WORKING PAPER SERIES NO. 2005-4   36394



            Human Development Sector Unit
            East Asia and the Pacific Region
            The World Bank




Reforming Health Social Security
            Proceedings of an
         International Seminar
            Elizabeth King
            Lynnette de la Cruz Perez
            Mario Taguiwalo
            with Yolanda Quitero



            June 2005

The World Bank
1818 H Street, NW
Washington, DC 20433
USA
Telephone: 202-473-1000
Facsimile: 202-477-6391

East Asia and Pacific Region
Human Development Sector Unit
http://www.worldbank.org

     REFORMING HEALTH SOCIAL SECURITY


        PROCEEDINGS OFAN INTERNATIONAL SEMINAR


Sponsored by the Global Security Institute, Keio University, and the World Bank
                             June 27-29, 2005
                                Tokyo, Japan

Table of Contents


Preface                                                                           i


Chapter 1: Choosing to Cover Comprehensive or Basic Medical
Services under Universal Social Health Insurance
      Should Providers Be Allowed to Extra-bill for Uncovered Services?           1

        Naoki Ikegami


        The Billing of Medical Services and the Financial Burden

               on Patients in Korea                                               13

        Soonman Kwon


        Summary of the Discussion                                                 24

        William Hsiao


Chapter 2: Financing Long-Term Care

        Financing Long-term Care: Lessons from 19 OECD Countries                  27

        Manfred Huber


        Long-term Care in Germany                                                 59

        Heinz Rothgang


        Sustaining Long-term Care Insurance in Japan and Beyond                   85

        John C. Campbell


      Summary of the Discussion                                                   98

      Kotaro Tanaka


Chapter 3: Increasing Public Expenditures on Health Care

        Increasing Investment in the UK-NHS: Some Policy Challenges               100

        Alan Maynard


        Re-casting Canadian Federalism: Health Care Financing in the New Century  112

        Joseph Wong

         Summary of the Discussion                                        136

         Joseph White

Chapter 4: Social Security in Rapidly Industrializing Nations

         Health System Issues, Challenges, and Options: Reflections on

                 China, India, and Kerala                                 147

         Kottilil Mohandas


         Summary of the Discussion                                        164

         Peter Berman


Chapter 5: Summary and Interactions of the Key Points

         Practical Issues in Priority Setting in Health Care              166

         Wendy Edgar


         Summary of the Discussion                                        172

         Michael R. Reich


APPENDICES

Appendix 1 � Program                                                      174

Appendix 2 � Biographies of Participants                                  181

Appendix 3 � Addresses of Participants                                    188


LIST OF WORKING PAPER SERIES, 2004-2006                                   192

                                                 Preface
     Reforming Health Social Security: The Proceedings of an International Seminar
    Sponsored by the Global Security Institute, Keio University, and the World Bank,
                                            June 27-29, 2005


                                              Naoki Ikegami
                                  Keio University School of Medicine


How important is health, and the most visible         organized.    About twenty experts from ten
means to maintain it, health care, important for      countries, Canada, China, Germany, India,
the security of the society? When Japan               Japan, Korea, Malaysia, New Zealand, the
legislated its first social insurance program for     United Kingdom and the United States, plus
manual workers in 1922, it was clearly stated         representatives from the World Bank and the
that the program had two purposes: to increase        OECD, attended the closed seminar. The
the wealth of the nation by maintaining the           participants   were   a    mix    of   academics,
health of the workers; and to serve as a              bureaucrats   and   one     politician,  but  all
stabilizing force to prevent a socialist revolution.  participants had practical experiences in making
This rationale was identical to that proposed by      health policy.      Their discipline included
Bismarck in nineteenth century Germany. After         economics, political science and medicine. The
its introduction, the concept of solidarity within    seminar consisted of six sessions over a three
each    social   insurance    pool,  whether     by   day period. All the sessions except for the last
workplace or community, and the financial risk        were closed to the public.      In the first four
protection they provided, turned out to be            sessions, the two papers (except for the second
popular with the voters which resulted in the         session which also included a short summary
eventual achievement of universal coverage in         from the OECD reports) for each session had
1961.                                                 been circulated in advance. Each presenter was
                                                      asked to use their limited time on the major
However, the original arguments for establishing      points that he or she would like to emphasize.
health care as a social security benefit are now      This allowed for two of the three hours in each
less compelling. The threat of a socialist            session to be spent on questions and answers,
revolution has vanished. The externalities            and on in-depth exchange.      These exchanges
arising from treating communicable diseases are       were skillfully handled by the chairs who had
insignificant compared with the amount spent on       been asked to prepare the main discussion points
health care. Most diseases now result from life       in advance.
style, which are more the responsibility of
individuals than of society, and their presence is    The first session focused on the crux of the
less likely than acute illnesses to cause             agenda for this seminar. Should the government
productivity losses. With the aging of society,       be responsible for only a "basic package" of
solidarity may also be eroding, as under a pay-       health care, leaving the rest to the market for
as-you-go system, a significant proportion of the     providers to deliver and patients to purchase?
premiums or of taxes goes towards paying for          The first paper from Japan described how this
the care of those who have retired, and not           proposal    was    vigorously     promoted    by
towards the care of those contributing. At the        economists and business leaders who opposed
same time, advances in medical technology have        the regulations prohibiting extra billing for
greatly increased the availability and use of         uncovered services and balance billing by
expensive     procedures,     leading     to   cost   specialists. However, a political decision was
escalations. Thus, the future of health social        made to not to go down this path, due in part to
security is threatened.                               the opposition raised by the Health Ministry and
                                                      organized medicine. In contrast, as described in
It was in this context that this international        the second paper, Korea did not have these
seminar on reforming health social security was       regulations from the time the social insurance

                                    Reforming Health Social Security:
          The Proceedings of an International Seminar Sponsored by the Global Security Institute,
                           Keio University, and the World Bank, June 27-29, 2005

was implemented. The survey results appeared            were thus perceived to be providing inferior care
to show that this had no effect on access to            when compared to neighboring countries,
providers but there were no data on health              continental Europe in the case of the UK, and
outcomes. Although it could be argued that the          the United States in the case of Canada. Second,
services to be covered by the public insurance          their expanding economies allowed them to
should be based on cost-effective analysis, what        increase funding for health care. Third, the
actually becomes covered tend to be mostly              political configurations that acted as a catalyst to
determined by fiscal reasons, as has been the           this decision. The main difference between the
case in Korea, and by political consideration.          two countries lay in the extent to which the
Thus, because of the lack of objective evidence,        central government had control over how the
providers could explain to patients that better         extra resources are being used.       In the UK,
outcomes could result if they were to purchase          although the funds are allocated proportionally
services not covered.       However, this would         to local purchasers, there are significant central
result in serious equity problems and the risk of       directions in the form of requirements to target
impoverishment for those who decide to                  on particular service areas, such as waiting lists,
purchase out-of-pocket.                                 and in the form of specific contract provisions
                                                        for providers. In contrast, in Canada, the way in
The second session focused on long-term care            which the funds were to be spent was left almost
(LTC), in particular, the projected and actual          entirely to the provinces, without even common
costs of LTC in the two countries that have             standards to measure any progress in the areas
recently made it a new pillar of social security,       that had been prioritized such as waiting lists.
Germany and Japan. Aging of society was the             However, both countries have singled out
common rationale in both countries but this was         waiting lists as an area for improvement because
not enough to explain why a new program was             they are more visible and of greater concern to
introduced in the midst of economic stagnation.         the general public than improvements in health
Pressure on the local government's public               outcomes, which have the further disadvantage
assistance program in Germany and the local             of having a time-lag between the time of
government's inadequacy in dealing with the             investment and the time of improvement. As a
rapid increase in the national government's             consequence, politicians tend to favor popular
funding of LTC in Japan were part of the reason.        concern, but objective measures of health
This difference may be why the benefit package          outcomes should also be considered when
is more stringent in Germany, with strict fiscal        allocating resources.
control built into the system, and more generous
in Japan, where expenditures were planned to            The fourth session was on China and India. One
expand. As a result, the future sustainability of       reason why social security is being reexamined
the LTC programs will rise from contrasting             in developed countries is the competition from
trends that are occurring in each country:              these huge two countries that have both shifted
eroding benefit levels in Germany, and rising           from a planned to a market economy. While this
expenditures in Japan. However, despite these           shift led to rapid advances in the economy, it has
caveats, establishing an independent LTC                also resulted in the gradual abandoning of a
program should lead to a more efficient                 health care system that had been owned and
distribution of social security benefits since LTC      operated by the state. This shift has been more
needs would not have to be delivered based on           abrupt in China, where the government initially
the egalitarian standards of the health care            succeeded in delivering services that achieved
system.                                                 substantial and widespread health improvements
                                                        for the population.         However, since the
The third session was devoted to the two                dismantling of the public system, health
countries, -- the UK and Canada --, that have           expenditures as a percentage of the GDP have
made an explicit policy decision to increase their      increased more but with little improvement in
health expenditures. The two countries came to          health outcomes. In India, the shift has been less
this conclusion for the same following reasons.         abrupt because health care has been defined as a
First, their health sectors were under-funded and       regional, rather than a national responsibility.



                                                    ii

                                   Reforming Health Social Security:
         The Proceedings of an International Seminar Sponsored by the Global Security Institute,
                          Keio University, and the World Bank, June 27-29, 2005

However, even in Kerala, which historically had        insurance and charges to patients to finance
a strong state commitment and had experienced          health care. After which, a digest of one paper
many early gains in health, economic pressures         from each of the four closed sessions was
have led to an increasing share of the private         presented: Professor Kwon on extra-billing and
sector,  largely   financed    by   out-of-pocket      balance billing in Korea, Professor Rothgang on
spending. Nevertheless, government leaders in          Germany's LTC insurance, Professor Wong on
both countries have become aware of the need           federalism and increased funding in Canada and
for a greater government involvement in health         Professor Wang on the inequity in the financing
care. A social insurance based system for urban        and delivery of health care in urban China.
areas and a community pre-payment based                After which, I presented a summary of the other
system for rural areas might be a solution for         papers and of the discussion that had taken place
China. The situation in India is likely to be          in the closed sessions.     Finally, there was a
more difficult, partly because of the lower base-      question and answer time for the approximately
line, and partly because the government has less       three   hundred    people    who    attended    the
power.                                                 symposium.

The fifth session began with a short presentation      This publication is organized in the following
on the abandonment in New Zealand of attempts          order. The papers for each of the five closed
to remove specific services from the publicly          session are in the order that they were presented
financed system, and the subsequent move               in the seminar. This is followed by the summary
towards establishing clinical guidelines.     This     of the subsequent discussion written by the
example was provided as a reminder that all            chairs of each session.          After this, the
policy decisions must ultimately lead to changes       biographical     sketches,   followed     by    the
in physician behavior at the clinical level. After     addresses, of all of the participants in the closed
the chairs of the four sessions presented the          session are placed. Since the public symposium
major lessons in each, the discussion then             covered the material already presented in the
explored two major themes that emerged from            closed sessions, we have not included its
the seminar: first, the role of values in health       summary. The power point presentations given
system reform; and second, the challenges              in the closed sessions have also been excluded
involved in the use of technical analysis in           because most were in color and would have been
policy debates.       Values drive all policy          difficult to read in a hard copy version.
decisions, including health care. When specific        However, they are available on the web, as are
ideas become the conventional wisdom, it is            the papers in this volume, with the exclusion of
hard for individuals to swim against the tide to       that of Professor Wang's. The website is listed
advocate a different approach, because any             below:                                 http://www-
inconvenient evidence that they may produce is         wds.worldbank.org/WBSITE/EXTERNAL/EXT
frequently ignored or misinterpreted. This trend       WDS/0,,menuPK:64187552~pagePK:64187825
raises the question of whether health service          ~piPK:64187925~searchMenuPK:64258546~the
research has actually any effect in the policy         SitePK:523679,00.html
debate. However, international comparisons and
lessons from other countries are the one way to        I would like to conclude by first thanking
predict both the intended and unforeseeable            Professor Hsiao for graciously serving as the co-
consequences of policy options. Therein lies the       investigator for this project to whom I owe
objective of holding this seminar.                     immensely. My thanks also go to the authors of
                                                       papers who responded patiently to my requests
The sixth and last session was a public                for more details and/or clarifications on the
symposium,     co-chaired   by   the Honorable         drafts, the chairs of each session who undertook
Takemi and Professor Campbell, to present to           the difficult role of summarizing the heated and
the informed public the main findings of this          complicated discussion, and the participants who
seminar. Professor Hsiao began by emphasizing          contributed to the discussion. I am also grateful
the risk of individual financial impoverishment        to the Global Security Research Institute, Keio
if reliance were to be placed on private               University, and the World Bank Tokyo Office,



                                                   iii

                                  Reforming Health Social Security:
         The Proceedings of an International Seminar Sponsored by the Global Security Institute,
                        Keio University, and the World Bank, June 27-29, 2005

which generously sponsored this seminar, and to      of the Global Security Research Institute, and
the Asahi Newspaper, the Japan Medical               my staff of Ms Naoko Tomita, Mr Naonori
Association and the National Federation of           Kodate and Dr Tomoko Shinoda-Tagawa for
Health Insurance Societies for supporting the        their tireless efforts.
open symposium. Finally, my thanks to the staff




                                                 iv

  Chapter 1: Choosing to Cover Comprehensive or Basic Medical Services
                         under Universal Social Health Insurance

 Should Providers Be Allowed to Extra-bill for Uncovered Services?Debate, Resolution
                                         and the Future in Japan

                                                Naoki Ikegami
                                    Keio University School of Medicine


Background                                              expenditures of the elderly.1 As a result of these
                                                        mechanisms, all Japanese are covered for the

Japan has an established universal, compulsory          same medical benefits by contributing about the

social health insurance (SHI) system for virtually      same ratio of their income as premiums, despite

all residents, to ensure that all of its citizens have  the differences in the income level and age

equitable access to necessary health care and are       composition of the participants in the various

protected from impoverishment due to medical            plans.2

expenses.     Under SHI, employees and their
dependents are covered by their employers'              A key feature of Japan's SHI is its payment

plans, while the self-employed and seniors are          system. All health insurance plans pay physician

covered by municipal plans.                             and hospital services and drugs according to the
                                                        same fee schedule. As Figure 1 shows, the fee

These plans can be grouped into three categories        schedule serves as the single "pipe" that controls

according to the level of subsidies that they           the flow of money from all insurance plans to all

receive from the government. Each category has          providers, with the exception of the subsidies

enrolled about one-third of the population. The         that the government gives directly to public

first category, which includes the Mutual Aid           sector hospitals. For patients, the fee schedule

Association (MAA), which is the plan for                defines their benefits package. For providers,

employees of government agencies, and the               the fee schedule specifies the fees and the

Society Managed Health Insurance (SMHI),                conditions under which they will be paid.

which is for employees of large companies,
receives no subsidy from the government. The            Biennial political negotiations between the

second category is a single plan managed by the         government (MHLW) and the Japan Medical

Ministry    of    Health,   Labor,     and    Welfare   Association (JMA) revise the fee schedule.

(MHLW), the Government Managed Health                   First, they negotiate the overall revised price

Insurance     (GMHI),      which      covers     those  rate. By doing so, they implicitly set a global

employed in small- to medium-sized companies            budget for health expenditures since the volume

and which receives a subsidy equivalent to 14
percent of its expenditures. The third category
consists of the plans established by the                1
municipalities, which are collectively called the         Each plan contributes an amount that they would

Citizens' Health Insurance (CHI) and which              pay if the ratio of elderly people enrolled in the plan

cover seniors and the self-employed.             They   were the same as the national mean. For example, a
                                                        plan in which the elderly consist of 3 percent of those
receive a subsidy equivalent to on average half         enrolled with expenditures amounting to $2 million
of their expenditures.       In addition to these       must contribute five times this amount, $10 million,
subsidies, all plans must contribute equally to a       because the ratio of elderly people in the entire
central   fund     that   finances     the    medical   population is 15 percent.
                                                        2 Plans in the first tier tend to have more benefits in
  The author would like to thank Professor William      areas other than direct medical care, such as more
Hsiao of Harvard University and Professor John C.       elaborate health screening and some reimbursement
Campbell of the University of Michigan for their        of any co-insurance that is not covered by the
helpful comments and edits.                             catastrophic program.

                    Should Providers Be Allowed to Extra-bill for Uncovered Services?
                               Debate, Resolution and the Future in Japan

                Figure 1: The Flow of Money in the Japanese Health Care System



                        Employers             Employees          Non-employees


                Premiums                                                            Taxes




                                                           Co-pays
                                                                                 Government

                            SMHI                                          CHI
                            MAA           GMHI


                                                 Fee schedule


                                         Private
                                         physicians'
                                         offices              Public sector

                                                     Private-    hospitals
                                                     sector
                                                     hospitals



              Note: SMHI Society Managed Health Insurance, MAA Mutual Aid Association, GMHI Government
              Managed Health Insurance, and CHI Citizens' Health Insurance.
              Source: Campbell and Ikegami, 1998

of services and drugs will remain essentially the           growth slowed precipitously beginning in the
same. Second, they revise each service fee and              early     1990s,    household     incomes      became
drug price so that the volume-weighted net effect           relatively flat, and corporate profits and
of these changes will be equal to the overall               government revenue declined. As a result, the
revised rate. The general rule has been that fees           ratio of health expenditures to GDP increased
for services that have sharply increased in                 from 4.6 percent in 1990 to 6.6 percent in 2002.4
volume, such as MRIs (magnetic resonance                    Even the moderate growth in health expenditures
imaging), should be reduced, while fees for                 became a financial strain, engendering a sense of
those services that the government wants to                 impending crisis.
encourage providers to provide more of, such as
home care, should be increased. This micro-                 To meet this challenge, the government and the
management of the fee schedule has helped to                JMA have kept price increases to a minimum in
contain costs and to favor primary care services            the biennial revision of the fee schedule.           In
over high-tech care to the advantage of both the            2002, they actually reduced the aggregated fee
MHLW and the JMA (Campbell and Ikegami,                     schedule by 2.7 percent, which resulted in a
1998).3                                                     decrease in total health expenditures for the first
                                                            time in history (Ikegami and Campbell, 2004).
This negotiated fee schedule caused health                  At the same time, patients also had to pay more.
expenditures to grow at a constant, moderate rate           The co-insurance rate for employees was
that kept pace with the growth of the economy               increased from 10 to 20 percent in 1998 and
during the 1980s. However, when economic
                                                            4 These health expenditure figures are estimates made
                                                            by the MHLW (Kokumin Iryouhi) and do not include
3 The executive members of the Japan Medical                capital outlays by the public sector. They are about 20
Association tend to be solo practitioners who are           percent below the OECD's figures for Japan's total
mainly concerned with increasing fees in the primary        health expenditures but are more relevant for fiscal
care field.                                                 purposes.


                                                        2

                      Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                 Debate, Resolution and the Future in Japan

from 20 to 30 percent in 2002,5 and the co-             equitable access to all necessary medical care
insurance rate for the elderly rose from a modest,      rather than a cash benefit to partially defray the
flat amount to a fixed rate of 10 percent (20           costs of such care as in an indemnity type of
percent for those with high incomes) in 2002.6          insurance.     Consequently, providers are in
The government has promised that there will be          principle prohibited from billing patients for
no further increases in the co-insurance rate, and,     uncovered services and drugs that are not listed
in any case, any such increases would not be            in the fee schedule (in other words, that are not
politically feasible.                                   part of the benefit package) or for conditions that
                                                        are not specified such as off-label prescribing.
However, these measures were insufficient to            Providers are also strictly prohibited from
prevent the premium rate from increasing; the           balance billing (in other words, charging
rate for the GMHI had to be raised from 7.2             additional fees over and above those set by the
percent to 8.2 percent in 2002.7          Employers     fee schedule).      When providers charge the
strongly oppose any further increases in this and       patient more than the prescribed co-insurance
other employment-based plans as they must pay           amount, the patient must pay the entire cost of
at least half of the premiums.           They have      the medical treatment out-of-pocket, not just the
complained that increases in health insurance           uncovered or balance-billed services.
and pension contributions have already made
labor costs in Japan less competitive than in           However, Japan established a list of exceptional
China and other rapidly industrializing countries.      services for which providers may charge
The option of increasing subsidies from the             patients. These uncovered services are called the
present level of about one-third of total health        "specified medical costs" (SMC) or Tokutei-
expenditures is also not viable because of the          Ryoyouhi. The Tokyo District Court ruled on
huge government deficit that has accumulated to         January 23 1989 that, although there are no
nearly 1.5 times GDP.        This public debt has       formal statutes that prohibit providers from
become a serious economic burden and is                 billing for uncovered services, this SMC
arguably retarding economic growth. With no             provision implies that providers are prohibited
other   way     to   meet    future    increases    in  from the uncovered services not specified in the
expenditures, the Finance Ministry finds the            SMC. The SMC list divides these services into
notion of limiting benefit coverage and making          two categories: high tech services that are still
patients pay more for services outside of the           being developed and services chosen by the
social insurance system very attractive.                patient.

Current Regulations Concerning the Billing              High-tech Services Still Being Developed
of Services
                                                        Extra-billing is permitted for a list of specified
Japan's SHI system had been based on the                high-tech services that are currently being
principle of providing a service benefit to ensure      developed in 128 designated hospitals. These
                                                        are mostly university hospitals. In order for a
5Thirty percent has been the rate for those enrolled in service to be included on this list, the provider
the CHI so this increase had the effect of equalizing   must submit a request to start providing this new
the co-insurance rate, albeit by increasing the rate    technical service. After the request has been
paid by employees.                                      approved, the hospitals are required to provide
6 These co-insurance rates are applicable up to the     data on the effectiveness of the service. Once its
catastrophic ceiling, which is about $700 per month     effectiveness has been established, it will be
for those with an average income. Those with low        listed in the fee schedule and become available
incomes and the elderly pay less, and those with high   for general use. So far, 165 requests to initiate
incomes pay more.                                       new high-tech services have been approved, of
7The basis for levying premiums was changed from        which 58 were proved to be effective and were
the person's standard monthly wage to all of his or     listed in the fee schedule and 10 were
her income, including any bonuses. The new rate of      discontinued, leaving 97 currently active. The
8.2 percent of all income would be the equivalent of    total cost of these services was 500 million yen
9.5 percent of monthly wages under the former           (US$5 million) in 2001 (Takeda, 2003).
method of calculation.


                                                       3

                      Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                   Debate, Resolution and the Future in Japan

                                                          Since 2002, in the case of repeat visits, the SMC
Services Chosen by the Patient                            is restricted to situations where the attending
                                                          physician offers to refer the patient back to a
Extra-billing services were limited to extra-             clinic but the patient refuses and wishes to
charge rooms when the SMC was created in                  continue to visit the hospital. Thus, very few
1984, but the scope has since been gradually              patients pay the SMC for repeat visits.
expanded. The items below are now classified as
extra-billing services with the year in which the         Clinical Trials of Drugs (1996) and Devices
service was listed in the SMC is noted in                 (2002). The cost of the trial is not covered but is
parenthesis:                                              paid by the manufacturer. Thus, this measure
                                                          does not affect the patient and only formalizes
Extra-charge Rooms (1984). The room must                  what had been the actual practice.
meet amenity standards set by the government.
As legislated, charges may only be levied if the          Surcharge co-payment amounting to 15 percent
patient requests an extra-charge room; hospitals          of bed and board charges when the length of stay
are not permitted to charge if the patient is             exceeds 180 days (2002).          This measure was
admitted to an extra-charge room because a                introduced to discourage patients from staying in
regular room was not available or because                 hospitals    for   non-medical      reasons.     The
isolation was necessary due to infection, for             surcharge is waived if the patient has a diagnosis
example. These limitations are not necessarily            of, for example, a neurological disease or a
strictly observed because most patients are not           spinal accident that would justify a prolonged
aware of their rights or are not willing to be            hospitalization on medical grounds.
assertive. However, the number of extra-charge
beds constitutes only 16 percent of all hospital          Drugs That Have Been Approved but Not Yet
beds, of which a majority (53 percent) have per           Listed (2002). This measure was introduced to
diem charges of less than 4,000 yen (MHLW,                cover the time lag of several months from when
2005).                                                    a drug has been approved for use but has not yet

Special Consultations with Appointments (1992).           been listed in the fee schedule.

Special consultation fees can be levied that allow
patients to be seen by physicians with no waiting         So it is clear that, by 2002, the SMC list had

time. However, since the hospital must maintain           remained very restrictive. However, the general

an alternate ambulatory service of the same               public was not aware of the impact of these

specialty without extra fees, only 97 hospitals           restrictions or of the rule that, if the provider

provide this SMC service.                                 were to extra-bill them for any services outside
                                                          of the SMC list, the patients would have to pay

Consultation Fees in Hospitals with 200 or More           the entire amount out-of-pocket.          Physicians

Beds. These measures were introduced to                   knew of the restrictions and resented the rigid

encourage patients to visit clinics instead of large      way in which they are implemented. However,

hospitals for ambulatory care.            Since 1996,     they     could     sometimes       circumvent     the

consultation fees are no longer covered for initial       prohibitions. For example, in the case of the

visits and are extra-billed for an amount set by          prohibition on off-label prescribing, which was

the hospital if the patient visits the hospital           the restriction most often faced by physicians,

without a referral.       However, there is little        they may add a secondary diagnosis of

difference between the extra-billed amount paid           "suspicion of" in the claims form, making the

by the patient and the co-insurance paid by               diagnosis not off-label. Alternatively, hospitals
patients coming with referrals in most hospitals.8        sometimes would only bill for the amount that
                                                          was within the limits set by the directive on
                                                          usage. Thus, although the restrictions were a
                                                          source of annoyance, most physicians did not
8 In order to make a functional differentiation           consider them to be a fatal defect of the system.
between clinics and hospitals, physicians in clinics
receive fees for writing letters of referral and those in
hospitals for replying. The co-insurance for these        is levied in most hospitals on patients who come to be
fees is about the same amount as the SMC charge that      treated without a referral.


                                                         4

                    Should Providers Be Allowed to Extra-bill for Uncovered Services?
                               Debate, Resolution and the Future in Japan

The exception to this may have been hospital         become more limited. Instead, they adopted the
specialists treating cancer and other serious        strategy of focusing on the negative outcomes
diseases.   From their perspective, it seemed        that resulted from restricting non-covered
unfair that new drugs that had produced dramatic     services to those listed in the SMC. They drew
results in patients with these conditions were       the attention of the public on the following
only available to patients who were able and         conditions under which patients are currently
willing to pay the costs of the entire treatment     required to pay for the entire costs of their
until the drugs had been tested and approved in      treatment:
Japan. However, their grievances and those of
their patients were ignored by both society and      �    If a drug or a use for a drug that has not yet
the media.                                           been approved in Japan is provided.            This
                                                     becomes particularly contentious when the drug
Offensive by Deregulation Proponents                 or drug use has already been approved in other
                                                     countries but not in Japan, due to delays in
In 2001, the Japanese government established         performing      clinical   trials  and    acquiring
the Economic and Fiscal Council and the              government approval.          The proponents of
Regulation Reform Council to restructure its         deregulation summoned cancer patients to the
economy. The Economic and Fiscal Council is          Regulation Reform Council's open forum to
Japan's top policymaking body, consisting of         testify about the burden of having to pay the full
key cabinet members and economists, and is           costs of their treatment.
chaired by the Prime Minister. The Regulation
Reform Council was given a broad mandate to          �    If more than the prescribed number of
put forward proposals for deregulation in all        treatment courses is provided.        The example
sectors of the economy, including transport,         cited was for the eradication of Helicobacter
agriculture, education, and health with the goal     pylori to prevent gastric cancer in which the
of   making    the   Japanese    economy      more   number of courses is limited to two (if a third
competitive.     The chair of the Regulation         was provided, then the patient must pay for all
Reform Council, Yoshihiko Miyauchi, is the           three courses).
CEO of an aggressively expanding insurance
company. Both councils were concerned about          �    If silicon implants for breast reconstruction
the growing fiscal deficit and looked at ways to     are used in conjunction with mastectomy for
contain public expenditures.       Their primary     patients with breast cancer.      Silicon implants
targets were the ministries that acted in collusion  have not been approved for listing in the fee
with trade organizations to maintain the status      schedule.
quo by preventing market competition. In the
health sector, they proposed that health services    �    If a preventative health measure, such as
be provided through a combination of SHI             vaccination for influenza, is provided during the
benefits and private payments under the banner       course of hospital inpatient treatment. Prevention
of deregulating Kongou Shinryou.                     is not covered by health insurance.

The Regulation Reform Council's seems to have        �    If interpreters are hired for patients who do
as its the long-term goal the restricting the        not speak Japanese.
benefits package of the SHI to the "basic health
services." This would be a major change from         By emphasizing the above examples, the council
the current principle of providing equal access to   pushed for deregulation that would allow
"all medically necessary services" for all           patients to select the services that they want after
Japanese.    The councils reasoned that this         they have evaluated the extra costs and benefits
change    would    not    only    contain   public   they will receive, based on the information
expenditures but would also encourage an             provided by the physician.
infusion of private funding that would better
meet the diverse needs of patients. In order to      They reasoned that providers would support this
achieve this objective, the Regulation Reform        proposed reform because it would allow them to
Council did not mount a frontal attack on the        extra-bill patients for any service not covered by
SHI system by proposing that its benefits should     the SHI system, whereas currently they can only


                                                   5

                      Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                  Debate, Resolution and the Future in Japan

extra-bill for exceptional services as defined in       The government has been withholding approval
the SMC. Those who oppose deregulation are              for drugs not because of cost considerations but
the MHLW officials, who are afraid of losing            for three other reasons - the postponement of
their power, and the JMA, which mainly                  clinical trials by pharmaceutical companies
represents solo practitioners who fear the              when they have other competing drugs (Li,
emergence       of   innovative     and     aggressive  2005), difficulties in conducting clinical trials,
competitors. Of course, their self-interest does        and the long time required by the government for
not preclude opposition on principle as well.           processing the approval requests. Also, clinical
                                                        trials have become more difficult because the
Critique of the Deregulation Argument                   patient's written approval is now required. One
                                                        way to shorten the approval time might be to
Proponents of the proposed extra-billing reform         charge pharmaceutical companies user fees, as is
claim that its aim is to remedy problems that           done by the Food and Drug Administration
currently exist in the SHI system, but it also          (FDA) in the US, but this may also have some
raises a serious equity problem that is not likely      adverse effects. It should also be noted that at
to be acceptable to the Japanese public. Public         least some of the restrictions are based on sound
opinion polls have shown that an overwhelming           evidence. In the case of limiting the number of
majority of the public is opposed in principle to       treatments for eradicating Helicobacter pylori to
a system in which a patient's ability to pay            two, increasing the number of treatments to three
determines the quantity and quality of services         is no more effective in preventing gastric cancer
that he or she receives, even if it may result in a     and actually increases the risk of lung cancer
net increase in social welfare (Tamura, 2003).          (Nagahara et al, 2002).10
The egalitarian principle in health care, as
opposed to the utilitarian principle, appears be        Second, it is too optimistic to assume that
deeply and universally ingrained. As a result,          physicians will provide impartial information to
the proponents of the market ideology tend to be        patients concerning the marginal costs and
limited to the political elite (Schlesinger, 2002).     benefits of the uncovered services, especially if
                                                        they are in a position to gain financially from
Aside     from     these   equity     concerns,     the providing such services. Moreover, the patient is
proponents'     argument      is   based     on    two  not likely to decline a service if the physician
assumptions.       The first assumption is that         recommends it.       Even in the United States,
patients have sufficient knowledge to decide            informed consent tends to be more of a formality
what medical services they need. The second             than a substantive process (Halpern, 2004), and
assumption is that medical care can be purchased        this is likely to be even more prevalent in Japan
in the same way as a consumer chooses options,          since Japanese patients are apt to defer to their
such as a CD player, when buying an                     physicians. It is also inconsistent for the council
automobile, whereas the two kinds of purchases          to   trust   physicians    to   provide     impartial
differ in many obvious ways.                            information to patients when offering uncovered
                                                        services while simultaneously criticizing the fee-
Thereafter, several arguments can be made               for-service form of payment in the SHI system
against the deregulation proposal.           First, the because it allows physicians to inflate costs. If
safety and effectiveness of drugs cannot be             uncovered services were to become available in
ensured by relying entirely on the approval             principle, there is no guarantee that patients
process in other countries because of the               would be able to choose based on their own
possibility of that drugs may have different            evaluation of the cost-effectiveness of the
outcomes if tested on different ethnic groups.9         service. The evidence needed for monitoring
                                                        this would also become more difficult to obtain
9 For example, the drug for treating lung cancer,       since providers would no longer be obligated to
Iressa, was first approved in Japan and had some        submit such data, as they are now required to do
dramatic successes. However, international data have
confirmed that it is not effective elsewhere, though     10As one of the three combination drugs used for
perhaps this is not the case for patients in East Asian eradication, metronidazole, increases the risk of lung
countries (Asahi, 1.21.05) The reverse situation is     cancer, a third treatment might cause more harm than
equally likely to occur.                                good.


                                                       6

                      Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                  Debate, Resolution and the Future in Japan

for the SMC high-tech services currently being          opponents' accusations struck home with the
developed.                                              public and made them feel uneasy about any
                                                        change. What was also confusing to the public
Third, patients with private insurance would not        was    that   the  proponents   of  extra-billing
have to pay the extra costs of the uncovered            maintained that the reform would decrease costs
services so they would not be taking costs into         to the patient, while opponents said it would
consideration when deciding among services.             increase costs. In reality, the former is true in
Although virtually all private health insurance is      the short term, since patients would have to pay
currently limited to cash benefits,11 it is very        only for the uncovered service instead of having
likely that such private insurance products would       to pay for the entire treatment. However, the
quickly be developed if uncovered services were         latter is true in the long term, because people
to become widely available, because people are          would end up having to pay premiums for both
generally risk-averse and would prefer to pay           SHI and private insurance.
premiums when they are healthy rather than
paying when ill. Moreover, the premiums for the         In the end, the following compromise was
"gap" insurance could be set at low levels since        reached on December 15, 2004 by the two
they would only apply to the uncovered services         ministers    concerned,   Hidehisa  Otsuji,   the
and the insurance providers would not insure            Minister of Health, Labor and Welfare, and
those who were a bad risk. Consequently, the            Seiichiro Murakami, the Minister in Charge of
inequity    that would stem from allowing               Regulation Reform:
uncovered services to be provided would be
likely to take the indirect form of people not          1. A special committee would be formed to
being able to purchase private insurance rather         decide within three months whether requests for
than the more direct form of patients not being         drugs that had not been approved or were
able to afford the services.                            currently off-label should be covered. Drugs and
                                                        drug uses that have been approved in other
The Political Compromise                                countries would automatically be subject to
                                                        deliberation. Since one reason why some drug
The inconsistencies in the proponents' arguments        uses remained off-label was that pharmaceutical
for opening up services for extra-billing were not      companies had been unwilling to incur the costs
presented to the general public in any coherent         of performing new clinical trials, physician
way. Rather, their opponents fueled fears that          groups were encouraged to undertake such trials
extra-billing would lead to the de facto                on their own initiative.     Approval for listing
dismantling of the SHI system in Japan and              would be decided within 60 days of the
transform it into a system like that in the United      completion of the trial, and during this period,
States. The JMA took the lead in defending the          the drug could be extra-billed as an uncovered
present system, partly on behalf of the public          service.
and partly because allowing extra-billing would
divide physicians into those who would be able          2. For new high-tech services that were not yet
to charge extra fees and those who would not.           listed, the current limitation applying to
                                                        designated hospitals would be abolished. The list
Not surprisingly, the public was confused by the        would also be broadened to include another 100
debate and so were the media. On the one hand,          new procedures that are not high-tech (such as
the proponents' publicity campaign raised               endoscopic resection of small bowel tumor).
awareness of the illogical and rigid aspects of the     However,     instead   of   an  across-the-board
present system. On the other hand, some of the          deregulation and evaluation after the provision
                                                        of the service, as proposed by the proponents,
11Because this would increase moral hazard, private     there would be specific criteria for each
insurance plans are not allowed to cover the co-        procedure that hospitals must meet prior to
insurance of the SHI system. Consequently, their        being permitted to provide the service in order to
benefits usually take the form of a per diem cash       ensure quality. In total, about 2,000 hospitals
benefit for inpatient care. However, these restrictions would be permitted to deliver one or more of
would not apply to uncovered services since they will   these services.    Hospitals meeting the criteria
not be part of the SHI benefit package.                 would be allowed to submit their proposal and,


                                                       7

                      Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                Debate, Resolution and the Future in Japan

except in special cases, such as genetic               only as an exception and not as a general rule.
engineering, which would require more time,
would be apprised of the decision within three         Implications of the Compromise and Future
months.     Once approval was given, hospitals         Scenarios
would be required to indicate clearly to the
public that the provision of the service was           Although the proponents of deregulation did not
subject to the patient's consent and to report their   succeed in making the billing of uncovered
performance to the government.                         services a general rule, they were able to draw
                                                       public's attention to the problems inherent in
3. For the provision of more than the                  restricting billing to the services listed in the
designated courses of treatment listed in the          SMC. The resulting compromise reform will
directives such as the third course to eradicate       broaden both the scope of the uncovered services
Helicobacter      pylori,   extra-billing   as   an    and the number of hospitals that will be allowed
uncovered service would be permitted if patients       to provide such services.           The process for
wished for it and gave their consent.                  allowing facilities to provide uncovered services
                                                       will also become more efficient and transparent,
4. It would be clearly specified that preventive       which should ultimately lead to more rapid
measures, such as influenza vaccination and the        coverage of new services by the SHI system and
use of interpreters for non-Japanese speakers,         consequent increases in expenditures.
would not be part of the covered services but
would be available to patients as extra-billed         What is more important, but is a question that
services.                                              has been left unanswered, is the fundamental
                                                       issue of how to finance even moderate increases
5. The SMC would be abolished and replaced             in health care expenditures, which are largely
by "Medical services under investigation for           due to the rapidly aging population, at a time
coverage" and "Medical services agreed and             when the prospects for significant economic
selected by the patient" in a revision of the          growth remain doubtful.
Health Insurance Act that was expected to be
passed by 2006. Some services, such as clinical        Since the situation has basically not changed, the
trials, that had been on the list of "Services         Regulation Reform Council will continue to
chosen by the patient" would now be assigned to        press for deregulation and may add a demand to
the former category.                                   allow balance billing. Regardless of whether or
                                                       not they decide to take the latter step, it will be
This was a political compromise that did not go        difficult to prohibit balance billing once
into the details of how this would work in             providers are allowed to bill for uncovered
practice, which were left to be worked out later.      services in principle. Balance billing has the
Regarding the encouragement of clinical trials         potential to raise much more revenue than just
under the initiative of physician groups under the     providing uncovered services. One reason why
first provision, it is unclear how funding and         it has not become an issue in Japan thus far is
logistical support will be provided. It will also      probably because, unlike in the UK or Germany,
be difficult to speed up the approval process          there are no professionally recognized elite
without increasing staffing in the government          groups of physicians;12 quality is associated with
agency concerned.         Regarding the second         hospitals rather than individual physicians. The
provision, specialist societies will have to           problem for balance billing purposes is that these
establish the specific criteria that hospitals must    high-quality hospitals tend to be in the public
meet for each of the procedures that are not
currently listed in the fee schedule, which will be    12This is because hospital vacancies tend to be filled
a cumbersome process. However, the important           by physicians sent by university clinical departments
fact is that it has been possible to eliminate some    over which hospitals have little control. Although an
of the worst anomalies in the system without           organization of the 22 specialties was established in
wholesale reform.       In this compromise, the        1981 and two-thirds of all physicians now have
proponents of deregulation did not achieve any         qualifications as specialists, only half have undergone
major breakthroughs since the billing of               formal training programs. The rest have been
uncovered services will continue to be allowed         grandfathered in.


                                                     8

                      Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                  Debate, Resolution and the Future in Japan

sector, which is subsidized to offset the low fees       increasing competition and providing alternative
charged for services. Because these hospitals are        examples of operations and management. In its
subsidized by tax money, the public would                campaign for deregulation, so far the Council
protest if better services were to be provided to        has won only a token concession. In 2003, the
those patients who were able and willing to pay          government decided to allow new investor-
for them.13 Because of this, the affluent have           owned hospitals only if they confined their
generally satisfied their health care quality            activities to high-tech services and if their
demands by giving gifts to renowned physicians           patients paid for the entire costs of their
in prestigious hospitals.       Since these eminent      treatment out-of-pocket.        Not surprisingly, no
physicians do not declare such gifts to the tax          one has applied to open an investor-owned
office, they might well prefer this traditional, if      hospital under these circumstances. However,
somewhat illegal, custom over formalized                 should the Council succeed in both of its goals �
balance billing.14                                       allowing extra-billing as a general rule and
                                                         opening the sector to investor-owned hospitals �
However, this situation may change.              Some    the door will be wide open to substantial
public-sector hospitals are currently being              privatization, including the expansion of "gap"
privatized as the national and local governments         insurance to cover balance billing.16 In order to
have become increasingly reluctant to provide             avoid this scenario, there are four possible
subsidies. Once subsidies are eliminated, some            options.
of these former public sector hospitals may
welcome balance billing as a way to survive               The first option would be to make the system
financially.                                              more efficient and less rigid by introducing an
                                                          inclusive form of payment. The reason that rigid
Another possibility is that the Regulation                rules, such as the across-the-board restrictions on
Reform Council may yet succeed in achieving its           the off-label prescribing of drugs and on the
other goal in which investor-owned hospitals              number of treatment courses, have been
play a leading role in the health sector. Since           necessary is that providers are basically paid on
1948,     only     the    government,       non-profit    a fee-for-service basis. One possible solution
organizations, physician-owned organizations,             would be to introduce a prospective case-mix
and physicians have been permitted to open                based on method of payment, which would give
hospitals in Japan.15 Members of the Regulation           providers more flexibility in choosing an
Reform Council, which became the Regulation               approach to treatment, while having the cost
Reform and Opening to Private Sector Council              fixed prospectively would tend to discourage and
in 2003, believe that allowing the creation of            decrease unnecessary expenses in treatment.17
investor-owned hospitals would increase the
efficiency of the delivery of health care by             Off-label prescribing of drugs could be allowed
                                                         in cases in which any additional costs could be

13 In national and local government hospitals, even
for extra-charge rooms that are allowed in the SMC,       16An independent type of insurance is unlikely to
the ratio of these services to all services provided is  emerge in Japan. Unlike the UK, there are no waiting
less than 10 percent.                                    lists; patients are seen on the same day and are
14It is not clear whether physicians who accept gifts    referred to affiliated hospitals should they need to be
provide better care since their case mixes are likely to admitted. Unlike Germany, opting out of the SHI
vary. Renowned physicians may yield poor outcomes        system is prohibited in Japan.        Social insurance
because they attract the most difficult cases. This      premiums are paid on incomes of up to $100,000 so
uncertainty may mitigate equity concerns but it also     those with high income would be likely to opt of the
raises the issue of whether a fair transaction has been  SHI system, which would make its fiscal status
made.                                                    worse.
15 Although hospitals that were established by            17 Inclusive payments with no case-mix grouping
companies for their employees prior to 1948 were         have already proved to be a failure. A flat rate of
allowed to continue to operate, their number has         payment for ambulatory care was introduced in 1994
steadily decreased. This demonstrates that investor-     but was abandoned in 2002 because physicians billed
ownership does not in itself lead to more efficient      light care patients at the inclusive rate and billed
management.                                              heavy care patients at the fee-for-service rate.


                                                        9

                     Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                 Debate, Resolution and the Future in Japan

compensated for by savings in other services and          in technology will occur, albeit mitigated by the
in which the prescribed use would lead to better          micromanagement of the fee schedule.
outcomes.      However, in order to introduce
prospective case payment, there would have to             The third option would be to increase both the
be reliable diagnoses, accurate medical records,          fees and the co-insurance rate for those hospitals
and standardization of practices. All of these            that have been evaluated to be of high quality.
conditions have yet to be met in Japan, which is          For example, fees for services (but not for drugs)
one reason why the introduction of this payment           could be set 10 percent higher than the current
method was limited to the 82 tertiary care                fee schedule rate, and the co-insurance rate for
hospitals in 2003.18 Thus, it is likely to take a         that hospital could be increased from 30 to 40
long time before prospective case-mix based               percent. Although the government has promised
payment becomes the norm in inpatient care and            that there will be no further increases in the co-
an even longer time before it becomes the norm            insurance rate, the number of hospitals affected
in ambulatory care because of the wider                   would be relatively small so it is likely that this
variation in practice patterns at that level.19 The       idea would be palatable to the public. There is
JMA would also have to change its position and            some precedent for this as the initial consultation
stop steadfastly insisting that fee-for-service is        fees for hospitals with 200 or more beds are not
the only way to maintain doctors' professional            part of the covered services and are listed in the
autonomy.                                                 SMC as uncovered services. The threshold for
                                                          catastrophic coverage could be lowered for those
The second option would be to continue cutting            with low incomes.      Hospitals would have an
the fee schedule. In the 2002 revision of the fee         incentive to improve quality but with the caveat
schedule, overall prices were cut by 2.7 percent,         that higher prices might not necessarily lead to
which led to a 0.7 percent decline in health              more revenue since volume might decline. This
expenditures. Another cut in prices could be              idea has yet to be proposed, but it might be a
made to further decrease health expenditures.             realistic alternative.
However, in the 2004 revision, as a result of
intensive lobbying by the JMA, a compromise               The fourth and last option would be to raise
was struck that set the overall revision rate at 0        premiums. Although I dismissed this option as
percent.    The effect of this compromise on              untenable at the beginning of this paper, it
expenditures is still not clear but, since                should be pointed out that premium levels in
expenditures have been increasing at an annual            Japan are well below those in Germany, even
rate of 1.8 percent as a result of aging and              when the subsidies from taxes are taken into
increases in population, they are likely to rise          consideration. Employers should note that, if
slightly. It would be unrealistic to aim for a            coverage by the public insurance comes to be
continuous round of cuts that would make it               perceived as inadequate, they will be forced to
possible to keep expenditures at the present level        take out private insurance on behalf of their
since, even though population growth is slowing,          employees if they wish to attract high-quality
the population is aging quite rapidly. Moreover,          personnel. The combined burden of public and
increases in expenditures as a result of advances         private insurance premiums might turn out to be
                                                          more than their current level of contributions as
18                                                        the situation in the United States clearly
   Even for these hospitals, there was a two-fold
difference in the average length of stay so the case-     illustrates.

mix based payment had to be set on a per diem basis
and with hospital-specific adjustments rather than on     Conclusion
an across-the-board per hospital stay basis. Of all
hospitals in Japan, only 18 percent use ICD coding        The decline in Japan's economic growth has
(MHLW Survey, 2004).                                      prompted some experts to propose deregulation
19 The task would be particularly difficult in Japan      as a way to decrease public expenditures and
because only 41 percent of all clinics claim internal     improve efficiency in many sectors.       In their
medicine or pediatrics as their main specialty, the rest  view, the responsibility of the government
being in the specialized areas of, for example,           should be limited to providing basic services,
orthopedics, surgery, ENT, psychiatry, and obstetrics     while individual patients should be left to decide
and gynecology (MHLW Survey, 2004).                       where to acquire other services based on their


                                                        10

                   Should Providers Be Allowed to Extra-bill for Uncovered Services?
                                Debate, Resolution and the Future in Japan

own evaluation of their marginal costs and             in economic growth in Japan.         If ensuring
benefits. The proponents of deregulation tried to      equitable access to all necessary health care
apply these rules to health care, and, as a            continues to be the government's primary goal,
strategy, they drew the attention of the public to     then efforts should be made to increase the
areas where the rigidity of the current                efficiency of the health care system and to raise
prohibition on the billing of uncovered services       premium levels.
appeared to be unfair and ridiculous.
                                                       The debate in Japan illustrates that, because the
Although they did not succeed in their goal of         general public favors egalitarian principles in
establishing the extra-billing of uncovered            health care, pro-market reform is likely to be
services as a general rule, the debate did result in   presented as an attempt to increase the number
a clarification of the services that are to be         of choices available to the public and scale back
covered and of the process for expanding               government control of the health sector rather
coverage to new procedures and drugs. This             than with the explicit aim of linking the quantity
increase in transparency is likely to aggravate        and quality of care to patients' ability and
the conflict between finite resources and infinite     willingness to pay. Whether or not this strategy
demand, which is already strained by the decline       succeeds will determine the future of health care
                                                       in Japan and in other countries.




                                                    11

                    Should Providers Be Allowed to Extra-bill for Uncovered Services?
                              Debate, Resolution and the Future in Japan

References

Asahi, 1.21.05. See footnote 9.
                                                     Nagahara A., et al [spell out other authors],

Campbell, J. C. and N. Ikegami, 1998. The Art        2002.     "Strategy    for  the  Retreatment   of

of Balance in Health Policy � Maintaining            Therapeutic Failure of the Eradication of

Japan's    Low     Cost   Egalitarian     System.    Helicobacter Pylori Infection." Journal of

Cambridge University Press.                          Gastroenterology and Hepatology, 115: 613-618
                                                     (in Japanese)

Halpern, S. A., 2004. "Medical Authority and
the Culture of Rights" Journal of Health             Schlesinger,     M.,   2002.    "On Values   and

Politics, Policy, and Law 29 (4, 5): 835-852.        Democratic Policymaking: The Deceptively
                                                     Fragile     Consensus    around   Market-oriented

Ikegami, N. and N. Campbell, 2004. "Japan's          Medical Care." Journal of Health Politics,

Health Care System: Containing Costs and             Policy, and Law 27: 889-925.

Attempting Reform." Health Affairs 23(3): 26-
36.                                                  Takeda, T., 2003. "The State of Specified
                                                     Medical Costs and the Future." Byoin (Hospital)

Li K., 2005. "Sabotage by Corporations."             62(7): 534-539 (in Japanese)

Shukan Iggakai Shinbun 2619: 3-4 (in Japanese)       Tamura, M., 2003. "Why does the General
                                                     Public Oppose the Introduction of Multi-tiered
MHLW, 2005. See p. 4                                 Health Care? Evidence from Survey Results."
                                                     Shakai Hoken Jynpou 2192: 6-15 (in Japanese)
MHLW Survey, 2004. See footnotes 18 and 19.




                                                  12

    The Billing of Medical Services and the Financial Burden on Patients in Korea

                                            Soonman Kwon
                                        Seoul National University

Health Care System and Policy in Korea20              personal health care expenditure, 37 percent, is
                                                      borne by households through out-of-pocket
Health Care Financing                                 payments (see Table 1).21

Korea has had social health insurance with            Health Care Delivery
universal coverage since 1989.         Before the
introduction in 2000 of Korea's financing reform      In Korea, physician clinics include inpatient
(which merged all insurance societies), there         facilities, mostly in surgery and obstetrics.
were three types of health insurance schemes: (i)     (Most graduates of medical schools get training
health insurance for industrial workers and their     as specialists, but most of those specialists
dependents, (ii) health insurance for government      practice as office-based physicians rather than
employees, teachers, and their dependents, and        specialists in hospitals). Those clinics compete
(iii) health insurance for the self-employed.         with hospitals, which have not only inpatient
There was no difference in the statutory benefit      facilities but also large outpatient clinics.
package among the three different types of            Making a clear distinction between the role of
insurance societies. Before the merger, health        physician clinics and that of hospitals will be a
insurance schemes consisted of more than 350          critical step in increasing the efficiency of health
non-profit insurance societies, which were            care delivery in Korea. Hospitals in Korea are
quasi-public agencies and subject to strict           divided into three categories � hospitals, which
regulation by the Ministry of Health and              have more than 30 beds, general hospitals,
Welfare. Each insurance society covered a well-       which have more than 100 beds in total and a
defined population group, and beneficiaries were      given minimum number of specialties, and
assigned to insurance societies based on their        tertiary hospitals. Most health care in Korea is
employment (employees) or residential area            currently delivered through private hospitals that
(self-employed).     There was no competition         are, in most cases, owned and managed by
among insurance societies to attract the insured      physicians. Less than 10 percent of all hospitals
and no selective contracting with providers. In       are in the public sector.       The expansion in
the case of industrial workers, employees and         demand for medical care that followed the
employers share the premium contribution              establishment of the NHI has been met by the
equally. In the case of the self-employed, the        growth in private providers. Any health care
government provides a subsidy.                        system that is dominated by the private sector
                                                      will put a very strong emphasis on profits and
In addition to co-payment for insured medical         the Korean system is no exception. Therefore,
services, the patient pays in full for uninsured      any attempt by the government to impose
services; this amount is substantial due to the       policies or regulations is met by resistance from
stringent benefit coverage. As a result, despite      these private health care providers.
the existence of the national health insurance
program (NHI), the role of public financing in        Payment Mechanisms for Providers
health care is still limited in Korea. The social
insurance programs related to health care             The NHI in Korea reimburses providers via the
account for only 44 percent of total personal
health care expenditure.         The majority of
                                                      21 Private insurance in Table 1 represents medical
                                                      expenses paid by automobile insurance. Private
    The author gratefully acknowledges research       health insurance is sold as part of life of liability
assistance from Jong-chan Chung.                      insurance, which pays a fixed amount based on
20 See Kwon (2002, 2003a and 2005) for detailed       diagnosis (for example, cancer) or per diem. As a
descriptions of the health care system and policy in  result, there are no reliable data on medical
Korea.                                                expenditures reimbursed by private health insurance.


                                                  13

              The Billing of Medical Services and the Financial Burden on Patients in Korea


regulated fee-for-service system. The fact that       Health Care Reforms in 2000
medical services have different profit margins
means that physicians may choose to provide           Merger of Health Insurance Societies
more services with higher margins, thus
distorting the appropriate mix of medical care        In 2000, all (social) health insurance societies
given to patients. Any distortion in the relative     were merged into one single national health
price of medical services affects the relative        insurer. The major driving forces behind the
supply of medical specialties in the long run.        reform were inequity in health care financing

The high fees charged in some specialties such        and the financial difficulties that were being

as ophthalmology and dermatology mean that            experienced by many health insurance societies
                                                      for the self-employed (Kwon, 2003c). Before
these specialties attract a far greater number of     the merger, social health insurance societies had
applicants for residency training than those that     different methods for setting contributions. The
are paid lower fees. Since 1997, a pilot program      contributions from the self-employed depended
has been operating in various health care             on their income, property, and household size,
institutions that volunteered to participate in       whereas income was the only basis for
which a DRG (Diagnosis-Related Group)-based           contributions    from    employees.          These
prospective payment is applied to a given             differences among insurance societies in the
number of disease categories. This DRG-based          method of setting contributions resulted in
payment system has proved to be effective in          horizontal inequity, in other words, people with
reducing lengths of stay, medical expenses, the       the same earnings received similar benefits but
average number of tests, and the use of               paid different social insurance contributions
antibiotics with no negative effect on quality as     depending on the insurance society in which
measured by complications and the need for            they were required to enroll.         This raised
further surgery (Kwon, 2003b).                        concerns about the unfair burden of social health
                                                      insurance.
Health Expenditure
                                                      The contribution as a proportion of their income
Korea spent 6.0 percent of its GDP on health          was a bigger financial burden for members of
care in 2002. Although this expenditure is low        the insurance societies for the self-employed in
compared with other OECD countries, it is             poor areas than for those in wealthy areas.
partly due to the rapid growth of Korea's GDP in      Many regional health insurance societies in rural
recent years. Since GDP growth in the future          areas got into serious financial difficulties. The
will not be as high as in the past, the proportion    revenue-sharing mechanism among insurance
of GDP spent on health care is expected to            societies did not rescue these rural health
increase. An aging population, no incentives for      insurance societies from financial insolvency
physicians to provide cost-effective care under       because the problem was structural in that the
the fee-for-service system, and the increasing        population of rural areas is always decreasing
demand for health care will also contribute to        and in poor health and the proportion of elderly
inflating health care costs.       Increased life     people in the local population is increasing.
expectancy along with the low fertility rate (1.17    Before the merger, many health insurance
percent in 2002) will lead to a rapidly aging         societies had too few enrollees to be able to pool
Korean population. Fiscal stability is a big and      the financial risks of their members efficiently
imminent concern for the NHI system in Korea.         and thus they were unable to take advantage of
The NHI as a whole has been in deficit since          any economies of scale in management.
1997, but the accumulated surplus delayed the
fiscal crisis until 2001.      The government's       Consequently, the      merging of all health
decision to allocate tobacco tax revenues to the      insurance societies has made it possible to pool
health insurance fund has improved the fiscal         risk on a national scale, thus reducing the
situation of the NHI system, but fundamental          administrative costs of each insurer. However,
reform is needed to ensure the long-term              in future, it will be necessary to assess
sustainability of health care financing in Korea      accurately the income of the self-employed to
(Kwon, 2006).                                         increase equity in health care financing across



                                                   14

              The Billing of Medical Services and the Financial Burden on Patients in Korea


                   Table 1: Public-Private Mix in National Health Expenditures
                                                                                   (Unit: %)

                   1989      1991     1993     1995      1997     1999     2000       2001

Government         8.4       7.9      8.1      9.7       10.5     11.6     11.1       10.9

Soc. Insurance     24.7      26.2     27.0     28.4      32.9     34.2     36.5       43.5

Public Total       33.0      34.1     35.1     38.1      43.4     45.9     47.6       54.4

Household          58.3      57.7     55.7     52.2      47.4     44.6     43.0       37.3

Priv. Insurance    2.9       2.8      2.9      2.6       2.5      2.7      2.9        2.2

Others             5.7       5.4      6.3      7.1       6.6      6.8      6.5        6.1

Private Total      67.0      65.9     64.9     61.9      56.6     54.1     52.4       45.6

Source: OECD Health Data 2004

the entire population. The financial solvency         has meant that these substantial profits from
and efficiency of the unified health insurance        pharmaceuticals are no longer available to
system hinges on its capability and willingness       physicians and hospitals.
to use its (monopsonistic) bargaining power over
providers as well as its managerial efficiency        Facing strong opposition from physicians and
and responsiveness to consumer needs.                 pharmacists, civic groups consisting mainly of
                                                      progressive academics and those who used to be
The Separation of Drug Prescribing and                active in the democratic movements during the
Dispensing                                            former military regime played a pivotal role in
                                                      formulating the pharmaceutical reform. They
Before the pharmaceutical reform in 2000, there       made the reform a major social issue and pushed
was no separation of drug prescribing and             the    presidents   of   the    Korean    Medical
dispensing in Korea. This meant that physicians       Association     and     Korean     Pharmaceutical
and pharmacists could both prescribe and              Association to agree on major reform issues
dispense drugs with little system of checks and       after several public hearings. However, there
balances in place to monitor prescriptions. This      were three nationwide physician strikes before
created financial incentives for both physicians      the reform was implemented, which pushed the
and pharmacists to over-prescribe drugs in ways       government     into   modifying     some   critical
that might not necessarily be in the best interests   elements of the reform package including
of patients. In addition, because no prescription     eliminating     the    principle     of    generic
slip was given to the patients, they had no           prescriptions. More importantly, the physician
information about the type and amount of              strikes pushed the government to raise the fee
medication that they were taking (Kwon,               for physicians' services by more than 40 percent
2003d). Since the fees for medical services were      as a compensation for physicians' income losses.
strictly regulated, dispensing drugs was more         Physicians also forced the government to defer
profitable for physicians than providing their        implementing the DRG pilot program in all
own medical services.       Physicians purchased      health care institutions. The role of civic groups
drugs at low costs and were reimbursed by             in promoting policy changes and the veto power
insurers at a much higher rate. This induced          of physicians is a very significant change in the
physicians to prescribe and dispense more drugs       health policy process, which had previously
in order to increase their profits. The mandatory     been dominated by bureaucrats and vested
separation of drug prescribing and dispensing in      interest groups (Kwon and Reich, 2005).
the reform of 2000



                                                   15

              The Billing of Medical Services and the Financial Burden on Patients in Korea


The Billing of Services                               much more than $2,500 in total before reaching
                                                      the ceiling.    Different socioeconomic groups
Social health insurance was first introduced for      probably have different patterns of using
employees in large corporations in 1977.              uncovered services because these services are
Coverage was incrementally extended until             essentially     private      commodities,      the
universal coverage was achieved in 1989.              consumption of which is affected by the ability
However, this rapid extension of coverage was         of consumers to pay for them. Some physicians
achieved at the cost of providing low benefits        may choose to differentiate their fees for the
for a low contribution, which was 4.3 percent of      uncovered services that they provide by taking
employees' salaries in 2005.         For services     into account their patients' ability to pay,
covered by the NHI, the co-insurance rate is          although there is no empirical evidence on this.
uniformly 20 percent for inpatient care. The co-      In theory, the patient can choose among
insurance rate is 40-50 percent for outpatient        different types of covered or uncovered services.
care in hospitals depending on what type of           However, there is asymmetry of information
hospital is concerned. Patients pay $3 per visit      between patients and physicians, and the
to physician clinics when the total expense is        patients' lack of information is a critical barrier
under $15, but when the total expense is over         to their ability to make a rational choice,
$15 per visit, the patient pays 30 percent            especially as the private market for uninsured
coinsurance. People over 65 years old and those       services is dominated by physicians. The fact
who need long-term treatment due to chronic or        that physicians rely on these uncovered services
catastrophic conditions (such as chronic renal
failure, hemophilia, leukemia, and cancer in          has been exacerbated by financial incentives

those under 18 years old) pay discounted              under the fee-for-service arrangements and the

copayments      for   outpatient    care.      The    dominant role that providers play in medical
coinsurance rate is uniform across different          decision-making.    As long as there is a big
income groups, except for those poor people           private market for medical care (in other words,
covered by the Medical Aid program. The fee           uncovered services) and the practice of extra
level is highest for tertiary care in hospitals and   billing, government policy has a limited impact
lowest for care in physician clinics because          because health care providers can easily
differential amounts are added to the uniform fee     substitute uncovered services for covered ones.
schedule depending on what kind of health care
institution is involved. Since 2004, there has        The government has extended the coverage of
been a ceiling of $2,500 within any given six         the benefits of the NHI over time. However, this
months on out-of-pocket payments for insured          extension    of   benefit   coverage   has   been
services.                                             accompanied by the rapid introduction by
                                                      providers of new services that are not covered
The NHI has allowed physicians to extra bill          by the NHI.       Health care providers prefer
patients    for   uncovered      services   as    a   providing uncovered services because they can
compensation for their fees being regulated.          charge (monopolistic) prices for them and avoid
Physicians can also extra bill patients for
uncovered drugs, which tend to be expensive but       having their fees regulated by the government.

whose effectiveness is uncertain (from the            Therefore, providers have always been opposed

insurer's perspective). Patients also pay in full     to the extension of benefit coverage because it
for drugs that are used more than the specified       means that more services are subject to fee
number of times (set by the insurer) or for off-      regulation.    Physicians can easily persuade
label use.    The NHI is a public monopsony           consumers to use more uncovered services by
(monopoly purchaser) but there is a huge private      giving them distorted information on the cost-
market in which providers can charge their own        effectiveness of different treatment and drug
(unregulated) price. The aforementioned ceiling       options. The rapid introduction of new services
on out-of-pocket payments applies only to the         has led to extensive use of those uncovered
copayment for covered services. Since the full        services.   As a result, patients have to pay
cost paid for uncovered services is not taken into    copayments for NHI-covered services and full
account in the ceiling, a patient may have to pay     payment for uncovered services within the same



                                                   16

               The Billing of Medical Services and the Financial Burden on Patients in Korea


medical episode. Patients are also required to         is the largest database of its kind in Korea. Since
pay a 100 percent copayment for a very limited         the data were reported directly by health care
number of covered services for budgetary               institutions, it was necessary to check the
reasons.                                               reliability of the data.      A sample of 1,922
                                                       patients, who were randomly selected from
Typical    payments     required   for   uninsured     among all discharged patients, was interviewed
services are for meals, extra charges for rooms        by phone. In the case of 94.8 percent of those
with fewer than six people, for uncovered high-        patients, there was no difference between their
technology care (for example, ultrasounds)22,          actual out-of-pocket payments and the amount
and for specialist care.          Many patients,       reported in the survey.
especially in tertiary care or teaching hospitals,
are forced to pay extra charges for rooms              Out-of-pocket Payments by Type of Health Care
because standard rooms with six patients are           Institution
short of supply. Patients should pay specialist
charge to specialists in hospitals who have more       A patient's average23 out-of-pocket (direct)
than 10 years of clinical experience after the         payment as a percentage of his or her total
certification of specialist board. Hospitals can       medical expenses per case is 43.6 percent, which
charge a specialist fee of up to 55 percent of         consists of a copayment for covered services
their consultation fee, 50 percent of their test       (22.3 percent), full payment for uncovered
fee, 100 percent of their anesthesiology fee, and      services (20.2 percent), and full payment for
100 percent of their surgery fee.       In theory,     covered services (1.1 percent) � see Table 2.
patients have a choice of doctors.       However,      The direct payment percentage is lower in
patients in tertiary care hospitals usually end up     medical care institutions than in dental care
paying a significant amount of specialist charge       institutions    and     in    traditional      medical
because most physicians in those hospitals are         institutions because the major expenditures in
eligible for the specialist fee.                       those cases (for example, prosthodontics and
                                                       traditional drugs) are not covered by health
Empirical      Evidence       on   Out-of-pocket       insurance. In medical care, the larger the health
Payments by Patients                                   care institution, the higher the percentage of a
                                                       patient's total medical expenses that consists of
Data                                                   the out-of-pocket payment.          In tertiary care
The National Health Insurance Corporation              hospitals, patients pay 56 percent of their total
recently    collected   data    on   out-of-pocket     medical expenses out of their own pockets.
payments made by patients in Korea (Kim and            Since physician clinics do not charge specialist
Chung, 2005). In theory, insurance claims made         fees and rely less on high-technology services
by health care institutions include information        than hospitals do, the share of patients'
on the total medical expenses associated with          payments that applies to uncovered services is
each    treatment    episode.      However,     the    much smaller in physician clinics than in
information on the patient's out-of-pocket             hospitals.
payments for uncovered services in the claim
data is not reliable. So a separate survey was         The average direct payment percentage is
needed to estimate the amount that patients pay        slightly higher in the case of inpatient care (45.1
in out-of-pocket payments. From data on all            percent) than of outpatient care (43.1 percent).
patient cases (both inpatient and outpatient)          However, focusing specifically on medical care
during March 2004, a national representative           (excluding dental and traditional medical care),
sample of 357 health care institutions was             the out-of-pocket percentage is higher in
selected using stratified sampling. This yielded       outpatient care than in inpatient care.             The
data on 1,214,823 cases from 173 health care           composition of the direct payment differs
institutions (response rate 48.5 percent), which

                                                       23 This is a weighted average, adjusted for medical
22 MRIs have been covered since 2005.                  expenditures of different types of health institutions.


                                                    17

              The Billing of Medical Services and the Financial Burden on Patients in Korea


         Table 2: Out-of-pocket Payments by Type of Health Care Institution (Unit: %)
                                              Out-of-pocket Payment by the Patient
              Type of Health     Paid by the                                           Full
              Care Institution   Insurer                     Copayment    Payment for
                                              Subtotal       for Covered Uncovered     Copayment
                                                             Services     Services     for Covered
                                                                                       Services

              AVERAGE            56.4         43.6           22.3         20.2         1.1

              Tertiary Care
              Hospital           43.8         56.2           20.8         32.7         2.7

              General Hospital   51.7         48.3           22.6         23.9         1.8

              Hospital           51.6         48.4           22.8         24.0         1.6

All           Clinic             67.5         32.5           24.3         8.1          0.1

              Dental Hospital    22.2         77.8           16.9         60.9         0.0

              Dental Clinic      38.3         61.7           15.6         45.8         0.3

              Trad Med Hosp      20.6         79.4           9.4          69.7         0.3

              Trad Med Clinic    66.4         33.6           19.5         14.1         0.0

              AVERAGE            54.9         45.1           16.3         26.5         2.3

              Tertiary Care
              Hospital           48.0         52.0           14.0         34.7         3.3

              General Hospital   57.0         43.0           17.5         23.4         2.1
Inpatient
              Hospital           54.3         45.7           18.8         25.3         1.6

              Clinic             72.1         27.9           17.8         9.6          0.5

              Trad Med Hosp      31.4         68.6           11.4         57.2         0.0

              AVERAGE            56.9         43.1           26.0         16.7         0.4

              Tertiary Care
              Hospital           36.0         64.0           33.5         28.9         1.6

              General Hospital   40.1         59.9           33.6         25.0         1.3

              Hospital           48.7         51.3           27.2         22.6         1.5

Outpatient    Clinic             66.4         33.6           25.9         7.7          0.0

              Dental Hospital    22.2         77.8           16.9         60.9         0.0

              Dental Clinic      38.3         61.7           15.6         45.8         0.3

              Trad Med Hosp      14.2         85.8           8.1          77.3         0.4

              Trad Med Clinic    66.4         33.6           19.5         14.1         0.0

      Source: Kim and Chung, 2005.




                                                   18

               The Billing of Medical Services and the Financial Burden on Patients in Korea


between inpatient and outpatient care.           In    of their consumption expenditure on health care,
inpatient care, the direct payment for uncovered       and 10 percent [6 percent] of the households
services is much bigger than the copayment for         spend more than 10 percent [15 percent]. The
covered services (with the exception of charges        concentration index of headcounts is negative
in physician clinics), while in outpatient care,       (in other words, occurs among the poor) when
the former is slightly lower than the latter. The      the threshold level is 5 percent, but it turns
huge payments for uncovered services in                positive (in other words, occurs among the rich)
inpatient care are partly the result of extra room     when the thresholds are 10 percent and 15

charges and charges for meals.                         percent.     This implies that having high
                                                       expenditure on health care as a proportion of
                                                       total   consumption     expenditure    may    not
Break-down of the Payment for Uncovered                necessarily have a catastrophic financial impact
Services                                               on households.      Since food expenditure is
                                                       essential for survival, the above analysis was
In the case of inpatient care, more than 55            also performed for consumption expenditures
percent of the patient's total payment for             excluding food. This analysis showed that 28
uncovered care consists of extra charges for           percent of the households spend more than 5
rooms with fewer than six people (23.5 percent),       percent of their consumption expenditure on
payments for meals (20.7 percent), and charges         health care and that 16 percent [10 percent] of
for specialist care (13.1 percent) � see Table 3.      the households spend more than 10 percent [15
In tertiary care hospitals, charges for non-           percent]. Moreover, the concentration index of
standard rooms and extra charges for specialist        headcounts is negative for all three threshold
care are the major elements of the patient's           levels (5, 10, and 15 percent), which implies that
direct payment for uncovered services.           In    having high expenditures on health care as a
general hospitals and in hospitals, payments for       proportion of total consumption expenditure
meals and extra charges for rooms account for          (excluding food expenditure) may indeed have a
half of the patient's payment for uncovered            catastrophic impact on poor households.
services.   In the case of outpatient care, the
largest slice of patients' direct payments for         Similar conclusions can be derived from the
                                                       same researchers' analysis of the impact on
uncovered services consists of charges for             poverty of health care expenditure. When the
medical technology (ultrasounds and MRIs) �            poverty line is set at one-third of average daily
see Table 4. Payments for tests also account for       expenses (the relative poverty line), 5.1 percent
a significant share of patients' direct payments       of the households are below the poverty line
for uncovered services. Patients' payments for         even before spending on health care.         This
outpatient care in tertiary care hospitals are         increases to 5.2 percent after medical care
heavily affected by charges for specialist care        spending,     which     implies    that  medical
because most doctors in those hospitals are            expenditure does not impoverish households.
eligible for the charge.                               However, this particular poverty line may be
                                                       unreasonably low. When the poverty line is set
Effects on Equity                                      at the level of the minimum expenses of living
                                                       (the national poverty line), the proportion of
Financial Risk Protection                              households below the poverty line increases
                                                       from 10.8 percent to 12.5 percent after spending
Due to high out-of-pocket payments for medical         on medical care, implying that household
care, the NHI in Korea may not be providing full       expenditure on health care impoverishes some
financial risk protection for the insured. Lee et al   households to some extent. Heavy out-of-pocket
(2003) analyzed the catastrophic impact of             payments at the point of service contribute to the
medical expenditure on households and its              potential   catastrophic   financial  impact    of
impact on poverty using data from the Urban            medical care on households.
Household Expenditure Survey fielded in 2000.
The researchers found that 21 percent of the           The reasons why medical care expenditures do
households surveyed spend more than 5 percent          not lead to widespread impoverishment despite



                                                    19

            The Billing of Medical Services and the Financial Burden on Patients in Korea


            Table 3: Payments for Uncovered Services in Inpatient Care (Unit: %)


            Extra
                                                            Ultra              Specialist
            Charge Meals Injection Surgery Test MRI                 Materials            Other Total
                                                            sound              Charge
            Rooms

AVERAGE 23.5       20.7 6.7         3.6      5.2    5.4      11.0   5.1        13.1      5.8   100.0

Tertiary
            28.8   9.9     6.2      2.3      5.6    6.4     5.4     6.0        25.4      3.8   100.0
Care Hosp

General
            23.4   27.3 8.0         3.1      3.5    5.9     5.3     6.9        10.2      6.5   100.0
Hospital

Hospital    22.3   33.8 6.6         8.2      7.2    6.2      2.2    3.1        0.0       10.3 100.0

Clinic      9.2    19.5 4.9         3.0      5.9    0.0      54.9   0.5        0.0       2.1   100.0

Trad Med
            17.1   23.7 1.0         3.5      0.6    0.7     0.1     0.2        6.8       46.4 100.0
Hospital

Source: Kim and Chung, 2005.


           Table 4: Payments for Uncovered Services in Outpatient Care (Unit: %)


           Medi                                            Ultra             Specialist
                 Injection Test Radiology CT        MRI            Materials            Others Total
           cation                                          sound             Charge

AVERAGE 5.1      10.3       18.8 3.3          3.7    5.6   24.4    9.3       3.2        16.3   100.0
Tertiary
           0.9   4.5        11.1 1.6          0.3   18.3 25.1      5.9       23.3       9.     100.0
Care Hosp
General
           1.0   3.5        11.7 1.4          1.9   27.1 34.3      5.3       4.3        9.6    100.0
Hospital
Hospital   0.3   13.2       21.3 2.0          1.8    18.3 20.4     0.9       5.3        16.4   100.0
Clinic     1.6   15.6       27.4 5.1          5.9    0.0   30.6    0.9       0.0        12.8   100.0
Dental
           0.0   0.0        0.0   0.1         0.0   0.0    0.0     76.6      0.0        23.2   100.0
Hospital
Dental
           0.0   0.0        0.0   0.0         0.0   0.0    0.0     84.5      0.0        15.4   100.0
Clinic
Trad Med
           62.8 0.0         1.8   0.0         0.0   0.0    0.4     0.0       3.8        31.0   100.0
Hospital
Trad Med
           43.7 0.0         0.0   0.0         0.0   0.0    0.0     0.0       0.0        10.9   100.0
Clinic

Source: Kim and Chung, 2005.


                                                 20

               The Billing of Medical Services and the Financial Burden on Patients in Korea


the existence of high out-of-pocket payments            expenditures in favor of the rich (positive values
need to be explored in the future. Although the         of HIwv in the case of medical care expenditure
percentage of out-of-pocket payments in total           in Table 5). This is the result of the high out-of-
household expenditure is high, this may not be a        pocket payments for the many services that are
great financial burden on patients in absolute          not covered by health insurance. It is likely that
terms thanks to the regulation of fees (for             different socioeconomic groups utilize different
insured services) by the government.        Social      "types" of medical care.        For example, the
protection for the poor may also reduce the             relatively poor use more insured services
extent to which medical expenditures have the           whereas the relatively rich use more uninsured
potential to impoverish households.           Poor      services, resulting in the greater health care
people (3-4 percent of population) do not pay           expenditure by the rich despite the fact that the
any contributions.       Half of them pay no            poor use more visits or patient days of medical
copayments for insured services, and the other          care. More research is needed into how the use
half pay discounted copayments. Although the            of different types of medical care affects health
poor have to pay in full for uncovered services,        outcomes.
physicians are unlikely to provide many of these
uncovered services to thepoor.                          Policy Implications

Equity in Health Care Utilization                       Extra billing for uncovered services has
                                                        contributed to the rapid introduction and use of
High out-of-pocket payments can also prevent            new medical services in Korea. The expansion
some people from accessing medical care.                in the provision of uncovered services that has
Kwon et al (2003) analyzed equity in the use of         been the result of extra billing and limited
medical services using a Health and Nutrition           benefit coverage has put a serious financial
Survey fielded in 1998.            Following van        burden on patients. Although the problems of
Doorslaer et al (2000), they measured equity in
the use of medical care as the difference               extra billing are manifold, it does not seem

between the concentration of the use of medical         politically feasible to limit the extra billing of

care and the concentration of medical care needs        uncovered services.     When so many services
among different socioeconomic groups. This is           remain uncovered, banning extra billing would
known as the HIwv index, measuring equity in            limit consumers' access to necessary care.
terms of equal treatment for equal need. They           Consequently, public debate has focused on
concluded that the use of outpatient care in            extending the coverage of social insurance
Korea seems to be equitable (in other words,            rather than on limiting extra billing. The NHI
favorable to the poor even after taking into            needs to increase its contributions and extend its
account medical care needs and health status,           benefit   coverage    to   cover    all  medically
meaning that the value of HIwv is negative), or         necessary services.      Alternatively, the NHI
at least less inequitable than in other OECD            could restructure its benefit package and reduce
countries (see Table 5). Health care use in terms       cost-sharing for minor cases and increase cost-
of the number of inpatient days is equitable for        sharing for catastrophic cases.
the poor too. The finding that health care use
benefits the poor disproportionately           after    The government needs to take policy measures
controlling for medical care needs was a bit            to reduce the financial burden on patients
unexpected given that out-of-pocket payments            caused by the requirement to make full payment
at the point of service is rather high in Korea.        for uncovered services. For example, it could
                                                        increase the basic consultation fee for physician
However, it is necessary to examine health care         service in return for the elimination of the
expenditures to find out if there are any               specialist charge.    It could also upgrade the
variations in the quality or intensity of medical       specifications of a "standard" hospital room (for
care use between different socioeconomic                example, to accommodate only four instead of
groups. Despite the fact that the poor use more         six patients) and increase the fee for using the
medical care than the better-off, the rich spend        standard room based on this new specification.
more on medical care, resulting in an                   Introducing case-based payments (such as the
inequitable    distribution    of   medical    care


                                                    21

              The Billing of Medical Services and the Financial Burden on Patients in Korea


DRG), inclusive of more services covered,              system) in return for a ban on extra billing
might extend benefit coverage and put a limit on       except for meals, sonograms, extra room
extra billing. In the pilot program of the DRG         charges, and specialist charges.
payment system, the level of compensation to
providers has been increased (compared to the
current level of fees under the fee-for-service



                           Table 5: Equity in Use of Health Care Services




                                                     HIwv standardized for age, sex, and

                             Unstandardized Cm
                                                     Self-assessed     Chronic Diseases and
                                                     Health            Self-assessed Health

            Number of                                     -0.011                 -0.002
         Outpatient Visits           -0.106            (Cn: -0.096)           (Cn: -0.104)

            Number of                                     -0.168                 -0.162
          Inpatient Days             -0.187            (Cn: -0.019)           (Cn: -0.025)

           Medical Care                                   0.058                  0.064
           Expenditure               0.016             (Cn: -0.042)           (Cn:-0.048)




Notes: Cm = concentration of medical needs,Cn = concentration of medical care utilization,
Positive/ negative HIwv means the rich use or spend more/ less than the poor.




                                                   22

              The Billing of Medical Services and the Financial Burden on Patients in Korea


References                                             the Asia Pacific, Buckingham, UK: Open
                                                       University Press, 48-68.
Kim, J. and J.-C. Chung, 2005. "Out-of-pocket
Payment by Patients in Health Insurance,"              Kwon, S., 2006. "Fiscal Crisis of the National
Health Insurance Forum 4:1, National Health            Health Insurance of Korea: In Search of a New
Insurance Corporation, 74-88 (in Korean).              Paradigm," Social Policy and Administration,
                                                       40(2), forthcoming.

Kwon, S., 2002. "Achieving Health Insurance            Kwon, S. and M. Reich, 2005. "The Changing
for All: Lessons from the Republic of Korea"           Process and Politics of Health Policy in Korea,"
ESS (Extension of Social Security) Paper 1,            Journal of Health Politics, Policy and Law,
ILO (International Labour Office), Geneva.             30(6), forthcoming.

Kwon, S., 2003a. "Quality of Life associated           Kwon, S., B. Yang, T. Lee, et al., 2003. "Equity
with Health and Health Care in Korea," Social          in Health Care Utilization in Korea," Korean
Indicators Research, 62-63, 171-186.                   Health Economic Review, 9(2): 13-24 (in
                                                       Korean).
Kwon, S., 2003b. "Payment System Reform for
Health Care Providers in Korea," Health Policy         Lee, T., B. Yang, S. Kwon, et al., 2003. "Equity
and Planning, 18(1): 84-92.                            in Expenditure on Health Care in Korea,"
                                                       Korean Health Economic Review, 9(2): 25-33
Kwon, S., 2003c. "Health Care Financing                (in Korean).
Reform and the New Single Payer System in
Korea:   Social   Solidarity   or    Efficiency?"      Lu, R., G. Leung, S. Kwon, K. Tin, E. van
International Social Security Review, 56(1): 75-       Doorslaer, and O. O'Donnel, 2005. "Horizontal
94.                                                    Equity in Health Care Utilization � Evidence
                                                       from Three High-income Asian Economies."
Kwon, S., 2003d. "Pharmaceutical Reform and            Under review.
Physician Strikes in Korea: Separation of Drug
Prescribing and Dispensing," Social Science            van Doorslaer, E., A. Wagstaff, et al., 2000.
and Medicine, 57(3): 529-538.                          "Equity in the Delivery of Health Care in
                                                       Europe and the US," Journal of Health
Kwon, S., 2005. "Health Policy in South                Economics 19, 553-58.
Korea," in Robin Gould edit, Health Policy in




                                                   23

                                    Summary of the Discussion

                                             William Hsiao
                                          Harvard University

Summary of the Two Papers                            services not covered by SI, and those who could
                                                     afford it would purchase such private insurance.
Naoki Ikegami's paper addressed a fundamental        The Council seems to believe that market
issue that is relevant to any developed economy      competition works fairly well in health sectors
with a social insurance (SI) system: what would      and that providers would compete with each
be the consequences if Japan shifts from             other to provide the highest quality services at
providing    comprehensive      SI  coverage     to  minimum cost to the benefit of the consumer.
covering only basic health services?         Japan
currently has a universal social insurance           Ikegami     argued     against    the    Council's
program with a fairly comprehensive benefit          recommendation on four grounds: it would
package and a high co-insurance rate. Ikegami        reduce the equity of Japanese health system;
argued that, under the SI as currently structured,   more Japanese people would be impoverished
the Japanese people have reasonably equal            by their medical expenses since the risk
access to health services, the cost burden is        protection would be reduced; it would reduce the
equitably distributed, and health care cost          safety and efficacy of medical treatments and
inflation has been contained.                        drugs because many of them would be provided
                                                     as part of the uncovered services that would not
However, Japan has suffered from economic            be   regulated;   and   patients   may    not    be
stagnation while health care costs have been         sufficiently well-informed to be prudent buyers
rising because the population is aging and more      of services and drugs, particularly if doctors do
expensive new medical technology is available        not give them objective information.
and widely used in the health care system. As a
result, health care costs are taking up a growing    Soonman Kwon presented the second paper on
share of Japan's GDP.       The government has       South Korea, which has a similar social health
taken significant measures to hold down medical      insurance system as Japan and also has high co-
prices, and further reductions may not be            insurance.    However, South Korean's benefit
possible. If not, then the SI premium rates may      package is less comprehensive than Japan's.
have to be raised to maintain the financial          Moreover, South Korea allows extra billing and
soundness of the current SI system.           The    balance billing. Kwon's study examined the
Regulation Reform Council has recommended            equity of the South Korean SI system using a
that the government should reform its SI to          medical care concentration curve that measured
cover only basic health services. Doctors and        the differences in the use of medical services
hospitals would be allowed to bill for any           among different income groups. He found that
services that are not covered in the basic benefit   utilization rates are quite equal after controlling
package (called extra billing) and the price and     for health care "need." However, Kwon was
quality of the uncovered services would be left      unable to establish definitively whether extra
to   the   marketplace    (largely   unregulated).   and balance billing in South Korea had resulted
Furthermore, doctors and hospitals would be          in an increase in the number of South Koreans
allowed to bill patients above and beyond what       living in poverty.
the SI pays them for those services (called
balance billing).       In fact, the Council's       Discussion
recommendation would shift health service
delivery from a regulated SI system to a largely     The discussion centered on several topics: the
unregulated market system. It would shift the        effects of reducing the benefit coverage of SI
health care costs to the patients and use prices to  with extra and balance billing, how to decide on
ration health services (through extra billing and    what should be included in a basic benefit
balance billing).    Private insurance schemes       package, and the politics involved in reforming
could emerge to offer insurance to cover the         SI.



                                                   24

                         Summary of Session 1: Choosing to Cover Comprehensive
                    or Basic Medical Services under Universal Social Health Insurance

Peter Berman highlighted the direct connection        payments for health services would reduce the
between Ikegami and Kwon's papers. Ikegami            demand for "unnecessary" health services (in
argued on equity grounds against changing             other words, the traditional moral hazard
Japan's SI program to cover only basic health         argument).     Keizo Takemi diplomatically put
services and allowing extra and balancing             forward an argument that reducing the SI benefit
billing. But Kwon's analysis of South Korea's         package would remove the need to increase
SI showed that the extra and balance billing had      premium rates and relieve a difficult political
no   measurable     impact   on   equity   among      problem for the Japanese government. Another
difference income groups. Berman asked the            argument in favor of the shift was made from the
question: if we assume the findings from              neo-classic economic perspective. Reducing the
Kwon's study were correct and that they can be        benefit coverage of a compulsory SI system
generalized to Japan, then what would be the          would give people more choice in that they
objection to Japan reducing the benefit coverage      could either buy private insurance or pay for
of SI and shifting to more private financing of       medical expenses out-of-pocket. This argument
health services?                                      was further extended by the proposition that the
                                                      promotion of private insurance and unregulated
In the debate, several points were made against a     medical care and drugs may also enhance
shift. Participants pointed out that Kwon studied     economic       development,      particularly    in
the equal utilization rates of health services but    encouraging the development of drugs and
not health effects. Naoki Ikegami argued that         medical     technology.       Other    participants,
basic benefit package could exclude clinically        however,      questioned     whether     industrial
effective services and negatively affected health     development should be a goal of a national
status and he pointed out that Kwon's study did       health system.
not    examine     the    health   status   issue.
Furthermore, the excluded medically efficacious       Alan Maynard argued that there has to be
services would be rationed by price. Patients         rational process to decide what health services
who could afford them would receive these             would be covered in a basic benefit package and
services while others would not. Such a system        that a boundary should be drawn based on the
would not be equitable.       Another participant     purpose of the national health system in
argued that allowing for extra and balance            question. The method used to decide what to
billing would reduce the risk protection offered      include in the package should be cost-effective
by    SI,   and    more    Japanese   would     be    analysis.    This assertion stimulated a lively
impoverished. William Hsiao pointed out that          debate. One participant questioned what should
Japan's single-payer system had held down the         be the criterion for the cost-effectiveness studies.
health cost inflation rate. Legitimizing extra and    Maynard and others argued that the purpose of a
balance billing would create a multi-payer            national health system is to produce health gains
system and lead to greater cost inflation. The        so these should constitute the effectiveness
experience of the United States is an indication      criterion.      However,      many     participants
of what could happen in Japan. Peter Berman           disagreed. They argued that a national health
pointed out that Kwon's paper did not assess          system has several purposes and that health
how changing SI into a basic benefit package          gains are only one dimension.        For example,
with extra billing and balance billing would          people value risk protection as much as health
affect both the allocative and the technical          gains.      Current cost-effectiveness studies,
efficiency of health services. It is possible that    however, do not incorporate risk protection as an
this kind of change would increase the inflation      effectiveness criterion.   Moreover, we do not
rate of total national health expenditures. The       have a method for ascertaining the trade-off
United States has a so-called market system and       between health gains and risk protection.
is spending the largest share of GDP on health of
any developed country but this expenditure has        Another shortcoming of the cost-effectiveness is
not yielded commensurate benefits.                    that the benefit package that lawmakers choose
                                                      to be covered by SI has to be politically
In the debate, various participants offered           acceptable.     Yet cost-effectiveness analysis
several arguments in favor of a shift.        One     usually ignores political factors including public
argument was that increasing patients' direct         satisfaction. Michael Reich and Joseph White


                                                   25

                        Summary of Session 1: Choosing to Cover Comprehensive
                   or Basic Medical Services under Universal Social Health Insurance

succinctly summed up the dilemma inherent in         government withdrew its proposal in December
the cost-effectiveness method: "You can be           2004 and accepted a compromise that involved
happy but unhealthy, or you can be healthy but       making only several modest changes to the
unhappy." In other words, how useful can cost-       existing SI.
effectiveness be in determining the basic benefit
package of SI? Soonman Kwon observed that in         Themes Connecting the Four Sessions of the
South Korea the services included in the basic       Seminar
benefit package were mostly determined by
fiscal criteria rather than by some technical        Some participants thought that this seminar
method such as cost-effectiveness.                   covered disparate topics.      However, William
                                                     Hsiao pointed that there are overlapping themes
The discussion then turned to the politics of        and issues among all sessions. He argued that
social insurance reform.         Michael Reich       Sessions 1 and 2 (on long-term care) addressed
suggested that the process of shaping the benefit    two common issues: risk pooling and the role of
package was likely to be dynamic rather than         government in subsidizing the poor. Sessions 1
confined to a single time period. Services were      and 3 (on the public financing of health services
likely to be added or deleted over time as           in UK and Canada) shared a common theme:
socioeconomic and political factors changed.         how much should the public sector invest in
He pointed out that South Korea originally           health services and what would be the
excluded MRI and now included it in the              consequences if the public sector under-funded
coverage. The participants then focused on the       health?    Sessions 1 and 4 (on health care
political forces that are influencing the current    financing and provision in China and India)
Japanese reform. Seven million Japanese people       addressed a common fundamental issue: what
signed a petition against the Regulation Reform      are     the    socioeconomic     and    political
Council's     proposal,   which    they    found     consequences when countries shift to private
unacceptable    regardless    of  the   technical    financing for health and turn over the provision
argument in its favor.        As a result, the       of   services    to   an   unregulated  market?




                                                  26

                           Chapter 2: Financing Long Term Care
                Financing Long-term Care: Lessons from 19 OECD Countries


                                            Manfred Huber
                    Organisation for Economic Co-operation and Development

This paper in its current form does not              recent reforms of long-term care financing and
necessarily reflect the views of the OECD or of      how to sustain these reforms financially in the
its member countries.                                future.

                                                     This paper is a rearranged and abbreviated
Introduction                                         version of an OECD study that reports on latest
                                                     trends in long-term care policies in 19 OECD
Governments in OECD countries are faced with         countries � Australia, Austria, Canada, Germany,
the growing expectations of their populations        Hungary, Ireland, Japan, Korea, Luxembourg,
that they should be able to access high-quality      the Netherlands, New Zealand, Norway, Mexico,
long-term care services at affordable costs.         Poland, Spain, Sweden, Switzerland, United
When the baby-boom generation grows old over         Kingdom, and the United States (OECD, 2005).
the next three decades, demand for services will     This study was one of the major components of
rise steeply.   In the meantime, consumers of        the OECD Health Project, which was carried out
long-term care are already more reluctant to         between 2001 and 2004 to explore key issues
accept the variability in the quality of care and    involved in improving the performance of health
the wide differences in access to services that      and long-term care systems (OECD, 2004b). It
currently prevail across OECD countries.             was conducted with the invaluable assistance of
Long-term care is a cross-cutting policy issue       a network of national experts nominated by the
that brings together a range of services for         countries taking part in the project.
people who need help with the basic activities of
daily living over an extended period of time.        The following box (Box 1) brings together the
Such activities include bathing, dressing, eating,   key definitions and concepts used throughout
getting in and out of bed or a chair, moving         this paper and the OECD study.24
around, and using the bathroom. These services
are   often   provided      in   combination  with   Demographic Trends and Informal Care-
rehabilitation and basic medical services.      In   giving
OECD countries, most people in need of long-
term care are the oldest age groups in society       The rising number of very old people in OECD
who are most at risk for long-standing chronic       countries is causing concern about how these
conditions that cause physical or mental             countries are going to finance the care that will
disability.                                          be needed by this large cohort. In response,
This paper begins with a brief overview of the       policymakers have begun considering different
demographic trends in these aging populations.       policy options for providing and paying for this
It then reviews the evidence about cross-country     long-term care.    However, future demand for
differences in long-term care programs and           long-term care will be driven not only by growth
expenditure     and     identifies  key    national  in numbers in relevant age groups but also by a
differences and drivers. An overview is given of     number of other factors that may be susceptible
the need to improve the quality of care in many      to being influenced by social and health policies
instances. A final section discusses lessons from    in ways that may reduce this heavy demand.

  The author is grateful for the OECD team who was
in charge of the long-term care project: Patrick
Hennessy, Junichi Izumi, Weonjong Kim, and Jens      24Methodological and data work on long-term care at
Lundsgaard.   The project received editing support   OECD is ongoing during 2005. See, for example,
from Victoria Braithwaite.                           Huber (2005a, b, and forthcoming).


                                                   27

                             Financing Long-term Care: Lessons from 19 OECD Countries


                                    Box 1: Definitions and Glossary of Terms



The terminology used in long-term care policy and statistics varies widely between countries. This box presents various
working definitions compiled with the aid of the group of experts who supported this study.

Activities of daily living (ADLs)

Activities of daily living are self-care activities that a person must perform every day, such as bathing, dressing, eating, getting
in and out of bed or a chair, moving around, using the toilet, and controlling the bladder and bowels.


Allowances

Allowances, cash allowances, and cash benefits are all payments that may be either liable for income taxation or exempt
from income taxation.


Care

The term care is frequently used in the study as a synonym for long-term care


Consumer direction

The term consumer direction refers to arrangements whereby public programs enable people who need care or their families
to purchase their own care, sometimes by employing a care assistant.


Disabled or dependent older people

Older people whose overall level of functioning is substantially impaired to the extent that they are likely to need help from a
third party or various aids and adaptations to fulfill the normal activities of daily life.


Formal long-term care services

Long-term care services are supplied by the employees of any organization, in either the public or private sector, including
care provided in institutions like nursing homes or care provided to people living at home by either professionally trained
care assistants, such as nurses, or untrained care-givers.


Home care

Home care refers to long-term care services that can be provided to patients at home, including day care and respite services.
It also includes long-term care received in home-like settings such as assisted living facilities.


Informal care

Informal care is the care provided by informal care-givers (also called informal carers) such as spouses/partners, other
members of the household and other relatives, friends, neighbors, and others, who usually but not always have a previously
existing social relationship with the person for whom they provide care. Informal care is usually provided in the home and is
typically unpaid.


Institutional care

Institutional care is long-term care provided in an institution that, at the same time, serves as the residence of the care
recipient.


Long-term care

Long-term care is a range of services needed for people who are need help with basic ADL. This care is frequently provided



                                                                  28

                           Financing Long Term Care: Lessons from 19 OECD Countries



in combination with basic medical services such as help with changing wound dressings, pain management, medication,
health monitoring, rehabilitation, or palliative care.


Long-term care institutions

Long-term care institutions are places of collective living where care and accommodation are provided as a package by a
public agency, a non-profit, or a private company. Residents may or may not be charged separately for care services and
accommodation.


Older people

All those aged 65 or over.


Nursing home/Nursing home care

These terms are used in this study as synonyms for long-term care institutions providing nursing and personal care to people
with ADL restrictions.


Respite care

Respite care is a short-term care arrangement with the primary purpose of giving carers a short-term break from their usual
care commitments.


Source: OECD (2005a)




An individual's demand for long-term care                         care in the future. Currently, over half of all
grows exponentially with age. Therefore, most                     long-term care in all OECD countries is
demand comes from people aged 80 years and                        provided through informal care arrangements.
older.     A number of recent national and                        Unless informal care can expand to keep up with
international studies have looked at how trends                   demand from elderly people, then the higher
in disability among older people affect future                    demand for formal care services will rise.
demand for long-term care, and we provide an
overview of their findings in this section.                       The future level of informal care provision will
Although a number of studies agreed that                          itself be a response to a number of factors,
favorable disability trends in the future could                   including the living arrangements of elderly
substantially reduce future demand for long-term                  people, the longevity of elderly husbands and
care, the fast-growing number of very old                         wives,     and   trends     in   the    labor     market
people, in particular relative to the population at               participation of those groups in the labor force
working age, is nonetheless expected to increase                  that currently shoulder most of the burden of
care needs � and related spending � by a                          informal care, especially women aged over 45.
substantial amount in the future.                                 Any decisions today on how to organize the

One important factor that will influence the                      provision and financing of long-term care for

demand for care services is the level of health                   older people have to be taken in the context of

and disability of future generations of elderly                   aging populations in the OECD countries.

people. If the elderly in the future are more able                Current population projections assume, first, that

to provide for themselves and in less need of                     the gains in life expectancy that have been

services than the present elderly cohort, then                    observed in the past will continue in the future,

demand for services will be less than purely                      second, that patterns of declining fertility will

demographic         projections        would        suggest.      not be reversed rapidly, and third, that future

Equally important will be the supply of informal                  international migration will make only limited



                                                             29

                       Financing Long Term Care: Lessons from 19 OECD Countries


changes to current population trends.                crucially depend on the reliability of forecasts of

Under these assumptions, absolute numbers of         future trends in life expectancy, in particular of

older people and their shares in the populations     remaining life expectancy at higher ages as most

of the OECD countries will increase rapidly over     of the additional years added to life in the past

the next 20 years when the post-war baby boom        few decades of the 20th century were at higher

generation will reach the age of retirement in       ages (Cutler and Maera, 2001). Increases in life

many OECD countries. By the year 2040, one           expectancy for those in higher age groups are a

person in four may be 65 years or older in           major reason for the growing dependency ratios

OECD countries on average (Table 1). In Italy,       in the population, and long-term gains in life

Switzerland, and Japan, this number could come       expectancy in the past have been consistently

close to one in three if current demographic         underestimated by demographers and actuaries

trends prevail. As the populations of OECD           (for example, Wilmoth, 1998). Demographers

countries age, the oldest cohort of the population   are divided in their opinions as to the extent to

will grow the fastest. Over the past 40 years, the   which life expectancy will be further prolonged

increase in the number of those aged 80 and over     in the future (Tuljapurkar et al, 2000).      The

contributed around one-third to the total increase   factors driving mortality decline, in particular at

in the share of older people in these populations    higher ages, are currently poorly understood

as a whole. It is this group of the population that  Consequently, there is an ongoing scientific

has the most pronounced care needs. Table 1          debate about whether or not past trends will

brings together population projections that          prevail and can be extrapolated into the future.

suggest that the share of the oldest-old in the      From the perspective of fiscal policy and of the

population will double over the next 30 to 40        question    how     to   ensure    the    financial

years.                                               sustainability of long-term care services, trends
                                                     in demographic dependency ratios are crucial.

In 1960, only one out of seven older people          The ratio of older people to the number of those

(aged 65 and over) belonged to the oldest age        of working age is projected to roughly double

group (80 and over) across all OECD countries        over the next 40 years assuming current

on average. Today, this figure is more than one      demographic     trends    (see  OECD,       2005a,

in five, and this share is expected to increase to   TableA.4). This raises difficult questions about

around one-third in some OECD countries by the       the future financial sustainability of a range of

year 2040 (Table 2). The demand for long-term        publicly funded old-age benefits such as

care is therefore likely to grow in all OECD         pensions, health care, and long-term care

countries in future decades.     This is a major     benefits.

concern for policymakers as it implies that any
decisions made about extending the supply of         The fiscal outcome of this major demographic

services or reducing the financial costs of users    change will crucially depend on how many

could add significant additional costs to public     people of working age will be in gainful

budgets in future decades.                           employment, which is an argument in favor of
                                                     reversing of past social trends towards earlier
However, there are large differences across          retirement. In addition, there will be fewer adult
countries.   In several countries (for example,      children to care for the baby boomers when they
Sweden and Norway), the number of oldest-old         begin to require long-term care in 20 to 30 years'
people among the elderly already come close to       time.
the average that is likely to prevail in all
countries by the year 2040. Several countries        One broad indicator that is used to show the
that today have relatively "young" populations       trend in the potential within societies to provide
(such as Mexico, Turkey, and Korea) are likely       care for older people is the "old-age dependency
to experience the fastest aging among all OECD       ratio." This is normally expressed as the number
countries in the decades to come.                    of people aged 20 to 64 as a proportion of those

Demographic projections of aging populations         aged 65 and over. Expressed in this way, the



                                                   30

                     Financing Long-term Care: Lessons from 19 OECD Countries


                  Table 1: Share of Older People in the Population, 1960-2040
                                 65 and over                                      80 and over

                                          Change in % points                               Change in % points


                  1960     2000     2040    1960 -    2000 -        1960   2000      2040     1960 -     2000 -
                                             2000     2040                                     2000       2040

Australia           8.5    12.4      22.5       3.9      10.1         1.2    2.9      7.3          1.7        4.4
Austria            12.2    15.5      29.6       3.3      14.1         1.8    3.5       8.2         1.7        4.7
Belgium              12    16.8      27.4       4.8      10.6         1.8    3.6       8.6         1.8        5.0
Canada              7.5    12.5      24.6         5      12.1         1.2    3.0       8.1         1.8        5.1
Czech Republic      8.7    13.8      28.8       5.1      15.0         1.2    2.4       8.5         1.2        6.1
Denmark            10.6    14.8      24.1       4.2       9.3         1.6    4.0       6.9         2.4        2.9
Finland             7.3    14.9      26.2       7.6      11.3         0.9    3.4       9.0         2.5        5.6
France             11.6    16.1      26.6       4.5      10.5         2.0    3.7       9.1         1.7        5.4
Germany              ---   16.4      29.7        ---     13.3          ---   3.7       8.7          ---       5.0
Greece              8.1    17.3      28.2       9.2      10.9         1.3    3.5       7.9         2.2        4.4
Hungary             9.0    15.1      25.7       6.1      10.6         1.1    2.6       7.1         1.5        4.5
Iceland             8.0    11.7      22.6       3.7      10.9         1.1    2.8       7.1         1.7        4.3
Ireland            11.1    11.2      20.5       0.1       9.3         1.9    2.6       5.5         0.7        2.9
Italy               9.3    18.1      33.7       8.8      15.6         1.4    4.0      10.0         2.6        6.0
Japan               5.7    17.4      35.3      11.7      17.9         0.7    3.8      14.1         3.1       10.3
Korea               2.9      7.2     27.8       4.3      20.6         0.2    1.0       7.1         0.8        6.1
Luxembourg         10.8    14.2      24.0       3.4       9.8         1.6    3.0       7.4         1.4        4.4
Mexico              4.2      4.6     15.4       0.4      10.8         0.5    0.6       3.7         0.1        3.1
Netherlands         9.0    13.6      25.5       4.6      11.9         1.4    3.2       7.6         1.8        4.4
New Zealand         8.6    11.7      22.8       3.1      11.1         1.5    2.8       7.0         1.3        4.2
Norway             11.0    15.2      26.3       4.2      11.1         2.0    4.3       8.6         2.3        4.3
Poland              6.0    12.2      24.1       6.2      11.9         0.7    2.0       7.5         1.3        5.5
Portugal            7.9    16.3      24.0       8.4       7.7         1.1    3.4       6.2         2.3        2.8
Slovak Republic     6.9    11.4      23.2       4.5      11.8         1.0    1.9       6.3         0.9        4.4
Spain               8.2    16.9      30.7       8.7      13.8         1.1    3.8       8.5         2.7        4.7
Sweden             11.7    17.3      25.2       5.6       7.9         1.9    5.0       7.9         3.1        2.9
Switzerland        10.2    15.3      33.1       5.1      17.8         1.5    4.0      11.1         2.5        7.1
Turkey              3.5      5.7     14.3       2.2        8.6        0.3    0.6       2.6         0.3        2.0
United Kingdom     11.7    15.9      25.4       4.2        9.5        1.9    4.0       7.3         2.1        3.3
United States       9.2    12.4      20.4       3.2        8.0        1.4    3.3       6.9         1.9        3.6

OECD Average        8.7    13.8      25.6       5.0      11.8         1.3    3.1       7.7         1.8        4.6


Source: OECD Health Data 2004 for 1960 and 2000; 2040 projections: Eurostat (15 EU countries); national sources
(Canada and the United States); United Nations (2002).
Note: Germany 1960 (before reunification) not comparable with 2000 data
.




                                                    31

                Financing Long Term Care: Lessons from 19 OECD Countries




          Table 2: Share of Very Old People among the Elderly, 1960 to 2040


                                                              Change in % points


                                                                 1960 to
Country                      1960        2000           2040      2000      2000 to 2040


Australia                     14.3        23.6           31.8           9.3          8.2
Austria                       14.4        22.8           28.1           8.4          5.2
Belgium                       15.4        21.3           31.9           5.8         10.6
Canada                        15.8        23.6           32.9           7.8          9.3
Czech Republic                14.0        17.1           30.4           3.1         13.3
Denmark                       15.3        26.7           28.9         11.4           2.2
Finland                       12.7        22.5           35.1           9.8         12.6
France                        17.2        23.3           34.6           6.1         11.3
Germany                        ---        22.3           29.9            ---         7.6
Greece                        16.0        20.5           30.1           4.6          9.6
Hungary                       12.3        17.5           28.7           5.2         11.3
Iceland                       14.3        24.2           31.6         10.0           7.3
Ireland                       17.5        23.0           26.7           5.5          3.7
Italy                         14.6        22.2           30.6           7.6          8.4
Japan                         12.6        22.0           41.1           9.5         19.1
Korea                          8.1        14.2           26.1           6.1         11.9
Luxembourg                    14.7        21.0           26.9           6.3          5.9
Mexico                        12.0        14.0          23.5            2.0          9.6
Netherlands                   15.2        23.5           30.0           8.3          6.5
New Zealand                   17.1        23.8           30.5           6.8          6.7
Norway                        18.0        28.3           32.7         10.4           4.4
Poland                        12.2        16.2           31.9           4.0         15.7
Portugal                      14.4        20.6           25.8           6.2          5.2
Spain                         14.5        16.5           28.3           2.0         11.8
Slovak Rep.                   14.0        22.3           27.6           8.3          5.3
Sweden                        15.9        29.0           31.5         13.1           2.5
Switzerland                   15.0        26.0           34.9         11.0           8.9
Turkey                         8.5        11.3           18.2           2.8          7.0
United Kingdom                16.4        25.4           29.1           9.0          3.7
United States                 15.2        26.4           33.3         11.2           6.9

OECD average                  14.4        21.7           30.1           7.3          8.4



Source: OECD Health Data 2004 for 1960 and 2000; 2040 projections: Eurostat (15 EU
countries); National sources (Canada and the United States); United Nations(2002).
Note: Germany 1960 (before reunification) not comparable with 2000 data




                                          32

                      Financing Long-term Care: Lessons from 19 OECD Countries




aging of OECD societies means that the ratio         over time. There is now some evidence that
will become significantly lower in future            there has been a general improvement in the
decades, possibly shrinking to about half the        health and well being of the population in OECD
1960 level by 2030 in the United States.             countries, leading to a longer average lifespan.
                                                     This began to be seen as a significant trend in
This may be the most appropriate indicator for       OECD countries around 1980. However, there
assessing the trend in social protection schemes     has been much debate about the potential impact
that are financed by the working population and      of this increase in lifespan in old age. Additional
received by older people, such as pensions and       years of life in very old age could in principle
health care in many countries. However, it is not    lead to any of these three outcomes:
obvious that this is the best way to look at the     Elderly people may continue to become sick and
potential for care. Knickman and Snell (2002)        disabled at the same ages as previously, leading
have    shown     that   re-conceptualizing     the  to additional years of disability at the end of life.
dependency ratio changes the potential for care      Exponents of this view associate extended
in the United States in future decades markedly.     lifespan with extended morbidity.
They argue that reductions in the number of
children with care needs will offset some of the     The extension of lifespan has an upper limit. If
increase   in   older    people   needing     care.  poor health and disability tended to appear at
Moreover, relatively few people in the 65 to 74      later ages on average, this would lead to a
age group require long-term care and an              "compression of morbidity." First propounded
increasing share of people in that age group         by Fries (1980), this thesis has been the subject
contribute to caring for and supervising both        of lively debate ever since.
young people and the very old. This increases
the ratio of potential carers to those needing       The third possibility is that both average lifespan
care.                                                and age of onset of poor health or disability
                                                     would continue to extend, leading to the deferral
Disability in Older Age                              of disability.   Whether the average length of
                                                     years of disability would grow, decline, or stay
The share of older people with functional            the same would depend on the relative rate of
limitations increases exponentially with age and     extension of lifespan and onset of disability.
is highly concentrated in the oldest age groups.     This argument has led to a further change in the
Since women have a longer life expectancy than       way disability in old age is perceived. It is now
men, they are also more likely to be in need of      seen as "end-of-life" disability rather than
long-term care. There is some evidence that care     inevitably associated with passing a particular
needs are becoming increasingly concentrated in      age, in which case its onset might be deferred at
the oldest age groups, but making comparisons        the same rate as the rate of extension of lifespan.
across time is fraught with problems. Data on
the prevalence of disability among older people      The emerging trends in international data up to
are often available for only few points in time      the mid-1990s are described in Waidmann and
and are rarely entirely comparable.            For   Manton (1998), Jacobzone et al (1999), and
example, it is difficult to compare take-up rates    Lagergren and Batljan (2000). These reviews
of certain services over time when these figures     suggest that the observable trends in the data
are derived from the administrative data from        concur with the third of these possible scenarios.
public programs as the care assessments for          With some exceptions, there has been little
these programs may have changed over time.           support for the "extended morbidity" thesis.
                                                     Finally, there has been evidence from reviews of
Until the late 1980s, there was little longitudinal  a number of countries (Canada, France, Japan,
data that would enable direct measurement of the     the Netherlands, Sweden, the United Kingdom,
trend in the level of disability among the elderly   and the United States) that the prevalence of



                                                   33

                       Financing Long Term Care: Lessons from 19 OECD Countries


disability rates in old age is declining.             improvements do explain part of the trends, they
                                                      still mean that the need for care services has
This reduction was found mainly among the 65          declined.
to 80 age group and was more striking in the
case of males than of females (males having           Recent evidence from other countries mostly
poorer health at similar ages as women but a          supports the overall conclusions of Jacobzone
shorter lifespan in old age to begin with). This      (1999) and Manton and Gu (2001) and supports
decline was partly offset by an increase in           the "deferral" thesis. Most of the available
disability in the institutionalized population.       evidence from Canada, France and Sweden
However,      these    trends    were    far   from   suggests that prevalence of disability among
homogenous across countries.                          elderly people has declined over time. In some
                                                      other countries, for example, Finland, Italy, the
More recent data have continued to indicate that      Netherlands,    Switzerland,   and   the   United
levels of disability in old age are decreasing. In    Kingdom, there is as yet no consensus in the
particular, the US National Long-term Care            data about whether the level of disability has
Survey (NLTCS) has added 1999 data to the data        declined, but there is no evidence of an increase.
from 1982, 1989, and 1994. Manton and Gu              In one of these countries, the United Kingdom,
(2001) examined the data from the 1999 NLTCS          Jarvis and Tinker (1999) have re-analyzed the
and confirmed that the decreasing trend in            main longitudinal data set and concluded that the
disability in the United States is not only           health status of older people in the United
continuing but is growing. The average drop in        Kingdom is improving but is still lagging behind
disability prevalence had been higher between         the improvements seen in the United States by
each round of the NLTCS and was over 0.56             several years.
percent per year between 1994 and 1999. In
addition, it could now be concluded that the          However, the trend is not clear for some
older black population, which had not shown           countries. In fact in one country, Australia, there
any declines in disability in the earliest waves of   has been a measured increase in disability rates
the NLTCS, was now benefiting from this trend         among the elderly, although at least half of this
as well. To counter the response that this may        increase can be attributed to changes in the
have been a single exceptional result for one         measurement instrument (AIHW, 2003). Also,
generation, Manton and Gu cited work by Fogel         because the national disability scales and the
and Costa (1997) using records of medical             estimation methods used for this indicator can
assessments of US army veterans from 1912 to          vary substantially across countries, the numbers
the 1990s that showed a long-term trend of a          in Table 3 should mainly be analyzed with
similar magnitude.                                    respect to trends over time but are less suitable
                                                      for inter-country comparisons.
Some (for example, Cutler, 2001) have seen this
as "clear, overwhelming evidence that the             Researchers are only just beginning to study the
average health of the elderly population is           factors that might explain changes in disability
improving." Others, however, such as Freedman         rates among older people over time and across
et al (2002), have urged caution as comparing         countries, so they are not yet well understood.
different sources yields different findings about     Available evidence shows that there is a strong
which ADL or IADL functions have improved,            socioeconomic gradient of disability in older age
and there remains little if any sign of a decline in  (Kjoller and Rasmussen, 2002). Improvements
the underlying conditions. In addition, to the        in     education,     health-related    behavior,
extent that the measured reductions were in           socioeconomic status, and the treatment of
IADL functions, the improvement might be              chronic disease are probably some of the factors
environmental, arising from improved housing          that drive disability rates in older age (Cutler,
conditions and use of assistive technology as         2001).
much as from improved bodily function.
Nonetheless,     even    if   such   environmental


                                                    34

                                                    Financing Long-term Care: Lessons from 19 OECD Countries


                                          Table 3: Relationship between Care Recipient and Informal Care-giver



Country (source)                Year     Relationship           Total      Male    Female     Country (source)                 Year    Relationship      Total     Male   Female

Australia                       1998     Partner                   43         19         24   Korea                            2001    Partner             32
                                         Parent                    22          3         19                                            Child               55         7        49
                                                                                                 (Survey on long-term care
 (ABS Survey of Disability,              Child                     24          6         19                                            Other
                                                                                                needs of the elderly, 2001)                                13
 Ageing and Carers, 1998)                Other                     11          2          9                                            Total              100
                                         Total                   100          30         71

Austria                         2002     Partner                   18          7         11   Spain                            1999    Partner             23
                                         Child                     38         14         24                                            Child               38         6        32
                                                                                                  (Survey on impairment,
     (Microcensus 2002)                  Other                     43         12         32                                            Other               39
                                                                                                disabilities, and handicaps)
                                         Total                   100          34         66                                            Total              100

Canada                          1995     Partner                   20          7         13   Sweden                           2000    Child               46        13        33
     (Survey on informal                 Child                     35          9         26                                            Other               53
    caregivers to adults in              Others                    45         11         34     (Survey of aged care, 2000)            Total              100
       British Columbia)                 Total                   100          27         73

Germany                         1998     Partner                   32         12         20   United Kingdom                   2000    Partner             15
                                         Parent                    13          2         11                                            Parent               7
                                         Child                     28          5         23     (General household survey,             Child               43
  (Schneekloth and M�ller,               Other                     27          1         26                 2000)                      Other               35
             2000)
                                         Total                   100          20         80                                            Total1             100

Ireland                         1993     Partner                   22          5         17   United States                    1994    Partner             23        10        13
                                         Parent                                                                                        Child               41        15        27
                                         Child                     48         13         35       (National long-term care             Other2              35        11        24
 (Survey of older persons,               Other                                                         survey, 1994)
             1993)                                                                                                                     Total              100        36        64
                                         Total

Japan                           2001     Partner                   36         12         25
                                         Parent                     1          0          1
                                         Child                     60         11         48
 (Com prehensive survey of               Other
   living conditions, 2001)                                         3          1          3
                                         Total                   100          24         76


Note: definition of carers and care recipients may differ between countries. The number of informal carers is usually higher than the num ber or carers receiving support under
public long-term care program mes (e.g. as cash allowances)
1. National data on the shares of care-recipients in the different categories, which include persons receiving care from more than one care-giver, have been recalculated to add
up to 100.
2. Missing values are included in the category "Other".




                                                                                       35

                       Financing Long-term Care: Lessons from 19 OECD Countries


Living Arrangements of Older People                   Informal Care-giving and Trends in Labor
                                                      Market Participation
Older people with care needs who live with their
family or partner are more likely to receive          In each of the 19 countries that we studied,
informal    help    than    those   living    alone   informal    care-giving   is   an    indispensable
(Sundstr�m, 1994).      Given the importance of       component of care for older people with long-
partners, in particular, in providing care, the fact  term care needs. Surveys that explore the living
that the number of older people living alone is       situation of older people and available time-use
increasing will itself increase the demand for        studies consistently show that the majority of
formal care services in the future. Living alone      care � 80 percent or more �           is provided
has become a much more frequent experience            informally (see, for example, Lamura; 2003;
for elderly people in the OECD area. During the       Sundstr�m/Johannson/Hassing,         2002;     and
decade of 1990 to 2000, the proportion of elderly     Zukewich, 2003). However, most of this time is
people living alone grew in most OECD                 spent on lower-level care, such as help with
countries, other than New Zealand, the United         instrumental activities of daily living (Romoren,
Kingdom, and the United States. Northern              2003). However, some informal carers also care
European countries, including the Netherlands,        for many older people with the greatest care
Norway, and Sweden, which started with a high         needs, such as dementia patients, for whom
proportion of one-person elderly households           informal care is often the most important source
showed the highest rates of living alone in 2000.     of support (Mo�se et al, 2004).
Mexico, Japan, Korea, and Spain had the lowest
rates (see OECD, 2005a, Figure 3).                    Most informal care is provided by women,
                                                      although    with   marked     differences   across
Living alone becomes more frequent as people          countries (Table 3). Men are more likely to take
age, mainly due to the death of their spouses. For    over the role of care-giver for their spouses than
example, around half of all people aged 75 and        for other family members. Because more elderly
over live alone in Canada, around 42 percent in       people are living as couples and for a longer
New Zealand and Sweden, and 44 percent in the         time, this has led to a slight increase in the
United Kingdom. Women aged 75 and above               number of men providing informal care over
are the most likely to live alone. It is estimated    time (Sundstr�m et al, 2002).          There are,
that almost 60 percent of elderly women aged 75       however, some gender differences in the level of
and over in Canada, Sweden, and the United            care provided, which are not shown in Table 3.
Kingdom live alone.                                   Women are predominant among those informal
                                                      care-givers with the heaviest commitments. They
Several studies have forecast that this trend         are more likely to be the main carer than an
towards living alone may change. A modeling           additional carer.    The more demanding that
exercise for the United Kingdom, for example,         personal care services become, the more likely it
suggested that, between 1996 and 2031, the            is that women provide them. The share of men
numbers of dependent elderly people living with       providing domestic help rather than personal
others will increase faster than the numbers          care is correspondingly higher than the share of
living alone, largely due to higher marriage rates    women.
and increased male longevity.        In turn, the
proportion of dependent elderly people living         Across countries, there seems to be a peak in
alone is projected to fall slightly, from 43          care-giving by those aged between 45 and 65.
percent in 1996 to 38 percent in 2031 (Pickard et     This is the age group that frequently has multiple
al, 2000). Wolf (1995) has projected that the         care responsibilities for elderly parents or for a
percentage of older women living alone in eight       spouse or partner with age-related health
countries would decrease sharply around by            problems. In addition, policymakers have crafted
2010 and then would climb again.                      fiscal and labor market policies to try to reverse
                                                      trends towards early retirement.       It will be
                                                      important    to    ensure    that   their   caring



                                                    36

                      Financing Long Term Care: Lessons from 19 OECD Countries


responsibilities   can    be    combined      with   unless they are in the social assistance category.
employment in this age group.                        In some countries with a public scheme, this is
                                                     indexed to their retirement income, for example,
Long-term      Care:   Program Design         and    80 percent of the public pension in Norway,
Eligibility Criteria                                 whereas in others users have to pay the actual
                                                     cost of their accommodation unless they meet a
Long-term care services are financed from            low-income test.
different sources in OECD countries. Table 4
lists various long-term care programs in OECD        As Table 4 shows, even under universal public
countries by type of program, source of              programs, the requirement for private cost-
financing, eligibility criteria, and the use of      sharing usually is substantial, although it tends
private cost-sharing.   Most programs in most        to be spread more evenly among beneficiaries
countries provide in-kind services for both home     than in means-tested programs. Cost-sharing in
care and institutions, but there are a growing       universal systems is either calculated as a fixed
number of programs that offer cash allowances        percentage of cost or as the difference between
or allow consumer demand to influence the            the benefit and actual spending.25                  The
budgets. Most long-term care programs serve all      implications of these various cost-sharing
age groups, except for those in Korea and Japan      regulations for the public-private mix of
as well as the US Medicare program.                  financing are discussed in the following sections
                                                     on expenditure trends.
In most countries that we studied, the main
source of public financing is taxation. For          Differences in Spending Levels for Long-term
example, Norway and Sweden both provide              Care Services
universal coverage of long-term care services
funded from general taxation, but they differ in     Total expenditure on long-term care in the 19
terms of the amount of cost-sharing required for     OECD countries covered in this study ranges
services provided in nursing homes.        A few     from below 0.2 to around 3 percent of GDP.
countries   (such   as   Germany,    Japan,    the   Most countries, however, are clustered in a range
Netherlands, and Luxembourg) have set up a           between 0.5 percent and 1.6 percent of GDP,
universal social insurance scheme specifically to    with only Norway and Sweden spending a
cover long-term care. Austria has a universal        proportion that is well above that level (Figure 1
system funded from general taxation and              and Table 5).
governed by similar regulation.         In other
countries, the main health insurance program         Comparing spending levels across countries
finances a limited amount of care in hospitals in    reveals that the many different ways of
the absence of other programs, but the total         organizing and funding long-term care (as can be
involved is quite small (for example, in Hungary,    seen in Table 4) have actually led to very similar
Korea, Mexico, and Poland).                          overall spending levels. For example, Australia,
                                                     Canada, Germany, the United Kingdom and the
Besides those countries that provide universal       United States all spend within the narrow range
access to long-term care services, there are those   of 1.2 to 1.4 percent of their respective GDPs..
that have a largely means-tested system in which
the user is expected to bear all or most of the
cost above a certain level of income. In means-
tested schemes, users face very high costs if their  25 The borderline between means-tested programs and
income is above the means-test level, especially     "universal" programs can be blurred. If cost-sharing
if they have to go into a nursing home. This has     under universal programs is high, then some
generated pressure on governments to reform          households will not be able to cover the cost of the

these schemes. One common feature of long-           care needed by their older members. They may then
                                                     become eligible for means-tested social assistance to
term care programs is that nursing home              fill the financial gap, for example, to cover the cost of
residents have to pay an accommodation charge        accommodation in nursing homes.


                                                   37

                                                               Financing Long-Term Care: Lessons from 19 OECD Countries




                           Table 4: Major Public Programs Covering Long-term Care in Selected OECD Countries, 2003

Country              Type of care              Programme               Source of     Type of benefits   Eligibility criteria    Private cost-sharing
                                                                       fund

Australia            Institutional care        Residential care        General       In-kind            All ages                There is a standard charge plus a means-
                                                                       taxation                                                 tested charge based on income


                     Home care                 Community Aged Care General           In-kind            Generally 70+           Users are charged according to ability to
                                               Packages (CACP)         taxation                         Means-tested            pay



                                               Home and community      General       In-kind            All ages                Users are charged according to ability to
                                               care(HACC)              taxation                         Means-tested            pay


                                               Care payment            General       Cash               All ages                -
                                                                       taxation                         Means-tested
                                               Carer Allowacne         General       Cash               All ages                -
                                                                       taxation                         Universal
Austria              Home care                 Long-term care          General       Cash               All ages                Users are expected to pay the difference
                                               allowance               taxation                         Universal               between the benefit and the actual cost


                     Institutional care        Long-term care          General       Cash               All ages                Users are expected to pay the difference
                                               allowance               taxation                         Universal               between the benefit and the actual cost


Canada               Home care                 Provincial programmes General         In-kind            All ages                Means-tests vary between provinces
                                                                       taxation                         Usually means-tested
                     Instutitutional care      Provincial programmes General         In-kind            All ages                Means-tests vary between provinces
                                                                       taxation                         Usually means-tested
Germany              Home care                 Social Long-Term Care Insurance       In-kind and cash   All ages                No cost-sharing required but out-of-pocket
                                               Insurance               contribution                     Universal               to pay for additional or more expensive
                                                                                                                                services than covered by public insurance
                                                                                                                                was on average 130 Euro per month


                     Institutional care        Social Long-Term Care Insurance       in-kind            All ages                Board and lodging is not covered (on
                                               Insurance               contribution                     Universal               average 560 Euro per month); plus service-
                                                                                                                                charges in excess of statutory limit were
                                                                                                                                313 Euro on average; (these private cost
                                                                                                                                can be covered by means tested social
                                                                                                                                assistance) (1)

Source: replies to OECD quetionnaire for the Long-Term Care Study .
(1) Cost-sharing in 1998, according to Schneekloth-M�ller (2000)




                                                                                            38

                                                               Financing Long-Term Care: Lessons from 19 OECD Countries




Country              Type of care                Programme                    Source of fund   Type of benefits  Eligibility criteria         Private cost-sharing


Mexico               Institutional care          Specialised services in General taxation In-kind                All ages, all people who are
                                                 Geriatrics                                                      insured


                     Home care                   Day centres for              General taxation In-kind           Insured pensioners and
                                                 pensioners and retired                                          retired people


Netherlands          Home care                   AWBZ                         Insurance        Consumer-directed All ages                     Income-related co-payments are
                                                                              contributions    budget(1)         Universal                    required
                     Institutional care          AWBZ                                          In-kind           All ages                     Income-related co-payments are
                                                                                                                 Universal                    required
New Zealand          Home care                   Carer Support                General taxation In-kind           All ages,
                                                                                                                 means-tested
                                                 Home Support:        home General taxation In-kind              All ages, income tested
                                                 help

                                                 Home Support:                General taxation                   All ages, universal
                                                 personal care
                     Institutional care          Long-term residential        General taxation In-kind           Aged 65 and over, and 50-65
                                                 care                                                            with early onset age-related
                                                                                                                 conditions
                                                                                                                 Means-tested
Norway               Home care                   Public long term care        General taxation In-kind           All ages
                                                                                                                 Universal                    Home nursing care is free of charge.
                                                                                                                                              Home help is based on an optimal
                                                                                                                                              user-payment (usually NOK 50 per
                                                                                                                                              time)
                     Institutional care          Public long term care        General taxation In-kind           All ages                     Residents in institution are charged
                                                                                                                 Universal                    approximately 80% of their income.


Poland               Home care                   Social services              General taxation Cash/in-kind      All ages
                     Institutional care                                                                          Means-tested



Source: replies to OECD quetionnaire for the Long-Term Care Study .
(1) By April 1, 2993, the Consumer directed budget has been changed in a cash payment
1These were contributions to health insurance not long-term care.




                                                                                                  39

                         Financing Long-term Care: Lessons from 19 OECD Countries


The first lesson from this comparison is,                well-equipped housing, than other countries (see
therefore, that one broad type of program is no          Table 8 below). Higher cost-sharing in Norway
more associated with a particular expenditure            may explain part of why its expenditure ratio is
outcome than any other.                                  lower than Sweden's.27

Moreover, countries with similar spending levels         Aspects of the quality of care may explain part
may face different challenges. This is illustrated       of the differences observed in Table 5 and Figure
by Figure 2, which plots overall spending levels         1 between other countries as well.              The
against the percentage of people aged 80 years           proportion of single and double bed rooms in
and older in the population, this age group being        nursing homes has obvious cost implications for
the largest group of users of long-term care             all countries. The number of these small rooms
programs.26      Spain and Ireland, for example,         is currently much lower in countries like Japan
have similarly moderate spending levels and a            and Korea, which explains part of the lower
comparable split between spending for home               expenditure levels for these countries.
care   and    spending      on   institutional   care.
However, Spain has almost 40 percent more very           The Public/Private Mix of Funding for Long-
old people in its population than Ireland.          In   term Care Services
addition, financing for this significantly older
population in Spain comes predominantly from             Private households in most countries share the
private sources. For Ireland, private spending           burden of care, not only by providing informal,
accounts for only one-sixth of total spending on         unpaid care but also by making substantial co-
long-term care.                                          payments and/or paying out-of-pocket for care
                                                         provided under public programs, both at home or
A second conclusion is therefore that countries          in institutions.    Even under universal social
with significantly different shares of very old          insurance systems, long-term care services
people often have similar spending levels. This          provided in institutions are usually only partially
is mainly due to differences in the design of their      covered by public programs, and households
programs, differences such as the varying mix of         may be required to contribute to the cost of
public-private funding, and, more generally,             board and lodging. In most countries, users are
differences in the division of labor between             also charged for nursing and personal care at a
formal and informal (unpaid) care-giving.                rate decided by the results of a means test.
                                                         Moreover, some households who can afford it
Norway and Sweden spend substantially more               may decide to buy additional services directly
on long-term care than any other OECD country.           from private providers over and above those
Although these countries also have the highest           provided under public programs.
population shares of very old people, their high
spending is also due to the generosity of the            In general, private spending plays a more
programs in both countries. This can be seen in          important role in funding long-term care
the generous services that both countries provide        provided in institutions than for home care.
for residents in nursing homes. Both countries           Because     these     private     expenditures   are
offer more amenities, such as single rooms and           concentrated on a relatively small number of
                                                         households, they can represent a heavy financial
                                                         burden on the individual households concerned
26 The prevalence of functional limitations grows        (see, for example, the cost-sharing rates for
exponentially with age, which leaves room for
different cut-off points for analytical purposes. Most
of the research literature chooses to use 80 and over    27The case of oil-rich Norway (with the third highest
as the cut-off point. However, other age limits have     per capita GDP of OECD countries) is also a
been proposed. Residential Aged Care in Australia,       reminder that in comparing expenditure ratios one
for example, has observed that the availability of care  should not forget the large differences in GDP among
places increases in line with the number of people       these countries.
aged 70 and older.


                                                       40

                        Financing Long Term Care: Lessons from 19 OECD Countries


Germany, Ireland, and Spain in the last column         Behind these aggregate numbers, there are big
of Table 5).                                           differences in the way in which access to home
                                                       care is granted. Countries with similar spending
The burden of private expenditure on nursing           levels may either spend small amounts on a
home     care    and    accommodation      can    be   large number of cases or may targeted their
substantial for individual households and is an        spending to those with the highest levels of care
important     source    of    funding    for   these   needs.
institutions, contributing 30 percent or more of
total spending in several countries (Australia,        While even universal long-term care programs
Germany, New Zealand, the United Kingdom,              currently consume only around 8 to 20 percent
and the United States). Countries with different       of health and long-term care spending (taken
overall spending levels on care in institutions        together), several countries have a much lower
can vary widely in the share of private spending       level of resources to meet the demand for long-
contributed by households (and, in the case of         term care. This is especially the case in those
the United States, by private insurance).28            countries that are only just beginning to develop
                                                       unique long-term care programs within their
Substantial private cost-sharing, in particular for    health and social services sector. Moreover,
nursing home care, and the availability of             public programs that cover home care are, in
informal care as a major source of support are         many countries, less developed than programs
two of the main reasons why some countries             for long-term care in institutions.
have been able to contain costs and spend
similar amounts on long-term care as other             Public funding is the most important source of
countries with different program designs and           financing for long-term care services in all
lower shares of old people in their populations.       countries where data on the public-private mix
                                                       of funding are available (with the exception of
Public Expenditure on Long-term Care                   Spain and Switzerland). Nonetheless, public
Services: No Place like Home?                          spending on long-term care is still relatively low
                                                       as a proportion of GDP compared with other
This section looks in more detail at the               aging-related expenditures such as pensions or
differences in the way in which public money is        acute   health    care  that   are also    heavily
spent on home care versus institutional care.          concentrated on older people (OECD, 2004b).
Over time, policymakers in many countries have
been shifting a larger share of resources to           In all of the countries that we studied, spending
support home-care services in a number of ways         on care in institutions accounts for more than
by financing a larger supply of home-care              half of all public spending on long-term care
providers in the community, by providing more          (Figure 3).      However, public programs that
support services, such as respite care and             provide home care have begun to be developed
counseling, to families who care for close             as this is the preferred option for most people
relatives, and finally by introducing consumer         with care needs.      The majority of home-care
choice in various forms such as care payments or       recipients, in particular older people, have
personal budgets. As a result, home care now           family or friends who support them by providing
accounts for more than 30 percent of public            additional services (mostly unpaid) in addition to
resources in half of the countries for which data      any care they receive from the public program.
are available (Figure 3).                              This makes home care a lower-cost alternative to
                                                       care in institutions in many cases.

28This is also the case when demographic differences   Trends in Public Expenditure on Long-term
are taken into account, for example, by standardizing  Care
expenditure levels by the share of very old people
(aged 80 and older) in the population, relative to an  There is a widely shared perception that
OECD average share of about 3 percent.                 expenditure growth will accelerate over the next


                                                     41

                       Financing Long Term Care: Lessons from 19 OECD Countries


20 to 30 years, mainly as a result of larger          and quality improvement.         To improve the
numbers of older people and a steep increase in       situation, more investment in measurement
the numbers of the oldest-old. However, as we         instruments is needed.      Countries already set
have discussed, the empirical evidence suggests       quality standards for infrastructure and process,
that differences in program design (such as           but    now    they    also   need    to    measure
generosity of funding and level of cost-sharing,      improvements in outcomes and to disseminate
quality of services, and whether services are         this information to clients, both actual and
targeted or not) play a more important role in        potential.
explaining differences in current spending levels
than demand for services measured simply by           There is also a case for making information on
population age structure. The caveat here is that     the quality of care and the prevalence of adverse
data on time trends are even scarcer than for         outcomes more transparent and accessible to the
cross-sectional analysis, making it even more         public on a regular basis. Making information
difficult to make comparisons over time.              on quality assessment at the level of the provider
                                                      available to the public is likely to       increase
In some long-term care systems that have been         consumer protection and create a climate of
operating for many years, public spending has         competition in quality, especially if consumers
remained fairly stable as a share of total public     are also given greater choice in terms of
expenditure on health and long-term care in           providers.
several countries since 1990 (Figure 4). Any
growth in long-term care spending took place          It is unlikely that better quality care will be
while Germany, Japan, and Luxembourg were             sustainable in the future if current staffing levels
setting up their new social programs. However,        in long-term care stay the same. According to
in those countries where a system has been in         the responses given to the OECD questionnaire,
place for a longer period of time, there has been     staff shortages and staff qualifications are the
no "cost explosion" in long-term care spending        number     one    concern    of   long-term    care
relative to acute care spending.                      policymakers in OECD countries (Tables 6 and
                                                      7). Therefore, it is important to address the issue
What Needs to be Done to Improve the                  of staff shortages now in order to prevent the
Quality of Long-term Care?                            situation from worsening in many countries.

There are wide variations in the quality of long-     Countries also differ widely in terms of the
term    care    services   for    older    people.    privacy and amenities available to residents in
Consequently, the quality of these services often     nursing homes. The number of people residing
does not meet the expectations of the public, the     in single or double rooms, for example, can
users of services, and their families. Examples       range from less than a quarter to almost a 100
of   inadequate    care   in   institutional   and    percent (Table 8).     In those countries where
community settings are numerous and can               many people have to share larger rooms, only
include    inadequate    housing,    poor    social   substantial investment in new buildings will
relationships, and lack of privacy in nursing         change this situation for the better.
homes as well as inadequate treatment of chronic
pain, depression, bedsores, or the inappropriate      Paying for Long-term Care: Current Reforms
use   of     chemical   or   physical    restraints.  and Issues for the Future
Improving quality in long-term care will require
an increase in public spending and better             The large variations in the public coverage of
regulation of long-term care services by              long-term care costs across the OECD countries
establishing quality assessment mechanisms and        reflect the differences in the way long-term care
by monitoring outcomes. Governments in many           is financed and provided. A number of countries
countries are now taking a more active role in        have introduced new forms of public programs
this respect, but long-term care still lags behind    for long-term care. This has increased overall
acute health care when it comes to measurement        coverage      and     consolidated       previously



                                                    42

                                                                                                        Financing Long Term Care: Lessons from 19 OECD Countries



Figure 1: Public and Private Expenditure on Long-term Care as Percentage of GDP, 2000

                                               P
                                                GDfo                                      3.50

                                                    e                                     3.00
                                                     ntag
                                                                                          2.50
                                                         perce
                                                              as                          2.00             Private

                                                                care                                       Public

                                                                                          1.50
                                                                    term-g
                                                                          lon             1.00
                                                                             no
                                                                                          0.50
                                                                               iture
                                                                                    nd    0.00

                                                                                      Expe       n                                 a       a
                                                                                              Spai Ireland ealand   Japan    strali                   Germany Kingdom
                                                                                                          Z               Au         Canad   ed States                 herlandsNorwaySweden
                                                                                                       New                               Unit              ed       Net
                                                                                                                                                        Unit

                                             Source: Table 5, this report.

Figure 2: The Correlation between Long-term Care Spending and Aging is Weak, Suggesting that
                                                                                                                    Other factors Play an Important Role



                                             3.00
    of
                                                                                                                                                                                       Sweden
      entcrepsa                              2.50


                                                                                                                                                                    Norway
                                             2.00

               care
                   mr                        1.50                                                                 Netherlands                             Switzerland
                     -tegnol              GDP                                                                                        Austria
                                                                                                               Canada                                     United Kingdom
                                                                                                                                                 Germany
                                                                                                           Australia                United States
                                             1.00
                            on                                                                                                                       Japan
                              reut                                                                                                                                                 R2 = 0.56
                                                                                                            IrelandNew Zealand
                                                                                                                                                       Spain
                                             0.50
                                  ndi                                                                                    Luxembourg


                                     Expe    0.00
                                                                                           2            2.5           3                 3.5              4             4.5           5        5.5

                                                                                                                   Per cent of persons aged 80 years and older


                                             Source: Table 5 of this report.




                                                                                                                                               43

                                              Financing Long Term Care: Lessons from 19 OECD Countries

                    Table 5: Public and Private Expenditure on Long-term Care as Percentage of GDP, 2000

Table 1.2 Public and private expenditure on long-term care as percent of GDP, 2000

                                     Total expenditure                                  Public expenditure                                 Private expenditure

                          Home care      Institutions       Total           Home care        Institutions        Total          Home care      Institutions    Total



Australia                      0.38           0.81           1.19                0.30             0.56             0.86              0.08           0.25        0.33

Austria                         n.a.          n.a.           n.a.                n.a.             n.a.             1.32               n.a.          n.a.        n.a.

Canada                         0.17           1.06           1.23                0.17             0.82             0.99               n.a.          0.24        0.24

Germany                        0.47           0.88           1.35                0.43             0.52             0.95              0.04           0.36        0.40

Hungary                      < 0.10          < 0.20         < 0.30               n.a.             n.a.           < 0.20               n.a.          n.a.       < 0.10

Ireland                        0.19           0.43           0.62                0.19             0.33             0.52               n.a.          0.10        0.10

Japan                          0.25           0.58           0.83                0.25             0.51             0.76              0.00           0.07        0.07

Korea                           n.a.          n.a.          < 0.30              < 0.10           < 0.10          < 0.20               n.a.          n.a.        n.a.

Luxembourg                      n.a.          n.a.           n.a.                0.15             0.37             0.52               n.a.          n.a.        n.a.

Mexico                          n.a.          n.a.          < 0.20               n.a.             n.a.           < 0.10               n.a.          n.a.       < 0.10

Netherlands                    0.60           0.83           1.44                0.56             0.75             1.31              0.05           0.08        0.13

New Zealand                    0.12           0.56           0.68                0.11             0.34             0.45              0.01           0.22        0.23

Norway                         0.69           1.45           2.15                0.66             1.19             1.85              0.03           0.26        0.29

Poland                         0.35           0.03           0.38                0.35             0.03             0.37               n.a.          0.00        0.00

Spain                          0.23           0.37           0.61                0.05             0.11             0.16              0.18           0.26        0.44

Sweden                         0.82           2.07           2.89                0.78             1.96             2.74              0.04           0.10        0.14

Switzerland                    0.20           1.34           1.54                n.a.             n.a.             n.a.               n.a.          n.a.        n.a.

United Kingdom                 0.41           0.96           1.37                0.32             0.58             0.89              0.09           0.38        0.48


United States                  0.33           0.96           1.29                0.17             0.58             0.74              0.16           0.39        0.54

Average   (1)                  0.38           0.88           1.25                0.35             0.64             0.99              0.06           0.19        0.24


Sources: Canada, Germany, Hungary, Norway: OECD Health Data 2004; Australia: Prod. Commission (2001); Poland: Kawiorska (2004); Spain:
Marin/Casanovas (1998); Austria, Ireland, Japan, Korea, Luxembourg, Mexico, Netherlands, New Zealand, Sweden, Switzerland, United Kingdom,
United States: Sectretariat estimates (see OECD (2004c) for a documentation of sources and methods).

Note: Data for Hungary, Korea, Mexico, and Poland are rough indications of magnitude; n.a. = not available.
The notion of "long-term care" used in a national context can be substantially broader, e.g. by including residential homes for older people
(e.g. the Netherlands, Nordic countries)
(1)Average excludes Austria, Hungary, Luxembourg, Korea and Mexico


                                                                                      44

                                                                                                                                    Financing Long-term Care: Lessons from 19 OECD Countries




                                                                                                                 Figure 3: Public Expenditure on Long-term Care as Percentage of GDP, 2000


                                                                                                            3
P
 GDfo
     e                                     2.5




      percentag                                                                                             2
                                                                                                                                                      Home care (including services in
               as                                                                                                                                     support of informal care)
                 e
                                                                                                                                                      Long-term care in institutions
                  car                      1.5



                     g-termnol                                                                              1

                              on
                                er
                                  tui      0.5

                                     end

                                        Exp
                                                                                                            0

                                                                                                               Spain         Luxembourg         United           Australia     Germany      Netherlands      Sweden
                                                                                                                                                States

                                                                                                               Source: Table 5 of this report.

                                                                                                                         Figure 4: Trends in Public Spending on Long-term Care, 1990-2002


                                                                                                            18.00
                                            )
                                             %(
                                               e
                                                car
                                                   m
                                                    ert-                                                    16.00                                                                  Canada

                                                        ngol

                                                            and
                                                               ht                                                        Netherlands
                                                                 aleh 14.00
                                                                 no
                                                                   ngi
                                                                                                                                                                                          Japan
                                                                                                            12.00
                                                                      spend                                                                           Switzerland
                                                                           ci
                                                                             bl
                                                                               pu
                                                                                 altot                                   United States                                                       Luxembourg

                                                                                      ni                    10.00
                                                                                        e
                                                                                         car
                                                                                            m                    Australia
                                                                                             ert-gnolfo      8.00


                                                                                                       era                          Germany

                                                                                                          Sh
                                                                                                             6.00
                                                                                                                  1990       1991     1992  1993  1994  1995     1996  1997  1998   1999  2000   2001   2002




                                                                                                                 Source: OECD Health Data 2004

                                                                                                                 Note: Australia, USA: expenditure in institutions only;



                                                                                                                                                                     45

                       Financing Long-term Care: Lessons from 19 OECD Countries


fragmented health and social services systems.       However,     there   have    been   considerable
Other countries have opted for reforming their       modifications in Sweden to target the services to
existing   long-term      care    systems    while   the sickest and most disabled older people.
maintaining the basic design of a tax-based          Of the 12 countries in the second group, two �
system with set budgets.                             Hungary and Korea � have in recent years
                                                     discussed introducing long-term care insurance
The issue of sustainability arises in relation to    in the future.   A third, Ireland, has recently
private as well as public expenditures. While        received the report of an independent review
existing levels of public contributions may be       recommending the introduction of a form of
unsustainable in the future, putting these costs     public long-term care insurance (Mercer, 2003),
onto the backs of private households is likely to    and the government has set up a working group
drain the resources of many middle-income            to consider various options.
families.  This is already a major issue in a
number of countries. For the user, the costs of      Three other countries in the second group �
long-term care are potentially very high             Australia, New Zealand, and the United
("catastrophic" in health insurance terms) unless    Kingdom � have in recent years modified their
they are at least partly covered by a public         means-testing formula but have done so in
program or private insurance.                        different ways. Australia made additional types
                                                     of public support subject to income and asset
While    policymakers     in   all  countries  are   testing, while the other two countries have
concerned about the sustainability of their          reduced the impact of means testing.
system of funding long-term care, some have
seen this as a reason to levy extra contributions,   This section considers first the new public long-
while others have seen this as a reason to limit     term care systems recently introduced in four
expenditure by increasing targeting or raising       countries � Austria, Germany, Japan, and
user payments. Different strategies have been        Luxembourg � and the potential lessons from
followed in different countries, which has widen     those reforms. It then looks at the different way
the differences between OECD countries in how        in which the three countries that pay for long-
they treat long-term care within their social        term care from general taxation � Sweden,
protection systems.                                  Australia, and the United Kingdom � have
                                                     attempted to balance greater equity and quality

Of the 19 OECD countries considered in the           in the system with sustainable financing within a
                                                     tax ceiling.
OECD long-term care report, seven � Austria,
Germany, Japan, Luxembourg, the Netherlands,         New Forms of Public Programs for Long-
Norway and Sweden � provide comprehensive            term Care: Austria, Germany, Japan, and
coverage, treating long-term care in broadly the     Luxembourg
same way as they treat other health-related needs
in their social protection system. Of the seven      Since 1990, these four countries have each
countries in the first group, four have introduced   introduced a universal public scheme to cover a
universal funding for long-term care within the      substantial share of the costs of long-term care.
past decade.       The Netherlands introduced        The methods adopted differ among the four
universal funding for long-term care as part of      countries but in each case policymakers decided
their health insurance system in 1968. This has      that the costs of long-term care should be
been    modified     several   times    since  its   brought within the scope of each country's
introduction, most recently in 2003 in that all      system of social protection.
home-care users now have the option of paying
in cash to purchase their own care.                  Austria. A tax-funded system of long-term care
                                                     allowances was introduced in 1993.         These
Neither Norway nor Sweden is considering             allowances are payable in cash only, with the
making any structural changes to their system        amounts determined by an assessment of
for funding long-term care as a universal service.   recipients on a seven-point scale by type of care


                                                  46

                         Financing Long-term Care: Lessons from 19 OECD Countries


                  Table 6: Policy Concerns about the Quality of Nursing Home Care


Group of issues mentioned                                      Countries


Recruiting and retaining an adequately educated and
                                                               All twelve countries that replied to this question
skilled workforce; improved qualification of staff

Put in place or further develop quality assessment and         Austria, Korea, US
monitoring system

Co-ordination of care services                                 Canada, Hungary, Germany

Building quality and amenity                                   Hungary, Japan

Other supply constraints: downward pressure on                 New Zealand, UK, Korea (shortage of government
fees/inadequate fees paid to providers; lack of enough
                                                               subsidies)
time for staff

Access to broader range of services, more
                                                               Norway, Austria (number of short-stay units)
differentiation

                                                               Use of physical restraints (Japan); Number of liability
Other mentioning of "top concerns" (country specific)
                                                               claims; lack of liability insurance for long-term care (US)


Notes: Data are based on replies from national administrations to the following question: "What are the top three
concerns in your country in terms of quality of institutional care?"

Source: Questionnaire of the OECD Long-term care study


                  Table 7: Policy Concerns about the Quality of Home Care Services


Group of issues mentioned                                    Countries


Recruiting and retaining an adequately educated and
skilled workforce; improved qualification of staff           Majority of countries that replied to this question


Improve skills of care managers                              Canada, Japan

Put in place or further develop quality assessment and
monitoring system; improved standards framework              Australia, Austria, Korea


Co-ordination of care services; continuum of care            Australia, New Zealand

Lack of information about services                           Japan, UK

Prevention of inappropriate residential care admission       Australia

Supply constraints; limited financing                        Korea, USA

Broader range of services; too little differentiation        Canada, Norway, UK

Adequate care supply for dementia cases                      Germany, Japan


Notes: Data are based on replies from national administrations to the following question: "What are the top three
concerns in your country in terms of quality of home care?"
Source: Questionnaire of the OECD Long-term care study




                                                         47

                      Financing Long-term Care: Lessons from 19 OECD Countries




and number of hours of care needed.           The    pre-existing number of allowances for different
allowance replaced � and made universal � a          groups in the population, each with different
assessment criteria and benefits. The inequities     received as payment for the service part of the
generated by these different allowances, which       costs    of   nursing   home     care  (excluding
had been introduced at different times to meet       accommodation) up to a specified maximum for
different needs, were a strong part of the case for  each of the three care levels.
reform as advocacy groups argued that similar
needs    should    receive    similar   treatment.   Two major goals of the reforms were, first, to
Policymakers also began to give strong support       reduce the burden on local social assistance
to enabling older people to be cared for at home,    budgets by reducing the number of people
either by informal carers or by home-based care      applying for social assistance to cover long-term
services.                                            care costs and, second, to maintain as many
                                                     elderly people as possible in their own home.30
The new allowances comprise one federal and          The first objective has been met. In 2001, fewer
nine provincial allowances, which together cover     than 5 percent of beneficiaries in their own
the whole population and are based on the same       homes and fewer than 25 percent in institutional
system of assessment and benefits. While the         care were receiving additional help from social
new allowances were to be funded from general        assistance (Federal Ministry of Health and
taxation as part of the same reform package, the     Social Security, 2003). There has also been a
level of contributions to health insurance was       significant growth in spending on home-care
increased by 0.8 percent for self- employed          services.
people and farmers and by 0.5 percent for retired
people.   This was done to reduce the large          However, the current design of the program may

subsidy to the health insurance scheme from          not be financially sustainable, and this problem

general taxation that had arisen as the costs of     will need to be addressed in the future as the

health care for older people had grown.              population continues to age. First, there is a
                                                     growing gap between the cost of services in the

Germany. A public scheme of long-term care           long-term care market and payments per care

insurance was introduced in Germany in 1995-         level, which have been kept fixed since the

96. This comprises a mandatory public scheme,        introduction of the system and not been adjusted

which currently covers just over 70 million          for price increases.    Second, since 1998, the

people, and a private insurance scheme, which        annual increases in revenues under the fixed

currently covers around 8.5 million people.29        contribution rate have been substantially lower
                                                     than the growth of expenditure in all but one
The public scheme is administered by health          year, mostly due to the rising costs of
insurance funds, while the private scheme is         institutional care. The long-term care insurance
administered by private insurers according to
federal regulations. The private scheme must         scheme had a deficit of 2 percent in 2002 and of
                                                     4 percent in 2003, and this deficit continued to
provide at least the same benefits as the public     grow during 2004. Following a ruling of the
scheme.    Contributions to the public scheme,       Federal Constitutional Court that called for
from retired as well as working-age people, are      different contribution rates for those employees
set at 1.7 percent of gross income up to a
specified maximum, with employers usually            with children and those without children, the
                                                     individual contribution rates for the latter were
paying 50 percent while the individual pays the      raised in 2005 from 0.85 percent to 1.15 percent.
other 50 percent. Contributions to private long-
term care insurance are age-related and subject
to federal regulation.   Where the recipient is      A government commission on the financial

receiving care in an institution, the benefit is
                                                     30  For a full account of the background to the
29  These are mainly higher-income groups and civil  reforms, see OECD (1996a), Chapter 18. See also
servants.                                            Evans, Cuellar, and Wiener (2000).


                                                   48

                       Financing Long-term Care: Lessons from 19 OECD Countries


sustainability of the social insurance systems           care    at  home      and     should   increase   the
recommended that the federal government                  contributions paid by pensioners (Federal
should provide further incentives and support for        Ministry of Health and

                                 Table 8: Privacy in Nursing Homes

                                    Average        Percentage of all residents living in room that is
                                   number of
                                    persons                                                             5-bed or
Country                    Year     per room          Single      Double        3-bed        4-bed       more


Australia                  1997       1.60              24          29              9          29          9
                           1999       1.56
                           2000       1.50              61          17              4          14          4
                           2003       1.44

Germany(1)                 1999       1.40              45          49              4                 1
                           2001       1.40              47          49              3                 1

Japan                      2002       2.80              10          13              4          70          3

Korea                      2004       2.90


Netherlands                2000       2.00              22          35              4          33          6

Norway                     2000       1.15              75          24              1

                           2002       1.08              80          20              0

Sweden                     2000                               98


UK                         1996       1.40                  46           44             6           1            2

                           2003        n.a.                 84                           16


(1) Number of beds per room
Source: Gray (2001) Two year review of reform (Australia); Federal Statistical Office (1999; 2001) (Germany); The
Ministry of Health, Labour and Welfare, Japan (2003) Survey on Long-Term Care Service
Institutions/Undertakings, 2002, Netherlands (2000) Branchnerapport Care; Netten et al. (1998) 1996 Survey of
Care Homes for Elderly People; Laing and Buisson Market survey, 2003 (UK); National Board of Health and
Welfare (2004) Care and services for elderly persons (in Swedish), and previous editions..

Note: UK, 2003 refers to private-for-profit institutions only, which, however, account for the majority of
nursing home places



Social Security, 2004). Reports by other think           with a capital stock as a buffer in the context of
tanks have recommended making fundamental                the aging population.
reforms of the way in which the current system
is financed (see German Council of Economic              Luxembourg. Luxembourg introduced a new arm

Experts, 2004). These proposals range from               to its social insurance system to cover long-term

extending mandatory social insurance to the              care in 1999.         Forty-five percent of this

whole population to introducing a funded system          insurance is funded from general taxation and



                                                     49

                        Financing Long-term Care: Lessons from 19 OECD Countries


requires a 1 percent individual contribution          provider or municipal official. All benefits are
based on salary or pension (which amounted to         paid according to a national scale and are
around 35 percent of funding in 2001). The            received as an equivalent amount of services.
remainder is funded from a special tax on             The user pays 10 percent of the cost of services.
electricity bills.   The new insurance scheme         The new system collects contributions from, or
provides benefits both in cash and in kind to         pays benefits to, almost half the population.
cover the cost of care at home or in an               Given its large scale, the introduction of the
institution, with benefits being calculated on a      scheme was assessed to have gone smoothly. It
sliding scale based on the extent of need for help    has also been very well received by the public.
with the activities of daily living (Inspection       As one of the main goals of the scheme, the
G�n�rale, 2003).                                      range of services to choose from was increased,
                                                      mostly     by   increasing    home-care    services.
From 1999 to 2003, Luxembourg's long-term             Between April        2000    and   October    2002,
care insurance had an annual budget surplus due       thenumber of home-care recipients almost
to the combination of fixed payments per care         doubled from 970,000 to 1,910,000 (97 percent)
level and only moderate growth in the overall         while institutional-care recipients increased by
number of recipients. Moreover, there has been        37 percent from 520,000 to 710,000.31
a significant shift in the balance of care between
2001 and 2004, with a larger share of care            The new insurance system, together with other
recipients now being cared for at home rather         service-related long-term care reforms, also had
than in an institution. This was one of the goals     the     goal      of     reducing     inappropriate
behind the introduction of the new long-term          hospitalization of older people. Previously, large
care system.     Projections on the longer-term       numbers of older people received long-term care
financial sustainability of the new system are not    in hospital.    The proportion of older people
yet available.                                        residing in institutions in Japan was reduced
                                                      between 1990 and �2000, partly due to reduced
Japan. Japan introduced public long-term care         institutionalization in hospital in the period
insurance in 2000, funded 50 percent from             before the new system came into force as new
general taxation (shared between central and          long-term care services were gradually put in
sub-national governments), 32 percent from            place. The new insurance system helps to pay
contributions from employees and 18 percent           for the nursing home and home-care costs of
from contributions from pensioners. There is no       those who would otherwise have been in hospital
single rate of contribution.          Instead, the    and subsidized by health insurance in previous
municipalities, which run the long-term care          years.32
insurance funds, levy whatever contributions are
necessary    to   cover    their  costs.     These    There is concern that the aging population in
contributions depend on income up to a specified      Japan will put increasing pressure on the current
maximum, and social assistance funds subsidize        system. Recent projections suggest that average
the contributions of those with the lowest            contributions per capita might have to grow by
incomes. Long-term care insurance is currently        as much as 80 percent within the next 10 years
restricted to people aged 40 and older. As a          to meet likely demand. In order to secure the
consequence, younger age groups with relatively       financial sustainability of the new long-term care
moderate care needs do not contribute to the          scheme in the long run, the government is
financial sustainability of the system.               currently considering trying to contain the costs

Assessment of need is done by a case conference
                                                      31
of health and social professionals according to a         These data come from Japanese replies to OECD
six-point scale based on the amount of help           questionnaire on long-term care.
                                                      32
required with personal care and household tasks.          For a full treatment of the Japanese system prior
                                                      to the introduction of the new insurance system, see
On-site visits and the completion of the              OECD (1996, Chap. 10). On the impact of the
assessment is usually delegated to a service          reforms on that system, see Matsuda (2002).


                                                  50

                         Financing Long-term Care: Lessons from 19 OECD Countries


of long-term care by implementing more                     Finally, it should be noted that introducing a
prevention strategies (Ministry of Health, Labor,          comprehensive public scheme does not have to
and Welfare, 2004).                                        be at the expense of reducing the coverage of
                                                           private long-term care insurance. In Germany,
Lessons from the Reform Process. While the                 the market for voluntary complementary long-
details of the reforms introduced in these four            term care insurance to meet additional costs not
countries differ significantly and it is still too         covered by the public scheme has grown
early to assess their long-term impact, they have          alongside the establishment of the public long-
some common features that are noteworthy.                  term care system. There are now some half a
First, all of them have been funded by additional          million such policies. The public scheme has
contributions.33 They are not a "free good" but            made such insurance affordable by covering the
so far the public has been willing to support              first tranche of the costs of long-term care.
them paying the extra contributions.
                                                           Reforms to Long-term Care within the Tax
Second, none of the schemes puts all of the                Envelope: Sweden, Australia, New Zealand, and
financial burden onto the working population               the United Kingdom
and employers.34 All of the schemes require
contributions from pensioners as well. In                  Countries that already fund both health and
addition, in Austria, Japan, and Luxembourg, a             social services largely from general taxation will
substantial share of the cost is spread across all         probably have no wish to adopt a social
age groups via general or earmarked taxation.              insurance system for long-term care.         This
Requiring contributions from all age groups,               section examines reforms in four countries that
including from the older population, is important          fund long-term care from general taxation.
if such schemes are to be sustained in an aging
society.                                                   Targeting within the Nordic model: Sweden.
                                                           Sweden has faced the problem of trying to fund
Third, all of the schemes were implemented by              long-term care within a very high-cost welfare
existing health insurance or social services               system in which additional expenditures were
agencies. These were agencies administering the            ruled out. Thus, reform required getting better
existing,     rather     fragmented       dependency       outcomes from existing expenditure while not
allowances in Austria, the health insurance                giving up the basic principles of the Swedish
schemes in Germany, and the municipalities in              system.    The approach that the government
Japan.     All had experience in assessing and             adopted has been to target services, and therefore
delivering benefits to the public, and the use of          public expenditure, to the most sick and disabled
these existing and well-known (to the public)              and requiring those with lesser disabilities to
mechanisms appears to have been instrumental               either buy private services or receive informal
in getting these new and extensive schemes up              care from their families.
and running.
                                                           The key reform that initiated a period of
                                                           considerable change in Swedish long-term care
33 Although these were indirect in Austria, higher         was the �del reform of 1992. This involved
health insurance contributions to cover the acute          devolving responsibility for all long-term care
health care costs of the elderly were a vital part of the  and related services (accompanied by a transfer
package, enabling the launch of a tax-funded scheme.       of    funds)   to   the   municipalities.    This
34There are limits to the extent to which contributions    responsibility had previously been divided
can be raised from employees and employers,                between the municipalities and the counties.
especially in countries where these contributions are      The counties retained responsibility for acute
already high and make up a big proportion of labor         care in hospitals, and, as part of their new
costs. If total labor costs are too high, this has
implications for the level of employment, with             responsibilities,   the   municipalities   became

resulting erosion of the contribution base. The same       financially responsible for older people who
caveat applies to some forms of general taxation.          were unnecessarily retained in hospital beyond


                                                         51

                       Financing Long-term Care: Lessons from 19 OECD Countries


the clinically necessary time (so-called "bed         received care during the nights and weekends,
blockers") as in principle they should arrange a      but by 1997, this had increased to 28 percent.37
suitable package of care to allow these people to     Charges to recipients were increased, but these
be discharged.                                        were then capped by the central government in
                                                      2002, together with charges for nursing homes.
One of the initial aims of the reforms � to reduce    However, recent projections of the future cost of
"bed blockers" � was successfully achieved. In        care of older people suggest that the pattern of
1990, it was estimated that as many as 15             care that has emerged following the �del
percent of hospital beds were occupied by "bed        reforms may be more sustainable over the longer
blockers," but this had been reduced to around        term than was previously thought (Lagergren,
6 percent by 1999. During these years, the            2002).   Taking into account recent trends in
counties also drastically reduced bed capacity by     improved health among older people results in a
30 percent in short-term care and 55 percent in       projection of a 20 to 25 percent increase in
geriatric care between 1992 and 1998.35               spending in real terms between 2000 and 2030,
                                                      which    is  significantly  lower    than   older
One outcome of this considerable change in            projections that used a simple demographic
hospital use has been a steady and significant        multiplier. Current policies rest on this latest
transfer of responsibility for long-term care to      projection. The main issue for the future is not
the municipalities.     As this coincided at the      how to curb the growth in cost of services but
beginning with a steep recession in the Swedish       rather is how to maintain � or increase � the
economy, municipalities were generally unable         level of employment among the working-age
to raise new tax expenditure to meet the costs of     group to secure the tax base to fund services and
this extended responsibility.          In addition,   benefits.
between 1990 and 1999, the central government
introduced various       controls    to   cap  local  Grappling with income and asset testing for
government taxation. The net result has been a        long-term care: Australia, New Zealand, and the
considerable    increase    in   targeting   and   a  United Kingdom. A major reform of long-term
qualitative change in the nature of the services      care was implemented in Australia in 1997. As
supplied.                                             the financing of institutional long-term care is
                                                      primarily     a     federal     (Commonwealth)
As a result, one of the aims of the reforms, � to     government responsibility, the reform process
create more "social" nursing homes � has not          was   highly   centralized,   with  the   federal
been met in the face of the overriding need to        government     consulting     with    community
"re-medicalize" nursing homes to cater for the        representatives and then implementing its
higher nursing and medical needs of residents         proposals.
(Johansson, 2000, p. 13).
                                                      A major issue for the government was the high
The impact on home care has been even more            projected growth rate of the over-80 population,
marked. Between 1990 and 1995, the proportion         leading to concerns about the sustainability of
of the older population supplied with home care       the pre-1997 system, which was primarily
shrank from between 13-14 percent to around 9         government-funded with small contributions
percent,  36a level that has been sustained since     from users. There was also some concern that
1995. However, the volume of help supplied to         the separate scales of subsidy for nursing homes
this smaller group was higher. For example, in        and for hostels (residential homes with some
1988, 16 percent of home-help recipients              care provided) led to inequities in treatment.
                                                      Hostels in many cases provided significant

35                                                    amounts of care, especially for older people
  The average length of stay in hospitals also fell,
very dramatically in the case of stroke victims from  suffering from dementia, but had a subsidy cap

56 days in 1989 to 13 days in 1999.                   that did not recognize this. This might have
36These data come from the responses to the OECD
questionnaire (see Table 2.3 in Chapter 2).           37See Johansson (2000).


                                                    52

                       Financing Long-term Care: Lessons from 19 OECD Countries


meant that these people would have to be                groups and the older public that service users
relocated to a different facility even though the       were having to spend down their savings to a
hostel would be willing to increase the level of        level that met the social assistance means-test
care that they were providing.                          level before they could receive any financial
                                                        help with their nursing and residential home
To address these concerns, the reform unified           costs. Charges for home care were set by local
nursing homes and hostels under one assessment          governments     according    to    different   local
and subsidy system and introduced income-               formulas,    which    led   to   concerns     about
tested fees to reduce the government subsidy.           inequitiesacross the country.       In 1997, the
From 1997, all facilities were unified into one         recently elected Labour government set up a
system that offers the full continuum of care.          Royal Commission to consider options and
The system was subsidized through a single              recommend a sustainable system of financing for
funding scale, the Resident Classification Scale,       the future.
which was designed to cover the full spectrum of
care needs in any location and to recognize the         The Commission argued in its 1999 report that
specific costs of caring for those with dementia.       long-term care is a risk that is best covered by
The reforms also unified the previously different       some kind of risk-pooling. Having considered
systems for paying for care and accommodation           and rejected other options for risk-pooling �
in institutions. Under the reforms, users now           such as private long-term care insurance and a
had three possible components of cost to meet �         social insurance scheme � the commission
a uniform basic contribution that was designed          recommended that nursing and personal-care
to be affordable to those receiving the public          costs, both for institutional and home-based
old-age pension, income-tested fees for care, and       services, should be financed from general
an    asset-tested   accommodation        payment.38    taxation in the same way as the National Health
Federal subsidies now met any costs not met by          Service is financed.
users under these rules.
                                                        The UK government responded to these
The outcome of the reforms was evaluated two            recommendations as part of a wider program of
years later.    The evaluation found that the           investment and reform in health services � the
reforms had made it possible to provide a               NHS Plan.     The government took a different
continuum of care, especially in hostels, and to        view of priorities in health and social care for
focus on the needs of those with dementia (Gray,        older people than that of the commission. It
2001).    They had also increased the average           accepted several proposals for ameliorating the
level of user payments through increased                means-testing mechanism and to correct the
income- and asset-testing, thereby generating           anomaly that nursing care in nursing homes was
enough finance to support the drive to raise            currently means-tested rather than provided free
standards in institutional care homes.                  of charge as in the health service. However, the
                                                        government argued that to make all personal
The UK government was also concerned in the             care free of charge would involve committing
late 1990s about the sustainability of financing        large sums of money with no increase in the
long-term care in the long run. However, it did         amount of services available to older people.39
not take the view that its current subsidy of           So in 2001 and 2002, the government introduced
institutional care was over-generous, unlike in         reforms that reduced the impact of means testing
the Australian case where institutional long-term       for institutional care without removing it
care subsidies had been available to most of the        altogether. It also issued new guidance to local
population.      On the contrary, there was
considerable concern on the part of advocacy
                                                        39In Scotland, however, following devolution of
                                                        responsibility for health and social care to the
38In Australia, the assets test excludes a significant  Scottish  Parliament,  the   commission's    central
part of the value of the family home, applying to       proposal to provide personal care free of charge has
long-term care the same rule as for pensions.           been accepted and implemented.


                                                      53

                       Financing Long-term Care: Lessons from 19 OECD Countries


governments to encourage a more consistent            notably by raising the age at which people
approach to charging for home care.                   qualify for the state pension from 60 to 65.

The New Zealand government that was elected           Conclusions about the Future Financial
in 2000 pledged to introduce a number of              Sustainability of Long-term Care
reforms to health and long-term care that were
designed to make the system more effective and        When confronted with the rising demand for
less costly to the users, as the quality and cost of  long-term care, some OECD countries have
care had been a growing public issue throughout       beenprepared to raise additional taxes or social
the 1990s.     As noted in Chapter 2, separate        insurance contributions specifically to finance a
streams of funding for health and long-term care      new benefit for long-term care.        They have
were brought together under the management of         justified this on two main grounds: (i) it
District Health Boards (DHBs) that are funded         represents the most efficient way of insuring
by the central government from taxation and that      against this risk; and (ii) it yields immediate
have assumed responsibility for all of these          benefits to the public in relieving them of high
services (acute health in 2000 and long-term care     personal costs or the need to apply for social
in 2003).                                             assistance when their savings have been
                                                      depleted.
Most institutional long-term care in New
Zealand is provided in licensed private care          Fortunately,    the   governments      who    have
homes, and around two-thirds of the residents         implemented these benefits have been able to
are eligible for state subsidies through the          use high-quality information to predict with
Residential Care Subsidy scheme.          However,    some accuracy the expected scope and cost of
some long-term care is still provided in public       the new benefit, which has helped them to avoid
hospitals, which were the major supplier of this      any immediate financial problems. While this
care in the past.      The more generous terms        has solved short-term problems by generating
available to users of the shrinking number of         additional finance, these countries now have a
public sector hospital beds were a major driver       significant new commitment to maintain in
of public criticism of means testing.                 economic bad times as well as good.           How
                                                      feasible this is may hinge on how far the health
Access to Residential Care Subsidies is income        of the older population improves in the future,
and asset-tested, these tests being administered      thus containing the size and needs of the target
on behalf of DHBs by the Ministry of Social           population. It is far from certain that the long-
Development. The subsidy formula is designed          term financial sustainability of their systems is
to keep private cost-sharing below a specified        assured.
maximum payment per week. In order to qualify
for the subsidy, the person must have assets          The governments of those countries with
below a certain level, leading some users to          universal long-term care coverage are concerned
"spend down" their assets, including housing,         about the financial sustainability of their systems
before qualifying for help.       The impact on       in the future as their populations age. In social
housing assets was a major public concern.            insurance    countries,   the   governments     are
To meet their election commitment, the New            currently discussing a number of options for
Zealand government has announced that asset           further reform such as improving prevention and
tests for institutional care will be phased out in    rehabilitation strategies and broadening the
stages from 2005, leaving a system of income          contribution base, for example, by seeking
tests that will on balance be more generous to        substantial    additional   contributions     from
the user than the current system. While making        pensioners.
a commitment to increasing public costs for
long-term care in future years, it is noteworthy      Those countries trying to live within a tax
that New Zealand has taken other measures to          envelope have faced difficult choices such as
reduce the public finance costs of aging, most        reducing the scope of services while targeting



                                                    54

                      Financing Long-term Care: Lessons from 19 OECD Countries


services to the sickest and most disabled people    Another area where more research will be
(Sweden).     Other countries with tax-funded       needed in the future is the role that preventive
systems have unified all of their systems of        measures targeted to the elderly could play in
subsidies and care assessments (Australia).         containing spending on long-term care. This is
Means testing has been tightened in Sweden          all the more complex because these measures
(where in the past benefits had been offered to     typically involve both health and long-term care,
most of the population) and increased for           which are often funded from different sources.
residential care subsidies in Australia but has     Private long-term care insurance as primary
been relaxed in New Zealand and the UK.             cover against disability in old age has played a
                                                    very limited role in most OECD countries (see
High private cost-sharing is a common cost-         Columbo and Tapay, 2005). However, private
containment measure for public long-term care       insurance might play a stronger role in the future
programs.     Even "universal" systems may          in providing voluntary complementary long-term
exclude important costs such as accommodation       care insurance to meet additional costs not
in nursing homes or services of low-level           covered by public programs.          This type of
support. It is currently too early to judge if      complementary       insurance     becomes    more
universal systems with cost-sharing are any         affordable when the public system covers the
more or less sustainable than systems based on      first tranche of the costs of long-term care.
means-tested benefits.




                                                55

                     Financing Long-term Care: Lessons from 19 OECD Countries


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Pickard, L., R. Wittenberg, A. Comas-Herrara,       Wolf, D.A., 1995.      "Changes in the Living
B. Davis, and R. Darton, 2000. "Relying on          Arrangements of Older Women: an International
Informal Care in the New Century? Informal          Study." The Gerontologist, Vol. 35/6, pp. 724-
Care for Elderly People in England to 2031."        731.
Ageing and Society, Vol. 20, Cambridge
University    Press,   the   United   Kingdom,      Zukewich, N., 2003. "Unpaid Informal Care
pp.745-.772.                                        Giving." Canadian Social Trends, No. 70,
                                                    Autumn.




                                                58

                                       Long-term Care in Germany

                                                Heinz Rothgang
                                     University of Applied Sciences, Fulda
                                           and University of Bremen

Introduction                                             factor.

After more than 20 years of debate, the Long-            Particularly after the reunification of Germany,
term Care Insurance Act of 1994 introduced               which put a severe burden on the economy and
mandatory long-term care insurance (LTCI) for            the    public    purse,    municipalities    were
practically the whole population of Germany              increasingly unable to bear the costs of
(see Haug and Rothgang, 1994). Interestingly,            providing social assistance to the dependent
the introduction of this new welfare state               elderly. Therefore, the introduction of a LTCI
component happened under a middle-right                  was also a way to lift this burden from
government during an ongoing period of                   municipalities by relieving them of their role as
austerity.40 There were many reasons for this            financing agencies for social assistance.
(see Campbell, 2002).           First, the "aging of
society" resulting from an ongoing declining             Nevertheless, the introduction of a LTCI must
rate of mortality accompanied by constant                not be seen purely as an expansion of the
fertility levels below the replacement rate caused       German welfare state arrangement. On the one
the number of dependent people in Germany to             hand, it was accompanied by cuts in other
increase. Even when the Act was passed, it was           welfare state programs, and the relevant federal
clear that the number of dependent people would          minister, Norbert Bluem, stated that these
rise over the following couple of decades.               retrenchments in some areas were made to make
Second, there was growing concern about who              it possible to expand others (FAZ from 22-4-
would care for these dependent elderly. The              1992). Thus, the introduction of long-term care
family as the traditional backbone of care was           insurance was part of a program to restructure
seen as a declining resource, while the                  the welfare state by adopting programs to face
infrastructure for formal care, both home care           "new risks" (such as long-term care and poverty
and nursing home care, was underdeveloped                due to single parenthood) at expense of
relative to other European countries (Alber and          programs that dealt with traditional social risks.
Sch�lkopf, 1999 and Sch�lkopf, 1999). Third,             In a way, this was an attempt by "old" social
due to rising fees for nursing homes, almost 80          politicians like Bluem but also by his social
percent of all residents of these homes were             democratic equivalent, Rudolf Dressler to save
dependent on social assistance, a situation that         the German system as a conservative welfare
was regarded, particularly by conservative social        state in the sense that Esping-Andersen (1990)
politicians, as a scandal.          According to the     has described.     Hence the introduction of a
prevailing conception of the welfare state, living       classical social insurance system based on the
a "normal life" (in other words, a life with a long      pay-as-you-go principle.
record of gainful employment or as dependent
spouse of such a person) should guarantee that           On the other hand, the newly introduced LTCI
no means-tested social assistance would be               contains new elements that can be seen as a
required in old age. This principle had clearly          natural extension of the ongoing restructuring of
been violated, and the fact that so many nursing         the welfare state.   For example, benefits are
home residents depended on social assistance             capped, the contribution rate is legally fixed, and
was the standard argument in favor of                    claims for benefits are assessed by an agency
introducing an LTCI from a social policy point           run by the LTCI rather than by providers of care
of view. The introduction of a LTCI, however,            (as in health insurance) in order to prevent moral
cannot be explained without adding a fourth              hazard. With respect to these new elements,
                                                         which together mark the shift from a needs-
                                                         driven to a budget-driven system (Rothgang,
40The latter is also true for the Japanese LTCI. See     1994), the new system contributed to the
Campbell and Ikegami, 2003 for an account of this.


                                                      59

                                        Long-term Care in Germany


reshaping of the welfare state in the age of        insurance are obliged to buy private (mandatory)
permanent austerity (Pierson, 2001).                LTCI guaranteeing at least as much coverage as
                                                    the public scheme does. Consequently, the same
The LTCI that resulted from these considerations    definition of dependency holds for both
has been operating for more than 10 years now.      insurance systems, though different agencies are
This paper discusses the peculiarities of this      responsible for making individual assessments.
system and its successes, failures, problems, and   As a result about 89 percent of the population is
reform options.41 The first section outlines the    now covered by the public LTCI and 9 percent
institutional framework of the LTCI. In the two     by the private LTCI. There are specific systems
subsequent sections, an account is given of the     for 2 percent of the population, including police
services provided by the LTCI and the fiscal side   and firemen.43 Since all insurance benefits are
of the system respectively. The fourth section      capped, private co-payments remain important,
assesses the system's problems and related          and means-tested social assistance still plays a
reform options, and the fifth section does the      vital role, particularly in nursing home care
same specifically for the health sector's           where about 30 percent of all residents still
financing system. The conclusion discusses the      receive social assistance. At the state level, the
lessons that can (or cannot) be learned from the    "Laender" (in other words, the 16 provinces
German experience.                                  with different legislation) are responsible for
                                                    subsidizing the building and modernization of
Long-term       Care    in    Germany:        The   nursing homes, thus reducing private co-
Institutional Setting                               payments and social assistance expenditure.

In legal terms, the "need for long-term care" (or   Public    LTCI      follows    the  pay-as-you-go
"dependency") refers to those people who are �      principle, while private mandatory LTCI is
as a consequence of illness or disability � unable  partially funded with the addition of individual
to perform the activities of daily living (ADLs)    saving accounts for the young that will yield
independently for an expected period of at least    income when the members grow older.             In
half a year.                                        principle, this mechanism should guarantee a
                                                    constant premium for the whole of the
Until the introduction of Long-term Care            contributor's life.
Insurance (LTCI) in 1994, there was no
comprehensive public system for financing long-     Public LTCI is financed almost exclusively by
term care in Germany. Dependent people or           contributions, which are income-related but not
their families had to pay for care services �       risk-related.   In the case of those who are
when they used them at all � out of their own       employed, employers and employees pay 50
pockets,    with   only    means-tested     social  percent each of the worker's premium.         The
assistance as the last resort for those who had     employers' part is tax-free.        In order to
exhausted their assets and could not otherwise      compensate employers, the federal government
afford the necessary formal care.       In effect,  abolished one national bank holiday. Originally,
approximately 80 percent of the people in           pensioners also had to pay half of the
nursing homes relied on social assistance.42 The    contribution, while the other half was financed
LTCI Act of 1994 established public long-term       from pension funds. Since 2004, pension funds
care insurance and mandatory private long-term      no longer contribute, leaving the whole premium
care insurance that together covers almost the      to be paid by the pensioners. In the case of the
whole population. Members of the public health      unemployed, their contributions are completely
insurance system become members of the public       financed     by      unemployment      insurance.
LTCI scheme, and those who have private health      Contribution rates are calculated as 1.7 percent
                                                    of gross earnings up to an income ceiling of
                                                    3,525 Euro per month (2005 figure). Income
41See also Rothgang, 2002a for an account in the    from other sources such as assets or income
Japanese language.
42 See Rothgang, 1997: 215ff. See also Pabst and
Rothgang, 2000 for the situation before LTCI was    43 For civil servants (Beamte), special additional
introduced.                                         systems (Beihilfe) remain in place.


                                                  60

                                        Long-term Care in Germany


from rent and leases is not considered in            how long it takes a non-professional carer to
calculating contributions. The contribution rate     help the dependent person (see Table 1).44
can only be changed only by an act of
Parliament.                                          The LTCI benefits are set by law. Beneficiaries
                                                     (and their relatives) may choose between
From 2004 onwards, insured people aged 23 or         different benefits and services. It is important to
older who have never been parents have to pay        note that this choice is up to the beneficiaries
an additional contribution rate of 0.25 percent.     and not to care managers, state agencies, or
This extra contribution was introduced to fulfill    long-term care insurance funds.           The LTCI
a verdict of Germany's Federal Constitutional        benefits are for home care, day and night care,
Court dating from 2001 ruling that families were     and nursing home care. People in home care can
disadvantaged by having to pay contributions as      choose between in-kind benefits for community
anyone else for themselves while also having to      care and cash benefits. Cash benefits are given
raise future contributors to the system (their       directly to the dependent person, who can
children) at their own cost. In economic terms,      choose to pass it on to a family carer. However,
families thus produce a positive externality that    there is no obligation for the dependent person
benefits for all insured people, and the Court's     to do so, and the use of cash benefits is at the
argument was that this benefit had to be             beneficiary's discretion.       Community care is
internalized in the interests of both efficiency     provided by both non-profit and for-profit
and justice (see Rothgang, 2001). While the          companies. Up to certain ceilings (see Table 2),
Court aimed to reduce the burden on families,        their bills are covered by LTCI funds. Cash and
the legislature instead raised the contribution      in-kind benefits may be combined.                 For
rates of those without children, ignoring the        example, if a family carer is on vacation, the
Court's justification that clearly indicates that    LTCI will cover the expense of a professional
the number of children is also relevant to           carer for a period of up to four weeks � up to a
determining just contributions.     Although the     ceiling of 1,688 Euro. This is a benefit in its
resulting regulation was criticized by all experts,  own right but is weighted against other claims
it was nevertheless implemented (Schm�hl and         for home care. There is also a small grant for
Rothgang, 2004).                                     special aides, and the insurance funds offer
                                                     courses for non-professional carers.
Public LTCI is administered by different LTCI
funds.    Since the benefits, as well as the         In nursing home care, the dependent person is
contribution rates, are common and all expenses      responsible for paying the costs of housing and
are financed by the sum of all contributions �       catering (so-called "hotel costs"). Hotel costs do
irrespective of which fund is responsible � there    not include the annuities resulting from building
is no competition between these funds.               or   modernizing      nursing     homes.       These
                                                     "investment costs" are partly financed by the
In contrast with the Japanese Long-term Care         provinces and partly by the nursing home
Insurance,    in    Germany,     entitlement    is   residents themselves. Only care expenses are
independent of the age of the dependent person.      co-financed by LTCI funds up to a certain
However, almost 80 percent of all beneficiaries      ceiling (see Table 2).        LTCI funds pay the
are 65 years old or older and more than 50
percent are at least 80 years old (own
calculations based on information from the           44Of course, there are also less dependent people who
Department of Health for 2004).               The    do not qualify for LTCI benefits. According to a
entitlement to claim benefits is based on whether    representative survey conducted in 2002, there were
the individual needs help with carrying out at       1.4 million dependent people in private households
least two basic and additional instrumental          who would qualify for LTCI benefits, but there were
activities of daily living (ADLs and IADLs for       also about 3 million older people who needed help,
an expected period of at least six months. Three     mainly with IADLs, who would not qualify for LTCI
levels   of   dependency      are   distinguished    benefits (Schneekloth and Leven, 2003, p. 7). Thus,
depending on how often assistance is needed and      in private households, there are about an additional
                                                     2.1 people in need of some help for every recipient of
                                                     LTCI benefits.


                                                   61

                                           Long-term Care in Germany


                                    Table 1: Definition of Dependency
                                    Level I:                  Level II                  Level III

     Need of care with     At least once a day with At least thrice a day at     Help must be available
         basic ADLs            at least two bADL       different times of the        around the clock
                                                                day

     Need of care with      More than once a week More than once a week More than once a week
    instrumental ADLs

     Required time for     At least 1.5 hours a day, At least 3 hours a day       At least 5 hours a day
         help in total     with a least .75 hours for with at least 2 hours for with at least 4 hours for
                                     bADL                      bADLs                     bADLs

 Source: � 15 SGB XI.




                      Table 2: Amount of LTCI Benefits (Major Types of Benefits)
   in Euro / per                      Home care                  Day and night care Nursing home care
   month

   Level                 Cash benefits       In-kind benefits     In-kind benefits      In kind benefits

   I � moderate                205                  384                  384                 1,023

   II � severe                 410                  921                  921                 1,279

   III � severest              665                1,432                1,432                 1,432

   Special cases                                  1,918                                      1,688

Source: ��36-45 SGB XI.




Table 3: Average Monthly Rates for Nursing Homes, LTCI Benefits, Co-payments in 2002

in             (1)           (2)            (3)            (4)            (5)            (6)
                                            = (1) + (2)                   = (1) - (4)    = (3) - (4)
Level of care care costs     Accommodati daily rate        LTCI           co-payments, Co-payment,
                             on and food    (investment    benefits       care costs     care and hotel
                                            excluded)                     only           costs
Level I        1.172         738            1.910          1023           149            887
Level II       1.558         738            2.296          1279           279            1.017
Level III      1.979         738            2.717          1432           547            1.285

Source: AOK




                                                      62

                                         Long-term Care in Germany



pension contributions of informal carers,45 who       provincial level have been abolished or are in
are also covered by accident insurance without        the process of being abolished.46 In theory these
having to pay contributions.       In general, all    needs-planning systems were meant to prevent
benefits are capped or given as lump sums.            under-supply by subsidizing, for example, the
Table 2 contains the respective amounts of            building of nursing homes.             In practice,
money for the most important types of benefits        however, this often meant that government
as laid down in the Sozialgesetzbuch, 11. Buch        agencies would not allow new providers to enter
(SGB XI). As the table shows, in-kind benefits        the    market     because   there    was     already
for home care are about twice as high as cash         "sufficient" supply to meet needs.
benefits, while day and night care is in line with
in-kind benefits. In grades I and II, benefits for    The LTCI funds and municipalities are expected
nursing home care are higher than for home            to create information centers to increase the
care. Only in grade III are benefits for all types    transparency of the formal care market and to
of formal care the same. This policy was aimed        correct any inaccurate information about LTCI
at preventing a shift towards nursing home care       activities and benefits. LTCI funds also have to
as a result of the introduction of LTCI.              provide comparative price lists to LTCI
                                                      beneficiaries, which have recently had to be
LTCI funds provide co-payments that, in               transformed into a list of prices and services.
general, are not sufficient to cover the costs of     Since the attempts to empower beneficiaries
formal care at home (see Rothgang, 2000) or in        have not been sufficient, additional legislation
a nursing home. As Table 3 reveals, LTCI              (pflege-Qualit�tssicherungsgesetz) was passed
benefits are even insufficient to cover average       in July 2001 that aimed to guarantee minimum
care costs. Since residents are responsible for       quality levels. Moreover, LTCI funds and
paying for hotel costs, co-payments are quite         providers have to sign contracts that regulate
substantial, particularly if an average monthly       quality standards. Unfortunately, these standards
amount of about 300  for investment costs is          relate to structure and process rather than to the
added.                                                outcomes of care. While the system of
                                                      regulation is tight in the area of formal care,
Moreover, there are no regulations concerning         there is hardly any quality control for the care
how benefits can be adjusted by the federal           provided by families.
government. Until the time of writing, benefits
have never been adjusted, not even for inflation,     The prices of formal care are agreed in a process
while prices for nursing home care, to give one       of collective bargaining between providers and
example, have gone up by 10 to 15 percent.            financiers, in other words, LTCI funds and social
Consequently, the purchasing power of LTCI            assistance bodies.        If agreements are not
benefits is declining.                                reached,      a    so-called   arbitration    board
                                                      (Schiedsstelle), whose members have been
The LTCI Act aimed to introduce competition           nominated from both sides, decides.
between providers of long-term care. To this
purpose, all of the privileges of non-profit          Provinces have the responsibility for financing
providers have been abolished, and the LTCI           investments in the provision of long-term care
funds are obliged to contract with any provider �     services. Regulations vary greatly among the 16
irrespective of need. Hence, barriers to entering     provinces. Some states directly invest in, for
the market have been torn down. In particular,        example, nursing homes, while others only
planning systems for service provision at the

45 The amount of contributions differs according to
the extent of the dependency of the person cared for  46Only gradually did all L�nder governments realize
and the time spent caring. Contributions to pension   that they must no longer prevent providers from
funds require a minimum of 14 hours of care work a    entering the market or subsidize particular providers
week. The minimum contribution paid is 26.7 percent   to give them an advantage against newcomers. This
of a full-time employee's average salary, while the   realization has mainly been due to recent rulings by
maximum is 80 percent of this amount.                 their respective courts.


                                                    63

                                         Long-term Care in Germany


provide subsidies for dependent older people         aim to integrate younger disabled people into
living in nursing homes who rely or would            working life.
otherwise      rely     on    social    assistance
(pflegewohngeld).       In order to help East        The beneficiary's opportunity to choose between
Germany to "catch up" with the former West           different care arrangements and respective
Germany, however, a special program was set up       benefits is one of the innovations of the LTCI
that invested about 500 million Euro a year in       Act. Therefore, it is interesting to take a close
the former East Germany between 1996 and             look at the development of these arrangements.
2003. The central government covered 80              In the next subsection, I review some patterns in
percent of this amount as long as the respective     the development of care arrangements over the
region provided the remaining 20 percent share.      last decade, and in the following subsection, I
                                                     discuss expected future developments.
With respect to regulation, collective bargaining
between providers of services and funds is the       The Current Situation
predominant governance structure within a neo-
corporatistic       framework        (gemeinsame     Long-term care insurance was phased in
Selbstverwaltung). Providers and payers agree        gradually. The first contributions were due in
on guidelines of good care and requirements for      January 1995, but benefits for home care did not
good quality that must be met if providers are to    start being dispensed until April. Nursing home
be allowed to enter the care market. At the          care benefits only came into being in July 1996.
provincial level (Landespflegeaussch�sse) and        Between 1997, the first year when the system
the   federal     level  (Bundespflegeausschu�),     was fully operating, and 2004, the number of
coordinating bodies have been established that       beneficiaries increased by about a quarter of a
include representatives of all of the relevant       million, which equals about 34,000 per year on
actors. However, these bodies are more of a          average.   The highest growth rates however,
forum for discussion and communication than          occurred in the early years of the system when
for decision-making.      In some regions, such      the population still had to get used to having a
coordinating bodies have also been established       right to benefits. In the last five years, an annual
at local levels (see Eifert and Rothgang, 1997 for   growth rate of 2 percent was exceeded just once
details). Generally, LTCI funds are the most         (Figure 1). Thus, there has been no "explosion"
important actors in the field.         They are      of the number of beneficiaries but rather slight
responsible for contracts with care providers        but steady growth. However, the gradual shift in
(including admission to the market and prices),      care arrangements is even more interesting
pay (for in-kind care), and cash benefits. The       (Figures 2 and 3).
Medical Services of the Health Insurance system
(Medizinischer Dienst der Krankenversicherung        From 1997 to 2004, the share of dependent
or MDK) perform the assessment to determine          people in public LTCI has increased from 27 to
whether an individual is entitled to benefits. For   32 percent (Figure 2). At the same time, the
private LTCI, Medicproof, a private company,         share of those dependents who are informally
carries out this task.                               cared for at home decreased from 78 to 72
                                                     percent (Figure 3). So, while about half of all
The Provision of Care                                dependent people are still cared for without the
                                                     involvement of any professional carer, this
Long-term care is often provided informally by       figure has fallen from 56.7 to 48.9. This drop of
families   and     friends   �  mainly    spouses,   7.8 percentage points clearly indicates the
daughters, and step-daughters � as well as           growing involvement of formal care services in
formally by public and private (profit and non-      care-giving.
profit) care providers. Formal care is provided in
private households (in other words, home care);      With respect to the levels of dependency, Figure
day and night care centers, and nursing homes        4 reveals that the share of dependent people who
for older people.       Long-term care is also       fall under level I is growing, whereas the share
provided in nursing homes for the disabled,          in both level II and level III has declined. Since
although in Germany these institutions mainly        the share of the very old (those aged 75 and
                                                     over) among the beneficiaries has not decreased


                                                  64

                                                                                    Long-term Care in Germany




                                                            Figure 1: Number of public LTCI beneficiaries
                            2,050                                                                                                 8,0

                            2,000                                                                       y = 0,0336x + 1,6727      7,0

 in                         1,950                                                                           R2 = 0,8904           6,0  .
                            1,900                                                                                                 5,0   rate
                            1,850                                                                                                 4,0
   beneficiaries         Mio                                                                                                                growth
                of          1,800                                                                                                 3,0

                            1,750                                                                                                 2,0
                                                                                                                                                  Annual
                  Number    1,700                                                                                                 1,0

                            1,650                                                                                                 0,0

                            1,600                                                                                                 -1,0
                                                          1997       1998      1999      2000     2001    2002      2003    2004

                                                                                              Year

                                                  Beneficiaries of Public LTCI in Mio.            Annual growth rate
                                                  Linear (Beneficiaries of Public LTCI in Mio.)



                                                                 Figure 2: Share of Dependent Persons in
                                                                    Home Care and Nursing Home Care
                                                    100%
                                                     90%
                            .
                                                     80%
                                                     70%
                                                     60%
                                                     50%
                             beneficiaries
                                          all        40%
                                             of      30%
                                               %     20%
                                                in
                                                     10%
                                                      0%
                                                              1996
                                                              (last 6    1997     1998     1999     2000    2001     2002   2003   2004
                                                             months)

nursing home care                                              23,3      27,1      28,7     28,9    29,6    30,1     30,5    31,0  32,1
home care                                                      76,7      72,9      71,3     71,1    70,4    69,9     69,5    69,0  67,9




                                                                                               65

                                                                                   Long-term Care in Germany




                                                                     Figure 3: Beneficiaries in Home Care
                        .

                                                          100%
                         care
                                                           80%
                             home
                                 in                        60%


                                                           40%


                                   beneficiaries           20%
                                                all
                                                   of       0%
                                                     %                 1996
                                                      in         1995  (last 6 1997  1998    1999    2000  2001  2002   2003   2004
                                                                      months)

in kind benefits                                                 7,9     8,9   9,6   10,6    11,5    12,2  12,2  12,3    12,6  12,7
combination                                                      7,9    11,4   12,6  13,5    14,5    14,8  15,2  15,2    15,1  15,3
cash benefits                                                    84,3   79,6   77,8  75,9    74,0    73,0  72,6  72,5    72,2  72,0




                                                                Figure 4: LTCI beneficiaries according to level of
                                                                                   dependency
                                                        60


  .                                                     50


                                                        40


                                                        30
   beneficiaries
                all
                   of                                   20
                     %
                      in                                10


                                                         0
                                                             1997    1998      1999     2000       2001     2002    2003      2004

Level I                                                      43,9    46,3      47,8      49,0      49,8     50,6     51,2     51,5
Level II                                                     40,7    39,3      38,3      37,5      36,9     36,3     35,8     35,6
Level III                                                    15,4    14,5      14,0      13,5      13,2     13,1     12,9     12,9




                                                                                            66

                                           Long-term Care in Germany



                   Figure 5: LTCI beneficiaries in nursing home care
                              according to level of dependency
    100%

      90%

      80%

      70%

      60%

      50%

      40%

      30%

      20%

      10%

       0%
                1997      1998        1999      2000       2001     2002        2003       2004

   Level III    24,5      22,1        21,1       20,6      20,1     20,0        19,8        19,8
   Level II     41,0      41,2        41,5       41,8      42,0     41,6        41,4        41,2
   Level I      34,5      36,7        37,4       37,6      37,9     38,4        38,8        39,0


but rather has slightly increased, this could be       family carers to the dependent people they care
the effect of tighter assessments by the MDK.          for. Not surprisingly, about three-quarters of all
                                                       main carers are female. However, over the last
Even more puzzling is the growing share of             decade, this share has decreased by 10
level I dependent people among beneficiaries in        percentage points. As the table shows, care by
nursing home care (Figure 5). The LTCI Act             spouses or partners has decreased over the last
states a preference for home care over nursing         decade from 37 percent in 1991 to 28 percent in
home care. Correspondingly, benefits for               2002, while the share of other groups among
nursing home care must only be granted if home         main carers on the other hand is fairly stable.
care is "impossible," which was thought to be          Today, 42 percent of carers are the children or
the case for dependent people in level III and         daughters-in law of the dependent elder, which
partly in level II but only rarely in level I. Thus,   highlights the importance of inter-generational
it was expected that there would only be a small       care and also the vulnerability of the care
and decreasing share of moderately dependent           system to the fact that the ratio of children to the
people in nursing homes.                               dependent elderly is declining.

As Figure 5 shows, however, the share of               With respect to formal care, the LTCI Act
dependent people in level I has been increasing        triggered an expansion of capacity.        In both
constantly, from 34.5 percent in 1997 to 39.0          nursing home care and home care, the number
percent in 2004. This can partly be explained by       of providers doubled between 1992 and 1997.
the benefit structure. For those in level I,           However, the official figures should not be over-
benefits for nursing home care are much higher         interpreted. As residential homes for the elderly
than for home care (Table 2), while co-payments        were re-founded as nursing homes and as
on the other hand are smaller than for those in        former informal help systems (such as those
levels II or III (Table 3). Thus, there are            organized by churches) transformed themselves
incentives for beneficiaries to choose nursing         into formal care providers, there are no valid
home care, particularly for those in level I who       time-series data showing the exact expansion of
may not always need that degree of care.               capacity before and after the LTCI Act. Table 5,
                                                       therefore, concentrates on the development from
Table 4 gives an overview of the relation of           1999 onwards for which reliable data exist.



                                                     67

                                          Long-term Care in Germany




                 Table 4: Main Carer of Dependent People in Private Households
Share in %                                      1991               1998                2002
Sex
  Male                                           17                  20                  27
  Female                                         83                  80                  73

Relation of Carer to Dependent Person
  Husband or (Male) Partner                      24                  20                  28
  Wife or (Female) Partner                       13                  12
  Mother                                         14                  11                  12
  Father                                          0                   2                   2
  Daughter                                       26                  23                  26
  Son                                             3                   5                  10
  Daughter-in-law                                 9                  10                   6
  Son-in-law                                      1                   0
  Other Relative                                  6                  10                   9
  Neighbor / Friends                              4                   7                   8
Residence of Main Carer
  Co-resident                                    78                  73                  62
  Separate Household                             22                  27                  38

Sources: Schneekloth and Potthoff, 1993, 126; Schneekloth and M�ller, 2000, 52; and Schneekloth and Leven,
         2003: 19.

                          Table 5: The Capacity of the Formal Care Sector
                                    Home Care                            Nursing Home Care
                   Number of        Employees         Full-time      Number of        Number of
                    Providers                       Employees         Providers         Beds
    1999             10,820           183,782          56,914           8,859          645,456
    2001             10,594           189,567          57,524           9,165          674,292
    2003             10,619           200,897          57,510           9,743          713,195
  1999-2001           -2.1             3.1               1.1              3.5             4.5
  2001-2003            0.2             6.0               0.0              6.3             5.8
  1999-2003           -1.9             9.3               1.0            10.0             10.5
Source: Federal Bureau of Statistics



                      Table 6: Projections of the Number of Dependent People
 Assumption about Age-specific      Growth in Number of Dependent                Source
       Dependency Rates                   People until 2040
            Constant                           50-75%               Hof, 2001
            Constant                            60%                 Dietz, 2002
            Constant                            60%                 Rothgang, 2002b
            Constant                            80%                 Ruerup �Commission, 2003
           Declining                            45%                 Rothgang, 2002b




                                                   68

                                        Long-term Care in Germany


While the number of providers and the overall       vanishing. This has been partly reinforced by
capacity of nursing home care (measured by the      the introduction of the LTCI, which regards
number of beds) are still growing, the picture is   long-term care as the responsibility of society as
more complex for home care. The number of           a whole, thus making clear that it is no longer a
providers decreased slightly between 1999 and       purely family obligation.
2003, while the number of employees grew.
Obviously, this must reflect a process of           Projections therefore assume a shift towards
concentration and also changes in staff structure   formal care, which, however, could either lead to
leading to a growth in the number of part-time      more nursing home care or to a strengthening of
employees. Overall, from 1999, (in other words,     formal home care.
well after the end of the initial boom to 2003),
capacity in home care stopped growing.              Fiscal Developments

Future Developments                                 While the last section dealt with the provision of
                                                    care, this section treats the other side of the coin,
In the future, the number of dependent people       that of financing. After giving an account of the
can be expected to grow and care arrangements       past and present situations, we present the
can be expected to change. According to OECD        results of some projections, thus laying ground
figures, the number of people aged 65 or older      for the discussion of reform debates and
and 80 or older will grow by 80 percent and 130     proposals in the following section.
percent respectively by 2040. Since these are
the age groups with the highest dependency          The Current Situation
rates, the number of dependent people will also
increase.   Projections based on constant age-      While beneficiaries tend to choose cash benefits,
specific and sex-specific dependency rates show     public LTCI funds spend more on nursing home
growth rates of between 50 and 80 percent.          care because this type of care has higher per
Assuming a decline in age-specific dependency       capita benefits. . Over time, the proportion of
rates (as assumed, for example, by Jacobzone et     LTCI spent on nursing home care is even
al, 1998) results in much lower but still           increasing (Figure 6). This demonstrates once
considerable growth rates (Table 6).                again the past and potential future fiscal effects
                                                    of a shift in long-term care towards nursing
As demonstrated above, over the last decade         home care.
formal care has partly begun to substitute for
family care. A further shift to formal care can be  What is most important for the sustainability of
expected to occur in the future due to at least     the long-term care insurance system, however, is
four factors. First, for demographic reasons        the balance sheet. As Figure 7 demonstrates, this
alone, the number of potential caregivers will be   balance has been deteriorating constantly from
declining.   The share of widowed dependent         high surpluses in the mid-1990s to considerable
elderly will decline as the war generation is       deficits in recent years. Current deficits can be
gradually replaced by post-war generations so       met by money in the reserve fund, which was
there will be fewer dependent elderly who need      accumulated in the first three months of public
to be cared for. However, the ratio of children     LTCI, when only contributions were paid but no
per dependent person is also declining. Second,     benefits were granted and which was further
female labor market participation is likely to      filled by the considerable surpluses of 1996 and
increase, which will increase the opportunity       1997.47 The deficits of 2003 and 2004 however,
costs of care-giving for women.           This is   started to drain this reserve fund, which will
reinforced by the fact that future female cohorts   only last until 2007/08 according to government
will be better educated and may earn higher         projections.
wages than their mothers and grandmothers.
Third, the share of single households among the
elderly is expected to grow (Alders and
Manting, 2003; Hullen, 2003; and Mai, 2003).        47   In 1995, a loan of 560 million  was given to the
Finally, as surveys reveal, the moral obligation    central government, which paid it back without
to care for dependent parents is gradually          interest in 2002.


                                                  69

                                          Long-term Care in Germany




                          Figure 6: Structure of expenditure on benefits
100%
 90%
 80%
 70%
 60%
 50%
 40%
 30%
 20%
 10%
           0%
                 1995     1996   1997   1998   1999    2000     2001       2002     2003       2004

                                                   Year
             Cash benefits                               Home care
             Respite care                                Contributions to pension funds for carers
             Technical Aids                              Nursing home care
             Others



                               Figure 7: Balance sheet of public LTCI
            5,000


            4,000



 .          3,000
  n
            2,000
   millio
         in
            1,000


                0


           -1,000
                    1995    1996   1997   1998   1999     2000     2001     2002     2003       2004

 Balance            3440    1180    800   130     -30     -130     -60      -380      -690      -823
 Liquidity          2870    4050   4860   4990   4950     4820     4760     4930     4240       3417




                                                   70

                                                           Long-term Care in Germany




                                 Figure 8: Growth Rates of Contributions and Expenditure
                         5,0


                         4,0

    .#
                         3,0
      year

                         2,0

          preceding
                   of
                     %   1,0
                      in

                         0,0
                                1998       1999          2000         2001        2002         2003          2004

                        -1,0

                                                                      Year

                                     Annual growth rate of expenditure    Annual growth rate of contributions



In order to explain this development, it is                             Comas-Herrera, 2003), and entitlement for LTCI
necessary to look at annual growth rates for                            benefits is based on a rigorous assessment by the
contributions and expenditure, which are given                          Medical Service of funds to preventing any ex
in Figure 8. In every year except 2001, the                             ante moral hazard, which might have been
expenditure growth rate was higher than the                             expected if service providers were to make these
contribution growth rate. Not that the growth                           assessments. A recent revision of the assessment
rates for expenditures were extraordinarily high.                       guidelines that aimed to reduce regional
Since 2000, the growth rate has exceeded 2                              variations in assessment results actually reduced
percent only once, and from 1997 to 2003, the                           the number of claims that were approved.
geometric mean was a mere 2.2 percent.                                  Second, all benefits are capped and have not
                                                                        been adjusted since 1995, not even for inflation.
The actual deficit has instead been caused by                           So, while the assessments have prevented any
disappointing                    growth   rates   for     (nominal)     explosion of the number of beneficiaries, the
contributions. From 1997 to 2003, the average                           benefit caps have controlled expenditure per
annual growth rate of nominal contributions was                         beneficiary. Of course there is a price to be paid
0.8 percent (geometric mean).                             In 2003,      for cost containment of this kind. First, the tight
contributions actually declined and in 2004, they                       definition of dependency has meant that people
remain practically unchanged.                       Thus, growth        with dementia are entitled to LTCI benefits only
rates of contributions have been much lower                             insofar as they need help with the activities of
than had been projected by government agencies                          daily living as the assessment does not evaluate
and researchers alike.                                                  or take into account the general need for
                                                                        supervision. Second, due to the benefit caps,
Both of these developments � the moderate                               there is still a large amount of out-of-pocket
growth                      rates  for  expenditure       and    the    payments, which is unusual for the traditional
disappointing growth rates for contributions �                          German social insurance system, and still
need to be explained. The moderate growth of                            considerable amounts of social assistance being
expenditures has been due to two major factors.                         claimed, which should have been reduced by the
First, the insurance system is based on a tight                         introduction of the LTCI. Moreover, the fact
definition of dependency (see Rothgang and                              that the benefits have never been adjusted in a



                                                                     71

                                            Long-term Care in Germany


decade has caused the purchasing power of                decades has been that the problems in one
LTCI benefits to decline, which will eventually          branch of the insurance system have often been
lead to a de-legitimization of this branch of            resolved at the expense of others. As for the
social insurance. This is why it is simply not           existing reserve fund, the LTCI has been used as
feasible to continue to control costs by capping         a melting cow for other branches of social
benefits but never adjusting their value.                security. In addition, LTCI contributions have
                                                         suffered from the general trends that have
The slow growth of contributions is partly an            affected all branches of social security, namely
effect of certain social policies. Certain changes       the reduction in the number of jobs that are
in social law have reduced contributions either          subject    to   social  insurance   contributions,
explicitly or implicitly. For example, in 2000           cyclical and structural unemployment, and low
the federal government reduced contributions for         (if any) rises in wages and pensions.
the unemployed, which have to be financed by
the unemployment insurance, because, at that             Thus, it is an irony of history that LTCI
time, it was beset with fiscal problems.                 financing is in trouble despite successful cost-
Similarly, the introduction of so-called mini-jobs       containment because of inadequate contributions
and midi-jobs, that is jobs earnings up to 400           partly caused by social policy regulations aimed
and 800  a month respectively, reduced the               at solving problems in other branches of social
amount of contributory income to the LTCI                security.   Even if contributions were to rise
funds as these workers are exempt from making            faster in the future, that would not be sufficient
regular contributions. This effect is likely to          to balance the LTCI budget because the ongoing
become yet more noticeable as normal jobs are            decline in the purchasing power of LTCI
increasingly    transformed      into      mini-jobs.    benefits    will   eventually    undermine     the
Something similar is happening to the old-age            legitimacy of the insurance system.
security system.      Since the public pension
system is disintegrating, the government has             As mentioned before, the capped benefits are
introduced new opportunities for sacrificed              insufficient to cover even the assessed needs of
compensation to give private providers an                the current number of dependent people in
incentive to enter the market, which also has            Germany. Consequently, both private financing
reduced the amount of contributory income. A             and social assistance still play an important role
general feature of social policy over the last           in    financing   long-term    care  (Table    6).


                          Table 6: Sources of Funding for Long-term Care
Source of Funding                           In million Euro     As % of Public /     As % of All
                                                               Private Spending       Spending

Public Funding                                  24,230                100                75
        Public LTCI*                            17,360                 79                60
        Private Mandatory LTCI*                  0,520                   2                2
        Social Assistance                        2,900                 13                10
        Investment Financing*                    1,070                   5                4
        Public Accident Insurance                0,080                   0                0
Out-of-pocket Private Funding** on:              7,220                100                25
        Nursing Home Care                        5,050                 70                17
        Home Care                                2,170                 30                 7
Total                                           29,160                                  100
Notes:  *        Cash allowances are included **     Estimated.

According to the figures in Table 6, about one-          which means that this system is still very
quarter of all funding is out-of pocket, and             important in the financing of long-term care.
another 10 percent comes from means-tested
assistance. About 80 percent of public funding           Social assistance expenditure on nursing home
and 60 percent of all funding comes from LTCI,           care nowadays is less than one-third of what it



                                                      72

                                                         Long-term Care in Germany



                                    Figure 9: Social assistance for nursing home care:
                                          Number of beneficiaries and expenditure
                                300                                                                         6.000


                                250                                                                         5.000

           .                                                                                                        .

                                200                                                                         4.000    

            tsd.                                                                                                     tsd.
                in                                                                                                       in
                                150                                                                         3.000


                                100                                                                         2.000

                  beneficiaries                                                                                            expenditure
                                 50                                                                         1.000


                                  0                                                                         0
                                    1994  1995    1996   1997    1998   1999    2000  2001    2002  2003

      beneficiaries                 268    288    219    187     160     191     203   196    186    187
      expenditure                   5.796 5.755 4.453 2.133 1.894 1.923 1.895 1.910 1.948 1.905


was in 1995. The number of beneficiaries has                            in expenditure of up to 0.5 percent per year can
also dropped considerably but still is about two-                       also be expected. If we assume that benefits are
thirds of the 1995 figure (Figure 9).                          The      likely to be increased by about 2 percent per
introduction of LTCI has not been as successful                         year, this adds up to a 4 percent growth rate per
in terms of the number of beneficiaries as it has                       year in expenditure, which simply cannot be
been in terms of reducing the fiscal burden on                          financed if the contribution rate stays the same.
municipalities.
                                                                        Table 7 contains the results of some projections
Future Developments                                                     on the contribution rate that all assume rising
                                                                        real wages but differ with respect to what drives
Projections can be made concerning the                                  the adjustment. As long as benefits are adjusted
expenditure of public LTCI funds and the                                only for inflation, the current contribution rate
contribution rate. Due to demographic changes,                          will suffice albeit with deteriorating purchasing
both the number of beneficiaries and the funds'                         power. However, as soon as we assume that an
expenditure levels can be expected to increase                          adjustment will be made (partly) according to
by about 1.2 to 1.5 percent per year. Due to                            wages, the contribution rates are projected to
changes in care arrangements, an additional rise                        rise.

                                            Table 7: Projected Contribution Rate in 2040
   Projections                            Adjustment according to                           Source

     1.6 � 2.1                                    Inflation                             Rothgang, 2002a

     3.6 � 3.9                            Average wages and salaries                    Rothgang, 2002a

       3.0                               (Average wages + inflation) / 2           Ruerup �Commission, 2003


Reforming Market Regulation and the                                     regulation and to the benefit structure. While
Benefits Structure                                                      some debates have already led to changes in the
                                                                        institutional structure, most center on future
Part of the reform debate relates to market                             reforms.



                                                                     73

                                         Long-term Care in Germany


Market Regulation                                    disadvantage. Even worse, social assistance was
                                                     denied if dependent person were to go to a
With respect to market regulation, two issues        nursing home that did not receive public
have dominated the debate � the relationship         subsidies.   Thus, the market was effectively
between competition and planning on the one          closed to newcomers.       However, following a
hand    and     the   mechanisms      by     which   ruling from the Federal Court of Social Law in
remuneration for nursing homes is determined         2001, regulations of this kind were abolished or
on the other.                                        are about to be abolished.      Today therefore,
                                                     provinces have reduced their planning activities
Competition and Planning. While competition          and are allowing more competition.
between health insurance funds was introduced
in the early 1990s, there is no competition          Remuneration of Nursing Home Care. Daily
among LTCI funds. All funds offer identical          rates for nursing homes are set as a result of a
benefits and require an identical contribution       bargaining process between LTCI funds and
rate and have identical contracts with providers.    social assistance agencies on the one side and
Moreover, an equalization scheme guarantees          the providers on the other side.        Rates are
that   all   expenses    are   covered    by    all  differentiated according to three classes that by
contributions. Hence, in effect, all funds are just  and large follow the three levels of care.
branches of one LTCI. Competition is among           Recently, this system of pricing has been
(contracted)   providers    for   contracts   with   challenged on three counts.
dependent people and their families, who choose
not only among different providers of services       First, the legitimacy of the bargaining system
but   also    between      two    different   care   has been questioned.       Funds negotiate with
arrangements, in other words, between buying         providers over rates for care although they only
formal care or relying on the help of family or      finance benefits that fall well below those rates.
friends. The choice between cash benefits and        Furthermore, they are also responsible for
in-kind benefits enhances this make-or-buy           negotiating rates for accommodation and food,
decision for each household. As the increased        which they never finance and are thus not
use of formal services implies a reduction in the    affected by the results of negotiations. This also
receipt of cash benefits, there is an implicit co-   applies to municipalities, which negotiate on
payment for all service use that prevents over-      behalf of residents of nursing homes who never
use and produces some price elasticity of            receive any social assistance. Funding agencies
demand.                                              thus negotiate only as advocates for their clients
                                                     without being (fully) affected by the results of
The    intensity   of    competition    in   these   the negotiations. Therefore, many experts are
circumstances heavily depends on how much            now advocating in favor of introducing market
access providers have to the market. The LTCI        pricing in those regions with sufficient supply of
Act tried to intensify competition by stripping      providers. As residents of nursing homes are
public and private non-profit providers of all of    captive consumers, it would be vital to
the privileges that they had traditionally had.      implement regulations to protect them from
Moreover, the LTCI Act entitles every provider       abrupt rises in rates. Similar regulation already
that fulfils certain formal criteria to a contract   exists for rented flats. Furthermore, a maximum
with the LTCI funds � irrespective of need.          rate would have to be fixed for recipients of
Since benefits are capped and providers do not       social assistance, for example, based on the
assess beneficiaries' entitlement to benefits, the   average rate. For those users not eligible for
federal government did not regard oversupply as      social assistance, the co-payment resulting from
a problem for the system.                            capped benefits would act as an incentive
                                                     against ex post moral hazard.
At the provincial level, however, this was seen
differently. Laender governments restricted their    Second, the unit for pricing has been challenged.
subsidies to those nursing homes that they           Since only three classes exist, there is a lot of
regarded as "necessary."         Without public      heterogeneity within each class. Thus, nursing
subsidies, the daily rates were higher, putting the  homes must charge the same rate for people
nursing homes that did not receive subsidies at a    needing very different amounts of care. Even if


                                                   74

                                         Long-term Care in Germany


the number of classes were to be increased to        initiative.
five as in Japan, the problem would still exist. A
more fundamental change would be to introduce        Benefits for People with Dementia. By now, all
the same units as in formal home care, which is      political parties and all experts agree that people
about      two     dozen     service     packages    with    dementia    are   discriminated    against.
(leistungskomplexe)     such   as   bathing    and   Dependency is defined only with respect to
morning toilet. This would also help to blur the     ADLs without taking into account the particular
distinction between home care and nursing home       needs of people with dementia. Consequently,
care. Alternatively, classification systems such     many people with dementia do not qualify for
as those used by the Resource Utilization Group      LTCI benefits or receive benefits for moderate
System      could    be   implemented,      which    dependency (level I) even though they need care
distinguishes among 44 classes of dependency.        and supervision around the clock. From 2002
                                                     onwards, additional benefits for dependent
Third, the base for price negotiations itself is     people with dementia in home care were
being    questioned.      Although     prospective   introduced as a first step towards solving this
budgeting is used, in practice the costs incurred    problem. These benefits are earmarked for day
by each nursing home in the past still influence     and night care, respite care, or related services.
what daily rate it can achieve in the negotiations.  However, the maximum annual amount to be
Therefore, nursing homes have no incentive to        spent on those additional services was set at a
strive to make efficiency gains.           If the    mere 460. This low ceiling may be the most
remuneration on the other hand were based on         important reason why in 2003 only 30,000
the average costs incurred by nursing homes in a     people applied for this specific benefit out of an
given region, then this would give all of those      estimated 400,000 people who were likely to be
homes an incentive to increase efficiency.           entitled to it (BMGS, 2004).        So while the
                                                     government originally expected to spend an
Although     the   pricing   system    has    been   additional 250 million  on this benefit, in 2003
questioned, for example, in a recent report from     it spent only 13.4 million .
the province of Northrhine-Westfalia (Landtag
NRW, 2005), reforms are unlikely to be adopted       The most straightforward way to resolve the
in the near future as other questions are more       problem would be to change the (legal) concept
pressing.                                            of dependency and establish a definition that is
                                                     not based on ADLs and physical needs alone.
The Structure of Benefits                            As the fiscal consequences of such a bold move
                                                     are difficult to calculate, this has not been
There are two major issues currently being           seriously     discussed     among       politicians.
discussed with respect to the structure of           Politicians of all parties rather favor a more
benefits � the introduction of additional benefits   modest solution that is likely to be included into
for dependent people with dementia and the           the next reform bill � granting all people who
equalization of benefits for formal home care        suffer from dementia an addition need of care of
and those for nursing home care. The so-called       30 minutes a day in their LTCI assessment.
Ruerup Commission (the commission for                While this will put some people into a higher
achieving financial sustainability for the social    category of dependency, it will allow others to
security system) made suggestions about both of      qualify for LTC benefits for the first time. The
these issues, which were picked up in a reform       government estimates that this will cost an extra
bill that was prepared in the winter of 2003/04.     500-750 million , which is the amount of
However, the reform proposal was shot down as        money that could be spent additionally on
a whole by the German chancellor, Gerhard            dementia.
Schroeder, who felt that his pension and labor
market reforms had caused enough trouble for         Equalizing Benefits for Formal Home Care and
his government at that time.        Therefore, he    Nursing Home Care. Another element of the
decided to postpone any LTCI reform that would       failed reform of the winter of 2003/2004 was the
require the population to make more sacrifices.      attempt to equalize benefits in formal home care
So it was not the content of the reform but rather   and nursing home care. This proposal is also
its timing that put an end to this reform            likely to be implemented one way or the other in


                                                   75

                                         Long-term Care in Germany


the reform that will inevitably be decided upon      Adjustment of Benefits
after the general election this autumn (2005).
The starting point of the proposal is a reversal of  There is a general consensus that LTCI benefits
a perverse incentive in the current benefit          must be adjusted if the system is to survive.
structure.   In levels II and III, benefits for      This could be done more or less regularly at the
nursing homes are much higher than benefits for      discretion of politicians or by the introduction of
formal home care, thus creating an incentive in      an    adjustment    mechanism,      which   would
favor of nursing home care, particularly in level    guarantee an automatic adjustment according to
I where � generally speaking � nursing home          some pre-agreed formula. Given what is known
care is least necessary. This incentive would be     about other branches of social security, only an
abolished if benefits were the same for formal       adjustment mechanism will yield a regular
home care and nursing home care. There would         adjustment. Since future economic development
be another advantage of such an equalization.        is always hard to project, adopting any system
Today,    each    care  arrangement     must    be   with a fixed adjustment rate of X percent per
categorized either as nursing home care or as        year is doomed to fail as the rate is likely to be
home care. Alternative care arrangements such        considered either too high or too low depending
as small groups of dependent people living           on the prevailing economic situation. Therefore,
together in a flat suffer from the legal             any     formula     should     relate   to    such
restrictions caused by this dichotomy.      Equal    macroeconomic indicators as inflation or the rise
benefits for all types of formal care would help     in    average   (nominal     and   gross)  wages.
to minimize this kind of restriction.                Assuming that wage increases in the care sector
                                                     are similar to those in the rest of the economy
The fiscal effects of this equalization, however,    and assuming further that in the long run wages
would depend on how the benefits were                are the major determinate of the price of labor-
equalized.    If this were achieved simply by        intensive care services, adjusting benefits
cutting benefits for residential care, this can be   according to the rise in average wages seems to
expected to lead to a decline in LTCI                be the perfect indicator if their purchasing power
expenditures but also an increase in the number      is to be maintained.
of recipients of social assistance. Also, making
moderate cuts in benefits for nursing home care      Radical Reform
while at the same time increasing benefits for
professional home care would have unclear            The two main radical reforms that have been
fiscal   consequences    due   to   the   possible   suggested as a way to finance LTCI are to
substitution of cash allowance by (higher) care      integrate LTCI and health insurance or to abolish
service benefits.                                    LTCI in favor of either a tax-funded system or a
                                                     (mandatory) funded private insurance scheme.
The System of Financing
                                                     Integrating LTCI and Health Insurance. The
The financing of the health sector is another        suggestion to abolish the separate LTCI and
major issue on the reform agenda. The current        integrate long-term care into health insurance is
deficit of LTCI funds is the starting point for      as old as the insurance system itself. Recently it
most reform debates, which therefore tend to         has been discussed (favorably) by the Enquete
revolve around fiscal issues. Allowing benefits      Commission (2002) and (less favorably) by the
to be adjusted is one issue that is rarely missed    Ruerup     Commission      (2003).      Advocates
out of any proposal . In order to fund such          emphasize the fact that elderly people suffering
adjustments, two different kinds of proposal         from several different conditions would be better
have been made � radical reforms and reforms         able to receive integrated care under this
within the current system. We consider each of       arrangement.     Today, LTCI funds have no
these in turn in this section and then discuss       incentive to pay for rehabilitative measures that
whether any of these proposals are likely to be      could reduce dependency because the expenses
implemented and whether they would solve the         of long-term care are financed by all of the
problems at hand.                                    funds together. On the other hand, integrating
                                                     LTCI and health insurance has dangers and
                                                     disadvantages as well. Given the relative weight


                                                   76

                                         Long-term Care in Germany


of both areas, most likely long-term care issues     older generation cannot bear the financial
would be dominated by health issues.         Even    burden of their own insurance by themselves,
today, the long-term care divisions within the       they have to be subsidized by the younger
LTCI funds are rather weak and after any             generations.     Any kind of switch towards a
integration, this domination would be likely to      funded system would transfer the future burden
increase. The same applies on the service side.      into the present and would necessitate enormous
As highlighted by Ikegami and Campbell (2002:        increases in contributions since benefits for the
721f.), in an integrated system, medical doctors     elderly would have to be financed at the same
tend to predominate over nurses, with the result     time as capital stock would have to be build up
that terminal care is over-medicalized and           (a double burden). Moreover, this move would
rehabilitation is under-medicalized.                 not solve the system's current fiscal problems
                                                     but in fact would increase its actual problems.
The introduction of competition among LTCI           Therefore,      only   the  small    Liberal   Party
funds would be a more moderate solution to the       advocates such a policy, which means that a
lack of incentives for funds to care for             switch of this kind seems very unlikely in the
dependent people.        As a consequence, the       near future.
contribution rate could no longer be legally
fixed, and each fund would be able to set its own    Introducing      a    Mandatory      Supplementary
rate. As is well known from the experience of        Funded System. To avoid the double burden,
the   health    insurance    system,   introducing   some have advocated a hybrid system that
competition also requires the introduction of a      combines public LTCI with a mandatory
risk-equalization scheme.                            supplementary funded system.         Basically, the
However, neither option is likely to be              existing LTCI would remain untouched � with
implemented in the next reform, because such         nominally fixed benefits, which could be
schemes are inevitably complicated and as such       financed at the present contribution rate.       To
tend not to be vote-winners.        Moreover, the    compensate for the declining purchasing power
administration seems to be overloaded with           of these benefits, each person would be obliged
complicated reforms in the health care area          to buy private supplementary insurance. The
already.                                             benefits of this insurance would be set at
                                                     whatever level would be necessary to fill the gap
Replacing LTCI with a Tax-financed System.           caused by missing adjustment in public LTCI.48
During the discussions leading up to the LTCI        The monthly premium would be 8.5  per
Act, policymakers also discussed a means-tested      person.       It would neither income- nor risk-
tax-financed system but ultimately dismissed         related. Each year the premium would rise by 1
this alternative. Recently, one member of the        .
Ruerup Commission started the discussion
again, but the proposal was dismissed within the     This model would avoid dramatic rises in
Commission.      As all major parties favor an       premiums and has no legal pitfalls as everyone
insurance system, the replacement of LTCI by a
tax-financed system seems extremely unlikely.
                                                     48  The proposal assumes a proper adjustment of LTCI
Switching to a Funded (Private) System.              benefits of 2 percent per annum, and the mandatory
Switching to a funded private system has mainly      supplementary insurance to fill the gap between this
been suggested by those economists who               proper benefit and the nominally fixed LTCI benefits.
generally favor funded systems. Basically, they      Benefits for the supplementary system can therefore
have suggested two variants of this idea. First,     be calculated as:
the Kronberger Kreis (Donges et al, 2005), a         Bsup = (1,02t � 1) * Bpub,
                                                        B


group of conservative economists, has suggested      with Bsup denoting the benefits of the supplementary
                                                             B


completely switching the whole population at         system, Bpub the (nominally fixed) benefits of the
                                                                  B


once. Alternatively, the Council of Economic         public system, and t the number of years after the
Advisers (2005) advocates a cohort model in          introduction of the supplementary system.
which only those born after 1950 switch to a         After 35 years, the benefits for the supplementary
private funded system while older people remain      insurance would be as high as those of the public
in the traditional social insurance system. As the   LTC.


                                                  77

                                          Long-term Care in Germany


remains in the existing system. In the long run,      Additional     Contributions    for    Pensioners.
however, it would put a considerable burden on        Current pensioners gained windfall profits when
households,     particularly    on     low-income     LTCI was introduced as a pay-as-you-go system.
households, which would suffer from the               This fact can be used as a rationale for
abolition     of    income-related       premiums.    introducing an additional contribution for
Furthermore, administrative costs would be            pensioners as has been suggested by the Ruerup
fairly high as another system would have to be        Commission. Such an additional contribution
built up for comparatively very low benefits and      would in effect counteract this initial "present"
premiums.     Finally, the co-operation of both       from the elderly. As windfall profits get smaller
insurance systems would have to be secured,           as the younger cohorts also get smaller, the
which      might    prove     difficult,   because    justification for a pure additional contribution
supplementary insurance benefits would be low         will vanish over time. To compensate for this,
immediately after the introduction of this            the introduction of an additional contribution for
scheme but would grow continuously until they         pensioners could be combined with a new
were higher than the benefits from public             compulsory requirement on younger generations
insurance.                                            to contribute to a private funded pillar of the old-
                                                      age security system. This would enable them to
Despite these problems and disadvantages, this        pay the additional contribution once they
model is highly favored by the Christian              become pensioners themselves.        In effect, an
Democratic partly, which is most likely to form       extra element of funding would be introduced
the incoming government.                              without the need to introduce a supplementary
                                                      LTCI.
Reform within the System
                                                      As normative justification is possible and the
Other than these radical reforms, there are           potential fiscal effects are substantial, this could
several options for making reforms within the         be an important element in any financing
system, that is reforms that neither abolish          reform. Unfortunately, pensioners have recently
public LTCI nor supplement it with an additional      been subjected to cuts in their pensions.
system, but rather concentrate on changing the        Therefore, any additional LTCI contributions
parameters of the existing financing system.          from pensioners must been discussed against the
                                                      background of social policy in general and old-
Tax-financed Subsidies or Contributions to the        age security policies in particular.
Insurance System. Both pension insurance and
health insurance receive tax-financed subsidies       Raising the Contribution Rate. The easiest way
or contributions that are fed into the system.        to raise additional funds, however, is simply to
Obviously, this raises the question of whether        raise the contribution rate. This can be done
something     similar   is possible     for LTCI.     without much administrative effort and will
However, making tax-financed subsidies to             yield additional revenue at once. Even when the
insurance systems needs to be justified.              system was first introduced, policymakers
Particularly    in    pension    insurance,    the    anticipated that they would increase the
justification centers around the idea that the        contribution rate. A moderate rise could not
insurance scheme also provided benefits that are      harm the country's economic performance and
out of its control and rather are governed by, for    would     hardly    affect   the   labor    market,
example, the area of family policy. With respect      particularly if it were combined with a freeze on
to LTCI, it could be argued that insuring children    the employers' contribution.
without contributions is one kind of family
policy that should be tax-financed. Accordingly,      If any rise is moderate, any fiscal effects would
tax-financed subsidies to LTCI or tax-financed        be limited as well. Nevertheless, a moderate rise
contributions for children could be justified.        in the contribution rate could be introduced as
Since children produce about 5 percent of all         part of a sensible package deal. For ideological
public LTCI expenditures, it might be reasonable      reasons, however, this is unlikely to happen. As
to expect the public purse to contribute the same     all major parties agree that social security
amount. Of course, this could only be one small       contribution rates must be reduced, the current
part of any fiscal reform.                            rate of 1.7 has become a kind of a dogma.


                                                   78

                                           Long-term Care in Germany


Buergerversicherung.       The Social Democratic       be cut. Third, sources for additional revenue
Party (at least its left wing) and the Green Party     might be discovered and exploited.
both favor transforming the existing long-term
care (and health) insurance into a citizens'           In Germany even today, eligibility criteria are
insurance (buergerversicherung). As the current        tighter than in Japan (Campbell, 2002) or in
government is expected to lose the next general        other countries (Rothgang and Comas Herreras,
election in the autumn (of 2005), this concept as      2003). Moreover, the number of beneficiaries is
a whole has little chance of being implemented.        growing at a moderate pace, and on average the
Since it is the counterpart of right-wing concepts     assessed level of care is declining. A recent
of a funded system or insurance based on flat          report concludes that the declining level of
premiums, it is worth exploring.                       assessed need is due to tighter eligibility
                                                       assessments as there is no evidence that the real
The concept is based on two elements. First, all       level of need is decreasing (Landtag NRW 2005:
citizens should be part of one insurance system.       457, own translation). Therefore, there is little
When implemented, this principle would mark            room to make even tougher assessments in the
the end of a separate mandatory private LTCI.          future.
Second, contributions should be based on all
sources of income, not just on income from             Cutting benefits has been the predominant policy
gainful employment (and derived benefits as            of the last decade. Since benefits are nominally
benefits for the unemployed and pensions).             fixed, this policy could be executed smoothly
Both    elements     combined      would    increase   simply by not allowing the benefit caps to be
horizontal justice as all types of income would        adjusted. Although there has hardly been any
become contributory, and it would also increase        protest against this practice in the past, it seems
vertical justice as high-income groups would           impossible to continue this policy forever. Too
participate in redistribution without being able to    many commissions and reports have brought up
opt out. The combined insurance would also             this issue, and by now the deteriorating real
attract additional revenue equivalent to an            purchasing power of LTCI benefits is being
increase in the contribution rate of up to 0.2 to      discussed in the media. Cuts in remuneration
0.5 percentage points.         There are, however,     would not reduce LTCI expenditure as this
administrative and legal problems connected            cannot be done as long as benefits are fixed.
with both elements and only the former element         Reduced remuneration would increase the
is favored by the Council for Economic Advisers        purchasing power of benefits and thus ease the
and other more conservative groups. Thus, there        pressure to allow them to be adjusted. On the
is a chance that the whole population would be         other hand, cuts in remuneration could make
forced to enter the public system if this were         formal    care   benefits   more    attractive   to
combined with a radical reform of public LTCI.         beneficiaries and thus reduce the extent to which
                                                       they choose (cheaper) cash allowances. So this
Discussion                                             would in fact increase LTCI expenditure.

Due to demographic changes, the number of              In a nutshell, cuts are no way to deal with fiscal
dependent elderly will continue to increase over       problems as this strategy has been used
the next decades. Although it might be possible        exhaustively during the last decade.             In
to influence the speed of this increase by             recognition of this, recent debates about reform
prevention and rehabilitation and although the         have concentrated on the final option �
fiscal effects of reduced dependency rates are         identifying new sources of revenue.
considerable, there are no policies for long-term      Radical reforms are unlikely to be adopted as the
care on the political agenda.                          political costs would be enormous, and the
                                                       system is too small (and unimportant) to make it
Generally speaking there are three remaining           worthwhile to start a public relations campaign
options to deal with demographic changes.              on this. This is why solutions within the system
First, the eligibility criteria could be tightened in  are more likely or rather solutions that combine
order to moderate the expected increase in the         new elements with the existing system.
number of beneficiaries.         Second, individual
benefits and/or remuneration for providers could       The obvious way to deal with the fiscal crises, in


                                                     79

                                           Long-term Care in Germany


other words, to increase the contribution rate,        management. Second, there are those problems
cannot be done for ideological reasons.          The   that could easily be solved if more funding was
buergerversicherung idea is associated with the        available. For example, the narrow concept of
present government, which has very little chance       dependency      leads     to    the   neglect   of
of being re-elected.       Thus, a supplementary       communication needs in general and the
privately funded system seems to be the most           particular needs of people with dementia. Tight
feasible option as it is ideologically sound           budgets cause understaffing in nursing homes,
(funded private insurance) without causing too         and the nominally fixed benefits of the LTCI
much opposition as the initial additional              have caused their purchasing power to decline.
financial burden would be too small to engender        Finally, the collapse of revenue in particular has
much conflict.                                         caused the public LTCI to incur increasing
                                                       deficits, which are at the heart of all current
Lessons from Germany                                   reform debates.

In order to learn any general lessons from             Generalizations
Germany, it is necessary to reassess the
successes of the German LTCI on the one hand           Based on this account at least three lessons can
and its failures and problems on the other hand.       be learnt from the German experience. First,
                                                       cash allowances can help to stabilize family care
Successes and Failures                                 and thus expenditure on long-term care. More
                                                       than half of all dependent people are cared for
At least five major successes have to be               without the involvement of any professional
mentioned. First, due to the introduction of a         carer. Although the data clearly reveal a trend
public LTCI that followed the pay-as-you go            towards formal care, there can hardly be any
principle, immediate benefits were available to        doubt that cash allowances moderated this trend.
those who were eligible. Second, family care           Moreover,     future   care     arrangements  will
was strengthened, particularly through the             inevitably be a combination of formal and
introduction of cash benefits and contributions        informal care. The opportunity to combine cash
to pension insurance for family carers. Third,         and in-kind benefits has opened the way to such
the fiscal burden on municipalities was lifted as      arrangements.
social assistance spending for dependent people
declined by two-thirds.          The number of         Second, it is possible to control costs.      The
recipients of social assistance was reduced by         German system has been quite successful at this,
one-third, which is less than was promised but is      mainly by capping benefits and by having an
still a success. Fourth, the LTCI Act triggered        institution that is independent from providers
an expansion of capacity in the formal sector          assessing     the     eligibility    of  potential
and improvements in the quality of care.               beneficiaries.     However, this strategy of
Finally, attempts to control costs were quite          effecting real cuts through nominally fixed
successful.                                            benefits cannot be applied forever as it causes
                                                       the purchasing power of the benefits to decline,
On the other hand, the system suffers from             which will sooner or later de-legitimize the
several failures and problems. First, there are        whole system.
the structural problems of service provision.
The quality of care is still not satisfactory,         Finally, even successful cost control is not
alternative care facilities (such as assisted living)  sufficient to stabilize the system unless a steady
are developing only very slowly, there is too          growth in revenue can be guaranteed. It must be
little rehabilitation for dependent elderly, there     regarded as an irony of history that the German
are still breaks in the chain of care between          system is financially unbalanced despite its
institutions (hospitals, nursing homes, and            success in cost-containment simply because of
rehabilitation    facilities), and   there   is   no   the collapse of revenue.
trajectory     management       and      no     case




                                                     80

                                       Long-term Care in Germany


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Schneekloth and Potthoff, 1993                    Schneekloth, Ulrich and Udo M�ller, 2000.
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111.2. Stuttgart: Kohlhammer.




                                               83

                 Sustaining Long-term Care Insurance in Japan and Beyond

                                       John Creighton Campbell
                                        University of Michigan

Introduction                                         determine eligibility, often on particularistic
                                                     grounds, and decide on which services will be
Long-term care (LTC) for frail elderly people        provided by whom � usually the local
has been viewed as the last frontier for the         government itself or a monopoly contracted-out
welfare state. It used to be seen as a family        provider. The other main possibility is social
responsibility that required state intervention      insurance, which has been more attractive to
only in exceptional dire cases.     The growing      countries that have also taken a social insurance
number of frail old people along with a              approach to health care. Here, financing comes
weakening of family care capacity has put            from contributions accumulated into a fund and
pressure on governments to do more. The initial      consumers become entitled to a certain level of
responses were piecemeal, extending existing         cash or in-kind benefits strictly on the basis of
health-care or social-welfare programs to cover      the degree of disability.
more and frail older people. Inevitably there
were strains.                                        Two important examples of comprehensive LTC
                                                     systems are Germany and Japan. From its start,
Some countries have gone a step further and          the German program has been a pure social
installed what could be called "comprehensive        insurance system. Japan started off in a different
long-term care systems."     Without being too       direction but then adopted a mixed program that
strict about definitions, comprehensive means a      mainly operates as a social insurance type of
program that goes well beyond a safety-net. It       system.49
need not cover all needed services, and perhaps
people with ample financial or family resources      Origins of the Japanese and German Systems
might be excluded, but a comprehensive long-
term care system would play a primary rather         The German and the Japanese long-term care
than subsidiary role in providing assistance to      insurance (LTCI) programs are similar enough
the population of frail older people (though of      and different enough to make for interesting
course not an exclusive role since in all nations    comparisons. To look briefly at similarities, it is
the majority of care comes from families).           striking that the long-term care issue reached the
                                                     policy agenda in both countries in the same year,
In creating comprehensive systems, nations           and indeed by the same route.50 Facing the 1990
naturally built on their institutional heritages.    general election in Japan, Hashimoto Ryutarou,
The first countries to move in this direction were   the LDP top leader most identified with health
in Scandinavia, notably Sweden. It already had       and welfare policy, committed his governing
extensive social welfare programs established at     party to a new policy for frail older people.
the municipal level.        Three factors � a        Facing the 1990 federal elections in Germany,
heightened sense of the needs of frail older         Norbert Bl�m, the CDU top leader most
people and their caregivers, a desire to employ      identified with health and welfare policy,
more women, and a general sense of prosperity �      committed his governing party to a new
led   municipalities   (aided   by    a   national   expansive policy for frail older people.
government subsidy) to expand long-term care
programs incrementally but quite substantially.
                                                     49 Note that various combinations are possible.
A tax-based, direct services program is one way      Austria pays social insurance type cash benefits
to do comprehensive long-term care. It requires      financed from taxes. The Netherlands relies on social
a substantial social services infrastructure to      insurance financing, but most of its benefit delivery
start with, and is most likely in countries in       has been carried out by municipal governments in
which health care is also covered from tax           Scandinavian fashion.
revenues. In such systems, local caseworkers         50This comparison of the two systems is drawn from
                                                     Campbell, 2002.


                                                  84

                       Sustaining Long-term Care Insurance in Japan and Beyond


Similar factors were in the background for both      Japan too was in economic travail in this period,
countries.      First,  population     aging   was   just after the bursting of the economic "bubble"
proceeding at a rapid rate, and was already quite    in 1989-90. Asset prices were plunging, growth
high compared to other nations, at the same time     was anemic, and official committees were
that traditional family care was looking more        worried about the future fiscal obligations of the
and more inadequate.      Second, the strains of     welfare state. The "Gold Plan" was really little
providing institutional care for frail older people  more than an election promise, and after the big
were affecting the finances of existing systems.     old-age services budget for 1990 (announced
In Germany, increased numbers of people in           just before a general election), the government
nursing homes, largely supported by public           could well have tapered off spending growth
assistance, pressured municipal government           thereafter. However, to the surprise of observers
budgets. In Japan, frail old people were more        who thought Japanese truly believed in family
likely to go into hospitals, and their costs         care, public demand for the expanded services
pressured health insurance financing.                was enormous - a "New Gold Plan" with higher
                                                     10-year targets was announced in 1994.
Hashimoto and Bl�m's statements put LTC on
the policy agendas of their governments.        In   While Germany had simply added a "fifth pillar"
Japan, which up until then had adopted the           to its extensive system of social insurance, Japan
"Scandinavian model" albeit at far lower levels,     seemed headed down the road to a full-scale
social services including nursing homes and          Scandinavian-style welfare program (albeit just
home and community-based services (HCBS)             for frail older people). However, Ministry of
were being delivered by municipal governments        Health and Welfare (MHW) leaders soon came
with heavy national subsidies. When the LDP          to see that this course would require both higher
announced its "Gold Plan" or "Ten-Year               taxes and a large and capable local bureaucracy,
Strategy for Health and Welfare Services for the     and decided instead to pursue something more
Elderly," it backed it up with sharply increased     like a German-style system. Kaigo Hoken,
expenditures in the 1990 budget.                     Japanese LTCI, was passed in 1997 and came
                                                     into effect in 2000.
Germany had the world's longest social
insurance tradition and little infrastructure for    Differences
direct, tax-based provision of social services.
Although the desirability of a Scandinavian          Although     Japanese     experts     often    visited
approach was suggested by a few academics, it        Germany and other countries in drawing up their
was not seriously considered (nor did the idea       plans, Kaigo Hoken should be seen as mostly
put forward by free-market conservatives of          homegrown rather than an imitation.51 The two
private long-term care insurance get far).           programs are different in at least four important
Instead,   German     political   party    leaders,  ways:
governmental ministries, and powerful interest
groups (notably big business and labor) entered      1    Spending growth is firmly controlled in
a long and difficult negotiation over starting a          German     LTCI     and     is   not    formally
new social insurance program.                             constrained in Japanese LTCI.
                                                     2    Japanese LTCI is much more generous than
This struggle occurred just as reunification was          German LTCI, both in the number of people
getting   underway,     which     required    huge        covered, and in benefits.
government subsidies to the East and future          3    German LTCI covers all ages, while
economic uncertainties.    It is no wonder that           Japanese LTCI essentially is only for old
opposition to a new spending program that                 people.
would burden companies and employees was             4    German LTCI provides a cash allowance to
strong. One reason it could be overcome, and an           subsidize family or other informal care,
LTCI law finally passed in 1994, was public
opinion � German citizens were worried about         51Note that a plan close to the final version had been
the personal and social burdens of caring for the    developed by 1993 in Japan; German LTCI was
frail elderly.  There was no other plausible         passed in 1994 and started in 1995, so there was no
solution.                                            program to imitate.


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                        Sustaining Long-term Care Insurance in Japan and Beyond


     while Japanese LTCI only provides formal        This difference in formal constraints is an
     services.                                       important explanation for why the Japanese
                                                     program expanded at about 11 percent per year
It is interesting to look at why these differences   (by one calculation) and the German program at
appeared.52                                          just 2 percent, as we will see presently. For now,
                                                     we should ask, why this extreme difference?
Fiscal Controls
                                                     The answer is not simply institutional legacy.
German LTCI was subject to very stringent            Indeed, German social insurance programs have
spending controls. The law specified that all        generally included adjustments for inflation.
expenditures had to be covered by social             But their increasing costs were a key argument
insurance contributions, with no subsidies from      for fiscal conservatives who wanted to defeat the
taxes. The contribution rate was also specified,     new program. In order to get it approved at all,
meaning a new law would be required to raise it.     proponents had to guarantee fiscal conservatives
Increases in total spending would therefore be       that spending would not explode by imposing
limited to the "natural" growth in revenues of       stringent caps.
more contributors and higher wages (in the
event, neither really materialized).                 The German debate over LTCI focused mainly
                                                     on money, with rather little attention to details
No mechanism was specified for holding down          above caregiving. The debate in Japan was the
expenditures. Benefit levels were frozen by law.     opposite.     Criticism of the LTCI idea was
The purpose was to prevent increases, even for       coming mostly from people attached to the
inflation, but that also barred decreases to cope    Scandinavian model who were concerned that
with revenue shortfalls. Eligibility and the level   service levels would be constrained. There was
of need were supposed to be based on an              remarkably little attention to future cost
objective test of Activities of Daily Living         estimates, and indeed very little opposition from
(ADL), so that supposedly there would be no          fiscal conservatives. We can assume that the
control over entitled benefits. However, these       Ministry of Health and Welfare (MHW) had a
tests are physical and mental examinations           preference for not having its hands tied by
carried out by the "Service Corps" of physicians     financial strictures, and lacking any challenge,
employed by the insurance funds. The doctors         its preference prevailed.
presumably could be asked to tighten their
standards, without any public notice, thereby        Still, the lack of opposition seems puzzling.
restricting the number of enrolees or their level    After all, this was a large new program whose
of benefits.                                         costs would have to be borne by employees and
                                                     companies through contributions and taxes. One
Japan had no such clear-cut ceiling on revenues.     factor was that the MHW's argument that LTCI
Contribution     rates  could    be  raised,   by    was needed to reduce pressure on health
municipalities for the premium on people aged        insurance spending � which was a lively concern
65 plus, and by the national government on           among employers and workers � seems to have
workers aged 40 to 64. Half of the revenue           been rather convincing even though specious.
comes from taxes, and that amount would be           Another, perhaps, was that businessmen were
raised automatically to match contributions. As      too distracted by all the bad news of the post-
for controlling spending, the test for eligibility   bubble economy to pay much attention. I don't
and level of benefits was based on a long            find either explanation very satisfying, but for
questionnaire graded by a computer, with the         whatever reason, business opposition was far
result then reviewed by a committee that was         from vocal.53
independent of any government control.

52 My account of Germany is sketchy and does not     53  Incidentally, the Ministry of Finance, which
provide a comprehensive picture; my aim is to        normally would oppose a new spending program,
provide a contrast with the Japanese system. For     was actually supportive because LTCI was a good
details on Germany, see the paper by Heinz           pretext for its long-cherished goal of increasing the
Rothgang.                                            consumption tax from 3 to 5 percent.


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                           Sustaining Long-term Care Insurance in Japan and Beyond


Size                                                    program possible. A smaller one would be far
                                                        easier to manage. However, in effect their hands
Japanese LTCI is a much bigger program than             were tied by a policy legacy, albeit a recent one.
German LTCI. First, the threshold for eligibility
is much lower - Japan has six levels of benefits,       That is, programs and services for frail older
as opposed to three in Germany, and the ADL             people had expanded very rapidly under the
criteria for the lower two would not qualify for        Gold Plan, growing at a rate of over 10 percent a
any coverage at all in Germany. As a result,            year for the entire decade of the 1990s even
some 10 percent of the over-65 population in            amid continuing budget stringency. Recall that
Germany is covered, while the figure is edging          these    programs    were      in   the   hands   of
toward 15 percent in Japan.54 Secondly, benefit         municipalities, which since 1990 had been
levels are much higher in Japan. For example,           required to draw up plans for health and welfare
someone at the lowest level of eligibility in           services for the elderly based on need surveys.
Germany would receive about US$375 a month              The municipalities faced rising public demand
in services if living at home, or US$1,000              on the one hand and had increasing national
toward nursing home costs; a Japanese at a              subsidies on the other. A problem was that their
similar level of disability could get US$1,300 in       organizations and personnel were equipped for
services at home or US$1,680 for a nursing              small-scale, means-tested programs and were
home.55                                                 not up to managing an expansion to "ordinary"
                                                        or middle-class clients.         Determinations of
Why this difference? The explanation for the            eligibility, the amount and kind of services
difference in fiscal controls � the strong role of      needed, and the fees to be collected were often
fiscal conservatives in the German but not the          willy-nilly, and by default not very strict.
Japanese debate, also applies here. Proponents
in Germany had to fight hard to keep enough             As a result, by 1995 when LTCI was being
benefits to have any claim of dealing with the          debated, 1997 when it was enacted, and certainly
problem - in effect, they decided to cover no           2000 when it started up, many more people were
more than half of need. In Japan size was not a         receiving services than earlier in the decade, and
contentious issue.                                      quite a few of them were getting services when
                                                        they were not really very frail, getting more
Having said that, the size of Japanese LTCI is          services than they really needed, and/or getting
quite striking. Both the low threshold and the          all their services free. Still more consequential,
high benefits are considerably more generous            since the 1970s, great numbers of older people
than the levels not only in Germany but in the          had been getting LTC in hospitals, covered by
rest of the non-Scandinavian world as well.56           health insurance, where admission standards
That is quite surprising for a country long             were quite lax and the out-of-pocket costs were
known as a "welfare laggard", and demands               minimal.57
more explanation.
                                                        Given this environment, a higher eligibility
In particular, there is no reason to assume that        threshold would have cut off many current
MHW officials would have a strong motive to             recipients, and anything less than full coverage
establish the biggest and most expensive                of needs would have meant a substantial cut in
                                                        the quantity of services for others. That was
54 This figure is approximate and includes people       seen as politically impossible.         As it was,
who have been judged eligible but are not yet           throughout the 1990s, the LTCI proposal was
receiving benefits, and people still getting LTC in     drawing fire mainly from the left, attacking the
hospitals covered by health insurance.                  impact on low-income people of the 10 percent
55Figures as of 2000 converted at purchasing power      co-pay (as well as the new premium) and the
parity rates; Japan is for level two.                   restrictions on quantity of services inherent in
56This is an assertion based only on impressionistic
evidence since data on benefits are scarce and          57 Actually, many old-age hospitals charged various
comparisons across different systems are difficult. In  extra fees to be able to provide decent care, but in
any   case,      Japanese     generosity is  certainly  principle and often in reality, the charges were very
"surprising"                                            low.


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                        Sustaining Long-term Care Insurance in Japan and Beyond


the eligibility process.                             exclusively at old people is not at all surprising.
                                                     The "aging society crisis" had been at the top of
It is interesting to speculate what would have       the public agenda for years, with the problem of
happened if LTCI had been proposed in 1990           caring for frail older people seen as a critical
rather than the Gold Plan. Since at that time the    factor. Caring for younger disabled people was
level of services was quite low, and largely         seen as a problem only by disabled people and
restricted to people who had neither much            their representatives themselves. And to make
money nor family care available, a social            their inclusion even less likely, several disability
insurance program of the size Germany started        interest groups, for various reasons, were
five years later would probably have seemed          opposed to coverage by LTCI.
very generous.     But it would have taken an
awful lot of planning and negotiation. At the        Cash Subsidy for Family Care
time, with an election impending, the need was
for a concrete plan backed up by immediate           In all nations, most care for frail older people is
action, and there really was no alternative other    provided by family members, most often a
than expanding existing programs and quickly         spouse, daughter, or daughter-in-law. Many see
adding on any new ideas that MHW specialists         family "informal" care as natural and as
had been thinking about.58                           preferable to "formal" care by outsiders from the
                                                     point of view of the older person, although of
Scope                                                course the burdens on caregivers are often
                                                     considerable.    A logical approach for public
In one respect, German LTCI was more                 policy is to encourage family members (or other
encompassing than Japanese LTCI.             The     informal providers such as neighbors) by paying
possibility of covering only older people rather     a cash allowance that the frail older person can
than disabled people of all ages was not             use as he or she wishes.
entertained in Germany.          Given that the
financing had to be completely covered by            Germany followed this route: the eligible person
contributions, it would be necessary for the         can choose between institutional care, formal
entire workforce to contribute.       If younger     community-based services, a cash payment, or a
people were contributing, they should be             combination of the latter two.       For all three
covered.      That is normal social insurance        levels   of   need,    the   cash  payment     was
thinking.                                            substantially   less    than   the  payment     for
                                                     institutional care or formal community-based
Some in Japan had the same idea, but they were       services, although there is an additional fringe
opposed by politicians who were concerned            benefit that LTCI will pay pension premiums for
about imposing a new premium. Limiting the           a family caregiver. The majority of clients of
premium to people aged 65 and over was not           home and community-based services (HCBS)
feasible either fiscally or politically (that old    take the money, though the proportion of those
people would bear any burden at all was an           selecting only services or a combination has
important first for Japanese social programs), so    been rising a little.
a compromise was reached rather amicably.
Premiums would be charged from age 40. The           The     reasons    for   this   approach    appear
main justification was that middle-aged people       straightforward. The immediate precursor was
would be worried about caregiving for their          the introduction of cash benefits in the medical
parents and could see their own aging not far        insurance system, for recovery at home after
off, but as an added inducement, "age-related        hospitalization, instituted in 1988. More broadly,
impairments"      due   to    stroke  early-onset    cash payments are seen as normal (and direct
Alzheimers and so forth would be covered.            services not) in Germany's social insurance
                                                     based approach.      Moreover, the basic policy
In a broader sense, having LTCI aimed almost         problem (along with the increasing number of
                                                     old people) was perceived as a decline in the
                                                     capacity of the traditional family to take care of
58See Campbell, 1992 (Chapter 7), for a detailed     frail older people. Germans saw the cash benefit
account of Gold Plan decision-making.                as a way to prevent or at least postpone this


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                       Sustaining Long-term Care Insurance in Japan and Beyond


decline by shoring up the family's willingness to     a problem for Germany because all the financing
provide care.      Although a few specialists         was from a new social insurance contribution
criticized the cash allowance on grounds that         which also started at the full rate. In Japan, half
quality of caregiving could not be assured and it     the money was budgeted from tax revenues, at
really would not change existing patterns very        all three levels of government, and such an
much, there was little real debate over this          abrupt surge of expenditures would be hard to
provision and it was included almost as a matter      handle.
of course.
                                                      The second reason was the argument that home-
In Japan, the question of whether or not to offer     care based services were poorly developed in
a cash allowance for family caregiving was            Japan; if the supply of home helpers, day care
discussed through the entire decade of the            and so forth were to be available for Japanese
1990s. The law as enacted did not include a           households, enough demand to induce a critical
cash allowance, although debate on this point         mass of services would be needed.
continued in and out of the Diet right up to
implementation and there was a last-minute            The third reason has to do with ideology or even
small compromise.                                     culture. The fight against a cash allowance was
                                                      led by a group of women who were involved
On the face of it, it seems quite surprising that     throughout the planning stages of LTCI, who
Japan would reject family caregiving and come         took a strongly feminist position is nicely
down so strongly for formal services. The             summarized in a comment at a 1995 committee
German example would itself seem to boost the         meeting:60
cash allowance idea, particularly in that this
approach was demonstrably cheaper on a per-           "In some cases, by receiving cash, the pattern of
case basis. Popular opinion favored support for       family caregiving would become fixed (koteika),
family caregiving, at least as an option.59 And       and in particular there is the danger that women
in terms of history and ideology, Japan had           will be tied down (shibaritsukareru) to family
relied more on the family for social support than     caregiving. A cash benefit is allowed in German
had Western countries, and quite a lot of popular     LTCI, but the family situation is different in
rhetoric ("Japanese-style welfare society" and so     Japan and Germany."
forth) had enshrined this custom as a principle
and a virtue.                                         The difference in the family situation is that
                                                      traditionally older people in Japan lived in the
There were three reasons why Japan opted              same household as their oldest son and the son's
against a cash subsidy for family care. First,        wife was responsible for their care. In reality, in
finances: although offering a cash allowance at       the 1990s, only about half of people over 65
lower cost than the services option would seem        lived with a child, and many of these lived with
to save money, in the short run at least it would     a daughter, but there certainly were enough
cost more.     If cash were available everyone        women who were virtually trapped into
would apply all at once, while a desire for           burdensome caregiving roles to reinforce the
services would develop more slowly. To have           image of a perpetual "caregiving hell" (kaigo
the new program start at nearly full cost was not     jigoku).

59By 58 percent to 28 percent in an August 1995       It is not common for feminist views to be
government survey and by 72 percent to 24 percent in  influential in Japanese policymaking, but this
a Mainichi survey the following month. In an NHK      argument at least had the effect of deflating any
survey in November with more options, 7 percent       social conservative claim that support for
said they preferred cash only, 25 percent services    traditional Japanese family practices could solve
only, and 63 percent both. In an Asahi Newspaper      the problem of caring for the frail elderly - a
survey the following February, however, 48 percent
approved and 42 percent opposed substituting cash     60It was the December 4 meeting of the Long-Term-
for services. (Results summarized in Kouseishou       Care Benefits Subcommittee of the Advisory Council
Koureisha Kaigo Taisaku Honbu Jimukyoku, 1996 ,       on Health and Welfare of the Elderly. From ibid, p.
pp. 520�523.                                          129.


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                         Sustaining Long-term Care Insurance in Japan and Beyond


view that was quite prevalent in Germany.              on the other must not become so expensive that
Together with the two less emotional reasons           fiscal conservatives (big business, the Treasury,
mentioned above, the appeal to liberate Japanese       and parties and politicians of the right) will
women was enough to keep the Japanese LTCI             mobilize against it.
system restricted to formal services, with no
subsidy for family care.                               Usually when we say "sustainability," we are
                                                       thinking mostly about imposing constraints. In
Reforms for Sustainability                             the normal course of events, cost control is
                                                       difficult for LTCI. First, population aging alone
LTCI got underway in Germany in 1995 and in            - more old people and more "old-old" people -
Japan in 2000. Now that they have been in              will require increased spending.       As Heinz
operation for, respectively ten and five years, it     Rothgang observed, the impact of population
is possible to get some sense of the problems the      aging might be mitigated by "compression of
two systems have encountered and the solutions         morbidity" (a decline in the incidence of
proposed. Actually, the German program has yet         disability in successive cohorts of older people),
to be modified, although a review in 2002-03 by        but surely not enough to offset increased
the    Ruerup      Commission     produced     some    numbers completely.      Second, additional cost
recommendations for reform that then came to           pressure comes from wage inflation since LTC is
be short-circuited at the political level.61 The       inevitably quite labor-intensive.
Japanese program has been changed. In its five
years of operation, it went through a fiscal           Sustainability and Legitimacy in Germany
review in 2003 and an overall review in 2005.
                                                       However, the "legitimacy" side of sustainability
Unquestionably, the most important observation         was emphasized by the Ruerup Commission.
to make is that both programs have been popular        This was because, as emphasized earlier, cost
with the public and are now accepted as normal         control was such a dominant theme when LTCI
and important components of national social            was initiated - a severe cap had been imposed on
policy. The Ruerup Commission mentioned that           total spending, which in fact was effective. As
there had been suggestions to convert to tax-          Heinz Rothgang shows, expenditures have
based rather than social insurance financing, or       grown only an average of 2.2 percent a year
to private LTCI, or to merge the program with          since the startup period (indeed, under 1 percent
health insurance, but it rejected them in favor of     in 2004), mainly because the number of
incremental reform proposals. In Japan, there          beneficiaries grew by 2.0 percent a year.
have been virtually no serious proposals for
radical changes.                                       Such a slow rate of increase at a time when the
                                                       number of recipients was growing meant great
Given the assumption that LTCI should continue         pressure on spending per recipient.         Their
in both countries without radical change,              benefit entitlement could not be cut in nominal
"sustainability" becomes the key concern. The          terms (since fixed by law), but in effect, real
programs must maintain their public support            benefits were reduced by inflation. For those
(often called "legitimacy") on the one hand, and       getting a cash allowance, that meant lower
                                                       purchasing power; for those in HCBS, since the
61 This was the Commission for the Financial           fees paid to providers had to be raised a bit due

Sustainability of Social Security Systems, or Ruerup   to wage inflation, the hours - quantity of service
Commission, which discussed LTCI after major           - were reduced.
reform proposals for the pensions and health care
system.   An English translation of its report was     Heinz Rothgang further points out that among
published in PDF format by the Federal Ministry of     beneficiaries, the proportion of those in the
Health and Social Security in 2003. In Japan, the      heaviest care category went down and those in
only radical proposal was to broaden LTCI to include   the lightest category went up. Clearly, this was
younger people (as contributors and potential          not because individuals had improved; it is
beneficiaries), which did not succeed but in any case  because each year's new cohort gets lower
was an expansion and endorsement of the program        scores.     This could be "compression of
rather than a critique.                                morbidity" but more likely it is because the


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                         Sustaining Long-term Care Insurance in Japan and Beyond


"service corps" physicians toughened their            though not sole theme in the Japanese reforms.
criteria - whether due to some spoken or
unspoken instruction from their employers, the        It has been argued that expenditures grew much
insurance funds, is hard to say.                      faster than expected in the first five years of
                                                      LTCI. Actually, this is difficult to measure. At
It is interesting that neither of these trends,       the time the LTCI system was enacted and even
which represent real reductions in average            at the time it started, Welfare Ministry officials
benefits, became known to the public or at least      were remarkably cagy about how much the
provoked any political protests. Presumably this
was because the evidence was rather subtle if         system would cost.       It is possible to find

not murky and because no interest groups were         forecasts but it is hard to say how authoritative

watching very closely.         The fact that did      they were; it is also hard to know what the right
generate a lot of publicity was about how the         starting point should be: estimated or actual
program was running in the red, and many              first-year expenditures.
people probably jumped to the conclusion that         In any case, expenditures did grow fairly rapidly.
spending was out of control. Certainly some           The official calculation in the third-year fiscal
conservative observers in the United States �         review raised contribution rates to cover
people who always think entitlement spending is       increased expenditures by an amount that
out of control � were happy to make that claim.       assumed growth of about 7 percent a year.
In reality, of course, it was severe shortfalls on    Many statements by MHLW officials at the time
the revenue side that had caused the red-ink          the fifth-year review was getting under way
"crisis" such as it was (actually just an annual      indicated that they were concerned about
shortfall which could easily be covered by            expenditure growth. They proposed reforms that
reserves for several years).                          would demonstrate their intention to constrain
                                                      spending, in order to deflect criticism. They
The Ruerup Commission, which was paying               probably hoped there would also be some real
closer attention, saw the problem of restricted       effects.
expenditures as most worrying for the long term,      Limiting Eligibility
foreseeing that a system that was covering a
smaller and smaller portion of the real costs of      If the Ruerup Commission was trying to correct
care would lose legitimacy and eventually             for excesses in the original design of German
become irrelevant. The Commission's reform            LTCI - fiscal rigidity - Japanese reformers took
proposal therefore centered on easing rather than     aim at what in retrospect must have looked like
tightening the cost controls in the initial           excessive generosity.    That is, as emphasized
legislation. In effect, it called for older people    earlier, political imperatives had led to a very
themselves to be charged a higher premium that        low threshold of eligibility in Japan, so that
would allow benefits to be indexed to inflation,      something like 15 percent of the over-65
and it suggested other provisions to take care of     population qualified compared with about 10
a surge of beneficiaries in the future.62             percent in Germany.       Moreover, lighter-care
                                                      beneficiaries were entitled to quite a high level
Sustainability and Cost Control in Japan              of services if they wished them.

This sort of concern about sustainability in the      The trend that was seen as most alarming was
sense of legitimacy is probably rare.       Nearly    that the number of beneficiaries was growing
always it is cost control that is evoked, or, more    rather rapidly even after the initial start-up
specifically, controlling government spending on      period.    Eligible recipients increased by 76
long-term care. This was certainly the dominant       percent in the four years from the program's
                                                      start to 2004 with no tapering off as yet. The
                                                      growth was quite uneven across levels: the two
62The additional charge would eventually amount to    lowest groups, those who for the most part
about 20 Euros a month. This plan, described on pp.   would not have been eligible at all in Germany,
15-16 of the English report, is actually much more    more than doubled in this four-year period,
complicated but is not worth describing at length     while the heavier-need groups went up by 50
since it was not adopted.


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                        Sustaining Long-term Care Insurance in Japan and Beyond


percent.                                             lower-need categories, but this would have had
                                                     to be done out in the open, and in effect was

Note that this trend is similar, though more         politically impossible. Instead, they purported

extreme, than the German trend.        There, the    to come up with a way to serve this group better

increased proportion of lower-rated clients was      - and only incidentally, at lower cost.

interpreted as demonstrating tougher criteria on
the part of the service corps physicians. The fact   The notion they came up with was kaigo yobou,

that this occurred when the total number of          which translates literally as "care prevention"

recipients was not growing very quickly lends        and has sometimes been called "preventive

weight to this interpretation. In Japan, however,    rehabilitation."  The logic, as set forth in a

the total number was going up quickly.               public relations barrage that got started about

Moreover, the certification process in Japan         two years ago, is as follows.

really does not allow a change in criteria � the
computer exam is too out-in-the-open, and the        The goal of the LTCI program, in law and in

review of its recommendation by an expert            practice, is supposed to be "independence"

committee cannot be controlled by the insurers.      (jiritsu). By providing professional services, it
                                                     is supposed to liberate frail older people from
                                                     their own physical limitations and from
The    most    plausible   explanation   for  the    dependence on family members. However, the
difference from Germany is that lighter-need         argument goes that, when people are not very
people (or their families) did not have as much      frail, the same services can lead to a loss of
desire for services and so were not as quick to      independence. Two examples were frequently
sign up as the heavier cases. They applied when      mentioned.     If an older person can perform
they became more acquainted with the program.        chores around the house only with difficulty, he
This would not have occurred in Germany              or she qualifies for a home helper under LTCI,
because, again, cash was available and of course     but if the home helper does all the work the old
was desired by all.                                  person will lose the ability to do chores or any

This Japanese trend can therefore be seen as a       other sort of physical activity. Or, giving old

normal     pattern,   although    some    MHLW       people who can barely walk a wheelchair could

comments about it had something of a moralistic      mean they would never try to walk again. They

edge. But whatever the cause, it was worrisome.      become more dependent.

More and more resources were going into
services for people who needed them less. In         The response to this situation, then, would be to

Sweden, growth in its extraordinarily generous       substitute independence-creating services for

LTC policy was constrained substantially when        dependency-creating services. Instead of getting

the economy slowed, by means of targeting            a home helper, people would be encouraged to

services on the most needy. It is estimated that     undergo "muscle training" at a local center

about 25 percent of the over-65 population was       (essentially an exercise program, though many

getting services, and that figure was reduced to     detailed articles have been written to show how

just 16 percent by 2004.                             it should be done). Nutrition counselling and
                                                     other services would also be offered. If a home

In Sweden, the process of concentrating              helper is allowed, then he or she should assist

resources on the heavier cases at the expense of     the client to do more and more rather than doing

those who were not as needful was carried out        things for him or her.

over    time    via   individual   decisions   by
caseworkers     who     worked    for   municipal    This idea was not just a policy recommendation.

governments. It was very hard to see. As was         It was embodied in a substantial organizational

true of the milder form of targeting that            reform. During the certification process itself,

happened in Germany, there was little in the way     people who are scored in the bottom two of the

of political protest.                                six eligible categories would be evaluated to see

Japanese     policymakers    no   doubt   thought    if "care prevention" would be better for them

wistfully about simply making the eligibility        than the regular caregiving services.        The

criteria tougher, or reducing benefits for the       methodology for making this judgment is not yet
                                                     clear (although it has been specified that it will


                                                  92

                        Sustaining Long-term Care Insurance in Japan and Beyond


not apply to people with dementia), but in any       bottom two categories will be shunted off into
case the people who are excepted will be treated     this new category (well more than half, it is
as before, which is to say, they could pick          thought), how stringently the new rules will be
whatever services and providers they want up to      imposed, how much the preventive services will
their limit. In most cases, they would be assisted   cost, and � perhaps most significantly � how
by a "care manager," but the client always has       many recipients will say they simply are not
the right to choose (and to change) care             interested in exercising or any other part of it,
managers if desired.63                               and simply walk away.

For those identified for "prevention," however, a    This reform has only just passed and it is not at
brand-new system was to be set up. Instead of        all clear how quickly and in what ways it will be
being able to pick their own care manager, a         implemented or whether the recent opposition
committee       under    municipal     government    will have some effect in modifying the
auspices would take charge of their case and         Ministry's plans.
specify what services they would be offered.
Most    would     be   provided     by  the   local  Cutting Fees
government directly or under contract, in a new
"neighborhood comprehensive center."                 The "preventive rehabilitation" strategy for cost
                                                     control via eligibility limitation is, so far as I
This reform did generate some opposition from        know, unique to Japan. Its other strategies have
advocates for both clients and providers. Critics    been more commonplace but are worth a brief
said that it would violate the principle of          description.
consumer choice in LTCI - clearly correct - and
that many clients really do need the regular         The main institutional forerunner for LTCI in
services. However, whatever the merits of these      Japan was health insurance. The MHLW had
arguments, the protests were too little too late. A  been struggling to constrain medical spending
conference meant to mobilize resistance was          for decades, and had developed an unusual but
held after the reform bill including this plan was   effective mechanism: selective reductions in the
just passing the Lower House and on its way to       prescribed fees for all medical goods and
enactment. Similar questions had been raised         services.   Every two years, the government
during legislative proceedings but not to much       negotiates with the Japan Medical Association to
effect.                                              revise the fee schedule, item by item. Some are
                                                     raised, but most are reduced, particularly those
Whether this reform is good or bad is beside the     that seem to be excessive based on surveys or
point.   Indeed, one could agree with all the        simply on the evidence that usage was
opponents' arguments and still argue that Japan      increasing.64     It was therefore natural for
should have used more restrictive criteria,          Ministry officials to keep tabs on how its LTCI
perhaps to come out at around 10 percent of the      fee schedule was working out and to fine-tune
Japanese over-65 population like Germany, in         the "relative values" of the various services.
the first place.   This view depends on one's        This was in the scheduled fiscal review in the
sense of how public money should be spent and        third year of the program, 2003.
of what spending levels will be required for
long-term political sustainability.                  The biggest change was to reduce the fees for
                                                     institutional care in nursing homes by an average
This approach, in my view, may demonstrate           of about 3 percent. When the original fees were
that substantial cost savings without blatantly      set, the authorities had been mindful of the
cutting off beneficiaries or slashing benefit        financial viability of nursing homes, which were
levels. How much money will be saved is hard         mostly    run    by    small-scale,   not-for-profit
to say until one sees what percentage of the         organizations. Under the previous system, they
                                                     had been paid on a set formula amounted to the

63These and many other features of LTCI in Japan
are not covered in this paper, but see Campbell and  64The process is quite complicated, and is detailed in
Ikegami, 2003.                                       Campbell and Ikegami, 1997.


                                                   93

                        Sustaining Long-term Care Insurance in Japan and Beyond


managers simply getting a check from the               institution. This is held to be better from the
municipal government (including national and           point of view of the client's preferences and
prefectural subsidies) every month.           Under    quality of life and is also supposed to be cheaper
LTCI,     their  revenues    would     come     with   for all but the heaviest cases. The main reason
individual residents, the amount depending on          why this goal remains more a wish than an
their certified level of care; moreover, the           effective policy in countries like the United
residents would be picking the nursing home            States has been the fear that HCBS cannot easily
themselves rather than just being assigned to one      be targeted on those who otherwise would go
by the municipality. Another new factor was the        into a nursing home, so increased spending
emphasis on home and community-based                   would not be offset by savings on institutional
services, which would seem to be competition.          care.

From a nursing home manager's point of view,           Once a nation commits to a comprehensive
this transition looked something like being            approach to LTC, this obsession about costs is
pushed into an uncertain and dangerous market          less pressing, and there have been many
environment. Many responded by trying to cut           successful examples in Europe of improved
their fixed costs, mainly by moving away from          HCBS         leading      to    reductions       in
permanent full-time staff to rely more on
temporary and part-time employees.65                   institutionalization   (though    not   in    total
                                                Their  spending). The question is then not whether to
efforts succeeded to the extent that, under the
new system, many nursing homes started                 provide extensive HCBS, but rather, how to

running surpluses - because demand for nursing         balance out-of-pocket costs and other incentives

home beds actually increased, their new                between home and institutional care to obtain an
environment was not so uncertain and dangerous         appropriate mix.
after all.
                                                       In Germany, one of the proposals from the
At least one MHLW official I interviewed               Ruerup     Commission       was   to   discourage
regretted that nursing homes had reacted so            institutional care by equalizing benefits at each
defensively rather than taking the new system as       need level between HBCS and nursing homes.
an opportunity for innovation, but given the cost      Originally, institutions received much more to
concerns that were already coming to the fore in       reflect their actual costs. No doubt that was seen
2003, it was natural to reduce their fees. It is       as crucial because reducing the burden of
noteworthy, however, that, rather than cutting         institutional care on municipal public assistance
across-the-board, the MHLW reduced fees for            budgets was an important reason for instituting
lower-need and actually gave small increases for       LTCI in the first place. This problem has hardly
the heavier residents. This was partly based on        gone away � many nursing home residents still
real costs and partly on the policy goal of            have some of their costs covered by public
incentivising the homes to favor heavier-care          assistance � and the suggestion of such a radical
applicants.    Fees for home helpers and some          rebalancing     indicates   how   important     the
other HCB services were adjusted for similar           Commission         viewed      the     goal      of
reasons, although the average fees were not            deinstitutionalization.
reduced.
                                                       Japan was not so radical.        Another of the
Discouraging Institutionalization                      significant reforms in the fifth-year review of
                                                       LTCI was to shift the "hotel" costs in institutions
A cherished assumption among specialists and           into the out-of-pocket category, residents will
policymakers in the long-term care field is that       now pay the equivalent of their room rent as
frail older people should remain at home or in         well as their meal charges. The rationale was
the community, rather than going into an               "fairness" since the room "charge" was being
                                                       "paid" when families kept the older person at
                                                       home (most often in the sense of forgone other
65In Japan these terms connote employees with less     uses for the room, in a cramped Japanese house,

pay and job security, although many stay for           rather than a cash outlay). Concerns were raised
extended periods and essentially work full time.       about how low-income people would be able to


                                                     94

                        Sustaining Long-term Care Insurance in Japan and Beyond


bear the additional expenditure.                     "aging-type" would be included, revenues would
                                                     greatly exceed expenditures for the younger age
Broadening the Scope                                 group. Another goal was rationalization of care
                                                     for the younger disabled - a new system called
These Japanese strategies have all been aimed at     Shienpi had been started in 2004 and, due to
cost-containment. To the extent the problem is       incorrect assumptions and poor design, it was
defined in terms of the balance sheet of the         already causing major headaches. In particular,
program, rather than growth in expenditures,         it lacked effective eligibility and benefit
solutions may be sought on the revenue. An           determination processes.
obvious example from the United States is the
way Social Security fiscal imbalances over the       The MHLW did its best to sell this proposal, but
years were handled by enlarging the scope of the     it failed and was dropped from the fifth-year
program - it had started as employees only, but      review legislation. Opposition had come from
the self-employed, farmers, employees of state       politicians in the ruling party, who were worried
and local governments, and other occupational        about    imposing    a   new     social  insurance
categories were successively added in order to       contribution on younger people (many of whom
broaden the base of contributors.                    were not paying their pension premiums as it
                                                     was), and from most of the interest groups in the
In a pension program, this is only a temporary       disability field. They raised a variety of issues,
fix, since eventually all these people would         but one factor was their perception that LTCI
become entitled to benefits, but the situation is    would be stricter than Shienpi.
different in LTCI. As mentioned earlier, when
Japan's LTCI program started, it had been            Conclusion
crucial to have people aged 40 and over
contributing or else it could not have been social   A comprehensive approach to long-term care, in
insurance (total contributions from the 40 to 64     particular a model based on social insurance, is a
age group are double those of the over 65 age        reasonable and viable policy option for rich
group and make up one-third of revenues). To         countries. It is reasonable in that it deals with a
justify those contributions, people aged 40 and      major aspect of the ever-growing problem of
over who had an "aging-type" disability could        population aging in a fair way - that is my own
get benefits, but they made up only a small          opinion but it is shared by the citizens of the
portion   of   beneficiaries   (4  percent)   and    countries that have taken this path. It is viable in
expenditures.                                        that, unlike some of the social programs that
                                                     frighten policymakers so much, it is unlikely to
One of the Japanese government's top priorities      go "out of control." The German experience
in the fifth-year review was to expand the           indicates that controlling expenditures is not
program's coverage down to age 20 for both           impossible or necessarily even particularly
benefits and contribution, as had been the case in   difficult compared with other public programs.
Germany from the start. The main goal was            The     Japanese    experience     indicates   that
clearly to improve the balance sheet, since even     incremental      but    substantial    mid-course
though all disabilities rather than the narrow       corrections are possible.




                                                  95

                      Sustaining Long-term Care Insurance in Japan and Beyond


References

Campbell, John Creighton and Naoki Ikegami,         1997. The Art of Balance in Health Policy,
2003. "Japan's Radical Reform of Long-Term         Cambridge University Press.
Care."Journal    of    Social    Policy    and
Administration. 37:1 (February 2003) 21-34.        Campbell, John Creighton, 1992. How Policies
                                                   Change:The Japanese Government and the
Campbell, John Creighton, 2002. "How Policies      Aging Society, Princeton University Press.
Differ: Long-Term-Care Insurance in Japan and
Germany" in Harald Conrad and Ralph Lutzeler       Kouseishou Koureisha Kaigo Taisaku Honbu
(eds), Aging and Social Policy - A German-         Jimukyoku, 1996. Koureisha kaigo hoken seido
Japanese Comparison, Munich: Iudicium.             no    sousetsu    ni   tsuite (Regarding   the
                                                   Establishment of the Long-Term-Care Insurance
Campbell, John Creighton and Naoki Ikegami,        for the Elderly System), Tokyo: Gyousei.




                                                96

                                    Summary of the Discussion

                                             Kotaro Tanaka
                                   Yamaguchi Prefectural University


The second session opened with a brief               LTCI. A comprehensive disease management
presentation   by    Manfred    Huber     on   the   program that provides for both health and social
comparative study of long-term care (LTC) in 19      care management may yield better health
OECD countries.         Then Heinz Rothgang          outcomes than having two separate programs.
reported on the 10 years during which the long-      On this point, John Campbell stressed the need
term care insurance (LTCI) system has operated       for much greater coordination between the two
in Germany.        After Heinz Rothgang had          sectors   without   making    the    system    too
answered some questions and comments specific        complicated.     However, in New Zealand,
to his presentation, John Campbell reported on       integrating the two sectors has led to an increase
the LTCI in Japan from a comparative aspect.         in the number of people identified as needing
                                                     these services, which has thus increased the
After the coffee break, the chair opened the         pressure on the health system overall.       Alan
discussion by referring to the discussion points     Maynard stressed the importance of designing
in the handout prepared by Kotaro Tanaka. On         appropriate incentive structures: for example,
the   first  topic   (controlling   increases    in  making local governments pay hospitalization
expenditures caused by an aging population),         charges for any patients who could be
Naoki    Ikegami     opposed    the   notion     of  discharged to the community appeared to be the
concentrating public resources on the more           only effective measure to decrease bed-blocking.
severely dependent and having little family          Manfred Huber pointed out that, in Sweden,
support because the family would then receive        giving more authority to community nurses in
no services until it was no longer able to care for  LTC service provision had more impact than the
its own members. He also doubted whether the         transfer of financial responsibility from the
new preventive services that will be provided by     counties to the municipalities in the Adel
the Japanese LTCI will be effective in               Reform.
controlling   expenditures     because    of   the
difficulty of monitoring whether the home-help       On the basic differences between health services
service had been provided with the active            and LTC, the discussion centered on two issues:
participation of the client, as had been             episodic   versus   continuous     function    and
prescribed by the regularions, instead of as a       reversible versus uni-directional function. LTC
passive recipient.                                   appears to be continuous and uni-directional
                                                     (towards decline) when compared with health
This led to a discussion on the effectiveness of     services. William Hsiao stressed that, since LTC
preventive services in general. Wendy Edgar          is a broader concept than basic health care,
described    New     Zealand's   positive   aging    designing benefit packages is likely to be more
campaign to change diet and exercise habits.         difficult for LTC than health care. If formal
However, several participants expressed doubts       services are available, then patients are likely to
about whether people could be induced to             choose these services over being cared for by
change their behavior on a population basis.         family members.      Joseph White argued that
Nevertheless, Manfred Huber pointed out that, if     income protection is less important in LTC
dementia could be prevented, this would lead to      because those receiving services do not expect to
a considerable change in the burden for              come out alive. Heinz Rothgang provided data
dementia patients and their families.                based on a longitudinal analysis of changes in
                                                     the dependency level in Germany showing that,
The discussion then turned to the integration of     although some people in Level 2 do improve to
health care and LTC. Naoki Ikegami argued that       Level 1, most tend to decline or die with time.
there should be better integration between
services provided by health insurance and by         On the issue of how to fund LTC, William Hsiao



                                                   97

                                       Summary of the Discussion


recommended      a   three-tier   mixed     model.  periods of time for those with physical
Concerning cash benefits, participants discussed    disabilities, but patients with dementia continue
the implications for the employment of informal     to need long periods of care. It was recognized
caregivers.    Soonman Kwon thought that            that hotel (bed and board) costs are generally
recipients could be trusted to make rational        excluded from LTC benefits in most countries,
choices in the use of informal care, and so         and so are covered by public assistance for those
argued that cash benefits should be introduced.     who cannot pay. However, this was not the case
Some were opposed to this because there is no       in Japan until the recent revision in the
guarantee that the cash would         be used for   legislation. Naoki Ikegami pointed out that the
caregivers. Regarding measures to monitor the       definition of "institution" differs greatly from
quality of informal care, Heinz Rothgang            country to country, which should be taken into
explained that in Germany, assessments are          consideration in comparative studies.        The
made by professionals every six months. One         distinction between hotel services and care
alternative to providing cash or service benefits   services should also be made clearer.
is the new "personal budget" in Germany, which
allows recipients to choose among a wide circle     At the end of the discussion, John Campbell
of caregivers that includes non-licensed workers    commented that since relying on family care will
and volunteers.                                     become increasingly difficult, while relying
                                                    entirely on formal care will be too expensive,
How     to   prevent    institutionalization was    policymakers must design an appropriate mix of
discussed next. Nursing home care appeared to       arrangements within publicly funded LTC
be needed increasingly only for relatively short    systems.




                                                  98

             Chapter 3: Increasing Public Expenditures on Health Care
                Increasing Investment in the UK-NHS: Some Policy Challenges
                                                Alan Maynard
                                             University of York

I was asked to consider the challenges created          increase   NHS     expenditure    to   equal     the
by increasing expenditure in a centralized health       "average"    expenditure     by   the    European
care system, the UK's �National Health Service          Community countries. This was a changing and
(NHS).66 After describing the political rationale       ambiguous target, especially following the
of this policy, I will review the demand-side and       enlargement of the EU to include 10 relatively
supply-side challenges that it has posed. I will        poor states. The UK government pledged to
focus not only on the positive achievements of          increase real NHS expenditure by 7 to 8 percent
this policy but also on the problem that rapid          every year until 2008. Subsequently the Wanless
growth in spending creates opportunities for            Report (Wanless, 2002), which sought to
rent-taking by providers and how this has               forecast future health investment needs for the
limited the positive impact of increased funding        NHS, rationalized and supported this policy.
on outcomes and performance and on the
achievement of political goals.                         After over 50 years of parsimonious funding,
                                                        which some health economists argued had
Background                                              constituted systematic under-investment in the
                                                        NHS, there was suddenly a large and sustained
The Labour Government came to power in 1997             injection of increased funding, and this created
with no clear health care policies except the           some significant challenges.          Because of
intention to remove the "failed" vestiges of            shortages of labor (especially of doctors and
Margaret      Thatcher's     internal   market    (in   nurses), time lags in acquiring and implementing
particular to abolish Hospital Trusts and GP            increased bed and diagnostic capacity, and
fund-holding). For the first two years of the           significant monopoly power in the health care
Blair administration, government funding was            market in the form of strong and skilful medical
parsimonious and in line with the policies of the       trade unions and a powerful pharmaceutical
preceding government. Then in 2000, the Blair           industry, there was a major risk that part of the
government radically altered its policies as part       increased investment would not only reduce
of a program of public sector reform that greatly       waiting times and improve quality of care but
increased investment.         Initially, this policy    would also be partly absorbed as rents or as
focused on "acting smarter in the provision of          higher prices for inputs.
health care."      More recently, the increased
investment has been accompanied by the re-              Demand-side Controls
adoption of such Thatcherite "market" policies
as Foundation Trust Hospitals and GP budgeting          Taxation is the predominant source of funding
(now called "practice-level budgeting") in              for the NHS � a combination of national (social)
primary care and by a much greater emphasis on          insurance payments and general taxation, with
the use of competing private suppliers to provide       user charges financing 5 percent of expenditure.
care for NHS patients.                                  The Blair government's expenditure increases
                                                        have been funded by a 1 percent increase in the
In 2000, the Prime Minister announced an                national (social) insurance contribution (in other
extended investment program that was to                 words, by a proportional tax) rather than by
                                                        progressive income taxation. Consequently, the
                                                        redistributive effect of the funding has been
66In fact, this paper addresses the performance of the  reduced now that the system is more dependent
NHS in England. The NHS in Scotland, Wales, and         on proportional taxation.
Northern Ireland differs in structure and policy
following devolution but remains publicly funded by     Co-payments are charged for pharmaceuticals
the UK government.                                      and for the small slice of the dentistry sector that



                                                      99

                       Increasing Investment in the UK-NHS: Some Policy Challenges


the government still covers.          Coverage of       over two dozen items in what is called "the
community care, in particular the provision of          balanced scorecard" where the organization's
nursing home care, remains means-tested with            performance relative to its peers determines its
public     funding    channeled     through     local   grading. These measures of "success" focus on
government.      Local councils fund patients in        process, in particular reductions in waiting times
privately owned and operated nursing homes.             for certain elective procedures (such as hip
The problem of "bed blocking" (when elderly             replacements), cleanliness of facilities, and the
patients in need of social care occupy expensive        prompt delivery of interventions such as
hospital beds even after their medical needs have       thrombolytics     after  myocardial   infarctions.
been met), has been solved following the                Success merits some financial rewards (for
Swedish      model,    by    fining    those    local   example, �1 million if a hospital achieves three
governments that fail to move such patients out         stars) and the dismissal of management staff in
of NHS facilities and into residential care. The        "failed" hospitals with zero stars.
introduction of this policy, under which local
governments have to pay the NHS the cost per            The Commission for Health Improvement (CHI)
patient bed day, was accompanied by additional          was created to "police" the working of the NHS
funding for nursing home care and has                   in relation to its performance targets, the NSFs,
significantly reduced bed blocking and the              and the use of NICE guidelines. It is now called
demand for NHS facilities by elderly patients           the Health Care Commission (HCC) and is
needing social care.                                    responsible for grading the performance of
                                                        purchasers (Primary Care Trusts or PCTs) and
Supply-side Issues                                      primary and secondary providers.69 Currently,
                                                       the performance of the NHS is being reformed
When Blair increased spending on the NHS, he           by this regulatory agency. (Health Care
also required that it "act smarter," in other           Commission, 2005)
words, that it increase the efficiency with which
it uses resources. Initially, efforts to increase      Supply-side Achievements
efficiency focused on central institutions. For
example, in 1999, the National Institute of            The large investment in resources and the
Clinical Excellence67 (NICE) was created to            centralized    system    of  target   setting   and
appraise new and old technologies in terms of          monitoring has achieved some significant
their clinical and cost effectiveness and to           changes in patients' waiting time for care,
facilitate the production of evidence-based            particularly for elective care (see Table 1). At
clinical guidelines (where economic elements           the time when the policies were initiated, many
are only now being injected).                          patients were having to wait over 12 months for
                                                       elective procedures. Now, no one in England
In another attempt to improve quality, the             has to wait for longer than nine months, and by
government issued a series of National Service         the end of 2005, no one will wait longer than six
Frameworks (NSFs), setting out targets for             months.       However, this average statistic
reducing waiting times and enhancing the               disguises certain issues. In particular, those who
quality of provision in areas such as cancer,          have had a lengthy wait and who have often
heart disease, diabetes, renal medicine, the care      been categorized as non-urgent by their
of the elderly, and children's care.68 The NSF         clinicians have been "tail-gunned" � in other
targets are complemented by a primary group of         words, policy and management have focused on
targets against which the performance of               reducing the tail of the distribution. This has
providers and purchasers is graded annually            been successful in reducing the mean waiting
according to a star rating system. There are           time for elective surgery by 30 percent and
currently eight primary targets for hospitals and      reducing the median waiting time by 21 percent.

67 This was recently expanded into the National
Institute for Health and Clinical Excellence to cover
health improvement and illness prevention but is still
referred to as NICE (www.nice.nhs.org.uk).
68The NSFs can be found at www.doh.gov.uk.              69www.healthcarecommission.org.uk


                                                     100

                     Increasing Investment in the UK-NHS: Some Policy Challenges


                               Table 1 : Waiting and Access Targets
                                                                                  Delivery Date
Hospital services (elective care)
Maximum wait for inpatient treatment: 6 months                                         End 2005
Maximum wait for inpatient and day case treatment: 3 months                                 2008
Maximum wait for outpatient appointment: 3 months/13 weeks                             End 2005
Maximum time from GP appointment to treatment: 18 weeks                                     2008

Emergency care
Maximum wait in A&E: 4 hours                                                           End 2004
75% of emergency ambulance calls to be responded to within 8 minutes                        2001

Primary care
Guaranteed access to primary care professional within 24 hours                              2004
Guaranteed access to primary care doctor within 48 hours                                    2004

This means that the mean waiting time for             oriented performance measures.
inpatients in 1997 � of over four months � was
reduced to under three months by 2004, and the        Significant resources have also been invested in
median waiting time fell from three months to         services for conditions such as heart disease,
two and a half months (The King's Fund, 2005).        cancer, and mental health. The performance of
As    the   government     adopts    increasingly     the NHS in this respect has improved, with
ambitious targets (for example, no one having to      patients being seen and treated more rapidly.
wait more than six months by December 2005 or         Whether these improvements have yielded
more than 12 weeks by 2008), the absolute             improvements in health is less clear.       Fewer
number of patients who have to be treated             Britons are dying of cancer and heart disease,
becomes ever greater.                                 but these trends were evident before the
                                                      government's increased investment. There is no
Not only has there been some success in the           evidence (yet) that levels of obesity are
timely treatment of elective patients, there have     declining or that healthy eating, and exercise are
also been improvements in the treatment of            increasing. Smoking levels are declining slowly.
emergencies. For instance those patients labeled      The impact of the National Service Frameworks
as "urgents" by general practitioners (such as        on, for instance, five year survival rates will take
cancer sufferers) now have to be seen within 14       time to emerge and will also require better data
days, and no patient should have to wait in           collection.
accident and emergency for more than four
hours.   These modest goals are increasingly          Challenge: Rent Seeking
being achieved because Chief Executives and
their teams know that their jobs are on the line if   The relaxation of the tight NHS budget
they fail to meet these centrally determined          constraint has inevitably induced providers to
targets.                                              seek "rents", in other words, to enhance their
                                                      rewards without improving their activities or
There has been considerable investment in             their outcomes. This situation has manifested
physical facilities and equipment for treating        itself in several ways.
patients, with the consequence that they are
continually improving after decades of relative       The National Institute for Clinical Excellence
neglect. This aspect of the "modernization" of        was originally conceived as a mechanism to
the NHS is not detectable in the activity-            ration resources (Maynard and Bloor 1997).
                                                      However, it has developed in a way that is



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                      Increasing Investment in the UK-NHS: Some Policy Challenges




actually contributing to inflation, particularly in   Wennberg, 2002; and Wennberg, 2004).70 The
pharmaceutical       expenditures.    NICE       is   universal nature of these variations and their
"approving" for use in the NHS (and sometimes         continuation over decades is as remarkable as it
for only particular sub-groups of patients) new       is wasteful (Fisher, 2003). These variations are
and expensive drugs that have only marginal           evident in routine administrative NHS data,
clinical benefits. This situation arises because      which are also unmanaged (Bloor and Maynard,
NICE approval requires only a minimal                 2002). To vary is human, but the variations in
threshold of approximately �30,000 per quality        the USA and in the UK's NHS are prime facia
adjusted life year (or QALY). Certain cancer          evidence of considerable inefficiency and are
drugs are prime examples of this practice,            usually ignored in health care reform efforts
although recently NICE has begun to show more         (Maynard, ed, 2005).         Furthermore, they
rigor in its rationing by suggesting in one of its    substantiate  the   hypothesis   that   increased
guidelines that the Alzheimers drug Aricept           activity could be produced from existing
should not be reimbursed in the NHS, and as a         consultants if the mean of the distribution could
consequence it cannot be prescribed for NHS           be increased and/or if the shape of the
patients in future.    There is currently much        contribution could be altered. To this end, in
discussion in both academia and government            2004    the   government     supplemented     the
that either the NICE acceptance threshold should      consultant contract with fee for service "pilots"
fall to �12,000 to 15,000 per QALY or that the        in the hope that mixed remuneration systems
organization should be given a budget sufficient      would increase the activity levels of specialist
to cover the costs of the entire NHS adopting its     doctors in NHS hospitals. While this may be
guidelines, which would oblige it to ration more      beneficial in terms of increasing activity, the
effectively (Maynard, Bloor, and Freemantle,          preceding contractual settlement was, in effect,
2004). Until the implementation of some such          rent.  Consultants were given significant pay
constraint, NICE will continue to be, in effect,      rises (many are now being paid in excess of
the "marketing arm" of the pharmaceutical             �100,000 per annum) with no corresponding
industry, injecting expenditure inflation into the    improvement in the delivery or quality of patient
NHS by obliging it to adopt drugs of marginal         care.
clinical effectiveness.
                                                      Unlike the consultant contract reforms, the new
Another provider group that has been very             contract for general practitioners included
successful in acquiring rent has been the medical     incentives in the form of generous fees for the
profession. The government negotiated a new           delivery of 10 categories of patient care. The
contract for hospital specialists or consultants,     quality framework (QOF) assigns points to
which has given members of the profession             particular tasks, and points are awarded to
significant pay increases (20 percent and more)       practices based on the extent to which it meets
with no return to the NHS in terms of either          its target.  In this way, doctors within each
increased activity or improved quality.        The    practice are encouraged to police each other. The
contract has cost the NHS several billion             QOF was accompanied by the chance to opt out
pounds, but there has been no observable              of the contractual obligation of GPs to provide
reduction either in the variation in clinical         round the clock care for patients, whether
activity   between    specialists  in    particular   directly or via cooperatives of local GPs. For a
specialties or in the temporal trend for surgeons     �6,000 reduction in salary, GPs could be
in particular to reduce activity (Maynard and         released from this part of their contract, and
Bloor, 2003b).                                        most GPs have done so. However, many still
                                                      offer this out-of-hours service through primary
Clinicians' large and unaccountable variations in     care trusts (PCTs) and receive pay rates for
activity have been well chronicled in the USA         doing so that are considerably higher than they
by the Wennberg group at Dartmouth Medical            used to be paid for this service. Recent surveys
(Wennberg et al, 1989; Wennberg, Freeman, and         of GPs' salaries have revealed that they receive
Culp, 1987; Wennberg and Gittelsohn, 1973;

                                                      70www.dms.dartmouth.edu


                                                   102

                       Increasing Investment in the UK-NHS: Some Policy Challenges




of �100,000 per year. The opportunity cost of           As a result of these alterations in pay and
the QOF is unclear. What has been given up to           organization, purchasers and providers have had
make it possible to pay these generous fees for         to increase their activity to achieve waiting time
service (Maynard and Bloor, 2003a)?                     targets by increasing capacity proportionately
                                                        rather than by complementing such investment

The combined effects of these three factors �           with increases in productivity and "sweating"

NICE approving expensive drugs with marginal            assets.    Consequently, there has been little

clinical benefits, the inflation of doctors' salaries   funding left over to pay for the quality changes

with no increases in activity or quality, and           required by the NICE guidelines and the

increased    capital   costs   due    to  the    full   imperatives     of     the    National     Service

employment economy and public sector reform,            Frameworks. At worst, they have to struggle not

� highlight an important question in financing          to go into the red as deficits are not tolerated by

reform. How can you avoid the acquisition of            central managers in the NHS. Figures for the

rents by provider groups when funding is rapidly        2005-6 fiscal year in Scotland indicate that, of

increased with little prior warning and planning?       the new money available at the local level (�524
                                                        million), 92 percent was already committed

There is a further challenge involving rent             before the start of the year to meet promised pay

seeking in the health labor market. The Agenda          increases and other obligations mostly related to

for Change is a national policy document that           pay, pharmaceuticals, and working conditions

classifies the hundreds of skill categories and         (Walker, 2005).

wage systems in the NHS into a simple national
banding system. The aim of the new policy is to         A paradoxical aspect of the sharp increase in
ensure that all non-physician workers are neither       funding created by the Blair reforms is that the
unduly downgraded and de-motivated nor able             organizations that are delivering care are in
to   create   further   wage     inflation  without     increasing financial difficulties. Quite rightly,
productivity gains.                                     the government has raised the expectations of
                                                        the public that waiting times for elective
The government has also adopted policies that           procedures will be reduced and that quality will
are meant to improve the quality of care                be improved in elective, chronic, and emergency
provided in the NHS but are likely to be highly         care.   However, the changes being made to
inflationary.     For example, the European             achieve these targets, while creating some
Working Time Directive requires all NHS                 significant improvements, are creating some
institutions to limit the hours of junior hospital      avoidable waste and arousing frustration in both
staff to 56 hours per week, with a further fall by      politicians and the public who expected more
2009 to 48 hours.           The UK government           rapid change.
reinforced this policy by offering junior staff
very high overtime payments if their employers          Challenge: Increasing Capacity
made them work over this limit, making the
opportunity costs of non-compliance very high           The Blair government has operated on the
for employers. As a result, compliance with the         principle that increasing the funding of the NHS
Directive is being achieved at high cost with           will produce the necessary additional capital and
short-term pay increases and the necessity to           labor to reduce waiting times, increase physician
reduce hours and hire additional staff to replace       activity, and improve the quality of patient care.
lost manpower.      Two more examples of new            However, an immediate problem with this
policies    with    inflationary     potential   are    strategy is that it can take a decade or more to
emphasizing classroom teaching rather than on-          plan, build, and open new hospitals and that
the-job experience in the training of junior staff      training doctors can take 10 to 15 years before
and making all hospital services consultant-led         they can be licensed as specialists and
or specialist-led. Both of these policies require       independent practitioners. With this in mind, the
the recruitment of new staff to maintain patient        government has adopted a range of policies
services. The impact of these changes on quality        aimed at resolving these difficulties.
has yet to be evaluated.



                                                     103

                     Increasing Investment in the UK-NHS: Some Policy Challenges




The preceding Conservative Government had             the recruitment of doctors has focused first on
developed the Private Finance Initiative (PFI) as     increasing the intake at medical schools and
a way to reduce public sector capital expenditure     second on immigration. New medical schools
by replacing it with private funds, with the aim      have been created and old ones expanded, and
of increasing efficiency in the building and          intake has increased by 30 percent, but it will
operation of hospitals and other health care          take at least a decade for the number of doctors
facilities. The Blair government has not only         to increase accordingly. Consequently, the NHS
retained the PFI policy but has significantly         has been actively recruiting doctors from
expanded it as a way to further its public sector     overseas. This is a contentious policy as many
reforms and to contain public sector expenditure.     of these immigrant doctors come from relatively
This policy has been controversial and is             poor nations, and the flow can be regarded as
difficult to evaluate, as many aspects of PFI         "reverse foreign aid." For example, countries
contracts are "commercial in confidence", in          such as India "traditionally" over-produce and
other words, secret, so that rivals cannot detect     export doctors to the UK.         In fact, at the
providers' cost and quality structure. Also, the      moment, the NHS cannot provide its services
transaction costs of PFI projects have been high,     without the over 25 percent of UK doctors who
as each function of the facility being built is       are foreign-trained. With 10 countries joining the
subject to a separate contract.     Recently the      European Union (EU) last year and free
decision of the Office of National Statistics to      movement of doctors and nurses throughout the
count    PFI   expenditure    as   part    of   the   EU guaranteed, more immigration is likely,
government's expenditure may mean that there          subject   to   language   restrictions   and  EU
is less reliance on this funding source in the        registration criteria.
future.
                                                      Yet, even after the recent increased flow of
The capital program, both public and private,         doctors and nurses from Spain and nurses from
aims very gradually to increase the size and          Finland    and    the  Philippines,    recruitment
quality of the stock of hospitals and of              problems remain. The government has therefore
diagnostic and other equipment. However, high         attempted to alter the skill mix of staff who
consumable costs associated with upgrading            provide services to patients.         Nurses and
equipment     and    procedures    can    increase    pharmacists are being given prescribing powers
expenditures     significantly   (for     example,    for the full formulary, and nurses are being
switching from open to laparoscopic surgery).         trained in anesthesia, surgery, and endoscopy.
Whether     these   improvements      have    been    While there is some evidence that nurses are
implemented efficiently is difficult to determine.    proficient in such skills, it takes a long time to
Given the way in which capital markets appraise       train them properly, and if this training time
risk, the private sector inevitably borrows at a      were reduced, the diagnostic and therapeutic
higher cost than the public sector, and the           quality of such practitioners might not be good
resulting increase in costs has to be offset by       enough. Furthermore, although nurses may be
efficiency savings in the creation and operation      clinically   effective,  the    limited   research
of more and better facilities. As PFI contracts       literature does not reveal whether such skill
exclude clinical inputs, savings have to be made      substitution is cost-effective (Lankshear et al,
on the non-clinical aspects of care. At present, it   2005; Lankshear, Sheldon, and Maynard, 2005;
appears that private contractors are receiving        Laurant et al, 2005; and Sibbald, Shen, and
"healthy" rates of return on their PFI contracts      McBride, 2004).
as revealed by the UK's new Freedom of
Information legislation.71                            For nurses and especially for doctors, the
The development of labor market policies has          increase in their pay may reduce emigration and
been more problematic. The policy governing           retain more staff in the medical professions. To
                                                      date, there has been no systematic analysis of
                                                      these issues or any appraisal of the changes in
71www.dh.gov.uk/PublicationsandStatistics/Freedomo    gender and skill mix.
f Information/ReadingRoom/fs/en




                                                   104

                      Increasing Investment in the UK-NHS: Some Policy Challenges




Quality                                               of considering those old marginal therapies,
                                                      which could be eradicated from clinical practice.
The annual hospital league tables show that           Finally, the threshold at which NICE approves
performance is now an integral part of the            technologies for use in the NHS remains too
NHS's star system for grading hospitals. Also,        generous at �30,000 per QALY, with the
the Royal College of Physicians voluntarily           consequence that marginal and expensive
determines and appraises "ambulance-call-to-          therapies have been approved by NICE that
needle"    and    "door-to-needle"     times    for   produce only limited patient health gains (for
thrombolytics in cardiac care, at both the            example, some pharmaceutical interventions for
institutional and the individual clinician level.     cancer patients).
Not all NSF targets for the different care
categories    are    mandatory       performance      A noticeable limitation of the Blair reforms has
standards, but there is pressure from the             been their neglect of both variations in activity
Department of Health for some elements of the         and outcome measurement. A         private sector
framework (such as thrombolytics and stroke           firm, Dr Foster72 has published annual mortality
care) and, more generally, for Trusts to be           rates for hospitals in England, based on the work
required to comply with these targets. Waiting        of Jarman and colleagues (Jarman et al, 1999)
time targets for diagnostic and therapeutic           using NHS data. The data come from an annual
interventions   in   cancer    care  are    already   administrative series, the Hospital Episode
mandatory, but the government should be careful       Statistics (HES), and record a considerable
about extending this to cover all NICE                amount of process detail for every NHS patient
guidelines.     For    example,    certain    NICE    (including the patient's post code, the referring
treatment guidelines for cancer have been             GP's practice, the type of procedure(s), the
implemented unevenly (Sheldon et al, 2004).           length of stay, the name of the specialist,
                                                      readmission rates, and mortality rates). This vast
Some NSFs (for example those related to renal         data set has been collected since 1987 but has
care and diabetes) are relatively new, have not       rarely used in research, let alone in routine
yet progressed significantly, and will add to         management.      Simple analysis of these data
funding pressures. The slow implementation of         shows considerable variation in the activity rates
the mental health NSF reflects the low social         both in crude numbers of finished consultant
and political profile of this sector, a factor        episodes (FCEs) and tariff-adjusted FCEs (Bloor
increasingly recognized as unacceptable and           and Maynard, 2002).
counter-productive.    A prime example is that
many patients in acute care suffer from               Certain policy issues are highlighted by this
dementia, making the absence of psychiatric           variation. For instance, would supplementing
liaison care a cause of "bed blocking." Also,         the salaries of hospital consultants with fee-for-
research    demonstrates     that  outcomes     are   service payments shift the mean of this
improved both for younger patients in acute care      distribution and produce more activity from
(for example, after breast cancer surgery) and        existing doctors? If so, would it be necessary to
older patients if their social and psychiatric        bring in overseas practitioners and affect so
needs are met.                                        significant an increase in the intake of medical
                                                      schools? The choice of the UK Government has
While the creation of NICE was essential and its      been to underplay this issue. Instead of focusing
role is pivotal in rationing resources and            on variations and seeking to produce more
targeting interventions in the most cost-effective    activity from existing doctors, it has chosen
way, its influence has been mixed during the          instead to import and train more doctors.
first six years of its existence. First, its impact   Although such activity analysis can be useful
has been marginal and cumulative as it has only       and a certain amount of variation is both
appraised a few therapies as yet. Second, the         inevitable and human, the government's focus
political processes that have determined its          on waiting times has caused it to neglect all
selection of interventions for appraisal have
tended towards new technologies at the expense
                                                      72www.drfoster.co.uk


                                                   105

                       Increasing Investment in the UK-NHS: Some Policy Challenges




outcome measures other than mortality and              standards.    This is likely to be introduced
recurrence rates.     It is remarkable that the        initially as a pilot scheme in the NHS.
international   health-related   quality    of  life   Hopefully, it will be carefully evaluated to
(HRQoL) measurement is absent from health              ensure both the validity and sensitivity of the
systems. An experiment by the Rand Insurance           instruments before being extended to the entire
led to the creation of Short Form 36, an HRQoL         NHS.
completed by patients themselves assessing their
physical, social and psychological functioning.73      The fact that quality issues have not been
European work in the 1990s led to the creation         integrated into policy and practice in the UK's
of a generic HRQoL that can be converted into a        NHS or in all other national health care systems
simple numerical score (unlike SF36).74 These          is puzzling. Reformers worldwide are eager to
two generic HRQoLs have been used in                   improve quality.      However, they have an
thousands of clinical trials across the world and      unfortunate tendency to blur the distinction
have been translated into dozens of languages.         between process quality and outcome quality,
However, no health care system uses these              which makes it difficult to measure the success
measures to compare the condition of patients          of reforms. While economists may assume that
before and after treatment by determining              the goal of investments in health care is to
whether the HRQoL of patients has improved.            improve population health, it is clear that there is
                                                       much evidence of failure and little evidence of a
Following problems with a gynecological                public desire to measure success (for example,
surgeon's practice and outcomes, a UK insurer          enhancements in the length or the introduction
(the British United Provident Association, more        of HRQoL). This is because politicians and the
commonly known as BUPA) has been using                 public tend to focus on process, activity levels,
SF36 for some of its patients. It is thus able to      and access, which when changed may or may
offer better consumer protection and to give           not improve patient health. The sharp recent
feedback to the surgeons that it employs how           increase in investment in the UK's NHS has
well they have performed relative to their peers       given this issue more prominence and may
in terms of improving their patients' physical,        eventually lead the government to introduce
social, and psychological functioning.       BUPA      HRQoL evaluation and contracting in the health
manage these data using the "six sigma"75 safety       care system. Currently, the government plans to
engineering techniques; in other words, they           evaluate all new Diagnostic and Treatment
focus on the tails of the distribution to learn how    Centers (DTCs) using HRQoL.
the best surgeons succeed and how such
knowledge can be used to improve the                   The Economics of Frustration
performance of practitioners in the "poor" tail of
the distribution. They apply SF36 before and six       The failure of the increased funding to realize
months after the procedure at an estimated cost        more swift and significant changes in waiting
of �3 per patient, which is considerably less than     times and other process measures of success led
the cost of a full blood test.                         to disillusionment in the government. When it
                                                       became clear that the public sector in general
BUPA surgeons, being NHS employees working             and the NHS in particular was not using its
privately,   are    transferring   this   type   of    increased funding in a flexible and efficient
measurement into the public sector. To date, this      manner to facilitate rapid improvements, the
is being used by clinicians but not by non-            government launched a radical program of
clinical management. There is the prospect that        change.
PCT contractors will be chosen not merely on
the basis of price and volume but also on the          In 2003, it reintroduced Hospital Trusts, which
basis of their HRQoL measurement and practice          had been introduced under Margaret Thatcher's
                                                       government76 and which Blair had abolished in
                                                       1997. In their new incarnation, these are called
73www.sf36.org
74www.euorqol.org
75www.sixsigma.com                                     76See Bloor, Maynard, and Street, 2000.


                                                    106

                       Increasing Investment in the UK-NHS: Some Policy Challenges




Foundation Trusts and are regulated intensively          care a choice of five alternative providers �
by Monitor, the Independent Regulator of                 either in the NHS or in the private sector � with
Foundations Trusts.77 In addition, since April           shorter waiting times.    The government then
2005, the government has been incrementally              pays the private providers for the care that they
introducing a system of price regulation with            provide to NHS patients at national tariff rates
national tariffs (an English version of Diagnostic       plus 15 percent from PCT funds earmarked for
Related Group pricing), with all elective care           the specific procedures. In doing this, and by
being reimbursed at the set tariff rates. Those          guaranteeing NHS finance for 5 years, the
hospitals that are deemed to be sufficiently             government hopes to induce the private sector to
secure in their finances have been awarded               develop sufficiently rapidly as to be able to own
Foundation status, one advantage of which is             15 percent of NHS provider capacity by 2008.
that all their activity is reimbursed at tariff rates.   Currently, NHS utilization is very high, with
Thus, those providers with low costs and unused          over 90 percent of the available bed stock in
capacity are finding it relatively remunerative to       most hospitals in use. Demographic pressures
increase utilization and generate "surpluses." In        and other factors (for example. the changes in
other words, if costs are less than tariffs,             GP out-of-hours activity in 2004) mean that
hospitals that increase activity generate more           emergency demand continues to grow, putting
surplus, or profit.                                      pressure on elective capacity. The government's
                                                         response has been to invest initially in NHS
Also in April 2005, the government reintroduced          Diagnostic and Treatment Centers (DTCs) and
GP fund-holding, another Thatcher innovation             then in private sector DTCs. These units tend to
that the Blair government had abolished in 1997.         be small and focused on specialized elective
This is now called "practice-level budgeting."           procedures for which there are long waiting
There is some evidence that the Thatcher system          times, such as hip replacements and cataract
of GP fund-holding reduced hospital admissions           removals.
by a small but significant percentage (Dusheiko
et al, 2003). Given that the introduction in 2004        One possible effect of this investment strategy is
of the GP contract with its out-of-hours clause          the separation of elective and emergency care,
may have increased hospital referrals, it is hoped       with uncertain effects on cost structures. In the
that practice-level budgeting may provide                early   summer    of   2005,    the  government
practices with incentives to retain patients             announced the second tranche of its investment
wherever possible at the level of primary and            in diagnostic and treatment capacity to increase
community care, thus reducing out-of-hours               choice for patients by creating excess capacity.
hospital admissions. However, this will require          The tranche of �500million will be targeted to
radical improvements in the initial structures           the private sector to achieve its increased
being    adopted.        Hopefully,  practice-level      capacity target.
budgeting will be evaluated more thoroughly
than was GP fund-holding, which gave finite              The government is investing to increase capacity
budgets and activity contracts to GPs and their          in primary and secondary care both within and
practices.                                               outside the public sector and is seeking to
                                                         increase patient choice in elective procedures so
In addition to this reversal of earlier policy, the      that patients will have the option of five
Labour government is forceful in its advocacy of         providers to select from by 2006.             The
the merits of competition. One way in which it           government sees the targeting of increased
has sought to create it is by adopting a five-year       investment to private facilities as a catalyst to
plan to invest in alternative private providers to       induce more flexibility and change in the public
create additional elective capacity to enable the        sector. If the NHS provider does not act
system to meet waiting time targets and initiate a       "smarter," then the private sector will erode its
policy of consumer choice. Under this policy,            market. The NHS can either increase access and
GPs must offer patients who have to wait for             improve quality or lose business to the private
                                                         sector.  The government has stated that it is
                                                         prepared to make radical changes in NHS
77http://www.regulator-nhsft.gov.uk


                                                      107

                      Increasing Investment in the UK-NHS: Some Policy Challenges




management and capacity if it fails to improve.       appropriate and cost effective care, and the
Whether it will be able to accept actual NHS          continuing   absence     of   measurement        and
closures only time will tell. Furthermore, this       management of patient-related health outcomes
policy is likely to fail if public and private        (Appleby and Devlin, 2004 and           Kind and
providers collude locally to agree market shares.     Williams, 2004). The resistance of the medical
As ever, capitalists are the enemies of capitalism    profession and major health care suppliers (such
and competition is difficult to create and sustain.   as the pharmaceutical industry) to change is
                                                      based on commercial self-interest and political
Overview                                              influence, and policymakers are going to have to
                                                      tackle these obstacles with determination and
The Labour Government of Prime Minister Blair         vigor.
is involved in a major social experiment, which
has so far significantly increased access to health   An important issue that is still being neglected in
care and may be improving the population's            the health policy debate is whether such
health substantially. Nevertheless, it is wasting     expensive and complex reforms as those in
some resources because of rent seeking by             England are improving the health of the
powerful providers (Campbell, 1969).          It is   population in the most efficient manner possible.
unfortunate that there has been little evaluation     Rapid increases in investment inevitably create
of this experiment and that it is only possible to    short-term supply shortages and rents for
draw tentative lessons from it at this stage.         providers, but even if this were not so, it is likely
There are undoubtedly observable improvements         that in some areas of health care investment
in patient care as waiting times for elective         (such as cancer care), "flat of the curve
procedures are being reduced significantly. The       medicine" is being produced: that is, increased
government has taken a bold decision to spend         investment brings little health gain.          It is
more public health resources on increasing the        possible that channeling the same amount of
share of private providers who can meet the care      money into promoting healthy behavior by
needs of NHS patients. This has created a new         educating the young and the poor (particularly in
interest among the private sector in the health       improving their nutrition) would produce more
care legislative process and may prompt NHS           population health improvements in the longer
providers in primary and secondary care to            term, even in rich developed countries (Maynard
accelerate their own improvements in both             and Sheldon, 2002). If such investments were
quality and volume of care.        The choice of      contemplated, it would be necessary for
market forces and competition as the central          policymakers to have far more information
instruments of public sector reform, while novel,     about the cost-effectiveness of the various
is unproven and risky but fascinating and will        means by which such a policy could be
require the development of market rules (for          implemented.
example, for bankruptcies, mergers, and anti-
trust) and careful regulation. This has yet to be     Health care policymaking in the UK remains
put in place.                                         hasty and based on a limited evidence base. As
                                                      the former President of The Royal College of
There is considerable evidence both of rent           Physicians argued when he criticized the
seeking and acquisition and of continued long-        Thatcher reforms, British policymakers "instead
term inefficiency in the delivery of patient care     of making ready, taking aim, and firing, tend to
(Maynard, 2005). These inefficiencies include         make ready, fire, and then take aim." As with
variations in medical practices, the delivery of      Thatcher,          so          with            Blair.
inappropriate care, the failure to deliver




                                                   108

                     Increasing Investment in the UK-NHS: Some Policy Challenges


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1999.   "Explaining    differences   in  English     Sheldon, T. A., N. Cullum, D. Dawson, A.
hospital death rates using routinely collected       Lankshear, K. Lowson, I. Watt, P. West, D.
data." British Medical Journal 318, 1515-1520.       Wright,and J. Wright, 2004. "What is the
                                                     evidence    that  NICE    guidance    has   been
Kind, P. and A. Williams, 2004. "Measuring           implemented? Results from a national evaluation
success in healthcare - the time has come to do it   using time series analysis, audit of patients'
properly." Health Policy Matters [9]York,            notes, and interviews." British Medical Journal
University of York.                                  329, 999.

Lankshear, A., T. A. Sheldon, and A. Maynard,        Sibbald, B., J. Shen, and A. McBride, 2004.
2005. "Nurse staffing and healthcare outcomes:       "Changing the skill-mix of the health care


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workforce."    Journal   of   Health    Services     among Medicare beneficiaries in Boston and
Research Policy 2004, 9 Suppl 1, 28-38.              New Haven." New England Journal of Medicine
                                                     321, 1168-1173. 1989.
The King's Fund, 2005. "An independent audit
of the NHS under Labour (1997-2005)."                Wennberg J.E. and A. Gittelsohn, 1973.
Briefing paper.                                      "Variations in medical care among small areas."
                                                     Science, 100-111.
Walker A., 2005. Personal Communication.
Wanless D., 2002. "Securing our future health:       Wennberg, J. E., 2002. "Unwarranted variations
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                                                     medical centres." British Medical Journal,
Wennberg J.E., J. L. Freeman, and W.J, Culp,         325[7370], 961-964. October 26.
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T.A. Bubolz, 1989. "Hospital use and mortality




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      Re-Casting Canadian Federalism: Health Care Financing in the New Century

                                              Joseph Wong
                                           University of Toronto

Introduction                                           mechanisms       to  ensure   transparency     and
                                                       accountability in how new health care dollars
Health care in Canada was in a state of crisis         were to be allocated.
during the 1990s. Federal funding for health
care had dwindled throughout the decade.               Despite some early skepticism among health
Relations between the federal government and           policy watchers about the policy impact of the
the provincial and territorial governments had         Romanow Report, the federal government
become increasingly antagonistic. The Canada           quickly responded.79 By the end of 2004, the
Health Act � the federally imposed compact             federal government had committed to adding
between     the  two     levels   of    government     approximately $30 billion of new funding to the
established in 1984 � was unraveling.           The    health care budget over the next 10 years.
provinces and territories were frustrated with the     Considering that total public health spending in
federal government's (in Ottawa) insistence that       2001-2 amounted to $74.6 billion, this federal
the public principles of Canadian health care be       pledge was not insignificant.80 Furthermore, the
maintained even though it was providing less           federal,   provincial,   and   territorial  (FPT)
financial support than before and giving no            governments agreed to develop new joint
assurances that it would ameliorate the fiscal         monitoring and accountability mechanisms to be
situation any time soon. In other words, the           phased in over several years. It is my view that
provinces and territories were doubly pressured        the policy events of 2002 through to the fall of
by the countervailing principles behind the            2004 represent a new paradigm in Canadian
Canada Health Act and pressing fiscal realities.       health policy in which long-term federal funding
Indeed, Canada's ailing national health care           commitments have come to co-exist with a
system mirrored broader challenges in sustaining       principled emphasis on accountability both
Canadian federalism. Negative public opinion           between the two different levels of government
fuelled this discourse of crisis during the 1990s.     and between each government and its citizens.
                                                       This paper endeavors to explain both why and
However, the situation changed between 2002            how these agreements were struck and to
and 2004. The November 2002 report of the              appraise their impact on health policymaking
Commission on the Future of Health Care in             and health care policy in the context of Canada's
Canada, commonly referred to as the Romanow            changing federalism.
Report after its commissioner, former provincial
Premier of Saskatchewan, Roy Romanow,                  The paper is organized in six parts. The first
recommended that the federal government                two      sections     provide    overviews      of
should inject an additional $15 billion into the       intergovernmental relations and health care
health sector.78 It also recommended that the          financing in Canada. Sections 3 to 5 examine
two levels of government introduce new                 the 2002 Romanow Commission Report, the
                                                       2003 Health Accord, and the 2004 Ten-year
                                                       Plan; they focus on the changing political
 Thanks to David Cameron, Naoki Ikegami, Gregory       dynamics between the federal and the provincial
Marchildon, Ito Peng, Richard Simeon, Joseph           and territorial governments.    Section 6 looks
White, and Linda White; their constructive comments    inside the provinces, highlighting current reform
on earlier drafts of this paper were immensely         initiatives in Ontario and Alberta, specifically in
helpful. Much appreciation to Ken Chan, Ruth           the areas primary health care reform and waiting
Hawkins, Alan Hudson, Phil Jackson, and Michele
Weidinger of the Ontario Ministry of Health and
Long-Term Care for their insights. Thanks also to      79 Coyne, 2002 and from the medical profession's
Michel Brack and Victor Parchment for their research   perspective, see Canadian Medical Association
assistance.                                            Journal, 2002, p. 1199.
78All dollar amounts in Canadian dollars.              80Romanow Commission, 2002, p. 312.


                                                    111

                                         Re-Casting Canadian Federalism:
                                   Health Care Financing in the New Century

times reduction.                                               Federal cash transfers for health increased by
                                                               almost 17 percent in the first fiscal year after the
The analytical portions of the paper are                       2002 Romanow Report was made public (Table
structured around four general themes.                   I     1).   Subsequent to the 2003 Health Accord,
describe them briefly here and will develop each               federal cash transfers increased again, this time
theme more fully in the paper's conclusion.                    by over 20 percent, and continued to outpace
                                                               growth rates in provincial (in other words,
Federal Funding Commitment                                     public) health expenditures by a considerable
                                                               margin.     Federal cash transfers amounted to
Although the actual health implications of the                 nearly one-third of total health expenditures in
2002 Romanow Report and the 2003 and 2004                      2004-2005, a marked increase over expenditures
funding agreements have yet to be observed, the                in the mid-1990s when federal funds accounted
short-term financial consequences of these                     for only 16 percent of total health spending.
recent intergovernmental deals are quite clear.


        Table 1: Federal Health (and Social) Transfers to Provinces/Territories, 2000-2005

                           2000-2001          2001-2002          2002-2003        2003-2004        2004-2005
Federal Transfer *         16000              18800              19100            22325            27005
Rate of Growth             --                 17.5%              1.6%             16.9%            21%

Public Health Expend       68958              74590              79539            86034            91054
Rate of Growth             --                 8.2%               6.6%             8.2%             5.8%
Note: * This figure includes social transfers in addition to all new "targeted" investments (the health reform fund, the
Romanow gap, waiting times reduction, medical equipment) and excludes federal tax points and equalization transfers.


Re-Casting Federalism                                          maintain existing health benefits as well as to
                                                               increase productivity (including efficiency and
The 2003 and 2004 pacts for health care renewal                accessibility) in health care provision. In this
effectively re-cast Canadian federalism in                     respect, these investments by Ottawa have been
practice.    In contrast to more confrontational               less transformative than initially anticipated,
modes of intergovernmental interaction during                  though     the    political    optics    of    targeting
the 1980s and 1990s, Canadian federalism
moved towards what David Cameron and                           investment at popular mandates � waiting times

Richard Simeon refer to as "collaborative                      reduction, for instance � have produced
federalism."       Under this new paradigm,                    important political payoffs to both levels of
jurisdictional authority in health matters is                  government.
shared between the two levels of government
and health policy goal-setting and, thus, the                  Political Uncertainty
mechanisms             for         intergovernmental
accountability     are    increasingly      determined         The 2003 and 2004 health care agreements were
collaboratively by the provinces, territories, and             political deals, and, as such, their survivability is
the federal government in Ottawa.81                            subject to the political uncertainties inherent in
                                                               democratic politics.       In Canada, the elected
Unpacking "Investment"                                         government of the day need not honor
                                                               intergovernmental       pacts    made      by     former
New federal commitments to health care                         administrations. Therefore, political uncertainty
financing were not intended to expand the scope                and instability threaten the long-term financial
of existing services that are already covered by               commitments agreed upon by both levels of
the Canadian Medicare system.             Rather, new          governments.       Indeed, as I will argue in the
federal "investments" into the health care system              concluding section of this paper, the present
have by and large been motivated by the need to                moment of collaboration in Canadian federalism
                                                               is not the norm but rather an anomaly.

81David Cameron and Richard Simeon, 2002.


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                                      Re-Casting Canadian Federalism:
                                 Health Care Financing in the New Century

Canadian Federalism: A Framework of                     constitutionally derived powers and authority
Analysis                                                but also by the federal government's use of
                                                        policy instruments to compel (or coerce) the
The two levels or orders of government in               behavior of the provinces and territories. For
Canada comprise the federal government in               example, historically the federal government has
Ottawa and 13 provincial and territorial                used its spending power on health to shape how
governments (10 provinces and three territories).       the provinces and territories deliver health care
Jurisdictional   authorities   and     the   powers     to their citizens.
afforded to each order of government have
historically been delineated in the Constitution.       Federalism in Canada, however, is not just about
Section 91 of the Constitution Act outlines the         top-down and bottom-up relations between the
powers of the federal government, while Section         two orders of government.       It is also about
92 covers the powers of the provincial                  horizontal relations between the individual
governments.     This constitutional or de jure         provinces and territories. Canadian federalism
clarity notwithstanding, the real dynamics of           ensures political equality between each of the
federal-provincial-territorial (FPT) relations in       provinces and territories, irrespective of any
Canada have been and continue to be fluid and           demographic,      economic,      and     political
politically contested. The axiomatic assertion          differences among them. Fiscally, Ottawa pays
that   each    level   of    government       entails   out close to $10 billion per year in equalization
jurisdictional "watertight compartments" simply         payments to the provinces to ensure fiscal
does not reflect federalist realities in Canada. In     balance among the provinces.       This in turn
practice, there is significant jurisdictional           protects diversity among the sub-national
overlap between the two orders of government.           jurisdictions,    resulting    sometimes       in
In the area of health care, for instance, the           "asymmetrical federalism."83       Quebec, for
provinces are responsible for the maintenance           example, maintains its own public drug plan and
and management of heath care provision, while           comprehensive child care program, while the
the federal government has general taxing               other provinces and territories do not.    Inter-
powers and is responsible for broadly defined           provincial diversity and political autonomy are
"public health matters."     Herman Bakvis and          generally understood to be the strengths of
Grace Skogstad note that the two orders of              Canadian federalism. Indeed, federalism works
government are in fact "highly interdependent."         best in terms of policy innovation when
They go on to add that there "are very few areas        provinces function as "laboratories" for policy
of policy where Ottawa or the provinces,                change.
individually or collectively, can proceed without
bumping into the jurisdiction of another                Politics along both the vertical and horizontal
government."82                                          axes of federalist arrangements is not static.
                                                        Where each government is situated on these axes
Given      the    realities    of      jurisdictional   determines the various modes of interaction
interdependence among the provinces (and                between itself and other governments.        The
territories)  and   Ottawa,      intergovernmental      prevailing    conventional   wisdom    regarding
relations in Canada are characterized by                Canadian federalism notes two principal modes
continual power struggles and assertions of             of interaction: cooperation and competition.
political autonomy. Federalism is political; it is      Cooperative federalism is understood to be an
not simply a matter of public administrative            arrangement in which governments cooperate in
wrangling.     Lines of political contestation          shared or interdependent policy areas, with the
among governments are drawn along vertical              federal government playing a key leadership
and horizontal axes. The vertical axis captures         role. Competitive modes of interaction, on the
the   relationship   between      provinces     (and    other hand, are characterized by antagonistic
territories) and Ottawa.       In this case, the        intergovernmental    relations   in  which    the
relationship   between     the    two    levels   of    provinces show little deference to federal
government      is   shaped       not    only     by    mandates. In this conception of federalism, the


82Bakvis and Skogstad, 2002.                            83See Rocher and Smith, 2003.


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                                      Re-Casting Canadian Federalism:
                                 Health Care Financing in the New Century

two levels of government typically invoke the          Health Care Financing in Canada
language of autonomy and authority when
competing      over     what     are,     at   least   It is a complete misnomer to characterize health
constitutionally, distinct policy responsibilities.    care delivery in Canada as a coherent "system."
                                                       In reality, health care consists of 13 different
Observers     have   noted    a   new     mode    of   provincial and territorial systems.          These
intergovernmental relations that has recently          systems are bounded, on the one hand, by
emerged:          collaborative          federalism.   overarching public health principles, which are
Collaborative here refers to a mode of                 enforced by the federal government. As such,
interaction that is qualitatively more than just       some similarities do exist among the provinces
cooperation and co-existence between the two           and territories exist, including publicly financed
levels of government.       Cameron and Simeon         and universal medical insurance (rather than
(2002) define collaborative federalism to be "the      individual payroll-based premiums), a mix of
process by which national goals are achieved,          fee-for-service and global budget schemes used
not by the federal government acting alone or by       for provider compensation, and a common list of
the federal government shaping provincial              "essential" and, therefore, insured health care
behavior through the exercise of its spending          services. However, inter-provincial differences
power, but some or all of the eleven                   exist as well.        Provincial and territorial
governments      and     the    territories  acting    governments design their own specific health
collectively."84    In this view of Canadian           systems to reflect their jurisdiction's particular
federalism, the policy process (agenda-setting,        health    care   priorities.     Therefore,    the
decision-making,       implementation,       output    organization and delivery of health care in
evaluation, and policy feedback) involves              Canada is relatively decentralized, even though
concerted and regular interaction between the          the federal government plays a significant role in
orders of the government. The lines of policy          financing health care from out of the federal
leadership run both ways, from the top down, as        coffers. Certainly, the 13 health care systems
in the conventional understanding of cooperative       operating in Canada are far from identical.
federalism, through equally as likely from the
bottom up. Relationships among provinces,              Public health care in Canada originated as a
territories, and Ottawa are dynamic and change         provincial experiment in Saskatchewan, with the
over time, even over the lifetime of a single          introduction of public hospital insurance in 1947
policy debate.                                         and then public medical insurance in 1962. The
                                                       federal government in turn enacted the Hospital
These conceptual (and variable) dimensions of          Insurance and Diagnostic Services Act in 1957,
Canadian federalism � degrees of jurisdictional        followed by the 1966 Medical Care Insurance
interdependence, both vertical and horizontal          Act. These federal laws stipulated that every
axes, and variable modes of interaction �              province was to implement a public medicare
provide the basis for a generic framework              program    by    1971    and   that  the    federal
through       which       we       can      analyze    government would fund 50 percent of the
intergovernmental relations in the context of          provinces' health spending through direct cash
health care renewal. Moreover, they provide for        transfers.   The laws also mandated that the
us a roadmap with which to capture the                 provincial   programs      should:   (i)   provide
continually changing contours of Canadian              comprehensive     benefits    coverage,   (ii)  be
federalism, both in terms of its politics and the      available to everyone, (iii) be portable (across
processes of public policymaking. As the rest of       provinces), and (iv) be publicly administered.
this paper will show, the dynamics of health care      Aside from these broad federally mandated
financing in Canada have gradually moved away          conditions, the provinces were free to innovate
from cooperative and competitive modes of              in terms of policy. In other words, public health
intergovernmental interaction towards a more           care in Canada � which Antonia Maioni suggests
collaborative (though still evolving) model of         originated during an era "infused with a spirit of
federalism.                                            negotiation and compromise" � was the product


84Cameron and Simeon, 2002, p. 54.


                                                    114

                                   Re-Casting Canadian Federalism:
                               Health Care Financing in the New Century

of cooperative federalism.85                         publicly administered. The CHA added a fifth
                                                     principle � "equal access under uniform terms
Federal commitments to this early inter-             and conditions." From the perspective of the
governmental bargain were relatively short-          federal    government,     the   CHA      prohibited
lived, however. Between 1968-9 and 1976-7,           provinces from collecting out-of-pocket user
total federal cash transfers to the provinces        fees and from allowing extra-billing by for-
consisted of no more than 37.7 percent of total      profit providers. Ottawa defended its position
provincial health care expenditures, far short of    by arguing that the CHA reflected Canadian
the promised 50:50 funding that had been             norms and public opinion about how public
promised earlier on.86        From the federal       health care should be provided. However, from
government's point of view, the open-endedness       the perspective of the provinces (and of medical
of that early promise left it with few policy        care providers), the CHA put a straitjacket on
instruments to control escalating costs. As a        provincial and territorial health policymakers,
result,  in  1977,    the   federal   government     especially given the federal government's threats
introduced the Established Programs Financing        to withhold federal transfers in the event that
(EPF) federal transfer scheme. Through a mix         any    provincial    or   territorial   government
of direct cash transfers and "tax point" financing   contravened the principles of the 1984 act. As a
(amounts that the provinces and territories are      federally imposed pact, the 1984 CHA was in
allowed to raise to fund health care through         effect an instrument of "prohibitive federalism"
provincial taxation), the EPF scheme linked          in the sense that its primary motivation was to
health and education transfers to GNP growth         forbid certain policy initiatives by the provinces.
and put them on a per capita basis rather than on
the actual costs to administer these social          Federal funding for provincial health care
programs.87        Re-distributive   equalization    continued to decrease into the 1990s. As Ottawa
payments were also introduced at this time to        tightened its fiscal belt, it froze the size of cash
offset   lower   fiscal  allocations   to   poorer   transfers to the provinces in 1990. The cash
provinces and territories.     In the aggregate,     freeze continued beyond 1993 after the Liberal
however, provincial and territorial governments      Party replaced the Conservatives in forming the
were fiscally shortchanged by the EPF scheme.        federal government. Motivated in large part by
As Table 2 demonstrates, total federal transfers     national fiscal deficits, Ottawa replaced the EPF
(cash and tax points) to provinces decreased         program in 1995 with the Canada Health and
from 41.3 percent in 1977-8 to 32.1 percent in       Social Transfer (CHST) scheme. CHST funds
1995-6. Moreover, direct cash transfers from the     were allocated to each of the provinces and
federal government decreased proportionately,        territories as a block fund, combining previously
bottoming out at 16.3 percent of total provincial    separate transfers in social assistance, health,
health expenditures in 1995-6.                       and post-secondary education.            The cash
                                                     component of federal transfers to the provinces
Provincial and territorial governments were          decreased dramatically in three years from 16.3
further constrained fiscally and in terms of         percent    of    total  provincial    health    care
policy latitude when the federal government          expenditures in 1995-6 to 9.8 percent in 1998-9.
passed the Canada Health Act (CHA) in 1984.          By 2001-2, federal transfers to the provinces,
The CHA amalgamated the 1957 hospital                including cash and tax points, amounted to only
insurance and the 1966 medical care insurance        27.5 percent of total provincial health spending.
acts and codified into legislation the federal       Politically, the federal government portrayed the
government's guardianship role over five core        CHST arrangement as a way of renewing
principles of health care provision in Canada. It    "flexible federalism." As one observer put it,
re-affirmed Ottawa's insistence that health care     however,       "flexibility     [wa]s      seriously
must be comprehensive, universal, portable, and      circumscribed by a reduced amount of money
                                                     moving from the federal to provincial/territorial
85Maioni, 2002 in Bakvis and Skogstad (eds), 2002,
pp. 90-91.
86Romanow Commission, 2002, p. 313.
87 Maioni and Smith, 2003 in Rocher and Smith
(eds), 2003.


                                                  115

                                      Re-Casting Canadian Federalism:
                                 Health Care Financing in the New Century



             Table 2: Federal Funding for Provincial and Territorial Health Spending
                                             during the EPF Era
Fiscal Year             Total Federal Transfer as % of Provincial �  Federal Cash Transfer as % of Provincial �
                               Territorial Health Spending                  Territorial Health Spending
1977-78                                    41.3                                         24.9
1979-80                                    43.3                                         26.1
1981-82                                    39.8                                         23.2
1983-84                                    38.3                                         23.4
1985-86                                    38.9                                         23.4
1987-88                                    37.7                                         21.2
1989-90                                    35.2                                         18.7
1991-92                                    31.2                                         16.8
1993-94                                    31.2                                         17.0
1995-96                                    32.1                                         16.3

government."88 Not surprisingly, provinces did              renewal at the turn of the 21st century. Around
not buy Ottawa's pitch.                                     2000, a window of opportunity emerged for
                                                            concerted    action    among       the   federal   and
Ottawa created the CHST scheme to relieve                   provincial/territorial   governments.          Several
some of the fiscal pressures that it faced in               factors converged at the time, giving political
maintaining its financing commitments for                   impetus to new initiatives in health care and
social policy. At the sub-national level, health            health financing. Interestingly, cost containment
policy authorities were forced to consider more             and financial retrenchment were not on the
innovative policies for delivering and managing             reform agenda, whereas federal re-investment in
health care. For the health system as a whole,              health was.
however, the 1995 CHST reform deepened
Canada's fiscal crisis. Politically speaking, it            The Impetus for Renewal
also de-legitimated the federal government's
leadership role, which in the past had been                 First, the discussion surrounding the health care
afforded to Ottawa because of its spending                  crisis was not confined to government policy
power.     As a result, provinces and territorial           elites but also involved the Canadian public,
governments renewed their efforts to challenge              which had begun to demand change. Second, the
the    federal   mandates     to   maintain      broad      discussion centered on several issues regarding
uniformity (according to the 1984 CHA).                     political accountability that were central both to
Indeed, the 1995 CHST raised serious concerns               citizens' frustrations and to political conflict
about accountability in health care spending and            between the federal and provincial/territorial
provision and also about existing jurisdictional            governments. As in many federal systems, the
arrangements and commitments between the two                two levels of government had escalated the
levels of government. By the mid- to late 1990s,            politics of blame avoidance, and there seemed to
the cooperative federalism that had been                    be little hope for any resolution in the near
established during the early postwar period gave            future. This was understood to be unsustainable
way to a more competitive mode of interaction               and unacceptable to Canadians over the longer
between Ottawa and the 13 provinces and                     term.89 Third, while the federal government in
territories.                                                Canada portended to safeguard the core
                                                            principles of the Canada Health Act (in other
The 2002 Romanow Report                                     words, public medicare), several provinces
                                                            nonetheless threatened to defect from the
The sense of crisis surrounding Canadian health             national health care pact to experiment with
care that had percolated throughout the 1990s               private sector alternatives, administrative re-
ultimately set the stage for policy reform and              scaling, and extra-billing mechanisms. With less
                                                            funding    coming      from      Ottawa,    provinces

88Jennissen, 1997 in Blake et al., eds., 1997, p. 225.
See also Prince, 2000, Cohn, 1996 and Rice, 1995.           89 Marchildon, 2005.


                                                        116

                                    Re-Casting Canadian Federalism:
                                Health Care Financing in the New Century

increasingly felt that there was little to compel     large part to its broad consultative mandate.
them to adhere to federal mandates on health          Romanow's work also gained a great deal of
care organization and delivery.                       attention because it resonated with prevailing
                                                      Canadian values and norms surrounding publicly
Finally, and perhaps most importantly, the            financed health care. Regardless of its policy
federal government enjoyed a sizable fiscal           substance, the Romanow Report was particularly
surplus at the end of the 1990s. At the 2000          important in funneling the policy agenda for
First Ministers Meeting (of the Prime Minister        subsequent reform debates between the two
and the 13 provincial and territorial Premiers),      levels of government.
the federal government agreed to raise the CHST
base to $15.5 billion over the subsequent five        The    Romanow      Report   was    unveiled   in
years (through to 2005-6), in large part to make      November of 2002. Although the report
up for federal funding gaps incurred throughout       comprised      47    different    funding    and
the 1990s. Furthermore, Ottawa agreed to inject       organizational recommendations, three broad
an additional $20 billion in federal transfers over   themes emerged. First, the Romanow Report
the same period. Two billion dollars from the         stressed the idea that reform was to "buy
CHST was earmarked           for early childhood      change."     New funding from the federal
development programs. In addition, the federal        government was to be more than just a short-
government created a separate $1.5 billion fund       term cash infusion into the ailing system;
for investments in medical equipment and health       instead, the additional funding was to be used to
information technology, plus an $800 million          facilitate innovations in health policy and
Primary Health Care Transition Fund.            In    organizational change.     Second, the report's
exchange, provincial and territorial governments      funding    recommendations     targeted  specific
agreed, at least in principle, to begin developing    health care priorities, which would hold
a system for health performance reporting.90 In       provincial and territorial governments, along
sum,   political   urgency,    exhausted   federal    with Ottawa, accountable for how the new funds
relations, and fiscal surpluses in Ottawa gave        were allocated. The report stressed the need to
impetus to concerted efforts from both orders of      devise mechanisms for comparable reporting
government for health care renewal and reform.        and performance measures, building on the
                                                      agreements established at the 2000 First
The Content of the Romanow Report                     Ministers Meeting. Third, the Romanow Report
                                                      sought to repair Canadian federalism, saying that
The Royal Commission on the Future of Health          in "the Commission's view, those charged with
Care in Canada, headed by Roy Romanow, the            the governance of the health care system need to
former provincial Premier of Saskatchewan, was        restore a level of mutual respect and trust that
created with the encouragement of Romanow             has been missing in recent years, especially in
himself and by order of the federal government        the relationship between the federal government
in the spring of 2001. The Commission's work          and      the    provincial     and     territorial
lasted 18 months and involved several weeks of        governments."91     Thus, the Romanow report
public hearings and expert workshops. It              looked to reinvigorate the spirit of cooperative
received approximately 11,000 letters and emails      federalism.
from citizens, in addition to over 13,000
completed on-line survey workbooks. Although          The Romanow Commission emphasized the
several other health reform efforts were              need for long-term and stable funding from the
launched at around the same time � such as the        federal   government.        The     Commission
Senate Report on health authored by Senator           recommended that the CHST block funding
William Kirby and the Premier's Advisory              mechanism (established in 1995) be replaced by
Council on Health in Alberta � the Romanow            a dedicated Canada Health Transfer (CHT)
Commission received the most attention from           scheme. According to the Commision's report,
the general public and from health policymakers       the federal government would have to allocate at
in Ottawa and the provinces. This was due in          least $15.3 billion to the CHT by 2005-6 that


90Tuohy, 2002.                                        91Romanow Commission, 2002, p. 46.


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                                    Re-Casting Canadian Federalism:
                                Health Care Financing in the New Century

would be designated for the provinces and             The First Ministers were scheduled to meet in
territories. Furthermore, the CHT base would be       early 2003 to negotiate the terms of a new
adjusted yearly to reflect real growth rates in       Health Accord.       As alluded to above, the
health care expenditures. The Romanow Report          Romanow recommendations inadvertently set
also recommended that federal cash transfers for      the agenda for the Ottawa meetings. For
health should equal at least 25 percent �             instance, Prime Minister Jean Chr�tien, while
effectively a cash funding floor � of total health    lauding the Romanow Report, immediately
spending for insured services mandated by the         warned that the federal government was not
Canada Health Act. Additional federal funds           going to be able to fulfill all of the report's
totaling $8.5 billion were to be allocated over a     funding recommendations. On the day that the
two-year period starting in 2003-4 for the            Romanow Report was unveiled, the Prime
following short-term priorities:                      Minister remarked: "We could find some money,
                                                      probably not as much as Mr. Romanow is
� Rural and RemoteAccess Fund � $1.5 billion          recommending."92 Chr�tien also made it clear
� Diagnostic Services Fund � $1.5 billion             that the federal government was not about to
� Primary Health Care Transfer � $2.5 billion         sign and hand over 13 blank checks to the
� Home Care Transfer � $2 billion                     provincial and territorial governments.
� Catastrophic Drug Transfer � $1 billion
                                                      The provinces similarly dug their heels in
By the report's calculations, this new federal        politically shortly after the Romanow Report
funding for health care (over current forecasts)      was made public.         Ontario's Premier, Ernie
would equal $15 billion by the end of fiscal year     Eves, intimated that while, the provinces
2005-2006. To ensure that these funds would be        welcomed new funding, the share allocated to
allocated by the federal and provincial/territorial   Ontario was still too small. Quebec stated that it
governments according to these targets, the           intended to opt out of any agreement in which
report   argued    that   a   sixth  principle   �    Ottawa      intruded     upon    the   province's
accountability � should be added to the Canada        management of health care services in any way.
Health     Act.        The    Commission      thus    Alberta's    Premier,    Ralph   Klein, similarly
recommended the creation of a Health Council          rejected the notion of any conditions or strings
of    Canada,    a    forum    for   federal  and     being attached to new funding from the federal
provincial/territorial collaboration and sustained    government.     Indeed, his was not a minority
dialogue, specifically pertaining to evaluating       view. Most of the provinces opposed the
health care performance and constructing              creation of the Health Council of Canada on the
national standards and benchmarks. The Health         grounds that it encroached upon provincial
Council, as envisioned by the Commission,             autonomy and would in effect create another
would report annually to the public on the            layer of bureaucracy in what was already an
performance of Canada's health care system.           overly managed health care system.93

Reactions to the Romanow Report                       All governmental stakeholders found problems
                                                      with the recommendation that funding from the
The Romanow Report, while expansive in                federal government should target certain health
breadth and detail, effectively focused the policy    care priorities. Some suggested that the targets
agenda on two inter-related core issues:              were too vague and that it would therefore be
increased federal funding and new mechanisms          too difficult to develop comparable measures of
to ensure accountability.      In doing so, the       performance.       At the same time, others,
Romanow recommendations went beyond fiscal            primarily    the     provincial   and   territorial
tinkering; they endeavored to re-affirm and then      governments, contended that the targets were too
re-cast the federalist pact underpinning health       specific and thus posed inflexible constraints on
care and health financing.           Indeed, the      how federal funds could be allocated. Both
immediate response by provinces, territories,         interpretations of proposed funding targets � too
and the federal government uniformly centered
on the prospects of new dollars and the strings
attached to those dollars.                            92Cited in Fraser, 2002, p. A1.
                                                      93Mickleburgh, 2002, p. A4.


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                                    Re-Casting Canadian Federalism:
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vague or too specific � cut to the core of the       Council of Canada and on the introduction of
Romanow       Commission's       insistence  that    performance evaluation indicators, which the
accountability be a condition for additional         federal government had drafted in late January
federal funding. Indeed, it was unclear as to        of 2003. Prime Minister Jean Chr�tien laid out
whom the provincial governments were to be           the federal position clearly when he stated:
accountable.    Tensions between funding and         "Accountability, it's a deal breaker, no doubt
accountability animated the dialogue among           about it."95
provincial and federal health policymakers right
up to the February summit.                           There seemed to be some rapprochement among
                                                     the      federal        and      provincial-territorial
The 2003 Health Care Accord                          governments on the eve of the February 4-5
                                                     meetings.      Public opinion in Canada favored
Federal and provincial health ministers met in       increases in federal health spending and Ottawa
December of 2002 to lay out an agenda for the        conceded that it needed to play a bigger role in
February meeting. It was clear that there was        financing health. Ottawa also suggested that it
little consensus among the provinces at that time    was willing to negotiate the terms of the creation
about how to proceed with health care renewal.       of Health Council of Canada. For instance, the
For example, while most of the provincial and        federal government indicated that voting on the
territorial governments agreed that new federal      council would favor the provinces and territories
funding should be given without conditions,          with Ottawa having a minority vote.96              The
Saskatchewan balked at such a hard-line              federal government would not lobby to have a
position. When the Premiers met in late January      veto on the council.           Furthermore, Ottawa
in Toronto, they hoped to craft a more unified       agreed that performance evaluation indicators
position. Their efforts, however, were derailed      would be designed collaboratively by federal,
from the get-go. Before their meetings, the          provincial, and territorial authorities and that
federal government leaked information to the         provinces could allocate some portion of their
media regarding its fiscal position for the          new federal funds into areas outside the targeted
upcoming February summit. Although Ottawa            priorities, thus giving them some flexibility. The
did not disclose exact dollar amounts, the federal   provinces, meanwhile, believed that Ottawa was
government made it clear that the provinces and      taking seriously their demands for more federal
territories should lower their expectations about    funding. Pre-summit reports indicated that the
how much federal funding was going to be put         federal government was considering offering the
on the table.    The Premiers were furious at        provinces nearly $24 billion over five years in
having been preempted by Ottawa.            They     new health care financing.97
viewed the "leak" as a political power-play by
the federal government to undermine the already      The Content of the Accord
tenuous unity among the provincial and
territorial    leaders.94         Tensions      in   The February 4-5 meetings were tense and
intergovernmental relations were running high        acrimonious.       Ottawa's offer of a conditional
by early February.                                   $12 billion over three years was much less than
                                                     what the provinces demanded, and indeed
Again, the key issue going into the 2003 meeting     expected      given      the    Romanow      Report's
was Ottawa's plan to make provinces and              recommendation that new federal funds should
territories accountable for how federal funds        approach $15 billion over three years.             The
were to be allocated.     On the one hand, the       provinces initially rejected the proposal, but they
provinces demanded more federal funding but
with no strings attached. On the other hand, the     95Cited in Laghi, 2003.
federal government insisted that provincial          96It was decided in December of 2003 that the Health
accountability be the foundation for any new         Council     would     comprise   27   members:     one
federal funding agreement. Ottawa focused its        representative from each of the ten provinces and
efforts specifically on the creation of the Health   three territories, an elected independent chair, and 13
                                                     non-governmental       representatives selected    and
                                                     nominated by the two levels of government.
94Clark, 2003.                                       97Laghi, 2005.


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                                          Re-Casting Canadian Federalism:
                                    Health Care Financing in the New Century

were forced to acquiesce � grudgingly � at the                  health care spending, aimed specifically at
eleventh hour when Prime Minister Chr�tien                      primary health care, home care, and catastrophic
issued a "take-it-or-leave-it" ultimatum to the                 drug coverage.
Premiers. Ottawa made it clear that it was not
going to move on its funding proposal. Any side                 The provinces and territories, not surprisingly,
deals with specific provinces or territories were               were disappointed by the amount of new federal
similarly off the table.                                        funding agreed to in the 2003 Accord. Indeed,
                                                                the provinces and territories accepted the Accord
The provinces were successful, however, in                      only under conditions of political duress. Seven
pressuring the federal government to create a                   of the ten provincial Premiers were facing
dedicated Canada Health Transfer scheme                         reelection that year, and therefore they could not
immediately (for fiscal year 2004-2005) to                      politically afford to reject new federal money, no
replace the CHST mechanism that had been                        matter how underwhelming Ottawa's proposal
implemented in 1995.           The provinces (minus             seemed at the time.         Essentially, the federal
Quebec and Alberta) also agreed to establish the                government guaranteed $10 billion in new
Health Council of Canada, with assurances from                  funding over three years, with an additional $2
the federal government that the provincial and                  billion depending on Ottawa's fiscal situation at
territorial health authorities would be involved                the end of the 2003-4 fiscal calendar.         The
in developing performance evaluation indicators                 provinces       and    territories  had    expected
and benchmarks. To that end, the provinces also                 approximately $24 billion over five years.
assented to federally mandated targets for new
                             Table 3: 2003 Health Accord Proposed Spending

Investment                                                   Amount               Fiscal Year(s)   Duration
Increase to CHST                                             $9.5 billion         FY 2003-2008     5 years
Romanow Gap added to CHST                                    $2.5 billion         FY 2003-2004     1 year
Health Reform Fund *                                         $16 billion          FY 2003-2008     5 years
Diagnostic/Medical Equipment Fund                            $1.5 billion         FY 2003-2004     1 year
Health information technology                                $600 million         FY 2003-2004     1 year
Other investments **                                         $1.6 billion         FY 2003-2009     6 years
Other investments (II) ***                                   $1.3 billion         FY 2003-2008     5 years
Aboriginal health                                            $1.3 billion         Unspecified
Hospital research                                            $500 million         Unspecified
Notes:    * Targeted for primary health care, home care, and catastrophic drug coverage
          **       Other "health accord initiatives"
          ***      Other budget initiatives.


Of this three-year $10-12 billion commitment,                   equipment as part of its national strategy for
$2.5 billion was to be disbursed as an immediate                reducing waiting times.
cash infusion to make up the short-term so-
called "Romanow Gap".             Over the next five            The 2003 Health Accord was successful in so far
years, the federal government also agreed to                    as it secured more funding from the federal
spend an additional $16 billion (of which                       government, albeit less than anticipated by the
funding for years one to three would come out of                provincial and territorial governments.        The
the $12 billion allocated from the Health                       creation of the CHT furthermore ensured that
Accord) toward a Health Reform Fund,                            federal commitments to health care renewal
disbursed on a per capita basis and focused on                  were longer-term and presumably more stable
primary and home care and catastrophic drug                     than in the past, as emphasized by the Romanow
coverage. The provinces and territories were                    Report in 2002.        However, many core issues
given the responsibility for ensuring that 50                   remained unresolved.
percent of Canadians have round-the-clock
access to primary care health facilities by 2011.               Some analysts suggested that the amount of
In addition, Ottawa created a $1.5 billion fund                 money that Ottawa committed was in fact far
for   investing     in    diagnostic      and    medical        less than the federal government claimed, an



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                                      Re-Casting Canadian Federalism:
                                 Health Care Financing in the New Century

interpretation that resonated among provincial         federal conditionals attached to the new funds
and territorial leaders.       They cited several      and     the    development       of    countrywide
reasons for holding this view. First, a significant    accountability measures.        As is typical in
portion of the "new" funds had already been            Canadian federalism, both Ottawa and the
accounted for by federal fiscal commitments            provincial/territorial   governments     politically
from 2000.98 Second, the way in which Prime            postured throughout the run-up to the fall
Minister     Chr�tien     forced    provincial  and    meeting.
territorial representatives at the 2003 summit to
accept Ottawa's proposal raised questions about        After having met in July of 2004, the provincial
the political legitimacy of the Accord. Many           and territorial Premiers collectively pitched a
observers noted that, despite the additional           proposal for a new national pharmacare
funding commitments from Ottawa, the 2003              program, a scheme that would cost the federal
Accord       did     not      repair   or     renew    government approximately $10 billion per year.
intergovernmental relations; in fact, most agreed      They hoped that by offsetting the costs of drug
that the February meetings exacerbated federal,        coverage, the provinces and territories could
provincial, and territorial tension. To be sure,       shift their limited fiscal resources to other health
territorial Premiers essentially walked out of the     priorities outlined in the 2003 Accord.        The
meetings. The Premiers of Quebec and Alberta           federal government rejected the provinces'
expressed their opposition to the conditions that      proposal in August.         Even Roy Romanow
had been placed on new federal funds and               cautioned against the idea of a national
withdrew from participating in the Health              pharmacare program. He lauded the proposal in
Council. Third, it was unclear at the conclusion       principle, but argued that in the short term the
of the 2003 meetings exactly how accountability        federal government was not in any fiscal
measures were to be negotiated by the two              position to fund such an ambitious scheme.
orders    of    government      and    implemented     Federal funds were not to be used to expand the
thereafter. Timelines were established and all         existing scope of insured services.
governmental stakeholders accepted the need for
standardized comparable indicators. However,           Ottawa attempted to take control of the renewal
the extent to which the federal government or          agenda by setting the terms of the ensuing
their sub-national counterparts would take the         debate over federal investments and the
lead in formulating these performance measures         conditions put on those funds. Paul Martin
and benchmarks remained undefined.                     campaigned in early 2004 on a health platform,
                                                       promising voters $9 billion in new funding in
As was the case before the February 2003               order to renew Canada's health care system.
meetings, tension remained at the center of            This promise carried over into the fall after Paul
intergovernmental conflict.        Many provincial     Martin became Prime Minister.99 Furthermore,
and territorial leaders agreed to the deal in the      the federal government focused its policy reform
end because of political pressure from their           efforts on reducing waiting times, a proposal
constituents back home and, more importantly,          that was popular with both the electorate and the
in anticipation of coming federal elections and a      provincial governments.       Specifically Ottawa
new Prime Minister.                                    highlighted its "five-in-five" plan, which aimed
                                                       to reduce waiting times in five key areas �
The 2004 First Ministers Meeting                       cancer, cardiac surgery, cataracts, diagnostic
                                                       imaging (MRIs and CTs), and joint replacements
A First Ministers Meeting was scheduled for            � over the next five years.       This was to be
mid-September of 2004 to revisit many of the           achieved by enabling the purchase of new
unresolved issues left over from the 2003              diagnostic equipment and dedicated resources to
summit. It was thought at the time that the new        clear existing backlogs.
federal government led by new Prime Minister
Paul Martin would be more amenable to hearing          Although the provinces and territories agreed
and addressing the provinces' concerns about           with Ottawa's desire to reduce waiting times,


98See, for instance Ibbitson, 2003.                    99Fagan, 2004.


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                                    Re-Casting Canadian Federalism:
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they    were   nonetheless     concerned     about   clause for the CHT was also put into place,
excessive meddling by the federal authorities in     meaning that federal transfers for health care
setting performance standards and benchmarks         would reach over $30 billion by fiscal year
for the provinces.       Just days before the        2013-14. From the perspective of the provinces
September meetings, the federal government           and territories, the 2004 Ten-Year Plan ensured
injected some flexibility into the process, saying   that they would receive new federal funds and
that, while national benchmarks for waiting          more importantly it signalled a long-term
times reduction needed to be established, these      commitment on the part of the federal
benchmarks would be "a standard for which            government to spend more on health care.
[provinces and territories] can aim, rather than a
target they have to hit."100 The provinces and       Of the $18 billion in new investments promised
territories also showed some moderation by           by the federal government, $5.5 billion was
dropping their pharmacare proposal.            Not   earmarked for a Wait Times Reduction Fund to
surprisingly, they immediately turned their          be disbursed to the provinces and territories over
attention back to questions of new federal           10 years and on a per capita basis. Despite
funding. Prime Minister Martin proposed $13          Ottawa's earlier insistence that the provinces and
billion over six years, with an escalator of 5       territories should be held accountable for how
percent per year. The provinces and territories      they allocated the targeted funds, the Ten-Year
counter-offered with a request for $36.5 billion     Plan effectively did away with any explicit
over six years.     Globe and Mail columnist         conditions to be imposed by the federal
Murray Campbell put it best when he wrote that       government. The strategy for reducing waiting
the 2004 First Ministers Meeting was likely to       times that was discussed at the meeting
be a "national bicker fest."101                      demonstrates this point clearly.       The federal
                                                     government's Ten-Year Plan, for instance, noted
The 2004 Ten-Year Plan                               that "jurisdictional flexibility" was to be a core
                                                     "principle" in the First Ministers' action plan to
Campbell was absolutely correct in his forecast.     facilitate "access to timely care." The document
The September 14-15 meeting of the First             further stated that the provinces and territories
Ministers again centered on how much new             "commit to achieve meaningful reductions in
funding the federal government was offering and      waiting times in priority areas such as cancer,
what strings would be attached to the funds.         heart, diagnostic imaging, joint replacements,
However, despite moments of acrimony among           and sight restoration... recognizing the different
the two levels of government, the First Ministers    starting points, priorities and strategies across
did agree to a Ten-Year Plan to strengthen health    jurisdictions."     In terms of accountability
care in Canada.                                      measures,    the   plan   made      provinces   and
                                                     territories    responsible      for    establishing
The provincial and territorial governments in the    "comparable indicators of access" by December
end accepted Ottawa's proposal for increased         2005.    Benchmarks or targets for "medically
federal funding of $18 billion over six years,       acceptable waiting times" were to be jointly
even though it was roughly half of the amount        developed by the federal, provincial, and
that they had asked for going into the meeting.      territorial ministers of health over the course of
The     federal  government      re-affirmed    its  2005, and each jurisdiction was to establish its
commitment to making up the short-term               own timelines for reaching those benchmarks by
Romanow Gap with an immediate injection of           the end of 2007.102 In this way, the emphasis on
$3 billion between 2004 and 2006. Ottawa also        flexibility     and      on      intergovernmental
agreed to create a new CHT base of $19 billion       collaboration   was     a  prerequisite    for  the
beginning in the fiscal year 2005-6, which was       development of performance measures and
almost $5 billion more than the allocated            benchmarks. Moreover, provinces and territories
transfer for 2004-5 ($14.2 billion), an increase of  were no longer accountable to Ottawa per se but
more than 30 percent. A 6 percent escalator          rather to their own citizens and for their own
                                                     timelines. This was an important political

100Laghi 2004.
101Campbell, 2004.                                   102 Health Canada, 2004a, pp. 2-3 [emphasis added].


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                                        Re-Casting Canadian Federalism:
                                   Health Care Financing in the New Century

breakthrough.
                             Table 4: 2004 Ten-year Plan, Spending Proposals

Investment                                                 Amount               Fiscal Year(s)     Duration
New Canada Health Transfer (CHT) base *                    $19 billion / year   FY 2005-2014       9 years
Additional transfer **                                     $500 million         FY 2005-2006       1 year
Romanow Gap added to CHT                                   $3 billion           FY 2004-2006       2 years
Wait Times Reduction Fund (I)                              $4.5 billion         FY 2004-2010       6 years
Wait Times Reduction Fund (II)                             $1 billion           FY 2010-2014       4 years
Medical Equipment Investment                               $500 million         FY 2004-2005       1 year
Aboriginal health                                          $700 million         Unspecified
Notes:  * Base at $19 billion for FY 2005-2006, 6 percent per year thereafter.
         ** Targeted for home care and catastrophic drug coverage.


Given that a number of side deals were also                   measured against a fiscal standard.105            The
concluded at the 2004 meeting between the                     purpose of equalization payments is essentially
federal government and specific provinces, the                to raise the fiscal capacity of poorer provinces to
meeting was more broadly inclusive of diverse                 the level of a set national standard. In fiscal year
provincial and territorial concerns than the 2003             2004-5, eight (of ten) provinces qualified for
Accord had been. For instance, Prime Minister                 equalization        payments,       amounting       to
Martin offered a side deal to Quebec that                     approximately $9.7 billion in federal transfers.
affirmed the province's place within the
Canadian federation and recognized its distinct               As Table 5 demonstrates, smaller provinces with
health care program. In a separate communiqu�                 less fiscal capacity received more total federal
from the Ten-Year Plan, the federal government                transfers (per capita) than did the larger
recognized that "Quebec will apply its own wait               provinces such as Ontario and Alberta.106
time reduction plan, with the objectives,                     Disparities between the provinces and the
standards and criteria established by the relevant            territories have been even more striking, given
Quebec authorities."103         In addition, Quebec           the limited fiscal capacities of Canada's three
would maintain its own pharmacare program,                    territories. The federal government committed
over and above the federal initiatives regarding              approximately $1.8 billion for extra territorial
catastrophic drug coverage.          With respect to          financing in the fiscal year 2004-5.107
Canada's aboriginal communities, the federal
government held a special meeting of First                    Recent adjustments to the equalization payments
Ministers and Aboriginal leaders in mid-                      scheme and the territorial funding formula
September 2004, during which Ottawa agreed to                 reflect a long-term financial commitment by the
create and finance a $700 million Aboriginal                  federal government to the provinces and
Health Transition Fund.104                                    territories, not unlike its renewed commitments
                                                              in the specific area of health care transfers. In
The Ten-Year Plan for health care renewal
indirectly     set    the   stage    for    subsequent
adjustments to the provincial Equalization and                105  The fiscal standard is the average fiscal capacity
Territorial Financing Formula (TFF) schemes;                  of Quebec, Ontario, Manitoba, Saskatchewan, and
these were finalized one month later in October               British Columbia.
2004. Equalization payments from Ottawa to                    106   The Department of Finance, Government of
qualified provinces began in the 1970s to offset              Canada, Website (www.fin.gc.ca/fedprov/eqpe.html).
fiscal disparities among the 10 provinces.                    Accessed March 10, 2005.
                                                              107
Payments were (and are) calculated according to                   For the fiscal year 2004-5, Nunavut received $722
each province's revenue generating capacity as                million through the federal TTF scheme, or about
                                                              $24,000 per capita; the Northwest Territories received
                                                              $633 million or $14,960 per capita; and the Yukon
                                                              received $455 million in federal transfers, or
                                                              approximately $14,000 per capita. Health Canada,
                                                              Government       of   Canada,    Website     (www.hc-
103Health Canada, 2004b.                                      sc.gc.ca/english/hca2003/fmm/fund_territ_bk.html).
104Intergovernmental Conference Secretariat, 2004             Accessed March 10, 2005.


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                                       Re-Casting Canadian Federalism:
                                  Health Care Financing in the New Century

October 2004, Ottawa set a new funding floor of            remainder of the 2004-5 fiscal year.      Federal
$10 billion for equalization payments, and $1.9            equalization payments to the provinces were set
billion for territorial funding effective for the
        Table 5: Total Major Federal Transfers to Provinces, 2004-2005 (per capita)*

Province                         Transfer,     per      capita,     in Fiscal Capacity (1999-2000) **
                                 descending order                        Index Average = 100
Prince Edward Island                             2 930                                 67
New Brunswick                                    2 739                                 71
Nova Scotia                                      2 455                                 74
Newfoundland                                     2 449                                 61
Manitoba                                         2 428                                 80
Quebec                                           1 757                                 85
British Columbia                                 1 383                                 99
Saskatchewan                                     1 332                                 91
Ontario                                          1 322                                 108
Alberta                                          1 321                                 142
Sources: The Department of Finance, Government of Canada, Website (www.fin.gc.ca/fedprov/eqpe.html).
Accessed March 10, 2005.
1Stephen Barro, "Macroeconomic versus RTS Measures of Fiscal Capacity: Theoretical Foundations and
Implications for Canada", Institute of Intergovernmental Relations, Working Paper 2002 (7), Queen's
University, 2002, pp. 5-7.
Notes: * Includes CHT, CST, Health Reform Transfer, and Equalization
        ** Fiscal Capacity based on `representative tax system'. In Canada, the RTS Index is calculated from
         different tax revenue bases. For 1998-1999, 61 percent of the RTS index was based on weighted
         measures of personal income tax, general sales tax and property taxes.

to increase to $10.9 billion and federal territorial       Meeting was an unequivocal and somewhat
funding to $2 billion in the following year.               unexpected success. The acrimonious shadow
From 2006 through to 2010, equalization                    cast by the heavy-handedness of the federal
payments for both provinces and territories are            government          and      the     deep-seated
to be adjusted by a 3.5 percent annual escalator.          intergovernmental conflict that came out of the
Furthermore, in October 2004, the federal                  2003 Accord was mitigated in 2004. As the
government initiated a review of the provincial            Globe and Mail columnist John Ibbitson put it,
and territorial equalization payment schemes,              the 2004 agreement "was a triumph for
looking at ways to integrate provincial/territorial        Canadian federalism.        With all its flaws,
GDP and health expenditure growth rates into               imbalances,      encumbrances,   this   country's
the existing equalization formula rather than              political system can work, by achieving
relying solely on per capita disbursements.108             consensus rather than imposing solutions."109
For instance, demographic profiles (in other               Several factors explain why such a bargain
words, the age of the population), key factors in          emerged at this particular moment.
the allocation of health care resources, are not
considered presently in the calculation of                 The Romanow Report of 2002, despite its many
equalization payments.                                     recommendations         for    new      financing
                                                           arrangements       and   broader   organizational
How the Deal Was Done                                      changes, effectively funnelled the health policy
                                                           debate to only a few key issues. The report
In terms of actual policy reform, the 2004 Ten-            highlighted two fundamental cleavages for
Year Plan was scant on details. When seen as a             governmental       stakeholders:  new     federal
political   bargain    over   longer-term      federal     commitments set against new measures for
funding, however, the 2004 First Ministers                 accountability. Therefore, the political effect of
                                                           the report � and its impact in ensuing policy
108 Office of the Prime Minister, Government of            negotiations � was to narrow the scope of the
Canada,       Website     (www.pm.gc.ca/eng/news).
Accessed March 10, 2005.                                   109 Ibbitson, 2004.


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                                    Re-Casting Canadian Federalism:
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policy agenda and to prevent "policy static"         there had already been significant convergence
from interfering with or diverting attention away    among governmental stakeholders regarding the
from the critical and doable policy initiatives at   broad mandates of any new health deal. Both
hand. To be sure, by the time the September          the      federal     and      provincial/territorial
2004 meetings commenced, the provinces had           governments, along with voters, recognized that
taken their proposal for a national pharmacare       Ottawa desperately needed to inject new federal
plan off the agenda, and both federal and            funds into the health system; the question was
provincial actors had focused their attention on     how much. Both levels of government similarly
questions     of  funding   and    conditionality.   recognized that new funding needed to be
Moreover,     private  sector   alternatives  (for   targeted, at least broadly. In fact, the provinces
example, extra billing and user fees) along with     had already begun to restructure primary health
broader imperatives for cost containment were        care, reduce waiting times, and re-organize
similarly off the agenda.    To all intents and      home care prior to the 2002 Romanow Report.
purposes, policy static was filtered out of the      As one observer at the 2004 meetings recounted,
discussion agenda throughout the summer of           every Premier, irrespective of his or her partisan
2004 leading up to the First Ministers Meeting.      affiliation, spoke of the importance of reducing
                                                     waiting times and of increasing access in the
In political terms, Prime Minister Martin had to     five key areas identified by the federal
get a deal done. His was a minority government,      government in response to political demands
and the Liberal Party's hold onto power was          from the general public. Simply put, "targeting"
tenuous     at  best.   Moreover,    Martin   had    waiting times reduction was a deal done long
campaigned in the spring of 2004 on a platform       before     the   2004    meetings       had    even
that featured health care renewal as one of its      commenced.110
center-pieces. Martin also needed to shed the
Chr�tien legacy in federal-provincial relations      The key point here is that the 2004 deal was
left over from 2003.       Unlike Chr�tien, for      made possible in large part because the
instance, Martin was willing to cut a side deal      conditions and targets outlined by the federal
with Quebec to ensure the province's principled      government were already seen as priorities by
inclusion in the Ten-Year Plan.                      citizen groups and provincial and territorial
                                                     health policymakers. These were not, de facto,
The provinces and territories also wanted to get     federally imposed conditions at all. Indeed, the
a deal done, specifically with respect to securing   provinces' and territories' opposition to federal
long-term federal health funding. The creation       conditions was a political tactic used to leverage
of the inter-provincial Council of the Federation    their bargaining position vis-�-vis Ottawa over
� an initiative headed by Quebec and Ontario in      the latter's long-term funding commitments
2003 � made it possible for the provinces and        rather than an opposition based on principle.
territories to present a united front against
Ottawa. Ontario's Premier Dalton McGuinty            Provincial Health Reform Initiatives
skillfully crafted a consensus among the
provinces,     especially  after    the    federal   The 2003 Health Accord and the 2004 Ten-Year
government jettisoned the provinces' proposal        Plan were, at their core, funding agreements
for a national pharmacare program, and it            between Ottawa and the provincial/territorial
seemed that Ottawa enjoyed the negotiating           governments. They were also political deals and
upper hand prior to the 2004 meetings. Quebec's      as such, contained relatively little policy
Premier Jean Charest was equally skillful in         substance.    This naturally fuelled skepticism
selling the federal proposal to his constituents     among some observers. Senator Michael Kirby,
while at the same time crafting an asymmetrical      the author of the 2002 Kirby Report on health
deal that was agreeable both to Ottawa and the       care in Canada, offered his own critical appraisal
other provincial governments.                        of the 2004 meeting: "The debate focused on

Most important was the fact that the provinces,      110 Thanks to Dr. Alan Hudson � the Wait Times
territories, and Ottawa were never that far apart    Reduction Strategy Lead at the Ministry of Heath and
in their respective policy positions, despite        Long-Term Care in the Ontario Government � for
appearances to the contrary. Put another way,        making this point.


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                                     Re-Casting Canadian Federalism:
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money because it is easy for the first ministers to   organized exclusively outside the RHA system,
talk about money and appear to be making              with physician services accounting for 18
progress.    It also enables them to avoid the        percent of provincial health spending in 2004-
politically explosive issues of restructuring the     5.112
health care system."111       The talk of money,
specifically more money, made good political          As a part of the 2000 federal-provincial
sense. On the other hand, others offered a more       agreement, Ottawa created an $800 million
sanguine take on the 2003 and 2004 meetings,          Primary Health Care Transition Fund, which
arguing that the federal government committed
to new long-term funding arrangements and             was used in Alberta to establish its provincial

more importantly, agreed to a measure of              Primary Health Care Capacity Building Fund.

flexible policy space within which the provinces      The principal objective of the fund was to
and territories could continue to innovate in         provide round-the-clock access to primary care
reform from below.                                    services, a target that was agreed upon by both
                                                      orders of government. The Local Primary Care
The policy grunt for care renewal on the ground       Initiative (LPCI) was one of the projects that
remained, as before, with the provincial and          emerged out of the fund.
territorial authorities. As alluded to above, many
of the initiatives that the provinces and             In December 2003, the Alberta Medical
territories were experimenting with in primary        Association, the Ministry of Health and
health care, waiting times reduction, and home        Wellness, and the nine RHAs forged an eight-

care reform pre-dated the recent funding              year trilateral funding agreement.     Physicians
                                                      negotiated a fee increase as part of this deal.
agreements.     However, while in the past, the       Furthermore, the agreement earmarked $100
efforts of provinces and territories health care      million over three years to fund the creation of
restructuring had to be effectively "mortgaged"       LPCIs, a plan to integrate the delivery and
over the longer term because of then existing         purchasing of primary care within the existing
fiscal constraints, the 2003 Accord and the 2004      RHA structure.      An LPCI is essentially a
Ten-Year Plan provided them with the necessary        provider-purchaser network. RHAs enter into
funds to "buy change" in the nearer term.             contracts with primary care physician groups
                                                      that provide primary care for an agreed upon list
The Local Primary Care Initiative in Alberta          of services on a round-the-clock basis.       The
                                                      precise composition of the LPCI (in terms of
The 2002 report of the Premier's Advisory             providers) is flexible and is supposed to reflect
Council on Health in Alberta argued that              local needs and priorities. Physicians are
reforming the delivery and financing of primary       compensated either through a fee-for-service
health care first required that changes be made       scheme or an alternative relationship plan (a
to the existing regional health authorities (RHA)     salary). Participating physicians also receive an
system. Hospital and acute care services in           additional $50 for every patient enrolled in an
Alberta are organized and managed along               LPCI network. The LPCI program is intended

regional jurisdictions, and in 2004-5 regional        to improve coordination between primary care

health authorities accounted for nearly 60            and hospital services (and to reduce any overlaps
                                                      and redundancies), to facilitate greater access for
percent of the province's health spending. RHAs       patients, and to integrate the entire chain of
purchase hospital care on behalf of patients.         services from the family physician to post-
Presently, Alberta's nine RHAs are funded by          operation care in conjunction with Alberta's new
the Ministry of Health and Wellness through a
per    capita   formula     adjusted    to  reflect
demographic variables and the flow ("import-          112
export") of services across regional jurisdictions.      See 2004/2005 Regional Health Authority Global
                                                      Funding:   Methodology    and    Funding   Manual
Until recently, primary care services were            (Government of Alberta, Ministry of Health and
                                                      Wellness, September 2004); Government of Alberta,
                                                      Website (www.health.gov.ab.ca/regions/index.html).
111Kirby, 2004.                                       Accessed March 8, 2005.


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                                    Re-Casting Canadian Federalism:
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waiting times registry initiative.113     In this    the-clock care), and exchange information
respect, the LCPI initiative is primarily about      within each the team and with local hospitals.
organizational change.                               Each FHT must register with the MOHLTC
                                                     either as a non-profit organization or as a
Family Health Teams in Ontario                       corporation. Unlike the Alberta model, where
                                                     provider compensation (purchasing) is paid by
The Ontario Ministry of Health and Long-Term         the decentralized regional health authorities,
Care (MOHLTC), in an effort to increase access       providers in FHTs will continue to be
to care, has been similarly re-organizing primary    compensated by the MOHLTC through a
health care delivery at the local level. There is    capitation    formula,     a    complement-based
an emerging consensus among health policy            formula, or individual salaries. Similar to the
officials that effective delivery in Ontario         Alberta initiative, however, the Ontario FHT
requires    more    coordination   and   a  fuller   program intends to increase coordination among
integration of existing services. As it is now,      different services, increase patients' access to
primary health care delivery is organizationally     care, and expand the flow of patient information
decentralized, which many argue means that           within the team, thus delivering services more
there is no discernible "system" for delivering      efficiently.  The ministry has offered start-up
primary care delivery in Ontario.       With the     funding to prospective FHTs, and it expects to
creation of Local Health Integration Networks        have launched 45 teams by April of 2005.114
(LHINs) from the summer of 2004 onwards,
health policymakers began looking for ways to        Waiting Times Reduction in Ontario
connect disparate providers and services. The
LHINs are to replace the existing District Health    In large part because of political and media
Councils in April 2005 as the primary unit of        pressure, the Ministry of Health and Long-Term
medical care planning at the sub-provincial          Care (MOHLTC) in Ontario has committed to
level.                                               reducing waiting times in five key areas �
                                                     cardiac care, cancer surgery, sight restoration
Which services to integrate and how to integrate     (cataracts),  diagnostic    imaging,   and   joint
them are two of the key questions that Ontario       replacements. These are also known as the "big
health policymakers are currently considering.       five.". A contributing factor to long waiting
In the fall of 2004, the Ontario MOHLTC hosted       times in Ontario and, more importantly, to the
workshops and launched several surveys of            inefficient management of waiting times is the
health care stakeholders (including the general      lack of surgical and clinical data available to
public and providers) to establish planning          health decision-makers within the Ontario
priorities for integrating the spectrum of health    MOHLTC       and    to   front-line  health  care
care services. Primary care provision emerged        providers.      Consequently,     there  are   no
as a high priority for both citizens and providers   systematic performance indicators and thus few
alike.                                               checks on systemic efficiency in the allocation
                                                     of surgical or diagnostic resources. Moreover,
Beginning in late 2004, the MOHLTC began             the lack of data (and indicators for such data
laying the groundwork for establishing Family        collection) undermines efforts to coordinate
Health Teams (FHT), which would essentially          access and clinical priority setting (such as
re-organize primary care delivery. Each FHT is       which cases should go first and which cases
to integrate and coordinate services among a         should go where).         At present, physician
network of primary care providers, comprising a      decisions to treat and refer patients to specific
family doctor, a nurse practitioner, a registered    hospitals are, for all intents and purposes, made
nurse,    a    dietician,  and    a   pharmacist.    "blind."
Establishing an FHT is voluntary on the part of
providers, though each team must provide             Ontario's waiting times reduction strategy has
comprehensive care (according to a mandated          three parts. First, the MOHLTC has begun to
list of services), expand access (ideally round-

                                                     114  Ministry of Health and Long-Term Care,
113Comm, 2003.                                       Government of Ontario, 2004a.


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                                    Re-Casting Canadian Federalism:
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collect data in six-month intervals, creating a      required procedures.117
new data flow (the time between "decision to
treat" and "treatment") from the surgeon's office    Conclusion
through the hospital board and ultimately to the
ministry.   Second, new federal investments �        The significance of the health policy events of
such as from the dedicated Wait Times                2002 through to the fall of 2004 cannot be
Reduction Fund established at the 2004 First         overstated. Although there remains considerable
Ministers Meeting � have been used to clear out      skepticism on all sides of the political spectrum
waiting-list   backlogs   by   purchasing     new    and among myriad stakeholders regarding the
equipment and by increasing the volume of            future of Canadian health care � as there always
surgical procedures. In late 2004, the Ontario       will be in an area as politically contested as
government allocated $107 million for waiting        health � the 2002 Romanow Report, the 2003
times reduction, of which $26 million targeted       Health Accord, and the 2004 Ten-Year Plan have
surgical backlogs alone.115 The number of MRI        nonetheless produced significant changes in both
exams performed in Ontario is also expected to       the politics and policy of health care in Canada.
increase by nearly 20 percent between 2003-4         In this conclusion, I focus on four key aspects of
and 2005-6.116       Third, Ontario's strategy       Canada's recent efforts at health care renewal.
involves organizational change.         As Alan
Hudson of the ministry points out, waiting times
are not just a symptom of funding gaps from the      Federal Funding Commitment

federal government but also a function of
irrational "access management."       To facilitate  First and foremost, the 2003 and 2004

organizational change, planners of Ontario's         agreements resulted in long-term federal funding

Wait Times Reduction Strategy have adopted the       commitments specifically earmarked for health.

Saskatchewan model, which was originally             As we know, federal investments in health had

imported from the Cardiac Care Network of            dwindled from the late 1970s and into the 1990s.

Ontario during the mid-1990s. The ministry has       The Established Programs Financing scheme

set up purchase agreements with hospitals in         (EPF) and later the Canada Health and Social

which     the    hospitals    provide     specific   Transfer program (CHST) allowed Ottawa to

surgical/diagnostic procedures for a fixed price     essentially pass the buck to increasingly cash-

over and above each hospital's overall budget.       strapped provincial and territorial authorities.

The purchase agreements stipulate, however,          Ottawa desperately attempted to frame the deal

that hospitals must provide in-house data to the     as   flexible   federalism,    though   in  reality

ministry, thus allowing the government to            provincial and territorial governments were left

evaluate each provider's efficiency (and cost),      without the fiscal capacity to effect any real

their capacity, and their waiting lists. This data   health care improvements, having to be

is then to be channelled into centralized            innovative just to maintain their existing levels

registries and waiting lists, which will be made     of health provision.      There was simply not

accessible to the public and to physicians. The      enough money to spend flexibly.

flow of information thus will be centrally
disbursed to all stakeholders, while actual          Public opinion began to challenge these

clinical decision-making and priority-setting are    arrangements during the late 1990s, and the

to remain in the hands of medical professionals.     2002     Romanow       Report     re-oriented  the

The government's intention is to refer patients to   "governmental agenda" towards health care

providers (hospitals) through a centralized          renewal.118       Indeed,   regardless   of  one's

information clearing house, which will in turn       interpretation of Romanow's broader normative

maximize allocative efficiency on the basis of       message, as an agenda-setting mechanism, his

clinical need and providers' capacity to perform     2002        report       effectively     narrowed
                                                     intergovernmental debates to the inter-related


115  Ministry of Health and Long-Term Care,          117Thanks to Alan Hudson of the Ministry of Health
Government of Ontario, 2004b.                        and Long-Term Care for clarifying Ontario's waiting
116  Ministry of Health and Long-Term Care,          times reduction strategy.
Government of Ontario, 2005.                         118Kingdon, 1995.


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                                     Re-Casting Canadian Federalism:
                                 Health Care Financing in the New Century

issues of federal funding and accountability.         provincial and territorial Ministers of Health,
This funnelling effect, combined with a sizable       along with parallel meetings of ministry
federal fiscal surplus at the end of the 1990s,       bureaucrats, have facilitated inter-provincial
resulted in a large injection of federal funds, and   policy learning and policy adaptation across
with the 2004 Ten-Year Plan, a federal                jurisdictions. The fact that Ontario is adapting
commitment that is supposed to last until fiscal      Saskatchewan's waiting times reduction strategy
year 2013-14.                                         suggests that "leaders" and "followers" in health
                                                      policy innovation can emerge from anywhere
The federal government's health (and social)
transfers to the provinces remained flat prior to     and that collaboration between the two orders of

the fiscal year 2003-2004 (see Table 6).              government and among provinces is the engine

However, in the first year after the Romanow          of health policy change and innovation.
Commission recommended that Ottawa take on
a larger role in financing health care, federal       When it comes to making federalism work, what
transfers to the provinces increased markedly, by     can we learn from Canada?
an average of 17 percent growth across the
board. The provinces also felt the fiscal impact      First, the 2004 agreement among the First
of the 2003 Health Accord immediately, as they        Ministers re-cast federalism and health policy
received an average 20 percent increase in the        innovation     away     from   past    practices    of
fiscal year 2004-2005. Moreover, new sources          "prohibitive" federalism and towards a more
of targeted funding from Ottawa � for medical         positive     federal-provincial-territorial      pact.
equipment,     the   health    reform   fund,    the  Although the 1984 Canada Health Act (CHA)
Romanow Gap, waiting times reduction, and             was rhetorically framed as a national affirmation
public health (and immunization) � accounted          of core Canadian values and principles in health
for a sizable portion of federal transfers. In        care,    politically     speaking,     the     federal
Ontario, for instance, targeted funds equalled 36     government intended the CHA to prohibit the
percent of the province's dedicated Canada            provinces and territories from enacting certain
Health Transfer in 2004-2005.                         policies.      Specifically, the CHA forbade
                                                      provinces from institutionalizing mechanisms
Re-Casting Federalism: Lessons from Canada?           for parallel private sector care for extra-billing
                                                      by for-profit providers. The 2004 pact between
The 2003 and 2004 funding agreements                  the     two     orders     of   government        was

fundamentally altered the politics of health care     fundamentally different, however.          The 2004
                                                      Ten-Year Plan was motivated by a mutual desire
policymaking in Canada.         These two deals,      to meet agreed goals and objectives (in other
combined with the powerful normative appeals          words, round-the-clock access to primary care,
embedded in the 2002 Romanow Report, moved            reductions in waiting times, home care, and
health    care   policymaking       closer    to  a   catastrophic drug coverage) and less by the need
collaborative model of federalism. For instance,      to prohibit certain policy innovations (as it was
the conditions attached to the new federal funds      in 1984).
have been relaxed considerably, especially with
the convergence of federal and provincial             Second, the idea of accountability in federalism
priorities in health care reform. In the area of      had changed by 2004, which altered the political
waiting times reduction, benchmarks and targets       and policy dynamics between Ottawa and the
are to be developed through intergovernmental         provincial/territorial                 governments.
collaboration over the course of 2005. They will      Accountability in the 2004 agreement was
not to be imposed unilaterally by the federal         understood to be less about provincial and
government, as the provinces initially feared in
2002.119    Moreover, regular meetings of the
                                                      should first establish a proposal for targets and then
119The main issue presently is whether or not Ottawa  present this to the federal government in subsequent
should be at the negotiating table from the very      meetings. Thanks to Ken Chan of the Minister's
beginning. Some provinces � Quebec, Alberta and       Office (Ontario Ministry of Health and Long-Term
British Columbia � maintain that the provinces        Care) for pointing this out.


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                                      Re-Casting Canadian Federalism:
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Table 6: Federal Health (and Social) Transfer to Provinces, 2001-2005 (by province; $ millions)

             Newfld   P.E.I.    N.S.     N.B.      Quebec  Ontario   Man.     Sask.    Alberta   B.C.
2001-2002
CHST Base    306      82        555      455       4479    6147      698      607      1411      2503
Supplement   17       4.5       30.3     24.2      238     380       37       33       98        135
Med Equip    9        2.3       15.2     12.2      119     190       19       17       49        66
Health Ref   --       --        --       --        --      --        --       --       --        --
� TOTAL      332      88        600      491       4837    6717      753      656      1557      2704
2002-2003
CHST Base    323      86        589      473       4690    6706      728      616      1543      2784
Supplement   8.4      2.2       15       12        119     191       18       16       50        67
Med Equip    --       --        --       --        --      --        --       --       --        --
Health Ref   --       --        --       --        --      --        --       --       --        --
� TOTAL      331      89        604      485       4809    6897      747      633      1593      2851
2003-2004
CHST Base    334      90        611      490       4890    7048      758      666      1664      2710
Supplement   25       6.6       44.8     35.8      354     577       55       48       149       200
Med Equip    8.4      2.2       15       12        118     193       18       16       50        66
Health Ref   16.4     4.3       29.6     23.7      237     387       37       31       100       131
� TOTAL      384      103       701      562       5599    8204      868      762      1962      3107
             (+16%)   (+16%)    (+16%)   (+16%)    (+16%)  (+19%)    (+16%)   (+20%)   (+23%)    (+9%)
2004-2005
CHT Base     219      58        397      318       3190    4628      495      421      1107      1774
Supplement   33       9         59       47        471     775       73       63       199       264
Med Equip    16       4         30       24        235     387       36       32       100       133
Health Ref   24       6         44       35        354     582       55       47       150       197
Rom Gap      16       4         29       24        236     388       37       31       100       131
Wait Time    10       3         18       15        148     242       23       19       63        82
Pub Health   2        1         4        3         31      50        5        4        13        17
CST          140      37        253      203       2037    2971      316      269      713       1133
� TOTAL      461      123       834      669       6702    10024     1039     886      2446      3731
             (+20%)   (+19%)    (+19%)   (+19%)    (+20%)  (+22%)    (+20%)   (+16%)   (+25%)    (+20%)



territorial accountability to Ottawa and more           policy space within which to pursue their
about      governmental     accountability      and     particular health care priorities and to implement
responsiveness to citizens generally, reflecting        their context-specific reform strategies. The fact
provincial       and      territorial      priorities   that both levels of government and, to a certain
specifically.120                                        extent, the general population agreed on which
                                                        priorities were most pressing helped to reinforce
This conceptual and political development was           these                 accountability/responsibility
not insignificant. It compelled Ottawa, for             commitments.121
instance, to accommodate greater flexibility in
the allocation of federal funds within provincial       Third, the recent 2003 and 2004 agreements
and    territorial jurisdictions.       From     the    highlight how intergovernmental pacts that are
perspective of the provinces and territories, the       goal-oriented rather than solution-based can
new emphasis on public accountability rather            promote national standards in health objectives
than on their governmental accountability to            (such as in the 1984 Canada Health Act) while
Ottawa provided them with more political and            also allowing for a diversity of solutions among


120As Ken Chan from the Ontario Ministry of Health
and Long-Term Care puts it: Accountability "goes
beyond fulfilling our responsibilities to the federal   121Thanks to Dr. Phil Jackson of the Ontario Ministry
government; it is about fulfilling our platform and     of Health and Long-Term Care's Public Health
commitment to the people of Ontario."                   Division for emphasizing this point.


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                                      Re-Casting Canadian Federalism:
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sub-national jurisdictions.122       Provinces and     policy    motivations that lie behind these
territories need the legitimate space and              investments.123 Investments in health can: (i)
resources with which to address local priorities       expand the scope of benefits beyond current
and to implement strategic plans.             Thus,    levels, (ii) maintain (or return to) pre-existing
federalism works best when federal funds are           levels of health care provision, or (iii) increase
combined with collaborative efforts among              the productivity of provision in terms of
governments towards fulfilling national goals          efficiency, quality, equity, and accessibility.
and principles. On the flipside, federalist policy
innovation is circumscribed when goals are a           Recent federal investments into Canadian health
priori trumped by the federal imposition of            have not been about expanding the bundle of
nationally prescribed means. This is amplified         benefits already provided by the public system.
in    federal     systems     where     sub-national   The 2002 Romanow Report was quite explicit in
jurisdictions are diverse in their respective          this regard. The report's recommendation for
social, economic, and demographic profiles.            new federal funding were essentially to plug the
Therefore, goal-oriented federalism requires that      holes in what the Commission (and others) saw
policy objectives be defined broadly.           For    to be Canada's sinking Medicare ship. In terms
political actors, this sort of breadth and             of policy, many saw the 2002 Report as a
flexibility facilitates political consensus-building   reinforcement of the status quo, albeit a more
over policy "first principles" among the two           financially stable one, in health. Nevertheless,
orders of government.             For jurisdictional   the Romanow Report was crucial in alerting the
policymakers (for instance, bureaucrats), such         general public to the federal government's
breadth allows for some latitude in policy design      waning responsibility for health care financing
and innovation towards meeting agreed upon             and also in initiating a broader discussion on
objectives.                                            governmental accountability in health care
                                                       provision. In these important ways, the 2002
Finally, the Canadian experience in health care        report set the stage for subsequent rounds of
renewal offers an important cautionary note. In        intergovernmental negotiation.
negotiating and establishing common health
objectives, governmental stakeholders must             Unlike the 2002 Romanow recommendations,
ensure that the standards and benchmarks of            however, the 2003 and 2004 federal health
health care performance reflect national health        agreements put more emphasis on "buying
goals and not the lowest common denominator            change" in the health sector and on increasing
agreeable to federal, provincial and territorial       productivity in health care provision.          To be
governments. Put another way, ingenuous goal-          sure, new sources of capital investment (in other
setting in the first place is crucial in order to      words, dedicated investments in human capital
stem purely politically instrumental incentives        development and medical equipment) account
for meeting scaled-down benchmarks.              To    for a significant share of new federal transfers to
compromise the exercise of effective benchmark         the provinces and territories. Provincial health
setting in the interests of political expediency       policymakers have also begun to initiate
may come ultimately at the cost of national            organizational reforms in primary care delivery,
health.                                                the networking of care providers more generally,
                                                       and reducing surgical waiting times in order to
Unpacking "Investment"                                 increase the accessibility and efficiency of
                                                       health care provision. Yet, as in 2002, there was
Overall, the increase in federal spending has          little   intergovernmental      discussion       about
amounted to a new wave of "investments" in             expanding the scope of pre-existing benefits.
Canada's health care system.         However, it is    Proposals for a national pharmacare program
important to define exactly what these new             and for more comprehensive long-term care
investments are and, accordingly, what they are        coverage, for instance, were shelved because of
not, and also to untangle the myriad political and     federal fiscal constraints.


122 Thanks to Richard Simeon for clarifying this       123 I am indebted to Joe White for clarifying this
point.                                                 point.


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                                    Re-Casting Canadian Federalism:
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                                                      a surprising but welcome anomaly in the
What then motivated these specific "investment"       continued         evolution      of      Canada's
decisions?     How did government decision-           intergovernmental relations.
makers rationalize this particular allocation of
investment resources? In 2003 and 2004, for           Intergovernmental agreement over the 2004 Ten-
both    the  federal    and   provincial/territorial  Year Plan ultimately depended on the political
governments,      the key objective, short of         skills and personalities of Prime Minister Paul
privatizing the health care system in toto, was to    Martin, and Premiers McGuinty (Ontario),
increase     productive     efficiency     through    Charest (Quebec), and Klein (Alberta).         The
organizational change (such as in primary health      acrimony associated with the 2003 Accord
care reform). This strategy, however, meant that      compared with the goodwill associated with the
the general public was unlikely to notice any         2004 Ten-Year Plan, for example, reflected
tangible or measurable improvements, especially       differences in leadership styles between Jean
in the short term.      Politically, then, making     Chr�tien and his successor as federal Prime
organizational changes to increase efficiency         Minister, Paul Martin. Chr�tien had been less
would not win back the public's confidence in         willing to compromise with the provincial and
the governments' ability to manage Canada's           territorial premiers in 2003 than Martin was to
public health care system.       Because of this,     forge side deals with Quebec and aboriginal
addressing the waiting times issue, for instance,     leaders in 2004.
became a key governmental objective, and as
such, there have been significant new policy          Still, the political basis of the 2004 agreement
initiatives  (in  other   words,    organizational    was, and remains, precarious. The 2003 and
reform)     and    more     importantly     visible   2004 health care financing deals are not
investments (in other words, explicitly targeted      guaranteed beyond the term of the current sitting
transfers) aimed at reducing waiting times. Each      government. Given the weak hold that Martin's
province    has    purchased     new    diagnostic    minority government has in the national
equipment (such as MRIs and CT scanners) and          legislature, it is not inconceivable that his party
spent more resources to clear surgical backlogs.      will be defeated in the next general election.
As alluded to above, this particular policy area,     There is no safeguard that the next government
while     comparatively       low     on     health   in Ottawa will honor the funding agreements
policymakers' list of priorities, emerged as one      reached in 2003 and 2004.
of the critical benchmarks for evaluating both
the federal and the provincial governments'           Finally, it needs to be stressed that Ottawa's
performance in health care reform. Thus, what         fiscal surplus at the end of the 1990s was the
investments were made in 2003 and 2004 was            supply-side impetus behind the recent health
determined in part by what was doable fiscally        care financing deals. There are no guarantees
and in part by what was politically expedient,        that the federal coffers will remain as full over
especially in the near term.                          the next decade. Cynics will therefore rightfully
                                                      point out that social policy programs, and the
Political Uncertainty                                 politics of collaborative federalism that underpin
                                                      them, run more smoothly in times of fiscal
Effective federalism entails effective political      surpluses.    History has shown us that, under
deal-making.          The      centralization    or   conditions      of    fiscal   deficits,  funding
decentralization of policy authority and fiscal       commitments        for   social  programs,     and
capacity are not simply matters of public             especially for expensive ones such as health, are
administration. Rather, they are about politics.      the first to be clawed back. Indeed, as the
As such, any compromise in a federal system is        Canadian case demonstrates, in times of fiscal
subject to the vagaries and uncertainties of          restraint,  the    already   thin  line   between
politics.  To be sure, the present moment of          productive federalism and the political game of
collaborative federalism in Canada is not the         blame avoidance becomes razor thin.
norm. Indeed, to most Canadians, the present is




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                                  Re-Casting Canadian Federalism:
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                                                   Strengthen Health Care," Ottawa, September 16.
Bakvis, Herman and Grace Skogstad (eds),
2002.   Canadian     Federalism:   Performance,    Health     Canada,     2004b.     "Asymmetrical
Effectiveness     and    Legitimacy,    Oxford     Federalism      That      Respects     Quebec's
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Phillips, Susan (ed), 1995. How Ottawa Spends




                                               134

                                    Summary of the Discussion

                                             Joseph White
                                  Case Western Reserve University

Commentary                                           relatively more than the increase in spending.
                                                     The period during which the Canadian federal
This session opened with the presentation of two     government was promoting the idea that new
papers by Alan Maynard and Joseph Wong that          spending would somehow increase efficiency
described the experiences of two countries � the     fits this definition. This can be called investment
UK and Canada � in increasing spending on            for productivity.
their health care systems. Their presentations
raised some intriguing questions, including what     This second meaning may approach an ordinary
exactly constitutes the concept of investment        understanding of what "investment" by firms or
and whether "investment" is any different from       individuals is supposed to accomplish � an
"increased spending."                                increase in production. However, that is not in
                                                     fact what all capital spending does.         Often,
One conclusion could be that there is no             capital   spending    is   necessary   to   replace
difference.   Perhaps "investment" is a better       depreciated plant. In that situation, investment
label than "spending more" because:                  is necessary largely to maintain current levels of
                                                     services; the failure to "invest" would lead to
� Investment sounds better than consumption          fewer or lower-quality services in the future. In
    to anybody in the budget or evaluation           short, if we conceive of investment as any
    business                                         capital spending, then whether this will lead to
� It promises benefits in the future as well as      increased production is likely to depend on the
    in the present                                   previous history of capital spending. If the plant
� It suggests that there will be value for           has been depreciating, new capital spending will
    money � a "return" � in a way that               look like a total spending increase but will in
    "spending more" does not.                        fact just maintain current levels of service.
                                                     Then, relative to previous years, "investment"
By this definition, "investment" would not           will seem to increase spending to no obvious
involve any obvious economic standard for            effect, yet it may be quite necessary. Clearly
evaluation.    Some extra output might be            some advocates in both the UK and Canada
expected in return for the investment, but there     think that some spending increases were
might not be a clear standard for how much           necessary simply to make up for previous
extra output should be realized from the extra       depreciation;     Alan   Maynard     is   generally
spending.    This can be called investment as        skeptical of spending increases for the reasons
labelling.                                           given in his report, yet he suggests that there
                                                     were some genuine needs. So this can be called
Alternatively, one might expect "investment" to      investment for deferred maintenance.
increase the productivity of a health care system
beyond its previous level.        For example,       Evaluating These Different Types of Investment
advocates     claim   that    "investment"      in
information technology will improve quality and      There     are    probably   other    purposes    of
control costs in ways that will eventually allow     investment, but these three should be enough to
systems to produce more of whatever good that        show the complexities involved in evaluating
they produce per unit of money spent than they       expenditures. In some cases, the standard for
are producing now. "Investment" in information       investment as labelling may be political, for
technology    in  particular   looks   less   like   example, if politicians decide to spend more and
"consumption"     than  other    spending    does    the voters approve of this decision, then the
because money is not being spent directly on         decision is appropriate. There are, of course,
providing health care. So by this standard, one      many economists and other analysts who do not
would expect production to increase by               like "politics" and presume that politicians



                                                  135

                                        Summary of the Discussion


spend "too much," but as a matter of public                 services be the measure?      Or cures?    Or
finance, it is inappropriate to make that                   some measurement of amelioration (QALYs
assumption. At a minimum, only a quite right-               again)? In other words, we not only do not
wing economist would say that governments that              know how to compare hip replacements to
have surpluses cannot choose to reduce those                cardiac surgery, we are not sure exactly what
surpluses in order to buy valued public                     an increase in spending on hip replacements
consumption, as was the situation in Canada.                is supposed to buy. To put this another way,
Similarly, it is unreasonable to object to voters           even if we know we want cures or
choosing to pay extra taxes to cover the cost of            amelioration, we may only know how to buy
the spending, as in the UK. In both these cases,            services that are ostensibly supposed to yield
one could argue that, if the voters re-elect the            these outcomes. Then what?
government that decided to spend more, then the
"investment" was successful � end of story.             4) A lack of agreement on the extent to which
                                                            amenities    and   convenience    should   be
Now consider investment for productivity. This              considered part of the product. If people
appears to be the default standard for health               have    less   frightening    and  alienating
service researchers and economists. However, it             experiences in the hospital because the
involves a wide range of difficulties that Alan             nursing staff is nicer, even if there is no
Maynard discusses and that help to explain why              measurable difference in post-operative
provincial policymakers in Canada were not                  mortality, is spending that improves patients'
particularly interested in standards set by Health          hospital experience "unproductive?" What
Canada. Among these problems are:                           about waiting times � should they matter
                                                            and how much? And who should get to
1) The lack of a metric with which to compare               make such judgments?            If a better
    different services. In the classic formulation          experience is something most voters want,
    of the problem, is an increase in cardiac               do health services researchers have a right to
    surgery     or     hip    replacements    more          dismiss that?
    "productive?".      Many scholars have been
    promoting QALYs for a couple of decades             5) The fact that there are long causal chains
    now, and in the UK, the NICE process does               from any "investment" to any result. Maybe
    apply QALY logic to some new coverage                   spending on information technology will
    decisions, but it seems fair to say that this           eventually lead to fewer medical errors and
    thinking has had at best only a limited effect          the development of treatment guidelines that
    on health care systems.124                              increase value for money. But the odds that
                                                            anything of the sort could occur within the
2) A lack of agreement on the object of                     time frame being applied for evaluating
    productivity. Alan Maynard has argued that              recent Canadian and British spending
    the   point     of    investment   should     be        increases are close to zero. Over the longer
    improvements        in   the  health   of    the        term, it will be very hard to untangle the
    population.     As he notes in his report,              effects of information technology from the
    however, what seems obvious to economists               effects of other developments.
    may not be so to others. I do not think the
    improved health of the population is the            In short, even if we were to agree on the
    purpose of national health care/insurance           investment for productivity standard, evaluating
    systems. I will return to this question later.      it would be quite difficult. Yet Alan Maynard's
3) A     lack    of    agreement    on   how      to    paper provides an interesting sideways answer to
    conceptualize and then measure productivity         that problem by identifying outputs that are at
    even at the individual patient level. Should        best very weakly linked to production. If extra
                                                        spending results in providers receiving higher
124 I was more skeptical in the original draft that I   incomes for doing the same work as before, this
shared with Alan Maynard, Joseph Wong, and Naoki        would not qualify as extra productivity by much
Ikegami; in response to comments from Alan              of any standard (but see below).
Maynard and Pauline Rosenau, I will give QALYs
more of the benefit of the doubt.                       This brings us to investment for deferred


                                                     136

                                       Summary of the Discussion


maintenance.       From one perspective, the         arguments are legitimate, even if also self-
difference between investment for deferred           serving. There can be little doubt that some of
maintenance and investment for productivity is       the political pressures that led to the increased
an illusion. In each case, more will be produced     "investment" in the UK and Canadian health
with the investment than without.       The only     care systems involved versions of deferred
difference is that the effect will be less visible   maintenance claims.
when the spending is for deferred maintenance
than    for  productivity   because    levels   of   Lessons    for   Whom?       The   Problem     with
production may not increase from year to year.       "Population Health"
But visibility should make a big difference for
the purposes of both evaluation and politics. As     Let us imagine for the moment that we could
nobody can measure how production would              draw lessons from the UK and Canadian
otherwise have declined, it is hard to assess the    experiences with "investment" and that those
effects of the work done to make up the decline.     lessons would be of use to other policymakers.
In addition, if voters do not benefit visibly from   What might they want to learn about?
the spending, then they may not be convinced
that it was worthwhile (which, of course, is why     I mentioned earlier that measuring whether
the maintenance was deferred in the first            spending has increased the health of the
place).125                                           population is not the right standard for judging
                                                     investments. By that I mean it is not the right
Although the concept of maintenance can be           standard for voters or for politicians, nor is it the
applied most obviously to capital plant, it can      right standard for most policy analysts.      Yet it
also be applied to human capital. Someone who        might be the right standard for decision-makers
wanted to justify the use of spending increases      at the World Bank. The reason is the Bank's
to raise the salaries of Canadian physicians or      concerns are different from those of ordinary
nurses might argue that caregivers otherwise         citizens or politicians in a "rich democracy" (the
might respond by moving to the United States.        term is Hal Wilensky's simpler version of
So higher pay would be an investment in              "Advanced Industrial Democracy").
maintaining their participation in the Canadian
health care system.      Alternatively, if higher    Why do we have national health care/insurance
spending were used to hire more nurses, then         systems? Does anybody vote for them, and did
this might reduce burnout among the existing         national political leaders from Bismarck onward
nursing staff, thus keeping them as part of the      work to create them in order to increase
system. Again, this would be a form of human         "population health"?     The answer is yes, but
capital conservation.                                only to a minor extent in that some leaders
                                                     wanted to make sure that their nation's potential
It should be obvious that the value of arguments     soldiers were able-bodied. Yet basically national
in favor of deferred maintenance is especially       health care/insurance systems have been pursued
difficult to assess. First, this requires making     and adopted because of concerns about equity
guesses about what would have happened               and social peace.     They are not created and
otherwise. Second, when arguments are made in        operated explicitly to raise population averages
favor of deferred maintenance in the area of         in health status. They are created and operated
human capital, they are often extremely self-        to provide a socially acceptable level of medical
serving and accompanied by all sorts of political    services to all individuals. Voters do not care
manipulation. However, sometimes when calls          about population health as much as they care
for investment are made simply to prevent the        about their own access to medical care. Nobody
health system from going into decline, these         ever died of short life expectancy, while lots of
                                                     people can die or suffer pain from inadequate
125 On the other hand, if investment is spent on     medical care.
making facilities more attractive, then the public
might   perceive   an  improvement    that   health  Hence, political support for national health
researchers would not.   So deferred maintenance     care/insurance systems derives from two beliefs.
might be valued by the public for the "wrong"        The first is that access to medical care when in
reasons!                                             need is an extremely significant aspect of one's


                                                  137

                                         Summary of the Discussion


life chances. The second belief is that, while it     mean that technological advances do not
is acceptable to distribute lots of life chances      automatically translate into similar service
unequally, significant differences in access to       expectations across all countries. "Technology"
medical care when in pain or danger are simply        does not automatically drive health care costs up
indecent, an unsupportable inequality.          This  at similar rates across all rich democracies. If it
belief may derive from the seriousness of             did, there would be similar rates of use in all
consequences,      or   the  immediacy      of   the  countries and similar costs, whereas in fact there
consequences, or an ability to imagine the            are significant differences.     Nevertheless two
consequences. In all these dimensions, access to      kinds of pressure make it difficult for any of
medical care is very different from issues such       these countries to resist adopting these new
as the size of a pension or even the kind of          services.
education provided. Hence, while every system
has inequalities, support for some decent social      The first pressure comes from the fact that
minimum has resulted in substantial equity in all     wealthier people within any country can afford
rich democracies other than the US.                   to buy private health care. To the extent that
                                                      people can get private care of a supposedly
I do not think anybody should seriously doubt         higher standard, this creates an equity concern
that this equity concern is one reason for the        that may force managers of the public health
"investment" policies in Canada and the UK. In        system to make a service available if it is already
each case, the government feared that some            available in the private sector.      The second
individuals would use their private options in        pressure comes from international comparisons.
such a way that would make them far better off        It is not so much that policymakers (never mind
than their fellow citizens, that this would be very   citizens) look to other rich democracies for new
visible, and that the majority of the population      ideas but that in particular circumstances, there
would even prefer (somewhat) higher taxes (on         can be direct competitive pressures.
somebody) than to increase inequality in this
way.                                                  For example, the Canadian government benefits
                                                      from the fact that the difference between the US
But limiting inequality is only one part of the       and Canadian health systems has become a point
political pressure for higher health care spending    of fundamental national pride and identity in
(under any circumstances, whether this spending       Canada. Yet physicians can fairly easily move
is called "investment" or not). The other source      to the US to practice, the American media are
of pressure is the development of notions about       widely prevalent in Canada, and lots of
what "necessary" care involves. "Necessary," as       Canadians spend significant parts of the year in
health services researchers will tell us, need not    the US. As a result, the public exerts pressure
mean "effective" or certainly "cost-effective."       on the government to make the Canadian
Instead, it is a social expectation, a compound of    standard of services resemble the American
beliefs about effectiveness and decency.        For   (Medicare beneficiary) standard. Citizens in the
example, the concept of "necessity" as defined        UK did not have a similar reference group in the
in the United States probably includes an             past, but the development of the EU has made
expectation of two-bed rooms for hospital             the possibility of patients going to other EU
patients instead of the old open-ward structure,      countries for treatment a real concern, and the
whereas in other countries the accepted standard      difference    in    access     to   services     an
includes more beds in a room. The standard of         embarrassment to the Labor government.
"necessary" nursing care and hotel services is
reportedly much lower in Japan than in other          Thus, there are several likely motives for the
countries. It is clear that the definitions of those  governments of the UK and Canada to have
services that are "medically necessary" and of        increased spending on health services regardless
"appropriate levels of amenity", and that             of any concern for population health � notions of
therefore should be subject to social sharing and     equity, national pride, and comparisons with the
norms of equity, can vary from country to             standards that prevail in other countries. Indeed,
country.                                              I strongly suspect that the fact that both the UK
                                                      and Canada have neighbors that spend more and
These and other kinds of national variations          deliver more services (to those who are served)


                                                   138

                                       Summary of the Discussion


helps to explain why these are the two cases of       care/insurance    systems,     then  the   Bank's
"investment" that have arisen and are being           decision-makers should pay attention to the
discussed at this seminar.                            possibility that violating notions of equity can
                                                      have nasty consequences for any governments
From this perspective, the relevant lessons to        being advised by the Bank. This should be a
draw about the impact of the investment would         particular concern in nations that have some
not include its impact on public health. Instead,     history of broadly distributed medical care (for
the relevant lessons would involve whether and        example, in Eastern Europe and in some of Latin
under what circumstances greater spending             America).
actually translates into what the public views as
greater equity either within a country or between     Lessons for Rich Democracies from the Case
its own citizens and those of the reference           Studies
country or countries. I think that is the right set
of questions for policymakers in other rich           From the standpoint of policymakers in rich
democracies who want to learn from the current        democracies, the first lesson from these papers is
British and Canadian experiences. For example,        that they are about investment as labeling or as
Japanese     policymakers      might    use     the   deferred maintenance at least as much as they
information from this session to reflect on the       are about investment for productivity.       Thus,
possible consequences of new investments in the       they should be evaluated for what they are,
Japanese health care system on political support      which means their effect on perceptions of
for the health care finance system and for            equity rather than for any visible effects they
themselves.                                           may have had on population health.

The World Bank's decision-makers are more             If those are the real issues, then the papers have
likely to be interested in which of its many          some quite useful findings. For example, both
potential investments in any given country will       papers make it clear that what the public really
cause the greatest improvement in national well-      cares about are outputs that are less significant
being?    The Bank's decision-makers usually          to analysts, particularly waiting times.      The
seem to define national well-being in material        argument made by analysts that reduced waiting
terms and usually care more about averages than       times do not necessarily increase the quality of
equity. Therefore, they may legitimately care         care is not of great interest to patients.     For
more about the population's health than, in my        them, equity in access to services is the crucial
view, national policymakers in rich democracies.      issue because they feel that having to wait 18
                                                      months for a service (especially when their
In that case, I fear that these papers will not tell  cousin in Cleveland or Brussels was treated
the Bank's decision-makers much that they do          within three) just is not fair. Not surprisingly,
not already know. Rich democracies are very           politicians tend to pay more attention to patients
different from the countries that the Bank is         than to analysts.
supposed to serve, and their governments have
to adopt policies for many different purposes         Joseph Wong's Canada paper seems to indicate
and with far different resources.      Most rich      that measuring outputs and outcomes (other than
democracies, have done most of the important          waiting times) does not get much support
public health spending,      so they do not face      (except from analysts).       This is completely
having to choose between providing universal          understandable    given    that,   as   we    have
medical services and improving public health          established, increased spending should create a
indicators in the same way as policymakers in         presumption that the government is increasing
the Global South do.           In any event, the      equity, and measurement is more likely to give
investments in Canada and the UK are highly           bad news than good on that front. If there is a
unlikely to tell the Bank much about the wisdom       political argument for measurements, it is a
of investing in Morocco or Zambia or even             "who gets the credit" argument. Because the
Argentina.                                            national government in question wants to be able
                                                      to make a credible claim that its spending
At the same time, if I am right about the reasons     increase is causing services to increase, it wants
why nations have adopted national health


                                                   139

                                      Summary of the Discussion


to be able to measure results in the provinces.      I was not at all surprised by the lack of evidence
However, when put to the test, even the              of results in Canada, for two reasons. First, the
government might figure out that it is better to     "investment" is far too recent to have had any
be safe (unmeasured) than sorry (measured and        obvious effects yet.       Second, in any federal
found wanting).      Moreover, in the Canadian       system,     there   is   a   primary     rent-seeking
case, one of the major reasons for increasing        opportunity, namely that the provinces may use
spending was to reduce the chance that               the new national funds to replace their own.
provincial governments might decide to opt out       National policymakers in Canada who seek
of the equity constraints created by the Canada      "results" from their investments are in an even
Health Act. If the spending has that result, then    worse position than are their counterparts in the
it is successful regardless of any effect it may     UK. Yet, as I mentioned, if the real purpose of
have on actual medical services.                     national "investment" is to enforce the Canada
                                                     Health Act's equity goals, then what provincial
Alan Maynard's UK analysis provides a series of      governments or providers really do with the
extremely cogent warnings about the risks that       money is not so important.
rent-seeking (actually, rent-appropriation, not
just seeking) will reduce the increase in services   Policymakers who are considering making
(never mind in population health) that new           "investments" in their health care systems could
spending will buy. Health care systems are no        do worse than to give careful thought to the
different from other government programs or,         issues of both rent-seeking and equity.
for that matter, market activities in that it is
possible to throw more money at them than they       The Discussion
can use productively without substantial waste.
Good examples of this are American federal           The discussion in this session had three
spending on the "drug war" in the 1980s or on        components. After each paper was presented,
telecommunications in the 1990s.       It is very    there was a period when participants could ask
difficult to monitor how the money is spent and      questions about its contents. Then, after both
perhaps even more difficult to know in advance       papers had been presented and a break, there
how it should be spent.           Moreover, the      was an open discussion of themes raised by both
"adequacy" of services is to some extent a           papers.126
perception on the part of voters that is based on
the extent to which physicians have been             Discussion 1: Alan Maynard's Paper
complaining publicly. To that extent, even the
"waste" in the form of increased rents to medical    One theme in the discussion of Alan Maynard's
providers may be perceived as "success" by           paper was why the British government decided
voters who hear fewer (or less vociferous)           to expand the National Health Service (NHS).
complaints from the medical community. Given         Regardless of the substantive reasons, what
these difficulties, governments can be expected      political considerations caused the government
to focus on outputs that the public thinks it        to make that decision at that time, reversing
understands and are relatively easy to measure       decades of much more stringent policies?
(and manipulate) like waiting lists.
                                                     Alan Maynard emphasized four factors: some
Given my skepticism about measuring results, I       embarrassment at comparisons to the health
was actually pleasantly surprised by the degree      systems of other Western European countries;
of success that Alan Maynard reported in his
account of events in the UK. I may be more
favorably impressed than he is because I care a      126I prepared this summary based on both my own
bit more about things like waiting lists and         notes and notes kindly provided by the conference
public perceptions of amenities. I also may have     secretariat. I would like to thank Naoki Ikegami and
even lower expectations than he does. Yet I also     the secretariat for their hospitality and help, and all
found his enumeration of the rent-seeking            participants in the conference for providing a
problems to be particularly useful for thinking      discussion that made summarizing the contents a
about the difficulties of managing spending          pleasure.
increases (or any spending) in any system.


                                                  140

                                         Summary of the Discussion


real deterioration of plant and facilities (what I     measures by the main private insurer, BUPA,
have     called    the   "deferred    maintenance"     and had reported that the NHS was beginning to
argument); pressure from the medical profession        use similar measures.        Responding to Naoki
to raise standards; and the fact that the budget       Ikegami, Alan Maynard explained that these
and the economy of the UK were in unusually            evaluations were being used less to sanction
good shape.                                            providers than to identify outliers who could be
                                                       counselled and urged to adjust their practices.128
Loraine      Hawkins     and    Heinz     Rothgang     Manfred Huber suggested that, when guidelines
mentioned some other catalytic events. Loraine         exist, it is likely to take some time for providers
Hawkins referred to accidents or scandals that         to change their behavior, so one should not
heightened      the  already   substantial     public  expect to be able to observe results quickly.
concern about the quality of the NHS.          Heinz   Alan Maynard responded that physicians in
Rothgang mentioned that the European Union             England in fact have been responding very
Court of Justice had issued a ruling about rights      quickly to new incentives that link their behavior
to health services that seemed to say British          to their fees. One reason is, with GPs mainly
citizens who had to wait too long in the NHS           practicing in groups, any doctor who does not
should be able to get NHS-paid services in other       meet targets and so reduces the income of his or
member       states.    And    Loraine     Hawkins     her colleagues is likely to be pressured by those
emphasized       that  the   Chancellor     of   the   colleagues to improve his or her performance.129
Exchequer, Gordon Brown, publicly pushed for
more spending as part of his own political             Of course, the problem with any standard is that
competition with the Prime Minister.            This   the targets themselves might not be appropriate.
meant that the institution that normally put up        Alan Maynard's assessment was that, despite of
obstacles to spending in any system (the               the well-known difficulties, there are some
Treasury) was supporting spending, which made          pretty good guidelines for some medical
it difficult for Prime Minister Blair to refuse.       conditions, particularly for chronic conditions.

A second theme was how the budget was                  Discussion 2: Joseph Wong's Paper
allocated and how the extra spending might be
evaluated.127 In response to a query from Peter
Berman, Alan Maynard said the funds were
allocated proportionally to the local purchasers,      128This emphasis on outliers is similar to the use of
who then decided how to use them.            In that   profiling in various other situations, such as how
sense, the decisions were decentralized except         spending records are used to identify outliers among
that the central government provided significant       German physicians � though in the extreme this can
direction in the form of requirements to hit           be linked to payment reductions in Germany.         In
particular service targets and to fund specific        Wendy Edgar's presentation the following day, she
initiatives in the form of contract provisions for     argued that guidelines were being used the same way
providers.                                             in New Zealand.
                                                       129Pressure from other members of a group can be
In our discussion of how to evaluate spending,         seen elsewhere. For example, I once interviewed a
Naoki Ikegami suggested that it might be               member of a 13-physician pediatric practice within

difficult to evaluate outcomes at the provider         Kaiser Permanente's Washington, D.C. organization.

level because that would require adjusting for         He explained that the physicians took turns taking

the level of risk for each provider's set of           calls in the hospital. (In the US, care in the hospital
                                                       is normally supervised by a physician who also
patients.     In his talk, Alan Maynard had            practices in the ambulatory sector; so a physician
described the use of performance evaluation            might be called into the hospital at night to see
                                                       patients, and someone from a practice will have to
127   Note    that   Alan  Maynard's      paper   on   visit each hospitalized patient in the morning.)
implementation, and therefore the discussion, focused  Hence, other physicians would notice if one doctor
on England.      The decision to expand spending,      seemed to hospitalize patients unnecessarily, and
however, applied to all four "nations" within the      since that would mean extra work for the other
United Kingdom, so to Scotland, Wales, and             physicians, they tend to pressure such colleagues to
Northern Ireland as well.                              be more careful about hospitalizing patients.


                                                    141

                                         Summary of the Discussion


As with the discussion of the first paper, the first   which there is ostensible agreement, such as
questions raised in this discussion involved           reduction of waiting times.
politics. What was the pressure for privatization
in Canada, to which the spending increase              This part of the discussion concluded with two
seemed to be a response? The upshot of this            other questions. First, why is there no general
discussion     was   to   say    that   there   was    pharmaceutical        benefit     under     Canadian
ideologically based pressure for privatization,        Medicare? One reason is that it costs a lot to
particularly from the Premier of the province of       provide such a benefit, and neither the federal
Alberta, Ralph Klein. However, this was clearly        nor the provincial governments have been
not a position held by a majority of politicians in    willing to add the expense to their budgets. Also
the country. Instead, other provincial premiers        there is a lot of private cover anyway (for
threatened to defect from the Canada Health Act        example,          through         employer-provided
(by allowing extra-billing or private cover) as a      supplemental       insurance).        Recently,     the
political tactic in an attempt to push the federal     provinces did call on the Commonwealth to
government to increase the amount of funding it        sponsor a universal pharmaceutical program
would provide to the provinces.                        with substantial national contributions, but this
                                                       was in essence a bargaining tactic, an excessive
A second issue was what was supposed to be             demand meant to be bargained away and make
done with the extra money.         What were the       the remaining (large) demand for extra funds
priorities?     Joseph Wong emphasized that            look more modest.
waiting times were the issue that captured public
imagination and to which the largest allocation        The second question was raised by Peter
of money was allocated. There were some other          Berman, who asked about the new ruling by the
smaller, stated priorities, such as reform or          Canadian Supreme Court.           In this ruling, the
improvement of primary care and of care for            Court decided that waiting lists in Quebec are so
aboriginal populations.     However, most of the       long that they violate the right to health care (as
new funding was not allocated for any specific         stated in Quebec's Charter of Rights) and,
purpose.                                               therefore, that the national ban on private
                                                       insurance for services allegedly covered by the
John Campbell suggested that both papers were          government was unconstitutional in Quebec.131
about changes in tax-based systems.             The    While the "right" involved is only stated in the
discussions both at this point and after the break     Quebec charter, Joseph Wong replied that the
suggested that these systems are likely to receive     ruling is a concern both because it involves a
larger increases or decreases in spending than         huge leap in judicial activism and because the
systems with more dedicated financing (such as         Court's logic left a lot to be desired.132
sickness fund contributions). Both Canada and
the UK, for example, had reduced their health          Discussion 3: Both Papers
spending quite severely before the current period     In the open discussion, the first theme raised was
of significant increases.130

                                                       131
Yet Canada and the UK, while similar in their             The plaintiff's claim was that it should be possible
ability to change their financing trends quickly,      to buy private insurance for services, since they were

appear to differ in their ability to implement         not in fact available in an acceptable way through the

substantive changes. Joseph Wong emphasized            province's health insurance system. The Court held

that, because Canada has a federal political           that the "prohibition on obtaining private insurance...
                                                       is not constitutional where the public system fails to
system and the UK does not, it is much harder to       deliver reasonable services."      For an interesting
get the Canadian provinces to use the money in         discussion of the logic and implications of this ruling,
any particular way. In fact, they have not even        see Ted Marmor, "Supreme Ironies," TIME Canada,
agreed on benchmark standards for goals on             June 20, 2005, p. 35.
                                                       132 If the Court's reasoning had been stronger,
130 Also, Sweden's tax-funded system remains           activism might have seemed more attractive. But of
probably the most impressive example of dramatic       course    judgments      about    reasoning    involve
cost control, reducing spending sharply as a share of  preferences about policy; the plaintiffs might
GDP over several years.                               welcome activism, at least until the next case.


                                                    142

                                         Summary of the Discussion


the fact that politicians have cited public concern      had already argued that waiting times might be
about long waiting times as one reason for               more prominent than more systematic health
increasing spending. Health policy analysts tend         outcomes in part because waiting is more visible
not to be concerned about long waiting times.            than those outcomes.
Yet, as John Campbell pointed out, even where
waiting times take an entirely different form,           Another issue about waiting is the extent to
they are what the public complains about. In             which this problem can be solved by money as
Japan, the complaints focus on the time that             opposed to by changing how care is delivered
patients have to spend waiting in the outpatient         and what incentives are offered within the
departments of hospitals for ambulatory care.            system. Both Joseph Wong and Alan Maynard
Since such services tend to be run on a first-           emphasized that organizational factors might be
come/first-served basis rather than through an           more important than money.135 Organizational
appointment system, their complaint is that they         change, however, is difficult to effect.             It
show up at 9 am and have to wait until noon or 2         requires that people in the organizations change
pm.                                                      their behavior, which they often resist, and it is
                                                         hard to devise good systems even when people
Michael Reich argued that waiting times shape            are willing to cooperate. Moreover, spending
popular perceptions of quality even if they do           increases are a much more visible response to
not change outcomes. So they are a measure of            demand for change than a reorganization would
consumer satisfaction, and this raised the               be, so increasing spending is a more viable
question of whether consumer satisfaction is an          response to pressures to "do something" about
output that we should care about. William Hsiao          the waiting list problem.136 Soonman Kwon
responded that, since consumers are voters, their        pointed out that in any system physicians are
views are going to affect health policy decisions        likely to think that the proper solution to a
whether analysts like it or not. He reemphasized         problem is to spend more, adding that this is
a point made in earlier sessions, which is that          certainly how it works in Korea.            In Korea,
there are three basic standards for evaluation:
health outcomes, consumer satisfaction, and
financial protection for individuals from the            135 One example of how to change how care is
costs of treatment for illness.133                       delivered would be to create better appointment-
                                                         scheduling routines or to make GPs aware of how
Loraine Hawkins cautioned against assuming               busy various consultants are so the GPs could steer
that waiting times and "consumer satisfaction"           patients to the more available consultants.       One
are both           entirely separate from health         example of misplaced incentives is the fact that
outcomes.134       Peter Berman pointed out that         specialists in the UK have the option of seeing
both Canada and the UK are countries in which            patients in their private practices for which they are
citizens were already doing pretty well in terms         paid a version of their salary for providing service in
of population health and financial protection. He        the public sector. This arguably creates an incentive
also suggested that politicians might emphasize          for them to do less work in their public practice and
waiting       lists  and    (supposedly)  consumer       to tell patients that they can jump the queue if they
satisfaction because priorities at any moment in         choose to pay privately. Another example, this time
any system are not based on the inherent relative        from the US, involves ambulatory surgical centers.

importance of issues but on the extent to which          These freestanding centers can provide surgery and

they are most visible at the time. Michael Reich         aftercare faster for elective surgeries than a major
                                                         hospital can because, among other reasons, any major
                                                         hospital has some of its operating theatres pre-empted
133 I think "consumer satisfaction" is too narrow a      by emergencies. This cannot happen in a surgical
way of stating the second concern, which I think         center as these entities do not provide emergency
involves perceptions of equity as much as personal       care. Hence a family friend of ours chose to have her
utility, as I explain above.                             breast cancer treatment at a suburban facility owned
134My personal view is that the amount of time any       by the Cleveland Clinic rather than at the Clinic's
individual spends with a painful or unpleasant           renowned hospital center.
condition looks like an outcome to them, so the          136 Unless no money is available, in which case
whole idea that waiting times are unrelated to quality   policymakers are likely to announce a reorganization
of care and outcomes should be questioned.               initiative!


                                                      143

                                        Summary of the Discussion


waiting times per se are not an issue. Certainly,     middle, advised by experts but at least somewhat
for the uninsured in the US, "waiting times" are      dependent on the public?        Manfred Huber
not defined as the major problem. The main            reported that Health and Finance Ministers in
problem is the inability of some people to access     their private deliberations do agree that cost-
any services at all.                                  effectiveness is important, and he defined the
                                                      problem as how to "educate" the public to think
A third theme in this general discussion was how      so too. I suggested that the Canadian case is an
evaluation is used in policymaking.           Alan    example of this problem but that it also shows
Maynard had criticized the NHS for its continual      the   countervailing   pressure    imposed     on
disinterest in evaluation, for its habit of "Get      politicians by the public's views. Thus, in the
Ready, Fire, Aim." He mentioned in his talk that      early stages of the discussion of a spending
when some evaluation measures were suggested          increase, there was more emphasis on targets
to Prime Minister Blair, Blair's immediate            and standards and value for money than
response was that it could backfire on the            eventually emerged in the final agreement
government.137 John Campbell pointed out that         between the federal government and the
policy analysis and evaluation in the United          provinces.    Joseph Wong agreed with this
States generally has a conservative effect,           summary of his story and added that it is simply
because it highlights problems, which makes it        hard to set up evaluative standards in a political
harder to pass legislation.138    Manfred Huber       system where everything is interpreted as part of
argued that systems nonetheless should want to        a competition between officials of each of the
evaluate     their    own      performance,      so   two levels of government.      In other words,
policymakers should ensure the existence of           provincial officials want standards they can
good information systems.                             easily meet while federal officials worry that
                                                      they will be too easy and so not change
I pointed out that in practice it is easier to        provincial behavior.
evaluate the potential application of new
technology, whether procedures or drugs, than of      Alan Maynard had explained at one point that, in
ongoing activities (and is more likely to             the UK, hospital managers could lose their jobs
happen). There are two reasons for this. First,       if they did not reach targets. So the key issue
in the case of new technology or drugs, the           here was that standards and measurements affect
object of evaluation is more discrete and easily      peoples' interests, whether the person in
defined (as opposed to, say, "how we should           question is a hospital manager in the NHS, a
treat diabetes"). Second, if the evaluation leads     provincial premier in Canada, or Tony Blair.
to a decision not to apply the new technology,        They all know it, and act accordingly. And, as
then it will not take away anything that is           Berman added, it is also very hard to find
already being used. Alan Maynard emphasized           examples where one could make "uncontestable
that systems should evaluate their existing           statements based on evidence" about the proper
activities but agreed that the vast majority of the   use of funds. If it is important "there will be
new evaluations in England (through the NICE          three strong and well-financed sides on the
process) has involved new technology. Another         question."
aspect of this subject is who really cares about
evaluating       the     cost-effectiveness      of   Our discussion concluded by returning to the
expenditures. We agreed that the public does          question of what we (and our societies) want
not see things in these terms whereas economists      health systems to accomplish. Heinz Rothgang
and health services researchers (and probably         emphasized the difference between positive and
bureaucrats) usually do think in these terms. But     normative evaluation. Alan Maynard reiterated
what about politicians who are stuck in the           his (normative) emphasis on outcomes, saying
                                                      that underlying his whole presentation was his
137See also the comments on evaluation in Canada in   skepticism about spending on health care. This
my commentary.                                        skepticism derives in part from his belief that,
138 The classic description of this dynamic is        for the same money as the current NHS increase,
contained in Henry J. Aaron, Politics and the         one could get a lot more health improvements in
Professors: The Great Society in Perspective
(Washington, DC: The Brookings Institution, 1978).


                                                   144

                                       Summary of the Discussion


other ways, for example, by spending more on          concerns. Thus, home health care has long been
child nutrition.139                                   sold as a cheaper way to provide care than
                                                      nursing homes (and, conversely, has been
Talking about us (the group) as much as about         resisted by some budget experts out of concern
systems,    Heinz     Rothgang    suggested    that   that demand for home health care is potential
economists seem to put more faith in experts or       immensely larger than demand for nursing home
to expect a larger role for experts in                care).
policymaking than political scientists do. Thus,
we pay more attention to health outcomes while        Third,    evaluation      is   difficult  for  purely
political scientists seem more willing to allow       substantive reasons (it is very hard to craft
systems     to   evolve   according    to   public    useable guidelines in most situations) and
preferences. While there is probably some truth       because it is normally politicized. Interests are
to that, the economists in this group in particular   at stake, and it is hard to overcome that fact with
held a broader range of views about the purposes      objective evaluation because evaluation usually
of health systems than another group of               does not have enough analytic power.                  I
economists might.                                     therefore would warn policymakers in Japan or
                                                      elsewhere against expecting much in the way of
Conclusion: Implications for Other Topics             savings from emphasizing benchmarking and
                                                      guidelines.
What did this discussion suggest for other topics
considered at this seminar?     Most obviously, it    Finally, the fact that the populations of the UK
highlighted the fact that the general question of
what health spending is for is fundamental,           and Canada had other nearby health systems

whether the subject in question is what to cover      with which to compare their own influenced the

and the extent of user charges as in the first        demands they made for their own systems raises
session, long-term care as in the second, or          an issue that applies to policymaking in many
reforming the Indian and Chinese systems in the       other countries. In the US, it seems to apply in
concluding session. To some extent, where one         reverse in that many Americans think that the
stands on this basic question depends on one's        US explicitly should not adopt any policy that
perspective including one's job and training. As      has been adopted elsewhere.140 As for Japan,
a result, the difference between the position of     which lacks any obvious comparison country,
public health professionals and economists (who      some Japanese policymakers tend to believe that
emphasize population health statistics) and the      any problem that occurs elsewhere simply
public (who tend to focus on access to and           cannot happen in Japan. One very unfortunate
equity of medical services) probably exists in       example of this syndrome involved the failure of
virtually all situations.

                                                      140
Second, there is the question of the effectiveness        Some American policy analysts � obviously
of increasing spending versus reorganizing. For       including the ones at this conference -- tend to look

example, re-creating rural health clinics in China    abroad, but arguing that the US should copy foreign
                                                      practice is not feasible politically. American political
might greatly improve health indicators without       culture includes a strong strain of belief that the
increasing spending by very much. Advocates           United States is inherently different and better than
of home health care have long argued for this as      all other countries � the "last, best hope of mankind"
a way to reorganize long-term care away from          � implying that other countries should copy the US
the nursing home model.         However, as that      rather than the other way around. This view dates to
example shows, even reorganization arguments          the origins of the United States as a country founded
tend to be substantially influenced by budget         by people who were escaping the problems of
                                                      Europe, and then populated by immigrants fleeing the
                                                      misery of their homelands to pass through the
139As I mentioned in my commentary, knowing this      "golden door" mentioned in the poem inscribed on
about Alan Maynard's beliefs leads me to think that,  the Statue of Liberty.      The current US President
when he acknowledges a need for deferred              represents an extreme example of that view, and the
maintenance in the UK, they must really need the      fact that he got re-elected shows that it is pretty
money!                                                attractive to a portion of the electorate.


                                                   145

                                      Summary of the Discussion


the Japanese government to protect the supply of     knowledge of health systems in neighboring
blood treatment products for hemophiliacs from       countries put pressure on politicians in the UK
contamination       by    the     HIV    virus.141   and Canada to increase health spending, and the
Nevertheless, our own discussion revealed that       Supreme Court of Canada's decision in the case
ideas about both what works and what should be       about private insurance for Quebec. This means
expected from health systems can be affected by      that, at a minimum, it is important to have
what people believe about systems in other           accurate understanding of what those systems do
countries � whether the Korean experience is an      and how they work. I hope that this discussion
example of how cost-sharing might work in            and the seminar as a whole has contributed to
Japan, the clear evidence that widespread            that understanding.




141 See Eric Feldman's chapter in Feldman and
Ronald Bayer eds., Blood Feuds: AIDS, Blood, and
the Politics of Medical Disaster (New York: Oxford
University Press, 1999).


                                                  146

          Chapter 4: Social Security in Rapidly Industrializing Nations
Health System Issues, Challenges, and Options: Reflections on China, India, and Kerala

                                             Kottilil Mohandas
                                       Sree Chitra Tirunal Institute
                                  for Medical Sciences and Technology

Background                                              greater than ever before. The rate of progress is
                                                        such that almost every day another new drug or
The health systems of India and China are very          treatment or a further advance in medicine and
interesting cases, not only because of their            health technology is announced (WHO, 2000).
ability to influence the health outcomes of a           Yet, for a state that promised to provide
large majority in the world due to their huge           universal health care though the public health
populations, but also because their stories             care system, India has allocated only a meagre
present a fair amount of evidence on "what to do        fraction of public resources to health care.
and what not to do" in the health sector. India's       Ambitious plans were made for the health
health system has been running through rough            system, but the government did not make
weather for quite some time and at this moment,         enough resources available to fulfil even the
needs a radical progressive transformation if it is     minimum commitments made in the initial plans
to improve the well being of its population.            and even this low level of resources came down
Soon after Independence, India's national               substantially in successive plans. It is time that
planners committed themselves to developing             policymakers put health care high on their
the country and its people within a socialist           agenda    and   greatly    increase   the  budget
framework,      and     health was    an    obvious     allocation for the health care sector and for
component in this process. The country's post-          monitoring the performance of public and
Independent plans and policies on health care           private health care providers and the differences
were much influenced by visionaries like Bhore          in access to and use of care by the different
whose committee on Health and Development in            socioeconomic groups.
India made the primary care approach the
bedrock of Indian health care system.           The     As for China, its health system during Chairman
committee laid down the principle that access to        Mao's rule served as a model for developing and
primary care is a basic right and that the ability      low-income countries for how to provide
to pay or any other socioeconomic consideration         egalitarian and low-cost health care to a vast
should not be a barrier to accessing care.              population. The period from 1950 to 1970 was
                                                        characterized by significant achievements in
Since then, the country has made tremendous             China's population health indicators despite the
progress in such important health outcomes as           population's   low-income      levels.     Making
increased life expectancy at birth and reduced          primary health care the cornerstone of the health
infant and maternal mortality rates and death           care delivery system helped China to attain far
rates in general. However, these achievements           better health indicators by the early 1970s than
are not so significant when we compare them             could be expected given the country's stage
with the achievements of other countries at a           of economic development (World Bank,
similar   stage     of    economic    development.      1994).      The government's commitment to
Internationally, demand for health care has been        equity for all citizens and to ensuring the near
undergoing tremendous changes, while the                universal availability of adequate food, education,
resources needed to finance these services are          housing, jobs, and accessible and affordable
                                                        health care services also contributed to this
 The author wishes to acknowledge the invaluable        achievement (Yang et al, 1991).
contributions of Mr. S. K. Godwin and Mr. B. Arun,
PhD scholars (health economics), at every stage of      The    philosophy     that   had   governed    the
the preparation of this paper.


                                                     147

                             Health System Issues, Challenges, and Options:
                                Reflections on China, India, and Kerala

government's      attitude  to public    services    level, and county hospitals at the upper level.
(planning as the principal agent of economic         The Maoist model of medicine relied on political
growth and the market as a supplementary part)       mobilization and patriotic health campaigns in
was reversed in the late 1970s when China began      support of the public health and community
its transition into becoming a market economy.       medicine approach to health care. In rural areas,
This heralded a series of profound changes in        mass mobilization encouraged communities to
the organization and delivery of rural health care   help to improve environmental sanitation,
services in China. The concomitant economic          increase    immunization    rates, and    prevent
changes that followed the reforms, including         diseases. The authoritarianism of the regime with
changes to the political structure of the health     its powerful bureaucracy that mandated universal
service and the internal problems of the Co-         access to low-cost health care controlled the
operative Medical Service (CMS), contributed to      training   and    job  assignments   of   medical
the rapid decline of the system. As a result,        personnel and caused many of the public health
there is hardly any disagreement among scholars      programs to be highly effective in achieving their
that any economic reforms that have put              objectives. However, after the reforms in the
unquestioned faith in the market have not had a      early 1980s, the CMS, which had provided cost-
positive impact on equity in health care in most     effective health care to a vast majority of rural
countries.                                           population, went into a rapid decline. The later
                                                     disappearance of the collectives led to the
The present paper is an attempt to understand        closure of welfare funds, which had been the
the Indian health care system in terms of its        main source of financing for the CMS. Since
equity and efficiency in the post-Independent        there is another paper in the same session that
period. Any discussion on the health services of     discusses the Chinese health care delivery
China or India would be incomplete if we failed      system in more detail, any further discussion on
to take a look at the Indian state (equivalent to    China in this paper is superfluous.
province) of Kerala, which has carved its own
way in the health care field. Therefore, we also     Health in Post-Independent India: A Loser in the
discuss the Kerala health care delivery system to    Public Policy Agenda
try to understand what is possible even within
these adverse conditions.                            Soon after India achieved Independence from
                                                     the British Empire in 1947, the country's
Issues and Challenges                                policymakers, especially Jawaharlal Nehru, had
                                                     ambitious plans for the country's future, which
Chinese Health Services in Transition                was evident in his speeches to the public and in
                                                     the Constituent Assembly.      He acknowledged
China has had a lot of success in the                health care to be a major component in
development of preventive medicine, public           "eradicating poverty, inequities, and diseases."
health, and socialized services, whereas India       The Indian National Congress was fully in favor
has lagged behind. The basic structure of the        of providing free care to all of the population
Chinese health system that evolved during the        through the states (Narayana, 1983). Each Five-
command       economy     era  consisted   of   a    Year Plan reiterated the government's intention
comprehensive health insurance and health            to provide high-quality, community-centered
delivery system mainly funded by the state and       health care at the lowest possible cost.
organized    according    to  an   administrative    However, this never materialized in practice and,
hierarchy. The Cooperative Medical Services          although there was much criticism of the
(CMS), which operated under the collective           inability of the government to provide care to
communes, provided services like primary,            all, there was no real attempt to understand the
preventive, and some curative care. The CMS          factors that lay behind this failure (Narayana,
was organized into a three-tier structure            1983). Rather than a proper plan on health care,
comprising the barefoot doctors at the primary       the Indian government had established a range
level, township health centers at the secondary      of ad hoc committees that had issued some


                                                 148

                             Health System Issues, Challenges, and Options:
                                 Reflections on China, India, and Kerala

guidelines that were not clear in their objectives.        4) The media in post-Independent India did
Wit hindsight, it would appear that some of the                not   emphasize     the   role   and  the
factors responsible for the failure of the Indian              responsibility of the state in providing
government to achieve universal health care are:               the kind of services that the population
                                                               wanted and deserved.       For example,
    1) According to the Constitution, health                   Dr�ze and Sen (2000) reviewed a range
        care was the responsibility of the states              of articles in a national daily newspaper
        and, in the absence of a strong national               in 2000 and found that health care issues
        policy emphasizing the importance of                   were hardly ever covered.
        health care, this meant that different
        states assigned a different degree of         The result is that health care in India is
        importance to providing health services.      increasingly becoming seen as the responsibility
        Thus, the states also differed widely in      of individuals and not of the state. This trend
        terms of the amount of resources that         certainly does not augur well for the health
        they allocated to the health sector, which    status of the population, particularly as the
        resulted in wide inequities in the            health sector is facing many practical problems
        distribution of public health care. Health    on top of its lack of funding.
        outcomes in many states were very poor
        at the outset, and the lack of adequate       The Daunting Challenge of Ensuring Equity and
        resources made the situation even worse       Efficiency
        as time went on.
    2) The     development     strategy    of   the   Indian health care is often dubbed as pro-rich
        national   government       was    heavily    and pro-urban as the majority of health
        oriented towards industrializing the          institutions, both public and private, are
        economy, which demanded huge amount           concentrated in urban areas. The burden of
        of resources. This reduced the amount         health care in India is inversely related to
        that was available to allocate to health      t h e   economic status of the household; the
        care.   The First Plan gave only 3.3          poorer the household, the more prone it is to
        percent of its designated resources to        receive inadequate and expensive care (Visaria
        health care, and unfortunately, this low      and Gumber, 1994 and Gumber, 1997). Their
        percentage has been dropping ever since       already thin household budgets are stretched
        and now hovers at around 1 percent of         by having to pay out-of-pocket payments for
        the Plan funds (Government of India,          the treatment received by the sick family
        2002).     Rather than increasing the         member, and this is compounded by the loss of
        distributional   equity     among       the   that family member's income while he or she is
        population, it has increased inequity by      ill.    While private household out-of-pocket
        making employment less elastic.               expenses constitute more than 80 percent of total
    3) The state has never attempted to               health    expenditure     in  India,   government
        intervene in the provision of private         expenditure on health is less than 17 percent,
        heath services not only in the hospital       which is one of the lowest levels in the world.
        sector but also in other critical areas       Only 0.16 percent of population have private
        such as the pharmaceutical industry or        health insurance, which is, in any case, tends to
        the medical equipment industry. Also,         be available only in urban areas.           Social
        medical education was not oriented            insurance covers only another 2 percent of the
        towards meeting the main health care          population,     mainly     though    the   Central
        needs of the rural population but took a      Government Health Scheme (CGHS) and the
        disease-centric    approach     with     an   Employees State Insurance Scheme (ESIS).
        emphasis on Western orthodox medicine
        that was not accepted by the rural            Studies reveal that out-of-pocket payments for
        population.                                   health care in India are highly regressive, and it
                                                      is clear that it will not be possible to reduce the


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                              Health System Issues, Challenges, and Options:
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Indian poverty rate without tackling the issue of      these diseases is exorbitantly costly and often
how health care is financed. India's health care       require long-term care, which will put a strain on
system is currently market-based in that               the health system. The social transition involves
diagnoses and drugs are treated much like any          the rising expectations of the population about
other commodity (Dr�ze and Sen, 2002).           In    the quality of care, which causes costs to rise
comparison with other countries shows that             even further.      Fresh challenges including
India's health care system is most privatized in       HIV/AIDS, the resurgence of diseases that were
the world.     Even in the so-called capitalist        earlier thought to have been eradicated (such as
industrialized countries, the state is heavily         tuberculosis), and drug resistance to some
involved in financing and providing health care.       diseases add to the woes of the health sector in
The involvement of the state is necessary at           India.
minimum to deal with problems like the spread
of communicable diseases, which the private            Urban Health System
sector has no incentive to tackle because of what
the economics literature calls "market failure."       Urban Health Services: Not Much to Cheer

As a result of the lack of state involvement in        Health conditions in urban areas are different
the health sector, India has failed to control         than in other areas of India.           They are
communicable diseases, despite the availability        more often a consequence of factors outside the
of    cost-effective   and     relatively   simple     health system, including a lack of decent
technologies. These diseases, the treatment and        housing, poor sanitation, noise and air pollution,
prevention of which have very high positive            and unsafe drinking water. A majority of the
externalities, still constitute more than half of      urban poor work in the informal sector, which is
the disease burden (as measured by DALYs) in           characterized by self-employed and low-paid
India.   While the country has implemented             workers with no fixed employer-employee
measures to reduce mortality and enhance life          relationship   or   statutory   social   security
expectancy at birth, the challenges thrown up by       protection.   In addition, the presence of risk
the ongoing health transition have important           factors such as pollution and poverty make the
implications for the public health structure and       urban poor more vulnerable to diseases. The
population health in the country.              The     high rate of growth of the urban population
demographic,      epidemiological,    and    social    and the consequent increase in the slum
changes involved in this transition are likely to      population has strained infrastructure        and
change the outcomes of any health policy               caused health problems (Gupta and Mitra,
actions, increase the costs of treatment, and          2002). Slums constitute about 22 percent of the
increase pressure on the health system to deliver      total urban population and are characterized by
satisfactory care.    The main element of the          poor living conditions and a lack of proper water
demographic transition is that the elderly             and sanitation facilities, making the urban poor
constitute an increasingly high proportion of the      vulnerable to a host of diseases (Dilip and
population. This is going to increase the cost of      Duggal, 2004).    So any strategy designed to
medical care in the sense that the elderly tend to     influence urban health outcomes will have to
be ill more than younger people. For example,          incorporate these non-biomedical factors into
several studies have revealed that high levels of      consideration.    Wide disparities exist between
health expenditures in certain households is           and within the ranks of the poor especially in
explained by the number of elderly members in          terms of caste and gender.      Social exclusion
the family (Narayana, 2001). This change is            increases the vulnerability of the poor to ill-
happening in conjunction with epidemiological          health and violence. As a result, the urban poor
changes in which non-communicable diseases             face higher risks of getting sexually transmitted
(including cardiovascular diseases, diabetes,          infections and HIV/AIDS and of being in poor
neoplasm, and neurological disorders) now              reproductive health.    Workers in the informal
constitute an increasing proportion of the burden      sector do not get any health care benefits as
of disease. The treatment and management of            insurance coverage in India is heavily skewed in


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favor of the upper and middle class and               the patients attending public hospitals may also
employees working in the formal sector.         So    face large indirect costs including, for example,
when these informal workers fall ill, especially      the cost of any medicines that they may have to
when they have to be hospitalized, not only do        purchase from the private sector or bribes for
they have to pay the high medical fees out            hospital staff. Since a large number of patients
of their own pockets in the absence of any            who use health services in the urban India are
formal risk pooling mechanism but they also           from rural areas, they may have to spend money
lose out on their daily earnings. So although the     on transportation charges and lodging as well.
urban poor have more access to health facilities      Since the cost of treatment in the public sector
than their rural counterparts, the higher average     indirectly influences the cost of treatment in the
cost of these health services makes them just         private sector, the increased user charges in
as disadvantaged as their rural counterparts. A       public hospitals may also be a reason for costs
very large number of people cannot even afford        going up in private hospitals.
to access the "free" government services
because of the opportunity costs involved such        Statistics clearly show that the bed population
as   forgone     income    and    the   price   of    ratio is higher in urban areas than in rural areas
transportation. Instead, they depend heavily on       and that there has been no significant decline in
poor-quality    services   provided    by    local    these disparities over time (Duggal et al, 1995).
unqualified practitioners.    Despite this, poor      This regional imbalance is present both in
households tend to spend nearly one-fifth of          the government-run public sector and in the
their income on medical treatment. These are          private sector. Public spending on health care
the critical factors in explaining why the urban      is also disproportionately higher in urban areas.
poor are living in poverty.                           Although the urban population has better access
                                                      to health care facilities than their rural
How "Free" are Urban Public Health Services?          counterparts, there is widespread inequality
                                                      between the poor and the rich within urban
It is often believed that the publicly provided       areas, even though the proportion of those living
health services are free of charge. However,          in poverty appears to be declining. The density
especially in recent times, almost all the state      of providers in urban areas is much higher than
governments have either introduced or increased       in rural areas. The urban health system in India
user charges for these services.       Thus, the      consists of medical colleges, middle-level
patients seeking care are charged both explicitly     government      hospitals,   maternity    homes,
and implicitly. The explicit charges mainly take      dispensaries, hospitals and dispensaries run by
the form of user fees. Estimates by Krishnan          the ESIS, many private practitioners, and
(1995) show that, in the rural sector, fewer than     private hospitals of varying size and variety.
3 percent of patients in Haryana and Punjab and       Although urban areas have better health
only about 7 percent in Uttar Pradesh get free        indicators than rural areas, survey- based data
treatment as inpatients in hospitals. Even fewer      has shown wide inequalities in access to
numbers receive free treatment in the urban           services e v e n within urban a r e a s .     The
areas than in the rural areas in all states. Of       urban health care system is primarily curative
rural patients, 70 and 54 percent receive free        in nature and tends to lack primary health care
treatment in Jammu and Kashmir and Tamil              workers (Jay Satia et al, 1999).      The NSSO
Nadu respectively. This proportion is 46 percent      survey reveals very high rates of use of the
in Orissa and Rajasthan, and 34 percent in West       private sector for both inpatient and outpatient
Bengal. In other states, it varies between 12 and     care in urban areas (NSSO, 1998). According to
17 percent � Andhra Pradesh (12.2), Gujarat           the survey, 20 percent of patients seeking
(15.97), Karnataka (16.78), Kerala (15.08), and       outpatient care in urban areas used the public
Maharashtra (16.71). In urban areas, 47 percent       sector, while the equivalent figure for inpatient
of patients in Tamil Nadu and between 6 and 12        care was 43 percent (see Tables 1 and 2).
percent in Gujarat, Karnataka, Kerala, and
Maharashtra receive free treatment. Of course


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  Table 1: Public-Private Sector Use of Outpatient Care, All-India
                              (Percentage distribution)
                                       Rural                     Urban
                               1986-87     1995-96      1986-87       1995-96
Share of Public Sector         25.6         19.0          27.2         19.0
Share of Private Sector        74.5         80.0          72.9         81.0
Private hospitals              15.2         12.0          16.2         16.0
Private doctors                53.0         55.0          51.8         55.0
(Private practitioners)
Others                          5.2         10.0           2.9          7.0
Total                          100.1        99.0         100.0        100.0

Sources: Sen et al, 2002, NSSO, 1992, Statements 13R and 13U, pp 67-68, Statement 2R and 2U, pp
        53-54. NSSO, 1998, Table 4.10, p22; Table 4.16, p28.



  Table 2: Public-Private Sector Use of Inpatient Care, All-India
                              (Percentage distribution)
                                       Rural                     Urban
                               1986-87       1995-96     1986-87 1995-96
Share of public sector          59.7           45.2       60.3        43.1
Share of private sector         40.3           54.7       39.7        56.9
Others                           1.7           0.8         1.2         0.6
Total                          100.0           99.9      100.0       100.0

Sources: NSSO, 1992, Statements 13R and 13U, pp 67-68, Statement 2R and 2U, pp 53-54. NSSO,
        1998, Table 4.10, p22; Table 4.16, p28.



Although      most     people    consult     private     private practitioners and teaching hospitals are
practitioners for minor illnesses, they depend on        better (Renu, 1995).
public facilities for acute illnesses that require       Some micro-level studies have lent empirical
hospitalization and for maternal care (Yesudian,         support to the NSSO's conclusion that a
1999). However, a recent study of the pattern of         majority of urban residents use the private sector
use of municipal health services in Mumbai               for both inpatient and outpatient care.       For
showed that a majority of households in all              example, in places like Mumbai, the municipal
socioeconomic groups used the private sector for         corporation has not been able to expand its
both minor and chronic ailments.          There are      medical infrastructure to cover the suburbs,
probably several reasons for why public services         which ultimately led to private facilities
are used so little, including the large number of        emerging in those areas in response to that
different agencies that run public health                unmet need (Yesudian, 1999).      Where public
facilities, the absence of any proper coordination       facilities did exist in Mumbai, the higher levels
among them, and the resulting inefficiency.              of services tended to be used more than the
Some other factors that might be responsible for         lower    level   services because    they    were
this pattern are inconvenient opening times, long        perceived to provide services of better quality in
waiting times, the non-availability of medicines,        terms of manpower and supply of drugs
and the feeling that the services provided by            (Yesudian, 1994). This has often over-burdened



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these higher-level facilities, leading them to         health care providers in urban areas do not follow
become inefficient and causing their quality to        any norms either with regard to the use of
slide. At that point, the private practitioners in     physical infrastructure (such as the amount of
the vicinity are available to provide personalized     space per bed or the provision of certain utilities)
care immediately (Renu Garg, 1995). So we can          or the structural aspects of care (what medical
see that the model of health care in urban areas       and paramedical personnel they employ or what
is heavily dualistic, in which the rich can afford     services they offer).   The important problems
the health care necessary to extend their lives        cited by these studies are a lack of physical
whereas the poor are barely able to survive.           standards, inadequate space within hospitals (a
                                                       majority of nursing homes are substandard, most
The general increase in health care demand             of them being housed in tiny flats), the absence
coupled with the inability of public hospitals to      of   trained   personnel    (especially   qualified
provide     adequate    medical     services    has    nurses), a lack of labor rooms in maternity
accelerated the growth of the private health           homes, poorly lit and dirty wards and beds, and
sector in India.    The demand-supply gap for          the failure to keep records of diseases, births,
public health care delivery is large and growing,      and deaths (Nandaraj and Duggal, 1997 and
and this gap is increasingly being bridged by          Muraleedharan, 2001).       This has led to the
private health care institutions.     The general      medically unjustified use of technology and the
increase in personal income levels and the             existence of a complex network of arrangements
corporatization of care in urban areas have            between the physicians in the government
turned health care into a commodity like any           sector, the private hospitals, and local diagnostic
other, available only to those who can afford to       centers. These types of mutual arrangements
pay for it. The urban health care industry is          have a definite bearing on the cost of care since
booming, with a host of private hospitals              most payments are made by patients out of their
offering state-of-the-art services for the rich and    own pockets on a fee-for-service basis. This
the middle class. The increasing availability of       complexity makes it extremely difficult to frame
advanced medical technologies has increased            policies to regulate private health facilities.
demand for these services.        The changes in       Even in areas where private provision seems to
disease patterns due to the epidemiological            be theoretically harmless, there are many ways
transition, the easy availability of financial         in which this market works against the
resources, and the easing of import restrictions       consumer, such as the asymmetry of information
have all contributed significantly to this rapid       between the provider and the patient and a lack
influx of medical technology.                          of recorded information about the incidence and
                                                       outcomes of treatment. In such chaotic markets,
This increase in the private health sector has         the user is helpless (Berman, 1997), and
given rise to some problems. These include the         competition by itself is a poor efficiency-
fact that the private sector has no profit incentive   enhancing device, especially when the consumer
to get involved in disease prevention, that they       is unable to judge the quality of the services
tend    to    over-charge,    that  they     induce    being offered (Dr�ze and Sen, 2002).
unnecessary demand for certain services, and
that there is no genuine quality assurance             Rural Health: A Pathetic Plight
mechanism to govern their operation.            The
private sector is so heterogeneous that it ranges      Although this paper deals with urban health
from large corporate hospitals to small five-bed       services, it might be helpful to have a quick look
nursing homes and from solo practitioners with         at the situation in the rural health sector before
questionable qualifications to practitioners who       we move on to question of what happened to the
have medical degrees in indigenous medical             Indian health services in the 1990s. According
systems but also practice modern medicine. It          to the National Sample Survey Organization
also   includes    diagnostic    centers    offering   data, more than 53 percent of the rural
numerous services.         Various studies have        population (Table 1) have their health care needs
established that the vast majority of private          met by private practitioners (NSSO, 1998).


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Although rural areas are poorer than urban ones       care services is forcing the poor to seek care
and absolute poverty dominates in rural areas,        from the private sector, even if they would
some private practitioners do exist in the rural      prefer to be treated at public sector facilities
areas. There are other estimates that 1 million       (Dilip and Duggal, 2002). A recent analysis has
illegal practitioners are managing 50 to 70           revealed disturbing details about Indian public
percent of primary consultations in rural India       health expenditure in the 1980s and 1990s. For
(Misra et al, 2003). Their existence is often a       example, the share of health expenditure in the
result of the non-availability and inaccessibility    major states fell significantly in proportion to
of public health services of decent quality, and      total government expenditure from 6 to 7
these practitioners are somehow meeting the           percent in the 1980s to just over 5 percent in the
unmet needs of the rural residents. However,          1990s (Selvaraju, 2001).      In real per capita
existing data sets do not adequately answer such      terms,    public   expenditure   on  health   has
important questions as what types of private          increased, but the distribution of resources
providers exist in rural areas and how much they      among primary, secondary, and tertiary care
are used by each different income group.              does not accord with national policy as the
                                                      allocation for primary and secondary care is
Several studies have confirmed that the main          growing more slowly than the allocation for
determinant of the establishment of private           tertiary care. Also in many states, the growth in
practice are the purchasing power of the local        health expenditure was fully absorbed by the
consumers (Baru, 2000). Since health care is          salary bill, leaving little left over to finance
often a necessity, even the poor tend to over-        development activities, maintenance, drugs, and
commit their resources, and this becomes the          other consumables.       This situation is very
source of the livelihoods of these practitioners.     alarming with regard to the quality of care, user
Other reasons for the popularity of the private       satisfaction and use, and the performance of the
medical practitioners in rural areas are that they    system.      While there had been a steady
dispense    medicines      that   are    culturally   expansion in the number of facilities at least
appropriate (though not necessarily effective)        until the mid-1980s, there is widespread
and that they accept fees in instalments and even     evidence      that   quality  has     deteriorated
on credit. This is an indication of the dire state    substantially in recent years.      Many health
of the health sector in the rural areas of India      centers are in desperate need of repairs,
(which is where the majority of the Indian poor       physicians and supporting staff are either not
live), characterized by a lack of choice and the      available or not accessible, drugs are available
potential for exploitation by unregulated private     only      occasionally,    and    facilities   are
providers.                                            characterized by inconvenient opening times and
                                                      an absence of privacy. Meanwhile, this period
Indian Health Care Scenario in the 1990s              of decline in investment in public health
                                                      infrastructure in the 1980s and 1990s has led to a
A Changing Landscape                                  steady increase in the growth of the private
                                                      sector (Narayana, 2001), which may be reducing
The health care sector in India has changed           access to health care in poorer regions and states
during last two decades as the private sector         in India (Krishnan, 1995).       This growth is
has come to play a growing role in                    manifesting itself as the expansion of existing
providing both inpatient and outpatient               facilities, the establishment of new ones, and
care (NSSO, 1998). The decline in the use of          investment in buildings, equipment, diagnostic
public health care services is mainly a function      facilities, and plush surroundings (Narayana,
of the decline in public health investment            2001).
during the same period (GOI, 2001). The
private sector is not only used by the                Increasing Cost of Treatment: Equity in Access
upper and middle classes alone but also by            Suffers Further
the poorer classes (Dileep, 2002). Studies have
shown that the non-availability of public health      An analysis by Sen et al (2002) contains some


                                                   154

                              Health System Issues, Challenges, and Options:
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interesting findings on the cost of seeking care in       from private health services, and this happened
the 1990s. For example, with regard to seeking            even in poorer states. The biggest fall in use of
outpatient care, the difference in cost was only 5        the public sector for outpatient care has been in
percent less in the public sector than in the private     the public hospitals whose share decreased
sector in rural areas and while it was 8 percent          from 22.6 to 15 percent in the urban areas
lower in urban areas. However, with regard to             between mid 1980s and the mid-1990s (NSSO,
seeking    hospital   care,   the    difference     in    1998).   Compared with the mid-1980s, the
expenditure was 129 percent and 213 percent less          costs of both outpatient and inpatient care have
in the rural and urban public sector hospitals            risen in both rural and urban areas.     A study
respectively compared with the private sector.            by Sen et al (2002) revealed that between
Although use of public hospitals varied                   1986-87 and 1995-96 outpatient costs per illness
considerably across states, public hospitals              episode in rural areas went up by 142 percent in
provided an important alternative to the private          the private sector and 77 percent in the public
sector and at significantly lower cost. Inequality        sector. In urban areas, private outpatient costs
between the rich and poor in their use of in-             increased by 150 percent compared with 124
patient   care   was    also    considerably      less    percent in the public sector. The urban-rural
indicating that even the middle classes could not         price differential for outpatient care rose from
afford the price of inpatient treatment. This may         1.04 in 1986-87 to 1.10 in 1995-96. The trends
be a reason for the continuing popularity of              in the costs of in-patient care between 1986 and
public sector for inpatient services in the 1980s         1996 are more dramatic.            Average costs
and 1990s.                                                spiralled by 436 percent in rural areas and by
                                                          320 percent in urban areas (Table 3).
In the 1990s, large numbers of people were
forced to leave the public sector and seek care

        Table 3: Average Expenditure on Medical Care: All-India, A Comparative Picture,
                                               1980s and 1990s
                                 (Rs per illness episode/hospitalization)
                      Rural                             Urban                          Urban-Rural
                                                                                       Ratio*
Outpatient care       1986-      1995-       Percent    1986-     1995-     Percent    1986-    1995-
                      87         96          change     87        96        change     87       96
Public sector         73         129         77         74        166       124         1.01    1.29
Private sector        77         186         142        80        200       150         1.04    1.08
Total                 76         176         132        79        194       146        1.04     1.10
Private: Public Ratio 1.05       1.44                   1.08      1.20
@
In-Patient Care
Public sector         320        2080         549       385       2195      470         1.20    1.06
Private sector        733        4300         486       1206      5344      343         1.64     1.24
Total                 597        3202         436       933       3921      320        1.56     1.22
Private: Public Ratio 2.29       2.07                   3.13      2.43                 --       --
@
Notes: @Measures the private-public differential in average expenditure.
*Measures the urban-rural differential in average expenditure
Sources: NSSO, 1992, Source Table 11.00, p S-516, Statement 6, p 59.
NSSO, 1998, Table 4.19, p32; Table 4.21, p33.

The spiralling costs of inpatient care were also          sector compared with the private sector in
particularly evident in institutions in the public        both rural and urban areas. Between 1986-87



                                                      155

                               Health System Issues, Challenges, and Options:
                                  Reflections on China, India, and Kerala

and 1995-96, the private-public cost ratio for          performs better than its urban counterpart,
outpatient care increased from1.05 to 1.44 in rural    which is not the case in many other states. The
areas and from 1.08 to 1.20 in urban areas. For        kind of social development that occurred in
inpatient care in contrast, the private-public cost    Kerala (a high physical quality of life despite
ratio actually fell from 2.29 to 2.07 in rural areas   low rates of economic growth) has been
and from 3.13 to 2.43 in urban areas (Sen et al,       described as the "Kerala model" although it has
2002).    This narrowing of the public-private         increasingly become fashionable to disown the
expenditure ratio may partially explain why            same even by its own parents. In effect, Kerala
patients have abandoned public services in favor       has offered something new in the area of health
of private ones.      Studies by KSSP (2000) of        care delivery, which can be called "good health
Kerala and Prabhu and a few others showed that         at low cost."
the proportion of spending on treatment by
households inthe poorest income groups had risen       Is the "Kerala Model" Vanishing?
sharply between the 1960s and the 1990s.
Although these studies are silent on the quality       Even before the Indian states began to be run by
of care as a factor in this total expenditure, they    elected governments in the 1950s, there was a
do present evidence of rising expenditures and         strong foundation of public health services in
increasing inequity in medical spending by the         Kerala (Kutty, 2000). This led the policymakers
population of these states.                            of the new state to accept that health care had to
                                                       be an important component of the social
The Kerala Health Care System - the                    development of the population. The socialist
Trailblazer                                            governments that took power in the early days
                                                       made tremendous efforts towards reducing
Kerala's health system is a very interesting case      poverty and other forms of inequality by not
in that it has produced improving social and           only by investing in health services but also by
health outcomes even while the state has been          introducing    land   reforms   and   educational
experiencing comparatively low income growth.          reforms.    They did this partly as a result of
This has caused the State of Kerala to be              pressure from the public in the form of popular
described as a trailblazer in the area of social       debates in the press, public opinion as expressed
and human development in India. The success            through electoral politics, and public rallies and
of Kerala's health system is due to its                strikes.   This was reflected in the increased
accessibility to the people of the state in three      resource allocation to the social sectors, thus
dimensions � geographical, economic, and               making per capita public health care spending in
social. The state government ensured that health       Kerala the highest in the country. For example,
services    were      physically   accessible    by    the annual compound growth rate of government
improving the transportation system connecting         health expenditure for the period (at current
the interior areas of the state and encouraging        prices) was 13.04 percent, and this expenditure
the   establishment     of   many     health   care    was     growing    by   12.45   percent.      The
institutions by both the public and private            government's increasing allocations to the health
sectors in rural areas.      It ensured financial      sector continued until at least the mid-1980s.
accessibility by enabling public health services       This is also the period in which there was the
to provide more and better services, thus              largest increase in public sector hospital beds
minimizing the extent to which patients had to         (Table 4).
resort to expensive private sector care. At the
same time, the progressive social organizations
in the state played a vital role in ensuring social
accessibility by means of effective political
participation    and    increased    literary   and
awareness programs. The rural health system




                                                   156

                               Health System Issues, Challenges, and Options:
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                       Table 4: Growth in Number of Government Beds in Kerala


                                       1961         1971         1986        1996
                        Year

                        Number of      13000        20000        36000       38000
                        Beds
                        Source: Kutty (2000)


However,       after   this   period,   the   state    inadequate resources and reduced efficiency,
government's allocation to the health sector           which have led to a decline in the quality of
began to decline, and after the mid-1980s, the         care. This is happening at a time when the cost
expansion of the sector began to slow down             of health care is increasing at a rate much higher
substantially.     There were at least two main        than that of general commodities due to the
reasons for this decline in public resources for       increasing availability of expensive diagnostic
health care. First, the state economy went into        technologies (Varatharajan, 2004). By the mid-
decline with the stagnation of both the                1990s, the fiscal crisis had assumed such serious
agricultural and industrial sectors, which caused      proportions that      the government's     checks
state government resources to shrink even as its       bounced because of the paucity of funds in their
commitments increased substantially.        By the     accounts. Nor was the government able to pay
late 1980s, capital expansion in the health sector     the suppliers of medicines and consumables for
had come almost to a standstill and the recurrent      hospitals (Varatharajan, 2004). Since that time,
budget, while still going up, was almost               there has been a virtual halt to the creation of
completely dominated by salaries, leaving little       new health care infrastructure, and maintenance
money available for supplies and equipment. As         of the existing structures has also suffered a set
could be expected, the quality of care in the          back in the last decade.        This has put an
public sector went down, and the private sector        increasing financial burden on patients because.
exploited this opportunity by expanding.
                                                       While government revenue stagnated compared
The second reason why public resources for the         to its expenses, health care was not affected
health sector decreased was that the public in         much. However, analyses have shown that the
general and the political parties in particular no     increased budget allocation for health care in
longer put health care at the top of their agendas.    recent times was spent on increased salary
Political discourse in the state had become much       expenditure and not on maintenance or drugs
more preoccupied with matters of "power                and supplies. Also, the changes in the delivery
politics" including those related to caste and         system put a tremendous financial burden on the
community issues.        The media, which had          population because of the higher costs of
played a critical role in the past in promoting        treatment. Some estimates from the state show
funding for the social sectors, failed to keep the     that the poor spend 40 percent of their income
pressure on the political parties on these social      on health care, an almost five-fold rise between
development issues. This has allowed the state         1987 and 1996, while the rich had to spend only
government to let health care services slip down       around 2.4 percent, almost the same proportion
its list of priorities.                                as they were spending in 1987 (Kunhikkannan
                                                       and Aravindan, 2000). Besides, national-level
Achievements Shaken                                    data highlight the fact that the state has one of

Thus, the Kerala "model" public health care            the highest level of user fees for public health

system is facing serious problems, including           services in the country, which must be having a



                                                   157

                                 Health System Issues, Challenges, and Options:
                                     Reflections on China, India, and Kerala

negative effect on the affordability of health care       play in offering the elderly a hassle-free
(Peters et al, 2002 and Government of India,              existence at the end of their life. This may mean
2002).     There is no exemption mechanism,               providing them with better social security
which means that few of the poor can afford to            arrangements (Kerala has a better track record in
access public health care any longer.                     this respect than the rest of India but not by
                                                          international standards), free public health care
The picture on the pattern of diseases in Kerala          for those over 60 or 65, and/or more extended
is complex. Diseases that tend to affect the poor         care units attached to health facilities.
such as TB, malaria, and other infectious
diseases coexist with a rising incidence of non-          Some scholars feel that a tolerably efficient and
communicable diseases and injuries as a result            almost equitable public health service often
of   the    state's   premature       epidemiological     serve as an important competitive factor in how
transition.   Leaving aside the debate on the             private hospitals determine their treatment
methodology of morbidity measurement in the               prices. In an analysis of NSSO data, Krishnan
state for the time being,   142 health surveys reveal     (1995) reached the conclusion that however high
that the state has high morbidity at 110 per 1,000        the charge in government hospitals may be, the
population but with generally low mortality.              price in private hospitals will be even higher.
However, the prevalence of morbidity among                He further pointed out that one of the
the elderly is disturbingly high at 234 per 1,000         considerations that private hospitals take into
population with chronic ailments accounting for           account in determining their inpatient charges is
the    major     share    (in     1995-96).       The     to add a mark-up over and above the cost of
hospitalization rate in Kerala is also quite high         treatment in government facilities.        Public
compared with other Indian provinces. Once                hospitals act as "shock absorbers" for a large
again, there is a higher level of hospitalization         majority of people who incur catastrophic and
among the elderly who have a prevalence of 155            impoverishing medical expenditures. High user
per 1,000 while the average for the state is 68           charges based on the principle of cost pricing
per 1,000 (in 1995-96).                                   may have both indirect and direct effects on the
                                                          efficiency and equity of health service provision
This has important implications for the care of           in the state as well as on access to and use of
the elderly. First, as the elderly have higher            health services.
hospitalization and morbidity rates, they need
more medical care, which can put a heavy                  The inequity that crept into the system slowly
burden on their household's finances.             For     but steadily has given rise to issues of grave
example, one study (Narayana, 2001) has found             concern. The belated realization by the state that
that the presence of an elder member in a                 the centralization of the decision-making process
household     explains    its    high    health   care    might be one reason for the inefficiency of
expenditure. Second, since a large number of              governance and management as well as for the
old people are economically dependent on                  inefficiency and rising inequity of the public
others, the care they get is often sub-optimal.           health care sector led to a paradigm shift in
Evidence for this assertion can be found in the           thinking.   Policymakers began to embrace a
many studies of how household decisions are               decentralized development philosophy based
made, which have shown that the intra-                    upon the needs and aspirations of local
household allocation of money and time varies             communities.
depending on the age, sex, and social status of
the household member. In other words, women,              Political     Decentralization       -The    New
children and the elderly tend to lose out.                Development Rhetoric
Clearly, the state or any other third party with a
pure non-profit motive has got a vital role to            Decentralization, if implemented effectively, is a
                                                          mechanism capable of changing governance at a
142 See Kumar, 1993 and Panikkar and and Soman,           fundamental level and can be an engine of
1984 for better insights on this issue.                   change especially in rural areas.         Ideally,


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                              Health System Issues, Challenges, and Options:
                                 Reflections on China, India, and Kerala

decentralized structures are geared towards           highest priorities (Nayar, 2001).
achieving national goals while responding to
local needs. In principle, the central government     However, for the last few years, there have been
would provide the maximum possible resources          several major hurdles that have prevented
and other technical expertise to regional and         decentralization    from    being     implemented
local governments, which in turn would be             effectively in the state. These include the timing
responsible for responding to and meeting its         of the allocation of funds, conflicts of interests
community's needs (Segall, 2003).        Effective    among the people, politicians, and bureaucracy,
democratic decentralization requires some of the      the inability of the local political leadership to
important following elements: (i) devolving           convince health service policymakers at the
adequate    resources    to    lower   levels    of   national level, and a lack of clarity about the
government; (ii) giving functional and financial      roles of the panchayat in the implementation of
autonomy to all levels of government; (iii)           state-level and central government programs.
requiring that these funds are used in accordance     Bureaucrats at the national level usually resist
with a democratically decided and pre-specified       any erosion of their power, and this is a
development plan, and (iv) building the               continuing problem for Kerala. Notwithstanding
capabilities of regional and local governments to     these problems, the decentralized political
use resources effectively and transforming civic      structure has facilitated progressive changes in
culture to encourage democratic participation         many sectors.
by people at the grassroots (Chandrasekhar,
2004).                                                Action Plan for Health Financing in Kerala
                                                      within     the    Decentralized      Government
Decentralization - the Kerala Way                     Structure

The media have depicted Kerala's experiment           From the above discussion, it is clear that access
with    decentralization     as   an    alternative   to health care in Kerala is severely limited by a
development model for developing countries in         lack of a financing mechanism that takes into
the face of globalization. It has also been seen      account the disease priorities of the population.
as a new development paradigm in which                Tax-based financing, community financing, and
participation is to prevail over pressure group       social insurance are the major alternatives that
politics.                                             are feasible in the Kerala context.            The
                                                      decentralized government has to play a key role
Political decentralization as it has evolved in       in both organizations as well as in mobilizing
Kerala departs from the model outlined above in       resources especially from taxes and community
several important ways (Issac, 2000).         The     financing. Tax based financing is likely to be
decentralization process was converted into a         the most feasible option because the other
mass movement within a broad legislative              mechanisms have been found to be less effective
framework in the state. It has also followed a        in meeting health care needs.             Although
pure bottom-to-top approach, which in practice        government spending on health in Kerala is
means that the local population is empowered to       higher than in other states, it still accounts for
discuss, decide, and implement programs on            less than 1.25 percent of the state's GDP.
their own. Because of previous land reforms in        Overall, the state needs to increase this
Kerala, the lower socioeconomic groups are            allocation as both the state and the central
freer to participate in this decision-making than     governments have elastic and buoyant tax
their counterparts in other states who are            revenues.       Moreover,    tax-based     resource
severely restricted by their dependence on their      allocations have been shown to enhance the
landlords. As for the health sector, an analysis      efficiency and equity of health services. As for
of the development reports prepared by a few          user fees, they cannot be raised any more as they
panchayats in the state shows that the local          are already at higher levels and it is certainly not
populations view issues related to health care,       feasible to introduce them at the level of primary
especially preventive care, as one of their           care. Since estimates reveal that majority of out-


                                                   159

                              Health System Issues, Challenges, and Options:
                                 Reflections on China, India, and Kerala

of-pocket health care expenditure (more than 50-      any payment obligations. The larger the number
60 percent) is spent on ambulatory care, it ought     the citizens who participate, the better the check
to be possible for a well-functioning public          on different types of fraud.
health services with a strong emphasis on the
rural and urban primary and curative care to          Kerala's specific advantages include a literate
reduce the financial burden on patients. The          population, a high level of public participation,
strength of the state is that it is already doing     better administration and governance because of
well with regard to equity and efficiency             decentralization, and a relatively empowered
compared with other states. Community health          female population. The financial situation of the
insurance or any other insurance usually fails        local self-governments is relatively satisfactory.
because administering small cases is costly for       However, the obvious constraints of LSGs
the insurers who do not generally cover high          should be borne in mind. For example, major
probability events like ambulatory care.        So    decisions cannot be left to their sole discretion
pumping fresh resources into regulating private       as this may lead to a loss of direction. They may
practice would go a long way towards helping          not also be able to function as independent units,
patients to access and afford care.           The     as this might result in geographically poor and
decentralized government of Kerala has a vital        underdeveloped areas suffering even further
role to play in looking after the management          The decentralized governments cannot also be
aspects and ensuring the quality of care by           expected    to   deliver    all   levels of   care,
ensuring the timely and uninterrupted supply of       particularly, specialist tertiary care.
drugs and medicines, maintenance of facilities,
and other important components of recurrent           Conclusion: Whither Health Care Financing?
expenditure.
                                                      This analysis of India's health services in
As for the funding of inpatient care, the picture     general and the Kerala health system in
becomes more complex because there is a need          particular has shown that the country has a long
for more public and private facilities. In the        way to go in achieving acceptable levels of
formal sector, where around 10 percent of the         health outcomes. The available data show that
state's workforce is employed, patients may be        the Chinese health system, which used to be
covered by the existing social and group              seen as an encouraging example for many other
insurance mechanisms, and the need here lies in       developing countries, seems to have faltered in
increasing the efficiency of the providers and the    recent    years.      As     for   India, although
organization. Community financing could be an         policymakers after Independence planned to
important way to reduce expenditures on               build a strong foundation for an egalitarian
catastrophic illness for people in rural areas and    health care system, its implementation has fallen
in the informal sector. Community financing           far short of this goal.      However, there is no
schemes organized by LSGs with a community            dearth of ideas as well as success stories in the
risk rating can be a complementary financing          country.    The stories of Kerala and, more
method.    All the individuals in a respective        recently, of Tamil Nadu and Himachal Pradesh
panchayat area can be members by paying a             have shown that wherever there has been public
nominal premium per month. These schemes              pressure coupled with progressive state action,
can cover both secondary and tertiary care up to      there have been tangible and encouraging results
a certain amount and can include costly               on the ground.
outpatient care as well. Two years is a good
period of time for piloting the project, and five     To bring about sustainable improvements in the
years    is     appropriate    for    full-fledged    health status of their populations, both China
implementation. The household has to be the           and India are going to have to reduce their
minimum unit for entering the scheme to avoid         reliance on household financing and ensure that
adverse selection and the question of intra-          in future a large share of the health system's
household allocation of resources as much as          budget comes from the state and from
possible. The poor have to be fully exempt from       employers. Since the market often fails in the


                                                  160

                               Health System Issues, Challenges, and Options:
                                   Reflections on China, India, and Kerala

health sector, effective state action is essential to   medicines. The drug procurement and delivery
ensure efficiency. However, it is not enough to         system in India needs a thorough overhaul, and
solve financing issues alone; broader issues like       the country can learn from the experiences of the
human resources management and the structure            State of Tamil Nadu in this respect. As for the
and content of medical education may also need          State of Kerala, its past achievements are indeed
a fresh look.    Revising the current "essential        satisfying, but a lot more needs to be done in the
drug strategy" that takes into consideration the        future. As health and health care are integral to
changing epidemiological and demographic                the survival of the individual, inequities in
profile of the country (as has been done by             access to health care based on ability to pay or
WHO)     may     increase    access to essential        any other factor will undoubtedly affect the
                                                        health of the population and the development of
                                                        the nation itself.




                                                    161

                             Health System Issues, Challenges, and Options:
                                Reflections on China, India, and Kerala

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                                                 163

                                     Summary of the Discussion

                                             Peter Berman
                                 The World Bank and Harvard University

Following the presentation of the two papers,        operated health care system intended to provide
there was a wide-ranging discussion about the        universal coverage of a fairly comprehensive
two country cases � China and India � and the        package of benefits. However, as of today, there
broader issues that they raised.                     are few examples of such systems that have been
                                                     sustainable in developing countries.
The Importance of Providing Health Social
Security in Rapidly Industrializing Countries        The papers on India and China provided
                                                     different examples of the development and
The participants were in agreement that              subsequent decay of such systems. In China, the
providing health social security in rapidly          state initially succeeded in delivering services
industrializing countries is vital. The discussion   that achieved substantial and widespread health
examined      this  question     from   two   key    improvements.      However, since the Chinese
perspectives.    First, whatever approaches are      government      decided   to    embrace    market
taken by China and India to provide health care      economics on the advice of the Cato Institute, it
to their populations will have global economic       gradually began to limit the extent to which
ramifications.     Both countries are rapidly        these services were financed from the public
emerged economic powers that increasingly            budget even as health expenditures as a
compete with the more established industrialized     percentage of GDP increased and few health
countries.    The rising costs of health social      improvements were achieved.         Today, while
security in the more advanced countries are          most health care is still delivered by the
increasingly     threatening     their   economic    government, health facilities function largely as
competitiveness. Similarly, the ways chosen by       quasi-private entities and are largely financed by
newly industrializing nations to provide health      private, out-of-pocket spending. Joseph Wong
care will affect their ability to compete with the   noted that the Chinese may tolerate social
wealthier    economies     either   negatively  or   inequality if it is merit-based but not if it is
positively.                                          based on unfair economic policies.

Second, both India and China, by dint of their       In India, ambitious goals to develop a national
size and relatively low income levels, have          health service were set in the early years of the
major effects on global welfare outcomes in          independent state.     However, the state never
terms of both health and financial protection.       provided sufficient financing to develop these
The World Bank recently estimated that India's       services. Even in Kerala, which historically had
progress     in   achieving      the  Millennium     a strong state commitment and many early gains
Development Goals for health and poverty             in health indicators, economic realities have
reduction will largely determine the world's         undermined these ambitious goals. Today, the
success in achieving these goals. And as this        health care systems in India in general and in
session's featured papers made clear, there are      Kerala in particular are largely privately owned
currently high levels of household out-of-pocket     and   financed    by   household     out-of-pocket
spending on health in both countries, which is a     spending.
major cause of impoverishment.
                                                     The experience of both countries suggests that it
The Unsustainability of Past Efforts                 is difficult for state-oriented health care
                                                     strategies to succeed in liberal and pluralistic
Most countries in the developing world have          developing countries. Both China and India are
followed similar patterns in providing health        now having very significant problems providing
care to their populations.         The dominant      financial risk protection to their populations, as
international model has been of a national health    unexpected increases in health care expenses are
service � a tax-financed, government-owned and       emerging as one of the main causes of rising



                                                 164

                                      Summary of the Discussion


household impoverishment.         While China's      John Campbell and Joseph White raised
overall health achievement currently exceeds         questions about precisely what problem needed
India's,   both    countries   face    significant   to be solved � the problem of increasing access
challenges in maintaining health gains as well.      to care or providing effective financial risk
                                                     protection? The necessary strategy in each case
Ways Forward?                                        was likely to vary widely.          For example,
                                                     increasing access to care might require the

The discussion then focused on alternative ways      existence of a well-run basic health care service,

to provide health services and financial risk        whereas providing effective financial risk

protection and to ensure consumer satisfaction.      protection would require more sophisticated risk
                                                     pooling and purchasing systems.        But John

In   China,    the   government    has   recently    Campbell wondered whether a widespread or

recognized that there is an urgent need to           universal insurance system was even possible in

address the deterioration of the health system in    societies with such high levels of inequality?

terms of its ability to provide widespread
benefits.     However, the government also           Participants also noted the importance of the

increasingly accepts the realities of market         strategic decisions that are being taken today for

conditions.   William Hsiao noted that under         the future of health in these countries. Michael

these conditions in China health care inflation      Reich, Soonman Kwon, and others noted the

has exceeded economic growth by a wide               issues of "stickiness" and "path dependence."

margin. Shaoguang Wang noted that even the           Michael Reich expressed the opinion that it was

more affluent are struggling in the new system.      not possible to envisage going back to the pre-

This gives an impetus to the argument that the       reform ways of doing things. Naoki Ikegami

state should play a bigger role in raising           wondered if, once providers became accustomed

financing and regulating and guiding the health      to higher earnings, this could ever be reversed.

system, while making use of market-based             How the governments of China and India

mechanisms such as financial incentives to try to    balance the roles played by the state and the

improve outcomes. William Hsiao also noted           private sector in health is likely to have an

that local authorities have recently had some        impact far into the future. Shigeru Tanaka linked

success in providing care to rural populations at    this issue with how to ensure that a market-

very modest costs.                                   based system is fair and allows equality of
                                                     access to care. William Hsiao stressed the need

In India, the health system has not yet been seen    for a two-tier system in China, one based on

as a high priority for the state, and government     social insurance for urban areas and the other

funding for health care remains very limited.        based on community pre-payments for rural

Some Indians are now arguing for returning to a      areas.

model in which the state is responsible for health
social security, even though in urban areas of       One interesting issue was the difference between

India, there is a thriving and dynamic private       India and China in terms of the amount of

health sector that looks to international sources    political attention each government was giving

of technology and even patients. One strategy        to health sector issues.    What makes leaders

that is currently being developed, especially in     recognize a problem that needs their attention?

Kerala, is decentralization � giving greater         Is it easier for clear and effective strategies to

control to local authorities over government         emerge under more authoritarian regimes than

health care � as a way to increase its positive      under more democratic ones?

impact.




                                                  165

              Chapter 5: Summary and Interactions of the Key Points
                         Practical Issues in Priority Setting in Health Care

                                                 Wendy Edgar
                                      Ministry of Health, New Zealand


As   a    public    servant    working      for   the    that a simple list of services was not sufficient
Government in New Zealand, I am always                   because it was too black and white, it would
conscious that health funding is finite. The             rapidly    become     out   of   date   as    new
health sector in New Zealand receives a                  technologies and treatments developed, and it
defined annual allocation of funding and must            implied a guarantee of access to any listed
achieve the best possible outcomes from that             service regardless of a person's health need or
funding. Therefore, priorities must be set.              clinical ability to benefit.         The NHC
                                                         recommended that the government should

These brief remarks will focus on two aspects            develop "qualified lists" based on evidence of

of priority setting, with practical examples             clinical benefit rather than a simple list of core
                                                         services.
from New Zealand but with generic issues in
mind.     The two aspects are the resource               Although different from the original task set
allocation process and setting priorities on the         for the NHC, the government accepted the
delivery side.                                           committee's advice not to adopt a list approach
                                                         but instead to define or qualify the terms of
The Resource Allocation Process � "Core                  access to services that are already funded and
Services"                                                provided.    The NHC was given additional
                                                         funding of NZ$4 million over three years to
Some countries identify the services to be               work closely with clinicians and service
covered by health funding by drawing up a list           funders to define when services should be
of "core services." However, these countries             publicly funded - that is, in what clinical
usually fail to devise a priority list of services       circumstances     the    services    would     be
taken out of context of the clinical situation.          beneficial, who should receive the services
Even cosmetic surgery, seen as a low priority            first, and how long they should have to wait.
by many people, should be publicly funded in
certain clinical circumstances (for example, for         After the three-year pilot phase from 1993 to
people who have suffered severe facial                   1995, responsibility for developing guidelines
disfigurement). The state of Oregon is the best          was devolved to an independent organization,
known example of a jurisdiction that has taken           the New Zealand Guidelines Group, which
the list approach, but in Oregon, the list is            works     with   clinicians,  academics,    other
supported by guidelines that define clinical             experts, and consumers. The Group takes the
factors for access to the condition-treatment            cost-effectiveness of interventions into account
pairs in the list.                                       as well as their clinical effectiveness in
                                                         devising the guidelines.       The government
In   New     Zealand,      the   National    Health      continues to fund the development of the
Committee (NHC)143 advised the government                guidelines    a    decade    after   the    NHC
                                                         recommended this approach and advised
                                                         against a simple list of core services.
143The National Advisory Committee on Health and
Disability (NHC) was set up by the New Zealand           Two examples of New Zealand service
Government in 1992 to advise the government on the
health and disability services that are a high priority
for public funding. It is a highly credible body, made
up of leading health professionals, academics, and       charged to lead the discussion on setting health
representatives of communities and consumers,            priorities.


                                                      166

                             Practical Issues in Priority Setting in Health Care


guidelines follow.144                                    mildly raised blood pressure. Thus, the NHC's
                                                         original advice is still current today.

Guideline for the Management of Mildly                   Guideline on Population Screening for Prostate
Raised Blood Pressure                                    Cancer

Raised blood pressure has been regarded as a             The advent of the Prostate Specific Antigen
disease that must be treated. The guideline              (PSA) test has led to growing calls for a
recommends a different approach for mildly               national prostate cancer screening program,
raised blood pressure � that it should be                even for men without symptoms. However,
regarded as one of a number of risk factors for          the PSA test can result in false positives and
heart attack or stroke.     Making a decision            false negatives, requiring patients to undergo
about treatment would then require a doctor to           further examinations including biopsies to get
assess all risk factors and to estimate each             a definitive diagnosis. People without cancer
individual's total risk of stroke or myocardial          may be needlessly worried, and there are risks
infarction. The guidelines recommend taking              associated with the further examinations.
the same approach to decisions about how to
manage raised blood lipids.
                                                         The guideline clearly recommends further
The guideline contains a very simple risk chart          examinations for men with symptoms. It also
(see Figure 1). Doctors use the chart to discuss         acknowledges that prostate cancer remains an
treatment options with their patients, informed          important public health problem in New
by an understanding of the absolute five-year            Zealand.
risk of a cardiovascular event.
                                                         However, after weighing the risks and benefits
Younger patients with a low risk of such an              of a national screening program for men
event may choose to reduce their weight, get             without symptoms, the guideline states "there
more exercise, stop smoking, and reduce the              is still no conclusive evidence to demonstrate
amount of salt and fats in their diet in                 whether screening for prostate cancer reduces
preference      to   going     on     medication         mortality or morbidity, and there is significant
immediately.      This approach has obvious              potential for harm.        The National Health
benefits including involving patients in their           Committee      does     not   currently support
own wellness, limiting pharmaceutical use in             population-based screening for prostate cancer
clinically   appropriate   circumstances,      and       or opportunistic screening using PSA or digital
thereby reducing costs. The patient's condition          rectal examination for asymptomatic men in
is monitored regularly to assess whether the             New Zealand.       Men considering a PSA test
treatment decision needs to change.                      need to be fully informed of the potential risks
                                                         of prostate screening and be provided with
There was some controversy about this advice.            detailed information about its limitations, the
First published in 1992, the guideline was               possible diagnostic and treatment choices, and
revised in 1994 after some practitioners                 outcomes."145
expressed concern about the recommended
approach.     During the revision process, all           This advice is also controversial, and the
views were reviewed in a public process, and             National Health Committee has undertaken to
eventually the review panel confirmed the                review the guideline regularly in the light of
original advice to take a total risk approach to         any new evidence.


144A significant number of other guidelines have
been developed or adapted in New Zealand. These
are    accessible at   the    following   websites:
http://www.nhc.govt.nz and www.nzgg.org.nz.              145  National Health Committee, Prostate Cancer
                                                         Screening in New Zealand: Report to the Minister of
                                                         Health, NHC, Wellington, April 2004.



                                                    167

 Practical Issues in Priority Setting in Health Care


Figure 1: Risk Chart of Cardiovascular Event




                        168

                             Practical Issues in Priority Setting in Health Care


If a man insists on being tested for PSA despite              with beta blockers, replacing the pre-
questionable grounds, this is allowed but the                 guideline preference for ACE Inhibitors,
patient has to pay for the test. In the case of               and calcium channel blockers
some practitioners who are not convinced of              � Whether incentives are put in place to
the risks or harm of screening, compliance                    encourage primary care practices to adhere
with the guideline is an issue. However, there                to the guidelines (such as budget-holding
is a consumer pamphlet that gives clear                       for pharmaceuticals, where a primary care
information to patients, and with that and the                practice manages an annual allocation of
guideline for health professionals, an informed               funding for all pharmaceutical needs of the
discussion can take place between patient and                 patients in that practice, which has
doctor about the risks and benefits of PSA                    influenced doctors' prescribing patterns
testing.                                                      and made them give more consideration to

Status    of    Guidelines     and   Practitioner             cost-effectiveness).

Compliance                                               Priority Setting on the Delivery Side �
                                                         Increased Emphasis on Primary Care
Practice guidelines in New Zealand are advice,
not    protocols.      They    apply   in   usual        In New Zealand, hospital services are free but
circumstances and always require doctors to
use their clinical judgment about when and               patients are subject to substantial co-payments

how to apply them. They are not prescriptive             for primary care. This has prevented patients
and have no regulatory implications.                     from seeking care in the early stages of their
                                                         medical     conditions.     Instead,  this   has
However, doctors are increasingly seeing the             encouraged them to use the emergency
guidelines as an authoritative summary of                services of the local hospital (which are free to
clinical evidence to guide their treatment               them but are expensive to the government) or
decisions.    The level of confidence in the             to delay seeking treatment until they are much
evidence is clearly indicated. The New                   sicker, which often results in avoidable
Zealand     Guidelines   Group    provides     the       admissions to hospital.
guidelines either in hard copy or on a website
to any person free of charge.                            Since October 2003, the government has made
                                                         a conscious decision to substantially increase
The New Zealand experience suggests that the             funding for primary care. Its objectives are to:
extent to which doctors adhere to such
guidelines and comply with their advice
depends on the following factors:                        � Increase access to and the affordability of
                                                              primary care services
� The moral authority and reputation of the              � Ensure that people receive care as early as
     guideline developers, based on the strength              possible to reduce avoidable hospital
     of the evidence that they present in support             admissions
     of their guidelines                                 � Encourage        doctors  to  increase    their
� Whether there is anonymous peer review                      emphasis on wellness
     of prescribing and treatment decisions and          � Promote greater patient participation in
     whether formal discussion groups are                     their own wellness
     conducted for professionals in a practice to        � Improve health status indicators and close
     explore the reasons for treatment decisions              health status gaps or disparities between
� Whether research findings exist to back up                  population groups
     the guideline; for example in the case of           � Reduce disability associated with chronic
     the blood pressure guideline in New                      conditions and increase the independence
     Zealand, research on the effects if                      of disabled patients.
     guidelines indicated a change in doctors'
     prescribing   intentions   for   first   line       While the problems of affordability of primary
     treatment, towards increased use of low-            care and late access had been around for many
     dose diuretics, alone or in combination             years, the center-left government that was


                                                    169

                            Practical Issues in Priority Setting in Health Care


elected in 1999 made a number of "credit card           steadily through the mid- to late-1990s. By
pledges", which included substantial increases          early 2002, the country's level of overseas debt
of funding for primary care to increase access          had reduced significantly due to the growing
to health services.                                     strength of the New Zealand dollar. Budget
                                                        surpluses had increased as a result of higher
The economy in New Zealand improved                     rates of employment and higher tax revenues.
In simple terms, there was more money to                services and early care and to emphasize
spend.                                                  wellness education.     Their services include
                                                        diabetes awareness, nutrition education, retinal
The health sector is funded on a three-year             screening, foot care, and Pacific and Maori
basis but with annual increases in the total            support services, as well as the curative and
allocation to adjust for inflation and for              treatment services traditionally delivered by
demographic and technological changes. This             fee-for-service primary care teams (including
increase applies to all services. Health                GPs,     nurses,   physiotherapists, dieticians,
spending as a proportion of government                  pharmacists, and counsellors). This initiative
expenses is forecast to increase from 18.2 in           is a major change from the fee-for-service
2000/01 to 20 percent by 2005/06.                       payment model in which the majority of
                                                        patients were seen by a GP.
In response to the economic improvements of
the 1990s, the government decided to put                Specialists have expressed concern about the
substantial additional funding (from new                current adequacy of funding for secondary and
money) into primary care, as this level of              tertiary care. They have called for more of the
health care � the level used most often by most         new funding to be allocated to those areas.
people � was receiving a very limited share of          There has also been strong resistance to the
public funding by 1999.                                 changes from some primary care practitioners
                                                        who argue that their clinical autonomy is being
Since 2002, the majority of new funding has             infringed by the capitation payment method.
been spent on primary care.            A small          They also feel that funding increases should be
proportion of new funding has been allocated            used to address the significant under-funding
to other services (for example, to elective             of some aspects of primary care, such as the
surgery to reduce waiting times).           This        income levels of GPs and the business costs of
increased primary care funding has been                 private practice, rather than increasing the
provided in phases, targeted first to the very          subsidies for patients. Concern has also been
young, to older people, and people with the             raised about the competence of nurses and
highest health needs. Increased subsidies will          other members of the primary care team to
cover the whole population by 2007.                     deliver services instead of GPs.

Actual funding for other services has not               Participants in a national primary care
declined, but, with the deliberate allocation of        conference in 2002 were strongly critical of the
new funding to primary care, the proportion of          proposed changes. Three years later, in March
spending on primary care and on all other               2005, increasing levels of funding have been
services in total health funding has changed.           made available for primary care, which means
In 2003/04, 11.79 percent of health funding             that Primary Health Organizations are now in
was allocated to primary care.           By the         place around the country covering most of the
following year (2004/05), the percentage had            population (95 percent). Increasing numbers
increased to 12.93 percent.                             of practitioners are becoming convinced of the
                                                        value of the changes, although significant
Since 2002, Primary Health Organizations                issues still remain. An independent evaluation
(which are similar to primary care HMOs)                of the changes has reported that reducing fees
have been set up across the country funded on           has increased access to primary health care,
a capitation basis to provide preventive health         and GPs are reporting increased patient visits.


                                                   170

                            Practical Issues in Priority Setting in Health Care


Changing the responsibilities of the primary            Based on the New Zealand experience, the
care team has provided nurses with more                 following factors are needed if the exercise is
opportunities for skill development and more            to be successful:
varied career paths. However, the report also
says that high patient fees are still a concern,        � If increasing funding for one level or kind
with not all of the increased funding being                  of service does not require a reduction in
used to the benefit of patients as originally                funding for current services)
envisaged. There are challenges arising from            � If funders and providers have common
the differing sizes of the PHOs, in creating                 goals (for example, an agreed focus on
cooperation between PHOs, and in developing                  improving the health of the greatest
the capacity and skills of the PHO staff. Also,              number of the population and a willingness
the increase in the number of visits may be                  to balance the needs of individual
attributable to the worried well rather than by              patients),
patients with significant health needs.                 � If consumers are involved and understand
                                                             which services are more or less effective
This example gives a flavor of how difficult it              clinically
can be to change how resources are allocated            � If all relevant interests or viewpoints are
across different health services.      Had this              represented and there is an authoritative
rebalancing in New Zealand required a                        and credible mechanism for mediating
reduction in funding for some existing services              different points of view
to increase funding for others, it is likely that       � If there are organized public forums
there would have been even more dissent.                     available for ongoing discussions as
                                                             evidence, priorities, and trade-offs change.
Conclusion
                                                        There are no easy solutions, and goodwill is
Priority setting in health care within services         key.
and between services is a challenging task.




                                                   171

                                    Summary of the Discussion

                                            Michael Reich
                                          Harvard University

The final session of the International Seminar on   oriented social systems (such as the role that the
Reforming Health Social Security began with a       Cato Institute has played in China). In short,
presentation by Wendy Edgar on "Practical           ideas and values matter in the debate over health
Issues in Priority Setting in Health Care," in      system reform. The radical transformations in
which she reviewed the work of the New              the former socialist countries and many
Zealand Core Services Committee. Next, the          developing countries over the past 10 to 15
chairs of the seminar's four sessions presented     years, with the shift toward emphasizing the
the major lessons that had emerged from each        market rather than the state, illustrate how such
session.    William Hsiao focused on the            changes can occur. On the other hand, many
implications of the experience of introducing       rich countries (such as Canada) have protected
extra billing in Korea for the current policy       core values that are embedded in the institutions
debate now underway in Japan. Kotaro Tanaka         of the health system.    Rich countries, it was
presented the main points of the discussion         suggested, have not experienced the same
about long-term care, giving particular attention   transformation in values as has been witnessed
to issues of cost control and financing. Joseph     in the former socialist countries and developing
White spelled out the major issues that had         countries.    Caution, therefore, is needed in
arisen in the discussion about additional health    making generalizations based on the experiences
expenditures    in   Canada     and  the   United   of certain countries.
Kingdom, including the question of why so
much attention is paid to waiting times and what    The second theme for discussion was the
we want health systems and health expenditure       challenges involved in using technical analysis
to achieve. Finally, Peter Berman examined the      in policy debates about health system reform.
commonalities between the health system             The discussion began with the question of how
experiences of China and India, especially their    to interpret the Soonman Kwon's analysis of
similar origins, their shifts toward market-based   extra billing in Korea in the context of the
systems, and their governments' ability to deal     ongoing policy debate about this issue in Japan.
with the serious disparities that have arisen in    It was noted that the Korean analysis was only
those countries.                                    partial and did not include an assessment of the
                                                    impact of extra billing on health outcomes.
The participants then explored two major themes     Academic      analysis   often     has    various
that had emerged from the sessions: � first, the    unavoidable limitations due to a lack of
role of values played by health system reform       complete information or time or money
and, second, the challenges involved in making      constraints.   Many academics, therefore, are
technical analysis useful to policy debates.        reluctant to enter policy debates in case their
                                                    studies are misinterpreted or misused. It is often
The discussion about values and ideas in health     difficult to present the complexities and
system reform complemented the seminar's            subtleties   of  academic    studies   in  public
focus on the economic and political dimensions      discussions and political controversies. Other
of health social security.      It was noted that   academics, on the other hand, are willing to
specific ideas sometimes become dominant in         enter these public debates and use their studies
the policy debate, making them the conventional     (and the research of other scholars) to affect
wisdom and making it hard for alternative views     public thinking and policymaking.            This
to be heard. These dominant views and values        illustrates some of the challenges of "speaking
are often promoted by specific organizations or     truth to power" (in the words of political
interest groups, as has happened with the           scientist Aaron Wildavsky), especially in using
emphasis on freedom and choice and market-          the experiences of one country to shape social


                                                 172

                                       Summary of the Discussion


policy in another country.        The discussion    policymakers to understand and interpret their
concluded with a reminder that academic             findings. Thus, the discussion returned to the
researchers not only have an important role to      importance of values and ideas in shaping public
play in the pursuit of truth and the production of  policy about health systems and long-term care �
evidence through their research but they also       which was one of the major objectives of
have    an   important     obligation   to   help   holding this international seminar in Japan.




                                                 173

                          Appendix 1- Program
 International Seminar on Reforming Health Social Security

                                   Program




                                June 27-29, 2005


                          Keio University Mita Campus

                                   Tokyo, Japan


                                   Sponsored by

A Joint Grant from the Ministry of Education & Science, Japan, and Keio University


                                 Co-sponsored by

                                 The World Bank


                                   Supported by

                          The Asahi Shimbun Company

                           Japan Medical Association

                     Japanese Society of Clinical Economics

                 National Federation of Health Insurance Societies




                                       174

                                      Appendix 1 - Program



                                     Sunday, 26 June 2005




                                   Welcome Reception


                                     Time: 18:30 onwards




                                     Monday, June 27, 2005




9:00 � 9:30   Welcome, Introduction and Logistic Announcements

                      Professor Naoki Ikegami

                      Keio University




                                        Closed Sessions


Venue: Conference Room, 4th Floor, North Building



Session 1:    Choosing to Cover Comprehensive or Basic Medical Services under
Universal Social Health Insurance
                      Chairperson: Professor William Hsiao

                                  Harvard University


9:30 � 11:00  1st Paper: Should Providers Be Allowed to Extra-bill for Uncovered Services?

              Debate, Resolution, and the Future in Japan

                      Professor Naoki Ikegami

                      Keio University
                 2nd Paper: The Billing of Medical Services and the Financial Burden on Patients in

                 Korea

                      Professor Soonman Kwon

                      Seoul National University


11:00 � 11:15 Coffee Break


                                             175

                                       Appendix 1 - Program




11:15 � 12:45 Discussion


12:45 � 14:00 Lunch


Session 2:    Financing Long-term Care
                      Chairperson: Professor Kotaro Tanaka

                                  Yamaguchi Prefectural University


14:00 � 15:30 Financing Long-term Care: Lessons from 19 OECD Countries

                      Dr. Manfred Huber

                      Organization for Economic Co-operation and Development


              1st Paper: Long-term Care in Germany

                      Professor Heinz Rothgang

                      University of Applied Sciences in Fulda


                 2nd Paper: Sustaining Long-term Care Insurance in Japan and Beyond

                           Professor John C. Campbell

                      University of Michigan


15:30 � 15:45 Coffee Break


15:45 � 17:15 Discussion




Tuesday, June 28, 2005




Session 3:    Increasing Public Expenditures on Health Care
                      Chairperson: Professor Joseph White

                                  Case Western Reserve University


9:00 � 10:30  1st Paper: Increasing Investment in the UK-NHS: Some Policy Challenges

                      Professor Alan Maynard



                                               176

                                      Appendix 1 - Program



                      York University


                2nd Paper: Re-Casting Canadian Federalism: Health Care Financing in the New

                Century

                      Professor Joseph Wong

                      Toronto University


10:30 � 10:45 Coffee Break


10:45 � 12:15 Discussion


12:15 � 13:15 Lunch


Session 4:    Social Security in Rapidly Industrializing Nations
                      Chairperson: Professor Peter Berman

                                  The World Bank and Harvard University


13:15 � 14:45   1st Paper: State Extractive Capacity, Policy Orientation, and Inequity in the

                          Financing and Delivery of Health Care in Urban China

                      Professor Shaoguang Wang

                      Chinese University of Hong Kong


                2nd Paper: Health System Issues, Challenges, and Options: Reflections on China,

                India, and Kerala

                      Professor Kottilil Mohandas

                      Sree Chitra Tirunal Institute for Medical Sciences and Technology


14:45 � 15:00 Coffee Break


15:00 � 16:30 Discussion


16:45 � 17:15 Campus Walk




                                               177

                                       Appendix 1 - Program



                                   Wednesday, June 29, 2005


Session 5:    Summary and Interactions of the Key Points
                      Chairperson: Professor Michael R. Reich

                                   Harvard University


9:00 � 9:10   Practical Issues in Priority Setting in Health Care

                      Ms. Wendy Edgar

                      Past-president, Society on Priorities in Health Care,

                           Ministry of Health, New Zealand


9:10 � 10:15 Summary of the Key Discussion Points from Each Session by the Four Chairs

                      Professor William Hsiao

                      Harvard University


                      Professor Kotaro Tanaka

                      Yamaguchi Prefectural University


                      Professor Joseph White

                      Case Western Reserve University


                      Professor Peter Berman

                      The World Bank and Harvard University


10:15 � 10:30 Coffee Break


10:30 � 12:00 Interrelationship among the Topics of the Four Sessions


12:00 � 13:00 Lunch


13:00 � 13:30 Meeting with Translators

              (Chairs and Speakers of the Open Symposium)




                                                178

                                     Appendix 1 - Program



                                     Open Symposium


Venue: Conference Hall 518, Ground Floor, West Building

                                     Time: 13:30 � 16:45




                Co-chairpersons: Honorable Keizo Takemi

                             Member, House of Councillors

                                              and

                             Professor John C. Campbell

                             University of Michigan




13:30 � 13:40 Opening Greeting

                      Director Aftab Seth

                      Global Security Research Institute, Keio University


13:40 � 13:55 Fundamental Issues in Health Social Security

                      Professor William Hsiao

                      Harvard University


13:55 � 14:10 Billing of Medical Services and the Financial Burden on Patients in Korea

                      Professor Soonman Kwon

                      Seoul National University




14:10 � 14:25 Long-term Care in Germany

                      Professor Heinz Rothgang

                      University of Applied Sciences in Fulda


14:25 � 14:40 Federalism and Health Care Financing in Canada

                      Professor Joseph Wong

                      Toronto University




                                              179

                                       Appendix 1 - Program



14:40 � 14:55 Inequity in the Financing and Delivery of Health Care in Urban China

                       Professor Shaoguang Wang

                       Chinese University of Hong Kong


14:55 � 15:10 Break


15:10 � 15:25 Summary of the Discussions in the Closed Session

                       Professor Naoki Ikegami

                       Keio University


15:25 � 16:40 Questions and Answers from the Floor

               Panelists: Professor William Hsiao

                       Professor Naoki Ikegami

                           Professor Soonman Kwon

                           Professor Heinz Rothgang

                           Professor Shaoguang Wang

                           Professor Joseph Wong


16:40 � 16:45 Summary

                       Honorable Keizo Takemi

                       Professor John C. Campbell




Farewell Reception


Time: 17:30 onwards




                                               180

                            Appendix 2-Biographies of Participants
                                      (in Alphabetical Order)


Berman, Peter                                       He has also served in administrative posts at the
                                                    Social Science Research Council and as
Peter Berman (MSc, PhD) is a health economist       Secretary-Treasurer of the Association for Asian
and has been co-director of the Flagship            Studies.
Program Core Course on Health Sector Reform
and Sustainable Financing run jointly by            Chan, Chee Khoon
Harvard University and the World Bank
Institute. He also co-directs Harvard's course on
"Private   Sector   Health    Care:  Developing     Chee Khoon Chan is an Associate Professor in

Successful Policies and Programs." He joined        the Development Studies Program of the School

the World Bank's New Delhi office as Lead           of Social Sciences at the Universiti Sains

Economist for Health, Nutrition, and Population     Malaysia. He graduated from the Massachusetts

in July 2004 on leave from the Harvard School       Institute of Technology with Bachelor and

of Public Health, where he was Professor of         Master's degrees in life sciences and has a

Population and International Health Economics       Doctor of Science degree in epidemiology from

and Director of International Health Systems.       Harvard University. His research publications in

His areas of expertise include analyzing the        cancer epidemiology, eugenics and bioethics,

performance of health systems and the design of     health care financing policy, and environmental

reform strategies; assessing the supply side of     health and development have appeared in

health care delivery and the role of private        international and local journals such as Cancer

health care provision in health systems and         Causes and Control, the Lancet, and the

developing strategies to improve outcomes           International Journal of Health Services. Dr.

through public-private sector collaboration; and    Chan has served as a consultant and technical

using national health accounts as a policy and      adviser to several international and domestic

planning tool.   Among his five authored/co-        institutions including the World Bank and the

edited books include Getting Health Reform          Malaysian Institute of Economic Research. He

Right: A Guide to Improving Performance and         was a founding member of the Penang Cancer

Equity (Roberts et al, Oxford University Press,     Registry and a co-founder and coordinator of the

2003).                                              Citizens' Health Initiative, which drafted A
                                                    Citizens' Health Manifesto for Malaysia. His

Campbell, John Creighton.                           current research interests include emerging and
                                                    re-emerging infectious diseases, policy issues in

John Campbell is Professor of Political Science     science and technology, the environment and

at the Department of Political Science at the       development, and health care financing policy in

University of Michigan where he has taught          Malaysia.

since 1973.      His BA and PhD are from
Columbia University.         He specializes in      Conrad, Harald
Japanese    politics   in     general   and    in
organizational   decision-making     and   social   Harald Conrad is a Research Fellow at the
policy.    He is the author of several books        German Institute for Japanese Studies and is
including   Contemporary      Japanese    Budget    based in Tokyo. His main areas of research are
Politics, How Policies Change: The Japanese         Japanese social and labor market policies,
Government and the Aging Society (University        human resource management, and products and
of California Press, 1977) and The Art of           services for senior citizens.       His recent
Balance in Health Policy: Maintaining Japan's       publications include the book The Japanese
Egalitarian, Low-cost System (co-author with        Social Security System in Transition - An
Naoki Ikegami, Cambridge University Press,          Evaluation    of    Recent   Pension    Reforms
1998).    These books and many of his other         (Ersheinungsjahr, 2001) and the co-edited
writings have also been published in Japanese.      volume Aging and Social Policies - A German-



                                                 181

                                Appendix 2 - Biographies of Participants


Japanese     Comparison (Iudicium         Verlag,   services     financing   and    between    health
2003). After working for three years in the book    expenditure and general public expenditure
industry, Dr. Conrad studied Economics and          management. Her work outside the Bank has
Marketing at the University of Cologne,             included       secondments   to   the    England
Hitotsubashi University (Tokyo), and Keio           Department of Health in England and to the
University (Tokyo).      He holds a PhD in          United Kingdom Treasury to work on financing
Economics from Cologne University, which            and system reform in health and social services
awarded him the Erhardt-Imelmann-Award 2001         during two of the current UK Government's
for outstanding scientific research. Dr. Conrad     medium-term spending reviews. She also spent
has teaching assignments in Japanese and            12 years in the New Zealand civil service, part
business studies at Bonn University, Munich         of the time as an economist at the Treasury. Ms.
University, and Sophia University (Tokyo).          Hawkins is a graduate in economics and public
                                                    policy of the Woodrow Wilson School of Public
Edgar, Wendy                                        and International Affairs at Princeton University
                                                    (USA) and of Otago University (New Zealand).

Wendy Edgar has a BA in English and
Education, an MA in early childhood education,
and a Diploma in Health Economics. Her career       Hsiao, William

has included five years working in curriculum
development in Canberra, Australia, five years
in the Select Committee Office of the New           William Hsiao is the K.T. Li Professor of

Zealand Parliament (dealing with a wide range       Economics at the Harvard School of Public

of policy issues including disarmament and arms     Health and directs the Program in Healthcare

control, employment equity, and the quality of      Financing. He received his PhD in Economics

teaching), and 15 years in health policy and        from Harvard University.          Prior to his

management.      From 1992 to 1999, she was         appointment at Harvard, Dr. Hsiao was the

Program Director      for the     Core Services     Deputy Chief Actuary of the US government. He

Committee established by the New Zealand            has advised many governments and international

Government. Ms Edgar's most recent positions        organizations on health sector reforms, including

have included being a Health Advisor in the         giving policy advice to three US presidents and

Office of the Minister of Health, leading policy    to the US Congress on the planning of national

work on the funding of long-term care for older     health insurance, the payment of physicians,

people in New Zealand, and Senior Advisor           social security, and pension reforms. His current

International with the responsibility for policy    research focuses on finding a viable and

work to support New Zealand's commitments in        sustainable model for funding and delivering

International Health. She is a Founder Member       basic health care to farmers in poor and low-

and the Immediate Past Chairperson (2000-           income nations.      He has won many awards,

2003) of the International Society on Priorities    including honorary professorships by the leading

in Health Care, which was established in            Chinese universities. Dr. Hsiao is the author of

Stockholm in 1996.                                  more than 150 papers and several books.


                                                    Huber, Manfred
Hawkins, Loraine

                                                    Manfred Huber is a senior economist (Principal

Loraine Hawkins is a Lead Health Specialist in      Administrator) in the Health Division within the

the East Asia and Pacific Human Development         Directorate for Employment, Labor, and Social

Unit of the World Bank and is currently the         Affairs of the Organization for Economic Co-

Human Development Sector Coordinator for the        operation and Development (OECD).          He is

World Bank's program in the Philippines. Much       currently in charge of work on long-term care

of her work experience, both inside and outside     policy and data and on output and price

the Bank, has focused on the interface among        measurement in health care. Prior to this, he led

health systems, other social insurance, and social  a team in charge of health indicators. Among
                                                    the regular outputs of this work were two of


                                                 182

                                Appendix 2 - Biographies of Participants


OECD's flagship publications: OECD Health            at the Keio School of Medicine, from which he
Data and Health at a Glance. Dr. Huber is the        received his MD and PhD. He also received a
author of the OECD manual A System of Health         Master of Arts degree in health services studies
Accounts    and    has    provided     advice   to   with Distinction from Leeds University (United
administrations in numerous countries on how to      Kingdom). During 1990-1991, he was a visiting
improve health information systems. Among his        professor at the University of Pennsylvania's
other research interests are macro-economic          Wharton School and Medical School and has
simulations   for   health   care    reform    and   continued to be a Senior Fellow at Wharton. He
international comparisons. He graduated from         is a board member of interRAI (a non-profit
the University of Munich with a Master of            international consortium of researchers and
Science in Mathematics. He was a Lecturer and        clinicians focused on care planning instruments)
Research Assistant in economic statistics at the     and has sat on various national and state
University of Munich where he received a PhD         government committees.          His publications
in Economics.                                        include The Art of Balance in Health Policy -
                                                     Maintaining     Japan's    Low-cost    Egalitarian
Iguchi, Naoki                                        System (Cambridge University Press, 1998) with
                                                     John C. Campbell and Measuring the Quality of
Naoki Iguchi has been Director General for           Long-term Care in Institutional and Community
Policy Planning and Evaluation (in charge of         Settings (OECD, 2002) with John Hirdes and
Health and Welfare) at the Ministry of Health,       Iain Carpenter.
Labor, and Welfare since 2004. He previously
served as director of divisions of the Ministry of    Kwon, Soonman
Health, Labor, and Welfare, as Councilor at the
Cabinet Office, Councilor for the MHLW                Soonman Kwon has worked at the Seoul
Minister, and Assistant Minister. His areas of        National University, South Korea since 1997
expertise  include    aging,   pensions,     social   where he is currently the Chair of the
insurance, and policy planning. Mr. Iguchi            Department of Health Policy and Management
graduated from the Faculty of Economy at              at the School of Public Health. He received his
Tokyo University in 1974.                             PhD from the Wharton School of the University
                                                      of Pennsylvania and was Assistant Professor of
Ii, Masako                                            Public Policy at the University of Southern
                                                      California. Professor Kwon has held visiting
Masako Ii, PhD, is a professor in the Asian           positions at the Harvard School of Public Health
Public    Policy   Program      at    Hitotsubashi    (Takemi Fellow), London School of Economics
University. She received her bachelor's degree        and Political Science, University of Duisburg
from International Christian University in Tokyo      (Germany), University of Trier (Germany),
and her PhD in Economics from the University          University    of  Bremen     (Germany),     Hosei
of Wisconsin, Madison.       She worked in the        University (Japan), and the Danish National
Population and Human Resources Department at          Institute of Social Research. He has served on
the World Bank in Washington DC and in the            numerous government health policy committees
Ministry of Planning, the Ministry of Health,         in Korea. Dr. Kwon's main areas of interest are
and the National Institute of Statistics in La Paz,   health economics and finance, pharmaceuticals,
Bolivia. She was also a visiting scholar in the       comparative health policy and the welfare state,
Faculty of Economics at the University of the         and aging and long-term care. He has published
Philippines and an associate professor at             numerous articles in international journals.
Yokohama National University. She is currently
a member of the Medical Care Insurance                Maynard, Alan
Meeting of the Social Security Council.
                                                      Alan Maynard is Professor of Health Economics
Ikegami, Naoki                                        and Director of the York Health Policy Group in
                                                      the Department of Health Sciences, University
Naoki Ikegami is Professor and Chair of the           of York. He is also an Honorary Professor of
Department of Health Policy and Management            Health    Economics    at   the   University   of
                                                      Aberdeen, Visiting Professor at the London


                                                   183

                                 Appendix 2 - Biographies of Participants


School of Economics, and Adjunct Professor at        Omori, Koichi
the Centre for Health Economics Research and
Evaluation, University of Technology, Sydney,        Koichi Omori is Communications Officer at the
Australia.   He was Founding Director of the         World Bank's Tokyo Office.             His main
Centre for Health Economics at the University        responsibilities include building partnerships
of York (1983-95) and Founding Editor of the         with civil society organizations and the private
journal Health Economics. He has worked as a         sector in Japan. He also serves as the Bank's
consultant for the World Health Organization,        liaison with those groups in the areas of the
the European Union, the World Bank, and the          environment,        social  development,      and
UK Government's Department for International         rural/agricultural development. Prior to joining
Development.       Dr. Maynard has published         the World Bank, he was Chair Research
widely in books, specialist journals, and the        Associate and Assistant to the Director of
media. His most recent publication is Public-        International Research Center for Environment
Private Mix for Health Care: Plus �a Change,         and Development at Ritsumeikan University in
Plus C'est le M�me Chose (Radcliffe Publishing       Kyoto, Japan.
for the Nuffield Trust, 2005). He has been Chair
of the York NHS Health Services Trust since          Reich, Michael R.
1997     and   has    been   involved   in   NHS
management since 1983.                               Michael R. Reich is Taro Takemi Professor of
                                                     International Health and Director of the Takemi
Mohandas, Kottilil                                   Program in International Health at the Harvard
                                                     School of Public Health. He has written widely
Kottilil Mohandas is Director (Academic Head         on international health policy and politics,
and Chief Executive Officer) of Sree Chitra          including       various   aspects    of     global
Tirunal Institute for Medical Sciences and           pharmaceutical policy. His recent books include
Technology in Kerala, India. He was formerly         Public-Private Partnerships for Public Health
Professor and Head of the Department of              (editor, distributed by Harvard University Press,
Anesthesiology and Dean of the Institute. After      2002); Getting Health Reform Right (co-author
he assumed the Director's position in 1994, the      with M.J. Roberts, W. Hsiao, and P. Berman,
Institute initiatives and achievements included      Oxford University Press, 2004); and Wounds of
starting India's first school of public health and   War (co-author with J.M. Lamb and M. Levy,
first MPH program, developing innovative, cost-      distributed by Harvard University Press, 2004).
effective comprehensive care programs for            He recently served as Director of the Harvard
epilepsy, coronary heart disease, and movement       Center for Population and Development Studies.
disorders, winning the National Technology           From August 1 2005, he will be a visiting
Award, and getting ISO accreditation for the first   scholar at the National Institute of Public Health
laboratory for testing and evaluating medical        in Cuernavaca, Mexico. He received his PhD in
devices in India.      Professor Mohandas is a       Political Science from Yale University in 1981
member of the editorial board of several             and his MA in East Asian Studies and BA in
professional journals and of the Board of            Molecular Biophysics and Biochemistry also
Governors of several science and technology          from Yale University.
institutions and advisory bodies of university-
level institutions. He is the immediate past         Rothgang, Heinz
President    of   the    Association   of   Indian
Universities (established in 1925) and is            Heinz Rothgang is Professor for Health
currently the Chairperson of the Association of      Economics at the University of Applied Sciences
Commonwealth Universities (established in            in Fulda, Germany. He is also a fellow at the
1913), with a current membership of over 500         Center for Social Policy Research and principle
universities   from     the  37   Commonwealth       researcher at the Research Center on the
countries.                                           Transformation of the State at the University of
                                                     Bremen.      He holds a diploma and a PhD in
                                                     Economics from the University of Cologne. Dr.
                                                     Rothgang has authored several reports for
                                                     federal and state departments and parliaments in


                                                  184

                                Appendix 2 - Biographies of Participants


Germany, the EU, and Germany's Supreme              Japanese include "Increases in Medical Costs
Court.    His recent publications in English        Resulting from an Aging Population and Issues
include "The Changing Role of the State in          in Health Care Policy" in Health Security and
OECD Health Care Systems (co-author with M.         Health Care Costs by Iryou Hoshou To Iryouhi
Cacace, S. Grimmeisen, and C. Wendt) in             (University of Tokyo Press, 1996).
European Review, Vol. 13, No. 1, 2005; "Future
Long-term Care Expenditure in Germany, Spain,       Takemi, Keizo
Italy, and the United Kingdom" (co-author with
A. Comas-Herrera, R. Wittenberg, J. Costa-Font,     Keizo Takemi is a member of the House of
C. Gori, A. Maio, C. Patxot, L. Pickard, and A.     Councilors for the Liberal Democratic Party
Pozzi) in Aging and Society, forthcoming;           (LDP) in Japan. He is serving his second term
"Projections   on     Public  Long-term      Care   as Executive Member of the Committee on
Insurance Financing" in Aging and Social Policy     Health, Welfare, and Labor, as Member of the
- A German-Japanese Comparison edited by H.         Committee on Audits, as Executive Member of
Conrad and R. L�tzeler, Munich: Iudicum, 251-       the Joint Meeting of Both Houses on the Reform
273.                                                of Pension and Other Social Security Systems,
                                                    and as Executive Member of the Research
Shimada, Haruo                                      Commission on the Constitution.         He was
                                                    appointed as State Secretary for Foreign Affairs
Haruo Shimada, Professor of Economics at Keio       during his first term. In the LDP, he serves as
University, is one of the most active and           Deputy      Chairman    of  the  Medical   Care
outspoken economists in Japan. He is a Special      Committee of the Research Commission on
Adviser to the Cabinet Officer and chairman of      Social Security System and as Deputy Chairman
the Economic Research Center at the Fujitsu         of the Research Commission on Foreign Affairs.
Research Institute.    He is a member of the        He received his undergraduate and graduate
National Tax Commission, the Fiscal System          degrees from the Faculty of Law, Keio
Council, the Japan Investment Council, the          University. In 1980, he started teaching at the
Industrial Structure Council, and several other     School of Political Science and Economics,
committees and academic associations.         Dr.   Tokai University, where he became a professor
Shimada is the author of numerous books on the      in 1995. He has also been a visiting scholar at
Japanese    economy     and   on     international  Harvard University.
management and labor problems. His expertise
is in labor economics and industrial relations,     Tanaka, Kotaro
international   management,     and     economic
policies.   He has published many books and         Kotaro Tanaka is Professor of Social Policy in
articles in his profession and has also written     the Faculty of Social Work at Yamaguchi
many commentaries and essays for newspapers         Prefectural University. After graduating from
and popular magazines. He appears frequently        the Faculty of Law at Kyoto University, he
on TV programs both in Japan and abroad,            entered the Ministry of Health and Welfare in
including CNN, NBC, ABC, CBS, and the BBC.          1974 where his areas of responsibility included
                                                    pharmaceutical affairs and medical economy
Takagi, Yasuo                                       before beginning his career at the Prefectural
                                                    University in 1995. His major field of research
Yasuo     Takagi   is   Professor     of   Health   is the comparison of the social security systems
Management at the Graduate School of Health         of Japan and Germany, focusing on health care,
Management at Keio University.         He joined    long-term care, and the pension systems. His
Keio University in April 2005 after serving as a    publications     include  Financing   Increasing
professor in various other schools, including the   Medical Expenditures and Allocation of Specific
Faculty   of   Medical    Sciences   at   Kyushu    Risks in Health Insurance (Duncker and
University.   Earlier, he served as Director of     Humblot, Berlin, 2000) with von Maydell et al,
Research     and   Statistics  at    the   Social   Solidaritaet     und  der  Wettbewerb    in  der
Development     Research    Institute.  Professor   Gesetzlichen               Krankenversicherung
Takagi's research centers on health care            (Luchterhand, 2002) in German with Winfried
financing and long-term care. His writings in       Boecken et al, and Introduction to Social


                                                 185

                                Appendix 2 - Biographies of Participants


Security (Yuhikaku, 2001) in Japanese with          East Asian countries.
Mukuno.
                                                    White, Joseph
Tanaka, Shigeru
                                                    Joseph White is Luxenberg Family Professor of
Shigeru Tanaka is Professor and Associate Dean      Public Policy, Director of the Center for Policy
of    the   Graduate     School    of   Business    Studies, and chair of the Department of Political
Administration at Keio University. His major        Science at Case Western Reserve University in
area of interest is health policy including long-   Cleveland, Ohio. He received an AB from the
term care from the viewpoint of economics. He       University of Chicago and an MA and PhD from
graduated from the Master's and PhD courses at      the University of California, Berkeley, all in
the Department of Commerce at Keio University       Political Science. Before coming to Case, he
where he specialized in econometrics. He also       was Associate Professor of Health Systems
received a Master of Management degree from         Management at Tulane University School of
the   Graduate    School   of   Management     at   Public Health and Tropical Medicine, and before
Northwestern    University   (USA).       He   is   that, he was first Research Associate and then
Chairman of the Board of the Japan Society for      Senior Fellow in Governmental Studies at The
Long-term Care Business Management and is a         Brookings Institution in Washington DC. Dr.
member of the boards of several academic            White's research has focused on American
societies in Japan.    He has also sat on and       federal budget politics and policies, health care
chaired various national government committees      finance policy and politics, and the "reform" of
organized by the Ministry of Health, Labor, and     Social Security and Medicare. Among his books
Welfare and the Ministry of Economy, Trade,         are False Alarm: Why the Greatest Threat to
and Industry. His publications include "Health      Social Security and Medicare is the Campaign
Promotion in the Workplace" (in Keio Business       to `Save' Them, (Johns Hopkins University
Forum, Vol.21, No.1, 2004), "Long-term Care in      Press,    2001     and 2003),   and    Competing
an Aged Society and the New Era of a Welfare        Solutions: American Health Care Proposals and
Country" (Keio Business Review, Vol.16, No.1,       International Experience (Brookings, 1995).
1999), "Retire and Don't Worry about It" in
Japan's Health System (Faulkner and Gray,           Wong, Joseph
1993) and "The Japanese Health System" in
Advances in Health Economics and Health             Joseph Wong received his PhD in political
Services Research (JAI Press Inc., 1990).           science from the University of Wisconsin-
                                                    Madison in 2001. Before joining the faculty at
Wang, Shaoguang                                     the University of Toronto, Wong was a visiting
                                                    associate in research at the Fairbank Center at
Shaoguang Wang is professor of political            Harvard University (1999-2001). He has also
science at the Chinese University of Hong Kong      been a visiting fellow at the Institute for
and is the chief editor of the China Review, an     National Policy Research in Taipei and the
interdisciplinary journal dealing with greater      Graduate School of Public Administration at the
China.    He studied for his LLB at Peking          Seoul National University. Wong most recently
University and his PhD at Cornell University.       finished a collaborative project on welfare states
He taught at Tijiao High School in Wuhan from       in East Asia with the United Nations Research
1972 to 1977 and at Yale University from 1990       Institute for Social Development. Wong has
to 2000.    He has authored, co-authored, and       published widely (in the journals Comparative
edited 19 books in Chinese and English. In          Political Studies, International Political Science
addition, he has contributed to numerous edited     Review, Studies in Comparative International
volumes and journals.     His research interests    Development, the Journal of East Asian Studies,
include political economy, comparative politics,    Pacific Affairs, and Nature Biotechnology
fiscal politics, democratization, and economic      among others) and, most notably, he is the
and political development in former socialist and   author of Healthy Democracies: Welfare Politics


                                                 186

                                 Appendix 2 - Biographies of Participants


in Taiwan and South Korea (Cornell University        including Director of the International Division
Press, 2004). From 2005, Professor Wong will         (1991) and Director of the International Banking
be the Book Review Editor for the journal            Division. He has held a number of overseas
Governance.                                          positions, including First Secretary at the
                                                     Japanese Embassy in Cairo and Second
Yoshimura, Yukio                                     Secretary at the Japanese Embassy in London.
                                                     Mr. Yoshimura is the author of many articles on
Yukio Yoshimura has been Vice President and          the issue of international finance, including
Special Representative for Japan at the World        "Lessons from the Asian Crisis for the
Bank since 2002.      He was previously Senior       International Financial System" in The Asian
Advisor to the President of the World Bank           Financial Crisis: Origins, Implications, and
(2001-2002) and Executive Director for Japan at      Solutions (Federal Reserve Bank of Chicago and
the International Monetary Fund (1997-2001),         the International Monetary Fund,1999).
and held various important positions in Japanese
Ministry of Finance's International Bureau,

                                       Secretariat's Biography

Shinoda�Tagawa, Tomoko
                                                     Management at the HSPH, she collaborated with
Tomoko Shinoda-Tagawa is an Instructor in            the Division of Health Care Quality of the
Medicine and Health Policy in the Department of      Massachusetts Department of Public Health to
Health Policy and Management at the Keio             improve the quality of care in nursing homes by
School of Medicine. She received an MD from          analyzing incident data from Massachusetts
Hokkaido University, an MPH from Harvard             nursing homes.      Now working in a Japanese
School of Public Health, and a PhD from Osaka        hospital as an internist and endocrinologist, she
University. When she was a Research Associate        is seeking a way of evaluating the impact that
in the Department of Health Policy and               long-term care insurance has on the quality of
                                                     care in the health care setting.




                                      Transcribers' Biographies

Kodate, Naonori                                      Tomita, Naoko

Mr. Kodate is currently a researcher at the          Naoko Tomita is a PhD candidate in Public
Political Science Division of the Faculty of Law     Health and Policy at the London School of
at the University of Tokyo majoring in European      Hygiene and Tropical Medicine, University of
and comparative politics. In 2002, he joined the     London. She is also a visiting research associate
MRes/PhD course in Political Science at the          at the Department of Health Policy and
London School of Economics and taught senior         Management at the School of Medicine of Keio
undergraduate tutorials on the politics of the       University. Her current research focuses on the
European Union and comparative executive             policymaking process in the separation of
government in advanced industrial countries. In      prescribing and dispensing in Japan and South
2004, he was granted PhD candidacy status and        Korea. Her other research interests include the
is now undertaking a comparative analysis of         politics of health policy and pharmaceutical
British and Japanese health policies and politics    policy and comparative health policy. Ms.
in the light of hospital reconfigurations.           Tomita received an MA and a BA in Political
                                                     Science from Kobe University.



                                                  187

                         Appendix 3 - Addresses of Participants
                                  (in Alphabetical Order)


Berman, Peter                                  Hawkins, Loraine
E-mail: pberman@worldbank.org                  E-mail: lhawkins@worldbank.org
Address: c/o World Bank                        Address: EASHD
70 Lodi Estate                                 World Bank Office of Manila
New Delhi, 110003                              The Taipan Place
India                                          F. Ortigas Jr. Avenue
                                               Ortigas Center
Campbell, John Creighton                       Pasig City 1605
E-mail: jccamp@umich.edu                       Philippines
Address: Department of Political Science
University of Michigan                         Hsiao, William
7725 Haven Hall                                E-mail: hsiao@hsph.harvard.edu
505 S. State Street                            Address: Department of Health Policy and
Ann Arbor                                      Management
MI 48109-1045                                  Program in Health Care Financing
USA                                            Harvard School of Public Health
                                               4th Floor
Chan, Chee Khoon                               124 Mt. Auburn
E-mail: ckchan50@yahoo.com                     Cambridge
Address: Development Studies Program           MA 02138
Universiti Sains Malaysia                      USA
11800 Penang
Malaysia                                       Huber, Manfred
                                               Email: huber@euro.centre.org
Conrad, Harald                                 Address:     European    Centre    for    Social
E-mail: conrad@dijtokyo.org                    Welfare Policy and Research
Address: German Institute for Japanese         Berggasse 17
Studies                                        A-1090 Wien
3-3-6 Kudan-Minami                             (Dr. Huber has moved from the Organization for
Chiyoda-ku                                     Economic Co-operation and Development to the

Tokyo 102-0074                                 European Center for Social Welfare Policy and
                                               Research.)
Japan
                                               Iguchi, Naoki
Edgar, Wendy                                   Email: iguchi@npfa.or.jp
E-mail: wendy_edgar@moh.govt.nz                Address: National Pension Fund Association
Address: Sector Policy Directorate             5F Sumitomo-Mitsui Banking Roppongi
Ministry of Health                             Building
P.O. Box 5013                                          1-21 Roppongi 6-chome
Wellington                                             Minato-ku, Tokyo 105-0032
New Zealand                                            Japan
                                               (Mr. Iguchi has moved from the Ministry of Health,
                                               Labor and Welfare to the National Pension Fund
                                               Association.)



                                           188

                               Appendix 3 � Addresses of Participants


Ii, Masako                                         Omori, Koichi
E-mail: masako-ii@ics.hit-u.ac.jp                  E-mail: komori@worldbank.org
Address: Hitotsubashi University                   Address: World Bank Tokyo Office
2-1-2 Hitotsubashi                                 10F Fukoku Seimei Bldg.
Chiyoda-ku                                         2-2-2 Uchisaiwai-cho
Tokyo 101-8439                                     Chiyoda-ku
Japan                                              Tokyo 100-0011
                                                   Japan
Ikegami, Naoki
Email: ikegami@sc.itc.keio.ac.jp                   Reich, Michael R.
Address: Department of Health Policy and           E-mail: reich@hsph.harvard.edu
Management                                         Address: Department of Population and
School of Medicine                                 International Health
Keio University                                    Center for Population and Development
35 Shinanomachi                                    Studies
Shinjuku-ku                                        Harvard School of Public Health
Tokyo 160-8582                                     9 Bow Street
Japan                                              Cambridge
                                                   MA 02138
Kwon, Soonman                                      USA
E-mail: kwons@snu.ac.kr
Home Page: http://plaza.snu.ac.kr/~kwons           Rothgang, Heinz
Address: School of Public Health                   E-mail: rothgang@zes.uni-bremen.de
Seoul National University                          Address: Zentrum F�r Sozialpolitik
29 Yonkon-dong                                     Universit�t Bremen
Chongno-gu                                         Parkallee 39
Seoul 110-799                                      28209 Bremen
South Korea                                        Germany

Maynard, Alan                                      Shimada, Haruo
E-mail: akm3@york.ac.uk                            E-mail: haruo@shimada-lab.info
Address: Department of Health Sciences             Address: Faculty of Economics
University of York                                 Keio University
York Y010 5DD                                      2-15-45 Mita
England                                            Minato-ku
                                                   Tokyo 108-8345
Mohandas, Kottilil                                 Japan
E-mail: director@sctimst.ac.in
Address: Sree Chitra Tirunal Institute for         Takagi, Yasuo
Medical Sciences and Technology                    E-mail: takagi@sfc.keio.ac.jp
Thiruvananthapuram                                 Address:      Graduate  School  of Health
Kerala-695011                                      Management
India                                              Keio University
                                                   4411 Endou
                                                   Fujisawa-City, Kanagawa 252-8530
                                                   Japan



                                              189

                             Appendix 3 � Addresses of Participants


Takemi, Keizo                                    Wang, Shaoguang
E-mail: keizo_takemi@sangiin.go.jp               E-mail: wangshaoguang@cuhk.edu.hk
Address: 521 Members Office Bldg. of the         Address: Department of Government and
House of Councilors                              Public Administration
Yokohama 223-8523                                The Chinese University of Hong Kong
Japan                                            Shatin NT
2-1-1 Nagata-cho                                 Hong Kong
Chiyoda-ku
Tokyo 100-8962                                   White, Joseph
Japan                                            E-mail: joseph.white@case.edu
                                                 Address: 22356 Fairmount Blvd.
Tanaka, Shigeru                                  Shaker Heights
E-mail: dzm01032@nifty.com                       OH 44118
Address: Graduate School of Business             USA
Administration
Keio University                                  Wong, Joseph
2-1-1 Hiyoshi Honcho                             E-mail: joe.wong@utoronto.ca
Kouhoku-ku                                       Address: 95 Lesmount Avenue
                                                 Toronto
Tanaka, Kotaro                                   Ontario
E-mail: ktanaka@yamaguchi-pu.ac.jp               Canada M4J 3V8
Address: Faculty of Social Work
Yamaguchi Prefectural University                 Yoshimura, Yukio
3-2-1 Sakura-batake                              E-mail: yyoshimura1@worldbank.org
Yamaguchi 753-8502                               Address: World Bank Tokyo Office
Japan                                            10F Fukoku Seimei Bldg.
                                                 2-2-2 Uchisaiwai-cho
                                                 Chiyoda-ku
                                                 Tokyo 100-0011
                                                 Japan




                                            190

                              Appendix 3 � Addresses of Participants


Secretariat's Address

Shinoda�Tagawa, Tomoko
E-mail: xr3y-tgw@asahi-net.or.jp
Address: Department of Health Policy and Management
School of Medicine
Keio University
35 Shinanomachi
Shinjuku-ku
Tokyo 160-8582
Japan

Transcribers'Addresses

Kodate, Naonori
E-mail: naonorsk@nifty.com                       Tomita, Naoko
Address: Graduate School of Law and              E-mail: Naoko.Tomita@lshtm.ac.uk
Politics                                         Address: Health Services Research Unit
University of Tokyo                              Department of Public Health and Policy
559 Bldg. #4                                     London School of Hygiene and Tropical
7-3-1 Hongo                                      Medicine
Bunkyo-ku                                        Keppel Street
Tokyo 113-0033                                   London WC1E 7HT
Japan                                            UK




                                             191

                             List of Working Paper Series 2004-2006



                                        Working Papers
                                Human Development Sector Unit
                                  East Asia and Pacific Region
                                        The World Bank


No. 2004-1:  Disability Issues in East Asia: Review and Ways Forward

No. 2004-2:  Cambodia Skills and Growth

No. 2004-3:  Evaluating the Performance of SGP and SIGP: A Review of the Existing Literature
             and Beyond

No. 2004-4:  Vietnam Reading and Mathematics Assessment Study � Volume 1

No. 2004-5:  Addressing Inequity in Access to Health Care in Urban China: A Review of Health
             Care Financing Reform Experiments

No. 2004-6:  Strengthening World Bank Support for Quality Assurance and Accreditation in
             Higher Education in East Asia and the Pacific

No. 2004-8:  Financing Health Care for Poor Filipinos

No. 2004-8:  Health Care Financing for the Poor in Vietnam

No. 2004-9:  Pro-Poor Health Financing Schemes in Thailand: A Review of Country Experience

No. 2004-10: Health Financing for the Poor in Indonesia

No. 2004-11: Making Injections Safe in China: How Much Will it Cost and Who Will Pay?

No. 2004-13: Private Sector Involvement in Education: A Review of World Bank Activities in East
             Asia and Pacific, 1996-2002

No. 2004-14: Current Trends, Future Opportunities Human Development Outcomes in the Pacific
             Islands

No. 2005-1:  China: Pension Liabilities and Reform Options for Old Age Insurance

No. 2005-2:  Cambodia: Balancing the Books: Household Financing of Basic Education in
             Cambodia

No. 2005-3:  Vietnam Learning to Teach in a Knowledge Society

No. 2005-4   Reforming Health Social Security: Proceedings of an International Seminar

No. 2006-1:  Mongolia: Assessment of the Child Money Program and Properties of Its Targeting
             Methodology

No. 2006-2   Indonesia: Quality Assurance and Accreditation in Higher Education in East Asia
             and the Pacific




                                              192