                                                    women, and youths with disabilities; reduction of eco-
     The White Paper on the Rights of Persons
                                                                    nomic vulnerability; strengthening the voice of persons
     with Disabilities
                                                                    with disabilities; building a disability-equitable state
     The White Paper on the Rights of Persons with Disabil-
                                                                    machinery; promoting international cooperation; and
     ities (Republic of South Africa 2016) is a comprehensive
                                                                    providing monitoring and evaluation.
     document that brings together provisions to promote
     and protect the rights of persons with disabilities from       The monitoring and evaluation pillar entails the elab-
     existing legislation and policies to fulfill the obligations   oration of an implementation plan for each strategic
     of the United Nations Convention on the Rights of              pillar, including outcome indicators to measure imple-
     Persons with Disabilities. It endorses mainstreaming as        mentation impact on the lives of persons with disabili-
     the primary approach to realizing the inclusion rights of      ties and their families. An implementation matrix lays
     persons with disabilities while providing guidelines for       out targets to achieve by 2030, including the enactment
     disability mainstreaming and a review of existing and the      of national disability-specific legislation. Every five




88   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
years, the South African Human Rights Commission             	 Strong disability movement. South Africa’s disabil-
is to publish an annual progress report of the white           ity movement is robust, united, and committed. The
paper’s implementation and to conduct an in-depth              movement has assumed a leadership role in terms
review of its impact.                                          of lobbying and advocacy to ensure the implementa-
                                                               tion of disability provisions in the available policies
Disability-related issues used to be under the supervi-
                                                               and legal instruments.
sion of the social development department, which is
responsible for social welfare, suggesting that disability   	 Implementation matrix. The White Paper on
used to be considered a welfare-related issue. How-            the Rights of Persons with Disabilities includes
ever, responsibilities for disability-related matters were     an implementation matrix to monitor and evalu-
recently moved back to the president’s office, a widely        ate its progress, thereby holding the government
supported move among the disability community.                 accountable.

The White Paper on the Rights of Persons with Disabili-      	 Accountability to global and regional disability
ties has no legal authority, but the disability community      bodies. South Africa complies with the submission
in South Africa has been drawing on its and PEPUDA’s           requirements of reports to global and regional plat-
provisions for years to uphold the rights of persons           forms on disability, such as the Committee on the
with disabilities. While the white paper is relatively         Rights of Persons with Disabilities and the African
comprehensive as described above, PEPUDA is a legal            Union, which has helped track the progress made
instrument with a disability component. Anecdotal and          implementing the legal frameworks such as the
published indications suggest that the implementation          United Nations Convention on the Rights of Persons
for both is slow (HRW 2015, 2019; CRPD 2018), but              with Disabilities as domesticated through the White
implementation efforts of existing provisions offer the        Paper on the Rights of Persons with Disabilities.
following lessons:
                                                             	 Direct link to the presidency. Disability issues
 	 Political will. The government of South Africa’s            are better prioritized and treated as human rights
   post-Apartheid transformation agenda has focused            issues by having direct contact to the office of the
   on race, gender, and disability; and in some ways,          presidency rather than being under the social devel-
   this commitment has helped drive the country’s              opment department, which suggests a charity- or
   disability agenda.                                          welfare-based approach.

 	 Political participation. A major impetus for imple-
   menting disability policies and legal frameworks is
   the participation of persons with disabilities as par-
   liament members and their engagement in political
   issues of national interest, including those that focus
   on disabilities.




                                                                                          4. REVIEW OF FINDINGS          89
5. Conclusions and
Key Recommendations
The findings of this rapid social assessment of the             Capacity Development
socioeconomic status of persons with disabilities in
Nigeria indicate that their access to basic services is         Capacity development is crucial to improving on the
wholly inadequate and that deeply ingrained and wide-           current disability inclusion principles and practices in
spread attitudinal barriers across the country signifi-         various sectors of the economy. Capacity development
cantly contribute to their exclusion from all sectors of        efforts should target various stakeholders who will be
the economy. Policies and legal frameworks to promote           responsible for addressing the needs of persons with
and protect the rights of persons with disabilities are         disabilities, including:
either nonexistent or poorly implemented. The current           	 Duty bearers. Duty bearers are government offi-
institutional landscape is poorly adapted to disabil-             cials, policy makers, and decision makers at the
ity-inclusive development. To advance the status of               helm of state affairs. Gaining their buy-in for the pri-
persons with disabilities in the country, substantial             oritization of disability inclusion will require raising
improvements are needed in the areas of disability                awareness of the disability concept; the importance
advocacy, disability data, capacity development, pro-             of disability as a development issue, including the
vision of assistive devices and technology, and stigma            link to development instruments like the Sustain-
reduction. Key recommendations based on the study’s               able Development Goals; Nigeria’s commitment to
findings are summarized below.                                    disability inclusion; the practical implications of the
                                                                  Discrimination against Persons with Disabilities
                                                                  (Prohibition) Act 2018; the relevance of inclusive
                                                                  policies; the importance of data disaggregation by
                                                                  disability; and the costs of exclusion.




                                                           90
	 Service providers. These stakeholders need                     terms of disability inclusion. Specifically, they can
  expanded awareness of the concerns of persons with             receive training to become trainers for disability
  disabilities, the various types of impairment, the             awareness, rights, and inclusion, ensuring a pool of
  definition of disability, data collection, the use of the      knowledgeable trainers who can collaborate with
  Washington Group questions, and legal frameworks               other stakeholders, such as the duty bearers, service
  on disability inclusion. Their capacity to provide             providers, and development actors. They may also
  disability-inclusive services tailored to their specific       need capacity development in disability advocacy,
  spheres is also essential. Negative attitudes among            community mobilization, and economic empow-
  service providers must be addressed in the context             erment. Organizations of persons with disabilities
  of awareness-raising and disability advocacy.                  and disability-focused organizations may also need
                                                                 capacity development in governance, leadership,
	 Development and humanitarian actors. Much of
                                                                 and accountability, which would help them attract
  the development and humanitarian aid that comes
                                                                 disability funding that they can use to implement
  into Nigeria is in the form of programs implemented
                                                                 relevant projects. Currently, most are probably not
  by development actors, including disability-fo-
                                                                 strong enough to receive funds for meaningful proj-
  cused organizations. This study’s findings suggest
                                                                 ect implementation.
  that there are gaps in such programming related to
  disability inclusion. It would therefore be valuable to
  develop the skills of the development actors regard-        Establishment of National
  ing the principles and practice of disability-inclusive     and State Platforms for
  project management. They also need more skills
                                                              Disability Inclusion
  to collect disability-disaggregated data using the
  Washington Group questions. Advocacy efforts will           There is currently a gap in the coordination of disability
  vital to gaining the commitment of top manage-              inclusion in Nigeria. JONAPWD is in the best position to
  ment regarding disability inclusion and to promote          lead a coordinated effort but seems to lack the neces-
  organizational practices that will serve as a basis for     sary capacity at present. A coordinated platform could
  sustainable and inclusive programming,                      help organize pressure groups to push for a disabili-
                                                              ty-inclusion agenda through partnerships; collabora-
	 Persons with disabilities and their organiza-
                                                              tions; networking; resource mobilization; technical
  tions. With the current drive for disability-inclusive
                                                              support; advocacy; and capacity development, including
  programming, occasioned by Nigeria’s increasing
                                                              knowledge sharing and transfer. Intersections between
  commitment to disability inclusion, there will likely
                                                              disability and other marginalizing issues could be more
  to be a surge in the demand for expertise in dis-
                                                              deeply explored and addressed through such platforms,
  ability-inclusive works. There is currently a dearth
                                                              which could be established in a variety of sectors. The
  of such expertise in the country. It will therefore
                                                              states should establish their own platforms as well, with
  be crucial to develop the capacity of individuals
                                                              each comprising mainstream organizations, organi-
  with disabilities, their parents and caregivers,
                                                              zations of persons with disabilities, disability-focused
  and organizations of persons with disabilities in
                                                              organizations, and other relevant interest groups. These




                                                                 5. CONCLUSIONS AND KEY RECOMMENDATIONS                    91
     mechanisms would help organize and track disabili-           	 Role modeling and showcasing of persons with
     ty-inclusive initiatives, resources, donors, and actors in     disabilities;
     the various sectors, and ensure the efficient and effec-
                                                                  	 Awareness-raising and public education on the
     tive use of available resources. They could also influence
                                                                    causes of impairments, with a focus on different
     the formulation and implementation of policy and the
                                                                    types of impairments, particularly albinism, leprosy,
     implementation of the disability law.
                                                                    mental illness, and developmental impairments;

                                                                  	 Affirmative actions by religious, traditional, and
     Medium- or Large-Scale                                         opinion leaders;
     Local Manufacturing of
                                                                  	 Public enlightenment and sensitization on disability
     Assistive Devices
                                                                    inclusion through the media;
     Assistive devices are expensive because they are usu-
                                                                  	 Disability mainstreaming into community develop-
     ally imported into Nigeria. A few local manufacturers
                                                                    ment committees and formation of disability-inclu-
     produce devices on a small scale, often using outdated
                                                                    sive community development committees where
     technology and designs that may not suit the users.
                                                                    there are none;
     Therefore, to address the lack of available, affordable,
     and appropriate assistive devices, medium or large-scale     	 Promotion of participation and leadership of per-
     local manufacturing of assistive devices should be estab-      sons with disabilities in community activities and
     lished, beginning in a few places. This could address the      decision making;
     country’s gross unmet needs for assistive devices. The
                                                                  	 Positive representations of persons with disabilities
     training of some people to manage the production may
                                                                    in the media; and
     also be necessary as expertise is also lacking.
                                                                  	 Formation of community level support and advo-
                                                                    cacy groups.
     Stigma Reduction
     Stigma is a major attitudinal barrier that precludes
     persons with disabilities from accessing basic services
                                                                  Disability Data Generation
     and from participating in mainstream society. Mea-           Disability data generation is the bedrock of planning
     sures are needed to reduce the stigma associated with        and design for disability inclusion. The dearth of
     misconceptions and negative attitudes around disabil-        disability data in Nigeria is worrisome. Advocacy for
     ities and persons with disabilities in Nigeria. Interven-    collection of disability-disaggregated data that targets
     tions around this should target households; community        relevant stakeholders, such as the Nigeria Bureau of
     members, including religious, traditional, and opinion       Statistics and National Population Commission, should
     leaders; school staff; members of the media; and the         be intensified. Capacity development for disability data
     members of the general population. Adopting the fol-         collection using the Washington Group questions is
     lowing strategies might benefit interventions:               crucial and should be prioritized. Advocacy is needed




92   DISABILITY INCLUSION IN NIGERIA: A RAPID ASSESSMENT
to encourage the collection of disability-disaggregated       Funding
data in the Health Management Information System
and Education Management Information System and in            Funding of disability inclusion activities must be prior-
all national surveys and surveillance operations.             itized through dedicated budgetary allocations for the
                                                              ministries, departments, and agencies; for the proposed
Strategic frameworks and implementation guidelines            Disability Rights Commission; and for all government
for policies should also include a mix of disability-inclu-   planning, implementation, and monitoring and eval-
sive indicators and disability-specific indicators. Devel-    uation efforts. Similarly, all public and private actors
opment partners should require proposed grantees to           working on disability must allocate budgets to disabil-
demonstrate how their monitoring frameworks will              ity inclusion, without which they cannot achieve the
include disability indicators. They should mandate that       inclusion of persons with disabilities in their programs
grantees and implementing partners report on disabil-         and services.
ity issues.
                                                              Donors must prioritize disability inclusion in projects
                                                              that they fund, with accountability frameworks that
                                                              include disability-specific indicators and reporting on
                                                              disabilities.




                                                                 5. CONCLUSIONS AND KEY RECOMMENDATIONS                   93
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C
D